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  • lillyrosestairs
    Lilly Stairs
    @lillyrosestairs

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Such an honor to be a part of @jeshes10 and @egarciarivera’s special day ❤️Loved reuniting the crew and proud to have been dancing the night away with Jes since the early 2000s! 📸: @erinofboston
Such an honor to be a part of @jeshes10 and @egarciarivera’s special day ❤️Loved reuniting the crew and proud to have been dancing the night away with Jes since the early 2000s! 📸: @erinofboston
#wcw goes out to this gorgeous girl. Thank you @em.ivy for being my rock, bestie and rosé bae out here in SF! So thankful to have your beautiful spirit in my life ✨
#wcw  goes out to this gorgeous girl. Thank you @em.ivy for being my rock, bestie and rosé bae out here in SF! So thankful to have your beautiful spirit in my life ✨
Thank you to all of the amazing people who made it out to my 6th Annual Birthday Cruise last night 🥂🌊🎉
Thank you to all of the amazing people who made it out to my 6th Annual Birthday Cruise last night 🥂🌊🎉
Countdown to the 6th Annual Birthday Cruise is on 🎉🌊🥂
Countdown to the 6th Annual Birthday Cruise is on 🎉🌊🥂
Leilani is bad ass and I had a ball podcasting with her! 
#Repost @clarahealth with @get_repost
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Our Head of Patient Advocacy @lillyrosestairs sat down with patient advocate  @leilanirgraham to discuss her FOUR open heart surgeries in a week and a half, precision medicine, organ donation, life with chronic illness and more. Tune in to the #PatientsHavePower Podcast now to hear the full scoop!
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#Podcast #healthcare #healthpodcast #hearttransplant #organdonation #chroniclife #chronicillness #precisionmedicine #clinicaltrials #patientexperience
Leilani is bad ass and I had a ball podcasting with her! #Repost  @clarahealth with @get_repost ・・・ Our Head of Patient Advocacy @lillyrosestairs sat down with patient advocate @leilanirgraham to discuss her FOUR open heart surgeries in a week and a half, precision medicine, organ donation, life with chronic illness and more. Tune in to the #PatientsHavePower  Podcast now to hear the full scoop! . . . #Podcast  #healthcare  #healthpodcast  #hearttransplant  #organdonation  #chroniclife  #chronicillness  #precisionmedicine  #clinicaltrials  #patientexperience 
Wishing I was back on the beach with these beautiful people 💜🌊☀️
Wishing I was back on the beach with these beautiful people 💜🌊☀️
I am absolutely disgusted that this administration is not defending the rights of patients living with pre-existing conditions. Without these protections made possible by the ACA, insurance companies could deny me coverage or hike up my premiums simply because I drew the unlucky straw and was diagnosed with chronic conditions. Without these protections, millions of people could go bankrupt from ONE hospital visit. .
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My colleague @sakeichiban recorded a podcast on pre-existing condition protections as well as the controversial Right To Try legislation that just passed. I encourage you to listen in to get up to speed on some of the healthcare policy concerns currently at play.
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Link in bio!
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#preexistingcondition #preexistingconditions #healthcare #healthcareadministration #ACA #healthcareforall #podcast #healthpodcast #righttotry #crohnswarrior #spoonie #arthritiswarrior #chronicillness #chroniccondition
I am absolutely disgusted that this administration is not defending the rights of patients living with pre-existing conditions. Without these protections made possible by the ACA, insurance companies could deny me coverage or hike up my premiums simply because I drew the unlucky straw and was diagnosed with chronic conditions. Without these protections, millions of people could go bankrupt from ONE hospital visit. . . . My colleague @sakeichiban recorded a podcast on pre-existing condition protections as well as the controversial Right To Try legislation that just passed. I encourage you to listen in to get up to speed on some of the healthcare policy concerns currently at play. . . . Link in bio! . . . . #preexistingcondition  #preexistingconditions  #healthcare  #healthcareadministration  #ACA  #healthcareforall  #podcast  #healthpodcast  #righttotry  #crohnswarrior  #spoonie  #arthritiswarrior  #chronicillness  #chroniccondition 
HAPPY BIRTHDAY @cole_stairs!! Hope you had an amazing day 🎉So proud of you and all you have accomplished in your first year of college 🏀📘. Just think only 364 days until the family can drink legally together! 🥂🥂
HAPPY BIRTHDAY @cole_stairs!! Hope you had an amazing day 🎉So proud of you and all you have accomplished in your first year of college 🏀📘. Just think only 364 days until the family can drink legally together! 🥂🥂
If you’re not listening to the #PatientsHavePower podcast you should be. What do we talk about? Backstreet Boys, guinea pigs, orgasms and you know clinical trials.

Listen in!! https://itunes.apple.com/us/podcast/thirteen-guinea-pigs-backstreet-boys-orgasms-oh-my/id1321097377?i=1000411843519&mt=2 😘🎙 #podcast #healthcarepodcast #spoonie #crohnswarrior #arthritiswarrior #IBD #clinicaltrials #patientadvocacy #patientadvocate #backstreetboys
I am so saddened to hear about Kate Spade’s passing. She was an inspiration, icon, and shining example of a fierce female leader. I exclusively buy her purses because they make me feel happy, bold, sophisticated, and like a boss all at once. 
I know that I am just one of millions of lives that Kate Spade influenced. I’ve included some of her quotes that have always inspired me 💗♠️ It is devastating to hear that she was battling mental illness. This is such an important reminder that #MentalHealthMatters. Let’s keep the conversation going and work together to facilitate change.
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#KateSpade #MentalHealth #mentalhealthawareness #mentalhealthstigma #fashionicon #inspiration #ladyboss #chronicboss #sparkle #bebright #bebold
I am so saddened to hear about Kate Spade’s passing. She was an inspiration, icon, and shining example of a fierce female leader. I exclusively buy her purses because they make me feel happy, bold, sophisticated, and like a boss all at once. I know that I am just one of millions of lives that Kate Spade influenced. I’ve included some of her quotes that have always inspired me 💗♠️ It is devastating to hear that she was battling mental illness. This is such an important reminder that #MentalHealthMatters . Let’s keep the conversation going and work together to facilitate change. . . . #KateSpade  #MentalHealth  #mentalhealthawareness  #mentalhealthstigma  #fashionicon  #inspiration  #ladyboss  #chronicboss  #sparkle  #bebright  #bebold 
As seen in my favorite dance studio in San Francisco!! Love a good motivational quote. It’s Monday. Time to make it happen ✨🙌🏻
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#makeithappen #mondaymotivation #chronicboss #patientadvocacy #patientshavepower
When you’re featured in the Billboard Music Awards booklet appropriately next to your favorite Zumba artists 💃🏼🎉Hats off to the American Autoimmune Related Diseases Association for making this happen! .
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#autoimmuneawareness #autoimmunewarrior #autoimmunedisease #patientadvocacy #patientshavepower #arthritiswarrior #crohnswarrior #IBD #CrohnsDisease #psoriasis #psoriaticarthritis #chronicillness #chronicwarrior #spoonie #billboardmusicawards #billboards2018
When you’re featured in the Billboard Music Awards booklet appropriately next to your favorite Zumba artists 💃🏼🎉Hats off to the American Autoimmune Related Diseases Association for making this happen! . . . #autoimmuneawareness  #autoimmunewarrior  #autoimmunedisease  #patientadvocacy  #patientshavepower  #arthritiswarrior  #crohnswarrior  #IBD  #CrohnsDisease  #psoriasis  #psoriaticarthritis  #chronicillness  #chronicwarrior  #spoonie  #billboardmusicawards  #billboards2018 
I missed #WorldIBDDay and World Autoimmune Arthritis Day this past weekend but for good reason. I was spending time with my family who came to visit in San Francisco. We walked over 100,000 steps, toured museums, enjoyed happy hours and time together. I am eternally grateful for the fact that I was able to spend this weekend without any worry that my #autoimmunediseases would get in the way. I can’t think of a better way to have celebrated these two awareness days!!!
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#ChronicBoss #WAAD #worldautoimmunearthritisday #IBD #crohnswarrior #IBDwarrior #arthritiswarrior #arthritisawareness #autoimmune #autoimmunewarrior #patientadvocacy #chronicwarrior #spoonie #chronicillness #sanfrancisco
I missed #WorldIBDDay  and World Autoimmune Arthritis Day this past weekend but for good reason. I was spending time with my family who came to visit in San Francisco. We walked over 100,000 steps, toured museums, enjoyed happy hours and time together. I am eternally grateful for the fact that I was able to spend this weekend without any worry that my #autoimmunediseases  would get in the way. I can’t think of a better way to have celebrated these two awareness days!!! . . . #ChronicBoss  #WAAD  #worldautoimmunearthritisday  #IBD  #crohnswarrior  #IBDwarrior  #arthritiswarrior  #arthritisawareness  #autoimmune  #autoimmunewarrior  #patientadvocacy  #chronicwarrior  #spoonie  #chronicillness  #sanfrancisco 
I am SO excited to share the launch of my new website and hashtag mantra #ChronicBoss! I hope to be able to use this new platform to inspire fellow chronic illness patients to OWN being the boss of their lives and patient journey! .
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#ChronicBoss #PatientsHavePower #chronicillness #chronicwarrior #autoimmunewarrior #autoimmunedisease #crohnswarrior #ibdawareness #psoriasiswarrior #psoriaticarthritis #worldibdday #arthritiswarrior #arthritisawareness #spoonie #newwebsite #websitelaunch #patientadvocacy #contentcreator
I am SO excited to share the launch of my new website and hashtag mantra #ChronicBoss ! I hope to be able to use this new platform to inspire fellow chronic illness patients to OWN being the boss of their lives and patient journey! . . #ChronicBoss  #PatientsHavePower  #chronicillness  #chronicwarrior  #autoimmunewarrior  #autoimmunedisease  #crohnswarrior  #ibdawareness  #psoriasiswarrior  #psoriaticarthritis  #worldibdday  #arthritiswarrior  #arthritisawareness  #spoonie  #newwebsite  #websitelaunch  #patientadvocacy  #contentcreator 
Happy Mother’s Day to my beautiful Mom @stairs.karen! Thank you for being my best friend, my rock, my stylist, and my hero💜Hoping your day is amazing! You deserve the world!!
Happy Mother’s Day to my beautiful Mom @stairs.karen! Thank you for being my best friend, my rock, my stylist, and my hero💜Hoping your day is amazing! You deserve the world!!
A big THANK YOU to @remedyhealthmedia for profiling my journey with multiple autoimmune diseases as part of their #LiveBoldLiveNow campaign! Couldn’t be a more fitting title - “I knew I had a higher calling”. So grateful for the opportunity I have to work with and fight for patients every day!! 💜link to story in my bio! .
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#crohnswarrior #arthritiswarrior #arthritisawareness #ibdawareness #IBD #patientshavepower #worldibdday #chronicillness #chronicwarrior #autoimmunewarrior #autoimmunedisase #dowhatyoulove #lovewhatyoudo #reasonforbeing
A big THANK YOU to @remedyhealthmedia for profiling my journey with multiple autoimmune diseases as part of their #LiveBoldLiveNow  campaign! Couldn’t be a more fitting title - “I knew I had a higher calling”. So grateful for the opportunity I have to work with and fight for patients every day!! 💜link to story in my bio! . . . #crohnswarrior  #arthritiswarrior  #arthritisawareness  #ibdawareness  #IBD  #patientshavepower  #worldibdday  #chronicillness  #chronicwarrior  #autoimmunewarrior  #autoimmunedisase  #dowhatyoulove  #lovewhatyoudo  #reasonforbeing 
Friday was an emotional day for me. I met two beautiful women who have endured some of the most trying patient stories I have ever encountered. .
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@leilanirgraham, who, at the ripe age of 25 has endured four cardiac arrests, four open heart surgeries and is a heart transplant recipient and @coff33sister, a woman living with multiple chronic illnesses who walked out of an emergency surgery where she nearly bled out and found herself homeless.
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These fiercely brave women did not let these experiences defeat them. Both are full of life and gratitude and have leveraged their experiences to give back. To advocate for others.
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I am honored to know them and to have the opportunity to work with them by way of @clarahealth. Stay tuned for more soon 💜❤️
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#patientshavepower #chronicillness #chronicwarrior #hearttransplant #transplantlife #hearttransplantrecipient #spoonie #endometriosis #endometriosisawareness #chronicmigraine #spoonie
Friday was an emotional day for me. I met two beautiful women who have endured some of the most trying patient stories I have ever encountered. . . . @leilanirgraham, who, at the ripe age of 25 has endured four cardiac arrests, four open heart surgeries and is a heart transplant recipient and @coff33sister, a woman living with multiple chronic illnesses who walked out of an emergency surgery where she nearly bled out and found herself homeless. . . . These fiercely brave women did not let these experiences defeat them. Both are full of life and gratitude and have leveraged their experiences to give back. To advocate for others. . . . I am honored to know them and to have the opportunity to work with them by way of @clarahealth. Stay tuned for more soon 💜❤️ . . . #patientshavepower  #chronicillness  #chronicwarrior  #hearttransplant  #transplantlife  #hearttransplantrecipient  #spoonie  #endometriosis  #endometriosisawareness  #chronicmigraine  #spoonie 
So thankful to have had the opportunity to keynote the Interdisciplinary Autoimmune Summit! A dream come true to speak to physicians across specialties eager to learn about the autoimmune diseases impacting their patients even if it is not a disease they treat. It’s refreshing to see the community viewing autoimmune diseases from an umbrella perspective.
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My talk focused on illuminating patient burden, identifying tangible solutions that physicians can help with, and engaging in genuine shared decision making.
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Excited to share more soon! 
#keynotespeaker #IAS2018 #patientadvocate #patientadvocacy #PatientsHavePower #shareddecisionmaking #physicians #autoimmunedisease #autoimmunewarrior #crohnsdisease #IBD #psoriasis #psoriaticarthritis
So thankful to have had the opportunity to keynote the Interdisciplinary Autoimmune Summit! A dream come true to speak to physicians across specialties eager to learn about the autoimmune diseases impacting their patients even if it is not a disease they treat. It’s refreshing to see the community viewing autoimmune diseases from an umbrella perspective. . . . My talk focused on illuminating patient burden, identifying tangible solutions that physicians can help with, and engaging in genuine shared decision making. . . . Excited to share more soon! #keynotespeaker  #IAS2018  #patientadvocate  #patientadvocacy  #PatientsHavePower  #shareddecisionmaking  #physicians  #autoimmunedisease  #autoimmunewarrior  #crohnsdisease  #IBD  #psoriasis  #psoriaticarthritis