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#hugoetemmauncombatpourlavie #hugoetemma #sanfilipposyndrome #maladiedesanfilippo #don #dons #maladie #essaiclinique #essaiscliniques #4000000€#aide #desespoir#espoir #entraide #helloasso #partage #enfant #mere#pere #donner #photography #photo #solidarité #amour Https://www.helloasso.com/associations/vaincre-les-maladies-lysosomales/collectes/hugo-et-emma-un-combat-pour-la-vie