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  • extraevielove
    Extraordinary Evangeline Love
    @extraevielove

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Not long ago, it wasn’t uncommon for a child with Down syndrome to be hidden or sent away. Today, we put our sweet baby girl in a magazine for ALL to celebrate!!! 🎉🎉🎉
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Times are changing y’all, and it’s incredible companies like @refinerykids that are a big part of that change! 😊❤️
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #SaveDownSyndrome #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou @brparents
Not long ago, it wasn’t uncommon for a child with Down syndrome to be hidden or sent away. Today, we put our sweet baby girl in a magazine for ALL to celebrate!!! 🎉🎉🎉 . Times are changing y’all, and it’s incredible companies like @refinerykids that are a big part of that change! 😊❤️ . . . #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #SaveDownSyndrome  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou  @brparents
Hi 👋🏼 Evie Love’s the name and perfect, almond-shaped eyes are MY game!
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Despite eye issues being common for cool kids with that extra 21st chromosome (Down Syndrome), this girl killed her annual eye appointment!!!! Great eye development, strength, vision, and focus! 💪🏼👀💪🏼 We couldn’t be more thankful for the good news, but it’s something we will definitely keep an EYE on. 😉
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #SaveDownSyndrome #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou
Hi 👋🏼 Evie Love’s the name and perfect, almond-shaped eyes are MY game! . Despite eye issues being common for cool kids with that extra 21st chromosome (Down Syndrome), this girl killed her annual eye appointment!!!! Great eye development, strength, vision, and focus! 💪🏼👀💪🏼 We couldn’t be more thankful for the good news, but it’s something we will definitely keep an EYE on. 😉 . . . #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #SaveDownSyndrome  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou 
*Whispering Update*
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Today when we were picking Evie up from daycare, we were lucky enough to run into her speech therapist, Joy. While we were talking about how AMAZING Evie is doing, wouldn’t ya know, Evie held up her cute little fist and whispered “bump” (she LUUUVS to give fist bumps 👊🏼🤣.) In response, Joy signed “voice”, told Evie to “use her voice” and talk louder, then said “bump” a few times. And guess what?!?! That little smarty 👖 said “BUMP” loud and clear! And now it’s her favorite new word, she hasn’t stopped saying it. She’s SOOOOOO proud of herself she starts clapping like a mad man and in the celebration totally forgets to even give us a fist bump 😂 🤦🏼‍♀️
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In other HUGE news, Evie signed “me, more, bike” - her first three word phrase! And she did it because she wanted to play on a bike her Physical Therapist introduced her to this morning. Her vocab is just taking off and we are so excited to watch her learn new things every day. Her current sign count is 39 words. Someone call 9-1-1 because this girl is on 🔥!
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #SaveDownSyndrome #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou
*Whispering Update* . Today when we were picking Evie up from daycare, we were lucky enough to run into her speech therapist, Joy. While we were talking about how AMAZING Evie is doing, wouldn’t ya know, Evie held up her cute little fist and whispered “bump” (she LUUUVS to give fist bumps 👊🏼🤣.) In response, Joy signed “voice”, told Evie to “use her voice” and talk louder, then said “bump” a few times. And guess what?!?! That little smarty 👖 said “BUMP” loud and clear! And now it’s her favorite new word, she hasn’t stopped saying it. She’s SOOOOOO proud of herself she starts clapping like a mad man and in the celebration totally forgets to even give us a fist bump 😂 🤦🏼‍♀️ . In other HUGE news, Evie signed “me, more, bike” - her first three word phrase! And she did it because she wanted to play on a bike her Physical Therapist introduced her to this morning. Her vocab is just taking off and we are so excited to watch her learn new things every day. Her current sign count is 39 words. Someone call 9-1-1 because this girl is on 🔥! . . . #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #SaveDownSyndrome  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou 
You call it beignets. We call it a lifestyle. 🤤
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[WHISPERS] This little 👸🏼 has been SO amazing lately, saying tons of new words like “book” and “help” and “up” and “bump”!!! 👏🏼👏🏼👏🏼 BUUUUUTTT... they all come out in whispers and we’re not exactly sure why 🤷🏼‍♀️
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She babbles loudly and she loves to walk around the house yelling for her older sister, “A-DA! .... A-DA! .... A-DA!!!! (Her version of “Victoria”.) So we know she CAN turn the volume up, but for some reason with new words and sounds it’s just not there.
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Our best guess? Low muscle tone. Because most children with Down syndrome have low muscle tone, they have to work so much harder than their peers to coordinate mouth muscles and form sounds. So we think all that extra effort Evie Love is putting into saying new things is causing everything to start off as just the faintest of whispers.🗣
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Regardless, it’s okay. We’re just so proud of all her hard work, and if we happen to have a good new reason to snuggle up close to her, uhhhhm that’s cool, too! 🤩
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #SaveDownSyndrome #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou #
You call it beignets. We call it a lifestyle. 🤤 . [WHISPERS] This little 👸🏼 has been SO amazing lately, saying tons of new words like “book” and “help” and “up” and “bump”!!! 👏🏼👏🏼👏🏼 BUUUUUTTT... they all come out in whispers and we’re not exactly sure why 🤷🏼‍♀️ . She babbles loudly and she loves to walk around the house yelling for her older sister, “A-DA! .... A-DA! .... A-DA!!!! (Her version of “Victoria”.) So we know she CAN turn the volume up, but for some reason with new words and sounds it’s just not there. . Our best guess? Low muscle tone. Because most children with Down syndrome have low muscle tone, they have to work so much harder than their peers to coordinate mouth muscles and form sounds. So we think all that extra effort Evie Love is putting into saying new things is causing everything to start off as just the faintest of whispers.🗣 . Regardless, it’s okay. We’re just so proud of all her hard work, and if we happen to have a good new reason to snuggle up close to her, uhhhhm that’s cool, too! 🤩 . . . #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #SaveDownSyndrome  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou  #
Last night, when I asked Evie if she was done with bath time, she clear as day signed something new in response 🤙🏼 and went back to her bath toys. One good Google later and I was back up-to-speed. This extraordinary, little one-year-old had just taught me sign language for “PLAY.” 😊 Yes, ma’am, you can play forever.
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou #SaveDownSyndrome
Last night, when I asked Evie if she was done with bath time, she clear as day signed something new in response 🤙🏼 and went back to her bath toys. One good Google later and I was back up-to-speed. This extraordinary, little one-year-old had just taught me sign language for “PLAY.” 😊 Yes, ma’am, you can play forever. . . . #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou  #SaveDownSyndrome 
Accessorizing with a soft ice chest is a fun and easy way to say, “Yes, I’m fashionable but my fruit snacks must be chilled, darling.” 💁🏼‍♀️
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou #SaveDownSyndrome
🎇🎆 MILESTONE 🎆🎇
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We’re all sun-kissed and independent over here for this Fourth of July! ❤️💙 Evie Love is officially WALKING more than crawling!!! And we couldn’t be more proud of this little firecracker. 💥😊💥
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R.I.P. Crawling (2017-2018)
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou #SaveDownSyndrome
🎇🎆 MILESTONE 🎆🎇 . We’re all sun-kissed and independent over here for this Fourth of July! ❤️💙 Evie Love is officially WALKING more than crawling!!! And we couldn’t be more proud of this little firecracker. 💥😊💥 . R.I.P. Crawling (2017-2018) . . . #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou  #SaveDownSyndrome 
I know one of them just wanted the band to cover @annieleblanc’s new single and the other was holding out hope for Little Bunny Foo Foo. 🤞🏼 But that’s okay. It was still a special moment between sisters. Sisters that are more alike than different. 💞
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou #SaveDownSyndrome #disneysprings
I know one of them just wanted the band to cover @annieleblanc’s new single and the other was holding out hope for Little Bunny Foo Foo. 🤞🏼 But that’s okay. It was still a special moment between sisters. Sisters that are more alike than different. 💞 . . . #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou  #SaveDownSyndrome  #disneysprings 
So we were picked for the Incredibles Diaper Dash - the cutest little crawling race in all of Disney World!!! Evie Love was so hilarious, crawling to the finish line only to turn around, crawl back, wave to everybody and then totally cheat by standing up and WALKING to the finish line!!! 🤣🙈😂 We won the most precious Jack Jack bib and may have pretended Evie Love’s walking was a Disney miracle!!! ✨😬✨
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou #SaveDownSyndrome #incredibles #disneyworld #diaperdash @theincredibles
So we were picked for the Incredibles Diaper Dash - the cutest little crawling race in all of Disney World!!! Evie Love was so hilarious, crawling to the finish line only to turn around, crawl back, wave to everybody and then totally cheat by standing up and WALKING to the finish line!!! 🤣🙈😂 We won the most precious Jack Jack bib and may have pretended Evie Love’s walking was a Disney miracle!!! ✨😬✨ . . . #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou  #SaveDownSyndrome  #incredibles  #disneyworld  #diaperdash  @theincredibles