Episode 023 - Adaptive clothing...one of our own is revolutionizing the industry in a BIG way! As a leader in the fashion industry for 20+ years, in 2014 @mindyscheier found herself on a journey discovering the huge need for adaptive clothing when her then 8 year son, Oliver, expressed the daily act of getting dressed and buttoning jeans was too hard and setting him apart from his peers. Oliver was diagnosed a few years prior with a rare form of congenital muscular dystrophy, #SEPN1 related myopathy. This episode covers the Scheier family’s diagnostic journey, Mindy's discovery into the world of #adaptiveclothing and the formation of the Runway of Dreams Foundation. This mama bear on a mission shares how she set out to change and influence the fashion industry, inspire via TED talks, and impact brand names such as: Tommy Adaptive | #TommyHilfiger USA, Target Adaptive, #Zappos Adaptive, and #Nike FlyEase. @runwayofdreams aims to be the authority on incorporating modifications to mainstream clothing for the differently-abled community, changing the landscape of fashion as being ALL-INCLUSIVE.
So many feels with this. 🤗
Just let that sink in.......
Anybody else feel this way trying to keep track of everything? With sick kiddos, work, school, and house, this is my brain this evening. Where is the music coming from?!
Who here has listened to our #resilience episode from last week? One point we talked about is the importance of #selfcare in building your resilience muscle, so that we can "bounce back" from difficult experiences. Self care can look differently for everybody - here are some ideas: - Physical self care (get enough sleep!) - Emotional self care (know your vulnerabilities, get help early if feeling overwhelmed, relaxation skills) - Social self care (humor can be a useful respite, be aware of isolation, lean in on friends/family in times of struggle) - Spiritual self care (read inspirational quotes, practice gratitude, connect with nature, use creativity)
All. Of. This!!! https://themighty.com/2017/10/i-parent-a-child-with-a-disability-and-yes-it-is-full-time-work/?utm_source=engagement_bar&utm_medium=facebook&utm_campaign=facebook_share
🎧🎙 Episode 022 - Building resilience in the new year As we start off a new year, it’s time to evaluate our capacity to prepare for disruptions, recover from shocks and stresses, and adapt and grow from disruptive experiences. This episode reviews tips @manleymama3 & @iowa_megan recently learned in a #resilience workshop on what we can do to strengthen our resilience muscles, so we can flex them when we find ourselves down the metaphorical “hole” of special needs parenting. Listen to this podcast on Apple iTunes, Google Play or Stitcher. Stream on www.curecmd.org/podcast
You are big and strong my boy! Today I gave the receptionist at Matthew's PT office a heads up that "Matthew was forgotten at home so I brought Batman to PT instead". He gave the therapist a heads up and he played along with the whole thing. Even down to having Batman take off his mask and sweatshirt to stretch and noticing the tie Matthew was wearing, and saying how excited he was to meet Batman and Bruce Wayne today. Love that his therapist is such a big kid and makes Matthew's day!
This is spot on. But the truth! Just as @manleymama3 was vulnerable last and this morning, this mama (@iowa_megan) will be too. Two medical/educational/IEP changes with my daughter are taking my mental energy while I am also feeling tapped out at work. Today was my first day back at work after 10 days of vacation and I am already exhausted - looking to the next time I have days off. Who is with me?!!! Who else is struggling to keep all things #mamabear afloat?
I saw this and it fit so much of what I was feeling last night. ❤️
Tonight was one of those nights that CMD kind of jumped out into my face and reminded me of it's presence in my life. There are so many days that go by and everything CMD is so integrated into our daily routine that I don't give it a second thought. Tonight I crawled into bed with Matthew, and as I wrapped my arms around his tiny body it just washed over me of how tiny he actually is. Then the sounds of his bi-pap seemed to be louder than normal, and the light from the screen seemed more medically glaring, and EVERYTHING just flooded in with it. How different our lives are. The fear. The joy. The remembering how fragile life is. The appreciating the tiny snuggles. All of it. These moments of overwhelming CMD in my face can be so exhausting, emotional, and lonely. After finishing up some things around the house, I came in to my room and thought of all of you. How I'm not alone. Not one bit. How Matthew isn't alone. How he will have a community that will be there for him when he has these days from his perspective. Thank you! Everyone of you, for being here. For sharing your stories with us. For boosting each other. Mostly for making these moments not so lonely.
2018 - what a year for @2raremamabears! We advocated on #capitolhill for #raredisease representing @curecmd and were inspired to do more so we started a #podcast ! 🎧🎙 There was a trip to #spokane with many adventures, and of course podcast planning. 2019 here we come!