Here’s an Instagram version of my Facebook video documenting last night’s game of Human Jenga (listen for the loud series of cracks that I talked over 🤦🏻♀️). This is how we Zebras have to learn what’s a “safe” pain vs a “bad” pain, between a series of subluxations throughout the body vs a dislocation vs something completely different, like costochondritis: a whole lot of trial and error. Just so y’all know, i HATE being on video. Like, phobia-level hate🙂🙃🙂🙂🙃. But I have it SO much easier because of the pain, hard work, and unimaginable courage of the Zebras who made it through this stage and are now helping me. So if this is what it takes for me to make things even a little easier for the next baby Zebra, this is what I will do. I have almost died once, arguably twice since this acute flare in August (one suicide attempt due to pain and one blood clot/infection from an IV site). And those are just the two times when I objectively could have died. That doesn’t even begin to take into account the reoccurring PTSD, or the countless times my pain levels have been so high I’ve worried this time it could really be fatal. If you think a little camera phobia’s going to hold me back now, HA! Buckle up b****es 😈. #ehlersdanlossyndrome#hEDS#zebralove
🦓🦓🦓Another Great Migration 🦓🦓. Approximately 300,000 zebras move along the same route as the wildebeest migration between Tanzania & Kenya. There is another zebra migration that takes place in central and northern Botswana as around 20,000 zebras move with the rain between the grasslands of the Makgadikgadi Salt Pan in the Kalahari Desert and the Boteti River or Okavango Delta.
Filmed by @pnavdp (thank you 😁)