T H I S G I R L I S A M A Z I N G 💛
On the 24th of July at 3 weeks old Esme got rushed into intensive with NEC & a collapsed lung she was ventilated for 6 weeks which meant she had to be fully paralysed & sedated during that time she underwent surgery... went on the oscillator which is a higher ventilator than conventional she wasn't getting any better so the doctors decided to put her on the last treatment that the hospital offer Nitrous Oxide aswell as mini dex & maxi dex! She also had physio on her chest! We was so close to loosing her getting phone calls off the nurses telling us that it was hour by hour with her this was the most scariest time of our lives the nurses didn't think she's make it! Then on the 28th August Esme had her breathing tube out! She went onto high flow and then went onto lo flow... She came home the 6th October on oxygen a tiny amount 0.08! After an over night trace Esme came off oxygen through the day on the 27th October... TODAY I got a phone call of outreach saying her over night trace which I did on Sunday was brilliant and that Esme no longer requires oxygen 😁 There literally are no words that I can use to say how proud and lucky we are to have her she literally is a miracle & I'm forver grateful to the NHS & the Neonatal nurses at LGI for saving my precious baby girl that I longed to have! 💛 #esmelou#teamesme#prematurebaby#premature#neonatal#neonatalicu#10weeks4daysearly#chroniclungdisease#daughter#mygirl#soproud#oxygen#shesamazing#forevergrateful#LGI#neonatalnurses
#TeamEsme CAN YOU HELP??? Next Saturday (October 6th) we are doing a bucket collection at the #STFC game at the County Ground.
We need some volunteers to help with the collection? If you are free & interested to help out for an hour or so from 1.30pm please get in touch..
They’ll be a slice a birthday cake in it as it’s also Esme’s 3rd birthday! Esme is going to be a Mascot for #STFC aswell!! ⚽️ 🥅 🎂🎁🎉 💖💖 #sdrchangeslives#fundraising#football#stfc#3rdbirthday
It’s truly a blessing to be apart of this team & experience such growth.
Tonight will be something else & we’re only planning to move forward. @esmemusic @bryancruz_218 | #djzero#teamzero#teamesme#blessed
Yesterday was esme lous due date 💛 these passed 10 weeks have been the most hardest scariest and worrying time in my whole life but at the same time the most proudest & rewarding to think that my tiny little girl pulled through been on the last treatment the hospital offer for 6 whole weeks and been taken down to theatre at just 3 weeks old to now having bottles and breathing for herself now we're in talks of esme going to st James to get her ready to come! My hearts just bursts with pride and love every time anyone asks me how she's doing! #mytinygirl#prematurebaby#neonatalicu#lgi#10weeks4daysearly#duedate#mummysgirl#daughter#esmelou#teamesme#proudestmummy#shellbehomesoon
Fortunate enough to be Walking and Rolling with TeamEsme and fam at the annual Shane's Inspiration event at Griffith Park. Team Esme outdoes themselves every year by creatively bringing together friends and family to support such a great cause. @aldosaurus_rex really got creative with the logo and shirt printing this year 👌🏽 #TeamEsme
As someone who strongly believes in the power of "play", it's great to play a small part in this organization that builds inclusive playgrounds and programs for kids with all abilities. Until next year!
Afternoon Tea! That was an amazing busy afternoon but great fun. Thank you to everyone who came along, I hope you enjoyed all the food. Thank you so much to my amazing brother @chef_michaellecouteur & his friend Adrian for making all the food. Thank you to Naomi, Emma, Julie & Sara for helping set up, serve & generally making the afternoon run smoothly. We raised £522, thank you everyone! #afternoontea#fundraiser#stepsforesme#teamesme#sdrchangeslives
September is Childhood Cancer Awareness Month!
This blurry photo from December 2013 was the start of Esme's fight against osteosarcoma. A few weeks earlier, she hurt her arm during gymnastics. It left a lump that didn't seem to be getting much better. With her school lunch and backpack packed, Esme had planned on returning to school after a quick doctor's visit to look at her arm. As soon as the doctor walked into the room after the X-ray we could tell something was terribly wrong. It appeared to be osteosarcoma - cancer of the bone. We were immediately sent to Atlanta for more scans and a biopsy...
Final update from #teamesme
3 mountains taken on & 3 mountains completed in just under 24hrs 😵👊 Sadly no photos from the top of Snowdon as it was dark & wet (this was taken on their training session up Snowdon). .. so whilst we were all sleeping these guys were on their 3rd mountain in the wet, dark & cold.. amazing job guys, you should all be very proud of yourselves. If you want to show your appreciation you can still donate to any of the guys pages. Thank you #teamesme you are awesome 💖💖💖💖💖 #3peakschallenge#snowdon#fundraising#stepsforesme
Hello family and friends, on September the 9th we will be attending this year’s 21st Annual Run, Walk & Roll at Griffith Park. Shane’s Inspiration’s mission is to create social inclusion for children with disabilities through the creation of inclusive playgrounds and educational programs that unite children of all abilities.
If you would like to come and join us this year in being part of #TeamEsme , please notify me as well as providing a head count, the more the merrier. We keep getting bigger and bigger every year, let’s keep it going. We will walk as a group in support and gather afterwards to celebrate. It is super fun and for an amazing cause. As well as there are multiple ways of showing your support. You can donate to #TEAMESME ’s page, link on bio. We all greatly appreciate any bit you are able to give as it all goes towards Shane’s Inspiration! Thank you.
WHERE: Shane’s Inspiration Playground in Griffith Park
4730 Crystal Springs Drive, Los Angeles, CA 90027
(Park by Merry-Go-Round)
WHY: Raise funds to create inclusive playgrounds and educational programs that foster social inclusion for children with disabilities.
Here is the timeline for the event on Sunday, September 9, 2018 in Griffith Park: 6:00 AM Registration begins
6:45 AM Warm-Up for 5k/10k Run
7:00 AM 5k/10k RUN BEGINS; Exhibition Fair opens
7:45 AM Warm-up for Walk & Roll
8:00 AM Opening Ceremony
8:30 AM WALK & ROLL BEGINS
9:00 AM Post-Event Picnic & Festivities begin
10:30AM Closing Ceremony
11:00 AM Event Concludes
July has been an amazing month for the Steps for Esme campaign.
We started July on £18k & we end it on a huge £35k. 😵💖😵💖😵💖😵💖 We would like to thank the following people for their contributions to this total, Mark, Kiz & the team & customers at The Windmill Pub for having collection buckets on the bar, Bridlewood Primary School & Ash Class for making & selling tiles made during Independent Study Week, Haydon Wick Primary School & Mrs Shepard for her support & having a collection bucket at events during July, Harry & Matilda for their 14 mile bike ride, Martine Rowlands & her clients for having a collection tin during July, The Scott Grieg Memorial Fund for their cream tea, The Schuh Trust for their amazing generous grant & to my fellow Skydiver’s for jumping out of a plane.
We are so grateful & blessed to have such amazing support behind us for our little girl, a year ago when we started talking about doing this, we both thought it was impossible, but here we are doing it & achieving the impossible. Thank you just isn’t enough, but thank you, thank you, thank you, to everyone who has liked, shared, donated & fundraised. Without you all we wouldn’t be where we are today.
August is about Three Peaks Challenge, a marathon walk & a boxing match!
¡En la guerra, en el amor y en #CorreYCántala todo se vale! Sino nos creen pregúntele a @esmeoficial y #Gigio 😱😱😱😂😂😂 (Nadie salió lastimado después de la grabación de esta sección) 🙊🙊🙊 ¿#TeamEsme o #TeamGigo ? 🤩😂 @_CorazonGrupero
The #ffxivhyur are also fighting for the title of Eorzea’s Next Top Model this cycle!
Will it be the new comer #TeamEmphira who smile sends chills down your spine?
Will it be the classical #TeamEsme who uses limited gpose features?
Will it be newly fantasia’d #TeamMaxwell who won a cycle 3 years ago on the official forums and is back to try again as a Highlander?
Find out who goes home next on the next episode of ENTM Youtube Edition Cycle 3! New episodes every Friday!
This is me!
What an experience (not sure I’d repeat it in a hurry tho) but glad that I’ve done it 😊
Thank you to everyone who has donated to me & my other 11 skydivers today, once all the money is collected I will let you know how much we raised.
A huge thank you to my fellow skydivers, I couldn’t have done it without you. You are all amazing & have done a wonderful thing for Esme today.
And also thank you to the children today, who made & sold loom bands whilst they were waiting! They made £21 to go to Esme’s fund! 🙌🏼😊👍🏻
Yes, in just 2 sleeps time, this will be me, just jumping out of a plane 😬😬 The nerves are starting to kick in, the thought of hanging out the plane waiting to freefall 😩😩 what am I doing 😵😵
BUT Esme’s keeps saying she wants to jump out of a plane (ok she’s 2 she doesn’t get it) but this is something she will never be able to do sadly, so I’m doing it for her, for her now to raise money & for her in the future when she wants to but can’t because of CP. It’s best not to repeat what Amelie says, we’ll just go with her request to catch some cloud on the way down 😉😂 If you can spare the price of a coffee or beer that you might buy this weekend & donate to me jumping out of a plane, I’d be very grateful! 💖💖💖💖 #tandemskydive#fundraising#stepsforesme#teamesme#sdrchangeslives#cpwarrior#cpwarriorprincess#thismamacan
Quite possibly some great news for us! Yesterday the NHS announced as part of their 70 year celebrations that the SDR operation will finally now be funded by the NHS.
As yet we don’t know the full details to know if Esme will fit the criteria required, so until we hear otherwise we will carry on fundraising.
Even if Esme is accepted & we no longer need to pay for the operation, we still need to pay for the intense physio required after the op which was always required. SDR will remove the spasticity but will leave her weak & it is then the really hard work begins. Esme will need up to 2 years of intense physio beginning with at the very least 4+ weekly sessions of private physio, plus there are various other options available such as hydrotherapy, hippotherapy (equine assisted therapy) intense weekly courses of physio, conductive education plus all the equipment needed.. it could be extensive & all comes at a cost!! We are beyond grateful to each & every person who has taken the time to like, share, donate, do crazy things for sponsorship, but we will still need your love & support to keep us going.
As we find out more we will update you all.
But for now we carry on, so SkyDive next weekend 😬🙄 #sdrchangeslives#nhs#cerebralpalsy#cpwarrior#stepsforesme#teamesme
Wow 😵 just wow 😵
We start July on £18k that’s just phenomenal & when you add on the gift aid (don’t forget to tick that little box as it adds 25% to your donations) we are actually at just over £20k 😵
We can’t thank you enough for getting us this far. We still have lots coming up, SkyDive in 2 weeks time, boxing match & 3 peaks challenge in August. September will be an afternoon tea & the Swindon 1/2 marathon & we have a few things in the pipeline for October!
Fundraising has taken over our lives, but it’s all for a very good reason 💖💖💖💖💖 #fundraising#sdrchangeslives#cpwarrior#cpwarriorprincess#thisgirlcan#stepsforesme#teamesme
Hey everyone, just want to say a huge thank you to everyone who has donated.. £11k 😵
Yesterday we shared with you the Family Fun Day that The Windmill is kindly putting on for us to raise money for Esme. We have lots of things planned & a few head shaves & body waxes being done in the evening!! It’s going to a fun filled day so I hope you can join us.
We have the SkyDive & Three Peaks Challenge are creeping up slowly & early plans are being made for an Afternoon Tea in September!
If anyone has any other ideas or wants to do any fundraising for Esme please let us know.
But thank you all for £11k... #ontothenextone . We can’t do this without you. #teamesme
Have a great weekend! 💖💖💖💖💖 #sdrchangeslives#cpwarrior#cpwarriorprincess#thisgirlcan#teamesme#stepsforesme#skydive#threepeakschallenge#afternoontea#familyfunday
Steps for Esme’s Family Fun Day
Sat June 23rd at The Windmill, Freshbrook, Swindon, starting at Midday.
We have live music, DJ, BBQ (weather permitting) lots of games & activities for the children, cake stall, book stall, bric-a-brac, tombola’s, raffles & lots lots more!
Come & join us for a fun day & help raise money for Esme 💖💖💖💖