Not many people know this about me but on January 11th, 2014 I was in a server snowmobile accident which has completely changed my life in many ways. I have acquired a variety of issues but the main one I want to talk about is TBI (traumatic brain injury). 👉A lot of people have noticed a change in how I act, speak, etc. and they just assume it’s me and when I say I had a SKULL fracture they just think it’s a joke when really it isn’t. It’s a serious issue and I have been doing some research on the side effects even though it’s been almost five years since my accident. 👉Some of the side effects of TBI that I have noticed that I have been having over the past year or so, maybe even longer are:
• Consistent headaches
• Sleep disorders
• Vision problems
• Mood problems
• Difficulty thinking and remembering
• Difficulty with social relationship
• The decreased ability or inability to keep a job • Difficulty making and keeping personal and professional relationships
• Difficulty being part of social activities
• Hormonal changes
• Chronic pain
• Appetite changes 👉These are problems I can no longer avoid and need to seek treatment before it gets worse. There are so many people who don’t understand TBI and when I explain that I had a skull fracture, everyone seems to think I use it as an excuse and it’s ruined my relationships with friends and my fiancé. 👉TBI is not a joke and if anyone has ever had a head trauma and have been noticing different changes with your body, attitude, etc. please make an appointment and get treatment. 💪I called and made an appointment with a Neurologist in my area and soonest I can get in is October 9th. I am just praying that there isn’t any more damage and can get the proper treatment. 👊💙 💋Pammi
From last weekend at one of my favorite (migraine triggering) places EVER, the local farmers market 🌻 Sometimes you have to do the life-giving things even when you know they'll cause more pain later. Am I right? 🤷🏻♀️💪🏼 What are yours?
Hey hi hello
I have a ton of new peeps following me so I thought I'd introduce myself :)
I'm from the good ole US of A
I work for the American Heart Association
I have very broad shoulders
I have blue eyes
I love my puppy to death
And I love to eat
I believe in embracing your odd
And that thoughts become things
And- I'm getting my yoga teacher cert specializing in traumatic brain injury. I've head 3 concussions the last 3 years which have greatly impacted me and I want to give back to the TBI community through trainings, personal meditation sessions, outpatient rehab collaborations, hospital partnerships, a book (!shh!), online courses, and more.
Stay tuned omies.
PC 📸 @karmacaptures
"Be a Fruit Loop in a world of Cheerios." | #toolsofthetrade for positivity in the workplace. Meet the Snap Jar. Here @raintreeanimalhospital, employees write "snaps" acknowledging other teammates on slips of paper to be read at the monthly meeting. How do you spur positivity in your hospital?
If you haven’t had the chance, be sure to listen to our latest episode with Kristin Gablehouse. She sets the mark high for perseverance and maintaining a positive mindset despite life’s unexpected journey with a traumatic brain injury. Truly worth the listen.
|A R T • T H E R A P Y|
The mask in which you choose to disguise yourself uncovers who you subconsciously are or want to be. Masks reveal in the eyes the face that lies hidden. That part of your soul that wants to be revealed.
As a traumatic brain injury survivor, art therapy is a way for us to help express and process our journey.
Here we create each others masks. Its about trusting each other and learning what each other is trying to express. As well as exposing ourselves as exactly who we are without having to be something different for the people around us.
With traumatic brain injuries, it can be such an isolating injury, that you feel like you have to put on a mask just to survive. This exercise helps one process through removing that mask and honoring who you really are. Realizing you are more than enough by just being you.
This is phase one, tomorrow we decorate them.
I was grateful to be able to work with Chris. He is also an amazing artist and his story is beyond inspiring.
I did this exercise 4 years ago, right after my accident. It’s interesting to see how different this one will turn out to be.
Traumatic Brain Injury (TBI) often affects how the eyes work and disrupts the visual process, interfering with how information is taken in and processed. This, in turn, causes issues relating to balance, dizziness, nausea, hand-eye coordination, reading speed/comprehension, light sensitivity, and fatigue. 👁
At Revive, we emphasize the importance of the eye-brain connection and incorporate neuro-optometric assessments to identify the areas of the brain that have been affected by the traumatic brain injury (TBI). The Videonystagmography (VNG), or testing of eye movement, gives us a representation of the function of eye muscles, cranial nerves, brainstem nuclei, cerebellum and cortical regions. By measuring things like gaze stabilization, smooth pursuits, saccades, and optogenetics, it helps us to differentiate the areas of weakness.This allows us to create a unique, targeted treatment plan developed specifically for each patient. 👁
Research has shown that the utilization of eye movements activates multiple regions throughout the brain, driving brain activation and growth. The coupling of specific eye movements with visual stimulation (colors, patterns, etc.) and specific movements allows us to activate targeted regions of the brain affected by concussions and traumatic brain injury. The individual is then able to gain more from other therapies, such as occupational therapy, physical therapy, cognitive therapy, etc. If vision is not addressed, it is often difficult to recover or to reach greater potential. 👁
I believe you learn the best through constructive criticism. I’ve been told I curse too much in my posts on several occasions and I value that critique but I also don’t give a flying fuck because I won’t change my core because someone doesn’t like it.
Point being: Being too serious all the time and flawless is disingenuous, robotic and fake. We are all humans who laugh, curse, eat, poop and have orgasms and why would I be anything less than who the fuck I am. You don’t get anywhere in life by being part of who you are... YOU GET PLACES BY BEING EXACTLY WHO THE FUCK YOU ARE and nothing less.
Only opinion that matters is YOURS, don’t change your core
@garyvee @etthehiphoppreacher @yankees @stevehappens @mykiez
One of the challenges of my post-concussive journey is that many health practitioners base their treatment plans on anecdotal data from self-reports - i.e., what I tell them when they ask about pain, symptoms, etc.
What’s your pain level? Uh, let me see, it’s a 6. Wait, maybe a 2. It really depends. Tomorrow, I may wake up feeling “normal” and realize that what I am feeling now is really a 9 because I have grown numb to it. For example, yesterday I awoke and felt like something was missing. While showering, I realized that my head didn’t hurt for the first time in weeks. I didn’t have a migraine. Prior to yesterday morning’s “clearing,” I would have said I barely had a headache - until I DIDN’T have one and then realized how much I had been migraining.
This process is mind-numbing 😉, especially when the injured brain is also the control center and communicator.
Once something is out of my mouth, the health practitioner is often off to the races creating a narrative that I may or may not really be a part of. I’m a trained therapist. I can see and sense when someone has stopped listening and has engaged in hypothesizing, story-telling, and decision-making. As with all of us, they have a box of understanding in which problems need to fit in order for them to try to help. It’s not wrong. It’s just not very effective when working with the brain, which I’m learning we know little about, especially how to “fix” it. Broken arm? We know what to do. Brain damage? Well, depends on who you talk to, how long they listen, and where they’re coming from. Let’s shoot in the dark in this direction. Nothing? Let’s aim left instead. Fire!
I’m now tracking specific information that is maybe more than anecdotal, particularly heart rate and its relationship to migraines and other PCS symptoms. This morning, I awoke with a stunning migraine. Heart rate: 47bpm. Current heart rate at noon: 51bpm. Yet, I’m still only seeing out of one eye and I’m not climbing a hill at 165bpm.
What’s it all mean? Migraines may be the tip of my PCS iceberg, or they may be the iceberg. Before 2015, I don’t remember ever even having a headache.
The journey continues 🙏🏽✌️
Getting it done, and making every day count! I should know by Wednesday about the results of the CT scan, and plan for upcoming surgery. In the meantime, going to get my body stronger & healthier!
We took a week off from our formal workouts, and started round 2 today, back to 4 days/week.
I didn't think I'd feel that as much as I did, but it happened! Sometimes back at it after a week feels like back at it after a year. .
A lot of people are still in the dark to what exactly happened to Marcus. He wants me to explain.
This picture was taken 12 hours after the accident on the morning of June 1, 2017. This is after major 3 hour surgery performed at 12am to save his life. He had a 50/50 chance of survival.
He was hit by a car on the night of May 31st down the street from our home. Run over actually from the police report. I was first on the scene because he was not home yet from going to the store. So I got curious to where he was and opened my front door to see red and blue lights flashing and a mob of people at the corner in the night. Marcus was standing and in shock, blood running down his mouth and ears and started to fight paramedics. My heart dropped and I started to lose my shit.
They put him on a stretcher and had to sedate him for his protection.
He spent weeks on the ICU/ recovery/ rehab.. his condition was grave and we were told to make preparations. We were NOT gonna give into that! We knew Marcus and he's a warrior. He fought so hard to live everyday! He sustained damage to his left frontal lobe of his brain and hemorrhaged as well. His jaw was fractured and needed to be wired shut. He was paralyzed on his right side on and off for a few days. Now he has what is called Aphasia. He needs a lot of therapy to regain speech and some cognitive ability. He's had his voice for only 6 weeks and everyday he amazes us with more words and phrases. He has trouble speaking, reading, and writing. He tries though very hard and with all of our love and support he will regain it ! His wonderful personality is untouched, his memories, his creative abilities are all there! As he says "I got this !" #hospital#almostdied#tbisurvivor