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1 day left until #30where aka my 30th birthday...this was my birthday 1 year ago. Thing about these photos is, I was super discontent at the time. I had just come back home from Botswana, and I was hypercritical and judgmental of the way we live over here when there is so much more to life and so much more to think about. Not to mention, I came back and was almost immediately released from a couple toxic friendships with people who weren’t ever supposed to be big parts of my life, and though that was a great thing, it still hurt. A year later, I’ve learned how to balance my discontentment and turn it into logical change in my perspectives and attitudes, and I realize I’m all the better for what and who I’ve learned to let go of and grow without. Here’s to the last day of my 20s. It’s been a wild ride. 🤸🏾‍♀️
1 day left until #30where  aka my 30th birthday...this was my birthday 1 year ago. Thing about these photos is, I was super discontent at the time. I had just come back home from Botswana, and I was hypercritical and judgmental of the way we live over here when there is so much more to life and so much more to think about. Not to mention, I came back and was almost immediately released from a couple toxic friendships with people who weren’t ever supposed to be big parts of my life, and though that was a great thing, it still hurt. A year later, I’ve learned how to balance my discontentment and turn it into logical change in my perspectives and attitudes, and I realize I’m all the better for what and who I’ve learned to let go of and grow without. Here’s to the last day of my 20s. It’s been a wild ride. 🤸🏾‍♀️
Happy to report that my ERCP went well yesterday, and has provided me relief from my itching symptoms. I am very sore, but very happy. It’s been at least 5 years since I’ve felt this good. Thanks for all the positive thoughts! 📸 credit: @orivon #ercp #primarysclerosingcholangitis #psc #invisibleillness
Happy to report that my ERCP went well yesterday, and has provided me relief from my itching symptoms. I am very sore, but very happy. It’s been at least 5 years since I’ve felt this good. Thanks for all the positive thoughts! 📸 credit: @orivon #ercp  #primarysclerosingcholangitis  #psc  #invisibleillness 
One of my clients recently asked me about curcumin. “Should I take curcumin supplements?”
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If I could guarantee that what’s on the label is actually what’s in a supplement, I would probably try curcumin supplements. Unfortunately, that’s just not reality. Everyday I get emails about supplements being recalled, sometimes for containing well-known carcinogenic agents. So, you have to decide whether the supplement is worth the risk.
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Instead, I recommend that my clients use turmeric in their meals.
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For breakfast, you could try scrambled turmeric eggs (👆🏻 shown above👆🏻). You can try having a turmeric “health shot” including turmeric, ginger, lemon juice, and agave. Oh could make a turmeric and tahini dressing for a power bowl for lunch and make a Indian-inspired dish containing turmeric for dinner.
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#crohns #colitis #ulcerativecolitis #crohnsdisease #ibd #inflammatoryboweldisease #ibs #irritablebowelsyndrome #psc #primarysclerosingcholangitis #liver #guthealth #autoimmune #chronicillness #chronicallyill #immune #toiletpaper #spoonie #spooning #turmeric #eggs #curcumin
One of my clients recently asked me about curcumin. “Should I take curcumin supplements?” . If I could guarantee that what’s on the label is actually what’s in a supplement, I would probably try curcumin supplements. Unfortunately, that’s just not reality. Everyday I get emails about supplements being recalled, sometimes for containing well-known carcinogenic agents. So, you have to decide whether the supplement is worth the risk. . Instead, I recommend that my clients use turmeric in their meals. . For breakfast, you could try scrambled turmeric eggs (👆🏻 shown above👆🏻). You can try having a turmeric “health shot” including turmeric, ginger, lemon juice, and agave. Oh could make a turmeric and tahini dressing for a power bowl for lunch and make a Indian-inspired dish containing turmeric for dinner. . . . #crohns  #colitis  #ulcerativecolitis  #crohnsdisease  #ibd  #inflammatoryboweldisease  #ibs  #irritablebowelsyndrome  #psc  #primarysclerosingcholangitis  #liver  #guthealth  #autoimmune  #chronicillness  #chronicallyill  #immune  #toiletpaper  #spoonie  #spooning  #turmeric  #eggs  #curcumin 
I find that if I don’t put my pills in a pill box I either forget them or decide that I can’t be bothered to take them all.. so this is the best solution! It’s sooo helpful, if any of you forget to take your meds I would recommend doing this!
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#spoonie #psc #uc #colitis #ulcerativecolitis #ocd #anxiety #primarysclerosingcholangitis #chronicillness #spoonielife
4 days to #30where aka my 30th birthday...this was my birthday 4 years ago. I had just met @lesliekristinagarcia and told her I didn’t ever have good birthdays...and she made a plan. I’ll stop there. Just know it was bomb and a sailor sang to me in the restroom. 🤗
4 days to #30where  aka my 30th birthday...this was my birthday 4 years ago. I had just met @lesliekristinagarcia and told her I didn’t ever have good birthdays...and she made a plan. I’ll stop there. Just know it was bomb and a sailor sang to me in the restroom. 🤗
5 days till #30where? AKA my birthday. This was my 25th birthday - the first one post-transplant. I was chubby from steroids (like today) and my face was swollen and I couldn’t eat because, being immunosuppressed, I caught something that gave me sores in my mouth. But my eyes were white. And I wore a tiara. So there.
5 days till #30where ? AKA my birthday. This was my 25th birthday - the first one post-transplant. I was chubby from steroids (like today) and my face was swollen and I couldn’t eat because, being immunosuppressed, I caught something that gave me sores in my mouth. But my eyes were white. And I wore a tiara. So there.
Fantastic PSC support information day at the Norfolk and Norwich University Hospital. •
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Primary sclerosing cholangitis (PSC) is a long-term progressive disease of the liver and gallbladder characterized by inflammation and scarring of the bile ducts which normally allow bile to drain from the gallbladder.
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Did you know that the relation between inflammatory bowel disease (IBD), mainly ulcerative colitis, and primary sclerosing cholangitis (PSC) is particularly close, as approximately two thirds of patients with PSC have, or will develop, ulcerative colitis, and PSC occurs in approximately 3–7% of patients with ulcerative colitis.
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#primarysclerosingcholangitis #liverdiseaseawareness #liverdisease #norfolkandnorwichuniversityhospital #fatigue #pscsupport #ukpsc #stoma #ulcerativecolitis #colitis #ileostomy #ibd #crohnsandcolitis
Fantastic PSC support information day at the Norfolk and Norwich University Hospital. • • Primary sclerosing cholangitis (PSC) is a long-term progressive disease of the liver and gallbladder characterized by inflammation and scarring of the bile ducts which normally allow bile to drain from the gallbladder. • • Did you know that the relation between inflammatory bowel disease (IBD), mainly ulcerative colitis, and primary sclerosing cholangitis (PSC) is particularly close, as approximately two thirds of patients with PSC have, or will develop, ulcerative colitis, and PSC occurs in approximately 3–7% of patients with ulcerative colitis. • • #primarysclerosingcholangitis  #liverdiseaseawareness  #liverdisease  #norfolkandnorwichuniversityhospital  #fatigue  #pscsupport  #ukpsc  #stoma  #ulcerativecolitis  #colitis  #ileostomy  #ibd  #crohnsandcolitis 
6 days to #30where? AKA my 30th birthday...and here’s my joint birthday with @charlie_giesler 6 years ago, the last one before my transplant. And yes. We still luh cake, but we both watching our sugar this year 😂 How many of y’all were at this party? 👀 #flashbackfriday
6 days to #30where ? AKA my 30th birthday...and here’s my joint birthday with @charlie_giesler 6 years ago, the last one before my transplant. And yes. We still luh cake, but we both watching our sugar this year 😂 How many of y’all were at this party? 👀 #flashbackfriday 
It can be really hard to gain (or even maintain) weight during a flare-but it can be done ✅
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Here’s some tips for preventing weight loss:
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1. Eat protein with every meal + snack.
👉🏼Why?
Protein will keep you feeling fuller for longer. It will also help prevent your body from breaking down your lean muscle for energy.
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2. Add more nutrient-dense calories to your meals.
👉🏼Why?
Adding nutrient-dense calories to your meal will help provide more vitamins and minerals that your body needs for recovery. For example, instead of having regular oatmeal with water, try using yogurt instead of water and add almond flour for more protein and nutrients.
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3. Drink some of your calories in between meals.
👉🏼Why?
It’s easier to drink more calories than eat them. This is especially true for people with IBD who can sometimes have a reduced appetite.
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4. Eat 6 times a day instead of just 3 or 4.
👉🏼 Why?
Sometimes it’s challenging to eat 3 large meals a day so instead, try making 6 moderately-sized meals spread out evenly every 2-3 hours to maximize your calorie intake. .
What do you do to prevent weight loss during a flare? .
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#weightgain #flareup #flareupnutrition #crohns #colitis #ulcerativecolitis #crohnsdisease #ibd #ibdflare #ibdflareup #inflammatoryboweldisease #ibs #irritablebowelsyndrome #psc #primarysclerosingcholangitis #liver #guthealth #autoimmune #chronicillness #chronicallyill #immune #toiletpaper #spoonie #spooning
It can be really hard to gain (or even maintain) weight during a flare-but it can be done ✅ . Here’s some tips for preventing weight loss: . 1. Eat protein with every meal + snack. 👉🏼Why? Protein will keep you feeling fuller for longer. It will also help prevent your body from breaking down your lean muscle for energy. . 2. Add more nutrient-dense calories to your meals. 👉🏼Why? Adding nutrient-dense calories to your meal will help provide more vitamins and minerals that your body needs for recovery. For example, instead of having regular oatmeal with water, try using yogurt instead of water and add almond flour for more protein and nutrients. . 3. Drink some of your calories in between meals. 👉🏼Why? It’s easier to drink more calories than eat them. This is especially true for people with IBD who can sometimes have a reduced appetite. . 4. Eat 6 times a day instead of just 3 or 4. 👉🏼 Why? Sometimes it’s challenging to eat 3 large meals a day so instead, try making 6 moderately-sized meals spread out evenly every 2-3 hours to maximize your calorie intake. . What do you do to prevent weight loss during a flare? . . . #weightgain  #flareup  #flareupnutrition  #crohns  #colitis  #ulcerativecolitis  #crohnsdisease  #ibd  #ibdflare  #ibdflareup  #inflammatoryboweldisease  #ibs  #irritablebowelsyndrome  #psc  #primarysclerosingcholangitis  #liver  #guthealth  #autoimmune  #chronicillness  #chronicallyill  #immune  #toiletpaper  #spoonie  #spooning 
17. Iceland - Aldeyjarfoss - September 2017.
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I met this beauty last year and it became clearly my preferred waterfall in Iceland. Not the most impressive, but it’s located so far away in the country and there is almost nothing around. 💦
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#iceland #iceland🇮🇸 #icelandtravel #icelandic #icelandair #icelandscape #icelandtrip #iceland_tourist #icelanders #iceland_photography #icelandroadtrip #loves_iceland #guidetoiceland #icelandsecret #unlimitediceland #iceland2017 #icelandadventure #icelandphotography #icelandexplored #inspiredbyiceland #photooftheday #potd #picoftheday #gay #gaytraveler #gaytravel #gaylife #mytravelgram #travelgram #primarysclerosingcholangitis
17. Iceland - Aldeyjarfoss - September 2017. - I met this beauty last year and it became clearly my preferred waterfall in Iceland. Not the most impressive, but it’s located so far away in the country and there is almost nothing around. 💦 - #iceland  #iceland 🇮🇸 #icelandtravel  #icelandic  #icelandair  #icelandscape  #icelandtrip  #iceland_tourist  #icelanders  #iceland_photography  #icelandroadtrip  #loves_iceland  #guidetoiceland  #icelandsecret  #unlimitediceland  #iceland2017  #icelandadventure  #icelandphotography  #icelandexplored  #inspiredbyiceland  #photooftheday  #potd  #picoftheday  #gay  #gaytraveler  #gaytravel  #gaylife  #mytravelgram  #travelgram  #primarysclerosingcholangitis 
When I’m not feeling well, (and when I’m just craving it 💁🏻‍♀️) one of my favorite meals to eat is this banana ZoOatmeal. 👆🏻👆🏻👆🏻
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When I’m not feeling great sometimes it can be hard to muster up the energy to make myself a nutritious meal but this is totally worth it. It only takes a few minutes to prep and it’s packed with vitamins and minerals to help give me as much energy as possible-when I need it the most.
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***Banana ZoOatmeal***
1/4 of a zucchini, shredded using a cheese grater
1 small banana, sliced
1 cup gluten-free oats
1 cup walnut milk
4 tablespoons almond flour
2 tablespoons flaxseed meal
Drizzle pure maple syrup or some pure vanilla extract
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Cook the oats, zucchini, and walnut milk in the microwave for 3 minutes. Mix in the banana, almond flour, flaxseed meal and maple syrup or vanilla into the oatmeal mixture.
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****If you’re in a flare, you might want to peel the zucchini before shredding it. And depending on your individual tolerance, you may also need to eliminate the flaxseed meal altogether or decrease it to only 1 tablespoon. If you want some more protein added to this, try adding some plain, non fat Greek yogurt after cooking the oats and zucchini.
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#oatmeal #sickmeal #ibd #ibddiet #crohns #colitis #crohnsdisease #ulcerativecolitis #autoimmune #chronicillness #spoons #spoonie #spooning #breakfast #nutritiousbreakfast #zucchini #bananas #guthealth #ibdfighter #psc #pscdiet #primarysclerosingcholangitis #inflammatoryboweldisease
When I’m not feeling well, (and when I’m just craving it 💁🏻‍♀️) one of my favorite meals to eat is this banana ZoOatmeal. 👆🏻👆🏻👆🏻 . When I’m not feeling great sometimes it can be hard to muster up the energy to make myself a nutritious meal but this is totally worth it. It only takes a few minutes to prep and it’s packed with vitamins and minerals to help give me as much energy as possible-when I need it the most. . ***Banana ZoOatmeal*** 1/4 of a zucchini, shredded using a cheese grater 1 small banana, sliced 1 cup gluten-free oats 1 cup walnut milk 4 tablespoons almond flour 2 tablespoons flaxseed meal Drizzle pure maple syrup or some pure vanilla extract . Cook the oats, zucchini, and walnut milk in the microwave for 3 minutes. Mix in the banana, almond flour, flaxseed meal and maple syrup or vanilla into the oatmeal mixture. . ****If you’re in a flare, you might want to peel the zucchini before shredding it. And depending on your individual tolerance, you may also need to eliminate the flaxseed meal altogether or decrease it to only 1 tablespoon. If you want some more protein added to this, try adding some plain, non fat Greek yogurt after cooking the oats and zucchini. . . . #oatmeal  #sickmeal  #ibd  #ibddiet  #crohns  #colitis  #crohnsdisease  #ulcerativecolitis  #autoimmune  #chronicillness  #spoons  #spoonie  #spooning  #breakfast  #nutritiousbreakfast  #zucchini  #bananas  #guthealth  #ibdfighter  #psc  #pscdiet  #primarysclerosingcholangitis  #inflammatoryboweldisease 
It’s 7 days till my birthday...so here’s my birthday 7 years ago, 2 years before transplant. Whew. That Godly glow up is real. He’s brought me a mighty long way. #thankful (PS can’t you just hear Carla’s hair singing “Human Nature?” 😂😂😂) #30where? #tbt
It’s 7 days till my birthday...so here’s my birthday 7 years ago, 2 years before transplant. Whew. That Godly glow up is real. He’s brought me a mighty long way. #thankful  (PS can’t you just hear Carla’s hair singing “Human Nature?” 😂😂😂) #30where ? #tbt 
18. Iceland - Skógafoss - july 2010 / September 2014 / August 2017.
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Here’s the same waterfall in 2010,2014 and 2017. First time was amazing, so impressive. The next ones were so enjoyable, I had the impression to go back where I belong. Amazing place, a bit crowded like almost everywhere in Iceland actually but still amazing.
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#iceland #iceland🇮🇸 #icelandtravel #icelandic #icelandair #icelandscape #icelandtrip #iceland_tourist #icelanders #iceland_photography #icelandroadtrip #loves_iceland #guidetoiceland #icelandsecret #unlimitediceland #iceland2017 #icelandadventure #icelandphotography #icelandexplored #inspiredbyiceland #photooftheday #potd #picoftheday #gay #gaytraveler #gaytravel #gaylife #mytravelgram #travelgram #primarysclerosingcholangitis
18. Iceland - Skógafoss - july 2010 / September 2014 / August 2017. - Here’s the same waterfall in 2010,2014 and 2017. First time was amazing, so impressive. The next ones were so enjoyable, I had the impression to go back where I belong. Amazing place, a bit crowded like almost everywhere in Iceland actually but still amazing. - #iceland  #iceland 🇮🇸 #icelandtravel  #icelandic  #icelandair  #icelandscape  #icelandtrip  #iceland_tourist  #icelanders  #iceland_photography  #icelandroadtrip  #loves_iceland  #guidetoiceland  #icelandsecret  #unlimitediceland  #iceland2017  #icelandadventure  #icelandphotography  #icelandexplored  #inspiredbyiceland  #photooftheday  #potd  #picoftheday  #gay  #gaytraveler  #gaytravel  #gaylife  #mytravelgram  #travelgram  #primarysclerosingcholangitis 
Flares are often times triggered by stress/anxiety. So although having 3 cats might make me a crazy cat lady, I believe that they help keep me relaxed. 😎
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Who else thinks their fur friends help them keep calm?? 🙋🏻‍♀️
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#furfriends #ibd #stressed #stress #relax #relaxed #calm #ibdflareup #keepcalm #crohns #colitis #ulcerativecolitis #psc #primarysclerosingcholangitis #crohnsdisease #autoimmune #autoimmunedisease #chronicillness #spoons
So it was my hepatology appointment today! It was okay, I was meeting her for the first time which always makes me more nervous. I forgot to tell her about two of my symptoms (fatigue and liver pain) but I can do that another time. However when I tried to tell her about something she told me it was ‘psychological’. That’s the first time I’ve had someone basically say that it’s in my head. That upset me to be honest as I feel like I wasn’t listened to. However I will look past that and will be seeing her in the new year so yeah. Dad did treat me to a McDonalds banana milkshake afterwards!! College was okay too, I only had health and social care so I was only in college for about 3 hours.. I hope you’ve all had a good day!! •••
#spoonie #psc #uc #colitis #ulcerativecolitis #ocd #anxiety #primarysclerosingcholangitis
So it was my hepatology appointment today! It was okay, I was meeting her for the first time which always makes me more nervous. I forgot to tell her about two of my symptoms (fatigue and liver pain) but I can do that another time. However when I tried to tell her about something she told me it was ‘psychological’. That’s the first time I’ve had someone basically say that it’s in my head. That upset me to be honest as I feel like I wasn’t listened to. However I will look past that and will be seeing her in the new year so yeah. Dad did treat me to a McDonalds banana milkshake afterwards!! College was okay too, I only had health and social care so I was only in college for about 3 hours.. I hope you’ve all had a good day!! ••• #spoonie  #psc  #uc  #colitis  #ulcerativecolitis  #ocd  #anxiety  #primarysclerosingcholangitis 
20. Switzerland - September 2018
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A little bit of self appreciation doesn’t hurt. I will let my beard grow until surgery then I will have to cut it off totally 😭💁‍♀️. Anyway, that’s just hairs. 20 days before my total liver transplant 💪🏼 my mind is going a bit crazy those days but I guess it’s normal 🤷‍♀️.
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#selfie #selfcare #gayasses #gay #gayboy #gaylife #love #life #instagay #instagayboy #gaymer #gaymers #whynot #gayhot #pd #outdoor #indoors #igers #instadaily #potd #picoftheday #photooftheday #selfish #selfcare #primarysclerosingcholangitis #gaypride #happy #me #traveler #home
20. Switzerland - September 2018 - A little bit of self appreciation doesn’t hurt. I will let my beard grow until surgery then I will have to cut it off totally 😭💁‍♀️. Anyway, that’s just hairs. 20 days before my total liver transplant 💪🏼 my mind is going a bit crazy those days but I guess it’s normal 🤷‍♀️. - #selfie  #selfcare  #gayasses  #gay  #gayboy  #gaylife  #love  #life  #instagay  #instagayboy  #gaymer  #gaymers  #whynot  #gayhot  #pd  #outdoor  #indoors  #igers  #instadaily  #potd  #picoftheday  #photooftheday  #selfish  #selfcare  #primarysclerosingcholangitis  #gaypride  #happy  #me  #traveler  #home 
One of my clients told me that she can’t eat vegetables because they make her symptoms worse.
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After asking a few questions, she decided to use her high power blender to blend up a handful of spinach, a banana, and a few frozen pineapple chunks with some plain, non fat kefir. She started with 1/2 cup the first day and she was able to tolerate it. She slowly worked up to having a smoothie as her breakfast.
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Can you tolerate vegetables when they’re blended in a smoothie? .
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#smoothie #ibddiet #ibd #inflammatoryboweldisease #colitis #spoonie #crohns #ulcerativecolitis #crohnsdisease #smoothies #spoons #primarysclerosingcholangitis #pscdiet #psc #guthealth #fiber
One of my clients told me that she can’t eat vegetables because they make her symptoms worse. . After asking a few questions, she decided to use her high power blender to blend up a handful of spinach, a banana, and a few frozen pineapple chunks with some plain, non fat kefir. She started with 1/2 cup the first day and she was able to tolerate it. She slowly worked up to having a smoothie as her breakfast. . Can you tolerate vegetables when they’re blended in a smoothie? . . . #smoothie  #ibddiet  #ibd  #inflammatoryboweldisease  #colitis  #spoonie  #crohns  #ulcerativecolitis  #crohnsdisease  #smoothies  #spoons  #primarysclerosingcholangitis  #pscdiet  #psc  #guthealth  #fiber 
Today’s been a big day!! I started college, which has been giving me loads of anxiety for weeks. It was okay, haven’t made any friends yet (I don’t know how many people do on the first day though) but I’m pleased with my subject choices. After college I had an appointment with my GI. it was nothing special, she told me to speak to a dietician and to continue taking my meds etc... so yeah, that was my day!! Fatigue hasn’t been too bad today which I’m really happy about! Itching has been slightly annoying though. Anyway, the best part about my appointment was that mum bought me a twix afterwards ...😂😂 anyway, I hope you have all had a good day! •••
#spoonie #psc #uc #colitis #ulcerativecolitis #ocd #anxiety #primarysclerosingcholangitis
Today’s been a big day!! I started college, which has been giving me loads of anxiety for weeks. It was okay, haven’t made any friends yet (I don’t know how many people do on the first day though) but I’m pleased with my subject choices. After college I had an appointment with my GI. it was nothing special, she told me to speak to a dietician and to continue taking my meds etc... so yeah, that was my day!! Fatigue hasn’t been too bad today which I’m really happy about! Itching has been slightly annoying though. Anyway, the best part about my appointment was that mum bought me a twix afterwards ...😂😂 anyway, I hope you have all had a good day! ••• #spoonie  #psc  #uc  #colitis  #ulcerativecolitis  #ocd  #anxiety  #primarysclerosingcholangitis 
Chapter 14:

What you read next is from a paper I wrote for a class. It is the next part of our journey. ~~~~~~~
July 15 & 16, 2007, will forever be one of the most important dates in my family’s lives. It was a day filled with contradictions: endings and beginnings, fear and excitement, sorrow and joy. It was the day of my nine-year-old son’s third birthday. Sadly, another young child would never have another birthday again. I had arrived at the hospital the previous morning the same as every morning of the two exhausting weeks before it. I said hello to the people at the desk in the lobby, grabbed a drink from the coffee shop, and took the elevator up to the Pediatric Intensive Care Unit. I had spent so much time at that hospital over the prior two years that I had become very close to many of the staff and other “frequent flier” families. It was no longer difficult to tell the difference between those who had been there often and those poor new souls who were recently admitted and scared to death. I made a mental note to take a few minutes to talk to one of those mothers later in the day.

Sean’s nurse for that day gave me his update for the morning; he had responded so well to the round-the-clock dialysis that they had just taken him off of it. His blood pressure was staying stable. He was not producing urine on his own, yet, but enough excess fluid had been pulled off of his puffy little body to allow removing him from Prisma dialysis. Because his liver was failing, Sean’s kidneys had shut down two weeks earlier, causing his body to become so over-loaded with fluid that he needed assistance to breathe properly and slept most of the time. He was awake enough that he was watching television and put in a request for Cherry Kool-Aid and Sunny D.

Now that Sean was more stable, we decided to take a break from the hospital, and made a trip to Target. It was odd to me, watching these strangers going about their lives while my son lay in a hospital bed struggling to hold on to his. Parents yelling at their children for the most minor of infractions irritated me. (Continued in comments)
Chapter 14: What you read next is from a paper I wrote for a class. It is the next part of our journey. ~~~~~~~ July 15 & 16, 2007, will forever be one of the most important dates in my family’s lives. It was a day filled with contradictions: endings and beginnings, fear and excitement, sorrow and joy. It was the day of my nine-year-old son’s third birthday. Sadly, another young child would never have another birthday again. I had arrived at the hospital the previous morning the same as every morning of the two exhausting weeks before it. I said hello to the people at the desk in the lobby, grabbed a drink from the coffee shop, and took the elevator up to the Pediatric Intensive Care Unit. I had spent so much time at that hospital over the prior two years that I had become very close to many of the staff and other “frequent flier” families. It was no longer difficult to tell the difference between those who had been there often and those poor new souls who were recently admitted and scared to death. I made a mental note to take a few minutes to talk to one of those mothers later in the day. Sean’s nurse for that day gave me his update for the morning; he had responded so well to the round-the-clock dialysis that they had just taken him off of it. His blood pressure was staying stable. He was not producing urine on his own, yet, but enough excess fluid had been pulled off of his puffy little body to allow removing him from Prisma dialysis. Because his liver was failing, Sean’s kidneys had shut down two weeks earlier, causing his body to become so over-loaded with fluid that he needed assistance to breathe properly and slept most of the time. He was awake enough that he was watching television and put in a request for Cherry Kool-Aid and Sunny D. Now that Sean was more stable, we decided to take a break from the hospital, and made a trip to Target. It was odd to me, watching these strangers going about their lives while my son lay in a hospital bed struggling to hold on to his. Parents yelling at their children for the most minor of infractions irritated me. (Continued in comments)
[原発性硬化性胆管炎の肝生検]
1枚目:門脈域を主体とする線維化を認め、線維性架橋形成もみられます。肝線維症の状態です。
2枚目:門脈域は線維性に拡大し、リンパ球の浸潤を認めます。
3枚目:渡銀染色。門脈域周囲に細網線維の増生を認め、進行性の線維化を示唆しています。
4枚目:小葉間胆管は狭小化し、周囲に同心円状の線維化〈Onion skin fibrosis〉を認めます。
5枚目:門脈域周囲には偽胆管の増生を認めます。細胆管反応といわれる所見で、胆管傷害を示唆する所見です。
6枚目:肝実質には胆汁栓と炎症細胞浸潤を認め、胆汁うっ滞による実質炎です。
7枚目:ジアスターゼ消化PAS染色。類洞内にはセロイド貪食マクロファージを認めます。実質炎を反映する所見です。

#753cpc #病理学 #病理 #pathology #pathologist #medical #histology #顕微鏡写真 #組織 #医学 #プレパラート #プレゼンテーション #プレゼン #ポスター #学会 #写真編集 #画像編集 #レタッチ #photoshop #フォトショップ #haelu #はえる写真室 #肝臓 #原発性硬化性胆管炎 #primarysclerosingcholangitis #psc #肝生検 #liverbiopsy
[原発性硬化性胆管炎の肝生検] 1枚目:門脈域を主体とする線維化を認め、線維性架橋形成もみられます。肝線維症の状態です。 2枚目:門脈域は線維性に拡大し、リンパ球の浸潤を認めます。 3枚目:渡銀染色。門脈域周囲に細網線維の増生を認め、進行性の線維化を示唆しています。 4枚目:小葉間胆管は狭小化し、周囲に同心円状の線維化〈Onion skin fibrosis〉を認めます。 5枚目:門脈域周囲には偽胆管の増生を認めます。細胆管反応といわれる所見で、胆管傷害を示唆する所見です。 6枚目:肝実質には胆汁栓と炎症細胞浸潤を認め、胆汁うっ滞による実質炎です。 7枚目:ジアスターゼ消化PAS染色。類洞内にはセロイド貪食マクロファージを認めます。実質炎を反映する所見です。 #753cpc  #病理学  #病理  #pathology  #pathologist  #medical  #histology  #顕微鏡写真  #組織  #医学  #プレパラート  #プレゼンテーション  #プレゼン  #ポスター  #学会  #写真編集  #画像編集  #レタッチ  #photoshop  #フォトショップ  #haelu  #はえる写真室  #肝臓  #原発性硬化性胆管炎  #primarysclerosingcholangitis  #psc  #肝生検  #liverbiopsy 
Eggs are a great source of high-quality protein for individuals win IBD. They’re so versatile. You can have hard boiled eggs for snacks, an omelette for dinner, or make an egg-based sandwich like I did 👆🏻for lunch. Every egg has 7 grams of protein so I recommend using 3 if it’s the only source of protein in your meal.
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Shredded Zucchini + Egg GF Sandwich with Sliced Polenta
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I just shredded a zucchini (with a cheese grater) and cooked it on a skillet with some eggs. 🤷🏻‍♀️ that’s it.
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#crohns #colitis #ulcerativecolitis #crohnsdisease #ibd #ibddiet #inflammatoryboweldisease #ibs #irritablebowelsyndrome #psc #primarysclerosingcholangitis #liver #guthealth #autoimmune #chronicillness #chronicallyill #immune #toiletpaper #spoonie #spooning
Eggs are a great source of high-quality protein for individuals win IBD. They’re so versatile. You can have hard boiled eggs for snacks, an omelette for dinner, or make an egg-based sandwich like I did 👆🏻for lunch. Every egg has 7 grams of protein so I recommend using 3 if it’s the only source of protein in your meal. . Shredded Zucchini + Egg GF Sandwich with Sliced Polenta . I just shredded a zucchini (with a cheese grater) and cooked it on a skillet with some eggs. 🤷🏻‍♀️ that’s it. . . . #crohns  #colitis  #ulcerativecolitis  #crohnsdisease  #ibd  #ibddiet  #inflammatoryboweldisease  #ibs  #irritablebowelsyndrome  #psc  #primarysclerosingcholangitis  #liver  #guthealth  #autoimmune  #chronicillness  #chronicallyill  #immune  #toiletpaper  #spoonie  #spooning 
Chapter 13:

In the first 6 days in PICU, his dialysis catheter stopped working, a new jugular catheter was placed in the OR, he dropped nearly 10 pounds pulling fluid off, and the hemodialysis was making his blood pressure tank so he was switched to Prisma dialysis, instead.

He also developed Hepatic Encephalopathy. It looked like this: "My son is gone right now. He knows I'm mom. Took him 4 times of being asked to respond that mom's name is Ami. Then when asked if it's spring, summer, fall, or winter, he again said Ami. Took him half an hour to come up with the names of both of our dogs. Then our male dog's name became the answer to what the season is. He'll answer questions, then answer them again 20 seconds later. Or he won't answer at all, as if no one is even in the room talking to him. Or it'll be totally quiet and he'll ask me what I just said. His eyes are constantly rolling around, along with his head (that part is better today than yesterday). He also had NO control over his hands and arms yesterday. Looked like he had cerebral palsy. He'll ask me for a drink, I'll give him one, then he asks for a drink. I tell him I gave him one, he says he needs a drink, so I give him another one, it falls out of his mouth. I have to repeat things over and over. And if you don't put yourself in his line of vision when talking to him, there's no sense in speaking, because his brain doesn't acknowledge your presence in the room." We had doctors arguing over what to do with him, given the overall picture. He still had yeast in his lungs. He was in kidney failure with the liver failure.

The Peds GI who was primary that second week insisted both of these things were reasons to decline a liver for him, should one come available.

At the same time, his lung transplant surgeon argued that were she offered lungs for someone that already had yeast in them, she'd take them, so this wasn't a valid reason. The renal doc was certain the kidney failure was from the liver failure and would resolve when he got a new liver! (Continued in comments.)
Chapter 13: In the first 6 days in PICU, his dialysis catheter stopped working, a new jugular catheter was placed in the OR, he dropped nearly 10 pounds pulling fluid off, and the hemodialysis was making his blood pressure tank so he was switched to Prisma dialysis, instead. He also developed Hepatic Encephalopathy. It looked like this: "My son is gone right now. He knows I'm mom. Took him 4 times of being asked to respond that mom's name is Ami. Then when asked if it's spring, summer, fall, or winter, he again said Ami. Took him half an hour to come up with the names of both of our dogs. Then our male dog's name became the answer to what the season is. He'll answer questions, then answer them again 20 seconds later. Or he won't answer at all, as if no one is even in the room talking to him. Or it'll be totally quiet and he'll ask me what I just said. His eyes are constantly rolling around, along with his head (that part is better today than yesterday). He also had NO control over his hands and arms yesterday. Looked like he had cerebral palsy. He'll ask me for a drink, I'll give him one, then he asks for a drink. I tell him I gave him one, he says he needs a drink, so I give him another one, it falls out of his mouth. I have to repeat things over and over. And if you don't put yourself in his line of vision when talking to him, there's no sense in speaking, because his brain doesn't acknowledge your presence in the room." We had doctors arguing over what to do with him, given the overall picture. He still had yeast in his lungs. He was in kidney failure with the liver failure. The Peds GI who was primary that second week insisted both of these things were reasons to decline a liver for him, should one come available. At the same time, his lung transplant surgeon argued that were she offered lungs for someone that already had yeast in them, she'd take them, so this wasn't a valid reason. The renal doc was certain the kidney failure was from the liver failure and would resolve when he got a new liver! (Continued in comments.)
#whatishistiocytosis •LCH of the Liver•

When LCH affects the liver, it can be deadly. This is what's referred to as "high risk organ involvement". The cells attack the liver causing scarring (sclerosis/fibrosis). This can lead to strictures (narrowing) in the bile ducts, which in turn slows the flow of bile through the liver. Slowing the bile can cause stones to develop, blocking bile flow entirely. This, then, leads to further damage to the liver. This is the same damage caused by a disease called Primary Sclerosing Cholangitis, and LCH in the liver can be misdiagnosed as such. (It would accurately be a diagnosis of Sclerosing Cholangitis secondary to LCH.) Diagnosis involves imaging, blood work of liver function, and requires a liver biopsy that has a positive stain for LCs.

Treatment is necessary to try to prevent severe damage. This can include chemotherapy or a BRAF inhibitor (for those with the gene mutation). Supportive measures can be needed, as well, to help improve the condition of the liver or to treat side effects of the damaged liver, such as medication to thin the bile, stents in duct strictures, rifampin to bind with (and flush out) excess bile, medications for priorities (itching), blood pressure medications, and others.

The outlook on liver involvement is not entirely favorable, with about 75% of these patients eventually requiring a liver transplant due to extensive damage. Hopefully this number will begin to fall as more doctors order testing for the BRAF mutation and positive patients are able to utilize the inhibitor, allowing the liver to heal. {A huge thank you to Tessa, mom to Angel Gabe, for allowing me to use your photo of Gabe's livers! Patient photo is my son, Sean, with his pal, Lucky 1.} 💙💙🖤💙💙
#BeHistioAware #NeverFightAlone
#LCH #Histiocytosis #GoBlue4Histio #GoGold #FUHistio #HistioSucks  #DynamiteOnInsta #Lucky2point0 #HistioAwareness2018 #MoreThanFour #ChildhoodCancer #AdultsGetHistioToo #LLF #HistioWarrior #HistioAngel #HistioMom #liver  #radiology #livertransplant #liverbiopsy #pathology #histiology #radiation #chemo #primarysclerosingcholangitis #psc #donatelife
#whatishistiocytosis  •LCH of the Liver• When LCH affects the liver, it can be deadly. This is what's referred to as "high risk organ involvement". The cells attack the liver causing scarring (sclerosis/fibrosis). This can lead to strictures (narrowing) in the bile ducts, which in turn slows the flow of bile through the liver. Slowing the bile can cause stones to develop, blocking bile flow entirely. This, then, leads to further damage to the liver. This is the same damage caused by a disease called Primary Sclerosing Cholangitis, and LCH in the liver can be misdiagnosed as such. (It would accurately be a diagnosis of Sclerosing Cholangitis secondary to LCH.) Diagnosis involves imaging, blood work of liver function, and requires a liver biopsy that has a positive stain for LCs. Treatment is necessary to try to prevent severe damage. This can include chemotherapy or a BRAF inhibitor (for those with the gene mutation). Supportive measures can be needed, as well, to help improve the condition of the liver or to treat side effects of the damaged liver, such as medication to thin the bile, stents in duct strictures, rifampin to bind with (and flush out) excess bile, medications for priorities (itching), blood pressure medications, and others. The outlook on liver involvement is not entirely favorable, with about 75% of these patients eventually requiring a liver transplant due to extensive damage. Hopefully this number will begin to fall as more doctors order testing for the BRAF mutation and positive patients are able to utilize the inhibitor, allowing the liver to heal. {A huge thank you to Tessa, mom to Angel Gabe, for allowing me to use your photo of Gabe's livers! Patient photo is my son, Sean, with his pal, Lucky 1.} 💙💙🖤💙💙 #BeHistioAware  #NeverFightAlone  #LCH  #Histiocytosis  #GoBlue4Histio  #GoGold  #FUHistio  #HistioSucks  #DynamiteOnInsta  #Lucky2point0  #HistioAwareness2018  #MoreThanFour  #ChildhoodCancer  #AdultsGetHistioToo  #LLF  #HistioWarrior  #HistioAngel  #HistioMom  #liver  #radiology  #livertransplant  #liverbiopsy  #pathology  #histiology  #radiation  #chemo  #primarysclerosingcholangitis  #psc  #donatelife 
Chapter 12:

And so it happened. The beginning of the end of the liver he was born with. 
Over the course of the next days, Sean was in constant pain, on a morphine drip, but still miserable. 
By July 2, he had spent the majority of the day sleeping, wasn't putting out urine even with Lasix, had gained nearly 3 pounds in 24 hours. He was so out of it his nurse catheterized him and he didn't even know. Three times he woke up, told me he dreamt Sarah put in a catheter, I told him she did, he reached down and felt it, cried, and went back to sleep. Because he wasn't dumping urine, his body was holding all the morphine in his system.

In the late hours of that evening his condition became unstable enough that he was transferred to the PICU. 
He was put on Bi-pap because, while his oxygen levels were maintaining ok, he wasn't releasing the carbon dioxide.

By the time morning came, he had only put out 8cc (about 1/4oz) of urine. And that's when we met the dialysis machine. Reading back on this excerpt from the CaringBridge entry from that day, I'm still amazed: "By the time we got done, Sean had lost 3.1 kilograms (6.82 pounds), 5 cm around his belly, and they'd pulled off just over a GALLON of fluid." My son was in hepatorenal failure. His liver was finally failing, and with it his kidneys. 
If he did not get a new liver soon, he would die.

By that evening enough morphine had been cleared (and his co2 levels improved enough) for him to have a coherent conversation. He again thought the catheter was a dream, wanted the Bi-pap mask gone. He knew he was in PICU, but didn't know why. I told him what had been happening, about the need for PICU, for Bi-pap, for dialysis. I told him he was very sick. "He was quiet for a bit, then looked me straight in the eye and said 'Mom, I hope I don't die.'" It was first of two moments in my son's life that I heard words like that from him. Both times crushed me. What do you say to a child who has spent the last two years living at the RMH and hospital, seeing some kids get better and go home, but others die? (Continued in comments.)
Chapter 12: And so it happened. The beginning of the end of the liver he was born with. Over the course of the next days, Sean was in constant pain, on a morphine drip, but still miserable. By July 2, he had spent the majority of the day sleeping, wasn't putting out urine even with Lasix, had gained nearly 3 pounds in 24 hours. He was so out of it his nurse catheterized him and he didn't even know. Three times he woke up, told me he dreamt Sarah put in a catheter, I told him she did, he reached down and felt it, cried, and went back to sleep. Because he wasn't dumping urine, his body was holding all the morphine in his system. In the late hours of that evening his condition became unstable enough that he was transferred to the PICU. He was put on Bi-pap because, while his oxygen levels were maintaining ok, he wasn't releasing the carbon dioxide. By the time morning came, he had only put out 8cc (about 1/4oz) of urine. And that's when we met the dialysis machine. Reading back on this excerpt from the CaringBridge entry from that day, I'm still amazed: "By the time we got done, Sean had lost 3.1 kilograms (6.82 pounds), 5 cm around his belly, and they'd pulled off just over a GALLON of fluid." My son was in hepatorenal failure. His liver was finally failing, and with it his kidneys. If he did not get a new liver soon, he would die. By that evening enough morphine had been cleared (and his co2 levels improved enough) for him to have a coherent conversation. He again thought the catheter was a dream, wanted the Bi-pap mask gone. He knew he was in PICU, but didn't know why. I told him what had been happening, about the need for PICU, for Bi-pap, for dialysis. I told him he was very sick. "He was quiet for a bit, then looked me straight in the eye and said 'Mom, I hope I don't die.'" It was first of two moments in my son's life that I heard words like that from him. Both times crushed me. What do you say to a child who has spent the last two years living at the RMH and hospital, seeing some kids get better and go home, but others die? (Continued in comments.)
🚨 This will make some of y’all sad. Sorry. PLEASE DO NOT TEXT/CALL/COMMENT ANYTHING SAD OR TELL ME YOURE PRAYING OR SENDING VIBES OR CONTACT MY FAMILY ABOUT IT OR WORRY, ETC. I JUST WANTED TO VENT. Love y’all. I know you’re doing all of that. 💕 🚨 It felt weird to post this after Mac Miller’s passing, because as vulnerable and real as i wanna be with y’all, i never want to seem like I’m seeking attention. However, I’ve learned that in some ways, that kind of “humility” is selfish as well...people gonna think what they want 🤷🏾‍♀️ ******************************************
I recorded this on my lunch break after breaking down in tears because i am just so doggone tired of it all. I make videos to make myself feel better, but sometimes it really just feels so empty. I processed it all back and watching all these people say how happy people were all the time who passed away early made me hurt even worse, because this is literally what it is when those people get alone. Alone has NOTHING to do with company or feeling like you have someone to call. It’s the feeling that you have a TON of people to call, but no one will understand because they don’t have to do it with you. It’s not THEIR body; it’s not THEIR spirit; it’s not THEIR mental state. So what is the point?? This is who i make videos for - people who need to know that others really understand alone, maybe not caused by the same thing, but we KNOW. SO. WELL how gut-wrenching and miserable and utterly, speechlessly hopeless it feels. *****************************************
Before y’all start a Gofundme - this has been resolved, and after an infuriating day, the pharmacist literally gave me the prescription for $25 Just because I was the ONLY one in line who didn’t give her an attitude and who wasn’t rude. Please find a way if you absolutely can to not add stress to anyone else’s life just because you’re stressed. Favor favors those kinds of people. Remember you’re eating from the Bread of Life. TRUST IN THE CRUST. 🍞
🚨 This will make some of y’all sad. Sorry. PLEASE DO NOT TEXT/CALL/COMMENT ANYTHING SAD OR TELL ME YOURE PRAYING OR SENDING VIBES OR CONTACT MY FAMILY ABOUT IT OR WORRY, ETC. I JUST WANTED TO VENT. Love y’all. I know you’re doing all of that. 💕 🚨 It felt weird to post this after Mac Miller’s passing, because as vulnerable and real as i wanna be with y’all, i never want to seem like I’m seeking attention. However, I’ve learned that in some ways, that kind of “humility” is selfish as well...people gonna think what they want 🤷🏾‍♀️ ****************************************** I recorded this on my lunch break after breaking down in tears because i am just so doggone tired of it all. I make videos to make myself feel better, but sometimes it really just feels so empty. I processed it all back and watching all these people say how happy people were all the time who passed away early made me hurt even worse, because this is literally what it is when those people get alone. Alone has NOTHING to do with company or feeling like you have someone to call. It’s the feeling that you have a TON of people to call, but no one will understand because they don’t have to do it with you. It’s not THEIR body; it’s not THEIR spirit; it’s not THEIR mental state. So what is the point?? This is who i make videos for - people who need to know that others really understand alone, maybe not caused by the same thing, but we KNOW. SO. WELL how gut-wrenching and miserable and utterly, speechlessly hopeless it feels. ***************************************** Before y’all start a Gofundme - this has been resolved, and after an infuriating day, the pharmacist literally gave me the prescription for $25 Just because I was the ONLY one in line who didn’t give her an attitude and who wasn’t rude. Please find a way if you absolutely can to not add stress to anyone else’s life just because you’re stressed. Favor favors those kinds of people. Remember you’re eating from the Bread of Life. TRUST IN THE CRUST. 🍞
Not sure if you can see my scar from my liver transplant 8 years ago it faded really well over the years 😊 .

So for this colectomy surgary i will be having on Thursday they would usually be doing a small laparoscopic incision right below the belly button but because of my medical history and anatomy of my insides they will have to open me up just like a liver transplant operation this will also give them a chance to look at my liver to see what's going on before I receive my second liver transplant surgery 
They will also be removing the appendix well they are at because who needs that thing any way 💁‍♀️😋its a bit more complicated but you gotta do what you gotta do ❤💁‍♀️
#colectomysurgery #coloncancer #colonsurgery #livertransplant #appendix #transplant #livertransplant #transplant #organdonors #donors #primarysclerosingcholangitis #autoimmunehepatitis #crohns #crmo #organs  #life #livelifepassiton #
Not sure if you can see my scar from my liver transplant 8 years ago it faded really well over the years 😊 . So for this colectomy surgary i will be having on Thursday they would usually be doing a small laparoscopic incision right below the belly button but because of my medical history and anatomy of my insides they will have to open me up just like a liver transplant operation this will also give them a chance to look at my liver to see what's going on before I receive my second liver transplant surgery They will also be removing the appendix well they are at because who needs that thing any way 💁‍♀️😋its a bit more complicated but you gotta do what you gotta do ❤💁‍♀️ #colectomysurgery  #coloncancer  #colonsurgery  #livertransplant  #appendix  #transplant  #livertransplant  #transplant  #organdonors  #donors  #primarysclerosingcholangitis  #autoimmunehepatitis  #crohns  #crmo  #organs  #life  #livelifepassiton  #
🚨 Update! 🚨 1. Y’all make me laugh 😂 I got some of the trillest friends 2. Things are looking up? 3. Get ready for my Rejection Rejection/30th birthday party!!!
🚨 Update! 🚨 1. Y’all make me laugh 😂 I got some of the trillest friends 2. Things are looking up? 3. Get ready for my Rejection Rejection/30th birthday party!!!
Best thing you can do for someone who isn’t feeling great: funny memes and videos. 😜
Best thing you can do for someone who isn’t feeling great: funny memes and videos. 😜
This is insane. My friend/dance buddy @d_oneiros used his awesome talent to draw me as a character - a superhero. She’s perfect, right down to the name and the G-Nikes. Thank you man. I’m speechless. This is one of the coolest things to happen to me in a while. 💕
This is insane. My friend/dance buddy @d_oneiros used his awesome talent to draw me as a character - a superhero. She’s perfect, right down to the name and the G-Nikes. Thank you man. I’m speechless. This is one of the coolest things to happen to me in a while. 💕
The wait is hard but outcome could be the best thing that you have ever experienced. 
#transplant #organtransplant #livertransplant #life #thegiftoflife #thewaitinglist #crohns #crmo #autoimmunehepatitis #primarysclerosingcholangitis
27. Japan - Kyoto - april 2018.
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The golden pavilion is a very crowded place but if you go early in morning it’s peaceful and quite, and one of the beautifulest place around Kyoto 🇯🇵
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#japan #japantravel #japantrip #japantrip2018 #japan_vacations #japan_focus #japan_of_insta #japan🇯🇵 #japanlover #japanlife #japanculture #japanphoto #japanphotography #kyoto #kyoto⛩ #kyotojapan #kyototravel #kyototrip #kyotophoto #kyotogram #picoftheday #potd #photooftheday #photography #japan_daytime_view #gay #gaylife #gaytravel #primarysclerosingcholangitis #gayjapan
27. Japan - Kyoto - april 2018. - The golden pavilion is a very crowded place but if you go early in morning it’s peaceful and quite, and one of the beautifulest place around Kyoto 🇯🇵 - - #japan  #japantravel  #japantrip  #japantrip2018  #japan_vacations  #japan_focus  #japan_of_insta  #japan 🇯🇵 #japanlover  #japanlife  #japanculture  #japanphoto  #japanphotography  #kyoto  #kyoto ⛩ #kyotojapan  #kyototravel  #kyototrip  #kyotophoto  #kyotogram  #picoftheday  #potd  #photooftheday  #photography  #japan_daytime_view  #gay  #gaylife  #gaytravel  #primarysclerosingcholangitis  #gayjapan 
[肝腎症候群による腎傷害]
肝腎症候群とは、肝不全に併発する腎障害です。
1枚目:PAS染色。糸球体メサンギウム基質・細胞の増殖を認めます。
2枚目:PAM染色。一部ではメサンギウムの融解像を認めます。
3枚目:HE染色。尿細管内にビリルビン円柱を認めます。黄疸が高度であることが予想されます。
4枚目:Masson染色。尿細管上皮に変性を認めます。

#753cpc #病理学 #病理 #pathology #pathologist #medical #histology #顕微鏡写真 #組織 #医学 #プレパラート #プレゼンテーション #プレゼン #ポスター #学会 #写真編集 #レタッチ #photoshop #フォトショップ #haelu #はえる写真室 #肝臓 #原発性硬化性胆管炎 #肝硬変 #primarysclerosingcholangitis #psc #livercirrhosis #腎不全 #透析 #腎臓
[肝腎症候群による腎傷害] 肝腎症候群とは、肝不全に併発する腎障害です。 1枚目:PAS染色。糸球体メサンギウム基質・細胞の増殖を認めます。 2枚目:PAM染色。一部ではメサンギウムの融解像を認めます。 3枚目:HE染色。尿細管内にビリルビン円柱を認めます。黄疸が高度であることが予想されます。 4枚目:Masson染色。尿細管上皮に変性を認めます。 #753cpc  #病理学  #病理  #pathology  #pathologist  #medical  #histology  #顕微鏡写真  #組織  #医学  #プレパラート  #プレゼンテーション  #プレゼン  #ポスター  #学会  #写真編集  #レタッチ  #photoshop  #フォトショップ  #haelu  #はえる写真室  #肝臓  #原発性硬化性胆管炎  #肝硬変  #primarysclerosingcholangitis  #psc  #livercirrhosis  #腎不全  #透析  #腎臓 
🚨 Update 🚨More diagnoses, but also a cheat code on handling hearts. 💕
🚨 Update 🚨More diagnoses, but also a cheat code on handling hearts. 💕
[原発性硬化性胆管炎症例に併存したIPNB]
肝内胆管の一部に、乳頭状に増殖する上皮成分を認めます。核は、非腫瘍領域と比較して、明らかに紡錘形に腫大し、密在しています。
胆管内乳頭状腫瘍(IPNB: Intraductal papillary neoplasm of bile duct)です。癌に相当する強い異型はなく、前癌病変と考えられます。

#753cpc #病理学 #病理 #pathology #pathologist #medical #histology #顕微鏡写真 #組織 #医学 #プレパラート #プレゼンテーション #プレゼン #ポスター #学会 #映える #写真編集 #画像編集 #レタッチ #photoshop #フォトショップ #haelu #はえる写真室 #肝臓 #原発性硬化性胆管炎 #肝硬変 #primarysclerosingcholangitis #psc #livercirrhosis #ipnb
[原発性硬化性胆管炎症例に併存したIPNB] 肝内胆管の一部に、乳頭状に増殖する上皮成分を認めます。核は、非腫瘍領域と比較して、明らかに紡錘形に腫大し、密在しています。 胆管内乳頭状腫瘍(IPNB: Intraductal papillary neoplasm of bile duct)です。癌に相当する強い異型はなく、前癌病変と考えられます。 #753cpc  #病理学  #病理  #pathology  #pathologist  #medical  #histology  #顕微鏡写真  #組織  #医学  #プレパラート  #プレゼンテーション  #プレゼン  #ポスター  #学会  #映える  #写真編集  #画像編集  #レタッチ  #photoshop  #フォトショップ  #haelu  #はえる写真室  #肝臓  #原発性硬化性胆管炎  #肝硬変  #primarysclerosingcholangitis  #psc  #livercirrhosis  #ipnb 
[肝硬変症による食道静脈瘤]
食道胃接合部の粘膜上皮下には、虚脱し蛇行した静脈枝を認めます。
生前は静脈瘤として存在していたと思われます。

#753cpc #病理学 #病理 #pathology #pathologist #medical #histology #顕微鏡写真 #組織 #医学 #プレパラート #プレゼンテーション #プレゼン #ポスター #学会 #映える #写真編集 #画像編集 #レタッチ #photoshop #フォトショップ #haelu #はえる写真室 #肝臓 #原発性硬化性胆管炎 #肝硬変 #primarysclerosingcholangitis #psc #livercirrhosis #食道静脈瘤
[肝硬変症による食道静脈瘤] 食道胃接合部の粘膜上皮下には、虚脱し蛇行した静脈枝を認めます。 生前は静脈瘤として存在していたと思われます。 #753cpc  #病理学  #病理  #pathology  #pathologist  #medical  #histology  #顕微鏡写真  #組織  #医学  #プレパラート  #プレゼンテーション  #プレゼン  #ポスター  #学会  #映える  #写真編集  #画像編集  #レタッチ  #photoshop  #フォトショップ  #haelu  #はえる写真室  #肝臓  #原発性硬化性胆管炎  #肝硬変  #primarysclerosingcholangitis  #psc  #livercirrhosis  #食道静脈瘤 
b r e a k f a s t
One thing I have found difficult since returning to school has been eating a nutrient dense breakfast. Recently, I have found myself eating too much food, too quickly and my body hasn’t been loving it. I’m pretty sure the whole “breakfast is the most important meal of the day” thing is a sham because everyone is different, but for me it really is important. If I don’t eat in the morning I get nauseous and I can’t focus in class! I’ve been on a mission the last week to make better breakfasts, and I am feeling quite a bit healthier for it.
Here’s a few things that have been successful for me:
•plan breakfasts ahead of time📝- I meticulously plan my lunches and dinners for the week but I haven’t been planning my breakfasts very well, they need thought too!
•incorporate green vegetables into every meal 🥦- veggies are the hardest thing for me to get enough of during the day and I like to start my day off with a good serving of them to get a head start on my overall daily veggie consumption... if that makes sense, ha!
•plate every meal 🍽- this helps me see how much food I am putting into my body and what types of foods I should strive to eat more of throughout the day to balance my macronutrients.
•wake up early enough to enjoy breakfast ☀️-giving myself enough time to enjoy my breakfast slowly has really helped me feel good in the morning, plus this allows me to have enough time to plate and warm up my food.

Today’s breakfast:
•roasted sweet potatoes
•roasted beets
•salad greens
•meatballs with hidden zucchini and broccoli from @amymyersmd Autoimmune Solution Cookbook
✨bonus✨all the produce on my plate is from @granvillefarmersmarket
b r e a k f a s t One thing I have found difficult since returning to school has been eating a nutrient dense breakfast. Recently, I have found myself eating too much food, too quickly and my body hasn’t been loving it. I’m pretty sure the whole “breakfast is the most important meal of the day” thing is a sham because everyone is different, but for me it really is important. If I don’t eat in the morning I get nauseous and I can’t focus in class! I’ve been on a mission the last week to make better breakfasts, and I am feeling quite a bit healthier for it. Here’s a few things that have been successful for me: •plan breakfasts ahead of time📝- I meticulously plan my lunches and dinners for the week but I haven’t been planning my breakfasts very well, they need thought too! •incorporate green vegetables into every meal 🥦- veggies are the hardest thing for me to get enough of during the day and I like to start my day off with a good serving of them to get a head start on my overall daily veggie consumption... if that makes sense, ha! •plate every meal 🍽- this helps me see how much food I am putting into my body and what types of foods I should strive to eat more of throughout the day to balance my macronutrients. •wake up early enough to enjoy breakfast ☀️-giving myself enough time to enjoy my breakfast slowly has really helped me feel good in the morning, plus this allows me to have enough time to plate and warm up my food. Today’s breakfast: •roasted sweet potatoes •roasted beets •salad greens •meatballs with hidden zucchini and broccoli from @amymyersmd Autoimmune Solution Cookbook ✨bonus✨all the produce on my plate is from @granvillefarmersmarket
Rejecting rejection. #ImAReject
September will be a big month for us. But it is also a month of great loss.

Two years ago, we spent labor day weekend having a game night with family to announce our 2nd pregnancy. We had watched the baby grow for weeks, and thought he was our Miracle. And then on September 7th, I went in for my weekly ultrasound at 9 1/2 weeks only to hear the words "your baby no longer has a heartbeat". Our 3rd baby's due date was September 9th of last year, so that is another reminder of our empty arms.

But this year... This year we're going to turn September around!

On September 6th, we will have our 3rd embryo transfer. And I'm hoping and wishing and praying with everything in me that this is our healthy baby. It brings me great comfort to know that for those sad anniversaries, I will be PUPO (pregnant until proven otherwise). And in the weeks following, our first potential living donor will be going through testing to see if he is a match to donate part of his liver to my husband. What an amazing gift. Since this friend reached out, something in me keeps saying, "he's the match"... I really really hope that voice is right. We know that to have the first potential donor be the match would be a miracle in itself, but we #expectmiracles.

Come on September, be good to us!! #impatientlywaiting #gratefulheart #ivf #ivfsupport #ivfround3 #ttc #ttcsupport #infertility #fettake2 #transfer3 #embryotransfer #pregnancyloss #pregnancylossawareness #1in4 #ihadamiscarriage #livertransplant #livertransplantjourney #pscawareness #primarysclerosingcholangitis #supportsystem #livingdonor
September will be a big month for us. But it is also a month of great loss. Two years ago, we spent labor day weekend having a game night with family to announce our 2nd pregnancy. We had watched the baby grow for weeks, and thought he was our Miracle. And then on September 7th, I went in for my weekly ultrasound at 9 1/2 weeks only to hear the words "your baby no longer has a heartbeat". Our 3rd baby's due date was September 9th of last year, so that is another reminder of our empty arms. But this year... This year we're going to turn September around! On September 6th, we will have our 3rd embryo transfer. And I'm hoping and wishing and praying with everything in me that this is our healthy baby. It brings me great comfort to know that for those sad anniversaries, I will be PUPO (pregnant until proven otherwise). And in the weeks following, our first potential living donor will be going through testing to see if he is a match to donate part of his liver to my husband. What an amazing gift. Since this friend reached out, something in me keeps saying, "he's the match"... I really really hope that voice is right. We know that to have the first potential donor be the match would be a miracle in itself, but we #expectmiracles . Come on September, be good to us!! #impatientlywaiting  #gratefulheart  #ivf  #ivfsupport  #ivfround3  #ttc  #ttcsupport  #infertility  #fettake2  #transfer3  #embryotransfer  #pregnancyloss  #pregnancylossawareness  #1in4  #ihadamiscarriage  #livertransplant  #livertransplantjourney  #pscawareness  #primarysclerosingcholangitis  #supportsystem  #livingdonor 
30. Iceland -Skaftafell - August 2017.
***************************************
Ok so the countdown begins for me. I will be liver transplanted on 1st October with my living donor partner, in exactly 30 days. As a countdown I will be posting 30 pictures that are very important for me, some personal ones and some not. I hope it will not be boring, and if it is, then I guess it is what it is. Some may already have been posted in the past, but I choose very important moments for me. Let’s smile and wait for the surgery !
***************************************
#iceland #iceland🇮🇸 #icelandtravel #icelandic #icelandair #icelandscape #icelandtrip #iceland_tourist #icelanders #iceland_photography #icelandroadtrip #loves_iceland #guidetoiceland #icelandsecret #unlimitediceland #iceland2017 #icelandadventure #icelandphotography #icelandexplored #inspiredbyiceland #photooftheday #potd #picoftheday #gay #gaytraveler #gaytravel #gaylife #mytravelgram #travelgram #primarysclerosingcholangitis
30. Iceland -Skaftafell - August 2017. *************************************** Ok so the countdown begins for me. I will be liver transplanted on 1st October with my living donor partner, in exactly 30 days. As a countdown I will be posting 30 pictures that are very important for me, some personal ones and some not. I hope it will not be boring, and if it is, then I guess it is what it is. Some may already have been posted in the past, but I choose very important moments for me. Let’s smile and wait for the surgery ! *************************************** #iceland  #iceland 🇮🇸 #icelandtravel  #icelandic  #icelandair  #icelandscape  #icelandtrip  #iceland_tourist  #icelanders  #iceland_photography  #icelandroadtrip  #loves_iceland  #guidetoiceland  #icelandsecret  #unlimitediceland  #iceland2017  #icelandadventure  #icelandphotography  #icelandexplored  #inspiredbyiceland  #photooftheday  #potd  #picoftheday  #gay  #gaytraveler  #gaytravel  #gaylife  #mytravelgram  #travelgram  #primarysclerosingcholangitis 
It is what it is. 🤷🏾‍♀️ For the rest of the video (including what I do and don’t need from friends/family right now - hint: please lay off the sad and sappy emojis/texts/phone calls...actually probably won’t be answering the phone for a good minute) watch the rest of the video on @big_livers. Thanks.
It is what it is. 🤷🏾‍♀️ For the rest of the video (including what I do and don’t need from friends/family right now - hint: please lay off the sad and sappy emojis/texts/phone calls...actually probably won’t be answering the phone for a good minute) watch the rest of the video on @big_livers. Thanks.
It is what it is 🤷🏾‍♀️
It is what it is 🤷🏾‍♀️
To celebrate my 6 month anniversary of my liver transplant, I got this shirt.  Life truly is AMAZING!!! Wooohooo!!!! #livertransplantrecipient #primarysclerosingcholangitis #lifeafterlivertransplant #lifeisgood #lifeisamazing #lovelife
“I said you’re the good kind of fat!” 🤣🤣🤣
.
Fat is not necessarily the enemy when it comes to IBD. I recommend that my clients choose more healthy fats such as avocados, olive oil, salmon, and flaxseed meal over unhealthy fats like fatty meats, milk, cream, and butter.
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According to results from the nurses health study, women who consumed the most healthy fats were the least likely to get diagnosed with ulcerative colitis. I’ve personally always noticed that if I ate unhealthy fats, I would have 🏃‍♀️ increased symptoms.
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What are your thoughts?
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#omega3fattyacids #omega3s #healthyfats #fats #ibd #crohns #colitis #avocados #ulcerativecolitis #spoonie #spoons #autoimmunedisease #chronicillness #autoimmune #ibddiet #primarysclerosingcholangitis #pscdiet
“I said you’re the good kind of fat!” 🤣🤣🤣 . Fat is not necessarily the enemy when it comes to IBD. I recommend that my clients choose more healthy fats such as avocados, olive oil, salmon, and flaxseed meal over unhealthy fats like fatty meats, milk, cream, and butter. . According to results from the nurses health study, women who consumed the most healthy fats were the least likely to get diagnosed with ulcerative colitis. I’ve personally always noticed that if I ate unhealthy fats, I would have 🏃‍♀️ increased symptoms. . What are your thoughts? . . . #omega3fattyacids  #omega3s  #healthyfats  #fats  #ibd  #crohns  #colitis  #avocados  #ulcerativecolitis  #spoonie  #spoons  #autoimmunedisease  #chronicillness  #autoimmune  #ibddiet  #primarysclerosingcholangitis  #pscdiet 
[原発性硬化性胆管炎]
総胆管(左下は膵臓の一部です)の組織像です。
この症例では肝内胆管の所見がメインでしたが、総胆管にも線維性の肥厚を認めました。

#753cpc #病理学 #病理 #pathology #pathologist #medical #histology #顕微鏡写真 #組織 #医学 #プレパラート #プレゼンテーション #プレゼン #ポスター #学会 #映える #写真編集 #画像編集 #レタッチ #photoshop #フォトショップ #haelu #はえる写真室 #肝臓 #原発性硬化性胆管炎 #肝硬変 #primarysclerosingcholangitis #psc #livercirrhosis
[原発性硬化性胆管炎] 総胆管(左下は膵臓の一部です)の組織像です。 この症例では肝内胆管の所見がメインでしたが、総胆管にも線維性の肥厚を認めました。 #753cpc  #病理学  #病理  #pathology  #pathologist  #medical  #histology  #顕微鏡写真  #組織  #医学  #プレパラート  #プレゼンテーション  #プレゼン  #ポスター  #学会  #映える  #写真編集  #画像編集  #レタッチ  #photoshop  #フォトショップ  #haelu  #はえる写真室  #肝臓  #原発性硬化性胆管炎  #肝硬変  #primarysclerosingcholangitis  #psc  #livercirrhosis 
I've said it a couple of times but if you wonder whether there are good people in this world, come talk to me and I'll tell you some stories. We have been so blessed by so many GOOD people during this process, it is completely humbling and makes us want to be even better people.

As we are scheduling our first potential donor for testing with the Cleveland Clinic living donor program, it is really sinking in what a huge thing that is. And what a selfless person it takes to willingly go into surgery to give a piece of their organ to another person. We are so honored to have amazing people in our life, and hope that one day we can fully show our gratitude and repay those that are there for us.

#livertransplant #livertransplantjourney #pscawareness #primarysclerosingcholangitis #supportsystem #expectmiracles #impatientlywaiting #gratefulheart
I've said it a couple of times but if you wonder whether there are good people in this world, come talk to me and I'll tell you some stories. We have been so blessed by so many GOOD people during this process, it is completely humbling and makes us want to be even better people. As we are scheduling our first potential donor for testing with the Cleveland Clinic living donor program, it is really sinking in what a huge thing that is. And what a selfless person it takes to willingly go into surgery to give a piece of their organ to another person. We are so honored to have amazing people in our life, and hope that one day we can fully show our gratitude and repay those that are there for us. #livertransplant  #livertransplantjourney  #pscawareness  #primarysclerosingcholangitis  #supportsystem  #expectmiracles  #impatientlywaiting  #gratefulheart 
I don't like change, there's been too much of it the past years, beyond my control. So when my Dr calls me to tell me the scarring in my bile ducts have not changed significantly since the last time they checked, you bet I'm going to celebrate with the biggest cup of coffee I can find. 
#primarysclerosingcholangitis #psc #coffee #chronicillness #autoimmunedisease #imok #mrcp #celebrate #woopwoop #ilovecoffee #goodnews
🚨 UPDATE! 🚨 What was supposed to be a 15 minute exam....is turning into a 3 day ordeal. Make sure to follow @big_livers  for health tips and community if you have a #chronicillness.
🚨 UPDATE! 🚨 What was supposed to be a 15 minute exam....is turning into a 3 day ordeal. Make sure to follow @big_livers for health tips and community if you have a #chronicillness .
Life comes at you fast, one day to the next. Usually I would post this stuff from my @big_livers account, but after a tremendously frustrating evening last night and hugely aggravating morning, I thought I would jump on here, serve a little face, and show y’all the reason it’s still best to start emails/texts/DMs in which you are requesting something of someone with “Hi, Hope you’re well,” or “Hi, How are you?” instead of making a demand or rattling off a pitch right away. Yesterday was full of fun - until about 3 pm when it got filled with doctors, needle pokes, and confusion. I’m fine, am only here for tests and in a little pain, but having 3 chronic illnesses makes everything much more complicated and painful. Sure, some of you didn’t know i was dealing with all that, but that’s the point. As the saying goes, “Be kind, for everyone you meet is fighting a hard battle.” I am mentally, emotionally, and physically drained, and while I’m still living my best life because I choose to, it feels good to be a person and not just someone who could get people publicity (also, I really can’t do as much as y’all think I Can lol). Not being preachy or condemning anyone, but my DMs are in shambles with requests from people I’ve never met, who I’d be much more inclined to answer right away if they, although nice, had gone to more measures to be *kind.* Just something to chew on. Y’all have a lovely day. 💕 🌸 😊
Life comes at you fast, one day to the next. Usually I would post this stuff from my @big_livers account, but after a tremendously frustrating evening last night and hugely aggravating morning, I thought I would jump on here, serve a little face, and show y’all the reason it’s still best to start emails/texts/DMs in which you are requesting something of someone with “Hi, Hope you’re well,” or “Hi, How are you?” instead of making a demand or rattling off a pitch right away. Yesterday was full of fun - until about 3 pm when it got filled with doctors, needle pokes, and confusion. I’m fine, am only here for tests and in a little pain, but having 3 chronic illnesses makes everything much more complicated and painful. Sure, some of you didn’t know i was dealing with all that, but that’s the point. As the saying goes, “Be kind, for everyone you meet is fighting a hard battle.” I am mentally, emotionally, and physically drained, and while I’m still living my best life because I choose to, it feels good to be a person and not just someone who could get people publicity (also, I really can’t do as much as y’all think I Can lol). Not being preachy or condemning anyone, but my DMs are in shambles with requests from people I’ve never met, who I’d be much more inclined to answer right away if they, although nice, had gone to more measures to be *kind.* Just something to chew on. Y’all have a lovely day. 💕 🌸 😊
Stocked up on my favorite lotion while I was visiting Austria! Can you tell that I have dry skin?
#travel
#ulcerativecolitis
#primarysclerosingcholangitis
#ulcerativecolitisfighter
I'm not one to take selfies... Me after physical therapy last Thursday. My neck, right shoulder and back were in a lot of pain because I thought my body could handle seeing J. Cole and Jack White in concert on consecutive nights. I suppose such is life of having  a #Jpouch and a #LiverTransplant that is battling #PrimarySclerosingCholangitis #PSC again. But J. Cole and Jack White were amazing, and so worth it. Physical therapy has been going great and ready to go at it again tomorrow morning.  #PlanesCrew #GreatnessIsAProcess #BetOnYourself #ScarsAreMyTattoos
I'm not one to take selfies... Me after physical therapy last Thursday. My neck, right shoulder and back were in a lot of pain because I thought my body could handle seeing J. Cole and Jack White in concert on consecutive nights. I suppose such is life of having a #Jpouch  and a #LiverTransplant  that is battling #PrimarySclerosingCholangitis  #PSC  again. But J. Cole and Jack White were amazing, and so worth it. Physical therapy has been going great and ready to go at it again tomorrow morning. #PlanesCrew  #GreatnessIsAProcess  #BetOnYourself  #ScarsAreMyTattoos 
Last night I made @grazedandenthused InstantPot Pineapple Chicken and oh my goodness it is fantastic. I love the sweet and salty flavors in this dish, but what I love the most is how EASY it was to make! It took me about 10 minutes total to prep the ingredients and shred the chicken. Additionally, this meal was inexpensive for me to make and I made enough leftovers to have lunch/dinner for the next 4 days or so (I halved the recipe). I personally made broccoli to serve the chicken over, however it would be great with cauliflower rice, greens or roasted sweet potatoes, too! •
Link to Grazed and Enthused’s recipe is in my bio!🍍🍍🍍
Last night I made @grazedandenthused InstantPot Pineapple Chicken and oh my goodness it is fantastic. I love the sweet and salty flavors in this dish, but what I love the most is how EASY it was to make! It took me about 10 minutes total to prep the ingredients and shred the chicken. Additionally, this meal was inexpensive for me to make and I made enough leftovers to have lunch/dinner for the next 4 days or so (I halved the recipe). I personally made broccoli to serve the chicken over, however it would be great with cauliflower rice, greens or roasted sweet potatoes, too! • Link to Grazed and Enthused’s recipe is in my bio!🍍🍍🍍
Here is our 4th of 30 ideas to help us celebrate our 30th Birthday whilst raising vital funds and awareness.  Did you know that we can provide an engaging and insightful Love Your Liver Corporate Awareness Day for staff.  The day includes a range of quick and easy health checks iand additional activities. #liverdisease #liverhealth #loveyourliver #cirrhosis #nash #healthcare #fibrosis #nash #fundraising #awareness #britishlivertrust #liverdiseasesupport  #cirrhosis #primarysclerosingcholangitis #organdonation #healthandwellbeing #corporatewelbeing 
Visit for more information:  https://buff.ly/2LhGKKv
Here is our 4th of 30 ideas to help us celebrate our 30th Birthday whilst raising vital funds and awareness. Did you know that we can provide an engaging and insightful Love Your Liver Corporate Awareness Day for staff. The day includes a range of quick and easy health checks iand additional activities. #liverdisease  #liverhealth  #loveyourliver  #cirrhosis  #nash  #healthcare  #fibrosis  #nash  #fundraising  #awareness  #britishlivertrust  #liverdiseasesupport  #cirrhosis  #primarysclerosingcholangitis  #organdonation  #healthandwellbeing  #corporatewelbeing  Visit for more information: https://buff.ly/2LhGKKv
[原発性硬化性胆管炎による胆汁うっ滞性肝硬変]
肝硬変による線維化を免がれ、わずかに残存する肝細胞周囲には、偽胆管の著明な増生を認めます。また、多くの胆汁栓を認めます。

#753cpc #原発性硬化性胆管炎 #肝硬変 #黄疸 #psc #cpc #病理学 #病理 #pathology #primarysclerosingcholangitis #psc #livercirrhosis #はえる #haelu #はえる写真室
2 months ago today.. 2 months since I was put under the knife and reborn. I was lucky that Tuesday in late June to receive a second chance at life. I was also lucky that my donor had had the talk with her family to donate her organs when she had passed away. Many don't have the conversation of organ donation should they pass despite a majority of the population supporting it. So I urge each and every person who may see this to answer these two questions -

Have you had the conversation with your family?
Have you signed up to become an organ donor?

UK link to sign up - www.organdonation.nhs.uk

#livelifegivelife #organdonation #livertransplantsurvivor #livertransplant #livertransplantrecipient #giftoflife #psc #primarysclerosingcholangitis #nhsorgandonation #fightmacfight
2 months ago today.. 2 months since I was put under the knife and reborn. I was lucky that Tuesday in late June to receive a second chance at life. I was also lucky that my donor had had the talk with her family to donate her organs when she had passed away. Many don't have the conversation of organ donation should they pass despite a majority of the population supporting it. So I urge each and every person who may see this to answer these two questions - Have you had the conversation with your family? Have you signed up to become an organ donor? UK link to sign up - www.organdonation.nhs.uk #livelifegivelife  #organdonation  #livertransplantsurvivor  #livertransplant  #livertransplantrecipient  #giftoflife  #psc  #primarysclerosingcholangitis  #nhsorgandonation  #fightmacfight 
Hey, everyone! Little life update: Yesterday was really exciting for me because I took my last dose of a steroid I’ve been taking to reduce UC related inflammation. I tolerated this medication really well, and have been able to feel a lot better as a result. I share this because as helpful as AIP has been to me and my healing, it is important to me to be totally transparent that I use medication in addition to a healthy, anti inflammatory lifestyle to heal. When I started taking the steroid, I was feeling so awful. I had a failed egg reintroduction (in hindsight I was not well enough to attempt this) which triggered a UC flare. I was exhausted, and I felt trapped in my house for fear of not having a bathroom nearby. After several weeks without improvement, I made the decision to try the steroid and I am so grateful I did. It was scary at first, I thought all of my progress would be destroyed, but after I researched my options given to me by my IBD doctor, I made educated decision. I went from being scared to leave the house to going back to school in a matter of months! For those of you that have healed yourselves or put your conditions into remission without medication: that is so awesome!! For those of you that use conventional medicine or are thinking about it: never, ever be ashamed to use medications, they are a resource to you just like AIP! Be proud of how far you’ve come, whether through lifestyle or medication, or both! Healing is not linear, it is multidimensional and you must do what feels right to you. Happy Friday! 💕🍃💊
Hey, everyone! Little life update: Yesterday was really exciting for me because I took my last dose of a steroid I’ve been taking to reduce UC related inflammation. I tolerated this medication really well, and have been able to feel a lot better as a result. I share this because as helpful as AIP has been to me and my healing, it is important to me to be totally transparent that I use medication in addition to a healthy, anti inflammatory lifestyle to heal. When I started taking the steroid, I was feeling so awful. I had a failed egg reintroduction (in hindsight I was not well enough to attempt this) which triggered a UC flare. I was exhausted, and I felt trapped in my house for fear of not having a bathroom nearby. After several weeks without improvement, I made the decision to try the steroid and I am so grateful I did. It was scary at first, I thought all of my progress would be destroyed, but after I researched my options given to me by my IBD doctor, I made educated decision. I went from being scared to leave the house to going back to school in a matter of months! For those of you that have healed yourselves or put your conditions into remission without medication: that is so awesome!! For those of you that use conventional medicine or are thinking about it: never, ever be ashamed to use medications, they are a resource to you just like AIP! Be proud of how far you’ve come, whether through lifestyle or medication, or both! Healing is not linear, it is multidimensional and you must do what feels right to you. Happy Friday! 💕🍃💊
You know you're a mom when your yearly MRCP counts to your me-time. #mrcp #primarysclerosingcholangitis #momlife #chronicillness #autoimmunedisease #mri #sexyoutfit #fingerscrossed #psc
[原発性硬化性胆管炎に続発した感染性胆管炎]

1枚目:太い肝内胆管は拡張し、胆汁のうっ滞を認めます。
2枚目:胆管の上皮は剥離し、好中球の浸潤や炎症性肉芽組織を認めます。

#753cpc #原発性硬化性胆管炎 #肝硬変 #胆汁 #胆管炎 #黄疸 #病理学 #病理 #cpc #pathology #primarysclerosingcholangitis #haelu #はえる写真室
“Heather, wife and mom to three babes, has suffered through both pre-natal and post-natal depression. And this, along with continued anxiety, is only the most recent of her diagnosis and battle with invisible illnesses...”📝
#scroll 📷
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#tbt to that time I did a #photoshoot (combined with a #blogpost 👩‍💻) to help raise awareness on #invisibleillness — including my own ❤️❤️
👩‍💻 blog post (“Together We Can Make Invisible Illnesses Visible”) link in bio @sheridanholt 👩‍💻
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📸 (b/w) @dynamiceyephotography 📸
📸 (colour) @codiophotography | @codiophoto 📸
💄 @sarikamehtamakeupartist & @lucerop 💄
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#chronsdisease #chrons #primarysclerosingcholangitis #awareness #photography #blackandwhite #blackandwhitephotography #yycphotography #portraitphotography #autoimmunedisease #chronicillness #chronicpain #chronicpainwarrior #blog #picoftheday #bestoftheday #survivingsher #chronicallyliving #igdaily #igers #instagood #instalove #throwbackthursday #spoonie #spooniefamily 
@hspearmano
“Heather, wife and mom to three babes, has suffered through both pre-natal and post-natal depression. And this, along with continued anxiety, is only the most recent of her diagnosis and battle with invisible illnesses...”📝 #scroll  📷 • #tbt  to that time I did a #photoshoot  (combined with a #blogpost  👩‍💻) to help raise awareness on #invisibleillness  — including my own ❤️❤️ 👩‍💻 blog post (“Together We Can Make Invisible Illnesses Visible”) link in bio @sheridanholt 👩‍💻 • . . . 📸 (b/w) @dynamiceyephotography 📸 📸 (colour) @codiophotography | @codiophoto 📸 💄 @sarikamehtamakeupartist & @lucerop 💄 . . . #chronsdisease  #chrons  #primarysclerosingcholangitis  #awareness  #photography  #blackandwhite  #blackandwhitephotography  #yycphotography  #portraitphotography  #autoimmunedisease  #chronicillness  #chronicpain  #chronicpainwarrior  #blog  #picoftheday  #bestoftheday  #survivingsher  #chronicallyliving  #igdaily  #igers  #instagood  #instalove  #throwbackthursday  #spoonie  #spooniefamily  @hspearmano
We've sat in so many waiting rooms at hospitals and transplant centers over the last few years. But today is different. Today we've heard so much laughter and joy. We are currently sitting in the waiting room that is specifically for transplant patients... People either being evaluated for transplant or are already on the list. If they can find joy in this moment, then anyone can.

Today I encourage you to find joy in the little things. Find something to laugh about, and share it with others. Laughter is always the best form of therapy!

#livertransplant #livertransplantjourney #pscawareness #primarysclerosingcholangitis #findjoyinthelittlethings #gratefulheart
We've sat in so many waiting rooms at hospitals and transplant centers over the last few years. But today is different. Today we've heard so much laughter and joy. We are currently sitting in the waiting room that is specifically for transplant patients... People either being evaluated for transplant or are already on the list. If they can find joy in this moment, then anyone can. Today I encourage you to find joy in the little things. Find something to laugh about, and share it with others. Laughter is always the best form of therapy! #livertransplant  #livertransplantjourney  #pscawareness  #primarysclerosingcholangitis  #findjoyinthelittlethings  #gratefulheart 
This is my liver book from when I first got diagnosed with #primarysclerosingcholangitis in August of 2003. I #shredded the contents today. Apparently my#copingmechanisms include stupid binders, #makinglists and #thexmen
So this is what 7 years difference looks like for me.… on the left, 2011 weighing over 21st and coming last at a #golf tournament. At that time I was working away a lot and would no doubt be having a #takeaway where ever I was at that given time! On the right, this year, 2018… and winning the #teecuptour at @cardenparkhotel but weighing in at 14st (now 13st 5 due to illness) still carrying some puppy fat as I call it but so much #happier these days. During the two pictures I’ve had so many #upsanddowns with illnesses. I first got diagnosed with #colitis & #primarysclerosingcholangitis in 2007 then in 2011 #diabetes #type1diabetes although learnt since it was #type2diabetes but with symptoms of a type 1 (long story) then in 2014 I was diagnosed with #sarcoidosis & #rhumatoidarthritis so my #immunesystem is pretty messed up leading to endless #hospital stays and appointments hence why it’s about time I made this massive change in my diet which really started about 12 weeks ago when I also joined a #bootcamp which got cut short due to another #flareup of my symptoms. I’m on the mend and #focused to eat #healthier & try have a clearer mind so I don’t get as stressed out about little things. I’ve got my #family around me and a great bunch of #friends that keep my spirits up especially at the minute while I’m on #prednisone  Well that’s my little story so I hope it didn’t bore you and yes I’m a #hashtagslut these days too! #invisableillness
So this is what 7 years difference looks like for me.… on the left, 2011 weighing over 21st and coming last at a #golf  tournament. At that time I was working away a lot and would no doubt be having a #takeaway  where ever I was at that given time! On the right, this year, 2018… and winning the #teecuptour  at @cardenparkhotel but weighing in at 14st (now 13st 5 due to illness) still carrying some puppy fat as I call it but so much #happier  these days. During the two pictures I’ve had so many #upsanddowns  with illnesses. I first got diagnosed with #colitis  & #primarysclerosingcholangitis  in 2007 then in 2011 #diabetes  #type1diabetes  although learnt since it was #type2diabetes  but with symptoms of a type 1 (long story) then in 2014 I was diagnosed with #sarcoidosis  & #rhumatoidarthritis  so my #immunesystem  is pretty messed up leading to endless #hospital  stays and appointments hence why it’s about time I made this massive change in my diet which really started about 12 weeks ago when I also joined a #bootcamp  which got cut short due to another #flareup  of my symptoms. I’m on the mend and #focused  to eat #healthier  & try have a clearer mind so I don’t get as stressed out about little things. I’ve got my #family  around me and a great bunch of #friends  that keep my spirits up especially at the minute while I’m on #prednisone  Well that’s my little story so I hope it didn’t bore you and yes I’m a #hashtagslut  these days too! #invisableillness 
Have you ever had a flare right after a stressful event?
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If you’re like most people with IBD, the answer is yes.
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Yet, how often do we all talk about how stress/anxiety can impact IBD? Probably not as often as we should.
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These are some short clips from one of my previous vlogs.
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Interested in watching the whole vlog? DM me your name and email and I’ll put you on my list so you can get the weekly vlog in your inbox.
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#stress #rest #stressreliever #meditation #yoga #zen #stressedout #flareup #flareups #crohns #colitis #ulcerativecolitis #crohnsdisease #ibd #spoonie #spooning #immune #relax #chillout #inflammatoryboweldisease #ibs #irritablebowelsyndrome #psc #primarysclerosingcholangitis #liver #autoimmune #chronicillness #chronicallyill
Have you ever had a flare right after a stressful event? . If you’re like most people with IBD, the answer is yes. . Yet, how often do we all talk about how stress/anxiety can impact IBD? Probably not as often as we should. . These are some short clips from one of my previous vlogs. . Interested in watching the whole vlog? DM me your name and email and I’ll put you on my list so you can get the weekly vlog in your inbox. . . #stress  #rest  #stressreliever  #meditation  #yoga  #zen  #stressedout  #flareup  #flareups  #crohns  #colitis  #ulcerativecolitis  #crohnsdisease  #ibd  #spoonie  #spooning  #immune  #relax  #chillout  #inflammatoryboweldisease  #ibs  #irritablebowelsyndrome  #psc  #primarysclerosingcholangitis  #liver  #autoimmune  #chronicillness  #chronicallyill 
At home I’ve nearly always slept with a bowl either next to my bed or in bed in case I needed to throw up during the night. Luckily, I don’t throw up randomly as much as I used to. More recently I’ve wondered how much I really need this by my bed still, and the other night I confirmed it’s definitely worth having in my bed... Sometimes I just can’t make it to the bathroom fast enough even though it’s right across the hall because I’m too tired. I will definitely be getting a bowl for my dorm room bedroom

#ulcerativecolitis
#primarysclerosingcholangitis
#psc
#inflammatoryboweldisease
#ulcerativecolitisfighter
#ibdwarrior

The bowl might look gross, it’s not—it’s just hard water marks
At home I’ve nearly always slept with a bowl either next to my bed or in bed in case I needed to throw up during the night. Luckily, I don’t throw up randomly as much as I used to. More recently I’ve wondered how much I really need this by my bed still, and the other night I confirmed it’s definitely worth having in my bed... Sometimes I just can’t make it to the bathroom fast enough even though it’s right across the hall because I’m too tired. I will definitely be getting a bowl for my dorm room bedroom #ulcerativecolitis  #primarysclerosingcholangitis  #psc  #inflammatoryboweldisease  #ulcerativecolitisfighter  #ibdwarrior  The bowl might look gross, it’s not—it’s just hard water marks
Im just looking for something to do at home on days when my fatigue and pain is so bad its hard to even get around the house. I am a very honest, open, and blunt person.. i would be completely honest with you about your product/apparel.. im really just trying to find something fun i can do during the day when I'm stuck all alone at home  #cannabiscures #cannabiscommunity #mmmp #cannabislove #chronicillnesswarrior #chronicfatigue #chronicillnessawareness #organtransplantawareness #transplantneeded #liverdisease #livertransplant #primarysclerosingcholangitis #pscsucks
Im just looking for something to do at home on days when my fatigue and pain is so bad its hard to even get around the house. I am a very honest, open, and blunt person.. i would be completely honest with you about your product/apparel.. im really just trying to find something fun i can do during the day when I'm stuck all alone at home #cannabiscures  #cannabiscommunity  #mmmp  #cannabislove  #chronicillnesswarrior  #chronicfatigue  #chronicillnessawareness  #organtransplantawareness  #transplantneeded  #liverdisease  #livertransplant  #primarysclerosingcholangitis  #pscsucks 
Life is not about waiting for the storm to pass, it’s about learn to dance in the rain!!
8 weeks post op but always head high walking proudly during the runaway fashion show organized by my fantastic wife last week.

Love Always Shine Every-time Remember to Smile ✨

#invisiblediseaseawareness#ostomyfashion#ibd#nocolonstillrollin#chronicaldiseasewarrior#klatskintumor#primarysclerosingcholangitis#livertransplant#cancersurvivor#LASERS4life#wewillnotlose#theworldisavillageandmyfamilyishuge 🙏🏿
Life is not about waiting for the storm to pass, it’s about learn to dance in the rain!! 8 weeks post op but always head high walking proudly during the runaway fashion show organized by my fantastic wife last week. Love Always Shine Every-time Remember to Smile ✨ #invisiblediseaseawareness #ostomyfashion #ibd #nocolonstillrollin #chronicaldiseasewarrior #klatskintumor #primarysclerosingcholangitis #livertransplant #cancersurvivor #LASERS4life #wewillnotlose #theworldisavillageandmyfamilyishuge  🙏🏿