I’m ready to share my thoughts on the @netflix show #Afflicted . I haven’t finished the series (probably won’t), but the first few episodes have decidedly convinced me of my opinion: I hate it. It echoes of inspiration porn while simultaneously discrediting invisible chronic illness. It uses people’s illnesses as shock value to get viewers. It sows seeds of disbelief in the audience’s mind by focusing on somatization. I’m glad the exposure has helped some of the cast members receive treatment, but at what social cost? They’ve delegitimized chronic illness by turning it into reality TV. My diagnosis isn’t your entertainment. Do we need more representation in mainstream media? Absolutely, but this is not the way to do it. The show has a few good threads in it that they could’ve developed further into real advocacy, but instead they prioritized shock value to increase views and therefore profits. Not a fan. Do better, @netflix.
this stuff is my jam!!!!!
1. It tastes fantastic!!!!!
2. It helps SO much with sore muscles... aka I can sit and use the stairs after leg day!
3. Its going to be on SALE next week only in my flash sale group 🙌🙌🙌🙌 If you'd like to try this amazingness let me know and I'll get you in the group!!!!
@bodyposipanda I have been there - many times. Each time I thought that was it for me, I have picked up the pieces and taken another step by the grace of God, more and more steps follow and I am slowly filled with the knowledge and confidence I can do so again. Healing comes when we don't run from the darkness. Embrace the darkness, your light will shine through it. Please - don't give up. #nevergiveup#spoonie#lymedisease
What’s really going on behind the scenes? 🤷🏻♀️ From this photo, you would never know that I’m suffering from multiple chronic illnesses. You would never know that I woke up at midday, did my hair and make up and then needed another nap by 1.30pm because I felt so ill. You’d never know how gutted I was to be back in bed for the rest of the day instead of being out with friends.
But how can I expect you to know all of that if I don’t tell you? Sometimes I’m guilty of getting upset with friends / family for not understanding. I just assume they should know how I’m feeling and what I can or can’t do. Just like how friends on my personal Instagram account assume that I’m well, because all they see is the highlight reel. The thing is, we all make assumptions. Appearances can be so deceiving and in this world of 24/7 connectivity, we’re still not connecting enough. We’re not communicating enough, or we’re not communicating effectively. Start now. Ask that friend who has the perfect Instagram feed how they’re doing. Tell that friend that went AWOL when you became ill how you really feel. Ask a stranger how their day is going.
Just reach out. Listen. Share. Give compliments. Small acts can often make a great difference.
Remember, everyone is fighting a battle that you know nothing about. That’s why this #makeupandasmile campaign by @lifeoflittlethings is so important, so please do get involved! Appearances can be so deceiving so don’t be so quick to judge.
“In a world where you can be anything, be kind.” ✨
I’m providing this information, because I have seen some misconceptions about Vogmasks. As you may know, these masks are fairly popular in the chronic illness community. They’re stylish and protect from allergens, some MCAS triggers, poor air quality, smoke, and more. What it DOESN’T protect against is viruses and some bacteria, which is crucial knowledge for those with immunodeficiency who may need to wear a mask in some places. Vogmask explicitly states what their masks can protect against, and to what size particles it can filter out. The smallest particle size they can filter is 0.254 microns. Some bacteria can be smaller than this, and viruses range from 0.004 - 0.1 microns — at LEAST less than HALF the size Vogmask filters out! Despite this, some people advise to use this for immunodeficiencies. This is DANGEROUS information to spread!!!
「Image Desc: An excerpt from the Vogmask FAQ says: “VOGMASK is used for protection from airborne particles such as PM 0.3, PM 2.5, PM 10, dust, allergens, post combustion particles, germs, shavings, biologics, odors, scents, mold, mold spores, particles in wildfire smoke, volcanic particulate pollution, and other airborne contaminants. The benefits of particulate respirators are confirmed by leading health providers worldwide. Highly efficient filtering masks help protect the mask wearer from particles as small as .254 microns.”」
So, here’s my post about health, Part 1!
Most of you know that I’ve spent the past 2 years mostly in bed. 4 years ago (before anorexia came into the mix) I was diagnosed with ME/CFS and Fibromyalgia. I had a bunch of tests, most of which came back fine. When nothing was improving, my Dr just told me I needed help for ‘health anxiety’. At that time, I was scared, because until then, I had thought I was moderately ‘healthy’ (although I seemed to be ill nearly constantly from around age 14 and in bed more than my friends.) Fast forward- Things got bad 2 years ago. Recently, I had a tilt test and was very symptomatic. I found the POTS community after I was told I did not have POTS, and found a whole host of people who had been told the same, because hospital staff believe you must faint to have POTS. (You don’t. Only 30% do and many present with exercise intolerance, fatigue and nausea.. sound familiar? 😂) I sent my results to a POTS specialist, who told me to see him in Surrey as my results DO show it, but other things that could cause similar heart symptoms need to be ruled out first. So, at the end of the month, I am hoping to finally have 4 years worth of answers and also some help to get back on my feet, literally!
As well as this, it turns out that loads of people with Fibromyalgia who have ME/CFS or POTS have EDS instead. The specialist I am seeing luckily knows about it as well. After doing some research, I’ve noticed that a lot of my problems seem to coincide with this genetic disease (eg. Hypermobility and awful pain, especially in back and shoulders and knees, hips, shoulders crunching out of place at night, crumbling teeth which I’ve had to have several operations for, no earlobes, pigeon footing, flat feet and high arches, stretchy skin and eyelids, delayed wound healing, weird scarring, misbehaving veins/bad blood pooling, etc). I am by no means diagnosing myself and I hope this doesn’t upset anyone because please PLEASE, I really don’t want to offend ANYBODY 💖💖 It’s just this is what we’re looking into, because there seem to be an awful lot of coincidences. Part 2 is to come in next post!
"Count your blessings," "be grateful for what you have," blah blah blah.
Even though those comments/sayings are usually well-meaning, they can feel a bit condescending and plain out invalidating to the struggles of chronically ill/disabled people. However, they do have some merit to them.
Ok so let's take, "be grateful for what you have." Easier said than done. Alright, so break it down. Focus on what you have rather than what you don't have. .
There is always something that you have, even if it's small. And sometimes it's too small to be worth much at all, and I get that. And sometimes that will make you sad and upset and it'll be hard to get out of bed the next day because of it, and that's okay. Let yourself feel.
But then, remember that small bundle of what you have. Hold on to that little speck of gratefulness. That's your lifeline. That's your hope. That's how you'll get through this, whatever "this" may be. .
Don't let the "can'ts" smother your soul. Remember to breath above the muck of "can'ts" to see things for what they are. Yes, you don't have some things, but look at what you do have. Now, focus on that. .
[Image description: A canopy of trees with the sun shining through. The trees' leaves are greenish-yellow in the light.]
First attempt at homemade granola and it was a success✔. It's always good to have a snack on the go to keep your body from getting too hungry in between meals and granola is the perfect way to prevent that! It's simple to make, and light to take, 100% recommend trying it out; its soo much better than anything store bought, health and taste wise.
RECIPE: ♡ 1 cup of oats ♡ 3/4 cup pumpkin seeds ♡ 3/4 cup sunflower seeds ♡ 1/4 cup pure maple syrup ♡ 1/2 cup of quinoa
♡ 6 dates sliced 》》heat the oven to 300° F. Combine all the ingredients into a big bowl, and then place on a tray with parchment paper. Bake for 30-45 min.. mine took about 37 min. ENJOY!
One of a kind teeeeeny tinyyy teacup guys!
I’m having so much fun playing around with the wax resist, and it’s got me ALL SORTS OF INSPIRED! It’s weird how just by changing the way you apply the design, opens up new ideas! You guys will definitely be seeing more like this because I’m in love over here! 😬