Things. We. Must. Talk. About. .
Acute mental health, even psychotic symptoms, suicidal thoughts, changes in behaviour and cognitive processes, can happen after viral or bacterial infections. .
When the immune system cannot find sneaky bacteria that like to camouflage themselves to avoid detection, it freaks out and can attack neurotransmitter receptors and/or lead to neuroinflammation. Then BAM, mental and neurological aggravation. PANDAS / PANS (pediatric autoimmune neuropsychiatric disorders, sometimes associated with strep but other infections as well) is an example of this phenomenon. .
The immune system is highly implicated in any case of mental health or neurodevelopmental symptoms in kids, and what is needed at the root is healing the gut, supporting the immune system in targeting its function and reducing inflammatory changes in the brain, even if medication is used for the mental health symptoms or infection in the interim. .
Both conventional and biomedical (naturopathic) treatments can be used together. In fact, it is recommended for optimal patient health outcomes (which includes preventing recurrent illness and building a resilient brain and metabolome).
Those early days were so incredibly hard. I went through 9 months of a beautiful pregnancy, a challenging birth, handed this beautiful baby boy that I got to take home after being in hospital for 5 days and it was really, really hard.
Thanks @chezzidenyer for these conversation starters.
I wish I knew.... asking for help didn’t make me a bad mother
What did you wish you knew?
It was a happy mail day today!
This is going to be a long post but I promise it’s worth the read! I have the pleasure of sewing up and promoting these amazing charity prints. We’re all used to cute and cuddly pandas on fabric and clothes but for those with a loved one with PANDAS they are anything but. PANDAS (PANS) stands for paediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (paediatric acute onset neuropsychiatric syndrome). I’ll be posting more details but I’ll also add some links if you want to read more about these! Basically there is an autoimmune reaction that causes the body to attack the brain causing neuropsychiatric symptoms such as OCD and anxiety do develop seemingly overnight. These prints are to raise money and awareness for these horrifying disorders that shockingly can affect up to 1/200 children! If you have any questions I will find someone with an answer! I will also add in some links to more info if you’re interested. ❤️ Stay tuned to see these beauties sewn up!
To all my fellow sewists - these amazing prints are opening for preorder November 1st at @midnightmountainfabrics !! #pandasawareness#pandaspans#pandaspansawareness#midnightmountainfabrics
Join me on Luminara Serdar’s Autism Recovery Summit tomorrow when we’ll be talking about diagnosis, treatment and recovering from PANDAS/PANS. Join us and grab my bonus ebook - Common Reasons Treatment Fails...And How to Avoid Them. Check out my FB page, Originsofhealth, for a link to this talk. #pandaspansawareness#autismrecovery#PANS#PANDAS ##autoimmune disease
Flowers gathered from our sweet girl who has taught me to cherish in and delight in each day as a gift. We are not a diagnosis we are given, but we are beautifully created for a unique purpose. 💚
Today is PANDAS/PANS awareness day and the truth is this disorder has shaped our family in ways I don’t care for. It has also shaped our family in ways that are an unexpected gift - I have gained a perspective in cherishing our days, a hug from a child is sweeter, time is more precious, freedom from fear, piles of laundry wait, my heart has been opened to sit with others in their trials, it has brought us closer to one another and to the ONE who comforts us.
It has taught me to abide in the one who is all-knowing, all-powerful and all-loving. He has gone before us, is still with us and won’t ever leave us. Abiding is something I am still learning (and will continue to until that day I meet Jesus face to face). When a flare up comes in my flesh I want to put my head in the sand, sit in despair, curse the doctors who won't help, the insurance that won’t pay for it and live in the what if’s! Moments flood in where your heart aches more than you ever imagined it could - you and your husband just look at each other and hold one another, because no one really gets how hard it is on the days where you wonder where your child is. The holding is my safe space - it speaks “it is going to be okay - I am with you in this wilderness” when words can’t.
We all have or will face wilderness moments - that no one gets, days where we want someone to hold us and tell us it’s going to be okay, trials that make us weep, and you want to do anything in your power to make it change - go away - make it stop!
As much as I love the embrace of my forever - abiding with Christ is a holding that won’t ever stop - living in Him and remaining in Him. It is a relationship that is intimate - He knows my heart beats, my fears, and even when circumstances don’t change He is still good.
Abide (sit-remain-stay) with a friend to just BE with them in the hard. It speaks volumes! Abide in Him. “We can do nothing, apart from Him.” Abide in His word. “Know the truth, and the truth will set you free.” 👇
What day comes after Columbus Day??? The slightly lesser known PANDAS / PANS Awareness Day. (Don’t panic, the Post Office is still open.) .
This is definitely not a day to celebrate. I hate that this illness even exists, much less that it’s becoming so common that it has its own day. I hate that kids have PANDAS awareness t-shirts, and they aren’t the cute bamboo eating kind. But I am grateful more doctors are recognizing this devastating illness and diagnosing children properly (because 1 in 200 isn’t rare.) One of our missions is not only to spread awareness, but also some faith, hope, and love while we’re at it. This article did such a great job capturing what we’re about, I’m sharing it again. ~
“Spreading the word about the health benefits of donkey milk is a big part of Saundra’s mission—as is helping other parents who face the same challenges she did. “Saundra posted on a Facebook group about PANDAS that she would give a jar of milk free to any parent of a child with PANDAS, so we planned a trip to Oklahoma,” says Tami, a Dallas resident. (💕 All thanks to ya’all buying our soap and skincare. 💕) Within five hours, Tami says she had seen an impact in her daughter’s obsessive-compulsive behavior, and within seven days, there were even more remarkable results, prompting multiple trips back to Oklahoma. “My daughter is in fifth grade,” she says. “Since having a PANDAS flare, she had been reading at the pre-K or kindergarten level. After a week of being on donkey milk, she was back up to a sixth grade reading level like she had been before.” The health benefits of donkey milk aren’t limited to the internal. In early 2015, Saundra started her Dulce de Donké skincare line. Her natural soaps, moisturizer, deodorants, and hair care—all of which have earned rave reviews— are made with donkey milk, essential oils, and other gentle ingredients. But for the Traywicks, children’s health always comes first.”
Read the full article here:
Instead of going to the Capitol for PANDAS awareness day, we did our activism hauling donkey milk and kittens and kids to the tornado shelter, and then reuniting baby donkeys with their mothers. (Apparently Cinnamon has a “save yourself, forget the kid” donkey momma mentality.) And although we may have missed the Capitol, I’m pretty sure this is the type of Activism we’d rather be known for. Our sphere of influence is right here, and although we don’t have a safe room that will fit all the donkeys, we have a God that can calm the storm.
Rylan has made me a better mom, therapist, and person. He has shown me - not only the fighter he is- but the one I AM! 💪🏻
I will talk about this until the epidemic is seen and treated.
While kids are being misdiagnosed and put on psychotropic medications that won’t even begin to touch this ... Lyme and/or Strep rage in their bodies taking away the kid we once knew.
There is a SIMPLE solution: long term antibiotics.
You don’t have to ever see a bullseye to have Lyme. You don’t have to have active Strep throat to have raging streptococcus in your body.
Get educated more than your average doctors will tell you then -educate THEM.
Doing so - LITERALLY saved my sons life!!!!#pandaspansawareness
PANDAS or PANS in our kids has become an epidemic in our society. It is an autoimmune associated condition that involves neuro inflammation (brain) that triggers new or worsens symptoms such as anxiety, developmental regression, OCD behaviours, bed wetting or an increase I urinary frequency, Tics, rages or aggression. I am part of a dedicated team at Remed clinic that treat children diagnosed or with a suspected diagnosis of this condition. Our treatments offer safe, individualised treatments to help in the management symptoms in a supportive environment. For my information or if you would like complimentary chat please get in touch by visiting my Facebook page Rachel Marley - Naturopath . #pandaspansawareness#naturopathy
Flo has cooled things down here. Since all the way home from Athens with the window down. Hence, one side of my hair is all crazy messy. 😂
Also, wore my panda necklace today. 💚🐼💚 #PANDASmom#PANDASPANSAwareness#PANDASwarrior
Why do we need a vitamin infusion? Many of us have underlying issues with our gut. These issues mean that we do not always absorb all of the nutrients we take in from food or tablets. Couples with other help issues, we can find ourselves deficient in many essential vitamins which can lead to fatigue, hair loss, malnutrition, acne, anaemia and much more. Our vitamin infusion is given intravenously. Which means that you absorb 100% of all the nutrients and avoid these issues. Call or book today for your life saving infusion, you won’t regret it! #theihfclinic#IHFglow#antiageing#malnutrition#skin#vitamins#lymedisease#pandaspansawareness#cancer#london#autism
Time for another update about our amazingly strong and brave son, Gibson. He has been being treated for about three weeks now, and we are maybe seeing a few differences, but not much progress yet. Things are still very hard, almost harder as we start to realize healing isn’t fast or guaranteed. Gibson still has more testing to undergo, which will hopefully lead to an even more beneficial treatment plan. Please continue to share his story gofundme.com/teamgibsont (link in bio), and support our fight. We’d like to once again thank EVERYONE for all of your support through this incredibly difficult battle! Just sharing the story, educating ourselves and others so that these kids can finally get proper treatment for this horrible illness is more help than you can imagine! #teamgibson#goteamgibson#pandaspansawareness
Andy has a Color Run at school today and they were having a pizza party after with cookies for dessert. I’m so grateful that we have found a gluten, egg and dairy free pizza that he loves (thanks @daiyafoods ) and gluten, egg and dairy free cookies (thanks @sweetlorens 😍. These new chocolate brownie cookies are the bomb!!). If you follow my page, then you know this isn’t his typical school lunch, but it also means he doesn’t have to feel left out at school. We have stuck to this diet to treat his autoimmune disorder 100% and without exception for 4 straight months (with 5 months of eating cleaner before we got his test results back to know exactly which foods he needed to avoid) and in the past 4 months his involuntary eye blink/roll facial tic that was happening up to 30 times in a minute has completely resolved! My eyes are filling up with tears as I write this 😭. His other PANDAS symptoms have drastically improved as well. This has been a long, exhausting and terrifying road over the past year and a half, but foods can heal! I have no doubt. This isn’t the only treatment we are doing, but I believe it is the one that has had the most significant impact and it allows the other supplements, etc to do their job ❤️