Time for another update about our amazingly strong and brave son, Gibson. He has been being treated for about three weeks now, and we are maybe seeing a few differences, but not much progress yet. Things are still very hard, almost harder as we start to realize healing isn’t fast or guaranteed. Gibson still has more testing to undergo, which will hopefully lead to an even more beneficial treatment plan. Please continue to share his story gofundme.com/teamgibsont (link in bio), and support our fight. We’d like to once again thank EVERYONE for all of your support through this incredibly difficult battle! Just sharing the story, educating ourselves and others so that these kids can finally get proper treatment for this horrible illness is more help than you can imagine! #teamgibson#goteamgibson#pandaspansawareness
I'm really super excited about my new CafePress store. I'm working on it all this week. My favorite thing is we'll have #TeamMalachi and #PANDASPANSAwareness shirts and cups and such.
I'll be adding the link to my link tree in a couple of days when I've got a few more products up.
Andy has a Color Run at school today and they were having a pizza party after with cookies for dessert. I’m so grateful that we have found a gluten, egg and dairy free pizza that he loves (thanks @daiyafoods ) and gluten, egg and dairy free cookies (thanks @sweetlorens 😍. These new chocolate brownie cookies are the bomb!!). If you follow my page, then you know this isn’t his typical school lunch, but it also means he doesn’t have to feel left out at school. We have stuck to this diet to treat his autoimmune disorder 100% and without exception for 4 straight months (with 5 months of eating cleaner before we got his test results back to know exactly which foods he needed to avoid) and in the past 4 months his involuntary eye blink/roll facial tic that was happening up to 30 times in a minute has completely resolved! My eyes are filling up with tears as I write this 😭. His other PANDAS symptoms have drastically improved as well. This has been a long, exhausting and terrifying road over the past year and a half, but foods can heal! I have no doubt. This isn’t the only treatment we are doing, but I believe it is the one that has had the most significant impact and it allows the other supplements, etc to do their job ❤️
This is my son Gibson Marshall Tanner. Please take a minute or two to read about his situation and help us in any way you can! If you’re able to donate, we appreciate your helping us get our amazing boy the treatment he so desperately needs! If you’re not in a position to help financially at the moment, we would be equally grateful to you for sharing his story/gofundme on your wall, both to help us reach our goal and to spread awareness about this horrible disease. Good thoughts, vibes, prayers, however you are so inclined, would also be greatly appreciated!
I’d like thank everyone that has already showed us so much love and support by donating to and sharing. We’re getting closer to being able to schedule our first appointment and that in itself is VERY exciting to us! Once we can get him to the doctors that understand his condition, we can start the treatments necessary to hopefully give him relief from this debilitating disease.
Please follow link in my bio for gofundme.
Getting back into the week! Only 6 more weeks left of school 😅. It’s rainy and gross outside, the weekend went by way too fast and no one wanted to get up today 😬. But none-the-less, school lunches were made, and kids were sent off to school 😜. I timed it this morning, and it only took 7 minutes to pack lunches. I’ve had some people tell me that they don’t have time to pack lunches like this in the morning. 🤷🏻♀️. It’s 7 minutes! It’s not like I’m cutting things into animal shapes and adding decorative flags on toothpicks or any other Pinterest-perfect features 😂. But more power to you if that’s your thing! 🙌🏼. Anyway, I think that the mental shift is a more difficult change to make than the actual change in what you are packing. Today the kids got left over meatloaf, strawberries and blackberries, rainbow carrots from @thebountyboxchs and some seed crackers and hummus 😋
Back to school today!!! We had a Spring Break full of Flu B running through our house...it hit everyone except Matt and Andy 😳. It hasn’t been enough days yet to feel like they are in the clear, but 🤞🏼🤞🏼🤞🏼🤞🏼. I’m really hoping Andy doesn’t get it! It would feel like such a huge victory if my immune compromised child was my ONE kid not to get sick!! 🙌🏼. I probably need to start pouring the same level of effort into the other kids’ diets (although they do pretty well) and other immune boosting lifestyle changes as I do Andy 😬. We have seen a REMARKABLE improvement in Andy’s PANDAS symptoms over the past 4 months...most noticeably, his facial tic is almost 100% gone 🙏🏼... it felt very overwhelming to implement so many new things into our lives, and for a while, I felt like I was constantly grasping at straws. I know that PANDAS symptoms can improve and then flare and continue in that cycle, so I know that we are not “out of the woods” but for now I feel like I can breathe a small sigh of relief ❤️
School lunch today: all natural hot dog, blackberries, a clementine, yellow pepper strips with some hummus and a few seed crackers 😋
Although we have greatly reduced added sugar in the kids’ diets since Andy was diagnosed with PANDAS we haven’t totally eliminated it. His IgG tests showed that he needs to stay away from eggs, wheat and dairy...and we stick to that 100%, without exception. So, if we have a party, or they are doing something at school where sweets are involved, these cookies from @sweetlorens have become our go-to. It was REALLY hard to find cookies that were gluten free AND vegan (to get the egg and dairy free), so I’m super grateful that the @publix down the street carries these! One of the most difficult parts of having to do an elimination diet with kids is having them feel left out at parties when they can’t have what everyone else is having. I think this is where it is really easy, as a parent, to cave and make exceptions. But every time that happens, you are setting your child back on making progress improving their gut health and immune function. In a perfect world, Andy wouldn’t be having any added sugar either, but this helps us to balance the mental challenges for him with his diagnosis and the changes we’ve had to make, and still staying compliant with his diet. And this truly is just a once in a while treat ❤️
This past weekend I was called out for my use of the individual plastic bags in the produce section of the grocery store. Actually, I was told “we need to talk about your use of single use plastic...we were making fun of you for it” because my lime, onion, avocados and cilantro were all in separate bags. It caught me off guard because I try to be good about that stuff, but I didn’t even think about it in the grocery store that morning. I felt embarrassed and shamed and just felt like I can’t remember to do ALL the things ALL the time. My focus lately has been getting my son healthy. Getting his immune system to conquer his PANDAS. His brain is literally inflamed, and I will keep fighting until his body can heal. Today, when I got my Bounty Box @thebountyboxchs I was reminded why I didn’t give a second thought to what I was doing at the grocery store...because I’m very rarely even buying produce there! Most of our produce comes in a box that is re-used weekly, is locally sourced and supporting small business farmers. Our meat comes from a local butcher @burbagemeats. I pack a zero waste lunch every day for my kids, and we buy very little processed and packaged foods. This has been a huge lifestyle shift for us as a family. It’s a slow & winding road of progress, but it IS progress, and I’m not going to be perfect all the time. I will for sure be aware of my use of plastic bags in the grocery store when I go, but I’m good with the path we are on and the little improvements we are making day by day to better ourselves 😘 (this week we got strawberries, rainbow carrots, broccoli, Brussels sprouts, and red and green apples 🍓🍏🥦🍎🥕)