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Hello Loves! We are officially back from vacation and our shop is OPEN! keep an eye out for our 4th of July specials and of course some VIP limited edition releases! Want to have access first? Head over to Ophelia The Dreamer VIPs on Facebook and ask to join 😘 
#beachbums #familyvacation #sunsandandsurf#chronickiddos #beaunicorn #princessdisneyears #imgoingtodisneyworld #flowersinyourhair #handmade  #etsysmallshop #babyheadbands #babybows  #momswag #mombun #mommyandme #hippiechild #changingthefaceofbeauty #downsyndromeawareness #nothingdownaboutit #upsyndrome #theluckyfew #downsyndrome #givingback
#newbornphotoshoot #untilallthepiecesfit #autismawareness #lissencephalyawareness #gofundme #magicalmail #helpspreadthelove
Hello Loves! We are officially back from vacation and our shop is OPEN! keep an eye out for our 4th of July specials and of course some VIP limited edition releases! Want to have access first? Head over to Ophelia The Dreamer VIPs on Facebook and ask to join 😘 #beachbums  #familyvacation  #sunsandandsurf #chronickiddos  #beaunicorn  #princessdisneyears  #imgoingtodisneyworld  #flowersinyourhair  #handmade  #etsysmallshop  #babyheadbands  #babybows  #momswag  #mombun  #mommyandme  #hippiechild  #changingthefaceofbeauty  #downsyndromeawareness  #nothingdownaboutit  #upsyndrome  #theluckyfew  #downsyndrome  #givingback  #newbornphotoshoot  #untilallthepiecesfit  #autismawareness  #lissencephalyawareness  #gofundme  #magicalmail  #helpspreadthelove 
This picture was taken by such a coincidence, but I feel like I can hear him saying “Use your head, mommy”🤣 偶然に撮れただけのはずなんですけど、「頭使いなよ、ママ」て言われてる気がする。

#extrachromosomeextracute #nothingdownaboutit #extrachromosome #theluckyfew #downsyndrome #21trisomy #21トリソミー #ダウン症 #useyourhead #煽られてる #頭使いなよ
Being an aunt is quite possibly my favourite role in life! These two have added so much joy, so much fun, so much adventure and a whole lotta love to my life. I’m so happy to be kickin it in PEI with Norah and Elliot this week. (Stay tuned because I PROMISE, there will be more!)
Being an aunt is quite possibly my favourite role in life! These two have added so much joy, so much fun, so much adventure and a whole lotta love to my life. I’m so happy to be kickin it in PEI with Norah and Elliot this week. (Stay tuned because I PROMISE, there will be more!)
T H R O W B A C K to Friday’s #ootd I was away the weekend and daddy insisted on choosing Evie’s outfits himself 🙈🙈
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We are having a pj day today and plenty of snuggles, she’s a little crabby an her nappy’s are just 🤢 so I’m hoping it’s a sign of a little tooth on the way 🙃
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#instababy #babyfashion #acdc #rockchick #babygram #cutekids #momlife #babydiary #downsyndrome #upsyndrome #babymodel #t21 #trisomy21 #motherdaughter #kidsfashion #fashioninsta #momblog #babyblogger #style #irishmammy #nothingdownaboutit #downsyndromelove #littlebowpip #morealikethandifferent #rockband
T H R O W B A C K to Friday’s #ootd  I was away the weekend and daddy insisted on choosing Evie’s outfits himself 🙈🙈 • • We are having a pj day today and plenty of snuggles, she’s a little crabby an her nappy’s are just 🤢 so I’m hoping it’s a sign of a little tooth on the way 🙃 • • • • • • • • • • #instababy  #babyfashion  #acdc  #rockchick  #babygram  #cutekids  #momlife  #babydiary  #downsyndrome  #upsyndrome  #babymodel  #t21  #trisomy21  #motherdaughter  #kidsfashion  #fashioninsta  #momblog  #babyblogger  #style  #irishmammy  #nothingdownaboutit  #downsyndromelove  #littlebowpip  #morealikethandifferent  #rockband 
#vamospanama Aquí está tu barra @somosmarearoja #nothingdownaboutit #sisepuedepty
Our youngest gal starts a summer series of @aaronsacres day camps today 💙💛 This mama is excited and nervous for her. That feeling of handing her off, even to a sweet camp counselor, still gets me in the heart. Good Luck, Nadia!!!! I’m excited for the friends you will make, the skills you will learn and the experiences you will have with other special needs kiddos.  Ugh...my heart. #warfelkids #theluckyfew #nothingdownaboutit #aaronsacres
Our youngest gal starts a summer series of @aaronsacres day camps today 💙💛 This mama is excited and nervous for her. That feeling of handing her off, even to a sweet camp counselor, still gets me in the heart. Good Luck, Nadia!!!! I’m excited for the friends you will make, the skills you will learn and the experiences you will have with other special needs kiddos. Ugh...my heart. #warfelkids  #theluckyfew  #nothingdownaboutit  #aaronsacres 
Förenar nytta med nöje idag. Nytt ståskal dagen till ära! Heja Sverige!!! 💪🇸🇪 🇰🇷 #sverigestannar #vm #vm2018 #intesåkonstigt #hjälpmedel #downssyndrom #downrightperfect #downisup #upwithdown #upsyndrome #morealikethandifferent #t21rocks #t21 #theluckyfew #nothingdownaboutit
Sam says “Thank you for all of the prayers and love” ❤️❤️
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He is doing better. They removed the CPAP yesterday, thankfully and he was so much happier. It was heartbreaking to see him so miserable. He has been stable on the high flow, hoping they start weaning it tomorrow! Tomorrow will also be a big day of discussions with the cardiologists, pulmonologists and the rest of the care team to decide what is next for our little man. I will also be personally talking to the neonatologist that know him the best to help us figure out what is in his best interest! .
He remains in good spirits, lots of cooing and loving not having the CPAP on his face! He even decided he was going to give me an extra “win” by finishing ALL of his bottles today. That is PR for him 😉😉 He has never drank more than 2 full bottles in a day and now he’s is rocking ALL of them. AND in 15 minutes or less 😱 I haven’t even used his feeding tube today 🙌🏻 Amazing how quickly that changed! .
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For those asking, I have no idea when we are going home 😐 I wish I could say this was an easy fix, but it’s not 😔 but that is OK. We are where he needs to be and hopefully whatever we decide will make him “better” so we can avoid coming back here for a while!
#nothingdownaboutit #prematurebaby #preemiestrong #theluckyfew #specialneedsmom
Sam says “Thank you for all of the prayers and love” ❤️❤️ . . He is doing better. They removed the CPAP yesterday, thankfully and he was so much happier. It was heartbreaking to see him so miserable. He has been stable on the high flow, hoping they start weaning it tomorrow! Tomorrow will also be a big day of discussions with the cardiologists, pulmonologists and the rest of the care team to decide what is next for our little man. I will also be personally talking to the neonatologist that know him the best to help us figure out what is in his best interest! . He remains in good spirits, lots of cooing and loving not having the CPAP on his face! He even decided he was going to give me an extra “win” by finishing ALL of his bottles today. That is PR for him 😉😉 He has never drank more than 2 full bottles in a day and now he’s is rocking ALL of them. AND in 15 minutes or less 😱 I haven’t even used his feeding tube today 🙌🏻 Amazing how quickly that changed! . . For those asking, I have no idea when we are going home 😐 I wish I could say this was an easy fix, but it’s not 😔 but that is OK. We are where he needs to be and hopefully whatever we decide will make him “better” so we can avoid coming back here for a while! #nothingdownaboutit  #prematurebaby  #preemiestrong  #theluckyfew  #specialneedsmom 
You know the people or person in your life that you think is so strong, whom nothing can touch, who weathers it all? Check on them today and let them know you love them. Even though they are strong, they still need to lean on someone once in awhile and to be reminded they are seen and loved. Tag your strong friend here and show them some love. ❤️
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#changetheworld #inspiration #charity #giveback #heartstrong #athankfulheart #babysweetheart #futurehearts #heart #chd #doitwithyourheart #congenitalHeartDisease #congenitalheartdefect #1in100 #chdwarrior #lossofachild #developmentaldisabilities #nothingdownaboutit #openheartsurgery #heartwarrior #happybaby #myhero #hearthero #heartsurvivor #kindnessmatters #chdaware #theluckyfew #hlhs
You know the people or person in your life that you think is so strong, whom nothing can touch, who weathers it all? Check on them today and let them know you love them. Even though they are strong, they still need to lean on someone once in awhile and to be reminded they are seen and loved. Tag your strong friend here and show them some love. ❤️ _ _ #changetheworld  #inspiration  #charity  #giveback  #heartstrong  #athankfulheart  #babysweetheart  #futurehearts  #heart  #chd  #doitwithyourheart  #congenitalHeartDisease  #congenitalheartdefect  #1in100  #chdwarrior  #lossofachild  #developmentaldisabilities  #nothingdownaboutit  #openheartsurgery  #heartwarrior  #happybaby  #myhero  #hearthero  #heartsurvivor  #kindnessmatters  #chdaware  #theluckyfew  #hlhs 
Today is her third birthday!
If only the rest of the world could see what a blessing you are. I have said it thousands of times and I say it again; 
you make us better.
✖️✖️✖️
Remember girl, you are pure gold 🖤!
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#vieno #t21 #downsyndromelove #birthdaygirl #threeyears
#extrachromosomeextracute #nothingdownaboutit #morealikethandifferent #changingthefaceofbeauty #theluckyfew #wouldntchangeathing #aarikka
Happy Monday! I love pretending to like limes!
Happy Monday! I love pretending to like limes!
Rolling, standing, been on the arms, and cruising makes this princess tired, but this time she couldn't resist to take a nap in the middle of her session.
PT couldn't believe that she failed asleep 😴princess needs her beauty sleep in between 💪💛💙
#yaretzy_brielle #thezipperclub #theluckyfew #nothingdownaboutit #chdwarrior #chd .
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#babyslife #babygirl #sleepingbeauty #hardworkpaysoffs #cute #cutenessoverload #momsanddaughters #rainbowbaby #love #mylife #family
Rolling, standing, been on the arms, and cruising makes this princess tired, but this time she couldn't resist to take a nap in the middle of her session. PT couldn't believe that she failed asleep 😴princess needs her beauty sleep in between 💪💛💙 #yaretzy_brielle  #thezipperclub  #theluckyfew  #nothingdownaboutit  #chdwarrior  #chd  . . . . #babyslife  #babygirl  #sleepingbeauty  #hardworkpaysoffs  #cute  #cutenessoverload  #momsanddaughters  #rainbowbaby  #love  #mylife  #family 
Two years ago today! 7 months old and he was fairly new to sitting independently! #theluckyfew #nothingdownaboutit #shouttheirworth #learningwithdownsyndrome #actuallyican #abilities #trisomy21 #downsyndrome