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just finished another amazing soulcycle class with my friend cydney and amazing instructor Gunner!! This class is so amazing for people who can’t do regular workouts like me! So happy I found my soul @soulcycle !!! #ostomy #crohns #ibd #crohnswarrior #ostomyawareness #IBD #nocolonstillrollin #getyourbellyout #crohnsdisease #chronicillness #invisibleillness #invisibledisease #ileostomy #livingwithanostomy #fightingcrohns #fighter #illness #fightingibd #gutless #jpouch #colitis #crohnsandcolitis #colostmy
just finished another amazing soulcycle class with my friend cydney and amazing instructor Gunner!! This class is so amazing for people who can’t do regular workouts like me! So happy I found my soul @soulcycle !!! #ostomy  #crohns  #ibd  #crohnswarrior  #ostomyawareness  #IBD  #nocolonstillrollin  #getyourbellyout  #crohnsdisease  #chronicillness  #invisibleillness  #invisibledisease  #ileostomy  #livingwithanostomy  #fightingcrohns  #fighter  #illness  #fightingibd  #gutless  #jpouch  #colitis  #crohnsandcolitis  #colostmy 
I am happy to say my boob is NOT trying to kill me and I am SO relieved! I’ve been super anxious for weeks and haven’t been sleeping well because I was worried about the outcome of all these tests. Thank you to everyone that sent me words of encouragement and checked in on me, it definitely helped knowing I had friends in my corner :) #breasthealth #breastbiopsy #crohns #crohnsdisease #ibd #inflammatoryboweldisease #ibdawareness #autoimmune #autoimmunedisease #chronicallyfabulous #chronicillness #invisibleillness  #ostomy #ileostomy #ostomate #nocolonstillrollin #babeswithbags #hidradenitissuppurativa
I am happy to say my boob is NOT trying to kill me and I am SO relieved! I’ve been super anxious for weeks and haven’t been sleeping well because I was worried about the outcome of all these tests. Thank you to everyone that sent me words of encouragement and checked in on me, it definitely helped knowing I had friends in my corner :) #breasthealth  #breastbiopsy  #crohns  #crohnsdisease  #ibd  #inflammatoryboweldisease  #ibdawareness  #autoimmune  #autoimmunedisease  #chronicallyfabulous  #chronicillness  #invisibleillness  #ostomy  #ileostomy  #ostomate  #nocolonstillrollin  #babeswithbags  #hidradenitissuppurativa 
Finally joined the four plate club, 3 years after limping in those gym doors at 170Lbs and walking for 5 mins at a time. No core, no problem. #nocolonstillrollin #legday #PR #GetThisWork #weedNWeights #cbd #thc #weed #fitness
If we pooped rainbows, the world would be a better place 🌈😎 #crohnsiscray #crohns #colitis (pic via: @madisonjeffery)
To know that posting a silly picture of myself would bring happiness to 583 people so far, makes it all worth it. Thank you for all the kind comments and I'm super stoked that I could make your day. "The next time your down because you don't feel normal just remember normal is boring. Rock those scars, make the best of what little energy you have and don't worry what others think. Stay strong my fellow Crohnies!!!" #crohnsawareness #crohnssucks #crohns #crohnsdisease #crohnsandcolitis #colitisawareness #colitis #colostomy #nocolonstillrollin #ibd #ibdwarrior #fucrohns #bareitall #notashamed #dontjudgeabookbyitscover #dontcarewhatyouthink
To know that posting a silly picture of myself would bring happiness to 583 people so far, makes it all worth it. Thank you for all the kind comments and I'm super stoked that I could make your day. "The next time your down because you don't feel normal just remember normal is boring. Rock those scars, make the best of what little energy you have and don't worry what others think. Stay strong my fellow Crohnies!!!" #crohnsawareness  #crohnssucks  #crohns  #crohnsdisease  #crohnsandcolitis  #colitisawareness  #colitis  #colostomy  #nocolonstillrollin  #ibd  #ibdwarrior  #fucrohns  #bareitall  #notashamed  #dontjudgeabookbyitscover  #dontcarewhatyouthink 
After church yesterday, this thing in the picture with me attacked me in a Barnes & Noble bathroom. Be on the lookout for this bizarre creature. I hear it’s a dangerous parasite that will bore you to death by talking about Fortnite nonstop. You’ve been warned. #vaccinate
After church yesterday, this thing in the picture with me attacked me in a Barnes & Noble bathroom. Be on the lookout for this bizarre creature. I hear it’s a dangerous parasite that will bore you to death by talking about Fortnite nonstop. You’ve been warned. #vaccinate 
There is a massive stigma in the UK around disabled access toilets. 
Living with inflammatory bowel disease is difficult and daily living becomes stressful when out and about when it comes to public bathrooms. 
Being a 25 year old girl that looks externally healthy and well, using disabled toilets gets me negative stares, comments and tuts! 
For me, they’re easier to use. They’re larger so there’s more room for me to get myself sorted and best of all they’re private! 
It’s funny because before my operation in February, when my colitis was at its absolute worst, public bathrooms were my life - I used to plan my life around using them. 
Now, I can spend my days enjoying my life not having the worry of where is the nearest toilet. Plus, the radar key given to me after surgery helps! It was like a little extra medal 🥇🚻🚽🔑💜
There is a massive stigma in the UK around disabled access toilets. Living with inflammatory bowel disease is difficult and daily living becomes stressful when out and about when it comes to public bathrooms. Being a 25 year old girl that looks externally healthy and well, using disabled toilets gets me negative stares, comments and tuts! For me, they’re easier to use. They’re larger so there’s more room for me to get myself sorted and best of all they’re private! It’s funny because before my operation in February, when my colitis was at its absolute worst, public bathrooms were my life - I used to plan my life around using them. Now, I can spend my days enjoying my life not having the worry of where is the nearest toilet. Plus, the radar key given to me after surgery helps! It was like a little extra medal 🥇🚻🚽🔑💜
#Repost @glitterygutsx with @get_repost
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On behalf of @jasminestaceycollection As requested! Marilyn Monroe- bag style!! Love love looooove the royal blue collection!! Sooo comfy! @leviwooten1994  #bestfriends #crohnies #jasminestaceycollection #crohnsdisease #stoma #ileostomy #bagbitchesrock #NoColonStillRollin #pwlovemystoma #advocate #IBD #bagsout #coloplast #pelicanhealthcare #brava #ballgowns #immunedisorder #Invisibleillness #scars #opensurgery #keyhole #4weekspostop #barbiebum #totalcolectomy #mycrohnsjourney
#Repost  @glitterygutsx with @get_repost ・・・ On behalf of @jasminestaceycollection As requested! Marilyn Monroe- bag style!! Love love looooove the royal blue collection!! Sooo comfy! @leviwooten1994 #bestfriends  #crohnies  #jasminestaceycollection  #crohnsdisease  #stoma  #ileostomy  #bagbitchesrock  #NoColonStillRollin  #pwlovemystoma  #advocate  #IBD  #bagsout  #coloplast  #pelicanhealthcare  #brava  #ballgowns  #immunedisorder  #Invisibleillness  #scars  #opensurgery  #keyhole  #4weekspostop  #barbiebum  #totalcolectomy  #mycrohnsjourney 
Is it already the time of year that I post pictures of the beach because I wish I was there?? 🌊 ☀️ 👙
Is it already the time of year that I post pictures of the beach because I wish I was there?? 🌊 ☀️ 👙
The way we get cleaned off after practice. Yes he really asked me if he still had to take a bath tonight. 😂 #letembekids #footballmom #crohnie #nocolonstillrollin #rainraingoaway #livelifebeautiful
Not exactly what it looks like😊. Each morning, I mix one packet of VSL3 probiotics into a drink, which I have on an empty stomach. I use mostly filtered water, with a little almond milk, and it tastes like...almond milk👏. That’s what you see here📸. I’m not 100% sure if VSL is hugely helping at the moment (regular strength - my GI Dr prescribed it), but it doesn’t give me any issues. I’ve been using it for around 6 weeks. I’ve also been taking probiotics for over 2 years, and I do feel they help me.
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I’m going to learn more about this company, but @malkorganics, thank you🙌. The products are delicious, and more importantly, they don’t bother with unnecessary ingredients like gums. For me personally, buying can be better than making my own - in terms of having limited time available. Just thank you repeatedly to Malk Organics and other brands who are now leading the way to better food💜..trying to be hopeful!
Not exactly what it looks like😊. Each morning, I mix one packet of VSL3 probiotics into a drink, which I have on an empty stomach. I use mostly filtered water, with a little almond milk, and it tastes like...almond milk👏. That’s what you see here📸. I’m not 100% sure if VSL is hugely helping at the moment (regular strength - my GI Dr prescribed it), but it doesn’t give me any issues. I’ve been using it for around 6 weeks. I’ve also been taking probiotics for over 2 years, and I do feel they help me. - I’m going to learn more about this company, but @malkorganics, thank you🙌. The products are delicious, and more importantly, they don’t bother with unnecessary ingredients like gums. For me personally, buying can be better than making my own - in terms of having limited time available. Just thank you repeatedly to Malk Organics and other brands who are now leading the way to better food💜..trying to be hopeful!
Massive moan! 
I’ve been really struggling with the digestion system from hell and side effect of the horrible tablets. My bulging right side is hurting more and more. And around my stoma site feels like waves of stabbing twisting pain. 
Then one of my lymph glands in my groin is big and painful, that pain shoots down my left leg. 
Getting even more trapped gas which doesn’t like to my ileostomy, so the fullness pressure of my insides are keeping me awake and getting about 3 hours sleep a night if I’m lucky. 
My back feels like it’s been hit by a baseball bat. 
I’m getting random bruises especially on my arms. 
I feel like I’ve got flu daily. 
But I carry on because it’s not as bad than 2016. I am healthier and stronger but I still struggle daily.
I’m the person who will keep quiet till I flop. 
I just need my busy September out of the way, then I can cry. 
Yes I’m looking forward to this scan next wk to see what’s going on inside. 
I hate moaning but I need to tonight. And I’m living in #hm vintage high waisted jeans to hold my ostomy bag in.
#struggling #pain #ileostomy #nocolon #stoma #carryonregardless #pushingmyself #notwell #grumpy #nocolonstillrollin #life
Massive moan! I’ve been really struggling with the digestion system from hell and side effect of the horrible tablets. My bulging right side is hurting more and more. And around my stoma site feels like waves of stabbing twisting pain. Then one of my lymph glands in my groin is big and painful, that pain shoots down my left leg. Getting even more trapped gas which doesn’t like to my ileostomy, so the fullness pressure of my insides are keeping me awake and getting about 3 hours sleep a night if I’m lucky. My back feels like it’s been hit by a baseball bat. I’m getting random bruises especially on my arms. I feel like I’ve got flu daily. But I carry on because it’s not as bad than 2016. I am healthier and stronger but I still struggle daily. I’m the person who will keep quiet till I flop. I just need my busy September out of the way, then I can cry. Yes I’m looking forward to this scan next wk to see what’s going on inside. I hate moaning but I need to tonight. And I’m living in #hm  vintage high waisted jeans to hold my ostomy bag in. #struggling  #pain  #ileostomy  #nocolon  #stoma  #carryonregardless  #pushingmyself  #notwell  #grumpy  #nocolonstillrollin  #life 
#NoFilter because real life has no filter. ✨ 5 week recovery and my favorite 👨🏻‍⚕️ is back 2 work! It has been the most challenging & hardest month ever... but everyday is another chance to get stronger & be healthier!!!! Proud of @sxpach1 for not giving up 💪🏽💛🤓 #whatdoesntkillyoumakesyoustronger #nocolonstillrollin  also big shout out to @melisha_simran for being my rock and keeping me sane 😂
#NoFilter  because real life has no filter. ✨ 5 week recovery and my favorite 👨🏻‍⚕️ is back 2 work! It has been the most challenging & hardest month ever... but everyday is another chance to get stronger & be healthier!!!! Proud of @sxpach1 for not giving up 💪🏽💛🤓 #whatdoesntkillyoumakesyoustronger  #nocolonstillrollin  also big shout out to @melisha_simran for being my rock and keeping me sane 😂
Link in bio to latest video! Absorbing medicines can be tricky stuff with an ostomy, especially right after surgery! Here is how I take my medicine now that I have a stoma! 😎💩💚
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#Ostomy #Ileostomy #Colostomy #OstomyBag #Ostomate #OstomyCare #CrohnsDisease #IBD #UlcerativeColitis #PatientAdvocate #UOAA #CCFA #NoColonStillRollin #ChronicIllness #Crohns #Stoma #invisibleillness #stoma #stomabag #ostomydiaries #positivevibes #ostomylife #OstomyAwareness #Fearless #LoveYourself #Subscribe
Link in bio to latest video! Absorbing medicines can be tricky stuff with an ostomy, especially right after surgery! Here is how I take my medicine now that I have a stoma! 😎💩💚 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #Ostomy  #Ileostomy  #Colostomy  #OstomyBag  #Ostomate  #OstomyCare  #CrohnsDisease  #IBD  #UlcerativeColitis  #PatientAdvocate  #UOAA  #CCFA  #NoColonStillRollin  #ChronicIllness  #Crohns  #Stoma  #invisibleillness  #stoma  #stomabag  #ostomydiaries  #positivevibes  #ostomylife  #OstomyAwareness  #Fearless  #LoveYourself  #Subscribe 
Had my first bag leak and change at work today 🙈👎🏼 and now we are locked down on a tornado warning... been an interesting day
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So I have been getting terrible pancaking that’s getting underneath my barrier ring and causing some serious leaks lately!! It’s like a giant fiber ball... I’m drinking an overload of liquids and I have eaten most of these foods before too! I’m so confused 🤔 any advice from fellow ostomates would be appreciated!!!
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#ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin
Had my first bag leak and change at work today 🙈👎🏼 and now we are locked down on a tornado warning... been an interesting day • So I have been getting terrible pancaking that’s getting underneath my barrier ring and causing some serious leaks lately!! It’s like a giant fiber ball... I’m drinking an overload of liquids and I have eaten most of these foods before too! I’m so confused 🤔 any advice from fellow ostomates would be appreciated!!! . . . . . #ibd  #ibdawareness  #ibdwarrior  #crohns  #crohnsdisease  #cdiff  #ileostomy  #permanentileostomy  #ostomy  #ostomate  #ostomyawareness  #chronicillness  #chronicpain  #invisibleillness  #stoma  #meatballthestoma  #proctocolectomy  #nocolonstillrollin 
🏃🏻‍♀️Very nearly didn’t go to circuits tonight but I did and I loved every surfer burpee, chest press, dead lift, glute bridge and all the other ‘fun’ ‘treats’ our instructor had in store for us! #gymlife #activeostomate #stomabag #stomalife #stomaawareness #ibd #crohns #ostomy #ileostomy #nocolonstillrollin #baglife #barbiebutt
Thank you for picking one up, Stephanie!!! So glad people are still getting their copies! It’s currently sold out on Bandcamp but there are a few at cleorecs.com for those still looking! ••• Repost from @lapetitecrohnie - I bought a thing and I’m super excited about it so it deserves it’s own post 😹 This has been one of my favorite bands since high school and I’m so stoked to finally have this album on vinyl #tsunamibomb #vinyl #kungfurecords #music #punk #emilywhitehurst #femalevocalist @tsunamibombofficial #crohns #crohnsdisease #crohnswarrior #ibd #ibdawareness #inflammatoryboweldisease #autoimmunedisease #invisibleillness #chronicallyfabulous #ostomy #ileostomy #babeswithbags #nocolonstillrollin #hidradenitissuppurativa
Thank you for picking one up, Stephanie!!! So glad people are still getting their copies! It’s currently sold out on Bandcamp but there are a few at cleorecs.com for those still looking! ••• Repost from @lapetitecrohnie - I bought a thing and I’m super excited about it so it deserves it’s own post 😹 This has been one of my favorite bands since high school and I’m so stoked to finally have this album on vinyl #tsunamibomb  #vinyl  #kungfurecords  #music  #punk  #emilywhitehurst  #femalevocalist  @tsunamibombofficial #crohns  #crohnsdisease  #crohnswarrior  #ibd  #ibdawareness  #inflammatoryboweldisease  #autoimmunedisease  #invisibleillness  #chronicallyfabulous  #ostomy  #ileostomy  #babeswithbags  #nocolonstillrollin  #hidradenitissuppurativa 
I AM SO EXCITED to be a finalist for #WEGOHEALTHAWARDS Best Kept Secret 2018 for This is such an incredible honor, and I am so grateful for all the support and love I’ve received! 💜💚
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I am pumped for the future of Ostomy Diaries. Thank you @wegohealth for supporting advocates, and making the lives of patients living with chronic illnesses a little bit better! 😊
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#NoColonStillRollin #ostomydiaries #OstomyAwareness
I AM SO EXCITED to be a finalist for #WEGOHEALTHAWARDS  Best Kept Secret 2018 for This is such an incredible honor, and I am so grateful for all the support and love I’ve received! 💜💚 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I am pumped for the future of Ostomy Diaries. Thank you @wegohealth for supporting advocates, and making the lives of patients living with chronic illnesses a little bit better! 😊 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #NoColonStillRollin  #ostomydiaries  #OstomyAwareness 
I believe WE have survived our first (and prayerfully LAST) blockage.
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Today started off rough. up at 3:30AM with excruciating abdominal pain and nausea. I’ve never had pain/discomfort like that EVER. Now we’re just resting probably for the reminder of the day
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#crohnicillness #crohnsdisease #crohnswarrior #ileostomate #ileostomylife #baglife #nocolonstillrollin #cancersurvivor #OstomisticChristian #TiffStong
Story of my life: what to do with a cowlick that won’t be tamed. #blondeambition #nocolonstillrollin #shorthair #cowlick #funnygirl #kcgirl #wishapp #actress #picsart #girlboss #gowithit #messyhair @modelswithcurves @models1curve @picsart @short_hair_ideas @shorthairlife @wish
Super bitter sweet week!!! I'm extremely excited to be in the final week of my workout program. I'm feeling the major gains in my muscle definition. Although still small looking in a picture, I can't help flexing and feeling how much my biceps have grown. It feels so.... weird but cool!!💪
I even have the V shape in my triceps... I mean, how hot 🔥 is that???
I am super proud of myself for having given my all to this program. It will make things easier for me in the long run I'm sure!!
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I'm sad that I can't continue on to round 2 with my husband and most people in my accountability group.  I will be cheering all of them on from my couch. I have surgery next week and will be out of commission for a few weeks.  Walking will be my friend for at least 8 weeks following my gut job. 😎
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But with the support of my tribe cheering me on, with the workouts I am finishing and my husband by my side, I have no doubt this is a recipe for success!!!👌👌
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3 workouts to go!
Legs
Arms
Full Body HITT
So cheer me along, the more to the tribe the more power of accountability is strong!💥
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#fitgirl #nocolonstillrollin #workout #killinit #biceps #triceps #mytribe #lovemyhusband #accoutability #igotthis
Super bitter sweet week!!! I'm extremely excited to be in the final week of my workout program. I'm feeling the major gains in my muscle definition. Although still small looking in a picture, I can't help flexing and feeling how much my biceps have grown. It feels so.... weird but cool!!💪 I even have the V shape in my triceps... I mean, how hot 🔥 is that??? I am super proud of myself for having given my all to this program. It will make things easier for me in the long run I'm sure!! . I'm sad that I can't continue on to round 2 with my husband and most people in my accountability group. I will be cheering all of them on from my couch. I have surgery next week and will be out of commission for a few weeks. Walking will be my friend for at least 8 weeks following my gut job. 😎 . But with the support of my tribe cheering me on, with the workouts I am finishing and my husband by my side, I have no doubt this is a recipe for success!!!👌👌 . 3 workouts to go! Legs Arms Full Body HITT So cheer me along, the more to the tribe the more power of accountability is strong!💥 . . . . . #fitgirl  #nocolonstillrollin  #workout  #killinit  #biceps  #triceps  #mytribe  #lovemyhusband  #accoutability  #igotthis 
I have been searching for a piglet cover forever now and my awesome friend laurie sent me this in the mail . Omg I just got the cover and I am in love!!!! This was so thoughtful and incredibly adorable #stomalove #bagout #ostomy #stoma #ostomybag #ostomyawareness #ostomyfashion #ostomylife #bagbabes #bagcovers #ostomate #ulcerativecolitis #ostomylife  #spoonie #ostomate #pigletchronicles #nocolonstillrollin
#Repost @rlblife: When a picture is worth 1,000+ words. Despite my own medical scare today and constant #secondaryadrenalinsufficiency/#jpouchlife battles, I was able to visit my fellow #ibdwarrior @smithreynolds who has just completed his final #jpouch #designercolon surgery in his own #nocolonstillrollin journey. This picture broke my heart wide open and despite its rawness I felt compelled to share it because it is #ibd personified, it is as beautiful as it is heartbreaking.
When you live your life with a silent #chronicillness it is just different: you look okay on the outside but in reality you can barely get out of bed (or off the toilet) or out of the house, but you do, and you put on your "face" and soldier on... not for a day, a week, a month, but for years (or decades) and it gets to you. It hardens you, and it softens you. Like so many silent diseases, #ibd can be debilitatingly lonely and painful and shameful and terribly isolating. Who wants to talk about poop? And even less people want to hear about it.... So, to build a fellowship within this small group of silent warriors and to be able to share with someone else who truly knows your struggles and your fears and your shame is beautiful and powerful beyond words.
But it is also deeply sad that we have to live like this and support one another though physical and emotional pain most will never comprehend when a cure is just an arms length away. That breaks my heart. 
Click the link in our bio for more on Rebecca's story.
#Repost  @rlblife: When a picture is worth 1,000+ words. Despite my own medical scare today and constant #secondaryadrenalinsufficiency /#jpouchlife  battles, I was able to visit my fellow #ibdwarrior  @smithreynolds who has just completed his final #jpouch  #designercolon  surgery in his own #nocolonstillrollin  journey. This picture broke my heart wide open and despite its rawness I felt compelled to share it because it is #ibd  personified, it is as beautiful as it is heartbreaking. When you live your life with a silent #chronicillness  it is just different: you look okay on the outside but in reality you can barely get out of bed (or off the toilet) or out of the house, but you do, and you put on your "face" and soldier on... not for a day, a week, a month, but for years (or decades) and it gets to you. It hardens you, and it softens you. Like so many silent diseases, #ibd  can be debilitatingly lonely and painful and shameful and terribly isolating. Who wants to talk about poop? And even less people want to hear about it.... So, to build a fellowship within this small group of silent warriors and to be able to share with someone else who truly knows your struggles and your fears and your shame is beautiful and powerful beyond words. But it is also deeply sad that we have to live like this and support one another though physical and emotional pain most will never comprehend when a cure is just an arms length away. That breaks my heart. Click the link in our bio for more on Rebecca's story.
Chronic illness is sometimes a daily battle. Some days I feel like I’m winning and others not so much. But when the going gets tough I’m grateful to have a husband that attempts to make me feel better although I doubt there will be any cupcakes left by the time I get home. 
#ostomy #ostomyawareness #ostomate #colostomy #ileostomy #urostomy #nocolonstillrollin #barbiebutt #baglady #chronicillness #invisibleillness #invisibledisability #trauma #traumasurvivor #crohnsdisease #diverticulitis #colitis #coloncancer
Chronic illness is sometimes a daily battle. Some days I feel like I’m winning and others not so much. But when the going gets tough I’m grateful to have a husband that attempts to make me feel better although I doubt there will be any cupcakes left by the time I get home. #ostomy  #ostomyawareness  #ostomate  #colostomy  #ileostomy  #urostomy  #nocolonstillrollin  #barbiebutt  #baglady  #chronicillness  #invisibleillness  #invisibledisability  #trauma  #traumasurvivor  #crohnsdisease  #diverticulitis  #colitis  #coloncancer 
Going for more and more walks, building back my strength 💪🏼 and seeing unexpected/fascinating things like this truck 😆. I know where I’m going when there’s a zombie apocalypse #thewalkingdead #zombies #morningadventures #walks #enjoylife  #chronicillnesswarrior #ibd #crohnswarrior #ibdawareness #invisibledisease #ibdvisible #nocolonstillrollin #crohnsdisease #surgery #hospital #colectomy #colonless #jpouch #pouchitis #spoonie #spoonielife #positivity #bestrong #tellyourstory
Going for more and more walks, building back my strength 💪🏼 and seeing unexpected/fascinating things like this truck 😆. I know where I’m going when there’s a zombie apocalypse #thewalkingdead  #zombies  #morningadventures  #walks  #enjoylife  #chronicillnesswarrior  #ibd  #crohnswarrior  #ibdawareness  #invisibledisease  #ibdvisible  #nocolonstillrollin  #crohnsdisease  #surgery  #hospital  #colectomy  #colonless  #jpouch  #pouchitis  #spoonie  #spoonielife  #positivity  #bestrong  #tellyourstory 
Star wars custom order, to get your very own custom bag cover send me a message 😊😊 Ostomy bag covers £5 each
All fully lined
100% cotton
Open or closed
Any custom orders or requests, send me a message 😊✌
If your interested, you can buy them directly from me here just message me 🛍
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#chronesdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #chrones #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
Star wars custom order, to get your very own custom bag cover send me a message 😊😊 Ostomy bag covers £5 each All fully lined 100% cotton Open or closed Any custom orders or requests, send me a message 😊✌ If your interested, you can buy them directly from me here just message me 🛍 ~ ~ ~ ~ ~ #chronesdisease  #ostomate  #ostomy  #ostomysupplies  #colostomybag  #ostomybag  #ostomybagswag  #ostomybagcover  #ostomycover  #stomacover  #stoma  #nocolonstillrollin  #girlswithguts  #chrones  #stomabagcovers  #ostomates  #spoonie  #myostomystory  #ileostomywarrior  #ileostomybag  #stomalife  #ostomylife  #ileostomylife  #stomafashion  #ostomyfashion  #ileostomyfashion  #stomabag  #colostomyfashion  #getyourbagout  #baglady 
My crazy morning: Minimal, interrupted sleep last night bc of starting #budesonide steroids 3 nights ago ➡️ thus woke up with ouchy head at 6am ➡️ Ryan left for work and texted me that my parked car had been sideswiped by an unknown neighbor outside ➡️ worse headache ➡️ unraveled the mystery of the hit car while trying to battle growing migraine ➡️ neighbor turned out to be suuuper nice (thankfully!) but migraine turned into huge bitch ➡️ gave myself #zembracesymtouch #migraine injection while on the phone with neighbor’s car insurance ➡️ why are the injections so ouchy and not as effective as they should be for the level of ouchiness they incur? •
All of this before noon, which is a lot for me! Have I earned a nap yet? 😴 So much to do though! So few spoons... 🥄
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#chronicillness #spoonie #autoimmunedisease #inflammatoryboweldisease #ibd #ulcerativecolitis #jpouch #pouchitis #chronicpain #chronicfatigue #depression #anxiety #migraines 
#invisibleillness #ibdwarrior #totalproctocolectomy  #nocolonstillrollin #crohnscolitisfoundation #crohnsdisease #crohns #pain #medicalmarijuana #cannabis #mentalhealth #patientadvocate
My crazy morning: Minimal, interrupted sleep last night bc of starting #budesonide  steroids 3 nights ago ➡️ thus woke up with ouchy head at 6am ➡️ Ryan left for work and texted me that my parked car had been sideswiped by an unknown neighbor outside ➡️ worse headache ➡️ unraveled the mystery of the hit car while trying to battle growing migraine ➡️ neighbor turned out to be suuuper nice (thankfully!) but migraine turned into huge bitch ➡️ gave myself #zembracesymtouch  #migraine  injection while on the phone with neighbor’s car insurance ➡️ why are the injections so ouchy and not as effective as they should be for the level of ouchiness they incur? • All of this before noon, which is a lot for me! Have I earned a nap yet? 😴 So much to do though! So few spoons... 🥄 • • • • #chronicillness  #spoonie  #autoimmunedisease  #inflammatoryboweldisease  #ibd  #ulcerativecolitis  #jpouch  #pouchitis  #chronicpain  #chronicfatigue  #depression  #anxiety  #migraines  #invisibleillness  #ibdwarrior  #totalproctocolectomy  #nocolonstillrollin  #crohnscolitisfoundation  #crohnsdisease  #crohns  #pain  #medicalmarijuana  #cannabis  #mentalhealth  #patientadvocate 
I love this quote. #Repost via @tatyanalanham.

When I first started experiencing symptoms of IBD, and when I was later diagnosed with IBD, what came out of my cup wasn’t pretty and I’m not proud of it. “It’s easy to fake it, until you get rattled.” I was angry and sad and depressed and since you can’t exactly express that to an illness, I expressed it to people I trusted not to leave (or so I thought...everyone has their limits and you can’t blame them for that). I have come a long way since IBD came into my life and turned it upside down but I still have my moments. I am still learning how to fill my cup with gratitude, forgiveness, joy, words of affirmation, kindness, gentleness and love for others. 
#Whatsinyourcup #mondaymotivation 
#AutoImmuneDisease #AutoImmuneDiseaseAwareness #IrritableBowelDiseaseAwareness #IrritableBowelDisease #IBDAwareness #IndeterminateColitis #IsIt #Crohns or #UlcerativeColitis #CrohnsAwareness #UlcerativeColitisawareness #ileostomy #ostomy #OstomyLife #OstomyDiaries #Ostomate #NoColonStillRollin #UOAA #CCFA #secondchanceatthecrown
I love this quote. #Repost  via @tatyanalanham. When I first started experiencing symptoms of IBD, and when I was later diagnosed with IBD, what came out of my cup wasn’t pretty and I’m not proud of it. “It’s easy to fake it, until you get rattled.” I was angry and sad and depressed and since you can’t exactly express that to an illness, I expressed it to people I trusted not to leave (or so I thought...everyone has their limits and you can’t blame them for that). I have come a long way since IBD came into my life and turned it upside down but I still have my moments. I am still learning how to fill my cup with gratitude, forgiveness, joy, words of affirmation, kindness, gentleness and love for others. #Whatsinyourcup  #mondaymotivation  #AutoImmuneDisease  #AutoImmuneDiseaseAwareness  #IrritableBowelDiseaseAwareness  #IrritableBowelDisease  #IBDAwareness  #IndeterminateColitis  #IsIt  #Crohns  or #UlcerativeColitis  #CrohnsAwareness  #UlcerativeColitisawareness  #ileostomy  #ostomy  #OstomyLife  #OstomyDiaries  #Ostomate  #NoColonStillRollin  #UOAA  #CCFA  #secondchanceatthecrown 
3 weeks without a post?! Sorry I've been so inactive, the start of school has me pretty busy and I've been pretty unmotivated to do much else 😬 I've been doing pretty well at getting back to a normal life, but my mental health has definitely taken a bit of a dive. Amongst pre-IBD issues, I have a lot of days where I grieve for my old, bag free life. •
But overall my health has been great! Slowly but surely gaining some weight and Stella is behaving for the most part :) That gum I swallowed caused me a couple rough days but everything ended up being fine 😌I'm a little weary at the moment though, as the 2 month post-op mark was when my blockages started the last time.
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Hopefully I'll get back to posting more though, so stick around!
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#inflammatoryboweldisease #ibd #ibdawareness #crohnsandcolitis #crohnsandcolitisawareness #ulcerativecolitis #uc #ulcerativecolitisawareness #ulcerativecolitisfighter #colitis #crohnsdisease #crohns #crohnsawareness #crohnsdiseaseawareness #ostomy #ostomylife #ostomate #ostomybag #ileostomy #stoma #chronicillness #chronicillnesswarrior #autoimmunedisease #mentalhealth #ostomyfashion #nocolonstillrollin
3 weeks without a post?! Sorry I've been so inactive, the start of school has me pretty busy and I've been pretty unmotivated to do much else 😬 I've been doing pretty well at getting back to a normal life, but my mental health has definitely taken a bit of a dive. Amongst pre-IBD issues, I have a lot of days where I grieve for my old, bag free life. • But overall my health has been great! Slowly but surely gaining some weight and Stella is behaving for the most part :) That gum I swallowed caused me a couple rough days but everything ended up being fine 😌I'm a little weary at the moment though, as the 2 month post-op mark was when my blockages started the last time. • Hopefully I'll get back to posting more though, so stick around! • #inflammatoryboweldisease  #ibd  #ibdawareness  #crohnsandcolitis  #crohnsandcolitisawareness  #ulcerativecolitis  #uc  #ulcerativecolitisawareness  #ulcerativecolitisfighter  #colitis  #crohnsdisease  #crohns  #crohnsawareness  #crohnsdiseaseawareness  #ostomy  #ostomylife  #ostomate  #ostomybag  #ileostomy  #stoma  #chronicillness  #chronicillnesswarrior  #autoimmunedisease  #mentalhealth  #ostomyfashion  #nocolonstillrollin 
Sometimes, my chronic illness looks like the right photo. Other times, it looks like the left. Both are my reality, however, because my illness is somewhat invisible (minus my stoma), I have to look like the photo on the left in order for people to remember how much my illness truly effects me. Sharing my journey with my illness has always been about raising awareness, and helping people who are just like me. Every time I get a message saying I’ve helped someone about to get surgery; my heart literally swells and I want to cry with happiness. I’ve only had my stoma for 7 months but I’ve had so many messages telling me I’ve made them feel better about their stomas!✊🏼thank you to everyone who helped me through it, and here’s to hoping I can continue to help others! Don’t always assume people who look healthy, are!
Sometimes, my chronic illness looks like the right photo. Other times, it looks like the left. Both are my reality, however, because my illness is somewhat invisible (minus my stoma), I have to look like the photo on the left in order for people to remember how much my illness truly effects me. Sharing my journey with my illness has always been about raising awareness, and helping people who are just like me. Every time I get a message saying I’ve helped someone about to get surgery; my heart literally swells and I want to cry with happiness. I’ve only had my stoma for 7 months but I’ve had so many messages telling me I’ve made them feel better about their stomas!✊🏼thank you to everyone who helped me through it, and here’s to hoping I can continue to help others! Don’t always assume people who look healthy, are!
😱 I survived my first out of state travel since my surgeries! My jpouch behaved itself with all the new foods, drinks, walking, exercise, and general out of my norm stuff. I didn’t feel anxious about where the bathroom was or that any of the food I ate was going to make me sick. I forgot I had even been sick and enjoyed myself like I’m supposed to. It was such a weird yet exhilarating feeling! I wish I had had this surgery sooner and could have been doing stuff like this for so much longer! 😆 It amazes me how many people this disease and others affects people. I was chatting with the guy doing my tattoos and he had a friend with UC and it ravaged him from the inside out. He shared how it affected his family, friends, work, life. I couldn’t have related more. Thank god for this awesome community I found that ‘gets it’ because you don’t get it until you’re in it, one way or another. And here’s to planning more trips and eating more food 😜 my life has turned into a food tour and I’m ok with that 🤤 .
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#lifeisbeautiful #myscarsarebeautiful #teamgutsoverfear #nocolonstillrollin #jpouch #travelingwithajpouch #travelingwithnocolon #sanfrancisco #california #sanfranciscofoodtour #eatallthefood #jpouchsurgeries #jpouchfitness #jpouchhealthcoach #tbb #shakeologysavedme #travelingjpouchcoach #travelinghealthcoach #gutsoverfear #highashope #twinning #whoruntheworld #joinmygirlgang #bossbabe #entrepreneurbabe
😱 I survived my first out of state travel since my surgeries! My jpouch behaved itself with all the new foods, drinks, walking, exercise, and general out of my norm stuff. I didn’t feel anxious about where the bathroom was or that any of the food I ate was going to make me sick. I forgot I had even been sick and enjoyed myself like I’m supposed to. It was such a weird yet exhilarating feeling! I wish I had had this surgery sooner and could have been doing stuff like this for so much longer! 😆 It amazes me how many people this disease and others affects people. I was chatting with the guy doing my tattoos and he had a friend with UC and it ravaged him from the inside out. He shared how it affected his family, friends, work, life. I couldn’t have related more. Thank god for this awesome community I found that ‘gets it’ because you don’t get it until you’re in it, one way or another. And here’s to planning more trips and eating more food 😜 my life has turned into a food tour and I’m ok with that 🤤 . . . . #lifeisbeautiful  #myscarsarebeautiful  #teamgutsoverfear  #nocolonstillrollin  #jpouch  #travelingwithajpouch  #travelingwithnocolon  #sanfrancisco  #california  #sanfranciscofoodtour  #eatallthefood  #jpouchsurgeries  #jpouchfitness  #jpouchhealthcoach  #tbb  #shakeologysavedme  #travelingjpouchcoach  #travelinghealthcoach  #gutsoverfear  #highashope  #twinning  #whoruntheworld  #joinmygirlgang  #bossbabe  #entrepreneurbabe 
This is how I shower most of the time. I try not to take long showers because even a short shower takes alot out of me. I have severe fibromyalgia and take 60mg of morphine twice a day and 30mg of Oxycodone 3 times a day to control the pain. It doesn't work all the time but it's better than nothing.
This is how I shower most of the time. I try not to take long showers because even a short shower takes alot out of me. I have severe fibromyalgia and take 60mg of morphine twice a day and 30mg of Oxycodone 3 times a day to control the pain. It doesn't work all the time but it's better than nothing.
I AM SO EXCITED to be a finalist for #WEGOHEALTHAWARDS Best Kept Secret 2018 for This is such an incredible honor, and I am so grateful for all the support and love I’ve received! 💜💚
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I am pumped for the future of Ostomy Diaries. Thank you @wegohealth for supporting advocates, and making the lives of patients living with chronic illnesses a little bit better! 😊
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#Ostomy #Ileostomy #Colostomy #OstomyBag #Ostomate #OstomyCare #CrohnsDisease #IBD #UlcerativeColitis #PatientAdvocate #UOAA #CCFA #NoColonStillRollin #ChronicIllness #Crohns #Stoma #invisibleillness #stoma #stomabag #ostomydiaries #positivevibes #ostomylife #OstomyAwareness #Fearless #LoveYourself
I AM SO EXCITED to be a finalist for #WEGOHEALTHAWARDS  Best Kept Secret 2018 for This is such an incredible honor, and I am so grateful for all the support and love I’ve received! 💜💚 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I am pumped for the future of Ostomy Diaries. Thank you @wegohealth for supporting advocates, and making the lives of patients living with chronic illnesses a little bit better! 😊 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #Ostomy  #Ileostomy  #Colostomy  #OstomyBag  #Ostomate  #OstomyCare  #CrohnsDisease  #IBD  #UlcerativeColitis  #PatientAdvocate  #UOAA  #CCFA  #NoColonStillRollin  #ChronicIllness  #Crohns  #Stoma  #invisibleillness  #stoma  #stomabag  #ostomydiaries  #positivevibes  #ostomylife  #OstomyAwareness  #Fearless  #LoveYourself 
Can anyone take a guess which picture I’m happier in? 😂 
Also, guest appearance by the top of my bag. 😌
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#strongnotskinny #strongisthenewsexy #ostomy #ileostomy #ileostomylife #hike #rei #aeriereal #iweigh #weightgain #postop #strongwomen #thickthighssavelives #nocolonstillrollin #beforeandafter #crohnsdisease #colitis #crohnsandcolitis #ulcerativecolitis #gaps #scddiet #paleo #keto #eatrealfood #glutenfree
So as many of you know I ride this weekend in a bike tour. I am trying to raise money for children/youth in foster care. Please go to my bio and go to the gofundme page and donate if you can. If you want to donate per mile that I rode just a reminder I rode 121.09 miles. Thank you and 100 percent of the donations will go to the Adams County Foster Care program. #gofundme #donations #fostercare #nocolonstillrollin
So as many of you know I ride this weekend in a bike tour. I am trying to raise money for children/youth in foster care. Please go to my bio and go to the gofundme page and donate if you can. If you want to donate per mile that I rode just a reminder I rode 121.09 miles. Thank you and 100 percent of the donations will go to the Adams County Foster Care program. #gofundme  #donations  #fostercare  #nocolonstillrollin 
What’s not to smile about when you have a Monday off from dilation and hands like @deandrehopkins?! Hopeful that next week will be my last procedure 🙌🏻 next stop, reversal surgery!!!
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#crohns #crohnsdisease #crohnswarrior #ibd #ibdawareness #ibdwarrior #ostomy #ostomylife #ostomate #colostomy #whatbag #research #crohnsblogger #houstonblogger #htxblogger #mondaystyle #deandrehopkinshands #tallgirls #starbuckslover #ibdsuperheroes #nocolonstillrollin #neverfullgm #allleopardeverything #jcrew #pixiepants #anntaylor #gapstyle #michelewatch
What’s not to smile about when you have a Monday off from dilation and hands like @deandrehopkins?! Hopeful that next week will be my last procedure 🙌🏻 next stop, reversal surgery!!! • #crohns  #crohnsdisease  #crohnswarrior  #ibd  #ibdawareness  #ibdwarrior  #ostomy  #ostomylife  #ostomate  #colostomy  #whatbag  #research  #crohnsblogger  #houstonblogger  #htxblogger  #mondaystyle  #deandrehopkinshands  #tallgirls  #starbuckslover  #ibdsuperheroes  #nocolonstillrollin  #neverfullgm  #allleopardeverything  #jcrew  #pixiepants  #anntaylor  #gapstyle  #michelewatch 
Friendly reminder that you got this! #crohnsiscray #crohns #colitis
#Repost @ostomydiaries with @get_repost
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You are not defined by your bag. You are worthy. You are unique. You are important. Start treating yourself with respect. Start falling in love with the person you see in the mirror. It’s never too late to recognize your worth. Start living right now! 👊🏼💜 ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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#Ostomy #Ileostomy #Colostomy #OstomyBag #Ostomate #OstomyCare #CrohnsDisease #IBD #UlcerativeColitis #PatientAdvocate #UOAA #CCFA #NoColonStillRollin #ChronicIllness #Crohns #Stoma #invisibleillness #stoma #stomabag #ostomydiaries #positivevibes #ostomylife #OstomyAwareness
#Repost  @ostomydiaries with @get_repost ・・・ You are not defined by your bag. You are worthy. You are unique. You are important. Start treating yourself with respect. Start falling in love with the person you see in the mirror. It’s never too late to recognize your worth. Start living right now! 👊🏼💜 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #Ostomy  #Ileostomy  #Colostomy  #OstomyBag  #Ostomate  #OstomyCare  #CrohnsDisease  #IBD  #UlcerativeColitis  #PatientAdvocate  #UOAA  #CCFA  #NoColonStillRollin  #ChronicIllness  #Crohns  #Stoma  #invisibleillness  #stoma  #stomabag  #ostomydiaries  #positivevibes  #ostomylife  #OstomyAwareness 
What crazy cat falls asleep like this?!?
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I knew my bag was filling up, and he was laying right on top of it...
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I don’t think its just me.... Would other ostomates play this type of ‘bag roulette’ rather than wake your comfy pet up?
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Crazy cat lady for life...
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#ostomylife #ibdawareness #ulcerativecolitis #ileostomy #nocolonstillrollin #ibd #colitis #crohnsandcolitis #ulcerativecolitis #surgery #recovery #health #cat #ibdawareness #stomalife #stoma #stomabag #ostomy #ostomyawareness
What crazy cat falls asleep like this?!? 🐈 I knew my bag was filling up, and he was laying right on top of it... 😮 I don’t think its just me.... Would other ostomates play this type of ‘bag roulette’ rather than wake your comfy pet up? 😍 Crazy cat lady for life... . . . #ostomylife  #ibdawareness  #ulcerativecolitis  #ileostomy  #nocolonstillrollin  #ibd  #colitis  #crohnsandcolitis  #ulcerativecolitis  #surgery  #recovery  #health  #cat  #ibdawareness  #stomalife  #stoma  #stomabag  #ostomy  #ostomyawareness 
Terapi for kroppen🐎for 9 år siden på mitt sykeste . Der store smerter og fosterstilling på varmekablene på bade var hverdagen.  Da kjøpte jeg hest.svigermor trodde jeg hadde klikket -godt forståelig. Men ser i dag hva denne skapningen har hjelpt meg igjennom .Fantastisk hva dyr gjør me oss mennesker 🐎🌸å flax det er samboeren som har heste allergi og ikke jeg 😆#terapiforsjela #araber #hesterbest#

#crohnsdisease #nocolonstillrollin #crohns
Terapi for kroppen🐎for 9 år siden på mitt sykeste . Der store smerter og fosterstilling på varmekablene på bade var hverdagen. Da kjøpte jeg hest.svigermor trodde jeg hadde klikket -godt forståelig. Men ser i dag hva denne skapningen har hjelpt meg igjennom .Fantastisk hva dyr gjør me oss mennesker 🐎🌸å flax det er samboeren som har heste allergi og ikke jeg 😆#terapiforsjela  #araber  #hesterbest # #crohnsdisease  #nocolonstillrollin  #crohns 
#MarvelouslyMoodyMonday 
I slept for about 2 hrs due to pain & 💩! I got up at 6 when bf left for work and started making chilli and had a shower. I'm now 10 mins late for work, but I don't think I'm going to last the duration anyway 🙈 
As soon as I'm home I just need to add peppers and beans to the chilli and then pop it oven til tea time, then I'll be going to bed, and IF the pain fucks off enough, to sleep!
I'm guessing you're thinking chilli isn't a good idea when ones stomach is bad, but there's nothing that doesn't cause pain at the moment so there's not much point eating tasteless food for the same outcome. Might even have a curry this week! 😅 
#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDStrong #IBDPetPeeves #AutoimmuneDisease #ChronicIllness #InvisibleIllness #Spoonie #Autoimmune #CrohnsDisease #Crohns
#MarvelouslyMoodyMonday  I slept for about 2 hrs due to pain & 💩! I got up at 6 when bf left for work and started making chilli and had a shower. I'm now 10 mins late for work, but I don't think I'm going to last the duration anyway 🙈 As soon as I'm home I just need to add peppers and beans to the chilli and then pop it oven til tea time, then I'll be going to bed, and IF the pain fucks off enough, to sleep! I'm guessing you're thinking chilli isn't a good idea when ones stomach is bad, but there's nothing that doesn't cause pain at the moment so there's not much point eating tasteless food for the same outcome. Might even have a curry this week! 😅 #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDStrong  #IBDPetPeeves  #AutoimmuneDisease  #ChronicIllness  #InvisibleIllness  #Spoonie  #Autoimmune  #CrohnsDisease  #Crohns 
Pre-op with my stoma nurses didn’t go well. They thought I wasn’t mentally ready for a stoma.
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 I didn’t really want a stoma I’m sure most people would agree with me there. I don’t think i would have ever been ready.
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But I had to look at the positive outcome for it. No more running to the toilet, worried about going out for meals, worried about what I was  eating , sleeping all the time with no energy.
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If we believe we can cope and adjust to it we will 💪🏼 my life has changed for the better 100%.
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#postivevibes #positiveoutcomes #stoma #getyabagout #nocolonstillrollin #lifechanges #ulcerativecolitis #crohnsandcolitisuk
Pre-op with my stoma nurses didn’t go well. They thought I wasn’t mentally ready for a stoma. • • I didn’t really want a stoma I’m sure most people would agree with me there. I don’t think i would have ever been ready. • • But I had to look at the positive outcome for it. No more running to the toilet, worried about going out for meals, worried about what I was eating , sleeping all the time with no energy. • • If we believe we can cope and adjust to it we will 💪🏼 my life has changed for the better 100%. • #postivevibes  #positiveoutcomes  #stoma  #getyabagout  #nocolonstillrollin  #lifechanges  #ulcerativecolitis  #crohnsandcolitisuk 
That fresh bag feeling!🙌🏽
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I’m finally able to take an actual shower now guys! The company that I get my port supples, TPN, and IV fluids from finally send me shower shield that fit!!
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For the longest time they’ve been sending me 9X9 and it was way to big! Every time I tried to use it, it would get my dressing on port wet! So I would have to take a half-ass shower or sponge bath.🙄 which sucks! But thankful they finally were able to order 7X7 which fits perfectly. Ugh I missed taking a shower. Lol
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Just thought id share that with you guys and show off Todd with a fresh new bag on! Lol oh and if swipe right, you’ll see the shower shield.🛁
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#ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings  #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #loveyourstoma #chronicloveclub #port
That fresh bag feeling!🙌🏽 • I’m finally able to take an actual shower now guys! The company that I get my port supples, TPN, and IV fluids from finally send me shower shield that fit!! • For the longest time they’ve been sending me 9X9 and it was way to big! Every time I tried to use it, it would get my dressing on port wet! So I would have to take a half-ass shower or sponge bath.🙄 which sucks! But thankful they finally were able to order 7X7 which fits perfectly. Ugh I missed taking a shower. Lol • Just thought id share that with you guys and show off Todd with a fresh new bag on! Lol oh and if swipe right, you’ll see the shower shield.🛁 ••• #ileostomy  #ileostomyawareness  #ostomy  #ostomates  #ostomate  #ostomybag  #ostomate  #ostomywarrior  #warrior  #stoma  #chronicillness  #chronicpain  #hiddenillness  #invisvibleillness  #girlwithguts  #loveyourself  #bodypositivity  #positivevibes  #countyourblessings  #nocolonstillrollin  #ittakesguts  #toddtheostomy  #chronicallymotivated  #coloplast  #spoonie  #loveyourstoma  #chronicloveclub  #port 
Jokes on you autumn, I don’t have a colon. #nocolonstillrollin #crohns #ostomy awareness #acfitness @autumncalabrese
I haven't managed enough rest the last few weekends, so the working week has been incredibly hard.
his weekend, I finally felt rested, and now here I am at 3.45am with just 2hrs sleep thanks to pain and toilet trips🙄
#Pouchitis #IBDSuperHeroes #Jpouch #Colitis #IBD #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDawareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDCantStopMe #IBDStrong #IBDPetPeeves #AutoimmuneDisease #ChronicIllness #InvisibleIllness #Spoonie #Autoimmune #CrohnsDisease #Crohns
I haven't managed enough rest the last few weekends, so the working week has been incredibly hard. his weekend, I finally felt rested, and now here I am at 3.45am with just 2hrs sleep thanks to pain and toilet trips🙄 #Pouchitis  #IBDSuperHeroes  #Jpouch  #Colitis  #IBD  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDawareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDCantStopMe  #IBDStrong  #IBDPetPeeves  #AutoimmuneDisease  #ChronicIllness  #InvisibleIllness  #Spoonie  #Autoimmune  #CrohnsDisease  #Crohns 
My favourite yoga positions to help with lower back pain and pelvic pain.I try do these as much as i can even at work when no one is around. Ps- im only a beginner so if my technique is wrong dont copy 😂
My favourite yoga positions to help with lower back pain and pelvic pain.I try do these as much as i can even at work when no one is around. Ps- im only a beginner so if my technique is wrong dont copy 😂
Piglet the skin around her are making some fantastic progress. My skin irritation is officially gone and the skin is looking clear 😊 #stomalove #bagout #ostomy #stoma #ostomybag #ostomyawareness #ostomyfashion #ostomylife #bagbabes #bagcovers #ostomate #ulcerativecolitis #ostomylife  #spoonie #ostomate #pigletchronicles #nocolonstillrollin
Trying my best to be open about the state of my #MentalHealth, which I find really hard.
Sometimes, you just have to let yourself feel anger/#stress/frustration, aknowledge it and accept it.
Know that it is only temporary 💜 It is just for now.
#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDResearch #AutoimmuneDisease #ChronicIllness #InvisibleIllness #CrohnsDisease #Crohns
~ @sahara88uk
Trying my best to be open about the state of my #MentalHealth , which I find really hard. Sometimes, you just have to let yourself feel anger/#stress /frustration, aknowledge it and accept it. Know that it is only temporary 💜 It is just for now. #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDResearch  #AutoimmuneDisease  #ChronicIllness  #InvisibleIllness  #CrohnsDisease  #Crohns  ~ @sahara88uk
Good morning from this sleepy head over here! 3 days back at work and my body feels like I've done the ironman race! Yesterday I went to bed at the amazing time of 8.30 (after struggling to stay up this late) and slept for 10 hours (ish, the standard 3 wakes ups)! I could just keep sleeping it feels like but maybe I'm a bit too loyal and I've got up so I can go to work. 
As you can maybe see, I'm wearing a different bag, that's because halfway through the night I woke up because my bag was itching like mad, it was itching so bad that it was itching in my dream! 😂 so nice little midnight bag change into a Salts Aloe vera, I also put some Aloe vera gel on my skin and let that soak in before putting the bag on, and guess what, I've woken up and it isn't itching! Yay! I love little tricks like that when they actually help! 
Right, I best try to get myself partly functioning so I can go to work...have a great day everyone! 😙
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Regrann from @lifeocharlotte 
#lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #ostomates #ostomatelife #ostamate #stomabag #ostomyawareness #ostomybag #ostomylife #ibdsuperheroes #ibdwarrior #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #strongwomen #chronicalillness #exhausted #goodmorning #pjs #ulcerousecolitis #colitis
Good morning from this sleepy head over here! 3 days back at work and my body feels like I've done the ironman race! Yesterday I went to bed at the amazing time of 8.30 (after struggling to stay up this late) and slept for 10 hours (ish, the standard 3 wakes ups)! I could just keep sleeping it feels like but maybe I'm a bit too loyal and I've got up so I can go to work. As you can maybe see, I'm wearing a different bag, that's because halfway through the night I woke up because my bag was itching like mad, it was itching so bad that it was itching in my dream! 😂 so nice little midnight bag change into a Salts Aloe vera, I also put some Aloe vera gel on my skin and let that soak in before putting the bag on, and guess what, I've woken up and it isn't itching! Yay! I love little tricks like that when they actually help! Right, I best try to get myself partly functioning so I can go to work...have a great day everyone! 😙 ~ Regrann from @lifeocharlotte #lifeocharlotte  #ulcerousecolitis  #invisibleillness  #nocolonstillrollin  #ileostomy  #ibdfighter  #stoma  #ostomy  #ostomates  #ostomatelife  #ostamate  #stomabag  #ostomyawareness  #ostomybag  #ostomylife  #ibdsuperheroes  #ibdwarrior  #girlswithstomas  #girlswithoutguts  #girlswithguts  #getyourbellyout  #strongwomen  #chronicalillness  #exhausted  #goodmorning  #pjs  #ulcerousecolitis  #colitis 
So this was the morning part of my ride today. We then rode another 10.53 miles to the finish line. So I’m grand total for the three days I ended with 121.09. Not too shabby I am proud of myself. I pushed myself to the limits and came out alive. You learn a lot about yourself when you are alone with nature and a bike. So glad I did this. @pedaltheplains #pedaltheplains #colorado #bike #bikeride #biketour #bicycle #mybuttstillhurts #nocolonstillrollin #ibdwarrior #ostomy #ileostomy
So this was the morning part of my ride today. We then rode another 10.53 miles to the finish line. So I’m grand total for the three days I ended with 121.09. Not too shabby I am proud of myself. I pushed myself to the limits and came out alive. You learn a lot about yourself when you are alone with nature and a bike. So glad I did this. @pedaltheplains #pedaltheplains  #colorado  #bike  #bikeride  #biketour  #bicycle  #mybuttstillhurts  #nocolonstillrollin  #ibdwarrior  #ostomy  #ileostomy 
Sometimes you just need to feel like there is someone else out there in the world that “gets it.” I hope that #OstomyDiaries provides not only education, but comfort and community for other ostomates. I love this little tribe. 💚💜💩😊
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#Ostomy #Ileostomy #Colostomy #OstomyBag #Ostomate #OstomyCare #CrohnsDisease #IBD #UlcerativeColitis #PatientAdvocate #UOAA #CCFA #NoColonStillRollin #ChronicIllness #Crohns #Stoma #invisibleillness #stoma #stomabag #ostomydiaries #positivevibes #ostomylife #OstomyAwareness #Fearless #LoveYourself
Sometimes you just need to feel like there is someone else out there in the world that “gets it.” I hope that #OstomyDiaries  provides not only education, but comfort and community for other ostomates. I love this little tribe. 💚💜💩😊 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #Ostomy  #Ileostomy  #Colostomy  #OstomyBag  #Ostomate  #OstomyCare  #CrohnsDisease  #IBD  #UlcerativeColitis  #PatientAdvocate  #UOAA  #CCFA  #NoColonStillRollin  #ChronicIllness  #Crohns  #Stoma  #invisibleillness  #stoma  #stomabag  #ostomydiaries  #positivevibes  #ostomylife  #OstomyAwareness  #Fearless  #LoveYourself 
Every single morning starts the same.
Dogs out, collect meds & oral #rehydration solution (St Mark's recipe), feed the dogs, take meds & drink glass of ORS.
How does yours start?

#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #AutoimmuneDisease #ChronicIllness #InvisibleIllness #Spoonie #CrohnsDisease #Crohns  Regrann from @sahara88uk
Every single morning starts the same. Dogs out, collect meds & oral #rehydration  solution (St Mark's recipe), feed the dogs, take meds & drink glass of ORS. How does yours start? #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #AutoimmuneDisease  #ChronicIllness  #InvisibleIllness  #Spoonie  #CrohnsDisease  #Crohns  Regrann from @sahara88uk
5.4 miles on this #sundayrunday ! I was planning on running outside since it was nice and sunny out, but waited way too long. I scrubbed out the inside of my washing machine and needed to rest my back for a bit. By the time I started it was noon? Just after noon? I had read some posts on here from local people going on and on about how hot and humid it was out there, so treadmill it was! And I’m glad I did that, because I kept feeling my sweaty drippy shirt hitting my sweaty drippy back, yuck. I added some strides in throughout the last two miles, so I’m pleased with this run! No fancy paces or worrying about times....just a strong, happy run! 😎 Then I spent a couple hours with my BFF biffy, working on her baby registries. I just love her and her tiny baby! Watching football the rest of the night! Big day tomorrow with doctor appointments and errands! Definitely going to try to get a weight workout in sometime! 🤞🏼Have a lovely evening, peeps! 💜🏃🏼‍♀️
5.4 miles on this #sundayrunday  ! I was planning on running outside since it was nice and sunny out, but waited way too long. I scrubbed out the inside of my washing machine and needed to rest my back for a bit. By the time I started it was noon? Just after noon? I had read some posts on here from local people going on and on about how hot and humid it was out there, so treadmill it was! And I’m glad I did that, because I kept feeling my sweaty drippy shirt hitting my sweaty drippy back, yuck. I added some strides in throughout the last two miles, so I’m pleased with this run! No fancy paces or worrying about times....just a strong, happy run! 😎 Then I spent a couple hours with my BFF biffy, working on her baby registries. I just love her and her tiny baby! Watching football the rest of the night! Big day tomorrow with doctor appointments and errands! Definitely going to try to get a weight workout in sometime! 🤞🏼Have a lovely evening, peeps! 💜🏃🏼‍♀️
You never know how much you have to say...until somebody asks you a question, or two or three....
We thought we were going to tape a one hour podcast, but noooo....two hours later...
So we've created a 5-Part Video Series of "Pain 2 Power" Podcast that gives a detailed account of Robert's journey of beating and surviving cancer...available here and on Youtube. 
Thank you Rich @mindful.accord for the interview.
👆🏼Full video in bio👆🏼Please watch, listen and share with anyone you feel needs to hear this.💙
You never know how much you have to say...until somebody asks you a question, or two or three.... We thought we were going to tape a one hour podcast, but noooo....two hours later... So we've created a 5-Part Video Series of "Pain 2 Power" Podcast that gives a detailed account of Robert's journey of beating and surviving cancer...available here and on Youtube. Thank you Rich @mindful.accord for the interview. 👆🏼Full video in bio👆🏼Please watch, listen and share with anyone you feel needs to hear this.💙
It's been a much better weekend knowing that I don't have to go to jury duty on Monday! They estimated it would last about a week, but I'm glad it didn't go past Friday. I was able to get into my gym and try some new things. Watching these single arm kbox rows make me laugh because there isn't really any reference as to how challenging they are like a huge weight or tough angle against gravity or something! Haha! I hope you've all had great weekends as well, ready to start a normal week tomorrow! #ibd #crohnsdisease #ulcerativecolitis #autoimmunedisease #chronicillness #ostomate #ileostomy #nocolonstillrollin #instafit #backworkout #rows #gym #fitfam #fitnessjourney #nevergiveup
It's been a much better weekend knowing that I don't have to go to jury duty on Monday! They estimated it would last about a week, but I'm glad it didn't go past Friday. I was able to get into my gym and try some new things. Watching these single arm kbox rows make me laugh because there isn't really any reference as to how challenging they are like a huge weight or tough angle against gravity or something! Haha! I hope you've all had great weekends as well, ready to start a normal week tomorrow! #ibd  #crohnsdisease  #ulcerativecolitis  #autoimmunedisease  #chronicillness  #ostomate  #ileostomy  #nocolonstillrollin  #instafit  #backworkout  #rows  #gym  #fitfam  #fitnessjourney  #nevergiveup 
So many of us have lost complete sight of what feeling well means. Chronic illness keeps pushing the bar of tolerance higher and higher. We have been doing this/feeling like this for so long that we learn to adjust, overcompensate, and self medicate. The notion of “being well” becomes more and more distorted. It’s ok to be honest with ourselves and our doctors about how we really feel. You don’t need to downplay your symptoms or fall into the habit of “oh well this is my life and it is what it is”. If you’re in the bathroom 10 times a day. Waking up in the middle of the night to use the bathroom, walking around with joint pain, low grade fevers, cancelling social plans, falling into bed as soon as you walk through the door from work or school etc, your quality of life is not generally well. Keep searching for ways to feel better. There may not be cures for some of the things we suffer from but there are ways to alleviate some of the more acute symptoms. Keep fighting, stay strong but examine what you tolerate and put up with daily. 💜#chronicillness #autoimmunedisease #ibd #ibdsucks #ibdwarrior #ibdfighter #invisibleillness #uc #crohns #jpouch #nocolonstillrollin #ccfa #findacure
So many of us have lost complete sight of what feeling well means. Chronic illness keeps pushing the bar of tolerance higher and higher. We have been doing this/feeling like this for so long that we learn to adjust, overcompensate, and self medicate. The notion of “being well” becomes more and more distorted. It’s ok to be honest with ourselves and our doctors about how we really feel. You don’t need to downplay your symptoms or fall into the habit of “oh well this is my life and it is what it is”. If you’re in the bathroom 10 times a day. Waking up in the middle of the night to use the bathroom, walking around with joint pain, low grade fevers, cancelling social plans, falling into bed as soon as you walk through the door from work or school etc, your quality of life is not generally well. Keep searching for ways to feel better. There may not be cures for some of the things we suffer from but there are ways to alleviate some of the more acute symptoms. Keep fighting, stay strong but examine what you tolerate and put up with daily. 💜#chronicillness  #autoimmunedisease  #ibd  #ibdsucks  #ibdwarrior  #ibdfighter  #invisibleillness  #uc  #crohns  #jpouch  #nocolonstillrollin  #ccfa  #findacure 
Over fourteen years ago my family threw a going away party for my colon with a very specific cake. Wonder what the cake decorator thought... 😂 #goodbyecolon #nocolonstillrollin #ulcerativecolitis #jpouch #cake #party
stoma warning⚠️⚠️
i took this picture the day i got home from my surgery around 2 months ago. bandages still on, stoma still painful, body so weak i could barely use the washroom on my own. it feels insane that it’s only been two months since i got my ostomy back and my whole world did a 180 (once again lol). so i thought i’d do an update on how i’ve been since then.

my internal abscess has not healed yet, it drains constantly, it causes me so much pain when i sit down, and i believe it’s causing UC to be active in my rectum. i have starting bleeding from my bottom once again, and a months dose of antibiotics did nothing. so tuesday i see my surgeon and beg for a next step that won’t involve more surgery, because i don’t think my body can take it right now. 
aside from the abscess and suspected inflammation, my life is 100x better with my ostomy. i have been going out, spending weekends away, finally starting school, and embracing my colon-less life with open arms🤗 i’ve started to realize that this ostomy is one of the best things that has ever happened to me, because without it, i wouldn’t be here talking to you guys, studying the subject i love, and eating the cheesiest grilled cheese i could make🧀 (why is there no grilled cheese emoji??) anyway i hope you guys are all having a great sunday, and remember if you aren’t my dms are always open!💜😊 .
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PS. I wrote an article about my story, the link is in my bio and i would be sooo happy if you could read it!!💕💕
stoma warning⚠️⚠️ i took this picture the day i got home from my surgery around 2 months ago. bandages still on, stoma still painful, body so weak i could barely use the washroom on my own. it feels insane that it’s only been two months since i got my ostomy back and my whole world did a 180 (once again lol). so i thought i’d do an update on how i’ve been since then. my internal abscess has not healed yet, it drains constantly, it causes me so much pain when i sit down, and i believe it’s causing UC to be active in my rectum. i have starting bleeding from my bottom once again, and a months dose of antibiotics did nothing. so tuesday i see my surgeon and beg for a next step that won’t involve more surgery, because i don’t think my body can take it right now. aside from the abscess and suspected inflammation, my life is 100x better with my ostomy. i have been going out, spending weekends away, finally starting school, and embracing my colon-less life with open arms🤗 i’ve started to realize that this ostomy is one of the best things that has ever happened to me, because without it, i wouldn’t be here talking to you guys, studying the subject i love, and eating the cheesiest grilled cheese i could make🧀 (why is there no grilled cheese emoji??) anyway i hope you guys are all having a great sunday, and remember if you aren’t my dms are always open!💜😊 . • . PS. I wrote an article about my story, the link is in my bio and i would be sooo happy if you could read it!!💕💕
Enjoying the last bits of summer with this mush ☀️💛
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I realize I’m constantly apologizing for being MIA but the reality is I’m just terrible at documenting every day life 🤷🏼‍♀️ I get very consumed in my normal routine and also do a good amount of unintentional digital detoxing which is basically the recipe for a not so great instagrammer .. hang with me guys, I promise to do better (also will take any tips for finding time to stay engaged) ☝🏻
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Health update:: I have had a handful of things happen over the past week in regards to my recent weird symptoms .. including an updated scope in Cleveland! Good news :: inflammation looks MUCH better than back in January. There are still a couple spots here and there but definitely not the degree that it was before 🙌🏻
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My brain fog, fatigue, skin outbreaks, etc have all seemed to improve. They will come and go now but are no longer constant - which I’ll take ...
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I am on a low dose of flagyll (125 mg a day) and that seems to keep everything settled from a pouch perspective. My surgeon actually presented my case to a Cleveland city wide board and everyone there also thought my post op incident was extremely weird. The final recommendation was that I see an infectious disease doctor in case I have some strange bacteria that hasn’t been identified or is not on the normal list of things to test for 💉
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We decided it would probably be a good thing to look into especially now knowing I’ve been exposed to a tick borne illness as well. Who knows, maybe they will have some new insight into why I can’t quite kick the antibiotics. Doesn’t hurt to get additional options ☑️
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Until then, I’ll continue with what has me feeling well ✌🏻
Enjoying the last bits of summer with this mush ☀️💛 . I realize I’m constantly apologizing for being MIA but the reality is I’m just terrible at documenting every day life 🤷🏼‍♀️ I get very consumed in my normal routine and also do a good amount of unintentional digital detoxing which is basically the recipe for a not so great instagrammer .. hang with me guys, I promise to do better (also will take any tips for finding time to stay engaged) ☝🏻 . Health update:: I have had a handful of things happen over the past week in regards to my recent weird symptoms .. including an updated scope in Cleveland! Good news :: inflammation looks MUCH better than back in January. There are still a couple spots here and there but definitely not the degree that it was before 🙌🏻 . My brain fog, fatigue, skin outbreaks, etc have all seemed to improve. They will come and go now but are no longer constant - which I’ll take ... . I am on a low dose of flagyll (125 mg a day) and that seems to keep everything settled from a pouch perspective. My surgeon actually presented my case to a Cleveland city wide board and everyone there also thought my post op incident was extremely weird. The final recommendation was that I see an infectious disease doctor in case I have some strange bacteria that hasn’t been identified or is not on the normal list of things to test for 💉 . We decided it would probably be a good thing to look into especially now knowing I’ve been exposed to a tick borne illness as well. Who knows, maybe they will have some new insight into why I can’t quite kick the antibiotics. Doesn’t hurt to get additional options ☑️ . Until then, I’ll continue with what has me feeling well ✌🏻
Då var denna helgen slut. Välkomnar en ny spännande vecka 💗 •
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#mitthem #interiordesign #inredning #weekend #nocolonstillrollin
I’m over the heat.😩
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So while my mom and brother were in Barnes & Noble, I was in the car doing IV fluids with the air on. Because I felt so dizzy and dehydrated.😩
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Also I thought I would update you guys: so I don’t have pneumonia THANK GOD. But I do have shingles. So rest and meds it is. And I’ll know more about my CT when I see my surgeon on the 26th.
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I just want to thank you guys for being apart of my journey and truly being here for me!! I love this community so much because we can all be there for one another! It’s makes life and dealing with being sick easier because I don’t feel alone. So thank you so much.❤️
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#ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings  #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #loveyourstoma #chronicloveclub #port #hydration #IV
I’m over the heat.😩 • So while my mom and brother were in Barnes & Noble, I was in the car doing IV fluids with the air on. Because I felt so dizzy and dehydrated.😩 • Also I thought I would update you guys: so I don’t have pneumonia THANK GOD. But I do have shingles. So rest and meds it is. And I’ll know more about my CT when I see my surgeon on the 26th. • I just want to thank you guys for being apart of my journey and truly being here for me!! I love this community so much because we can all be there for one another! It’s makes life and dealing with being sick easier because I don’t feel alone. So thank you so much.❤️ ••• #ileostomy  #ileostomyawareness  #ostomy  #ostomates  #ostomate  #ostomybag  #ostomate  #ostomywarrior  #warrior  #stoma  #chronicillness  #chronicpain  #hiddenillness  #invisvibleillness  #girlwithguts  #loveyourself  #bodypositivity  #positivevibes  #countyourblessings  #nocolonstillrollin  #ittakesguts  #toddtheostomy  #chronicallymotivated  #coloplast  #spoonie  #loveyourstoma  #chronicloveclub  #port  #hydration  #IV 
She didn't know I had an ostomy, even though we'd spent at least a few months exercising together and hanging out... until she saw a post I made directly about having an ostomy. 
Just a little reminder that your ostomy is not as obvious as you might think!
She didn't know I had an ostomy, even though we'd spent at least a few months exercising together and hanging out... until she saw a post I made directly about having an ostomy. Just a little reminder that your ostomy is not as obvious as you might think!
Everyone’s fighting their own battle. Sometimes we can see it and many times we can’t. I knew this to be true when I “just” had RA. It became much more apparent to me after I was diagnosed with cancer. The first 6 months of treatment, I didn’t lose my hair. Some of that treatment (brachytherapy) was horrific, but you could never tell just by looking at me that I was sick. It’s a blessing and a curse! I’m grateful to be looking and feeling healthier as I begin to get back to some normalcy in my life. Yesterday was 6 weeks since my surgery. Although I know I’ve made so much progress, it doesn’t always feel that way. I got all glammed up for a fashion show for charity on Thursday and did a side by side of my first walk in the hospital after surgery...I can really see it there. If I could only get this ostomy business figured out. I’m tired of hurting and being afraid to go anywhere. Im up to walking about .5 mile on the road and I’m looking forward to going back to work part time this week. Another big step in the right direction. 💙
Everyone’s fighting their own battle. Sometimes we can see it and many times we can’t. I knew this to be true when I “just” had RA. It became much more apparent to me after I was diagnosed with cancer. The first 6 months of treatment, I didn’t lose my hair. Some of that treatment (brachytherapy) was horrific, but you could never tell just by looking at me that I was sick. It’s a blessing and a curse! I’m grateful to be looking and feeling healthier as I begin to get back to some normalcy in my life. Yesterday was 6 weeks since my surgery. Although I know I’ve made so much progress, it doesn’t always feel that way. I got all glammed up for a fashion show for charity on Thursday and did a side by side of my first walk in the hospital after surgery...I can really see it there. If I could only get this ostomy business figured out. I’m tired of hurting and being afraid to go anywhere. Im up to walking about .5 mile on the road and I’m looking forward to going back to work part time this week. Another big step in the right direction. 💙
Nude

Ostomy bag covers £5 each
All fully lined
100% cotton
Open or closed
Any custom orders or requests, send me a message 😊✌
If your interested, you can buy them directly from me here just message me 🛍
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#chronesdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #chrones #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
Nude Ostomy bag covers £5 each All fully lined 100% cotton Open or closed Any custom orders or requests, send me a message 😊✌ If your interested, you can buy them directly from me here just message me 🛍 ~ ~ ~ ~ ~ #chronesdisease  #ostomate  #ostomy  #ostomysupplies  #colostomybag  #ostomybag  #ostomybagswag  #ostomybagcover  #ostomycover  #stomacover  #stoma  #nocolonstillrollin  #girlswithguts  #chrones  #stomabagcovers  #ostomates  #spoonie  #myostomystory  #ileostomywarrior  #ileostomybag  #stomalife  #ostomylife  #ileostomylife  #stomafashion  #ostomyfashion  #ileostomyfashion  #stomabag  #colostomyfashion  #getyourbagout  #baglady 
It’s a year ago this week that I had the life changing op to remove my colon and have a stoma bag after a long battle with Ulcerative colitis.Its been a year of challenges both mentally and physically, some set by myself and some not.In the pic are 4 of my achievements since and the biggest in my life.Ironically this week is also the date of my next surgery to reverse my stoma bag and move to the j pouch they built during the last op.I’ll become like a dyson vacuum cleaner ......bagless😜.I will be gutted to lose some of the progress I have made in the last year fitness wise,but a setback is a setup for a bigger comeback! Bring on the next challenges. Thank you everyone for your support during the last year especially during my fundraising. #ulcerativecolitisawareness #ulcerativecolitiswarrior #IBD #topfriends #topfamily #dysonvaccumcleaner #bagless #stomawarrior #jpouchsurgery #nocolonstillrollin #spacemanscolitisjourney #ulcerativecolitis
It’s a year ago this week that I had the life changing op to remove my colon and have a stoma bag after a long battle with Ulcerative colitis.Its been a year of challenges both mentally and physically, some set by myself and some not.In the pic are 4 of my achievements since and the biggest in my life.Ironically this week is also the date of my next surgery to reverse my stoma bag and move to the j pouch they built during the last op.I’ll become like a dyson vacuum cleaner ......bagless😜.I will be gutted to lose some of the progress I have made in the last year fitness wise,but a setback is a setup for a bigger comeback! Bring on the next challenges. Thank you everyone for your support during the last year especially during my fundraising. #ulcerativecolitisawareness  #ulcerativecolitiswarrior  #IBD  #topfriends  #topfamily  #dysonvaccumcleaner  #bagless  #stomawarrior  #jpouchsurgery  #nocolonstillrollin  #spacemanscolitisjourney  #ulcerativecolitis 
2 weeks post-surgery. Finally up to throwing some makeup on and #selfie . Still getting used to life as part of the #ostomate club again. Legit badass club (no pun intended lol). Takes some major strength to be a member! 💪🏻
2 weeks post-surgery. Finally up to throwing some makeup on and #selfie  . Still getting used to life as part of the #ostomate  club again. Legit badass club (no pun intended lol). Takes some major strength to be a member! 💪🏻
Getting stronger despite the fatigue I’ve been battling lately! Taking advantage of the beautiful weather. I’m so thankful to live next to a metro park 🌎🌳🍂
Getting stronger despite the fatigue I’ve been battling lately! Taking advantage of the beautiful weather. I’m so thankful to live next to a metro park 🌎🌳🍂
After waking wide the eff awake for no damn reason at 4:15am for hours (maybe it’s starting the #budesonide steroids?), my amazing husband bringing waffles upstairs to me after I’d finally been able to fall back asleep for a bit = ❤️❤️❤️. When your sleep cycle gets all messed up, it’s especially helpful to have someone else to remind you, “hey you, I love you, eat some deliciousness and take your pills!!” 💕 As always, Josie is along for the snuggles and prospect of crumbs. 🙄😆😉 •
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#love #marriage #besthusbandever #spooniespouse #chronicillness #spoonie  #autoimmunedisease #inflammatoryboweldisease #ibd #ulcerativecolitis #jpouch #pouchitis #chronicpain #chronicfatigue #ibdwarrior #totalproctocolectomy #nocolonstillrollin #crohnscolitisfoundation #crohnsdisease #crohns #pain #painmanagement #medicalmarijuana #cannabis #mentalhealth #patientadvocate
After waking wide the eff awake for no damn reason at 4:15am for hours (maybe it’s starting the #budesonide  steroids?), my amazing husband bringing waffles upstairs to me after I’d finally been able to fall back asleep for a bit = ❤️❤️❤️. When your sleep cycle gets all messed up, it’s especially helpful to have someone else to remind you, “hey you, I love you, eat some deliciousness and take your pills!!” 💕 As always, Josie is along for the snuggles and prospect of crumbs. 🙄😆😉 • • • • #love  #marriage  #besthusbandever  #spooniespouse  #chronicillness  #spoonie  #autoimmunedisease  #inflammatoryboweldisease  #ibd  #ulcerativecolitis  #jpouch  #pouchitis  #chronicpain  #chronicfatigue  #ibdwarrior  #totalproctocolectomy  #nocolonstillrollin  #crohnscolitisfoundation  #crohnsdisease  #crohns  #pain  #painmanagement  #medicalmarijuana  #cannabis  #mentalhealth  #patientadvocate 
San Francisco has been so good to us. We’ve walked miles, eaten delicious food (we deemed it the food tour), and enjoyed spending time as a family. Yesterday was a reminder that even though I am 6 months out from my first surgery I am only 3 months out from my second. I wanted to go, go, go all day long but my body reminded me quickly and uncomfortably that I just can’t do that yet. It frustrated me to no end that I didn’t have the stamina to keep going when i wanted to and at my pace. My head said let’s go but my body said stop. I felt weak, lame, sick again, and angry. I had to quickly check myself and realize that I had two surgeries in 98 days, went back to work full time, moved, started two jobs, and now traveled for the first time since surgery. That’s a shit ton of stuff that happened in 6 months. It’s ok to slow down, listen to your body, and take the time you need to rest. It’s easier said than done. And it’s vitally important or else your body will shut down on you real quick and I wasn’t willing to risk my last few days here because I went too hard. Here’s to day 3! .
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#lifeisbeautiful #nocolonstillrollin #gutsoverfear #teamgutsoverfear #listentoyourbody #myscarsarebeautiful #jpouch #nocolon #sanfrancisco #sanfranciscofood #california #bayarea #girlwashyourface #iamenough #restisgoodforyourbod #gosloworgohome #vintageshopping #blackandwhite #sanfran #sanfranciscobay #sixmonthsurgiversary
San Francisco has been so good to us. We’ve walked miles, eaten delicious food (we deemed it the food tour), and enjoyed spending time as a family. Yesterday was a reminder that even though I am 6 months out from my first surgery I am only 3 months out from my second. I wanted to go, go, go all day long but my body reminded me quickly and uncomfortably that I just can’t do that yet. It frustrated me to no end that I didn’t have the stamina to keep going when i wanted to and at my pace. My head said let’s go but my body said stop. I felt weak, lame, sick again, and angry. I had to quickly check myself and realize that I had two surgeries in 98 days, went back to work full time, moved, started two jobs, and now traveled for the first time since surgery. That’s a shit ton of stuff that happened in 6 months. It’s ok to slow down, listen to your body, and take the time you need to rest. It’s easier said than done. And it’s vitally important or else your body will shut down on you real quick and I wasn’t willing to risk my last few days here because I went too hard. Here’s to day 3! . . . . #lifeisbeautiful  #nocolonstillrollin  #gutsoverfear  #teamgutsoverfear  #listentoyourbody  #myscarsarebeautiful  #jpouch  #nocolon  #sanfrancisco  #sanfranciscofood  #california  #bayarea  #girlwashyourface  #iamenough  #restisgoodforyourbod  #gosloworgohome  #vintageshopping  #blackandwhite  #sanfran  #sanfranciscobay  #sixmonthsurgiversary 
Okay here is day two update. Made it 48.11 miles. Started off great but man there were some big hills. Also take those hills and combine it with 95 degree temperatures and 20 mph winds and my body was exhausted. It was great I’m proud of myself for completing that many miles, wish I could have gone further but this makes 80.7 miles over two days. Not too bad I’m impressed with myself thank you again for all of your support. #pedaltheplains #limoncolorado #colorado #bike #bikeride #nocolonstillrollin #ibdwarrior #ileostomy
Okay here is day two update. Made it 48.11 miles. Started off great but man there were some big hills. Also take those hills and combine it with 95 degree temperatures and 20 mph winds and my body was exhausted. It was great I’m proud of myself for completing that many miles, wish I could have gone further but this makes 80.7 miles over two days. Not too bad I’m impressed with myself thank you again for all of your support. #pedaltheplains  #limoncolorado  #colorado  #bike  #bikeride  #nocolonstillrollin  #ibdwarrior  #ileostomy