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Happy Friday guys! (And yes I’m in the same pjs from the last 2days. Don’t judge.🤣)
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⭐️Fun Facts Friday⭐️
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1️⃣ Growing up I loved Super Mario World!👾🎮-So my all time favorite game to play was Super Mario World and honestly any Nintendo game!! That was my ishhh!🙌🏽
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 2️⃣ I love Harry Potter!🔮-I’m obsessed with the movies and I could honestly watch them over and over again.
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3️⃣ I’ve never read a Harry Potter book.📚-So following along with #2 I’ve honestly never read any of the Harry Potter books..😳😂 plz don’t come for me lol
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4️⃣ I really want to get a Nintendo 3D Ds.🎮-This is very random but I really want to get one!! I love Nintendo.🤣(sorry this one is random)
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5️⃣ They took my NG tube out!🎉-Okay this is another random one but earlier today they gave us the okay to take the NG tube out. Not much had changed but they decided to take it out.
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I hope you guys enjoyed these fun facts. I’m sorry some of these are boring. I just feel like crap and can’t think of much to tell you guys. But please tell me a fact about you.❤️
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#loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings  #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie
Happy Friday guys! (And yes I’m in the same pjs from the last 2days. Don’t judge.🤣) • ⭐️Fun Facts Friday⭐️ • 1️⃣ Growing up I loved Super Mario World!👾🎮-So my all time favorite game to play was Super Mario World and honestly any Nintendo game!! That was my ishhh!🙌🏽 • 2️⃣ I love Harry Potter!🔮-I’m obsessed with the movies and I could honestly watch them over and over again. • 3️⃣ I’ve never read a Harry Potter book.📚-So following along with #2  I’ve honestly never read any of the Harry Potter books..😳😂 plz don’t come for me lol • 4️⃣ I really want to get a Nintendo 3D Ds.🎮-This is very random but I really want to get one!! I love Nintendo.🤣(sorry this one is random) • 5️⃣ They took my NG tube out!🎉-Okay this is another random one but earlier today they gave us the okay to take the NG tube out. Not much had changed but they decided to take it out. • I hope you guys enjoyed these fun facts. I’m sorry some of these are boring. I just feel like crap and can’t think of much to tell you guys. But please tell me a fact about you.❤️ ••• #loveyourstoma  #chronicloveclub  #ileostomy  #ileostomyawareness  #ostomy  #ostomates  #ostomate  #ostomybag  #ostomate  #ostomywarrior  #warrior  #stoma  #chronicillness  #chronicpain  #hiddenillness  #invisvibleillness  #girlwithguts  #loveyourself  #bodypositivity  #positivevibes  #countyourblessings  #nocolonstillrollin  #ittakesguts  #toddtheostomy  #chronicallymotivated  #coloplast  #spoonie 
I need to finish this. I’m really finding colouring really relaxing after work. Big test is tomorrow, 1st 8 hour shift in 3 years tomorrow. I’m hoping everyone will be kind to me.
I’ve given in and asked for some support wear for my stoma. Because  it aches after a while, stood on my feet.
I really didn’t want to ask for support wear for my ileostomy, because it makes me feel like I’ve got a disability when I haven’t. I’m still Rebecca! I’m not just a stoma and no colon. I’m a actual person, with feelings. #comingtoterms #stoma #ileostomy #nocolonstillrollin #colouring #calming
I need to finish this. I’m really finding colouring really relaxing after work. Big test is tomorrow, 1st 8 hour shift in 3 years tomorrow. I’m hoping everyone will be kind to me. I’ve given in and asked for some support wear for my stoma. Because it aches after a while, stood on my feet. I really didn’t want to ask for support wear for my ileostomy, because it makes me feel like I’ve got a disability when I haven’t. I’m still Rebecca! I’m not just a stoma and no colon. I’m a actual person, with feelings. #comingtoterms  #stoma  #ileostomy  #nocolonstillrollin  #colouring  #calming 
Our new beef tataki dish is hard to resist. The beef is lightly seared and served on a bed of potatoes and Brussels sprouts -- but only 38 grams, to keep it low FODMAP! It comes with delicious celery root puree and our house-made Japanese-inspired Goma-dare sauce.
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#GetEpicured #fodmapfriendly #healthy #fodmap #cleaneating #lowfodmapdiet #chronsdisease #eatclean #healthyeating  #crohns #fodmapdiet  #ibs #healthyfood #lowfodmapfriendly #cleaneats #ibsfriendly  #colitis #celiacdiseasefoundation 
#celiacproblems #coeliacproblems #glutenfreeeats #celiac #colitisawareness #nocolonstillrollin #glutenfree #glutenintolerant #lowfodmap #iamglutenfree #glutenfreelifestyle #sibo
Our new beef tataki dish is hard to resist. The beef is lightly seared and served on a bed of potatoes and Brussels sprouts -- but only 38 grams, to keep it low FODMAP! It comes with delicious celery root puree and our house-made Japanese-inspired Goma-dare sauce. . . . #GetEpicured  #fodmapfriendly  #healthy  #fodmap  #cleaneating  #lowfodmapdiet  #chronsdisease  #eatclean  #healthyeating  #crohns  #fodmapdiet  #ibs  #healthyfood  #lowfodmapfriendly  #cleaneats  #ibsfriendly  #colitis  #celiacdiseasefoundation  #celiacproblems  #coeliacproblems  #glutenfreeeats  #celiac  #colitisawareness  #nocolonstillrollin  #glutenfree  #glutenintolerant  #lowfodmap  #iamglutenfree  #glutenfreelifestyle  #sibo 
What bag? Today is date night so I decided to put on my new stealth belt and put something other than pajamas 😆#stomalove #bagout #ostomy #stoma #ostomybag #ostomyawareness #ostomyfashion #ostomylife #bagbabes #bagcovers #ostomate #ulcerativecolitis #ostomylife  #spoonie #ostomate #pigletchronicles #nocolonstillrollin #getyourbellyout #aeriereal
Hi meatball !! We feel your pain !
@Regran_ed from @meatballthestoma - 🍝 meatball alert 🍝 Lately I have been waking up an hour or two before my alarm goes off needing to empty an inflated bag 🙄 I miss the days of never having to get out of bed, but once a night is much better than sleeping on the bathroom floor I was having to 💩 so much 🙃 .
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#ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #barbiebutt #mcv #vcu #richmond #rva #life #livinglife #lovinglife #nocolonstillrollin  #Tiffieldtwins2
Hi meatball !! We feel your pain ! @Regran_ed from @meatballthestoma - 🍝 meatball alert 🍝 Lately I have been waking up an hour or two before my alarm goes off needing to empty an inflated bag 🙄 I miss the days of never having to get out of bed, but once a night is much better than sleeping on the bathroom floor I was having to 💩 so much 🙃 . . . . . #ibd  #ibdawareness  #ibdwarrior  #crohns  #crohnsdisease  #cdiff  #ileostomy  #permanentileostomy  #ostomy  #ostomate  #ostomyawareness  #chronicillness  #chronicpain  #invisibleillness  #stoma  #meatballthestoma  #proctocolectomy  #barbiebutt  #mcv  #vcu  #richmond  #rva  #life  #livinglife  #lovinglife  #nocolonstillrollin  #Tiffieldtwins2 
I'm an idiot. You'll get used to it. 😂
I'm an idiot. You'll get used to it. 😂
Today we went for my first actual walk since being reconnected. I have been wanting to walk but the cramping has been so had the past two weeks with just getting around the house I was afraid to do more. Especially since I've got two little dudes relying on me. 
But Tuesday night my surgeon called to check up on me and I was able to ask him if the pain and cramping was something I need to push through or a sign that I need to rest a bit. He said push through it! He said my intestine will take a year and a half to fully adjust to everything he did to it. 
So today even though it's later and I was already having some intense cramping, I bundled my babies into the stroller and we went for a walk in the snow. And we did great! It wasn't as bad as I had been anticipating and I actually feel pretty great after getting back. 
Just a quick walk around the block but it's a start! Tomorrow we will try for a bit farther. Today the fresh air felt glorious and I'm so glad I pushed to take this next step!

#nocolonstillrollin #theLordisfaithful #firstsnow #firstwalk #twobabies #wemadeit #babysteps #daybyday #wewillgetthere #freshair #goodforthesoul #screwthecramps #ulcerativecolitis #spooniemama #exbaglife #jpouch #jpouchlife
Today we went for my first actual walk since being reconnected. I have been wanting to walk but the cramping has been so had the past two weeks with just getting around the house I was afraid to do more. Especially since I've got two little dudes relying on me. But Tuesday night my surgeon called to check up on me and I was able to ask him if the pain and cramping was something I need to push through or a sign that I need to rest a bit. He said push through it! He said my intestine will take a year and a half to fully adjust to everything he did to it. So today even though it's later and I was already having some intense cramping, I bundled my babies into the stroller and we went for a walk in the snow. And we did great! It wasn't as bad as I had been anticipating and I actually feel pretty great after getting back. Just a quick walk around the block but it's a start! Tomorrow we will try for a bit farther. Today the fresh air felt glorious and I'm so glad I pushed to take this next step! #nocolonstillrollin  #theLordisfaithful  #firstsnow  #firstwalk  #twobabies  #wemadeit  #babysteps  #daybyday  #wewillgetthere  #freshair  #goodforthesoul  #screwthecramps  #ulcerativecolitis  #spooniemama  #exbaglife  #jpouch  #jpouchlife 
The first picture is of me before I left the house to go to Sam's Club. The second is after unloading the truck that was full of groceries and a shower. The last one I have no energy left because I didn't take my powerchair with me and I walked the entire time. When I am in public I always hide my pain, bag, and illnesses as best as I can.
The first picture is of me before I left the house to go to Sam's Club. The second is after unloading the truck that was full of groceries and a shower. The last one I have no energy left because I didn't take my powerchair with me and I walked the entire time. When I am in public I always hide my pain, bag, and illnesses as best as I can.
110 lbs on the bar 3 sets for 2 reps....not my best but I've been struggling lately with strength. Its always part mental and part physical, but any time I suit up and show up its a success 💪💪 #chronicallymotivated #babeswithbags #dontgiveup #nocolonstillrollin #crohnssucks #crohnsdisease #chickswholift
Ostomy bag covers £5 each
All fully lined
100% cotton
Any custom orders or requests, send me a message 
Free UK shipping 
Worldwide shipping £4
If your interested, you can buy them directly from me here just send me a message 😊
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#chronesdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #chrones #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
Ostomy bag covers £5 each All fully lined 100% cotton Any custom orders or requests, send me a message Free UK shipping Worldwide shipping £4 If your interested, you can buy them directly from me here just send me a message 😊 ~ ~ ~ ~ ~ #chronesdisease  #ostomate  #ostomy  #ostomysupplies  #colostomybag  #ostomybag  #ostomybagswag  #ostomybagcover  #ostomycover  #stomacover  #stoma  #nocolonstillrollin  #girlswithguts  #chrones  #stomabagcovers  #ostomates  #spoonie  #myostomystory  #ileostomywarrior  #ileostomybag  #stomalife  #ostomylife  #ileostomylife  #stomafashion  #ostomyfashion  #ileostomyfashion  #stomabag  #colostomyfashion  #getyourbagout  #baglady 
Friday fun! 😁
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Teaching Armani some moves on the heavybag. He's awesome! 🐩🥊
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#friday #friyay #tgif #weekend #poodle #strength #kickboxing #mma #fighting #blackdog #dogsofinstagram #dogstagram #puddel #trening #treningsglede
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#ibd #ibdwarrior #ibdsuperheroes #ulcerativecolitis #ilestomy #ostomy #ostomate #nocolonstillrollin #newlife #nevergiveup #comebackstronger #youcantstopme
Feeling super productive today! 🤩 I got my stool sample to the GI, made an appointment for my asthma checkup, got loads of actual work done, and ordered a nice healthy lunch. 😋 The only bummer... I’M ALWAYS COLD 🥶 One of the things they didn’t tell me about being chronically ill is how you lose the ability to regulate your own body temperature. When I’m taking prednisone, I am constantly hot and sweating and can’t cool down. When I’m not on steroids, I am freezing and can’t get warm enough. 
Do you have trouble with regulating body temperature? How do you cope? 
#ulcerativecolitis #uc #ibd #chronicillness #invisibleillness #crohnsdisease #crohns #autoimmune #colitisninja #ileostomy #nocolonstillrollin #spoonie #remissionisthemission #remission #spoons #cd #chronicallyill
Feeling super productive today! 🤩 I got my stool sample to the GI, made an appointment for my asthma checkup, got loads of actual work done, and ordered a nice healthy lunch. 😋 The only bummer... I’M ALWAYS COLD 🥶 One of the things they didn’t tell me about being chronically ill is how you lose the ability to regulate your own body temperature. When I’m taking prednisone, I am constantly hot and sweating and can’t cool down. When I’m not on steroids, I am freezing and can’t get warm enough. Do you have trouble with regulating body temperature? How do you cope? #ulcerativecolitis  #uc  #ibd  #chronicillness  #invisibleillness  #crohnsdisease  #crohns  #autoimmune  #colitisninja  #ileostomy  #nocolonstillrollin  #spoonie  #remissionisthemission  #remission  #spoons  #cd  #chronicallyill 
Call me crazy but this 1st snow fall made me WANT to go walk in it! 🤪
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I would have walked a lot longer but I couldn't see.🤓 Next time I need to remind myself to wear my contact lenses!
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#firstsnow #trailwalk #snowywalk #fitgirl #fitfam #healthygoals #fridayvibes #jpouch #jpouchgirl #ulcerativecolitis #nocolonstillrollin
My real life, a life of stoma👜bag💕😉🆓#nocolonstillrollin #stomabag ##reallife #lifestyle #mylife #ostomybag #stomagirl #happyday#ostomywarrior
Anyone else forget what they ordered from amazon and get excited when a huge box arrives only to be disappointed that it’s half full and contains your kids school snacks?  #myboxisbiggerthanyours #buzzkill #mylongisland #lirealestate
Big thank you to #southamptonfc and the hospitality dept last night for a wonderful evening. Delicious food in my favourite surroundings. #premierleague #stmarysstadium #hospitalityindustry #saintsfc #southampton #football⚽ #Stoma #ostomates #nocolonstillrollin #ohwhenthesaintsgomarchingin
When the bath is a 💩 colour 😂
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Enjoying some #selfcare with a coffee body scrub (hence the colour) & bath after a long day at work •
I love my baths! Never long enough though... now time for some studying 📖
#nurse #nurselife #mumlife #nocolonstillrollin #ileostomy
I’m running on fumes y’all ... the ONLY thing keeping me going right now is pure determination.... I’m worn out but I can’t wait to step on the stage again! 15 days! @chopshoplive @jennpattersonrealtor @justaddbronze @jewellcustombikinis
I’m running on fumes y’all ... the ONLY thing keeping me going right now is pure determination.... I’m worn out but I can’t wait to step on the stage again! 15 days! @chopshoplive @jennpattersonrealtor @justaddbronze @jewellcustombikinis
Sometimes things are not going to go your way. Today was one of those days. It’s fair to say this whole month has gone that way. Unfortunately, I’m going to have to cap this program at 12 weeks making this the final week. It’s been fun and challenging and I’d like to do another 4 but sometimes there’s more important things like family. Hoping and praying for a miracle for my aunt who has been an amazing fighter this last year. Maybe some day we can all be as strong as you are. ❤️
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#fit #fitlife #fitfam #fitfreak #fitaddict #fitspo #fitstagram #gymmotivation #motivation #inspiration #fitnessmotivation #gym #gains #ulcerativecolitis #colitis #ibd #ibdfitness #ibdwarrior #ibdawareness #nocolonstillrollin #health #fitnesslifestyle #chronicillness #invisibleillness #beastmode #beast #1stphorm #iam1stphorm #legionofboom #duespaid
Sometimes things are not going to go your way. Today was one of those days. It’s fair to say this whole month has gone that way. Unfortunately, I’m going to have to cap this program at 12 weeks making this the final week. It’s been fun and challenging and I’d like to do another 4 but sometimes there’s more important things like family. Hoping and praying for a miracle for my aunt who has been an amazing fighter this last year. Maybe some day we can all be as strong as you are. ❤️ . . . #fit  #fitlife  #fitfam  #fitfreak  #fitaddict  #fitspo  #fitstagram  #gymmotivation  #motivation  #inspiration  #fitnessmotivation  #gym  #gains  #ulcerativecolitis  #colitis  #ibd  #ibdfitness  #ibdwarrior  #ibdawareness  #nocolonstillrollin  #health  #fitnesslifestyle  #chronicillness  #invisibleillness  #beastmode  #beast  #1stphorm  #iam1stphorm  #legionofboom  #duespaid 
💜So, Crohn’s Disease stinks.  Just sayin’, but it has messed with the wrong chick.  It has been 3.5 months since my surgery, and had to go back to my friend, my colorectal surgeon yesterday.  Philip and I were there chatting with him about the one wound that I still have an issue with, next thing I know he is ordering a CT scan at Mission.  Drumroll please: I have an abscess, it needs to be drained and the reason that this last wound won’t heal ‘shows the severity of my disease’. It had done so much damage to the tissue, that is having a hard time healing.  Damaged tissue will not bind to damaged tissue.  This is where the other part will probably come in...reopen the wound, do something (too TMI to explain)...pack it and wait to heal from inside out.  Sounds lovely!  Philip and I are ready to face this.  He is such a good man.  Crohn’s needs more awareness.  Most nurses say, ’gosh you are so young to have been so sick.’ Well, apparently 42 isn’t too young...there are many many much younger people, children who are diagnosed with Crohn’s.  I am going to fight this hard.  I may have to face another procedure or two...whatever, BUT GOD can just speak it healed and if not, He won’t leave my side.  Either way, I win!  No victory is easy and no victory is sweeter than the hardest fought ones.💜 #crohnsdisease #crohnsawareness #jesus #godsgotthis #ostomydiaries #ostomy #nocolonstillrollin #crohnswarrior #god #prayer #victory
💜So, Crohn’s Disease stinks. Just sayin’, but it has messed with the wrong chick. It has been 3.5 months since my surgery, and had to go back to my friend, my colorectal surgeon yesterday. Philip and I were there chatting with him about the one wound that I still have an issue with, next thing I know he is ordering a CT scan at Mission. Drumroll please: I have an abscess, it needs to be drained and the reason that this last wound won’t heal ‘shows the severity of my disease’. It had done so much damage to the tissue, that is having a hard time healing. Damaged tissue will not bind to damaged tissue. This is where the other part will probably come in...reopen the wound, do something (too TMI to explain)...pack it and wait to heal from inside out. Sounds lovely! Philip and I are ready to face this. He is such a good man. Crohn’s needs more awareness. Most nurses say, ’gosh you are so young to have been so sick.’ Well, apparently 42 isn’t too young...there are many many much younger people, children who are diagnosed with Crohn’s. I am going to fight this hard. I may have to face another procedure or two...whatever, BUT GOD can just speak it healed and if not, He won’t leave my side. Either way, I win! No victory is easy and no victory is sweeter than the hardest fought ones.💜 #crohnsdisease  #crohnsawareness  #jesus  #godsgotthis  #ostomydiaries  #ostomy  #nocolonstillrollin  #crohnswarrior  #god  #prayer  #victory 
Part of a song I wrote today. I’m feeling raw, but having a hard time expressing my emotions. It seems like the only way I’m able to is through song. 🎤🎵✨This is my first time using iMovie and I don’t know how to get rid of the slideshow transition effect, so forgive the dorkiness on that. This is also a rough draft first recording. 🤷🏻‍♀️ #sing #singer #songwriter #music #musician #acapella
Part of a song I wrote today. I’m feeling raw, but having a hard time expressing my emotions. It seems like the only way I’m able to is through song. 🎤🎵✨This is my first time using iMovie and I don’t know how to get rid of the slideshow transition effect, so forgive the dorkiness on that. This is also a rough draft first recording. 🤷🏻‍♀️ #sing  #singer  #songwriter  #music  #musician  #acapella 
Calm down, baby. 🤦🏼‍♀️
Calm down, baby. 🤦🏼‍♀️
Thanksgiving Sides!

Our low FODMAP version of this classic holiday side is made with lactose free milk. We also added minced rosemary, which possesses anti-inflammatory properties.
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Cranberries are packed with powerful antioxidants. Our version of cranberry sauce is made without high fructose corn syrup (high in FODMAPS) like most cranberry sauces that you would find at the store.
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#GetEpicured #fodmapfriendly #healthy #fodmap #cleaneating #lowfodmapdiet #chronsdisease #eatclean #healthyeating  #crohns #fodmapdiet  #ibs #healthyfood #lowfodmapfriendly #cleaneats #ibsfriendly  #colitis #celiacdiseasefoundation 
#celiacproblems #coeliacproblems #glutenfreeeats #celiac #colitisawareness #nocolonstillrollin #glutenfree #glutenintolerant #lowfodmap #iamglutenfree #glutenfreelifestyle #sibo
Thanksgiving Sides! Our low FODMAP version of this classic holiday side is made with lactose free milk. We also added minced rosemary, which possesses anti-inflammatory properties. - Cranberries are packed with powerful antioxidants. Our version of cranberry sauce is made without high fructose corn syrup (high in FODMAPS) like most cranberry sauces that you would find at the store. . . . #GetEpicured  #fodmapfriendly  #healthy  #fodmap  #cleaneating  #lowfodmapdiet  #chronsdisease  #eatclean  #healthyeating  #crohns  #fodmapdiet  #ibs  #healthyfood  #lowfodmapfriendly  #cleaneats  #ibsfriendly  #colitis  #celiacdiseasefoundation  #celiacproblems  #coeliacproblems  #glutenfreeeats  #celiac  #colitisawareness  #nocolonstillrollin  #glutenfree  #glutenintolerant  #lowfodmap  #iamglutenfree  #glutenfreelifestyle  #sibo 
Beautiful sunrise this morning. Don’t forget to take a moment every now and then to enjoy the simple pleasures in life. So many of us have been given a new life when we got our stomas. Don’t waste it searching for the bad spend every minute of every day being thankful for the good. #stoma #ulcerativecolitis #stomalife #nocolonstillrollin #baglife
Beautiful sunrise this morning. Don’t forget to take a moment every now and then to enjoy the simple pleasures in life. So many of us have been given a new life when we got our stomas. Don’t waste it searching for the bad spend every minute of every day being thankful for the good. #stoma  #ulcerativecolitis  #stomalife  #nocolonstillrollin  #baglife 
Throwin back to last Thursday when Mike and I got after it! If you couldn’t tell, Mike was not excited about the ass kicking we were making our way to! But business got handled and we came out on top! #workout #outdoors #athlete #athletic #training #explosive #opportunity #fitness #fitfam #baseball #sportsmodel #crohns #colitis #ccfa #ibd #nocolonstillrollin #tattoos #duespaid #trusttheprocess
This is a public THANK YOU!! 🙏 I appreciate ALL of you! Yesterday was hard. It took EVERY ounce of me not to fall down the rabbit hole of pity. I was so humbled by all the messages I got from people thinking of me and cheering me on! I felt so grateful for the support I couldn’t feel sorry for myself so yes a huge thank you! ❤️ It’s not easy to share my journey. I do it because I know IBD is considered an invisible disease and I refuse to be invisible and hope to inspire people to talk about, to not be embarrassed and to believe anything is possible. 
I’ve decided to take a more holistic approach to my situation. I’ve been reading about the benefits of acupuncture for the pelvic floor and I’m hoping that plus more pelvic floor therapy will help. No losing hope here! 🙌🏻 I let myself feel all the feels yesterday. I let out the tears, threw a dance party and kicked a workouts ass. When I went to bed I decided: wake up tomorrow and have a great day, don’t focus on what you don’t have, focus on all you do have! 
Gratitude is how you life an abundant life, I’m so grateful today ❤️ I hope you are too!
This is a public THANK YOU!! 🙏 I appreciate ALL of you! Yesterday was hard. It took EVERY ounce of me not to fall down the rabbit hole of pity. I was so humbled by all the messages I got from people thinking of me and cheering me on! I felt so grateful for the support I couldn’t feel sorry for myself so yes a huge thank you! ❤️ It’s not easy to share my journey. I do it because I know IBD is considered an invisible disease and I refuse to be invisible and hope to inspire people to talk about, to not be embarrassed and to believe anything is possible. I’ve decided to take a more holistic approach to my situation. I’ve been reading about the benefits of acupuncture for the pelvic floor and I’m hoping that plus more pelvic floor therapy will help. No losing hope here! 🙌🏻 I let myself feel all the feels yesterday. I let out the tears, threw a dance party and kicked a workouts ass. When I went to bed I decided: wake up tomorrow and have a great day, don’t focus on what you don’t have, focus on all you do have! Gratitude is how you life an abundant life, I’m so grateful today ❤️ I hope you are too!
NPO life-hack.🙌🏽
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So being NPO (nothing by mouth) honestly sucks! You can’t drink or eat anything. You mouth and throat gets super dry and if you had a NG tube like me, you have to become a mouth breather, because it’s hard to breathe through your nose.
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Anyway I highly suggest your ask for these “Oral Swabette” with a cup of ice water. It honestly helps a lot and keep your mouth from getting super dry.
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I know this post is kinda silly but I thought I would share this hack with you guys because I’m currently NPO right now. Waiting to do my second CT.😩
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#loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings  #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie
NPO life-hack.🙌🏽 • So being NPO (nothing by mouth) honestly sucks! You can’t drink or eat anything. You mouth and throat gets super dry and if you had a NG tube like me, you have to become a mouth breather, because it’s hard to breathe through your nose. • Anyway I highly suggest your ask for these “Oral Swabette” with a cup of ice water. It honestly helps a lot and keep your mouth from getting super dry. • I know this post is kinda silly but I thought I would share this hack with you guys because I’m currently NPO right now. Waiting to do my second CT.😩 ••• #loveyourstoma  #chronicloveclub  #ileostomy  #ileostomyawareness  #ostomy  #ostomates  #ostomate  #ostomybag  #ostomate  #ostomywarrior  #warrior  #stoma  #chronicillness  #chronicpain  #hiddenillness  #invisvibleillness  #girlwithguts  #loveyourself  #bodypositivity  #positivevibes  #countyourblessings  #nocolonstillrollin  #ittakesguts  #toddtheostomy  #chronicallymotivated  #coloplast  #spoonie 
I remember when I didn’t want anyone to know I had a bag. Do you remember that feeling, or did you ever feel that way? Was I embarrassed? 
Not sure, maybe it was just my coping mechanism. I wasn’t ready to throw it all out in the open – I was still dealing with the changes to my body and didn’t want to get into the details with everyone else. 
I reminded my boss that next week it will be 9 years since I had my surgery. He couldn’t believe it had been that long. He said that he remembered how I was before surgery.
He called me ‘fluctuating Frieda’ haha – my weight was up and down, my health was even more inconsistent and unpredictable, I was in and out of work.He asked me about my stoma and said that he couldn’t even tell that I had it. If he had said that to me 9 years ago I would have been stoked that no one could tell I had a stoma. That was the goal, keeping my stoma under wraps, I told people on a ‘need to know’ basis. Because of that I didn’t take any photos from that time. From the lead up, the day of surgery, the days after and the rest of my recovery. I now wish I had photos. Because now I’m ready to share what happened. All the good and bad from the days after surgery. I’m sad that all of the memories I have are the ones in my head. Or the ones that others can recall. My only regret from that time, which was a major turning point in my life, is that I have nothing to show for it. Nothing to show my kids. Sure I can explain it, but we live in a very visual world and photos would help a lot. Plus I’m not that great at drawing.Since then I’ve come a long way. 
I’ve gone from avoiding photos to finding a whole heap of different angles, examples and scenarios of me living life as an ostomate to capture and share.
I remember when I didn’t want anyone to know I had a bag. Do you remember that feeling, or did you ever feel that way? Was I embarrassed? Not sure, maybe it was just my coping mechanism. I wasn’t ready to throw it all out in the open – I was still dealing with the changes to my body and didn’t want to get into the details with everyone else. I reminded my boss that next week it will be 9 years since I had my surgery. He couldn’t believe it had been that long. He said that he remembered how I was before surgery. He called me ‘fluctuating Frieda’ haha – my weight was up and down, my health was even more inconsistent and unpredictable, I was in and out of work.He asked me about my stoma and said that he couldn’t even tell that I had it. If he had said that to me 9 years ago I would have been stoked that no one could tell I had a stoma. That was the goal, keeping my stoma under wraps, I told people on a ‘need to know’ basis. Because of that I didn’t take any photos from that time. From the lead up, the day of surgery, the days after and the rest of my recovery. I now wish I had photos. Because now I’m ready to share what happened. All the good and bad from the days after surgery. I’m sad that all of the memories I have are the ones in my head. Or the ones that others can recall. My only regret from that time, which was a major turning point in my life, is that I have nothing to show for it. Nothing to show my kids. Sure I can explain it, but we live in a very visual world and photos would help a lot. Plus I’m not that great at drawing.Since then I’ve come a long way. I’ve gone from avoiding photos to finding a whole heap of different angles, examples and scenarios of me living life as an ostomate to capture and share.
If you are in need of ostomy supplies you can sign up for a FREE Blessing Bag! If you want to DONATE  financially, or DONATE unopened ostomy supplies, 100% of donations will go to providing Blessing Bags! $12 will provide the postage, ostomy supplies, and letter of encouragement for each Blessing Bag! ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Follow the link in my bio to learn more about Ostomy Diaries Blessing Bags! *Currently shipping to the US. 😊
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#Ostomy #Ileostomy #Colostomy #OstomyBag #Ostomate #OstomyCare #CrohnsDisease #IBD #UlcerativeColitis #PatientAdvocate #NoColonStillRollin #ChronicIllness #Crohns #Stoma #ostomydiaries #ostomylife #OstomyAwareness #OstomySupplies #StomaBag
If you are in need of ostomy supplies you can sign up for a FREE Blessing Bag! If you want to DONATE financially, or DONATE unopened ostomy supplies, 100% of donations will go to providing Blessing Bags! $12 will provide the postage, ostomy supplies, and letter of encouragement for each Blessing Bag! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Follow the link in my bio to learn more about Ostomy Diaries Blessing Bags! *Currently shipping to the US. 😊 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #Ostomy  #Ileostomy  #Colostomy  #OstomyBag  #Ostomate  #OstomyCare  #CrohnsDisease  #IBD  #UlcerativeColitis  #PatientAdvocate  #NoColonStillRollin  #ChronicIllness  #Crohns  #Stoma  #ostomydiaries  #ostomylife  #OstomyAwareness  #OstomySupplies  #StomaBag 
Ass on fire and it's not the diarrhea! 😂haha!😂Full rest days, or even light recovery days are important for all active people, but if you live with a chronic illness, physical handicap or limitation, or any other special condition, I think they're even more important and necessary. After taking last weekend off, eating a ton, and going light into this week, I was feeling extra energized to try some new things and ambitious routines today! It's great to be out of my chronic plateau with an inflamed colon, low blood count and inability to absorb much of what I eat! Keep pushing through, it's almost the weekend! #crohnswarrior #crohnsfighter #crohns #invisibleillnessawareness #ulcerativecolitis #workout #workoutmotivation #ostomy #ostomybag #nocolonstillrollin #fitnessjourney #roadtorecovery #nevergiveup
Ass on fire and it's not the diarrhea! 😂haha!😂Full rest days, or even light recovery days are important for all active people, but if you live with a chronic illness, physical handicap or limitation, or any other special condition, I think they're even more important and necessary. After taking last weekend off, eating a ton, and going light into this week, I was feeling extra energized to try some new things and ambitious routines today! It's great to be out of my chronic plateau with an inflamed colon, low blood count and inability to absorb much of what I eat! Keep pushing through, it's almost the weekend! #crohnswarrior  #crohnsfighter  #crohns  #invisibleillnessawareness  #ulcerativecolitis  #workout  #workoutmotivation  #ostomy  #ostomybag  #nocolonstillrollin  #fitnessjourney  #roadtorecovery  #nevergiveup 
Get up, and show up. ✨
Your body will thank you in return. 💪🏻
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#fitandhealthyvibes 🙌🏻
#goalstrongAF 💪🏻
Quite often when my gut just needs a break, I eat very plain and simple meals. One of my go to meals, is Coconut Rice and Ground Turkey (with some sea salt for flavor). For the past year or so I’ve been weighing my good, especially protein, so as to ensure I’m not eating too much at once (thanks to a recommendation from my bro @smart4fitness ). This meal is 1 cup rice and 8 oz of ground turkey •

This way my GI tract can properly digest what I’m intaking, and I know and can track how much of a particular food group I am eating. Consistency is key with this, and there have been those days where I don’t do it, and 9/10 those days I pay for it in the aftermath 👎🏼 #food #diligence #balance #loveyourbody #treat #it #with #respect #you #only #get #one
Quite often when my gut just needs a break, I eat very plain and simple meals. One of my go to meals, is Coconut Rice and Ground Turkey (with some sea salt for flavor). For the past year or so I’ve been weighing my good, especially protein, so as to ensure I’m not eating too much at once (thanks to a recommendation from my bro @smart4fitness ). This meal is 1 cup rice and 8 oz of ground turkey • This way my GI tract can properly digest what I’m intaking, and I know and can track how much of a particular food group I am eating. Consistency is key with this, and there have been those days where I don’t do it, and 9/10 those days I pay for it in the aftermath 👎🏼 #food  #diligence  #balance  #loveyourbody  #treat  #it  #with  #respect  #you  #only  #get  #one 
I always thought I was too tall to ever enjoy deadlifts, but I guess everything can become a bit more enjoyable with a bit of practice. ☺️ #workingonweaknesses .
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#deadlift #girlswholift #hiphinge #rdl #romaniandeadlift #stifflegdeadlift #barbells #buildabooty #bbg #vans #crossfit #calisthenics #nocolonstillrollin #crohns #ileostomy #weightrestored #weightrestoration #beforeandafter #strongwomen #strongnotskinny #strongisthenewsexy #invisibleillness #autoimmune #colitis #kansascity #kcmo
I always thought I was too tall to ever enjoy deadlifts, but I guess everything can become a bit more enjoyable with a bit of practice. ☺️ #workingonweaknesses  . . . . . . #deadlift  #girlswholift  #hiphinge  #rdl  #romaniandeadlift  #stifflegdeadlift  #barbells  #buildabooty  #bbg  #vans  #crossfit  #calisthenics  #nocolonstillrollin  #crohns  #ileostomy  #weightrestored  #weightrestoration  #beforeandafter  #strongwomen  #strongnotskinny  #strongisthenewsexy  #invisibleillness  #autoimmune  #colitis  #kansascity  #kcmo 
It’s getting cold outside! Our super-healthy, warm autumn salad is comfort food you can feel good about.
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It’s packed with vitamins, plant-based proteins and fiber. Fresh & seasonal winter veggies never tasted (or looked) so good!
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#GetEpicured #fodmapfriendly #healthy #fodmap #cleaneating #lowfodmapdiet #chronsdisease #eatclean #healthyeating  #crohns #fodmapdiet  #ibs #healthyfood #lowfodmapfriendly #cleaneats #ibsfriendly  #colitis #celiacdiseasefoundation 
#celiacproblems #coeliacproblems #glutenfreeeats #celiac #colitisawareness #nocolonstillrollin #glutenfree #glutenintolerant #lowfodmap #iamglutenfree #glutenfreelifestyle #sibo
It’s getting cold outside! Our super-healthy, warm autumn salad is comfort food you can feel good about. - It’s packed with vitamins, plant-based proteins and fiber. Fresh & seasonal winter veggies never tasted (or looked) so good! . . . #GetEpicured  #fodmapfriendly  #healthy  #fodmap  #cleaneating  #lowfodmapdiet  #chronsdisease  #eatclean  #healthyeating  #crohns  #fodmapdiet  #ibs  #healthyfood  #lowfodmapfriendly  #cleaneats  #ibsfriendly  #colitis  #celiacdiseasefoundation  #celiacproblems  #coeliacproblems  #glutenfreeeats  #celiac  #colitisawareness  #nocolonstillrollin  #glutenfree  #glutenintolerant  #lowfodmap  #iamglutenfree  #glutenfreelifestyle  #sibo 
Picking up the pace!!! 5k in 26:30!!! Slowly but surely!!! I Can’t say enough good things about my #stealthbelt pro it has been a game changer! Between the stealth belt and my high waisted #lululemon capri’s my #ostomy didn’t move! #running #halfmarathontraining #runningwithanostomy #ostomybag #nocolonstillrollin #ulcerativecolitisfighter #ulcerativecolitis #invisibleillness #ileostomy #autoimmunedisease #phil413 #inmyweaknessheisstrong #hisgraceissufficient
Picking up the pace!!! 5k in 26:30!!! Slowly but surely!!! I Can’t say enough good things about my #stealthbelt  pro it has been a game changer! Between the stealth belt and my high waisted #lululemon  capri’s my #ostomy  didn’t move! #running  #halfmarathontraining  #runningwithanostomy  #ostomybag  #nocolonstillrollin  #ulcerativecolitisfighter  #ulcerativecolitis  #invisibleillness  #ileostomy  #autoimmunedisease  #phil413  #inmyweaknessheisstrong  #hisgraceissufficient 
Tis the season to rock out with your ostomy bag out! 🎄 Grab your festive holiday print ostomy cover today! •
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Also available in packs of 3 for Ostomy Cover Bags and G-Tube/Cath Pads!
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Leave a “❄️“ if you’re excited for winter!
Tis the season to rock out with your ostomy bag out! 🎄 Grab your festive holiday print ostomy cover today! • • Also available in packs of 3 for Ostomy Cover Bags and G-Tube/Cath Pads! • Leave a “❄️“ if you’re excited for winter!
I've been having a ton of issues, with my stoma, lately. It may be hard to see in the pictures, but there is this weird growth on it. I noticed it last night when I changed my bag. Anyone else get anything like this? It would pus and bleed when I would touch it. Ive also noticed small ulcers forming on my stoma 😡
#Crohns
#Crohnsdisease
#Ibd
#Uc
#Ulcerativecolitis
#Colitis
#Pain
#Ibdninja
#Nocolonstillrollin
#Hospital
#Hospitallife
Ostomy bag covers £5 each
All fully lined
100% cotton
Any custom orders or requests, send me a message 
Free UK shipping 
Worldwide shipping £4
If your interested, you can buy them directly from me here just send me a message 😊
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#chronesdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #chrones #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
Ostomy bag covers £5 each All fully lined 100% cotton Any custom orders or requests, send me a message Free UK shipping Worldwide shipping £4 If your interested, you can buy them directly from me here just send me a message 😊 ~ ~ ~ ~ ~ #chronesdisease  #ostomate  #ostomy  #ostomysupplies  #colostomybag  #ostomybag  #ostomybagswag  #ostomybagcover  #ostomycover  #stomacover  #stoma  #nocolonstillrollin  #girlswithguts  #chrones  #stomabagcovers  #ostomates  #spoonie  #myostomystory  #ileostomywarrior  #ileostomybag  #stomalife  #ostomylife  #ileostomylife  #stomafashion  #ostomyfashion  #ileostomyfashion  #stomabag  #colostomyfashion  #getyourbagout  #baglady 
💫ABILITEE AMBASSADOR 💫
Meet Charlotte! This beautiful ostomate is such an inspiration for IBD advocacy and self love. 💕Through her endless support for others and bubbly personality, not only does she brighten up our Ambassador program, but spreads happiness to an international audience. 🌎 •
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[ABILITEE AMBASSADORS] is a social advocacy engagement program for influencers to make an impact in the medical community by spreading our missions, promoting cyber campaigns, being featured in our social media channels, and so much more! 💻💕 Apply today to take part in the modern revolutionary movement of fashionable inclusive adaptive clothing and medical accessories for all!
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[Image Description: A young blonde haired women named Charlotte smiles beautifully into the camera. She is wearing a bright orange top, black pants, and a black cardigan with her ostomy bag exposed.]
💫ABILITEE AMBASSADOR 💫 Meet Charlotte! This beautiful ostomate is such an inspiration for IBD advocacy and self love. 💕Through her endless support for others and bubbly personality, not only does she brighten up our Ambassador program, but spreads happiness to an international audience. 🌎 • • • [ABILITEE AMBASSADORS] is a social advocacy engagement program for influencers to make an impact in the medical community by spreading our missions, promoting cyber campaigns, being featured in our social media channels, and so much more! 💻💕 Apply today to take part in the modern revolutionary movement of fashionable inclusive adaptive clothing and medical accessories for all! • • [Image Description: A young blonde haired women named Charlotte smiles beautifully into the camera. She is wearing a bright orange top, black pants, and a black cardigan with her ostomy bag exposed.]
Guys I got this amazing  gift yesterday. A very generous and kind person donated me this stealth belt 🥰

After a  rough day yesterday my support group meeting really helped me feel better. I am so lucky to have such a welcoming and accepting community! So happy!!!! #stomalove #bagout #ostomy #stoma #ostomybag #ostomyawareness #ostomyfashion #ostomylife #bagbabes #bagcovers #ostomate #ulcerativecolitis #ostomylife  #spoonie #ostomate #pigletchronicles #nocolonstillrollin
Guys I got this amazing gift yesterday. A very generous and kind person donated me this stealth belt 🥰 After a rough day yesterday my support group meeting really helped me feel better. I am so lucky to have such a welcoming and accepting community! So happy!!!! #stomalove  #bagout  #ostomy  #stoma  #ostomybag  #ostomyawareness  #ostomyfashion  #ostomylife  #bagbabes  #bagcovers  #ostomate  #ulcerativecolitis  #ostomylife  #spoonie  #ostomate  #pigletchronicles  #nocolonstillrollin 
(Sequence 3/3)This week we were in #Truro at @royal_cornwall_hospitals (Treliske) where we spoke to a lovely local stoma nurse called Deb. So much more to come! 
#royalcornwallhospital #Cornwall #Truro #producer
#producing #stoma #stomauk #colostomy
#colostomybag
#colostomyuk #colostomylife #ileostomylife #ileostomy #ileostomybag #ileostomylove #ostomy #ostomyawareness #ostomate #ostomywarrior #bagforlife #crohns #crohnsdisease #ibd #nocolonstillrollin #documentary #doc #production #director #wearestory #storyschoolfalmouth 📷📷 @harv_jm
(Sequence 3/3)This week we were in #Truro  at @royal_cornwall_hospitals (Treliske) where we spoke to a lovely local stoma nurse called Deb. So much more to come! #royalcornwallhospital  #Cornwall  #Truro  #producer  #producing  #stoma  #stomauk  #colostomy  #colostomybag  #colostomyuk  #colostomylife  #ileostomylife  #ileostomy  #ileostomybag  #ileostomylove  #ostomy  #ostomyawareness  #ostomate  #ostomywarrior  #bagforlife  #crohns  #crohnsdisease  #ibd  #nocolonstillrollin  #documentary  #doc  #production  #director  #wearestory  #storyschoolfalmouth  📷📷 @harv_jm
(Sequence 2/3)This week we were in #Truro at @royal_cornwall_hospitals (Treliske) where we spoke to a lovely local stoma nurse called Deb. So much more to come! 
#royalcornwallhospital #Cornwall #Truro #producer
#producing #stoma #stomauk #colostomy
#colostomybag
#colostomyuk #colostomylife #ileostomylife #ileostomy #ileostomybag #ileostomylove #ostomy #ostomyawareness #ostomate #ostomywarrior #bagforlife #crohns #crohnsdisease #ibd #nocolonstillrollin #documentary #doc #production #director #wearestory #storyschoolfalmouth 📷📷 @harv_jm
(Sequence 2/3)This week we were in #Truro  at @royal_cornwall_hospitals (Treliske) where we spoke to a lovely local stoma nurse called Deb. So much more to come! #royalcornwallhospital  #Cornwall  #Truro  #producer  #producing  #stoma  #stomauk  #colostomy  #colostomybag  #colostomyuk  #colostomylife  #ileostomylife  #ileostomy  #ileostomybag  #ileostomylove  #ostomy  #ostomyawareness  #ostomate  #ostomywarrior  #bagforlife  #crohns  #crohnsdisease  #ibd  #nocolonstillrollin  #documentary  #doc  #production  #director  #wearestory  #storyschoolfalmouth  📷📷 @harv_jm
(Sequence 1/3)This week we were in #Truro at @royal_cornwall_hospitals (Treliske) where we spoke to a lovely local stoma nurse called Deb. So much more to come! 
#royalcornwallhospital #Cornwall #Truro #producer
#producing #stoma #stomauk #colostomy
#colostomybag
#colostomyuk #colostomylife #ileostomylife #ileostomy #ileostomybag #ileostomylove #ostomy #ostomyawareness #ostomate #ostomywarrior #bagforlife #crohns #crohnsdisease #ibd #nocolonstillrollin #documentary #doc #production #director #wearestory #storyschoolfalmouth 📷📷 @harv_jm
(Sequence 1/3)This week we were in #Truro  at @royal_cornwall_hospitals (Treliske) where we spoke to a lovely local stoma nurse called Deb. So much more to come! #royalcornwallhospital  #Cornwall  #Truro  #producer  #producing  #stoma  #stomauk  #colostomy  #colostomybag  #colostomyuk  #colostomylife  #ileostomylife  #ileostomy  #ileostomybag  #ileostomylove  #ostomy  #ostomyawareness  #ostomate  #ostomywarrior  #bagforlife  #crohns  #crohnsdisease  #ibd  #nocolonstillrollin  #documentary  #doc  #production  #director  #wearestory  #storyschoolfalmouth  📷📷 @harv_jm
Anyone who knows me, also knows I quietly manage to avoid being photographed 😂. I tend to be behind the camera instead. Here are some of my favorites from training Capoeira over the years. The first is me at one of my happiest moments at an event, sweaty and ready for more in the roda 😍❤️💪🏼🤸🏻‍♀️. For those who don’t know about Capoeira, it’s a Brazilian Martial Art with African roots. The roda, or wheel, is where we play. Capoeiristas gather in a circle, with the instruments at the top creating the rhythm and tempo of the game. Two people play in the circle at a time. The jogo or game is like a conversation. It’s a very expressive art. Contemporary Capoeira is often a friendly, but challenging game. While we may kick close to each other or take each other down, we have spent a lot of time developing these skills and don’t play to cause harm. But it is still a serious Martial Art and originally, the sport was used for self defense, to maintain culture and community, and to fight for freedom by slaves in Brazil. After slavery and before it became an official sport of Brazil, there was a period where it was outlawed, and Capoeiristas (some from gangs) continued to practice and fight in the streets and in secret. They rebelled and refused to give it up. Appelidos, or nicknames were given to Capoeiristas to disguise their identities. My appelido is Amazonas. #capoeira #martialarts #training #art #selfdefense #brazil #sports #athlete #motivation #memories #healthylifestyle #workout #ostomate #invisibleillness #ileostomy #nevergiveup #goals #dreams  #freedom #warrior #nocolonstillrollin #diversity #mma
Anyone who knows me, also knows I quietly manage to avoid being photographed 😂. I tend to be behind the camera instead. Here are some of my favorites from training Capoeira over the years. The first is me at one of my happiest moments at an event, sweaty and ready for more in the roda 😍❤️💪🏼🤸🏻‍♀️. For those who don’t know about Capoeira, it’s a Brazilian Martial Art with African roots. The roda, or wheel, is where we play. Capoeiristas gather in a circle, with the instruments at the top creating the rhythm and tempo of the game. Two people play in the circle at a time. The jogo or game is like a conversation. It’s a very expressive art. Contemporary Capoeira is often a friendly, but challenging game. While we may kick close to each other or take each other down, we have spent a lot of time developing these skills and don’t play to cause harm. But it is still a serious Martial Art and originally, the sport was used for self defense, to maintain culture and community, and to fight for freedom by slaves in Brazil. After slavery and before it became an official sport of Brazil, there was a period where it was outlawed, and Capoeiristas (some from gangs) continued to practice and fight in the streets and in secret. They rebelled and refused to give it up. Appelidos, or nicknames were given to Capoeiristas to disguise their identities. My appelido is Amazonas. #capoeira  #martialarts  #training  #art  #selfdefense  #brazil  #sports  #athlete  #motivation  #memories  #healthylifestyle  #workout  #ostomate  #invisibleillness  #ileostomy  #nevergiveup  #goals  #dreams  #freedom  #warrior  #nocolonstillrollin  #diversity  #mma 
Dungarees are this #ostomate best friend today. Nearly full #ostomybag and I’m having a #bagwhatbag moment. #ootd #thursdayoutfit 
Dungarees are @primark
Top is @primark again
@converse are on my feet. 
#dungarees #ostomyfashion #ileostomyfashion #nocolonstillrollin
Look at those amazing ostomates who are living their best lives! Who would you add to the list? 📍
@kristenschronicles
@ostomydiaries
@londonharrah
@zoeywrightfitness
@sarahgregory6
@rainavsfood
@dietbyengel
@alex_ulcerativecolitis_fighter
@gregormartin44
@ana_and_myostomy 
#ostomy #stomalife #loveyourself #ostomybag #stoma #strong #IBD #nocolonstillrollin #whatbag #crohnlifestyle #ostomate #ibdpower #positivemind #lifegetsbetter
Stupid NG tube..😩
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So I was really hoping i wouldn’t need this damn NG tube but since nothing is really helping my surgical team decided it was time to try the NG tube, and see if he helps this bowel obstruction.
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Also I’ll update you guys. So I still have a ton of fluid in my stomach. The drains aren’t really helping but they’re still in. Right now i have this wonderful (not) NG tube in because I’ve been really nauseous and they’re hoping it will help with my bowel obstruction. Oh and we’re also waiting to do a CT, to see where do we go from here. Which could possibly be surgery.☹️
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And that’s about it guys. I’m still really nauseous and having a lot of pain. But thankfully there getting that under control.  Oh and i just want to say thank you so much to everyone who either sent me a DM or commented! It truly means the world to me and why i love this community so much!! Because we can be there for one another. So thank you so much! I love you guys.❤️
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#loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings  #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie
Stupid NG tube..😩 • So I was really hoping i wouldn’t need this damn NG tube but since nothing is really helping my surgical team decided it was time to try the NG tube, and see if he helps this bowel obstruction. • Also I’ll update you guys. So I still have a ton of fluid in my stomach. The drains aren’t really helping but they’re still in. Right now i have this wonderful (not) NG tube in because I’ve been really nauseous and they’re hoping it will help with my bowel obstruction. Oh and we’re also waiting to do a CT, to see where do we go from here. Which could possibly be surgery.☹️ • And that’s about it guys. I’m still really nauseous and having a lot of pain. But thankfully there getting that under control. Oh and i just want to say thank you so much to everyone who either sent me a DM or commented! It truly means the world to me and why i love this community so much!! Because we can be there for one another. So thank you so much! I love you guys.❤️ ••• #loveyourstoma  #chronicloveclub  #ileostomy  #ileostomyawareness  #ostomy  #ostomates  #ostomate  #ostomybag  #ostomate  #ostomywarrior  #warrior  #stoma  #chronicillness  #chronicpain  #hiddenillness  #invisvibleillness  #girlwithguts  #loveyourself  #bodypositivity  #positivevibes  #countyourblessings  #nocolonstillrollin  #ittakesguts  #toddtheostomy  #chronicallymotivated  #coloplast  #spoonie 
Would highly recommend this tea. I completely lost my voice and it has been a good one to drink this week and has really seemed to help! However, sometimes herbal teas make my stomach hurt! Anyone else have a similar experience? #jpouch #jpouchlife #ulcerativecolitis #nocolonstillrollin #tea
Would highly recommend this tea. I completely lost my voice and it has been a good one to drink this week and has really seemed to help! However, sometimes herbal teas make my stomach hurt! Anyone else have a similar experience? #jpouch  #jpouchlife  #ulcerativecolitis  #nocolonstillrollin  #tea 
Got out of the house and ran errands for 5 hours today! Obviously including a trip to my lovely lash lady, because well, lashes are life💁‍♀️ Edward didn’t entirely approve of my priorities on day 9 post major abdominal surgery🙄 but he lovingly (sort of😂) chauffeured my purely aesthetic tush around town to do all the things😘😅 #nocolonstillrollin #nojpouch #lashesarelife #toleranthusband
Got out of the house and ran errands for 5 hours today! Obviously including a trip to my lovely lash lady, because well, lashes are life💁‍♀️ Edward didn’t entirely approve of my priorities on day 9 post major abdominal surgery🙄 but he lovingly (sort of😂) chauffeured my purely aesthetic tush around town to do all the things😘😅 #nocolonstillrollin  #nojpouch  #lashesarelife  #toleranthusband 
Watching "Hoodwinked". I live a sad life. 😂
Watching "Hoodwinked". I live a sad life. 😂
Under this harness are many scars. Scars from 6 abdominal surgeries. Almost 2 years with an illeostomy. A wound that still hasn’t fully closed after almost 5 months. My days are still often spent in Dr’s offices and sometimes crying from pain or frustration. This isn’t dramatic, it’s just the facts. And it takes a lot to feel even remotely ok enough to make this happen. But we are strong and we are capable. Most people here don’t have any clue what’s under this harness and certainty no one in the audience does. Sometimes we show our scars and sometimes we hide them, either way they are always there. May they fuel us, may they open our hearts to the grace and beauty that is always around, may they join us. Together we handle it all.  #chronicillnesswarrior #jpouchlife #ulcerativecolitis #nocolonstillrollin #girlswithguts
Under this harness are many scars. Scars from 6 abdominal surgeries. Almost 2 years with an illeostomy. A wound that still hasn’t fully closed after almost 5 months. My days are still often spent in Dr’s offices and sometimes crying from pain or frustration. This isn’t dramatic, it’s just the facts. And it takes a lot to feel even remotely ok enough to make this happen. But we are strong and we are capable. Most people here don’t have any clue what’s under this harness and certainty no one in the audience does. Sometimes we show our scars and sometimes we hide them, either way they are always there. May they fuel us, may they open our hearts to the grace and beauty that is always around, may they join us. Together we handle it all. #chronicillnesswarrior  #jpouchlife  #ulcerativecolitis  #nocolonstillrollin  #girlswithguts 
This cold weather has me thinking all about comfort. What brings you comfort? •
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I believe that comfort is *huge* for those of us living with a chronic illness. Whether we find  comfort in pajamas and rest, going for a walk, our family and friends, our babies (fur and not), talking with other patients, finding a hobby that we can do when we are not feeling well, or ALL of the above, it's important.  I think if you asked ten patients what brings them comfort, you would get ten various answers, but the common thread would be "something that helps ease the mental and physical pain of illness". Ease and comfort. Mental and physical. If your mind and heart are at ease, then your body is able to find a little bit of comfort. True or false? I don't know that there is a right or wrong answer. I think it depends on the severity of your pain, the severity of your illness, how willing you are to be vulnerable and allow others to comfort you, your mental state, etc. Comfort means different things to different people and the only thing I know for a fact is that it is important. The other thing I know for a fact is that this baby hugging my neck in the photo brings me a ton of comfort...daily. ❤

#comfort #whatbagwednesday #wellnesswednesday #crohnsawareness #ibdawareness #shortbowelsyndromeawareness awareness #ostomyawareness #chronicillnessawareness #invisibleillnessawareness #fightlikeawarrior #withloveandgracie
This cold weather has me thinking all about comfort. What brings you comfort? • • • I believe that comfort is *huge* for those of us living with a chronic illness. Whether we find comfort in pajamas and rest, going for a walk, our family and friends, our babies (fur and not), talking with other patients, finding a hobby that we can do when we are not feeling well, or ALL of the above, it's important. I think if you asked ten patients what brings them comfort, you would get ten various answers, but the common thread would be "something that helps ease the mental and physical pain of illness". Ease and comfort. Mental and physical. If your mind and heart are at ease, then your body is able to find a little bit of comfort. True or false? I don't know that there is a right or wrong answer. I think it depends on the severity of your pain, the severity of your illness, how willing you are to be vulnerable and allow others to comfort you, your mental state, etc. Comfort means different things to different people and the only thing I know for a fact is that it is important. The other thing I know for a fact is that this baby hugging my neck in the photo brings me a ton of comfort...daily. ❤ #comfort  #whatbagwednesday  #wellnesswednesday  #crohnsawareness  #ibdawareness  #shortbowelsyndromeawareness  awareness #ostomyawareness  #chronicillnessawareness  #invisibleillnessawareness  #fightlikeawarrior  #withloveandgracie 
The most ‘kitted out’ and multi-purpose toilet I’ve ever seen! Tokyo Haneda Airport - thank you for looking out for ostomates! 🙏👏#abogtrotterstoiletjourney #toilet #loo #tokyo #asia #airport #airporttoilet #toiletsoftheworld #ostomates #toiletsofinstagram #hanedaairport #crohnsandcolitis #crohnsandcolitisuk #jpouch #instacrohns #nocolonstillrollin #multipurpose