Time for a moment of real talk ⏰ 💬
Take a good look at these photos for a minute, swipe through each one and tell me what you see?
Do you see anything wrong? (Seriously this isn’t a trick question) No?
Swipe a second time look closely 👀
I’m sure you see a girl who loves a good time with her girls, going on fancy trips with her friends, working hard, looks pretty (well some of the time 😉) and generally enjoying life.. So what’s the problem? I’m sure you’re scratching your head at this point and shrugging 🤷🏼♀️ 🤷🏻♂️
Truth is nothing is wrong you look at these photos from the past couple of days, weeks, months and even my recent posts and there is nothing wrong.... On the outside.
The things you don’t see are the pains in the legs or behind the eyes, the moment where your leg just dies and the feeling doesn’t come back and you can’t even feel the heat of your hot bath or the touch of your sheets on your skin. The sleepless nights of nerve pain or worry that you may not return to how you were.
The times where you trip because your feet aren’t moving with the rest of you or simply the times you sit silently alone wondering if the feeling will come back, wondering why did this happen to me and wondering what others will think when they see you out and stumbling about.. That is what you DON’T see in photos OR if you saw me in real life!
I am thankful that I have a great MS team I can contact anytime, a great work family and a good support network made up of family and friends that can help me during these times.
However not only does my support network help its the fire and fight I have within to not let this demon drag me down to nothing!
Day by day I am getting better, pushing through and rebuilding myself and I am doing myself damn proud, even when my acute relapse was at its worst I still pushed through 💪🏼 My worst relapse in 4 years has happened and my body is slowly but SURELY returning to normal!
If there is one thing I promise in 2019 it’s to start showing everyone the raw truths, to raise awareness and raise money so that more can go into researching this horrible disease and change the life of people with MS for the better!
👋🏻 Meet the THTG crew👋🏻 Laura Lyons is a Founding Director of THTG 👩🏻💻 and will be based at Glenfield on her return from Maternity leave. She enjoys working with patients from all walks of life and is an active member of the HTNZ executive committee. Laura is Mum to 3 beautiful girls 👧🏻👧🏻👶🏻 and enjoys keeping fit 🏋🏻♀️ and family time. You’ll be in good hands with this one 👍🏻
So today I was meant to run my first 5km race. I’ve been physically training since May, but I’ve actually been mentally training my whole life.
In my years of being unwell I’ve always looked at runners with such awe; the athleticism, the strength, the freedom, all so appealing to me. With chronic pain it’s only ever been a pipe dream and yet in May, with my amazing partner, we started training, just one step at a time; walking turning to jogging, jogging turning to running. It’s been incredible.
And yet unfortunately I’ve had an awful virus that’s knocked me for six and meant a flare up in my chronic pain, so I wasn’t able to do the race today 😥 the disappointment is palpable. I feel upset, let down, and a bit of self loathing in there too. And yet I need to hold on to the fact that:
1) Timing is everything
2)My health right now is more important
3)Just because I can’t today, it doesn’t mean I won’t another day (this is so important to me. With chronic pain I can often feel like if I don’t do it now then I never will again, and that’s not the truth, there is always another day)
So just because today didn’t work out how I wanted it to it doesn’t mean another day won’t. I’ll be back there, maybe back at walking, to jogging and then running, but I will get back to it, when the timing is right. Every step counts.
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The past two weeks have been rough for me.
Had a pretty bad flare up.
Had some numbing in my foot that did not feel good.
So I had to boycott the gym for a bit.
And if you know me you know that was hard for me.
Well I am finally feeling better.
So tomorrow I start going back.
Just because you have a slipup or if you get hurt and have to pause for a bit.
Doesn't mean you fully stop.
Just keep going.
Everyday is a new day.
Let's do this babes 😘
Sciatic Nerve Glides- Two Variations ✨
Nerve pain is typically described as shooting, electric, numbing, or tingling. The diagnosis #sciatica is given when the distribution of nerve pain runs in any distribution along the nerve from the low back, through the glutes, down the back of the leg, and then into the foot. .
⚡️Shown are two variations of nerve glides to begin to mobilize and gently stretch the sciatic nerve.
1️⃣With the foot and hip flexed up, slowly extend the knee straight (similar to a hamstring stretch) and then bend the knee returning to the starting position. The key is to keep your toes up (dorsiflexion). 2️⃣ Assume a hamstring stretch with the toes pointed. Gently oscillate the foot from a toes pointed position (plantarflexion) to the foot flexed up (dorsiflexion). .
Maintaining a strong core and flexibility through the LE are important and this is a great stretch to add into your routine even if you aren’t having any nerve pain. .
Thank God for my son @seth.robinsonnn for being at my side! This has been a rough year for him with me in and out of the hospital will all these surgeries. Love ya buddy! Fighting the Fight! It’s been a rough year hopefully one more surgery then 2019’will be spent rehabilitating and getting my life back to somewhat normal again. My Pro Powerlifting and Bodybuilding Days are now over per Dr.s orders so the Masters Division won’t make it in the final chapters of my career and life story. #hospital#surgery#spine#relief#diagnose#cervicalspine#fashion#nervepain#headtrauma#concussion#newchapter#defeated#masters
Old photo 😀
Something that really bugged me: the nurses kept questioning my health issues. One nurse said I should eat bananas and when I said I can't because of the histamine intolerance, she said that she has to google it. She questioned this several times. One time I shared some pizza with someone and she scolded me and said I shouldn't eat pizza and that it's not that difficult to stay on a low histamine diet. I didn't receive low histamine food for several weeks(hospital), so eating a slice of pizza is bad?! I rarely received dinner and sometimes I only had 3 slices of toast, so I'd rather eat pizza instead of being hungry all night 😑
Oh and don't forget the instance when I had an allergic reaction and they send me to a psychologist 🙄 I even had facial flushing and the doctor said I can't use the cream on my face.
And the nurses kept saying that I only need to accept my situation. So thanks to the food my histamine intolerance caused problems, which triggered the trigeminal neuralgia. But facial pain and especially TN aren't that bad to quote one of the nurses. Ignorance is a bliss?! Why on earth are people like this?
Did you know⁉️
Adhesion between the nerve roots and the scalene muscles can cause numbness, tingling, and burning down the arm and into the hand.
The good news⁉️
With a thorough exam, proper diagnosis, and accurate treatment, adhesion and symptoms can be greatly reduced with noninvasive treatment!
The Short Version: I DONT HAVE BRAIN TUMORS OR LESIONS!!! 🙌🙌🙌 Dr.Lisa said my MRI showed no masses or aneurysms. But it did show a small cyst on my pituitary gland. The Endocrinologist said I will need another MRI in a year to make sure the cyst hasn’t grown. They don’t believe my cyst is why I’m passing out but they do want to monitor it. My Neurologist and Endocrinologist are having me do more bloodwork to check on everything. My Rheumatologist has ruled our Lupus. My Cardiologist has scheduled an Echocardiogram for Tuesday. My Nephrologist has requested some blood work as well as a CT to check the arteries going to my kidneys. 🙏🏼🙌💙 #chronicillness#chronicpain#autoimmunedisease#potssyndrome#trigeminalneuralgia
As many of you know, I have Trigeminal Neuralgia. (Nerve pain in the face). I’ve been having a really bad flare the past 2 days. I haven’t been able to sleep in over 48 hours because of the pain and am in desperate need of any tips or tricks to help with NERVE PAIN as I can’t call my neurologist until Monday morning. #trigeminalneuralgia#nervepain#suicidedisease
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Finally made it home. The 3 hour drive is always quite painful but I did get a shot of morphine before I left. That seemed to help a lot. Mostly tired now and trying to wrap my head around the crazy last couple days. I’m super thankful for my family being able to step up very last minute and take care of JJ for us! I guess there was a weird reason that I actually had all my Christmas shopping done early. I’m normally the one to procrastinate when it comes to that. 🙈 Time for some R&R and Netflix binge.
I no longer have to worry about this for I’ve made the choice to cut my parents off since they no longer care. In our lives every once of energy must be used wisely. Energy can not be wasted on those who do not truly care about your wellbeing. For years I’ve gone back and forth with my parents speaking. It always been over the exact same things their inability to look at their kids illnesses not just their own. I’ve tried I’ve bent over backwards for them, I’ve set feelings aside and I’ve been there for them for everything for 42 years. It’s just come to the point now that they are beyond toxic to my life and it’s making my health worse. These so called parents have left me to lay in a hospital with out visiting, never lend a true hand when it’s needed, put others before their own kids and just always knock down your illnesses pain and suffering to talk about their own or someone’s else’s. For that reason and others I’ve had to make that painful choice to cut them off in hopes that less stress equals greater happiness for me and my health. Sucks but there comes a point you have to draw a line in the sand and I’m there.....
I am blessed to have a wonderfully supportive wife, her parents who I consider mom and dad, her brother who is my only “true” brother in my life (I have step siblings but we don’t associate) & his daughter who are my real family. They have our backs if we need it and are truly compassionate about ones medical issues. They’ve been there for us for anything thru all this & continue to be. Add to them a few close friends we have who would be here if we need and I think I’ll be alright getting by.
Have any of you had to cut off family over toxic family relationships that are effecting your health? If so how’d it work out for you? The tough part for me is my parents live two doors away so we see each other almost daily in passing and more so I’m the warmer seasons. They moved here 8 years ago while my wife & I have been in our own home here for 15 years. Hopefully they’ll sell their house and move as they keep threatening us with, lord that would make this all so much easier. .
Just needed to vent.
TINGLING IN THE HAND AND FINGERS
Do you every get numbness, tingling or the feeling of altered sensation in your arm, hand or fingers? There can be some medically serious causes of this, but some times it is more simple.
Carpal tunnel gets a lot of popularity in the numbness and tingling world, but with the weekend-warrior office-jockey types that I see this is actually rarely the case.
Different versions of thoracic outlet syndrome are much more common in my practice. This is compression of one or more of the nerves that run down your arm and can happen at a few different places. Usually, it’s related to your shoulder blade resting position, or lack of stability with movements.
As a result, other muscles step in to help you move but can cause unwanted compression, leading to this tingling all the way down your arm.
Lots to do in this scenario, but my first go to is always a nerve mobilization to help decrease sensitivity and symptoms.
Here I’m taking your through a median nerve glide. You should go only until you feel tension, then reverse directions. Doing this for a minute or two can really help.
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