CIAAG welcome's "Confessions of a Professional Patient" to our rapidly growing Coalitions.
We stand together for compassionate, patient-centered care which promotes quality of life for all.
• May 2018 vs January 2018 • I was at my skinniest and lowest point in my life after being diagnosed. I weighed just below 100lbs and was pretty much all bone. I was stuck in a little depression bubble and was so angry with myself and the world and couldn’t wrap my head around the fact that I have a chronic disease. Now I’m kinda glad this happen to me. It’s the craziest thing, something horrible happen but it changed my life for the better. MS gave me motivation and a purpose to keep going. I’m stuck in my bed right now because chemo and I just wish I was in the gym or jumping out of a plane again! Life is way too short to just be existing, you gotta LIVE and make your life worth it 🤷🏼♀️ I feel a change coming and I’m not sure what it is but I’m ready •
I have spent the last 13 years learning how to accept myself and not be afraid of #multiplesclerosis . I even thought I was an expert at #grief because of all the changes my body has thrown at me. I have lost so many things. And thank goodness for that. Because I have gained so many more. I have pain. I have mobility issues. But I have self awareness. And gratitude. And appreciation. And I can see. I can see so much that I never allowed myself to see. I’m forced to be still a lot. But I kinda love my new pace. I’m #slowaf but still going places. Even if all this means. Is going to bed. My worth is not measured by my productivity. My twenty something self never imagined a life past 30 with ms (medical model family indoctrination, anyone?) Well here I am 😍 #sicknotweak#MIghtyStrong
Your soul and intuition are intimately intertwined. 💞
Listen to your intuition and you will feed your soul.
What's a decision you have made recently that fed your soul?
Or what's an important decision that you need to make and what is your intuition telling you?
🦋 Subscribe to learn how to turn Chronic Symptoms or #ChronicIllness into #ChronicWellness 💗
Real talk: I am not at all where I wanted to be at this point in my life. I have met very few of the typical "adulting" milestones. Some of that has to do with the path I've chosen to walk. But even among my fellow travelers on that path, my illness has set me back. 😰
Ooohh... did you catch that language? What does the phrase "setback" evoke in you? Shame? Failure? Regret? Even when we try to tone it down by adding the word "minor" in front of it, it's loaded with peace-killing negativity. How can I rephrase that in a way that doesn't cast any kind of moral implication on my situation? 🤨
Being sick is not a crime. Moving through life a bit slower and more carefully does not diminish your worth as a human. Getting less done in a day does not make you lazy or useless. 🚫
I like the way @thechroniccommunity phrases it here: Chronic illness has *put me in a different place.* You can't get much more neutral than that! It's not a bad place. It's not a wrong place. It's not a backwards place. It's just a different place. And you can still pursue joy and peace and passion and make an impact from that place. In fact, what a uniquely beautiful perspective you bring to the table as a result of being in that place! ✨
Words matter. Choose ones that are accurate and that don't set you up to feel defeated before you start. What beautiful, unique thing are you bringing to the table from your place? If you don't know how to answer that question, follow the link in my bio and sign up for a free strategy session. Let's get this figured out for you! 🔥
This is me pumping, after getting my pupils dilated. #Momlife 💯
My midwife told me to make sure my meals were high in protein and good fat if I wanted to successfully #breastfeed and luckily that’s exactly how I’ve been eating for the last year and a half while on a #paleodiet
Little man ended up with a lip and tongue tie that made nursing incredibly difficult, even with a surplus in milk. He hadn’t been gaining any weight and after two weeks we knew something was wrong. Fortunately, my midwife came to the rescue and checked under his upper lip. There it was, the reason he wasn’t gaining weight and the reason I seemed to be feeding him 24/7 nonstop with super sore nips. She referred us to a pediatric dentist and last week he had both his tongue and lip untied. It’s not an overnight fix, though, and since then I’ve decided to supplement on top of breastfeeding and he’s gained more than enough weight in the last week, so now I’m weaning him off the supplementary formula and working towards exclusively nursing. That means feeding him constantly on top of pumping constantly, which means I’m tired, constantly 😵. It’s all worth it though. I don’t regret supplementing while he heals and relearns how to latch, I know it’ll be worth it in the end. I’m also grateful to be able to make enough milk to support him. The pluses outweighs the minuses by so much, I can’t even begin to describe how, since he’s brought so much joy into my life. Now back to squeezing some more boob juice outta my titties (that’s how my 6 year old describes it, I’m such a good role model🙈😆) .
If you listen to me talk about my job, you probably think I hate it and aren't sure why my mouth doesn't get me fired (most of the time I can't believe it doesn't). But today was different. I got to attend the "On the Move" luncheon that supports the National Multiple Sclerosis Society and raises awareness for multiple sclerosis research. I got to meet people who I've talked to but not met in person, and listen to speakers who described their paths to diagnosis as well. It was so validating and I'm so grateful I got to go.
Regrann from @greatcbdreviews - After meeting @iamjanettt here in LA, I was in awe with inspiration. She is battling Hashimoto’s disease, and after only 6 months of chatting, she has grown so much. Being so influenced, my curiosity spiked on how CBD can help a person with Hashimoto’s along with Graves' disease.
So what is Hashimoto's disease?
Hashimoto’s disease is a condition in which your immune system attacks your thyroid. It’s a small gland at the base of your neck below your Adam’s apple. The thyroid gland produces hormones that coordinate several of your body’s functions.
Inflammation is one of the leading symptoms of Hashimoto’s disease.
Hashimoto’s primarily affects women and one of the most common causes of hypothyroidism in the United States.
Symptoms of Hashimoto range from:
Joint & Muscle pain
Heavy or irregular menstrual periods
There is no cure for Hashimoto’s disease. The most common treatment is pills.
What is Graves’ Disease?
Like Hashimoto’s, Graves’ is also a common disease that affects the thyroid. It is also a leading cause of hyperthyroidism.
Graves’ disease causes the thyroid gland to produce excessive hormones. Unlike Hashimoto’s, Graves’ disease does go into remission. However, left untreated it can lead to severe complications including death.
Does that mean that CBD can help control the neurons in our thyroid?
Well, a 2009 study found that our CB1 receptor influences the activity of those neurons. (1)
Another study in 2015 found that our cannabinoid receptors could serve as therapeutic targets for benign and malignant thyroid lesions. (2)
Do you have #hashimotosdisease or #gravesdisease ? Do you take CBD and has it helped? Share your stories below. I know that Janet is looking to connect with those of you suffering just like her!
You can read the full-length blog by clicking the link in our profile.
My MS nurse requested I do more blood tests today as it seems I have high liver function and I’m slightly (very) freaked out. And I accidentally googled it and saw that a sign of it is a rash and I’ve had a rash around my body for a couple of months now 😞😞 has this happened to anyone else? Should I be freaking out? Help 🙃 #ms#multiplesclerosis#msireland#rrms#gilenya
💪You are not a victim to stress. YOU have the power to shift whatever is causing you to feel stressed. 💫The first step is to acknowledge your stressors. Then take actions to shift them. As I shared in this month's complimentary Stress Class, the actions may be big, or you may need to start small. A few examples of Stressors + Actions:
1. Food – Eating less dairy, sugar, wheat, or processed foods as they stress the body
2. Stuffing Emotions – Use tools daily to acknowledge, feel, and release your emotions in healthy ways (journal, guided therapeutic meditation practices)
3. Job - Look for a new job or reflect on what you need in your current job to feel less stressed (delegating more, actually taking your lunch break)
4. People - Spend less time with negative or draining people, set boundaries around how you are treated or what you need/desire
5. Negative Self-Talk - Catch it and switch to kind, accepting, compassionate words/thoughts, use a guided therapeutic meditation practice daily
6. People Pleasing - Only say yes when you really want to, and give yourself permission to change your mind/plans (even if others will be disappointed)
7. Pretending to be Super Human – Block off 30 minutes of you time each day for rest or play, get outside, ask your kids/spouse/co-workers/friends for support vs. trying to do it all on your own
💫 If you would like more support to step into your power and shift your stressors, join me in the "Stress & Life Balance" Key or the "Stress Less & Nurture You" program. 💕www.tanyapenny.com/stress-key💕
Much love on your journey to health, peace, & happiness, Tanya😊
It doesn't really matter if you choose a blog of someone living with MS, forum full of longterm survivors, medical reports and scientific articles or version "for DUMMIES". The most important is to understand, seek for answers and get familiar with the disease.
Something unclear and not understood is scary. When it gets explained, the feat fades away. Suddenly it is just a list of obstacles to overcome, things to avoid, difficulties to manage, advices to follow.
Suddenly it seems easier, doesn't it? Suddenly it seems... Liveable!
One important note, though - it is a good idea not to rely on one source only. We are all so different and there are so many resources out there! Try something different every once in a while.
What are you guys using to broaden your knowledge and understanding? I've got a couple of books, one beloved forum, a few blogs (I am writing one myself, in Polish), endless infographics on Instagram and amazing Healthline.
Takovy to, kdyz mas jeste porad kasel, ale venku je fakt krasne a ty musis taky 😂 co mam RSku, obvodni doktorka mi uz ve dverich pri podani ruky strci antibiotika do te druhe. To se bohuzel musi, udrzet imunitu vypnutou. Jenze ja je v zari nafasuju a dobiram je v kvetnu. A to teda ne. Tentokrat jsem svym lehce chycenym pruduskam doprala hodne jitrocele, inhalace vincentky a litry vody a caje. A cokoladu, pac jinak to cely nefunguje. Dneska jsem si poprve od soboty vybehla a vubec to nebylo zly ❤️ takze imunizace uspesne zapocata, stejne jako chripkova sezona 🤷🏼♀️ ted doufam, ze bude chvili klid, pac si hodlam uzit posledni dny vecerniho slunicka 🤩 #runczech#runner#training for #liberecnaturerun#recovery#sunshine#lover ❤️#behamsroztrousenousklerozou#multiplesclerosis#runnning#miluju ❤️
Buzzed thoughts on Hawaiian haze!! Today the whole world is the same age!
Today is a very special day. Theres only one chance every 1,000 years.
Your age + your year of birth, every person is = 2018.
Its so strange that even Chinese and foreign experts cant explain it! You figure it out and see if its 2018. Its a thousand-year wait! Good shot! Circle of friends, let everybody calculate it!
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Disease is made not caught
The true cause of dis-ease is the destruction of energy. Energy, or the destruction of energy results from what we eat, drink, breathe, put on our skin and from what we think and feel. These are the six ways we either make ourselves healthy and vital or sick and weak. ~ Robert Morse, ND
"When your body is showing symptoms which warrant a "dis-ease" label, realise this... your "dis-ease" has been building up within for 10-40 years. It didn't just happen overnight. You did not catch it somewhere (unless you inherited a toxic, compromised lymphatic system from your parents and their weak, damaged organs and glands upon conception). .
Once it reaches systemic acidosis (head to toe) the body cannot deal with the waste any longer. When the kidneys and the adrenals are compromised (and almost everyone's are), your body gives that final warning.
Almost all dis-ease has the same (physical) root cause... years of wrong fuel for the body. Dis-ease is a warning to change your current habits NOW or suffer dire consequences." ~ Mariah Mazza .
Conventional medicine is a treatment-based modality. You can't cure when you treat because you are not addressing the causes. Doctors are taught to look to the blood for answers... one reason they can't cure anything. Most people aren't aware that much of what is practiced in medicine today is based on (misguided) theory, not fact.
99% of all dis-ease originates in the body's lymphatic system, NOT the blood. Your lymphatic system is your body's gigantic sewer system / immune system / lipid carrier system / lubricating system. It is almost three times larger than the blood. Each one of your approximately 100 trillion cells eats and eliminates waste, just as every living thing on the planet does.
#Fruitarian#MonoMeal#Raw#RawLife#rawfood#rawlifestyle#vegan#vegans#vegansofig#801010#detoxification#vegansofinstagram#plantstrong#rawforhealth#MSsymtoms#DrRobertMorse#fruit#MultipleSclerosis#neurologicalsymptoms#plantpowered#plantbased#fueledbyplants#fruit#crueltyfree#healing#health#healingMSsymptoms @rawforhealth ...
It was only through opening my mind to new thought patterns that I was able to heal from MS. Cognitive dissonance kept me in a stasis of believing what the modern medical matrix says "there is no cure," "we can only treat your symptoms," "western medicine is the best & most advanced," "take this prescription," "undergo this test or procedure"... While the hearts of the doctors/nurses are in the right place, they have been trained by a belief system themselves. There are other ways to treat dis-ease outside this belief system and I am in complete gratitude for my guides that have led the way! I am 14 months drug free now and 90% symptom free!
Who else is living that low-carb life? .
I wouldn’t say I used to eat a lot of carbohydrates, but as a FORMER vegetarian, my protein sources used to be beans and legumes. I regularly ate quinoa and rice too. Those are allll carbs.
It wasn’t until I eliminated those things from my diet that I noticed something different. I wasn’t getting bloated after meals or having discomfort. I started feeling a lot leaner in my midsection too.
AND-as someone who has Endometriosis, my symptoms are virtually GONE! Carbs cause major inflammation which can exasperate endo symptoms.
So now I’m limiting carbs, and I’ll be honest, I don’t miss the way they made me feel at all! It’s really not hard to find substitutes either, like this lettuce wrap.
So I’m curious, anyone else doing low-carb or have thought about trying it?