Are you wondering which MitoQ supplements are right for you? 🤔 There’s a way to find out! 😁 MitoQ has developed a guide that can assist you with determining which supplement are best for you. 🔗 Click the link in my bio to find out.
25km training walk complete!
On 1st September we’ll be doing double that to raise money for The MS Society.
I’d really appreciate it if you could support us by donating anything at all on our just giving page linked in my bio.
So me and @becca_doney are holding a bake sale/coffee morning in a couple weeks time to help raise money for our Great North Run charity, MS society. And we thought of no better person to design our poster than our friend @sallyellendesign. Love it! #repost#bakesale#charity#MSsociety#running#greatnorthrun
“I was diagnosed with MS just over three years ago but showed symptoms for at least three years before to that. Over the past three years my mobility has consistently and rapidly declined so when HSCT offered a potential way to halt the disease I grabbed it with both of my numb fists.
I approached my neurologist about applying for an HSCT trial here in the UK. He was familiar with the programs but told me I had little chance of successfully applying, mostly due to my age and location. So it had to be abroad, and at my own expense. So, having made the decision to go, Mandy (as my carer) and I flew to Mexico.
Up bright and early on Monday morning for a detailed presentation on the procedure, followed by a bundle of tests. If you pass … you get the green light for the first two rounds of chemo. Fortunately I passed and so for the following two days I had my first two chemo sessions.
On the ninth day I’d mustered enough of those tiny life giving stem cells to enable a hook up to the apheresis machine and start the harvest. After the harvest it’s straight into the final two batches of chemo and then it’s your ‘birthday’ when you’re reunited with your harvested stem cells. A very happy day indeed. And that’s it, you go into neutropenia, confine yourself to the apartment for 10 days, taking extra care over your personal hygiene and take it easy.
I do feel I’ve taken some control over MS.” We continue to talk about HSCT! Today, this is an excerpt of Mile’s story. You can read the full article by clicking the link in our bio! If you or someone you know wants to find out more about HSCT, have a look at our information: mssociety.org.uk/hsct
10 people. 10 miles. 20+ Obstacles. Plenty of mud! 💪👏 The wonderful team that is #2fat2furious completed July's Tough Mudder UK in aid of #GuidepostsTrust UK and @MSsociety and have so far raised an incredible £4,380.89!
They completed the challenge in July to raise funds and awareness for the above charities and are hoping to match every penny raised through their employers - amazing! 🙌
Donations can still be made - follow the link below to #support the incredible efforts of Kawal, Sara, Kiran, Parnam, Tejal, Rimple, Anup, Harbind, Emily, Atish & Carl!
Thank you so much Kawal and team - what an incredible achievement - the money raised will make such a difference to so many people. 👏
#Donate : www.mydonate.bt.com/fundraisers/2fat2furious
@ToughMudder #fundraising#localcharity#guideposts#mssociety#donations#notforprofit#hertfordshire#BT#mentalhealthawareness#mydonate @MyDonate
Hi! My name is Emma and I am the Nursing Coordinator at the MS Society. I’ve been working as a part of the nursing team on and off since 2003 so have been around the MS world for quite a while now!
I am married with 2 gorgeous sons (and 3 chickens) who keep me very busy in my time away from work. I enjoy playing the violin, going to concerts, cycling, walking and watching movies. My boys play the cello, trumpet and bass guitar so we have a very noisy house at times! I am amazed at how one can become immune to noise level over time, but still relish peace and quiet occasionally 😜. I’m originally from sunny QLD. After training there, I worked in acute care neurology here in Adelaide. My role as an MS nurse started after working and travelling in the UK for 2 years.
I absolutely love my role as an MS nurse and have met so many amazing people over the years. It is such a privilege to be able to work alongside people on their MS journey on a daily basis.
On Saturday 6th October I will be hosting the first of its kind event, The Lower Penn Feastival #lowerpennfeastival2018
I wanted to bring the most amazing small food and beverage businesses to you in aid of The MSSociety. I am looking for local, independent businesses to take part, we have, confirmed Zainz Catering offering amazing Asian food, halloumi fries from #Cheezyduzit , cakes from me #bluebellecakery chutneys and jams from Crafted Preserves and I am looking for more!!
If you know any small independent businesses local to Lower Penn/South Staffs then please tag away, I want just one stall per type of business for maximum impact and variety. I hope you can join me, admission is £1, all stall charges and entrance fees will go the MSSociety #mssociety
I’m having one of the worst flare ups since being diagnosed with multiple sclerosis in 2012. My legs and feet are completely numb making it extremely difficult and at times excruciating to walk. Going up and down stairs is borderline unbearable.
I went to the doctor last week and I am now on steroid medication so hopefully the symptoms go down.
It feels very strange to look down at your body and not feel connected to it. My legs don’t feel like mine right now.
I really am staying positive and am trying to think ahead. I’ve made a profile on the ms society website and reached out to the community so that I won’t be alone in this process. They have amazing and very touching stories. If anyone with ms can please reach out and message me, I would be so grateful.
Eric has been bringing me to his shop and scooting me around on a chair with wheels, so fun is still occasionally being had! ❤️❤️❤️
I’ve been rubbish in not sharing a #mysundayphoto for the past two weeks. The reason? I haven’t been relaxing at all but working ridiculous hours, as well as having a horrendous time of it with my MCAS flare ups.
Today is different. I’ve caught up with friends as well as the papers and feeling really rather chilled. It’s amazing what a day off can do and I need to start building this back into my routine for the sake of my physical health.
So My Sunday Photo this week relates to me sitting down and reading! And a huge shout out must go to the utterly lovely @staceyisabel88 who lives with multiple sclerosis and bravely shared her story with me in today’s @fabulousmag She’s a true inspiration. Thank you for raising awareness ❤️#multiplesclerosis
So as I had mentioned a few times, tomorrow I was meant to be starting my next round of Ocrevus buuttttt I am not 🤦🏻♀️
I unfortunately picked up a bug overseas and I initially thought it would pass but LOL wishful thinking when you have a shitty immune system. It kind of caused havoc to my stomach and put my bloods and other tests (which I won’t describe to you because let’s be real you don’t want to hear about how I had to collect my bowel movements for days) all out of whack 💩
With much consideration my neuro and nurse wouldn’t let me start treatment tomorrow which I totes appreciate because I’d prefer not to end up obstructing my stomach and bowels and ending up in hospital for a month so we digress.
It is annoying when you get all your ducks in a row, when you are so careful people mistake you for an overbearing princess and when you make solid plans, but as we all know when does anything ever go to plan 🤷🏻♀️ So I am practicing what I preach and thinking positive, not worrying about the fact I will need to experience all this anticipation again in another month and that everything happens for a reason.
Thanks to everyone for their well wishes over the weekend – I appreciate them so so much and will be sure to document my next round of Ocrevus once I get my system back in check ❤️
😂🤷🏻♀️ had to make a funny meme to keep myself positive. okay guys so a couple people messaged me in reguards to me not posting a video in a while , i have been having a hard time physically here and there lately. i was diagnosed with MS a few weeks ago and even though i have good days and bad days i havent been doing too much hooping . BUT, im okay, im still practicing as much as i can cause im in no way shape or form going to let this impact my new favorite thing in the world, hooping! im currently working on trying to learn shoulder hooping breaks and paddles. its sooo hard but ill get it! new video will be up soon on that progress. 🤗 #hoopersofinstagram#hulahoop#flowarts#hooplah#hoopdance#hooplove#multiplesclerosis#sacredcircle#ThisIsMS#mssociety