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Felt blue yesterday... dealing with fevers, adrenal issues, low blood sugar, migraines etc... but Iโ€™m on the incline and happy tomorrow is a new day!! Iโ€™m ready for you Monday! ๐Ÿ’™
________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#indiepop#pop#vocalist#pianist#singersongwriter
Felt blue yesterday... dealing with fevers, adrenal issues, low blood sugar, migraines etc... but Iโ€™m on the incline and happy tomorrow is a new day!! Iโ€™m ready for you Monday! ๐Ÿ’™ ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #indiepop #pop #vocalist #pianist #singersongwriter 
Sometimes I feel so small in this world but I have to remember I have the power to make change and use my voice... one voice CAN make a difference. ๐Ÿฆ‹

________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#indiepop#pop#vocalist#pianist#singersongwriter
Sometimes I feel so small in this world but I have to remember I have the power to make change and use my voice... one voice CAN make a difference. ๐Ÿฆ‹ ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #indiepop #pop #vocalist #pianist #singersongwriter 
Supposed to be resting I have another virus ๐Ÿ˜‘ I hate resting ... feeling better than yesterday tho ๐Ÿ™Œ๐Ÿป ________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#indiepop#pop#vocalist#pianist#singersongwriter
Supposed to be resting I have another virus ๐Ÿ˜‘ I hate resting ... feeling better than yesterday tho ๐Ÿ™Œ๐Ÿป ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #indiepop #pop #vocalist #pianist #singersongwriter 
Itโ€™s #worldmentalhealthday and I just wanted to say your mental health is just as important as your physical health. I have struggled with OCD, ADHD and PTSD  almost my whole life. Therapy has been so helpful for me as well as having a good support system. I hope we can create less of a stigma around mental health because so many go through it. Take a minute to check in on your loved ones and friends because you never know how you might be able to help. 
________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#indiepop#pop#vocalist#pianist#singersongwriter
Itโ€™s #worldmentalhealthday  and I just wanted to say your mental health is just as important as your physical health. I have struggled with OCD, ADHD and PTSD almost my whole life. Therapy has been so helpful for me as well as having a good support system. I hope we can create less of a stigma around mental health because so many go through it. Take a minute to check in on your loved ones and friends because you never know how you might be able to help. ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #indiepop #pop #vocalist #pianist #singersongwriter 
Almost ended up in the ER today... mito changes your life very quickly. Luckily I got into see the covering doctor and avoided the ER. I had a blood sugar of 38 because I went back to my normal dose of steroids so I took a stress dose and followed my hypoglycemia routine and luckily it went up. Iโ€™m also having bad GI issues :/ but onwards and upwards. Hoping I can make it to class tomorrow and not be too out of it from pain meds ๐Ÿ™ƒ thinking of you all fighting your own battles everyday ๐Ÿ’•

________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#indiepop#pop#vocalist#pianist#singersongwriter
Almost ended up in the ER today... mito changes your life very quickly. Luckily I got into see the covering doctor and avoided the ER. I had a blood sugar of 38 because I went back to my normal dose of steroids so I took a stress dose and followed my hypoglycemia routine and luckily it went up. Iโ€™m also having bad GI issues :/ but onwards and upwards. Hoping I can make it to class tomorrow and not be too out of it from pain meds ๐Ÿ™ƒ thinking of you all fighting your own battles everyday ๐Ÿ’• ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #indiepop #pop #vocalist #pianist #singersongwriter 
What an amazing weekend celebrating the marriage of my Cousin Pat and his wife Sami ๐Ÿ’• love you guys so much! 
QOTD . Do you think my brother and I look alike? ๐Ÿค”
________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#indiepop#pop#vocalist#pianist#singersongwriter
What an amazing weekend celebrating the marriage of my Cousin Pat and his wife Sami ๐Ÿ’• love you guys so much! QOTD . Do you think my brother and I look alike? ๐Ÿค” ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #indiepop #pop #vocalist #pianist #singersongwriter 
Danny was so excited to have his turn on Charlie!
Danny was so excited to have his turn on Charlie!
Medical Update: So, overall things have been pretty stable except for a kidney function scare that ended up being okay. I have between stage 2-3 Chronic Kidney Disease and we where worried it was getting worse but thankfully Iโ€™m stable! I have been having more motility issues and have been waiting for insurance to approve antibiotics that I get every few months for SIBO. My joint pain has been up and down but Iโ€™m able to walk farther and more often with less hip pain. Iโ€™m not going to go over everything because that would be like writing a chapter in a book. But for now Iโ€™m stable and I start back at school on the 29th!! Keep fighting people ๐Ÿ’•

______________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#indiepop#pop#vocalist#pianist#singersongwriter
Medical Update: So, overall things have been pretty stable except for a kidney function scare that ended up being okay. I have between stage 2-3 Chronic Kidney Disease and we where worried it was getting worse but thankfully Iโ€™m stable! I have been having more motility issues and have been waiting for insurance to approve antibiotics that I get every few months for SIBO. My joint pain has been up and down but Iโ€™m able to walk farther and more often with less hip pain. Iโ€™m not going to go over everything because that would be like writing a chapter in a book. But for now Iโ€™m stable and I start back at school on the 29th!! Keep fighting people ๐Ÿ’• ______________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #indiepop #pop #vocalist #pianist #singersongwriter 
Reminiscing the beach wearing @serengelboutique so cute and comfy for the beach, check their awesome stuff out! โค๏ธ _________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#indiepop#pop#vocalist#pianist#singersongwriter
Reminiscing the beach wearing @serengelboutique so cute and comfy for the beach, check their awesome stuff out! โค๏ธ _________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #indiepop #pop #vocalist #pianist #singersongwriter 
IVIG day came a few days later than expected but hopefully the side effects wonโ€™t be bad and Iโ€™ll start feeling back to my baseline soon ๐Ÿคž๐Ÿป ________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#travelgram#studiolife#nyclife#pop#vocalist#pianist#singersongwriter
IVIG day came a few days later than expected but hopefully the side effects wonโ€™t be bad and Iโ€™ll start feeling back to my baseline soon ๐Ÿคž๐Ÿป ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #travelgram #studiolife #nyclife #pop #vocalist #pianist #singersongwriter 
When you have about a 3 paragraph update to do on your life but your pretending everythingโ€™s โ€œnormalโ€. Ugh ๐Ÿ˜‘ physically and emotionally struggling the past few days but will be okay โค๏ธ ________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#travelgram#studiolife#nyclife#pop#vocalist#pianist#singersongwriter
When you have about a 3 paragraph update to do on your life but your pretending everythingโ€™s โ€œnormalโ€. Ugh ๐Ÿ˜‘ physically and emotionally struggling the past few days but will be okay โค๏ธ ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #travelgram #studiolife #nyclife #pop #vocalist #pianist #singersongwriter