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Its Mitochondrial Disease awareness week!! Mitochondrial Disease is when your Mitochondria cells don’t get enough energy and causes multi-organ dysfunction. There is no cure only symptom control. Having Mitochondrial Disease is exhausting both physically and mentally. I was born with it and will live with it as it’s a chronic illness for the rest of my life unless treatment options are discovered!!!
________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#indiepop#pop#vocalist#pianist#singersongwriter
Its Mitochondrial Disease awareness week!! Mitochondrial Disease is when your Mitochondria cells don’t get enough energy and causes multi-organ dysfunction. There is no cure only symptom control. Having Mitochondrial Disease is exhausting both physically and mentally. I was born with it and will live with it as it’s a chronic illness for the rest of my life unless treatment options are discovered!!! ________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #indiepop #pop #vocalist #pianist #singersongwriter 
I was debating whether to share this or not but I promised to include the good the bad and the ugly on this page. I was in the ER all day with vomiting and migraines. We think I might have gotten a mild flu or just a bad flare. Luckily I’m home now resting and need to follow up with neuro. Mitochondrial Disease can change from mild to debilitating illness in the matter of minutes. One day I’m going to class and the gym the next I’m sick and in the ER. It’s sure as hell a balancing act but it’s a life a have to live with and it won’t stop me from living a great one ❤️ ________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#indiepop#pop#vocalist#pianist#singersongwriter
I was debating whether to share this or not but I promised to include the good the bad and the ugly on this page. I was in the ER all day with vomiting and migraines. We think I might have gotten a mild flu or just a bad flare. Luckily I’m home now resting and need to follow up with neuro. Mitochondrial Disease can change from mild to debilitating illness in the matter of minutes. One day I’m going to class and the gym the next I’m sick and in the ER. It’s sure as hell a balancing act but it’s a life a have to live with and it won’t stop me from living a great one ❤️ ________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #indiepop #pop #vocalist #pianist #singersongwriter 
Danny was so excited to have his turn on Charlie!
Danny was so excited to have his turn on Charlie!
Medical Update: So, overall things have been pretty stable except for a kidney function scare that ended up being okay. I have between stage 2-3 Chronic Kidney Disease and we where worried it was getting worse but thankfully I’m stable! I have been having more motility issues and have been waiting for insurance to approve antibiotics that I get every few months for SIBO. My joint pain has been up and down but I’m able to walk farther and more often with less hip pain. I’m not going to go over everything because that would be like writing a chapter in a book. But for now I’m stable and I start back at school on the 29th!! Keep fighting people 💕

______________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#indiepop#pop#vocalist#pianist#singersongwriter
Medical Update: So, overall things have been pretty stable except for a kidney function scare that ended up being okay. I have between stage 2-3 Chronic Kidney Disease and we where worried it was getting worse but thankfully I’m stable! I have been having more motility issues and have been waiting for insurance to approve antibiotics that I get every few months for SIBO. My joint pain has been up and down but I’m able to walk farther and more often with less hip pain. I’m not going to go over everything because that would be like writing a chapter in a book. But for now I’m stable and I start back at school on the 29th!! Keep fighting people 💕 ______________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #indiepop #pop #vocalist #pianist #singersongwriter 
Reminiscing the beach wearing @serengelboutique so cute and comfy for the beach, check their awesome stuff out! ❤️ _________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#indiepop#pop#vocalist#pianist#singersongwriter
Reminiscing the beach wearing @serengelboutique so cute and comfy for the beach, check their awesome stuff out! ❤️ _________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #indiepop #pop #vocalist #pianist #singersongwriter 
IVIG day came a few days later than expected but hopefully the side effects won’t be bad and I’ll start feeling back to my baseline soon 🤞🏻 ________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#travelgram#studiolife#nyclife#pop#vocalist#pianist#singersongwriter
IVIG day came a few days later than expected but hopefully the side effects won’t be bad and I’ll start feeling back to my baseline soon 🤞🏻 ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #travelgram #studiolife #nyclife #pop #vocalist #pianist #singersongwriter 
When you have about a 3 paragraph update to do on your life but your pretending everything’s “normal”. Ugh 😑 physically and emotionally struggling the past few days but will be okay ❤️ ________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#travelgram#studiolife#nyclife#pop#vocalist#pianist#singersongwriter
When you have about a 3 paragraph update to do on your life but your pretending everything’s “normal”. Ugh 😑 physically and emotionally struggling the past few days but will be okay ❤️ ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #travelgram #studiolife #nyclife #pop #vocalist #pianist #singersongwriter 
I do post body positive photos on here embracing my scars but I’m not going to lie... with every new surgery (port surgery)comes another round of learning to love the body I’m in. I have my days where I feel very confident and others where I don’t, and that’s okay it’s a process. I’m sending my love to everyone out there finding new ways to love themselves because that’s the most important thing. ❤️
________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel#studiolife#nyclife#pop#vocalist#pianist#singersongwriter
📸 @jaylouis_  pic1
I do post body positive photos on here embracing my scars but I’m not going to lie... with every new surgery (port surgery)comes another round of learning to love the body I’m in. I have my days where I feel very confident and others where I don’t, and that’s okay it’s a process. I’m sending my love to everyone out there finding new ways to love themselves because that’s the most important thing. ❤️ ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #jtube #gtube #port #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #love #fun #travel #studiolife #nyclife #pop #vocalist #pianist #singersongwriter  📸 @jaylouis_ pic1
You went to heaven four years ago today, but it feels like just yesterday. I miss you and I love you with all my heart. I miss coming to see you in California my home away from home. I miss you watching me play my piano. I miss our traditions both out west and when you would come to the east coast. You where such an inspirational woman to me and so many others going to Stanford university and being such a strong and independent women. I could go on and on but I know you are dancing up in heaven and looking down on me. I love you grandma ❤️ _______________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#chronicillnesswarrior#mentalhealthmatters#chronicloveclub#fashion#wlyg#followyourdreams#dreambig#travel#travelgram#pianist#singersongwriter#kidneycancer#grandma#california
You went to heaven four years ago today, but it feels like just yesterday. I miss you and I love you with all my heart. I miss coming to see you in California my home away from home. I miss you watching me play my piano. I miss our traditions both out west and when you would come to the east coast. You where such an inspirational woman to me and so many others going to Stanford university and being such a strong and independent women. I could go on and on but I know you are dancing up in heaven and looking down on me. I love you grandma ❤️ _______________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #chronicillnesswarrior #mentalhealthmatters #chronicloveclub #fashion #wlyg #followyourdreams #dreambig #travel #travelgram #pianist #singersongwriter #kidneycancer #grandma #california 
The reality of chronic illness... PORT surgery is officially done and I was so close to being admitted but my amazing medical team took care of things and I am home now resting. Thank you ALL for reaching out and making me feel so loved! You guys know who you are ❤️ always keep fighting...always. 
P.S. No I don't remember this photo being taken 😂
________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#dreambig#love#fun#instagood#travel#travelgram#studiolife#nyclife#pop#indiepop#indierock#vocalist#pianist#singersongwriter
The reality of chronic illness... PORT surgery is officially done and I was so close to being admitted but my amazing medical team took care of things and I am home now resting. Thank you ALL for reaching out and making me feel so loved! You guys know who you are ❤️ always keep fighting...always. P.S. No I don't remember this photo being taken 😂 ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #dreambig #love #fun #instagood #travel #travelgram #studiolife #nyclife #pop #indiepop #indierock #vocalist #pianist #singersongwriter 
I am SO proud of my mom for volunteering and then getting asked to work at St. Hubert's Animal Welfare Center. They are a way station where they have pets sent to them where they have an over abundance of animals. For example my mom helped volunteer where St. Hubert's transported over hundreds of dogs from Puerto Rico to their shelter and also send them to other shelters who need more dogs. My first dog was from St. Hubert's so they also have a special place in my heart. Check out their amazing website www.sthuberts.org they do great work!

________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#dreambig#love#fun#instagood#travel#travelgram#studiolife#nyclife#pop#indiepop#indierock#adoptdontshop#singersongwriter
I am SO proud of my mom for volunteering and then getting asked to work at St. Hubert's Animal Welfare Center. They are a way station where they have pets sent to them where they have an over abundance of animals. For example my mom helped volunteer where St. Hubert's transported over hundreds of dogs from Puerto Rico to their shelter and also send them to other shelters who need more dogs. My first dog was from St. Hubert's so they also have a special place in my heart. Check out their amazing website www.sthuberts.org they do great work! ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #dreambig #love #fun #instagood #travel #travelgram #studiolife #nyclife #pop #indiepop #indierock #adoptdontshop #singersongwriter 
So today I met with a vascular surgeon (who deals with the veins in your body) and after extensive ultrasounds and testing it has been confirmed I need a Port placed and it's happening on WEDNESDAY. I don't feel ready and to be honest I'm scared but there's not much I can do about it. It will definitely be an adjustment but I know I will eventually adjust. Positive vibes are appreciated💕 the second and third pic is what a port basically is and they access it by putting a needle into the port into your chest and getting blood draws and infusions that way. Right now I'm mad and upset with my situation but it will only make me stronger💪🏻 ________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#dreambig#love#fun#instagood#travel#travelgram#studiolife#nyclife#pop#indiepop#indierock#vocalist#pianist#singersongwriter
So today I met with a vascular surgeon (who deals with the veins in your body) and after extensive ultrasounds and testing it has been confirmed I need a Port placed and it's happening on WEDNESDAY. I don't feel ready and to be honest I'm scared but there's not much I can do about it. It will definitely be an adjustment but I know I will eventually adjust. Positive vibes are appreciated💕 the second and third pic is what a port basically is and they access it by putting a needle into the port into your chest and getting blood draws and infusions that way. Right now I'm mad and upset with my situation but it will only make me stronger💪🏻 ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #dreambig #love #fun #instagood #travel #travelgram #studiolife #nyclife #pop #indiepop #indierock #vocalist #pianist #singersongwriter 
What a Day 🙄😴 didn't turn out how I planned and this is def an old pic and not how I looked today but onwards and upwards... ________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#dreambig#love#fun#instagood#travel#travelgram#studiolife#nyclife#pop#indiepop#indierock#vocalist#pianist#singersongwriter
What a Day 🙄😴 didn't turn out how I planned and this is def an old pic and not how I looked today but onwards and upwards... ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #dreambig #love #fun #instagood #travel #travelgram #studiolife #nyclife #pop #indiepop #indierock #vocalist #pianist #singersongwriter 
New cover coming soon ! 🌙✨ The best medicine is my music even though I'm on like a million meds and was at the doctor 💁🏼 ________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#dreambig#love#fun#instagood#travel#travelgram#studiolife#nyclife#pop#indiepop#indierock#vocalist#pianist#singersongwriter
New cover coming soon ! 🌙✨ The best medicine is my music even though I'm on like a million meds and was at the doctor 💁🏼 ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #dreambig #love #fun #instagood #travel #travelgram #studiolife #nyclife #pop #indiepop #indierock #vocalist #pianist #singersongwriter 
It's called "Invisible Illness" for a reason. If I where't showing my tubes all day or hooked up to an IV etc... many people would look at me and think I was a young healthy girl. WRONG just because you don't look sick doesn't mean you aren't! Both physical and mental health can be invisible. So when you meet people keep an open mind that everything might not be as it appears ❤️ ________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#dreambig#love#fun#instagood#travel#travelgram#studiolife#nyclife#pop#indiepop#indierock#vocalist#pianist#singersongwriter
It's called "Invisible Illness" for a reason. If I where't showing my tubes all day or hooked up to an IV etc... many people would look at me and think I was a young healthy girl. WRONG just because you don't look sick doesn't mean you aren't! Both physical and mental health can be invisible. So when you meet people keep an open mind that everything might not be as it appears ❤️ ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #dreambig #love #fun #instagood #travel #travelgram #studiolife #nyclife #pop #indiepop #indierock #vocalist #pianist #singersongwriter 
IVIG tomorrow... hoping for minimal side effects! Would appreciate some good vibes ❤️ sending love to anyone fighting a battle that they can't control.

________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#dreambig#love#fun#instagood#travel#travelgram#studiolife#nyclife#pop#indiepop#indierock#vocalist#pianist#singersongwriter
IVIG tomorrow... hoping for minimal side effects! Would appreciate some good vibes ❤️ sending love to anyone fighting a battle that they can't control. ________________________________________________________#believeinyourself #justlive #mitochondrialdiease #ehlersdanlossyndrome #chronicillnesswarrior #mentalhealthmatters #model #chronicloveclub #modeling #headshot #photography #blonde #blueyes #fashion #wlyg #followyourdreams #dreambig #love #fun #instagood #travel #travelgram #studiolife #nyclife #pop #indiepop #indierock #vocalist #pianist #singersongwriter