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In one universe I’m home sick in Tucson. In another universe my work is in an exhibit opening tonight at Squirrel Haus Arts. Thanks MCAD and Squirrel Haus! (My piece is the long white one on the left.)
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#mcad #mcadalum #squirrelhausarts #mnarts #mnartists #twincitiesart #mplsart #mplsartist #southmpls #madeinminnesota #madeinminneapolis #anntracyart #anntracyartist #anntracy
So last night for the first time in over 4 months, I slept in my room with just me and pup🐶. Due to my random episodes of falling, passing out and non-epileptic seizures I was a danger to myself if I was alone. One of my parents or my amazing boyfriend had to stay on the couch next to me every night just to make I was safe. While I was greatful for my protectors, it was frustrating for me to be in the center of the TV room all day and all night.  So when my episodes started slowing, we began talking about moving me back into my room, now since I hadn't slept in my room in 4 months it was a little.... Ok very very messy.  So while my episodes had stopped a little over a week ago it has taken me all this time to just get my room cleaned enough for me to rest and be comfortable in my room.  I took this as an opportunity to rearrange my entire room! I am beyond happy with it now but while I was cleaning it was so hard because I hardly had enough energy so anytime I had a spurt of energy I worked on my room.  Finally I decided lastnught at 11 pm to finish my room completely and sleep in there.  It was one of the best nights sleep I've had in a while. I was in My own room comfortable and with only my loving puppy to watch over me 💙🐶 i know for some this does not seem like a big deal but for someone who wants to be independent, not having that chance for a long time can be fruateting. But finally back to my room and getting back to being independent, for the most part 😉 #zebrastripes #strength #chronicpain #chronicillness #love #support #independent #goodnight #sleep #pain #eds #POTS #mcad
So last night for the first time in over 4 months, I slept in my room with just me and pup🐶. Due to my random episodes of falling, passing out and non-epileptic seizures I was a danger to myself if I was alone. One of my parents or my amazing boyfriend had to stay on the couch next to me every night just to make I was safe. While I was greatful for my protectors, it was frustrating for me to be in the center of the TV room all day and all night. So when my episodes started slowing, we began talking about moving me back into my room, now since I hadn't slept in my room in 4 months it was a little.... Ok very very messy. So while my episodes had stopped a little over a week ago it has taken me all this time to just get my room cleaned enough for me to rest and be comfortable in my room. I took this as an opportunity to rearrange my entire room! I am beyond happy with it now but while I was cleaning it was so hard because I hardly had enough energy so anytime I had a spurt of energy I worked on my room. Finally I decided lastnught at 11 pm to finish my room completely and sleep in there. It was one of the best nights sleep I've had in a while. I was in My own room comfortable and with only my loving puppy to watch over me 💙🐶 i know for some this does not seem like a big deal but for someone who wants to be independent, not having that chance for a long time can be fruateting. But finally back to my room and getting back to being independent, for the most part 😉 #zebrastripes  #strength  #chronicpain  #chronicillness  #love  #support  #independent  #goodnight  #sleep  #pain  #eds  #POTS  #mcad 
mcad alumni show opening night!
#mcad #mcadalumni #contemporaryart #mplsart #squirrelhausarts
Smiling mid-clamshell.
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I have been on a crazy kick of good health! I was looking back at my journal and realized that I’ve only had one bad health day in the last two weeks—it’s been a while since I’ve had a streak like this, and I am not complaining! I’ve been taking lots of long walks with my pup, socializing a bunch with friends, and enjoying this hot weather for the first time this summer. I’ve been doing my PT too, as in this photo 💪🏽
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This streak has been all the sweeter because I know it won’t last forever. I know that my reality is a lifetime of ups and downs, flares and recoveries. And I know that after this good streak, the next flare will probably hit me pretty hard. So I’m enjoying these good days and preparing for the bad ones, because the one thing I know is nothing is forever.
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[image description: Eliza is laying on the floor smiling at the camera, which one hand under her head and the other arm cocked jauntily to the side, à la pinup girl on the beach.]
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#ehlersdanlossyndrome #ehlersdanlos #hypermobility #dysautonomia #raredisease #mastcell #mastcellactivationsyndrome #mastcellactivationdisorder #mcas #mcad #posturalorthostatictachycardiasyndrome #pots #potsie #chronicillness #chronicpain #chronicbabe #disabledandcute
Smiling mid-clamshell. • I have been on a crazy kick of good health! I was looking back at my journal and realized that I’ve only had one bad health day in the last two weeks—it’s been a while since I’ve had a streak like this, and I am not complaining! I’ve been taking lots of long walks with my pup, socializing a bunch with friends, and enjoying this hot weather for the first time this summer. I’ve been doing my PT too, as in this photo 💪🏽 • This streak has been all the sweeter because I know it won’t last forever. I know that my reality is a lifetime of ups and downs, flares and recoveries. And I know that after this good streak, the next flare will probably hit me pretty hard. So I’m enjoying these good days and preparing for the bad ones, because the one thing I know is nothing is forever. • [image description: Eliza is laying on the floor smiling at the camera, which one hand under her head and the other arm cocked jauntily to the side, à la pinup girl on the beach.] • • • #ehlersdanlossyndrome  #ehlersdanlos  #hypermobility  #dysautonomia  #raredisease  #mastcell  #mastcellactivationsyndrome  #mastcellactivationdisorder  #mcas  #mcad  #posturalorthostatictachycardiasyndrome  #pots  #potsie  #chronicillness  #chronicpain  #chronicbabe  #disabledandcute 
We accepted the offer on our home, so now it’s time to start packing & finding our new home! So exciting, but exhausting for a Spoonie who’s allergic to everything! .
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#somuchdust #moving #packing #newhome #newlife #newadventures #chronicillness #spoonie #dustallergies #mcad #mcas #mastcell #mastcellactivationdisorder #chronicallyraven
Quick tip: to edit a 3D package in recent versions of @ADSKEAGLE just double-click the 3D package in the library's table of contents. The 3D package editor will open inside of EAGLE. No need to use a web browser. SAVE 25% on a new EAGLE and Fusion 360 subscription! Limited time. Link in BIO!
Quick tip: to edit a 3D package in recent versions of @ADSKEAGLE just double-click the 3D package in the library's table of contents. The 3D package editor will open inside of EAGLE. No need to use a web browser. SAVE 25% on a new EAGLE and Fusion 360 subscription! Limited time. Link in BIO!
I've decided to caption this picture as : My Current Level of Celebration - Internal. 😂🤣🙄 I was expecting more from people as I was feeling better. More excitement, more enthusiasm. But I suppose I should be the most excited, so it's an appropriate situation I am in.

My family is too busy. My husband works three jobs and is in school while also being a husband and father. I know he is excited, but there's no time to really let me talk about it for hours 😜 My kids don't quite understand, but I'm sure they appreciate the fact I can physically play with them (3 hours in a pool a few weekends ago!) and take them out on errands and to the parks. My parents and other relations haven't said much more than, oh I read you're feeling better (that's it). I guess I didn't complain enough about how I felt before. There was no point, so I suppose they wouldn't really understand the change I feel.

My doctors listened in the fact that they wrote it in my chart and one said they would look into the treatment I am on, but it seemed more so to see if it was a pyramid scheme or hoax. Very skeptical (as I'm sure a lot of social media is as well)  It's science. Just naturopathic and not pharmaceutical. Just on Gastrocrom and now off of my daily: 2 claritin, 2 zantac, benadryl as needed, CBD gummies, usually 2 eletrcolyte tabs a day on top of hydration mixes for energy, and an REM capsule to get to sleep. Off all of those. 😍 And physically slowly returning to a normal, active lifestyle.

If you haven't looked into alternative, homeopathic, or naturopathic treatments, I'd take a bit of time to research options. I am on the BX beta protocol (mitochondrial restoration to restore ATP production) and Gastrocrom. What else is working for people out there??? I am going to continue my internal celebration and enjoy the awesome party 😜🦓 #hypermobileeds #hypermobileehlersdanlossyndrome #heds #mastcellactivationsyndrome #mastcellactivationdisorder #mcad #mastcell #sjogrens #sjogrenssyndrome #zebraproblems #zebrastrong #zebrawarrior #autoimmunedisorder #autonomicdysfunction #chronicillness #chronicpain #chronicfatiguesyndrome #chronicfatigue
I've decided to caption this picture as : My Current Level of Celebration - Internal. 😂🤣🙄 I was expecting more from people as I was feeling better. More excitement, more enthusiasm. But I suppose I should be the most excited, so it's an appropriate situation I am in. My family is too busy. My husband works three jobs and is in school while also being a husband and father. I know he is excited, but there's no time to really let me talk about it for hours 😜 My kids don't quite understand, but I'm sure they appreciate the fact I can physically play with them (3 hours in a pool a few weekends ago!) and take them out on errands and to the parks. My parents and other relations haven't said much more than, oh I read you're feeling better (that's it). I guess I didn't complain enough about how I felt before. There was no point, so I suppose they wouldn't really understand the change I feel. My doctors listened in the fact that they wrote it in my chart and one said they would look into the treatment I am on, but it seemed more so to see if it was a pyramid scheme or hoax. Very skeptical (as I'm sure a lot of social media is as well) It's science. Just naturopathic and not pharmaceutical. Just on Gastrocrom and now off of my daily: 2 claritin, 2 zantac, benadryl as needed, CBD gummies, usually 2 eletrcolyte tabs a day on top of hydration mixes for energy, and an REM capsule to get to sleep. Off all of those. 😍 And physically slowly returning to a normal, active lifestyle. If you haven't looked into alternative, homeopathic, or naturopathic treatments, I'd take a bit of time to research options. I am on the BX beta protocol (mitochondrial restoration to restore ATP production) and Gastrocrom. What else is working for people out there??? I am going to continue my internal celebration and enjoy the awesome party 😜🦓 #hypermobileeds  #hypermobileehlersdanlossyndrome  #heds  #mastcellactivationsyndrome  #mastcellactivationdisorder  #mcad  #mastcell  #sjogrens  #sjogrenssyndrome  #zebraproblems  #zebrastrong  #zebrawarrior  #autoimmunedisorder  #autonomicdysfunction  #chronicillness  #chronicpain  #chronicfatiguesyndrome  #chronicfatigue 
Our 2018 Back to School Sale is officially started! We have some great deals on surfaces, paper, sketchbooks, paint, and MORE!! Sale goes through Sept 30. [People portrayed  as artists and models; Minneapolis School of Art party. Approximately 1925
From the collections of the Minnesota Historical Society]
Our 2018 Back to School Sale is officially started! We have some great deals on surfaces, paper, sketchbooks, paint, and MORE!! Sale goes through Sept 30. [People portrayed as artists and models; Minneapolis School of Art party. Approximately 1925 From the collections of the Minnesota Historical Society]
How many of you go round in circles with how you feel and deal with your Chronic Illness?
Only I'm having a right old wobble today.  Saw my Dr this morning for my fortnightly blood tests and we got chatting about living with Chronic Illness and how well he seems to think I cope with everything. 
It's funny because today I don't feel like I'm coping. 
I had a cry this morning, because I want to wake up feeling ok, just for once. 
I'm absolutely sick of keeping my smile on and telling everyone I'll be ok, reassuring people around me that I'm ok, so I don't have to deal with the guilt of how uncomfortable it makes people feel,  to face the realisation that really, underneath it all, I'm not ok. 
I think I kind of bring it on myself, because as much as I'll say, 'I'm really not great today, I'm tired' or I'm just feeling sick it'll pass. Or, 'oh I'm in agony, but don't worry this is my normal!' I then continued to act as normally as I can muster. 
I've noticed at the moment I'm living in my own head alot again. Wondering about my life and how this is all going to pan out. Having a Chronic Illness has made me view the world differently and I think I'm still trying to figure out where I fit into it all now. Now that there will never be going back to my old life. 
Some days all this is just too much for my tiny little brain to deal with. That 'Cure' I've been looking for is realistically never going to be found for a rare illness like mine. 
Ultimately there is no new life waiting for me, there's just the one I already had, but it's had lots of things taken away from it and a crappy Illness or two added.
I know I'll come out of this cycle, I've been here before. But I thought I was over all this. Then suddenly I'm feeling sorry for me again.
When will this cycle of grief/fight end!? Because right now I'm all out of fight, energy or shits! Lol

#chronicillness #mcas #chronicfatigue #mcad #mastcellactivationsyndrome #chronicallyfedup #tired #chronicbloggers  #butyoulookwell #spoonies #rareillness #hiddenillness #invisibleillness #chronic
How many of you go round in circles with how you feel and deal with your Chronic Illness? Only I'm having a right old wobble today. Saw my Dr this morning for my fortnightly blood tests and we got chatting about living with Chronic Illness and how well he seems to think I cope with everything. It's funny because today I don't feel like I'm coping. I had a cry this morning, because I want to wake up feeling ok, just for once. I'm absolutely sick of keeping my smile on and telling everyone I'll be ok, reassuring people around me that I'm ok, so I don't have to deal with the guilt of how uncomfortable it makes people feel, to face the realisation that really, underneath it all, I'm not ok. I think I kind of bring it on myself, because as much as I'll say, 'I'm really not great today, I'm tired' or I'm just feeling sick it'll pass. Or, 'oh I'm in agony, but don't worry this is my normal!' I then continued to act as normally as I can muster. I've noticed at the moment I'm living in my own head alot again. Wondering about my life and how this is all going to pan out. Having a Chronic Illness has made me view the world differently and I think I'm still trying to figure out where I fit into it all now. Now that there will never be going back to my old life. Some days all this is just too much for my tiny little brain to deal with. That 'Cure' I've been looking for is realistically never going to be found for a rare illness like mine. Ultimately there is no new life waiting for me, there's just the one I already had, but it's had lots of things taken away from it and a crappy Illness or two added. I know I'll come out of this cycle, I've been here before. But I thought I was over all this. Then suddenly I'm feeling sorry for me again. When will this cycle of grief/fight end!? Because right now I'm all out of fight, energy or shits! Lol #chronicillness  #mcas  #chronicfatigue  #mcad  #mastcellactivationsyndrome  #chronicallyfedup  #tired  #chronicbloggers  #butyoulookwell  #spoonies  #rareillness  #hiddenillness  #invisibleillness  #chronic 
I’m providing this information, because I have seen some misconceptions about Vogmasks. As you may know, these masks are fairly popular in the chronic illness community. They’re stylish and protect from allergens, some MCAS triggers, poor air quality, smoke, and more. What it DOESN’T protect against is viruses and some bacteria, which is crucial knowledge for those with immunodeficiency who may need to wear a mask in some places. Vogmask explicitly states what their masks can protect against, and to what size particles it can filter out. The smallest particle size they can filter is 0.254 microns. Some bacteria can be smaller than this, and viruses range from 0.004 - 0.1 microns — at LEAST less than HALF the size Vogmask filters out! Despite this, some people advise to use this for immunodeficiencies. This is DANGEROUS information to spread!!!
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「Image Desc: An excerpt from the Vogmask FAQ says: “VOGMASK is used for protection from airborne particles such as PM 0.3, PM 2.5, PM 10, dust, allergens, post combustion particles, germs, shavings, biologics, odors, scents, mold, mold spores, particles in wildfire smoke, volcanic particulate pollution, and other airborne contaminants. The benefits of particulate respirators are confirmed by leading health providers worldwide.  Highly efficient filtering masks help protect the mask wearer from particles as small as .254 microns.”」
I’m providing this information, because I have seen some misconceptions about Vogmasks. As you may know, these masks are fairly popular in the chronic illness community. They’re stylish and protect from allergens, some MCAS triggers, poor air quality, smoke, and more. What it DOESN’T protect against is viruses and some bacteria, which is crucial knowledge for those with immunodeficiency who may need to wear a mask in some places. Vogmask explicitly states what their masks can protect against, and to what size particles it can filter out. The smallest particle size they can filter is 0.254 microns. Some bacteria can be smaller than this, and viruses range from 0.004 - 0.1 microns — at LEAST less than HALF the size Vogmask filters out! Despite this, some people advise to use this for immunodeficiencies. This is DANGEROUS information to spread!!! ⚡️ 「Image Desc: An excerpt from the Vogmask FAQ says: “VOGMASK is used for protection from airborne particles such as PM 0.3, PM 2.5, PM 10, dust, allergens, post combustion particles, germs, shavings, biologics, odors, scents, mold, mold spores, particles in wildfire smoke, volcanic particulate pollution, and other airborne contaminants. The benefits of particulate respirators are confirmed by leading health providers worldwide.  Highly efficient filtering masks help protect the mask wearer from particles as small as .254 microns.”」
When you get your test results back, and you truly ARE allergic to EVERYTHING. 🤦🏽‍♀️ The circled items are my most extreme allergies, and what I will be receiving immunotherapy for. One shot, once a week, for a year. Plus, I just got handed my first script for an EpiPen. FML! 💉
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#allergytesting #allergies #allergictoeverything #mcas #mcad #mastcell #mastcellactivationdisorder #allergyshots #immunotherapy #spoonie #chronicillness #invisibleillness #epipen #thissucks
When you get your test results back, and you truly ARE allergic to EVERYTHING. 🤦🏽‍♀️ The circled items are my most extreme allergies, and what I will be receiving immunotherapy for. One shot, once a week, for a year. Plus, I just got handed my first script for an EpiPen. FML! 💉 . . #allergytesting  #allergies  #allergictoeverything  #mcas  #mcad  #mastcell  #mastcellactivationdisorder  #allergyshots  #immunotherapy  #spoonie  #chronicillness  #invisibleillness  #epipen  #thissucks 
✨Please be brave.... Please... this life with chronic illness and mental illness can really tear into your soul and self worth. I know, I get like that, too. Anyways, BE HAPPY!!!!! What is something that made you happy yesterday or today? For me, it was a visit from my occupational therapist. He has a glass eye and let’s me touch it and it makes my day for some weird reason. Idk I’m weird. It’s the little things. 💛🧡♥️
• artwork done by @etcdrawings 
#bebrave #chronicillness #chronicpain #raredisease #disabledandcute #cripplepunk #eds #heds #hypermobileeds #ehlersdanlos #ehlersdanlossyndrome #pots #dysautonomia #hypotension #syncope #fainting #mcas #mcad #mastcell #mastcellactivationdisorder #mastcellactivationsyndrome #spoonie #spooniewarrior #zebra #zebrastrong #bendyaf #darkcomedy
✨Please be brave.... Please... this life with chronic illness and mental illness can really tear into your soul and self worth. I know, I get like that, too. Anyways, BE HAPPY!!!!! What is something that made you happy yesterday or today? For me, it was a visit from my occupational therapist. He has a glass eye and let’s me touch it and it makes my day for some weird reason. Idk I’m weird. It’s the little things. 💛🧡♥️ • artwork done by @etcdrawings #bebrave  #chronicillness  #chronicpain  #raredisease  #disabledandcute  #cripplepunk  #eds  #heds  #hypermobileeds  #ehlersdanlos  #ehlersdanlossyndrome  #pots  #dysautonomia  #hypotension  #syncope  #fainting  #mcas  #mcad  #mastcell  #mastcellactivationdisorder  #mastcellactivationsyndrome  #spoonie  #spooniewarrior  #zebra  #zebrastrong  #bendyaf  #darkcomedy 
With a chronic illness or disability, it sometimes feels like we’re racing against the clock or time isn’t on our side, but remember that every minute of life is a gift! ✨Even if the circumstances are not ideal in the moment, try to make the best of every situation and find gratitude in even the most challenging ones. ✨
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. #beyondmybattle #raredisease #rarediseases #rareillness #powerofthought #positivethought #somaticpsychotherapy #mastcellactivationsyndrome #MCAD #mastocytosis #hypermobility #gastroesophagealrefluxdisease #GERD #commonvariableimmunedeficiency #earlyonsetosteoarthritis #autoimmunedisease #lymedisease #crohns #crohnsdisease #PCOS #POTSawareness #POTsie #hashimotos #hashimotosdisease #chronicpain #chronicstress #chronicfatigue #chronicfatiguesyndrome #skindisease #epilepsy
With a chronic illness or disability, it sometimes feels like we’re racing against the clock or time isn’t on our side, but remember that every minute of life is a gift! ✨Even if the circumstances are not ideal in the moment, try to make the best of every situation and find gratitude in even the most challenging ones. ✨ . . . . #beyondmybattle  #raredisease  #rarediseases  #rareillness  #powerofthought  #positivethought  #somaticpsychotherapy  #mastcellactivationsyndrome  #MCAD  #mastocytosis  #hypermobility  #gastroesophagealrefluxdisease  #GERD  #commonvariableimmunedeficiency  #earlyonsetosteoarthritis  #autoimmunedisease  #lymedisease  #crohns  #crohnsdisease  #PCOS  #POTSawareness  #POTsie  #hashimotos  #hashimotosdisease  #chronicpain  #chronicstress  #chronicfatigue  #chronicfatiguesyndrome  #skindisease  #epilepsy 
I don’t take sleeping tablets but I do take gabapentin for a sleep disorder.
Last night I just couldn’t get to sleep.
I was too hot, too agitated, my brain just wouldn’t switch off.
It took until 2am to realise why.
Then a hunt for the tablets in the dark . . .
Oh the joys of your body being dependent on drugs 🙁💊.
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#fibromyalgia #ehlersdanlos #pots #potsie #posturalorthostatictachycardiasyndrome #ehlersdanlossyndrome #hypermobility #migraine #headache #mcas #mcad #mastcellactivationdisorder #vertigo #vestibular #vestibularmigraine #ic #interstitialcystitis #raynauds #chronicpain #chronicfatigue #chronicillness #sleep #spoonie
I don’t take sleeping tablets but I do take gabapentin for a sleep disorder. Last night I just couldn’t get to sleep. I was too hot, too agitated, my brain just wouldn’t switch off. It took until 2am to realise why. Then a hunt for the tablets in the dark . . . Oh the joys of your body being dependent on drugs 🙁💊. . #fibromyalgia  #ehlersdanlos  #pots  #potsie  #posturalorthostatictachycardiasyndrome  #ehlersdanlossyndrome  #hypermobility  #migraine  #headache  #mcas  #mcad  #mastcellactivationdisorder  #vertigo  #vestibular  #vestibularmigraine  #ic  #interstitialcystitis  #raynauds  #chronicpain  #chronicfatigue  #chronicillness  #sleep  #spoonie 
When you write a long, drawn out caption and Instagram decides not to save it. 😩 .... go check out my help page on my blog!
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#mastcellactivationsyndrome #mastcellactivationdisorder #mcas #mcad #invisibleillness #chronicillness #ebv #epsteinbarrvirus #moldtoxicity #molddetox #mold #pnw #spoonie #spooniesisterhood #lymedisease #detox #yogi #glutenfree #dairyfree #lowhistamine #lowoxalatediet #butyoudontlooksick #cucblog #lowhistaminediet #lowoxalate #liver #adrenalfatigue #dysautonomia #ibs
When you write a long, drawn out caption and Instagram decides not to save it. 😩 .... go check out my help page on my blog! ✨ ✨ ✨ ✨ #mastcellactivationsyndrome  #mastcellactivationdisorder  #mcas  #mcad  #invisibleillness  #chronicillness  #ebv  #epsteinbarrvirus  #moldtoxicity  #molddetox  #mold  #pnw  #spoonie  #spooniesisterhood  #lymedisease  #detox  #yogi  #glutenfree  #dairyfree  #lowhistamine  #lowoxalatediet  #butyoudontlooksick  #cucblog  #lowhistaminediet  #lowoxalate  #liver  #adrenalfatigue  #dysautonomia  #ibs 
Elle is not pleased that we are at the Doctor’s office again. Last time we were here, they ended up making me sick for a WEEK! 💙🐙
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#elletheoctopus #chronicallyraven #chronicillness #mcas #mcad #mastcell #mastcellactivationdisorder #allergies #doctor #doctorvisit #spoonie #comfortbuddy
🖤 Gratitude. 🖤
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New post on blog today, link in bio✨
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Please feel free to subscribe/ send a message/ leave a comment💗
🖤 Gratitude. 🖤 - New post on blog today, link in bio✨ - Please feel free to subscribe/ send a message/ leave a comment💗
Trying a new #MCAS friendly, #lowhistamine smoothie from healthynibblesandbits.com and it's a winner!
Trying a new #MCAS  friendly, #lowhistamine  smoothie from healthynibblesandbits.com and it's a winner!
It's Friday!!!! But even better we've only got 2 half weeks of the summer holidays left!!! This week has felt like a month.... Having Chronic Illness is hard at the best of times. But us Chronic Mum's are finding it harder than hard....
Not wanting to wish my life away but I'm looking forward to normality returning. 
Who else is struggling with the  holidays? 
#happyfriday #chronicmum #chronicallyill #mcas #mcad #chronicblogger #ukpbloggers 
#chronicillnesslife #fatigue
Oh yeah...did I mention that one of my new paintings is in this show? You should really come out and party with MCAD Alums at this opening on Friday, August 17th, 6-11 pm. Everyone is welcome. Show up, or else! 👊🏻
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#mcad @mcadedu #mcadalumni #artschoolalumni #minneapolis #mplsart #artopening #artopeningminneapolis #lifeofanartist #newwork #abstractpainting #party
Photo study from a while ago 🌲 I made this with Corel Painter testing the oil brushes! .
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#study #illustration #illo #painting #digitalart #digitalpainting #digitalillustration #tree #roots #stump #moss #river #nature #art #practice #mpls #mplsartist #mn #mnartists #corel #corelpainter #mcad #makemcad #mcadalumni
So today I had my endoscopy and then I rested. So I went to the hospital, waited awhile and then they did my IV. Next they gave me a lidocaine syrup that was literally glue😂 I had such a hard time swallowing it cuz I have swallowing difficulties with normal (glue free) food. Then they started giving my sedation and I don’t remember leaving my room or anything. Next thing I remember is waking up and I was basically fine, like barely loopy. They removed oxygen and IV and they gave me an amazing chocolate muffin😎 and I went home! I got super nauseous in the car and was having bad pain. I used my heating pad for a little bit and then slept for 3 hours. The rest of the day I still felt a little off and before the procedure I had a sore throat so that has been bothering me. So didn’t do too much else today. Also it looked normal suprisingly, but they are still waiting for the biopsies. It’s weird cuz my GERD was healed but i have a lot of acid reflux on top of my 6 GERD pills a day🤷🏼‍♀️ well that was my day. Comment below if you have had an endoscopy. Keep smiling y’all. Love always -Laur❤️
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#eds #zebrastrong  #ehlersdanlossyndrome #chronicillness #pots #allergies #anaphylaxis #crps #complexregionalpainsyndrome #chronicpain #chronicillnesswarrior #chronicillnessawareness #ibs #gerd #youtube #youtuber #chronicillnessyoutuber #medicalyoutuber #healthyoutuber #smallyoutuber #irritablebowelsyndrome #mcas #mcad #mastcellactivationsyndrome #mastcellacivationdisorder #posturalorthostatictachycardiasyndrome 
#mals #heds #hypermobileeds #endoscopy
So today I had my endoscopy and then I rested. So I went to the hospital, waited awhile and then they did my IV. Next they gave me a lidocaine syrup that was literally glue😂 I had such a hard time swallowing it cuz I have swallowing difficulties with normal (glue free) food. Then they started giving my sedation and I don’t remember leaving my room or anything. Next thing I remember is waking up and I was basically fine, like barely loopy. They removed oxygen and IV and they gave me an amazing chocolate muffin😎 and I went home! I got super nauseous in the car and was having bad pain. I used my heating pad for a little bit and then slept for 3 hours. The rest of the day I still felt a little off and before the procedure I had a sore throat so that has been bothering me. So didn’t do too much else today. Also it looked normal suprisingly, but they are still waiting for the biopsies. It’s weird cuz my GERD was healed but i have a lot of acid reflux on top of my 6 GERD pills a day🤷🏼‍♀️ well that was my day. Comment below if you have had an endoscopy. Keep smiling y’all. Love always -Laur❤️ . . . . . #eds  #zebrastrong  #ehlersdanlossyndrome  #chronicillness  #pots  #allergies  #anaphylaxis  #crps  #complexregionalpainsyndrome  #chronicpain  #chronicillnesswarrior  #chronicillnessawareness  #ibs  #gerd  #youtube  #youtuber  #chronicillnessyoutuber  #medicalyoutuber  #healthyoutuber  #smallyoutuber  #irritablebowelsyndrome  #mcas  #mcad  #mastcellactivationsyndrome  #mastcellacivationdisorder  #posturalorthostatictachycardiasyndrome  #mals  #heds  #hypermobileeds  #endoscopy 
Today I saw my #allergist and received some good news. In May, she thought I had #MastCellActivationDisorder / #MCAD. The symptoms fit, but the labs came back normal and the meds didn’t work. I met with my internist when I was in N.C. seeing my neurosurgeon in July and he said, symptoms match MCAD, treat it like MCAD. But, he thought the recommended #cervicallaminectomy would relieve a lot of my stomach issues. MY ALLERGIST AGREES! After we talked today she said what I was describing was much closer to #dysautonomia than MCAD. The fact that I’m not having flushing and hives and the general stomach things are better now than they were in May can be prescribed to things shifting in my neck. It makes sense. I have #PosturalOrthostaticTachycardiaSyndrome / #POTS a form of dysautonomia, and out of the symptoms listed in this chart I have everything, but dry mouth and tooth decay. So, one less #ChronicCondition to worry about and one more confirmed reason to have the surgery. #SpoonieWarrior #SpoonieLifeIsHard #SpoonieFriends #ChiariWarrior #ChiariMalformation #POTSsucks #Potsie #POTSlife
Today I saw my #allergist  and received some good news. In May, she thought I had #MastCellActivationDisorder  / #MCAD . The symptoms fit, but the labs came back normal and the meds didn’t work. I met with my internist when I was in N.C. seeing my neurosurgeon in July and he said, symptoms match MCAD, treat it like MCAD. But, he thought the recommended #cervicallaminectomy  would relieve a lot of my stomach issues. MY ALLERGIST AGREES! After we talked today she said what I was describing was much closer to #dysautonomia  than MCAD. The fact that I’m not having flushing and hives and the general stomach things are better now than they were in May can be prescribed to things shifting in my neck. It makes sense. I have #PosturalOrthostaticTachycardiaSyndrome  / #POTS  a form of dysautonomia, and out of the symptoms listed in this chart I have everything, but dry mouth and tooth decay. So, one less #ChronicCondition  to worry about and one more confirmed reason to have the surgery. #SpoonieWarrior  #SpoonieLifeIsHard  #SpoonieFriends  #ChiariWarrior  #ChiariMalformation  #POTSsucks  #Potsie  #POTSlife 
Reminder: MCAD Alumni Exhibit is tomorrow night at Squirrel Haus Arts in Minneapolis. Opening reception features DJ Su Na and a cash bar. Event partner The Draft Horse. For details, including gallery hours for the duration of the show, visit http://www.squirrelhausarts.com/current-events  If you’re able to make it please take photos for me!
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#mcad #minneapoliscollegeofartanddesign #mcadalum #squirrelhaus #squirrelhausarts #mnarts #mplsarts #twincitiesart #southmpls #mplsartgallery #mnart #mnartists #madeinminnesota #anntracyart #anntracyartist #anntracy
Reminder: MCAD Alumni Exhibit is tomorrow night at Squirrel Haus Arts in Minneapolis. Opening reception features DJ Su Na and a cash bar. Event partner The Draft Horse. For details, including gallery hours for the duration of the show, visit http://www.squirrelhausarts.com/current-events If you’re able to make it please take photos for me! . . . #mcad  #minneapoliscollegeofartanddesign  #mcadalum  #squirrelhaus  #squirrelhausarts  #mnarts  #mplsarts  #twincitiesart  #southmpls  #mplsartgallery  #mnart  #mnartists  #madeinminnesota  #anntracyart  #anntracyartist  #anntracy 
I will have work in the 2018 MCAD Alumni Show at Squirrel Haus Arts in Minneapolis, MN! “In Planar Camo I” is available for $280 — if you’re in the Twin Cities area go check out the show!  Opening reception is August 17th, 6 PM — 11 PM, at 3450 Snelling Ave. 
#zoeshulman #zoeshulmanstudio #mcad #squirrelhausarts
I will have work in the 2018 MCAD Alumni Show at Squirrel Haus Arts in Minneapolis, MN! “In Planar Camo I” is available for $280 — if you’re in the Twin Cities area go check out the show! Opening reception is August 17th, 6 PM — 11 PM, at 3450 Snelling Ave. #zoeshulman  #zoeshulmanstudio  #mcad  #squirrelhausarts 
sketches 🌱💕 everything on the bottom half is drawn from life - terrariums, airplant, cactus in a vintage beer can, a piece of flat rock covered in moss, and a chunk of pyrite ! ⛰ ~
+ If anyone who lives in Mpls has a cool collection of oddities/trinkets/natural history I would love to sketch what you have!! I could even do small $5-10 commissions (pencil sketch or digital painting) if anyone is interested !!! DM me 🍃
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#sketch #sketchbook #observationaldrawing #drawnfromlife #drawings #art #stilllife #illustrator #illustration #illo #mpls #mplsart #mplsartist #mn #mnartists #naturalist #naturalhistory #nature #terrarium #airplant #cactus #pyrite #moss #plant #plants #pyrite #observation #mcad #makemcad #summer #mcadalumni
sketches 🌱💕 everything on the bottom half is drawn from life - terrariums, airplant, cactus in a vintage beer can, a piece of flat rock covered in moss, and a chunk of pyrite ! ⛰ ~ + If anyone who lives in Mpls has a cool collection of oddities/trinkets/natural history I would love to sketch what you have!! I could even do small $5-10 commissions (pencil sketch or digital painting) if anyone is interested !!! DM me 🍃 . . . . #sketch  #sketchbook  #observationaldrawing  #drawnfromlife  #drawings  #art  #stilllife  #illustrator  #illustration  #illo  #mpls  #mplsart  #mplsartist  #mn  #mnartists  #naturalist  #naturalhistory  #nature  #terrarium  #airplant  #cactus  #pyrite  #moss  #plant  #plants  #pyrite  #observation  #mcad  #makemcad  #summer  #mcadalumni 
Mast Cell Keynote in Australia
Mast Cell Keynote in Australia
Back on campus getting back into the routine of training! We met with disability services today to make sure all our accommodations were in place before classes start money. We will also be meeting with all of our professors to go over Quinn, my accommodations, what to do in case of an emergency for me, and my gender as it relates to school. Being queer and visibly disabled means I take up a lot of space and am a lot more obvious in school than I want to be but I am learning to embrace it. Quinn loves the attention on campus and is continuing to rock her more challenging retrievals! Can’t wait to see how the semester goes! #servicedogintraining #sdit #medicalalertdog #pots #mcad #hypermobility #gastroparisis #psychiatricservicedog #depression #anxiety #ocd #ptsdservicedog #ptsd #suicidesurvivor #tasktrained #dogtraining #dog  #disabled #dogtraining  #blacklab #labrador #labradorgermanshepard #workingdog #dog #puppy #cutedog #balencedtraining #servicedoggear #servicedogtask #assistancedog #ehlersdanlossyndrome
Back on campus getting back into the routine of training! We met with disability services today to make sure all our accommodations were in place before classes start money. We will also be meeting with all of our professors to go over Quinn, my accommodations, what to do in case of an emergency for me, and my gender as it relates to school. Being queer and visibly disabled means I take up a lot of space and am a lot more obvious in school than I want to be but I am learning to embrace it. Quinn loves the attention on campus and is continuing to rock her more challenging retrievals! Can’t wait to see how the semester goes! #servicedogintraining  #sdit  #medicalalertdog  #pots  #mcad  #hypermobility  #gastroparisis  #psychiatricservicedog  #depression  #anxiety  #ocd  #ptsdservicedog  #ptsd  #suicidesurvivor  #tasktrained  #dogtraining  #dog  #disabled  #dogtraining  #blacklab  #labrador  #labradorgermanshepard  #workingdog  #dog  #puppy  #cutedog  #balencedtraining  #servicedoggear  #servicedogtask  #assistancedog  #ehlersdanlossyndrome 
#TBT It's been a little over a year since our EXPANDED showcase. Thank all of you who attended, MCAD for sponsoring us, Fab Lab for hosting the event, and to everyone who continues to support what we do. THANK YOU!
#AugmentedReality #AR #AugmentElPaso #ElPaso #ItsAllGoodEP #MCAD
Sometimes a beautiful beagle girl just has to cover her face and sleep. My gosh I love this girl so much.♥️🐶
Sometimes a beautiful beagle girl just has to cover her face and sleep. My gosh I love this girl so much.♥️🐶
Here is the Dysautonomia bingo! I just wanted to mention that I had several Dysautonomia warriors review this for me because it is such a broad topic and I could have included so much. So please be understanding that I did the best I could. Please use the #chronicillnessbingo and tag me so I can see your bingos! My bingo is in the 2nd pic. Tag a friend who would enjoy this bingo! Reviewed by @richelle_elissa Feel free to DM me or comment other bingo ideas! These bingos are not meant to be competitive. They are just a fun way to spread awareness for chronic illnesses. Everyone’s chronic illness affects them differently. One bingo board cannot portray someone’s chronic illness entirely. You are validated no matter how ‘sick’ you are. .
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#eds #zebrastrong #ehlersdanlossyndrome #chronicillness #pots #allergies #anaphylaxis #crps #complexregionalpainsyndrome #chronicpain #chronicillnesswarrior #chronicillnessawareness #ibs #gerd #youtube #youtuber #chronicillnessyoutuber #medicalyoutuber #healthyoutuber #smallyoutuber #irritablebowelsyndrome #mcas #mcad #mastcellactivationsyndrome #mastcellacivationdisorder #posturalorthostatictachycardiasyndrome 
#mals #heds #hypermobileeds
Here is the Dysautonomia bingo! I just wanted to mention that I had several Dysautonomia warriors review this for me because it is such a broad topic and I could have included so much. So please be understanding that I did the best I could. Please use the #chronicillnessbingo  and tag me so I can see your bingos! My bingo is in the 2nd pic. Tag a friend who would enjoy this bingo! Reviewed by @richelle_elissa Feel free to DM me or comment other bingo ideas! These bingos are not meant to be competitive. They are just a fun way to spread awareness for chronic illnesses. Everyone’s chronic illness affects them differently. One bingo board cannot portray someone’s chronic illness entirely. You are validated no matter how ‘sick’ you are. . . . . . #eds  #zebrastrong  #ehlersdanlossyndrome  #chronicillness  #pots  #allergies  #anaphylaxis  #crps  #complexregionalpainsyndrome  #chronicpain  #chronicillnesswarrior  #chronicillnessawareness  #ibs  #gerd  #youtube  #youtuber  #chronicillnessyoutuber  #medicalyoutuber  #healthyoutuber  #smallyoutuber  #irritablebowelsyndrome  #mcas  #mcad  #mastcellactivationsyndrome  #mastcellacivationdisorder  #posturalorthostatictachycardiasyndrome  #mals  #heds  #hypermobileeds 
I want to SCREAM! This is Bull Shit! Don't try to tell me I don't have POTS!  That top number was 140 with 1 minute ago 78. I had just stood up from the bathroom and was walking to the kitchen. 140-78 is much higher than 30 beats increase. It also shows within minutes/seconds I hit my lowest number 44, then my heart rate spiked to 140! That is nearly a 100 point difference in a very short time!!! But Drs who did the tilt table test didn't listen to me when I told them at the start that I was having a Mast Cell reaction to their chemical placed on my skin (was told its impossible to react)  Then they added an electric devices that zapped the chemical on my skin constantly. As a result my Blood Pressure and Heart Rate stayed maxed out very high with no change during tilt table because I was having a MCAS Attack. Come to find out I am HIGHLY allergic to my own Sweat and Tears so yes, yes it IS possible to react to that chemical they placed on my skin that was to be the same as sweat. Recently I read that MCAS reacts to UV Rays (Sun) and Electrical Stimulus (they used to zap my skin). I still had a chemical burn in the shape of a circled welp 12 hrs after test ended on the inside of my arm, I couldn't let anything touch it, just air blowing over it hurt. But the Drs refused to take into consideration that I was having an allergic reaction that should have voided the test results. They put in my medical record that I do not have POTS and won't let me retest. Within the last month taking the elevator several floors up has caused my legs to give out and required a wheelchair to be brought to me. I spent my entire Dr visit seated in the wheelchair. I did not have problems using elevators until last month, it is embarrassing needing staff to bring me a wheelchair. 
#MastCell #MastCellActivationSyndrome #MCAS #MCAD #MastCellActivationDisorder
#EhlersDanlos
#EhlersDanlosSyndrome #EDS #hypermobility 
#SpoonTheory #Spoonie #Spoons #spoonielife  #ProfessionalPatient  #InvisibleIllness  #Migtaine #ClusterHeadache #SuicideHeadaches #ChronicPain #ChronicFatigue #Chronicillness #ZebrasUnite #ZebraStrong #ZebraStripes #zebra  #spineissues #Spine #POTS #Sleep #Hypothyroidism
I want to SCREAM! This is Bull Shit! Don't try to tell me I don't have POTS! That top number was 140 with 1 minute ago 78. I had just stood up from the bathroom and was walking to the kitchen. 140-78 is much higher than 30 beats increase. It also shows within minutes/seconds I hit my lowest number 44, then my heart rate spiked to 140! That is nearly a 100 point difference in a very short time!!! But Drs who did the tilt table test didn't listen to me when I told them at the start that I was having a Mast Cell reaction to their chemical placed on my skin (was told its impossible to react) Then they added an electric devices that zapped the chemical on my skin constantly. As a result my Blood Pressure and Heart Rate stayed maxed out very high with no change during tilt table because I was having a MCAS Attack. Come to find out I am HIGHLY allergic to my own Sweat and Tears so yes, yes it IS possible to react to that chemical they placed on my skin that was to be the same as sweat. Recently I read that MCAS reacts to UV Rays (Sun) and Electrical Stimulus (they used to zap my skin). I still had a chemical burn in the shape of a circled welp 12 hrs after test ended on the inside of my arm, I couldn't let anything touch it, just air blowing over it hurt. But the Drs refused to take into consideration that I was having an allergic reaction that should have voided the test results. They put in my medical record that I do not have POTS and won't let me retest. Within the last month taking the elevator several floors up has caused my legs to give out and required a wheelchair to be brought to me. I spent my entire Dr visit seated in the wheelchair. I did not have problems using elevators until last month, it is embarrassing needing staff to bring me a wheelchair. #MastCell  #MastCellActivationSyndrome  #MCAS  #MCAD  #MastCellActivationDisorder  #EhlersDanlos  #EhlersDanlosSyndrome  #EDS  #hypermobility  #SpoonTheory  #Spoonie  #Spoons  #spoonielife  #ProfessionalPatient   #InvisibleIllness   #Migtaine  #ClusterHeadache  #SuicideHeadaches  #ChronicPain  #ChronicFatigue  #Chronicillness  #ZebrasUnite  #ZebraStrong  #ZebraStripes  #zebra  #spineissues  #Spine  #POTS  #Sleep  #Hypothyroidism 
Hand Therapy just upgraded me in putty-strength!
My hand strength has officially TRIPLED since starting Occupational Therapy just a couple months ago, and she’s going to put the order in for my silver ring splints to see if insurance will at least cover PART of the small fortune they’re going to cost 😂
It has made SUCH A DIFFERENCE working with physical therapist who actually have an understanding of what’s wrong with me, and how to work around all those limitations to get the most gain 💙🦓
I’m still subluxating fingers every day, and all the pain is still there... but I AM STRONGER, and I will TAKE IT.
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#spoonie #chronicillness #invisibleillness #pots #posturalorthostatictachycardiasyndrome #potsie #dysautonomia #autonomicdysfunction #myalgicencephalomyelitis #fibromyalgia #chronicfatigue #chronicfatiguesyndrome #gastroparesis #ehlersdanlossyndrome #heds #zebrastrong #spooniestrong #chronicallyawesome #sicktiredandalone #mcad #mcas #mastcell #smallfiberneuropathy #craniocervicalinstability #occupationaltherapy #greenputty #physicaltherapy
Hand Therapy just upgraded me in putty-strength! My hand strength has officially TRIPLED since starting Occupational Therapy just a couple months ago, and she’s going to put the order in for my silver ring splints to see if insurance will at least cover PART of the small fortune they’re going to cost 😂 It has made SUCH A DIFFERENCE working with physical therapist who actually have an understanding of what’s wrong with me, and how to work around all those limitations to get the most gain 💙🦓 I’m still subluxating fingers every day, and all the pain is still there... but I AM STRONGER, and I will TAKE IT. . . . . #spoonie  #chronicillness  #invisibleillness  #pots  #posturalorthostatictachycardiasyndrome  #potsie  #dysautonomia  #autonomicdysfunction  #myalgicencephalomyelitis  #fibromyalgia  #chronicfatigue  #chronicfatiguesyndrome  #gastroparesis  #ehlersdanlossyndrome  #heds  #zebrastrong  #spooniestrong  #chronicallyawesome  #sicktiredandalone  #mcad  #mcas  #mastcell  #smallfiberneuropathy  #craniocervicalinstability  #occupationaltherapy  #greenputty  #physicaltherapy 
Come join me for lunch break #artlunch #artscapeforlunch I will be here performing a very intimate talk with whom ever so desires to come. The sound proof box performance  will start next week. Swing by for a hug or a chat or for art!! Will be here from 12-1pm and tomorrow as well! Same hours. Will keep reminding you .
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#downtownelpaso #dntwn #art #artshow #gallery #comeby #itsallgoodep #elpaso #elpasotexas #dmd #mcad #mcadaip #aip #jewellery #contemporary #performance
Come join me for lunch break #artlunch  #artscapeforlunch  I will be here performing a very intimate talk with whom ever so desires to come. The sound proof box performance will start next week. Swing by for a hug or a chat or for art!! Will be here from 12-1pm and tomorrow as well! Same hours. Will keep reminding you . . . . . . . #downtownelpaso  #dntwn  #art  #artshow  #gallery  #comeby  #itsallgoodep  #elpaso  #elpasotexas  #dmd  #mcad  #mcadaip  #aip  #jewellery  #contemporary  #performance 
Ways to be alone.
New blog post!
A few ideas on how to spend your time when you are on your own.
And let’s face it, when you are unwell a lot of time is spent by yourself when others are at work or out and about.
So here’s a few things I like to do!
Link in bio.
Hope you like it!
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#fibro #fibromyalgia #pots #eds #mcas #mcad #posturalorthostatictachycardiasyndrome #potsie #painfulbladdersyndrome #ehlersdanlos #ehlersdanlossyndrome #hypermobility #migraine #headache #vertigo #vestibular #vestibularmigraine #ic #interstitialcystitis #raynauds #mastcellactivationdisorder #spoonie #chronicpain #chronicillness #chronicfatigue #dizzy #balance #zebra
Ways to be alone. New blog post! A few ideas on how to spend your time when you are on your own. And let’s face it, when you are unwell a lot of time is spent by yourself when others are at work or out and about. So here’s a few things I like to do! Link in bio. Hope you like it! . #fibro  #fibromyalgia  #pots  #eds  #mcas  #mcad  #posturalorthostatictachycardiasyndrome  #potsie  #painfulbladdersyndrome  #ehlersdanlos  #ehlersdanlossyndrome  #hypermobility  #migraine  #headache  #vertigo  #vestibular  #vestibularmigraine  #ic  #interstitialcystitis  #raynauds  #mastcellactivationdisorder  #spoonie  #chronicpain  #chronicillness  #chronicfatigue  #dizzy  #balance  #zebra 
Chronic illnesses + working on my mind, body and soul + Plexus = Healthy-ish ☺️
Chronic illnesses + working on my mind, body and soul + Plexus = Healthy-ish ☺️
{This is a post for how to react if someone has a seizure near you - 🐉

Photo ID: a list of do’s line the left hand side and a list of Don’ts line the right hand side. The do’s are in blue and green boxes and also in a grey box in the bottom right corner. The do’s are: 
SAFETY - Make the area safe - clear hazardous objects and minimise the number of people in the area. Put something soft under the person’s head.
TIME - Time how long the seizures last
ACT CALM - it is important to keep your cool and remain calm so you can help the person who is  having the seizure
RECOVERY POSITION - once the seizure has stopped, gently turn the person on their side and clear their airway (mouth and nose). Stay with the person until they are conscious, breathing and recovered.  Check the person for any injuries.

The dont’s are:
DONT MOVE THEM unless absolutely necessary.
DON’T put anything into their mouth. 
DON’T pin them down.

Then in the grey box it reminds you to call an ambulance if:

The seizure has lasted more than 5 minutes.
Head injury has been sustained.
An injury has been sustained during the seizure that requires medical attention.
It’s the first time they’ve had a seizure. }
#accessible #photoid #accessibility #seizure #seizures #epilepsy #mcad
{This is a post for how to react if someone has a seizure near you - 🐉 Photo ID: a list of do’s line the left hand side and a list of Don’ts line the right hand side. The do’s are in blue and green boxes and also in a grey box in the bottom right corner. The do’s are: SAFETY - Make the area safe - clear hazardous objects and minimise the number of people in the area. Put something soft under the person’s head. TIME - Time how long the seizures last ACT CALM - it is important to keep your cool and remain calm so you can help the person who is having the seizure RECOVERY POSITION - once the seizure has stopped, gently turn the person on their side and clear their airway (mouth and nose). Stay with the person until they are conscious, breathing and recovered. Check the person for any injuries. The dont’s are: DONT MOVE THEM unless absolutely necessary. DON’T put anything into their mouth. DON’T pin them down. Then in the grey box it reminds you to call an ambulance if: The seizure has lasted more than 5 minutes. Head injury has been sustained. An injury has been sustained during the seizure that requires medical attention. It’s the first time they’ve had a seizure. } #accessible  #photoid  #accessibility  #seizure  #seizures  #epilepsy  #mcad 
Time to be a dog is important and needed to help prevent burnout! And it allows them to just be dogs! Even with pain in the butt squeaky toys. 😑 #diamondintheruff #savingmyhuman #servicedogintraining #offduty #playtime #pots #mcad #gastroparesis #ehlersdanlossyndrome #eds #labradoodle #blessed #mygirl #playtime
Oh mast cell activation syndrome, I really, really hate you. Currently in a GI and respiratory flare induced by upset emotions last night. I’ve been in and out of the bathroom for the past 4 hours and it’s not letting up yet. The tears started at hour 3 because I’m alone and a part of me always panics when I’m by myself and my symptoms get out of hand. I’m always scared I’ll start anaphylaxis. My mom and dad are coming to pick me and the dogs up to take care of me. Please pray I don’t have to go to the ER today or this weekend. I rarely have great experiences with hospitals and am having anxiety over the possibility of going. I am supposed to be titrating up on my mast cell stabilizers today, which causes flares, so I won’t be able to do that today. My body can’t handle it. #thisis30
Oh mast cell activation syndrome, I really, really hate you. Currently in a GI and respiratory flare induced by upset emotions last night. I’ve been in and out of the bathroom for the past 4 hours and it’s not letting up yet. The tears started at hour 3 because I’m alone and a part of me always panics when I’m by myself and my symptoms get out of hand. I’m always scared I’ll start anaphylaxis. My mom and dad are coming to pick me and the dogs up to take care of me. Please pray I don’t have to go to the ER today or this weekend. I rarely have great experiences with hospitals and am having anxiety over the possibility of going. I am supposed to be titrating up on my mast cell stabilizers today, which causes flares, so I won’t be able to do that today. My body can’t handle it. #thisis30 
It’s an “ignore how many pain patches you’re supposed to use at one time” kind of day.
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#coathangerpain
It’s an “ignore how many pain patches you’re supposed to use at one time” kind of day. . . . #coathangerpain 
How many of us discredit little achievements because they aren’t as good as things we used to do or as good as that which other people do?
I bet it’s a LOT of us.
I do it all the time.
Instead of celebrating what we can do we listen to that little voice and feel bad about ourselves.
Which makes us feel worse and stressed and maybe even prevents us from trying new things or doing something enjoyable.
Let’s start appreciating what we do do, rather than thinking about what we don’t.
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#fibromyalgia #potsie #painfulbladdersyndrome #posturalorthostatictachycardiasyndrome #pots #eds #ehlersdanlos #ehlersdanlossyndrome #zebra #zebrastrong #hypermobility #mcas #mcad #mastcellactivationdisorder #lowhistamine #ic #interstitialcystitis #migraine #headache #chronicheadache #chronicmigraine #vertigo #vestibular #vestibularmigraine #raynauds #chronicpain #chronicfatigue #chronicillness #balance #spoonie
How many of us discredit little achievements because they aren’t as good as things we used to do or as good as that which other people do? I bet it’s a LOT of us. I do it all the time. Instead of celebrating what we can do we listen to that little voice and feel bad about ourselves. Which makes us feel worse and stressed and maybe even prevents us from trying new things or doing something enjoyable. Let’s start appreciating what we do do, rather than thinking about what we don’t. . #fibromyalgia  #potsie  #painfulbladdersyndrome  #posturalorthostatictachycardiasyndrome  #pots  #eds  #ehlersdanlos  #ehlersdanlossyndrome  #zebra  #zebrastrong  #hypermobility  #mcas  #mcad  #mastcellactivationdisorder  #lowhistamine  #ic  #interstitialcystitis  #migraine  #headache  #chronicheadache  #chronicmigraine  #vertigo  #vestibular  #vestibularmigraine  #raynauds  #chronicpain  #chronicfatigue  #chronicillness  #balance  #spoonie 
What have you done with summer London?
I’m cold and wearing slippers in August (ok so I do have Raynauds, but even still).
I’m not sure whether I prefer it being too hot or too cold, but rain and cloud is just miserable!
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Throwback to poppies at Kew earlier in the summer.
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#fibro #pots #eds #fibromyalgia #potsie #posturalorthostatictachycardiasyndrome #painfulbladdersyndrome #dysautonomia #ehlersdanlossyndrome #headache #hypermobility #migraine #ic #mcas #mcad #mastcellactivationdisorder #interstitialcystitis #raynauds #vertigo #vestibular #vestibularmigraine #chronicpain #chronicfatigue #chronicillness #invisibleillness #poppy #kewgardens
What have you done with summer London? I’m cold and wearing slippers in August (ok so I do have Raynauds, but even still). I’m not sure whether I prefer it being too hot or too cold, but rain and cloud is just miserable! . Throwback to poppies at Kew earlier in the summer. . #fibro  #pots  #eds  #fibromyalgia  #potsie  #posturalorthostatictachycardiasyndrome  #painfulbladdersyndrome  #dysautonomia  #ehlersdanlossyndrome  #headache  #hypermobility  #migraine  #ic  #mcas  #mcad  #mastcellactivationdisorder  #interstitialcystitis  #raynauds  #vertigo  #vestibular  #vestibularmigraine  #chronicpain  #chronicfatigue  #chronicillness  #invisibleillness  #poppy  #kewgardens 
Lots of books and zines going out the door this week for @autopticfestival this Sunday the 19th! (Work by @madmcgrane) #comics #zines #mcad #mcadsb #autoptic
Just one of those days. Thank goodness tomorrow is Friday! Whose with me? What helps you to push through those hard days?
Just one of those days. Thank goodness tomorrow is Friday! Whose with me? What helps you to push through those hard days?
Mast Cell Activation Disorders (MCAD) are highly comorbid with Ehlers Danlos Syndromes (EDS), along with Postural Orthostatic Tachycardia Syndrome (POTS), in severe cases, anaphylaxis may occur at random. •
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Help me get a power chair and afford my trip to Boston Children’s Hospital in November by donating to my gofundme! Link in bio
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#chronicallyill  #chronicillness #disabled #disability #mentalhealth #chronicpain #limitedmobility #mentalillness #insomnia #EDS #IBS #CFSME #endometriosis #bipolar #PCOS #POTS #spoonies #ableism #spooniesunite #mobilityaids #wheelchair #homeless #mastcellactivationdisorder #mcad #mcas #ehlersdanlossyndrome
Mast Cell Activation Disorders (MCAD) are highly comorbid with Ehlers Danlos Syndromes (EDS), along with Postural Orthostatic Tachycardia Syndrome (POTS), in severe cases, anaphylaxis may occur at random. • • Help me get a power chair and afford my trip to Boston Children’s Hospital in November by donating to my gofundme! Link in bio • • • #chronicallyill  #chronicillness  #disabled  #disability  #mentalhealth  #chronicpain  #limitedmobility  #mentalillness  #insomnia  #EDS  #IBS  #CFSME  #endometriosis  #bipolar  #PCOS  #POTS  #spoonies  #ableism  #spooniesunite  #mobilityaids  #wheelchair  #homeless  #mastcellactivationdisorder  #mcad  #mcas  #ehlersdanlossyndrome 
It's pouring with rain and it's grey outside. Suits my mood perfectly. 
I have a PIP assessment later today. For those that don't know,  PIP is personal Independent payments. You can get if you are considered to be Sick/Disabled enough in this Country. 
But you have to have reviews, so they can check I haven't suddenly made a miraculous recovery. 
I kinda understand that, but my multiple Illnessess aren't going to just vanish. And this assessment shite just makes me anxious. 
I start to panic and worry that I'm not Ill enough to still receive it. Which is ridiculous because you can work and still receive this particular payment. I'm not sure why this panic and stress comes over us when we have reviews etc. But I know most of us warriors get that way. 
In the meantime I'm going to try my best to not work myself up into a frenzy as stress causes me to react, and my body hates stress. 
Long live the day they begin to actually listen to the medical professionals rather than putting us through this stress regulary! 
Wish me luck! 😘

#chronicallyill #chronicillness
#chronic #chronicpain #chronicfatigue #spoonies #missingmillions #mcad #immunosuppressed #sickgirlproblems #mcas #thyroidproblems #chronicbloggers
It's pouring with rain and it's grey outside. Suits my mood perfectly. I have a PIP assessment later today. For those that don't know, PIP is personal Independent payments. You can get if you are considered to be Sick/Disabled enough in this Country. But you have to have reviews, so they can check I haven't suddenly made a miraculous recovery. I kinda understand that, but my multiple Illnessess aren't going to just vanish. And this assessment shite just makes me anxious. I start to panic and worry that I'm not Ill enough to still receive it. Which is ridiculous because you can work and still receive this particular payment. I'm not sure why this panic and stress comes over us when we have reviews etc. But I know most of us warriors get that way. In the meantime I'm going to try my best to not work myself up into a frenzy as stress causes me to react, and my body hates stress. Long live the day they begin to actually listen to the medical professionals rather than putting us through this stress regulary! Wish me luck! 😘 #chronicallyill  #chronicillness  #chronic  #chronicpain  #chronicfatigue  #spoonies  #missingmillions  #mcad  #immunosuppressed  #sickgirlproblems  #mcas  #thyroidproblems  #chronicbloggers 
So I had my visit with Dr. Castells at Brigham and Women’s hospital. I’m going to say it went ok. I didn’t leave with that huge sigh of relief that we sometimes can feel and I know I left out/forgot important information even with my cheat notes. I was a little disappointed that after waiting 14 months for this appointment I was primarily seen by Dr. Castells allergy fellow and only saw Dr. Castells for about 5 minutes. As someone who worked in the medical field I can obviously appreciate the role and need for fellowships and training but, as a patient with a very complicated and complex medical situation that needs to be properly diagnosed, I was there to see the expert, not the person still training to become an Allergist. In a lot of situations I wouldn’t mind, but not this one. The visit was very disorganized. That being said, I was able to read her notes once I got home and I’m definitely on the right track. I meet the criteria for MCAS which I knew all along, but because I waited so long to be seen, my initial labs are from November 2016 (I had an elevated histamine almost 4x higher than normal), so she’s repeating my 24hr urine histamine and Trypase levels and has also ordered: Urine 2,3-Dinor-11 Beta prostaglandins F2 alpha; KIT D816V genetic mutation; Chronic urticaria index; TSH; Thyroperoxidase (TPO) ab; Total IgE and some scattered food trigger IgE’s; CBC; Comp metabolic panel. 
She said if my histamine, tryptase, or prostaglandin is elevated, then I would fall under the criteria of secondary MCAS as I have over 2 organ systems involved, had some improvement on the meds, and have EDS/POTS. My treatment recommendations will include the use of antihistamines, Gastroctom, Ketotifen, and possibly Xolair (although I’ve already tried Gastrocrom and couldn’t tolerate it). Guess we’ll cross that bridge again when we come to it. 
So I’m just waiting for lab results and diagnosis confirmation again. She wants to see me again after Christmas, but of course she’s scheduled out until next August. I’m definitely going to need help before then for so many reasons.
So I had my visit with Dr. Castells at Brigham and Women’s hospital. I’m going to say it went ok. I didn’t leave with that huge sigh of relief that we sometimes can feel and I know I left out/forgot important information even with my cheat notes. I was a little disappointed that after waiting 14 months for this appointment I was primarily seen by Dr. Castells allergy fellow and only saw Dr. Castells for about 5 minutes. As someone who worked in the medical field I can obviously appreciate the role and need for fellowships and training but, as a patient with a very complicated and complex medical situation that needs to be properly diagnosed, I was there to see the expert, not the person still training to become an Allergist. In a lot of situations I wouldn’t mind, but not this one. The visit was very disorganized. That being said, I was able to read her notes once I got home and I’m definitely on the right track. I meet the criteria for MCAS which I knew all along, but because I waited so long to be seen, my initial labs are from November 2016 (I had an elevated histamine almost 4x higher than normal), so she’s repeating my 24hr urine histamine and Trypase levels and has also ordered: Urine 2,3-Dinor-11 Beta prostaglandins F2 alpha; KIT D816V genetic mutation; Chronic urticaria index; TSH; Thyroperoxidase (TPO) ab; Total IgE and some scattered food trigger IgE’s; CBC; Comp metabolic panel. She said if my histamine, tryptase, or prostaglandin is elevated, then I would fall under the criteria of secondary MCAS as I have over 2 organ systems involved, had some improvement on the meds, and have EDS/POTS. My treatment recommendations will include the use of antihistamines, Gastroctom, Ketotifen, and possibly Xolair (although I’ve already tried Gastrocrom and couldn’t tolerate it). Guess we’ll cross that bridge again when we come to it. So I’m just waiting for lab results and diagnosis confirmation again. She wants to see me again after Christmas, but of course she’s scheduled out until next August. I’m definitely going to need help before then for so many reasons.
as I finished my last day of work today, it made me realize how fast this summer went by! Low key feel like all I did this summer was be chronically ill but it’s ok, I’m adjusting to the chronically ill life. So today I worked the morning shift, had PT, got Chick Fil a for lunch, relaxed, started packing for college😬, worked the afternoon shift (1 shift=2 hours), had dinner with my family, and spent 3 hours talking to Apple about why my phone wouldn’t sync ( got it figured out). So kinda busy day. Today I seemed to have more aches and pains like short term pains. But still having abdominal pain pretty consistently as well as low back pain. Tomorrow I get my endoscopy so idk when the bingo and update will be going up but hopefully they will! Keep fighting y’all💪🏻 Love always -Laur❤️
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#eds #zebrastrong  #ehlersdanlossyndrome #chronicillness #pots #allergies #anaphylaxis #crps #complexregionalpainsyndrome #chronicpain #chronicillnesswarrior #chronicillnessawareness #ibs #gerd #youtube #youtuber #chronicillnessyoutuber #medicalyoutuber #healthyoutuber #smallyoutuber #irritablebowelsyndrome #mcas #mcad #mastcellactivationsyndrome #mastcellacivationdisorder #posturalorthostatictachycardiasyndrome 
#mals #heds #hypermobileeds
as I finished my last day of work today, it made me realize how fast this summer went by! Low key feel like all I did this summer was be chronically ill but it’s ok, I’m adjusting to the chronically ill life. So today I worked the morning shift, had PT, got Chick Fil a for lunch, relaxed, started packing for college😬, worked the afternoon shift (1 shift=2 hours), had dinner with my family, and spent 3 hours talking to Apple about why my phone wouldn’t sync ( got it figured out). So kinda busy day. Today I seemed to have more aches and pains like short term pains. But still having abdominal pain pretty consistently as well as low back pain. Tomorrow I get my endoscopy so idk when the bingo and update will be going up but hopefully they will! Keep fighting y’all💪🏻 Love always -Laur❤️ . . . . . #eds  #zebrastrong  #ehlersdanlossyndrome  #chronicillness  #pots  #allergies  #anaphylaxis  #crps  #complexregionalpainsyndrome  #chronicpain  #chronicillnesswarrior  #chronicillnessawareness  #ibs  #gerd  #youtube  #youtuber  #chronicillnessyoutuber  #medicalyoutuber  #healthyoutuber  #smallyoutuber  #irritablebowelsyndrome  #mcas  #mcad  #mastcellactivationsyndrome  #mastcellacivationdisorder  #posturalorthostatictachycardiasyndrome  #mals  #heds  #hypermobileeds 
Ugh Part 2: The Sequel 
Reminder that the For the Love of Art show at Dough Traders is this upcoming Tuesday!! The 21st!! .
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#art🎨 #art #artist #artistsoninstagram #embroidery #embroided #embroideryart #crafts #craft #womenswork #sarcasm #floral #summer2018 #2k18 #makemcad #mcad #minneapoliscollegeofartanddesign #blackhills #southdakota
"I decided to work with artists who were critical of the idea of nation” - Joselina Cruz, at @ArtspaceSydney last Thursday, talking about representing The Phillipines at the Venice Biennale in 2017 through her curation of the Phillipines Pavilion. 
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#Internationalart #Globalart #Nationalart #Localart #Nation #Citizenship #MCAD #Phillipines #Artspace #Arttalks #Venice #VeniceBiennale #BiennaleArte2017 #tbt
My symptoms keep worsening. I have full fledged migraine pain daily now, my neck is constantly slipping in and out of place, my memory is incredibly poor, swallowing issues are worsening and I seem to choke on everything. So many symptoms, that I can hardly keep track of them. I’m so scared that things won’t ever change. I don’t see an end in sight, and don’t see the point in making even short term goals. I usually try to keep my account positive, but I’m feeling so hopeless these days. I thought I should be honest in case anyone is feeling like I am. I feel shame and guilt for feeling so negative about things, so I’m hoping by putting it out there, that maybe it’ll help lift the stigma about “negativity” and help people experiencing these same feelings. I try to remind myself that it’s normal and healthy to process everything that I’m going through in the way that I am. That I shouldn’t be ashamed that I can’t always put on a smiling face. I keep telling myself that even though I don’t see an end to this, that things will improve one day. Have you experienced these thoughts and feelings before? How did you cope with them? #eds #ehlersdanlossyndrome #cci #csfleak #chronicpain #pots #posturalorthostatictachycardiasyndrome #undiagnosed #mastcellactivationdisorder #mcad #mcas #chronicillness #mentalhealth
My symptoms keep worsening. I have full fledged migraine pain daily now, my neck is constantly slipping in and out of place, my memory is incredibly poor, swallowing issues are worsening and I seem to choke on everything. So many symptoms, that I can hardly keep track of them. I’m so scared that things won’t ever change. I don’t see an end in sight, and don’t see the point in making even short term goals. I usually try to keep my account positive, but I’m feeling so hopeless these days. I thought I should be honest in case anyone is feeling like I am. I feel shame and guilt for feeling so negative about things, so I’m hoping by putting it out there, that maybe it’ll help lift the stigma about “negativity” and help people experiencing these same feelings. I try to remind myself that it’s normal and healthy to process everything that I’m going through in the way that I am. That I shouldn’t be ashamed that I can’t always put on a smiling face. I keep telling myself that even though I don’t see an end to this, that things will improve one day. Have you experienced these thoughts and feelings before? How did you cope with them? #eds  #ehlersdanlossyndrome  #cci  #csfleak  #chronicpain  #pots  #posturalorthostatictachycardiasyndrome  #undiagnosed  #mastcellactivationdisorder  #mcad  #mcas  #chronicillness  #mentalhealth 
Today’s appointment was at the pain management centre at Cleveland Street. I have 1:1 physio and psychology to help manage my pain and learn to live alongside my illnesses. Today was a psychology session and really opened my eyes to things👍🏼
Today’s appointment was at the pain management centre at Cleveland Street. I have 1:1 physio and psychology to help manage my pain and learn to live alongside my illnesses. Today was a psychology session and really opened my eyes to things👍🏼
This week I’ve reviewed 20 of the best scar treatments I’ve tried! {link in bio} Check them out so you don’t have to waste all the money I did to figure out what works.
This week I’ve reviewed 20 of the best scar treatments I’ve tried! {link in bio} Check them out so you don’t have to waste all the money I did to figure out what works.
This show will showcase jewelry, small objects, and performance by Paulina Rosas. Jewelry will be available for sale! Don’t miss out! 
#mcad #mcadaip #aip #jewelry #contemporaryjewelry #contemporaryart #performance #performanceart #show #exhibition #soloshow #soloexhibition #silver #gold #brass #itsallgoodep #thefaultinourlove #artspace #artspaceelpaso #artspaceelpasolofts #heart
I’m fresh out of ideas guys! I feel like my account is failing, and that I am failing you guys. I don’t want to let you down, so any ideas for this account would be great! With all my heart 💞 #Invisibleillness #singing #LowerCranioCervical/ThoracicInstability #ChronicVertigo #ChronicMigraines #GIdismotility #MCAD #smile #love #happiness #yourebeautiful #iloveyou #everyoneIsSpecial  #sing #singing #music #edits #strength #POTS #Dysautonomia #EhlersDanlos3 #CervicalInstability #SpinalFusion #NervePain #MusclesSpasms #chronicIllness #Potsie #Zebras #Spoonies #Unicorns #WeAreNotOkay
I’m fresh out of ideas guys! I feel like my account is failing, and that I am failing you guys. I don’t want to let you down, so any ideas for this account would be great! With all my heart 💞 #Invisibleillness  #singing  #LowerCranioCervical /ThoracicInstability #ChronicVertigo  #ChronicMigraines  #GIdismotility  #MCAD  #smile  #love  #happiness  #yourebeautiful  #iloveyou  #everyoneIsSpecial  #sing  #singing  #music  #edits  #strength  #POTS  #Dysautonomia  #EhlersDanlos3  #CervicalInstability  #SpinalFusion  #NervePain  #MusclesSpasms  #chronicIllness  #Potsie  #Zebras  #Spoonies  #Unicorns  #WeAreNotOkay 
Worked on Quincy’s adult set-up today by adding a double sided patch sign to her handle. This set up will actually will fit her now until she is full grown. I am just waiting on a leash from @rugersropes and a cape from @caninecradle that matches her bandana, then it should be complete! Harness form @purplepoodles, collar/bandana from @lcpetlooks and harness tabs from @tabs.by.mali DISCLAIMER: Quincy will not be doing any mobility tasks using the handles on this harness until she is of age and has the proper testing completed. But for now, she can still wear the harness to get used to it!
Worked on Quincy’s adult set-up today by adding a double sided patch sign to her handle. This set up will actually will fit her now until she is full grown. I am just waiting on a leash from @rugersropes and a cape from @caninecradle that matches her bandana, then it should be complete! Harness form @purplepoodles, collar/bandana from @lcpetlooks and harness tabs from @tabs.by.mali DISCLAIMER: Quincy will not be doing any mobility tasks using the handles on this harness until she is of age and has the proper testing completed. But for now, she can still wear the harness to get used to it!
I am posting this picture because I have a smile on my face, this smile is rare these days. My number one battle right now is getting others to understand my struggle and to support the tough decisions I need to make to get healthy again. These decisions have already included moving out of my rental and back in with my parents, it’s included giving up my social life to spend all my free time detoxing my body of mold and sleeping off the constant fatigue and pure exhaustion. It’s included being unable to perform at work at my highest level, constantly forgetting things, unable to form sentences and unable to focus on tasks due to my severe brain fog. I look healthy but boy, I am so not. 🌬

For years I have felt sick, and have always wondered if it is just in my head and the best feeling I’ve ever had in my life was to learn that it’s not, that there IS a reason I feel this way. No I don’t wish to be sick but I sure as hell am glad that I can move onto a treatment plan instead of remaining as confused as I was. Let me tell you, if you are in a similar situation as I am and I was, listen to your body. I got nosebleeds for the first time in my life 7 months ago and ignored that major red flag. This is your life and you don’t need to continue feeling like shit. Who cares what people are going to think of you! My brain is literally on fire as well as the rest of my body and my body, my soul, has become my number one priority right now and for the rest of my life. 🌸

Self care isn’t selfish, it’s the most rewarding thing you’ll ever do in life. 💫
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#mastcellactivationsyndrome #mcas #mcad #mastcell #namaste #yogi #lulus #invisibleillness #chronicillness #moldtoxicity #moldawareness #pnw #autoimmunedisease #epsteinbarrvirus #ebv #chronicebv #youdontlooksick #nutrition #spoonie #spooniesisterhood #antihistamine #lowhistaminediet #lowoxalatediet #oxidativestress #detox #molddetox
I am posting this picture because I have a smile on my face, this smile is rare these days. My number one battle right now is getting others to understand my struggle and to support the tough decisions I need to make to get healthy again. These decisions have already included moving out of my rental and back in with my parents, it’s included giving up my social life to spend all my free time detoxing my body of mold and sleeping off the constant fatigue and pure exhaustion. It’s included being unable to perform at work at my highest level, constantly forgetting things, unable to form sentences and unable to focus on tasks due to my severe brain fog. I look healthy but boy, I am so not. 🌬 For years I have felt sick, and have always wondered if it is just in my head and the best feeling I’ve ever had in my life was to learn that it’s not, that there IS a reason I feel this way. No I don’t wish to be sick but I sure as hell am glad that I can move onto a treatment plan instead of remaining as confused as I was. Let me tell you, if you are in a similar situation as I am and I was, listen to your body. I got nosebleeds for the first time in my life 7 months ago and ignored that major red flag. This is your life and you don’t need to continue feeling like shit. Who cares what people are going to think of you! My brain is literally on fire as well as the rest of my body and my body, my soul, has become my number one priority right now and for the rest of my life. 🌸 Self care isn’t selfish, it’s the most rewarding thing you’ll ever do in life. 💫 ✨ ✨ ✨ ✨ #mastcellactivationsyndrome  #mcas  #mcad  #mastcell  #namaste  #yogi  #lulus  #invisibleillness  #chronicillness  #moldtoxicity  #moldawareness  #pnw  #autoimmunedisease  #epsteinbarrvirus  #ebv  #chronicebv  #youdontlooksick  #nutrition  #spoonie  #spooniesisterhood  #antihistamine  #lowhistaminediet  #lowoxalatediet  #oxidativestress  #detox  #molddetox 
Nessa manhã estivemos participando da Consagração da Missão com Adolescentes do bairro do Telégrafo onde também ministrei em uma oficina sobre a pregação da Palavra de Deus.
Parabéns a coordenação pela iniciativa e agradeço o convite. Toda glória seja dada a Ele.

#EuFaloDeJesus 
#Church 
#MissaoComAdolescentes
#MCAD
Nessa manhã estivemos participando da Consagração da Missão com Adolescentes do bairro do Telégrafo onde também ministrei em uma oficina sobre a pregação da Palavra de Deus. Parabéns a coordenação pela iniciativa e agradeço o convite. Toda glória seja dada a Ele. #EuFaloDeJesus  #Church  #MissaoComAdolescentes  #MCAD 
So two out of the four ppl living in my house are very sick and wow I’m scared. I wanna go to my grandparents house or something 😂😂 • •
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Hi all! We are busy installing our next exhibition, the 2018 MCAD Faculty Biennial! Mark your calendars for the reception on September 7th from 6–9pm! 👍
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#install #mcadgallery #mcad #makemcad #faculty #exhibition #hardatwork
I went to a wedding this morning and now the ‘evening’ part of the day is about to start.
I am SO tired.
I have tried eating, a walk and a nap in between to perk myself up but it’s not really helping.
I was all planned - outfit, meds, early night last night etc.
Any other tips to share?
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#fibromyalgia #potssyndrome #potsie #posturalorthostatictachycardiasyndrome #dysautonomia #eds #ehlersdanlos #ehlersdanlossyndrome #hypermobility #migraine #headache #mcas #mcad #mastcell #lowhistamine #ic #interstitialcystitis #raynauds #vertigo #vestibular #vestibularmigraine #spoonie #chronicpain #chronicfatigue #chronicillness #dizzy #balance #bladderproblems #painfulbladdersyndrome #invisibleillness
I went to a wedding this morning and now the ‘evening’ part of the day is about to start. I am SO tired. I have tried eating, a walk and a nap in between to perk myself up but it’s not really helping. I was all planned - outfit, meds, early night last night etc. Any other tips to share? . #fibromyalgia  #potssyndrome  #potsie  #posturalorthostatictachycardiasyndrome  #dysautonomia  #eds  #ehlersdanlos  #ehlersdanlossyndrome  #hypermobility  #migraine  #headache  #mcas  #mcad  #mastcell  #lowhistamine  #ic  #interstitialcystitis  #raynauds  #vertigo  #vestibular  #vestibularmigraine  #spoonie  #chronicpain  #chronicfatigue  #chronicillness  #dizzy  #balance  #bladderproblems  #painfulbladdersyndrome  #invisibleillness 
It’s funny how little things life latte art can bring a smile to my face! My local coffee shop is literally the best and their coffee is always on point. I am craving Fall and hot coffees and cool air like nobodies business. Who else is ready for the season of beautiful changing leaves?
It’s funny how little things life latte art can bring a smile to my face! My local coffee shop is literally the best and their coffee is always on point. I am craving Fall and hot coffees and cool air like nobodies business. Who else is ready for the season of beautiful changing leaves?
Lake Day - RIP Shane’s long hair and pink shoes .
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Lake Day - RIP Shane’s long hair and pink shoes . . . . .
Bright Eyes V2 - I posted this while hiding in the bathroom at work today 🤷‍♂️ 👀
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Bright Eyes V2 - I posted this while hiding in the bathroom at work today 🤷‍♂️ 👀 . . . . .
Bowsprit - The end of this wall reminds me of old sailing ships ⛵️ .
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Bowsprit - The end of this wall reminds me of old sailing ships ⛵️ . . . . . .
Between Paths - From a warm summers day full of adventures ☀️
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Between Paths - From a warm summers day full of adventures ☀️ . . . . .
Learning to Ollie - I held two of Andy Warhol’s Brillo boxes on Wednesday, shit was incredible
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Learning to Ollie - I held two of Andy Warhol’s Brillo boxes on Wednesday, shit was incredible . . . . . .
Better Days - I’m about two months away from being 20 and I’m just hoping there’s no snow in June ☀️
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Better Days - I’m about two months away from being 20 and I’m just hoping there’s no snow in June ☀️ . . . . . .