Attempting extra acceptance and self love as I ramp up to go down another treatment avenue. Frankly I’m burned out AF. But I want a more normal life back & I’m just not close enough to settle here.
Currently exhausted from my NYC neurologist trip, but will update on that soon!
Stay focused, stay resilient my loves 💚💗
Emotional freedom technique, aka tapping, is the tapping of energy meridians while verbally expressing the emotion or physical issue. 🤚🏼 I have used this technique for anxiety for years and know people that used this for their physical pain during their chronic illness treatments. I am now using it for the later as well. 🤚🏼 While tapping each point, you want to first express your “problem” i.e. worry/fear/pain/thought while tapping 3-7 times on each point. Then, you repeat a phrase/phrases accepting the “problem”. 🤚🏼For example, let’s say you have the fear that your illness will never resolve. You would tap each point expressing that. Then, you would say something along the lines of “although I fear my illness will never heal, I fully and completely except myself” or “although I fear my illness will never heal, I will not let that fear block my physical or mental healing”. 🤚🏼 Say whatever feels right and HONEST to you. Don’t say something you aren’t in line with because subconsciously, your mind doesn’t believe it which means your body won’t either. More about this and specific excerpts from various articles on the blog!
This is my face again. I thought I’d introduce myself since I never officially did so. If you’d like to tell me some facts about you in the comments, please do so!
So, hello! I’m Chelsea. The blog listed in my bio isn’t up to date anymore but I am thinking of starting up another.
In case you didn’t know, I have a chronic illness and mainly started my blog and this instagram because of that.
I suffer from Lyme disease and its coinfections as well as many symptoms that tag along such as seizures. Several other chronic illnesses I face are endometriosis, interstitial cystitis, chronic migraines, POTS, and one or two I’m sure I’m forgetting or will talk about later. I have an obsession with herbal tea and owl knick-knacks. I’m a horror movie fanatic, and I love to read historical fiction.
People often ask why I’m on the internet so much, and the simple answer is that I’m sick. If you’re a #spoonie like I am, you know how exhausting it can be just to take a shower. So no, I’m not out adventuring all the time. I’m not taking those spontaneous trips with my friends, or really doing much of anything out in this godforsaken bug-filled heat. Like I said, I’m not even that friendly with my shower. But I’m making it. I’m trying! Progress is progress. And that’s really what counts, especially when it comes to treating Lyme disease...but even more with living my life. #lymedisease#chroniclyme#lymewarrior#chronicillness#invisibleillness#lymelife#lyme#selfie#health
👉🏻New blog post!
“When you are healing from a physical illness, you may experience emotional trauma coming up to be healed. Stuff from the past that you pushed aside because it was too painful to deal with. Stuff you didn’t even realize was traumatic. But then there it is in your face, coming up to be seen and felt. The actual process of trying to find a diagnosis for your symptoms can be traumatic in itself. Sometimes this can be even more difficult to deal with than the physical symptoms. Here are some ways I have dealt with emotional trauma:” .
👉🏻Check it out to read more.
Side note: I don’t think my brother and sister-in-law knew how much medication this little shot glass would hold when they picked them for their wedding favor. 😂😬🙄😂🤦♀️ #oldpeopleproblems#soberproblems#lymelife
Winter beach days ✨
Just over a year ago I was in a wheelchair, I couldn't stand for more than a minute and I was too weak to even put my socks on by myself. Learning to walk again has been painful in ways that I still can't put into words. Too bizarre for me to even make sense of. I haven't touched my wheelchair or walker in many months and here I am walking on this unsteady sand. Thank you for these days 💗
I picked this picture for this post bc it’s a topic I wanted all of you to read & it was colorful & pretty unlike what I am about to speak about. ⭐️
All this time we put off testing my husband for everything, more like he put it off-but I was the sickest so a lot of the focus was on me & while he has mold toxicity he didn’t feel much physically besides fatigue. Recently we got a new primary physician & I insisted the doctor test my love for Lyme & co-infections, EBV, etc through Labcorp since it’s covered by our insurance. I knew the answer, we were told the answer by another doctor but he still didn’t think he had Lyme. ⭐️
Labs always make you feel a certain way-it eliminates that speck of hope or doubt that you have. Needless to say it was all positive, even on the western blot! IgM & IgG. It came to question today about how he magically got Lyme & all the same exact co-infections as me and all the same reactivated viruses. I put my head down in shame, as I know the answer to that too. The sweet man that he is, he hugged me and told me it was ok, that he loved me & we were in this together. ⭐️
So...Don’t listen to doctors who blindly say that Lyme cannot be transmitted sexually-They are wrong. It’s also congenital. I’m living proof-I have given this illness to the people I love the most & it sucks. Be cautious & protect the people you love & lust for, it’s common courtesy. If I had known I would of, even all this time we have used protection just in case my husband didn’t have it, and I am not a big fan of condoms guys, at least not with him. That doesn’t sound right but you know what I mean. 🤦🏻♀️ Nor did I feel awesome about it when we went shopping for them, I felt dirty & awful but I knew that I had to be strong & do it for his protection. I know this is raw but it needs to be said. Many of you are young, and will someday be in a relationship so it’s something you need to prepare for, it’s not pretty but it’s true, and if your person loves you-and you them, which I hope is the case if this is a topic, it will be ok, promise. If not well then that’s another lesson in choices but regardless please be aware! Xoxo P
Lemon water with organic stevia💚❤️ Why did I not think of this before? Over the last few years I have drank primarily water with the occasional iced tea with stevia. I’m not supposed to have caffeine and that’s how the whole coffee addiction thing started🤣 Why I didn’t think of this until last night is a perfect example of how my brain doesn’t work. Yes, I know, just not eating or drinking sweet things is the best option. I’m not perfect. And supposedly stevia kills lyme? I mean, that’s what they say so that’s my excuse for this being acceptable 😏
I got my amalgam filling out a week and a half ago. I feel 85 percent better already. Coincidence? I’ll never know but I’m happy with it. I’m considering starting light workouts Monday. I really want to go back to keto then too but I’m not sure my body is ready yet. I’ll probably try to do one or the other so I don’t over burden my body. Happy Friday kids! #lymedisease#lymelife#lymeprotocol#lymetreatment#chronicillness#functionalmedicine#fightingforhealth#nutrition#autoimmunity#autoimmunedisease
| I opened a new document to start my update on my 4 week stay at the hospital. .
I started to cry. .
(And it’s not just because I’m an emotional woman.) .
It’s because I have been through hell. .
And the fact that I can say BEEN makes me cry happy tears just as much as thinking of the hell makes me cry sad tears.
The seizures, the pain, the mile long list of symptoms are far from gone. .
But, I have seen IMPROVEMENT in the last week. (And I’m on my way home now) .
Which has restored my hope- that was honestly getting a little sketchy there for a while. .
And it is THE most amazing and empowering feeling to have back. .
As for the update of my stay at UBC Hospital, I am simply not ready to share because I am still trying to digest the whole experience myself. .
Thank you for checking in. .
[image 1 was a better day outside]
[image 2 settling in after a couple seizures]
[image 3 end of a seizure- blazing spine & head pain]
[image 4 post mri seizure, nausea & face swelling]
This post is simply a glimpse of my experiences and is for awareness. This is my truth.
What is this?! THIS is keeping up with my niece and nephew during a little hike in big basin earlier this week!!! So glad to be able to spend more time with them and jog 100 feet for a “race” 😂 or spot them while they climb and explore!!! It used to make me so sad to hear them whispering outside my door “shhh auntie is sick” or having my nephew bring me snacks in bed to try and make me feel better. This is the Auntie I want them to remember when they think of their childhood!! Not the one they had to constantly be quiet around or the one they couldn’t tackle or tickle or who just always needed to sit or lay down and couldn’t engage mentally. Having them in town this summer, for the most part, I’ve been able to keep up and this has brought me so much joy!! 😍😍 .
If you’re still in bed! If you can’t leave the couch or form complete sentences, don’t give up! Keep fighting. Health is possible!! Not every day looks like this! But these days are starting to happen!! It’s possible!! Oxox Keep fighting! .
9 months. That's how long it took me to complete Lyme testing and get a full picture of how it was attacking my body. In 6 Weeks to Stability I'm helping you navigate all of the confusion ＋ chaos by showing you the exact steps to take to kick your diagnosis to the curb. Want to learn more? DM me, leave a comment or send me an email! Early Bird pricing is available now!
Hiii to everyone finding my blog / insta from the CB post article 👋 👋 I thought I’d do a quick introduction! I’m Melissa, lover of coffee, pups and all thing sparkly. I’m also a proud new aunt so prepare to be bombarded with cute baby photos. In my spare time I read poetry, take some freelance photos, and enjoy as much sunshine as I can. Thanks for following along and helping me spread Lyme awareness!!☀️ 🐶 💚
Recovering after my lumbar puncture today! The hospital staff were so kind, made me feel comfortable, really listened to my concerns, and didn't dismiss chronic Lyme disease at all. Most people don't need sedation for a LP, but thanks to my PTSD from years of invasive medical procedures I needed it. I was SO nervous and almost in tears but luckily the sedation took the edge off and made me unaware of what was happening during the procedure. It also helped that they played my favorite music and my best friend took me to the hospital today 💚 I'm a little sore and have a bad headache - I'll be spending the next few days on the couch with my pup. Eager to get the results in the next few weeks!
That was rough. 101 out of 150 miles were completed. The weather soared to a blazing 110 degrees Fahrenheit and I almost succumbed to the weather out in the middle of nowhere! The ride sadly had to end early due to the heat. I am covered in sweat, bugs, dirt, some toxin rashes, and zinc oxide sunscreen. I stopped sweating multiple times, causing me to take necessary precautions and chug a TON of water until I started sweating again. Me, my man, and our friend had to take the train home. 🚲
That week, I was having a flare-up AND menstruating. I felt very.... unclean... that day. Lmao. The flare wasn't too debilitating because I've actually been feeling better lately! So much better that I began having the dreaded womanly cycles re-appear. That was my first menstruation in 6 months. Blood, bugs, near-heat exhaustion, and zinc oxide sunscreen. That was the 2nd hardest ride in my life. I will post about the number 1 hardest ride soon. 🚲🤘🏽 fight2bike
Exhausted but grateful to be able to spend time with my fam 💫 This is my baby Maple. She's very sweet and very intense. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
It has felt discouraging at times on this holiday that I still need so much rest time alone when I wish I could be carefree and not constantly thinking of the consequences of fun activities. Even though I'm still in heaps of pain and can only go out and do things for a couple of hours a day and walk very short distances, it also surprises and amazes me that I can do any of that. A lot of that is thanks to finally receiving a diagnosis of adrenal insufficiency, which means my adrenal glands destroyed themselves a long time ago (my dr believes likely as a result of Chronic Lyme Disease) and are no longer capable of working by themselves. Its beyond me how I survived for soooo many years without treatment for this. I'm so grateful for persistent Drs and hydrocortisone #blessedpineapple
Believe it or not this is the very first picture of myself to be posted on my page. Odd but true. It’s not something I see often in these digital times where selfies are sometimes all people post, but nonetheless my intention of this page was to be able to use my voice & advocacy to connect without showing the flesh that encompasses my energy source.
I am now in a different space where I am open to live without fear of the unknown. I have connected with genuine individuals on this journey and I am grateful for those who were able to see me, without seeing me.
So often, appearance is used to gauge who a person is, and society continues to move in this direction where much is an illusion. I have been honored to share with some of you solely based on energy & vibes.
Regardless, these are just my observations, of which I have many.
I wonder if any of you even wondered or noticed or what you envisioned prior to my mediocre revelation here, feel free to share and feed my curiosity; this was a need at one time for me personally as much as it was an experiment in being heard without a visual human attachment. I’m interested to know how you all perceived my writing & posts up to now.
I have been very busy working on my state of mind, to which accounts for my considerable lack of writing. Sometimes I have to take a break from social media to attain a higher vibration, which is what I strive for daily. Love & Light to all of you ♥️
t h e e x p l o r a t i o n d i e t ........
doing a therapeutic elimination diet became an exploration for me of the foods that work best for my body and the ones that were aggravating my #Lyme symptoms by increasing #inflammation . besides helping me feel better and start to recover, this journey also helped me let go of all labels on my diet and discover my own personal best way of eating. it’s been very liberating. read more about my experience in the profile link.
next week i am introducing a six week coaching program for the Exploration Diet. i can’t wait to help guide others through this journey. it is truly life changing!
Here we go! Round 2 of my signature program, 6 Weeks to Stability is opening up again for all of you who are ready to get a firm grip on your illness and find a way to live in spite of it all. We'll begin with building a core foundational layer that will teach you how to read your body, holistically correct your symptoms, and know exactly how to speak with your doctor to make a plan that WORKS. I can't speak enough on the importance of all of this so I've put it all together for each of you. And by the way, the amazing @amybscher is adding a special bonus just for you! Early bird pricing opens now. Join us for an eye-opening 6 weeks to find YOUR stability amidst living with a chronic illness.
Sometimes we feel hopeless, especially when nothing is going right. Over the past 3 years it seems like one thing after another came creeping up: crazy symptoms, Lyme, parasites, viruses, blood clot in my arm, staph infection in my sinus (MarCons), systemic strep, mold toxicity, infections where my wisdom teeth were pulled, thyroid levels going ballistic, sympathetic exhaustion, hyatial hernia, H-Pylori...should I go on? ⭐️ But in the midst of all of that, and even in my deepest and darkest moments, I had the tiniest (literally .00001%) glimmer of hope which is what kept me and keeps me going. ⭐️ It helps to put post-it notes in hidden places in my home to remind myself to have hope because when I feel as bad as I do sometimes, hope is the last thing my brain is thinking of. Without hope, what’s left?
Well, bouts of insomnia keep me up but I'm being as productive of it as I can. Focusing on the mind, body and spirit. Creating a better me. Who I want me too be. These disoriented days have shown me that there is more to life than I can see and I can't wait to expirance that!
VENT POST: I had all of my hope placed in my appointment tomorrow with my LLND. I checked my messages at 2:00 PM today with a message that stated my 8:00 AM appointment tomorrow is canceled. I called and the gene test failed to produce results (this was try #2 ) so no appointment. This was a 3 month follow up appointment made way before this $450 gene test was in the picture. I stated I wanted to keep my appointment and explained that I should have an appointment regardless of this stupid test that I do not want to take again. I was frustrated and angry and was empathized with as nothing is ever easy with the office or my Lyme life, and I was told she would ask the doctor about tomorrow. I stated I’m done with the waiting games and that I need help. The office has since closed, hours ago, and it looks like I am without an appointment tomorrow as there was no call or voicemail. I’ve been in pain, regressing neurologically, emotionally and physically and hoped an actual appointment would accomplish something tomorrow. I have never felt the blood rush through my ears before.... I’m so angry. I don’t understand and don’t know what to do. I liked my LLND but I’m done with waiting to decline. I’m done with struggling. I want my life back. I want my brain and energy back more than anything that I’d keep the pain if I could have those two things back. I will find someone who wants to help rather than wait. #backtosquareone#lymelife#lymegoaway#lymesucks#rawlsmd thanks for the quote #ihatethis#lymediseaseawareness#lymediseasetreatment#lymedontkillmyvibe#defeated#itsaprocess
I just added up my outstanding debt in my, head. It's easily around, $10,000 💴
I (we) already had lost the home 🏡 that... #mybeautybrie 💖🌹💖 grew up in for 24 of her 31, yrs. 😞
The day we moved back here-about 3 wks, ago...she asked if I wanted to drive by, it. 🤔 We were just blocks near the new home so I said, "Sure we're, up here! Why the Hell, not!" 🤨
I can remember when we did, refinances on that home to create/liquidate, equity. 💰
One of the times I'm pretty certain we, utilized...#lendingtree 💸🌱🌳 It was auctioned off for, God knows, what. Don't care to, remember, anymore. 😤
Thx, #lymelife 💚💔💚 You've taken enough from, me. 😠
I may not ever get my 🏡 back but I want my, Life back. 💜💜💜💜💜💜💜💜💚💜💕
Easy, breezy summer days are flying by way too fast. Finding that balance between having a great summer with Liam and working has been difficult these last few weeks. I have to remind myself - grace, NOT perfection. sometimes the most meaningful moments come from the messiest times. Tag a friend who may need to hear this today. How has your summer been going?
My friend has been inspiring me to get back into juicing! Go check out her page for some yummy recipes! @laceyscleankitchen 🙌🏻 what’s your favorite juicing recipe? Mine is carrot, sweet potato, orange🍊😜