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Weighted blankets have popped up into relative popularity from non-existence recently. The impression that I get is that these are more popular in some circles, and then unknown in all other circles. Regardless of which circle you are in, have a read to see what it is, why I have one and how it is going. Do I recommend them? Was it worth the purchase? Is it helping me? Read online now.

http://www.thislupuslife.com/my-weighted-blanket/

#lupus #thislupuslife #blog #blogger #lupie #LupusCerebritis #braindisease #butyoudontlooksick #systemiclupuserythematosus #arthritis #rheumatoidarthritis #lupielife #lupuscerebritis #weightedblanket #weightblanket #calmingmoments #sleepquality
Weighted blankets have popped up into relative popularity from non-existence recently. The impression that I get is that these are more popular in some circles, and then unknown in all other circles. Regardless of which circle you are in, have a read to see what it is, why I have one and how it is going. Do I recommend them? Was it worth the purchase? Is it helping me? Read online now. http://www.thislupuslife.com/my-weighted-blanket/ #lupus  #thislupuslife  #blog  #blogger  #lupie  #LupusCerebritis  #braindisease  #butyoudontlooksick  #systemiclupuserythematosus  #arthritis  #rheumatoidarthritis  #lupielife  #lupuscerebritis  #weightedblanket  #weightblanket  #calmingmoments  #sleepquality 
After Lupus actively attacking and damaging my kidney's and brain in a matter of hours (August 30,2018), fighting for my life, and comatose for weeks, This was the very first time pushing my wheelchair after waking up. Arms were still very weak so it got harder to push as I went. Excuse the Chemo hair.  #lupusawareness #lupusnephritis #severecerebritis #lupuscerebritis
After Lupus actively attacking and damaging my kidney's and brain in a matter of hours (August 30,2018), fighting for my life, and comatose for weeks, This was the very first time pushing my wheelchair after waking up. Arms were still very weak so it got harder to push as I went. Excuse the Chemo hair. #lupusawareness  #lupusnephritis  #severecerebritis  #lupuscerebritis 
Swipe left 👈⬅️ To Watch 🎥
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My Lupus Journey - @indukgopi . Thankyou for being such an inspiration
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#Lupus #Lupie #LupusLife #LupusLove #LupusWarrior #LupusIndia #LupusBlogger #cyclophosphamide #LupusNephritis #LupusIndia #LupusFighter #BrainFog #Cerebritis #LupusBrain #lupuscerebritis #LupusStory #MyLupusStory #Invissibleillness  #LupusSucks #FuckLupus #Autoimmune #HELP #SystemicLupusErythematosus #lupusWarrior #LupusCarditis #Cataract #Prednisolone #Methotrexate #Chloroquine #Arthritis

@indukgopi @ni_shi92 @desperate_muggle @durgasvarma @azharudeensalim @anil_paul_melitt @nishaayush @lupusinindia @inayatak @upasana.borah_ @thapasyanair @singhabhilesh @piyushapallavi
Swipe left 👈⬅️ To Watch 🎥 . My Lupus Journey - @indukgopi . Thankyou for being such an inspiration . . . . . . . #Lupus  #Lupie  #LupusLife  #LupusLove  #LupusWarrior  #LupusIndia  #LupusBlogger  #cyclophosphamide  #LupusNephritis  #LupusIndia  #LupusFighter  #BrainFog  #Cerebritis  #LupusBrain  #lupuscerebritis  #LupusStory  #MyLupusStory  #Invissibleillness  #LupusSucks  #FuckLupus  #Autoimmune  #HELP  #SystemicLupusErythematosus  #lupusWarrior  #LupusCarditis  #Cataract  #Prednisolone  #Methotrexate  #Chloroquine  #Arthritis  @indukgopi @ni_shi92 @desperate_muggle @durgasvarma @azharudeensalim @anil_paul_melitt @nishaayush @lupusinindia @inayatak @upasana.borah_ @thapasyanair @singhabhilesh @piyushapallavi
Swipe left 👈⬅️ To Watch 🎥
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My Lupus Journey - @indukgopi . Thankyou for being such an inspiration
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#Lupus #Lupie #LupusLife #LupusLove #LupusWarrior #LupusIndia #LupusBlogger #cyclophosphamide #LupusNephritis #LupusIndia #LupusFighter #BrainFog #Cerebritis #LupusBrain #lupuscerebritis #LupusStory #MyLupusStory #Invissibleillness  #LupusSucks #FuckLupus #Autoimmune #HELP #SystemicLupusErythematosus #lupusWarrior #LupusCarditis #Cataract #Prednisolone #Methotrexate #Chloroquine #Arthritis

@indukgopi @ni_shi92 @desperate_muggle @durgasvarma @azharudeensalim @anil_paul_melitt @nishaayush @lupusinindia @inayatak @upasana.borah_ @thapasyanair @singhabhilesh @piyushapallavi
Swipe left 👈⬅️ To Watch 🎥 . My Lupus Journey - @indukgopi . Thankyou for being such an inspiration . . . . . . . #Lupus  #Lupie  #LupusLife  #LupusLove  #LupusWarrior  #LupusIndia  #LupusBlogger  #cyclophosphamide  #LupusNephritis  #LupusIndia  #LupusFighter  #BrainFog  #Cerebritis  #LupusBrain  #lupuscerebritis  #LupusStory  #MyLupusStory  #Invissibleillness  #LupusSucks  #FuckLupus  #Autoimmune  #HELP  #SystemicLupusErythematosus  #lupusWarrior  #LupusCarditis  #Cataract  #Prednisolone  #Methotrexate  #Chloroquine  #Arthritis  @indukgopi @ni_shi92 @desperate_muggle @durgasvarma @azharudeensalim @anil_paul_melitt @nishaayush @lupusinindia @inayatak @upasana.borah_ @thapasyanair @singhabhilesh @piyushapallavi
I have always had trouble with mucus, pus and...well, gunky white stuff. I'm not trying to be rude, but there you go. My doctor has said it is 'always the way' for people with Lupus and so I thought I'd look into it. Read online to see what I found out:  http://www.thislupuslife.com/lupus-and-mucus/

#lupus #thislupuslife #blog #blogger #lupie #butyoudontlooksick #systemiclupuserythematosus  #mucus #pus #mucositis # infection #thrush #lupielife #lupuscerebritis
#WorkingWomanWednesday

This is my 1st time really painting in full since I had my stroke due to #LupusCerebritis. I can’t lie, I’m a little nervous but am aiming to get my confidence back. I’ll be painting a scripture #mural in my custom font and personal handwriting in this bedroom. This will be one of my warm - ups leading up to my one of my biggest jobs and the last project of the year. Regardless, of anything, I just thank God I’m able to do what I love to do. 🙏🏾💚
#WorkingWomanWednesday  This is my 1st time really painting in full since I had my stroke due to #LupusCerebritis . I can’t lie, I’m a little nervous but am aiming to get my confidence back. I’ll be painting a scripture #mural  in my custom font and personal handwriting in this bedroom. This will be one of my warm - ups leading up to my one of my biggest jobs and the last project of the year. Regardless, of anything, I just thank God I’m able to do what I love to do. 🙏🏾💚
It's here!!! It turns out I've developed some pretty heavy coping mechanisms. One is the urge to wear some sort of mass covering on my head all the time. The other is a need for my whole body to be covered. So what did i get? A WEIGHTED BLANKET!!! After serious sleep troubles, much research and a number of alternate trials of other more reasonably priced options, finally my new bed companion has arrived! Thank you @calmingmoments! 
#weightedblanket #restfulsleep #sleeplessness #lupus #lupuslife #thislupuslife #systemiclupuserythematosus #lupuscerebritis
It's here!!! It turns out I've developed some pretty heavy coping mechanisms. One is the urge to wear some sort of mass covering on my head all the time. The other is a need for my whole body to be covered. So what did i get? A WEIGHTED BLANKET!!! After serious sleep troubles, much research and a number of alternate trials of other more reasonably priced options, finally my new bed companion has arrived! Thank you @calmingmoments! #weightedblanket  #restfulsleep  #sleeplessness  #lupus  #lupuslife  #thislupuslife  #systemiclupuserythematosus  #lupuscerebritis 
I've been busy. And why? Because I haven't been sure what my future holds for me. And why is that? Have a read now and find out what life changes I have made since taking stock of what my future life with Lupus Cerebritis. 
http://www.thislupuslife.com/planning-for-the…lupus-cerebritis/

#lupus #thislupuslife #blog #blogger #lupie #butyoudontlooksick #systemiclupuserythematosus #arthritis #rheumatoidarthritis #lupielife #lupuscerebritis #future #career
It’s been a minute due to health issues with my bout with #LupusSLE and #LupusCerebritis but it felt SO good returning to work and what I absolutely love on today! 💪🏾💚 We’re in the planning and development phase of one of our latest projects and I’m so elated to share it with you.! We’ll be transforming this condominium into the perfect beauty bar and #palace that encompasses almost every beauty need there is for my latest client, one of Houston’s Premiere Hair GAWDs, THE @WeezyDidIt 
We’ll start the physical process and work in the next two weeks! Stay Tuned because this will be one of our most amazing projects ever!! I’m coming back with a vengeance! 
#TransformationTuesday

#AshleyCLaneInteriors
💚 the space youre in!!
It’s been a minute due to health issues with my bout with #LupusSLE  and #LupusCerebritis  but it felt SO good returning to work and what I absolutely love on today! 💪🏾💚 We’re in the planning and development phase of one of our latest projects and I’m so elated to share it with you.! We’ll be transforming this condominium into the perfect beauty bar and #palace  that encompasses almost every beauty need there is for my latest client, one of Houston’s Premiere Hair GAWDs, THE @WeezyDidIt We’ll start the physical process and work in the next two weeks! Stay Tuned because this will be one of our most amazing projects ever!! I’m coming back with a vengeance! #TransformationTuesday  #AshleyCLaneInteriors  💚 the space youre in!!
Selfies. I'm feeling good today. Just fatigued and low on energy.
#lupus #lupusla #lupuscerebritis #polymyositis #lupusawareness #dermatomyositis #findacure #loveyourself #mixedconnectivetissuedisease
I mentioned a brief while back that I would be gone. And I left you the teaser of one of my childhood diseases. It is time for me to share with you where I went. Due to the nature of the event I was not able to disclose too much, but needless to say I went on a school holiday camp!!! Want to know how and why? 
http://www.thislupuslife.com/camp-freedom/

#lupus #thislupuslife #blog #blogger #lupie #butyoudontlooksick #systemiclupuserythematosus #arthritis #rheumatoidarthritis #lupielife #lupuscerebritis
I mentioned a brief while back that I would be gone. And I left you the teaser of one of my childhood diseases. It is time for me to share with you where I went. Due to the nature of the event I was not able to disclose too much, but needless to say I went on a school holiday camp!!! Want to know how and why? http://www.thislupuslife.com/camp-freedom/ #lupus  #thislupuslife  #blog  #blogger  #lupie  #butyoudontlooksick  #systemiclupuserythematosus  #arthritis  #rheumatoidarthritis  #lupielife  #lupuscerebritis 
In the land of the living but in the land of poor health once more. But nothing can keep my smile away! 
Active link in comments in case this doesn't work...
https://youtu.be/jbNRJbA9FqY

#lupus #thislupuslife #blog #blogger #lupie #butyoudontlooksick #systemiclupuserythematosus #arthritis #rheumatoidarthritis #lupielife #lupuscerebritis #vlog #vlogger #infection
I need to get back to blogging again. I’ve just been so uninspired and unmotivated. Meanwhile, I did publish a new post about #cytoxan an infusion I’m taking for my lupus. Read up about it #ontheblog #linkinbio
I need to get back to blogging again. I’ve just been so uninspired and unmotivated. Meanwhile, I did publish a new post about #cytoxan  an infusion I’m taking for my lupus. Read up about it #ontheblog  #linkinbio 
This week, the last week of September 2018, is a momentous week for me. I will be largely out of reception amd uncontactable. I have not prepared a post explaining yet why this is, but I will share all soon. In the meantime, a refreshing reminder on my first diagnosed autoimmune disease holds a big clue for the impetus of why I will be gone. 
http://www.thislupuslife.com/idiopathic-thrombocytopenic-purpura/

#lupus #thislupuslife #blog #blogger #lupie #butyoudontlooksick #systemiclupuserythematosus #arthritis #rheumatoidarthritis #lupielife #lupuscerebritis #idiopathicthrombocytopenicpurpura #blooddisease #autoimmunedisease
This week, the last week of September 2018, is a momentous week for me. I will be largely out of reception amd uncontactable. I have not prepared a post explaining yet why this is, but I will share all soon. In the meantime, a refreshing reminder on my first diagnosed autoimmune disease holds a big clue for the impetus of why I will be gone. http://www.thislupuslife.com/idiopathic-thrombocytopenic-purpura/ #lupus  #thislupuslife  #blog  #blogger  #lupie  #butyoudontlooksick  #systemiclupuserythematosus  #arthritis  #rheumatoidarthritis  #lupielife  #lupuscerebritis  #idiopathicthrombocytopenicpurpura  #blooddisease  #autoimmunedisease 
These past few weeks have crashed on to me. I have had less time to plan than I  would like and barely hours at a time to preplan or brief myself. The short story is that I'm going somewhere. Somewhere that is pretty exciting. I cannot say why or where. I also won't have The Internets or ready availability to keep in touch. I apologise and promise that next week all will be revealed. 
#lupus #thislupuslife #blog #blogger #lupie #butyoudontlooksick #systemiclupuserythematosus #arthritis #rheumatoidarthritis #lupielife #lupuscerebritis
These past few weeks have crashed on to me. I have had less time to plan than I would like and barely hours at a time to preplan or brief myself. The short story is that I'm going somewhere. Somewhere that is pretty exciting. I cannot say why or where. I also won't have The Internets or ready availability to keep in touch. I apologise and promise that next week all will be revealed. #lupus  #thislupuslife  #blog  #blogger  #lupie  #butyoudontlooksick  #systemiclupuserythematosus  #arthritis  #rheumatoidarthritis  #lupielife  #lupuscerebritis 
Chemo Update: 
My last infusion will be tomorrow. I'm praying that I don't have any bad side effects or get sick. I'm excited about life post chemotherapy. Thank you all for the prayers and support.
#chemotherapy #lupus #lupusawareness #lupuscerebritis #polymyositis #lupusworrior #findacure #lovinglife #feelingbetter #lupusla #mixedconnectivetissuedisease #dermatomyositis
My life is such a paradox. This time last year I was suffocating by just existing. I could just not see how things could improve. I was unsure of myself, my relationships, my finances and my career abilities. When I was signed as incomplete in my teaching prac this February, I felt sure at each that the small recoveries I had made would just swallow me up. But I look now at where I am and l know I am blessed. The opportunities that have come my way are serendipitous to some extent, but mostly it is the time and effort I put in. The suffering and hard times caused me to dig my own path, find my special way in this world. I am not planning on doing what I wanted, I am going to do what I was put here to do, and that is so much better. The pain and challenges l faced have given me the flexibility to ensure this happens and that I accept the changes as they come. Lupus doesn't 'toughen you up', if anything, it softens you. And it is this softness that allows you to bend to the winds of change, and be open to new situations. 
It is for this reason that I say I am thankful for my Lupus. 
#lupus #systemiclupuserythematosus #lupuslife #thislupuslife #blog #blogger #lupuscerebritis #lupie #lupielife #positive
My life is such a paradox. This time last year I was suffocating by just existing. I could just not see how things could improve. I was unsure of myself, my relationships, my finances and my career abilities. When I was signed as incomplete in my teaching prac this February, I felt sure at each that the small recoveries I had made would just swallow me up. But I look now at where I am and l know I am blessed. The opportunities that have come my way are serendipitous to some extent, but mostly it is the time and effort I put in. The suffering and hard times caused me to dig my own path, find my special way in this world. I am not planning on doing what I wanted, I am going to do what I was put here to do, and that is so much better. The pain and challenges l faced have given me the flexibility to ensure this happens and that I accept the changes as they come. Lupus doesn't 'toughen you up', if anything, it softens you. And it is this softness that allows you to bend to the winds of change, and be open to new situations. It is for this reason that I say I am thankful for my Lupus. #lupus  #systemiclupuserythematosus  #lupuslife  #thislupuslife  #blog  #blogger  #lupuscerebritis  #lupie  #lupielife  #positive 
Chemo Update: 
Positive Post! The biopsy results didn't show any infection or abnormalities. And the rashes have cleared up. I'm happy about that. Thank you all for your prayers, it works. 
#Lupus #lupuslife #chronicillness #chemotherapy #lupuswarrior #lupusawareness #polymyositis #mixconnectivetissuedisease #Dermatomyositis #lovinglife #happy #findacure #fighter #lupuscerebritis #lupusflare
As a deadline draws nearer for something I desperately want, I find it harder to focus myself. The work to get to this point has been intense, the wait as the future unfolds will be more so. And in the meantime I have this whole 'Lupus Thing' to deal with. 
#lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #thislupuslife #lupie #lupielife #butyoudontlooksick #sick #ventricularectopy
My daily medications have changed. Now I am on 700mg twice daily of Sodium Valproate. Yay for anti seizure medication!! #antiseizure #sodiumvalproate #medication #epilepsy #lupuscerebritis #systemiclupuserythematosus #lupus #lupie #chronicillness #autoimmuneillness #lupielife
My Lupus has been bad lately.  Thank goodness I have companions to make sure I don't get lonely. They aren't much good for conversation though 🤨 
#lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #butyoudontlooksick #thislupuslife #lupusawareness #blog #blogger #chronicillness #chronicpain
I just turned 30, meaning I have survived my first decade with Lupus. Why don't I look 30? What have I been doing in the lead up to my 30th? What has kept me so busy and absent and scattered lately? What am I going to do now?  http://www.thislupuslife.com/one-decade-of-lupus/

#lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #butyoudontlooksick #thislupuslife #blog #blogger #immunesystem #lupie
New blog post: I just posted a rambling about my issues dealing with #lupuscerebritis, #seizures and trying to work my shit out with the DMV in order to get my drivers license back. No biggie (well, kinda...)
New blog post: I just posted a rambling about my issues dealing with #lupuscerebritis , #seizures  and trying to work my shit out with the DMV in order to get my drivers license back. No biggie (well, kinda...)
I forgot to take my needle bandage off for a few days!! It seems I may have ha DC a little bruise 🤔 
#needle #injection #mri #lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #thislupuslife #lupie #lupielife #butyoudontlooksick
So I fell asleep in my MRI, like usual.  But this time I jerked and woke myself up. In the longest scan. Meaning we had to do it again. I kept my eyes open for the next 20 minutes, mentally reciting the Phonetic Alphabet to keep myself awake. Ironically, at nights, if I want to put myself to sleep I mentally recite the Phonetic Alphabet. 
#lupus #lupuscerebritis #systemiclupuserythematosus #lupusawareness #butyoudontlooksick #chronicillness #autoimmuneillness #MRI #RPH #braindisease #brainscan
So I fell asleep in my MRI, like usual. But this time I jerked and woke myself up. In the longest scan. Meaning we had to do it again. I kept my eyes open for the next 20 minutes, mentally reciting the Phonetic Alphabet to keep myself awake. Ironically, at nights, if I want to put myself to sleep I mentally recite the Phonetic Alphabet. #lupus  #lupuscerebritis  #systemiclupuserythematosus  #lupusawareness  #butyoudontlooksick  #chronicillness  #autoimmuneillness  #MRI  #RPH  #braindisease  #brainscan 
Normally when I go to RPH for an MRI, it is tied in with a doctor's appointment. I like to dress well to go out, especially when I go in to town.  But, this afternoon is just an MRI appointment. The weather is terrible, I feel horrible and last night I slept badly. Today I am in my comfy clothes and ready to take a nap in the machine. Traditionally, my time in the machine is some of the best day-naps I have so I am just so excited! 
#mri #rph #brainscan #systemiclupuserythematosus #lupuscerebritis #braindisease #blog #blogger #thislupuslife #lupie #lupielife
Normally when I go to RPH for an MRI, it is tied in with a doctor's appointment. I like to dress well to go out, especially when I go in to town. But, this afternoon is just an MRI appointment. The weather is terrible, I feel horrible and last night I slept badly. Today I am in my comfy clothes and ready to take a nap in the machine. Traditionally, my time in the machine is some of the best day-naps I have so I am just so excited! #mri  #rph  #brainscan  #systemiclupuserythematosus  #lupuscerebritis  #braindisease  #blog  #blogger  #thislupuslife  #lupie  #lupielife 
Hear about my heart (and lungs) on my YouTube channel now!!! https://youtu.be/T3P1rjznJ-k

#lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #butyoudontlooksick #thislupuslife #blog #blogger #vlog #vlogger #heart #heartbeat
Chemotherapy infusion. I didn't drink a lot of water today and I feel horrible. If you're getting chemotherapy make sure you drink plenty of water before, during, and after your infusion. #Lupus #lupuslife #lupuswarrior #lupuscerebritis #lupusflare #lupusla #chemotherapy #polymyositis #findacure #fighter #living #pain
On my way to RPH. Can you see St Mary's Cathedral at the end? That's my destination, basically! We've walked there every time since I began at this clinic 4 years ago. 
#immunology #rph #royalperthhospital #lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #thislupuslife #lupie #lupielife #butyoudontlooksick
Porridge and spiced nut granola breakfast? Don't mind if I do! I'm do pleased with this healthy eating plan. Most of the recipes align with the foods recommended to me by my nutritionist. The recipes are realistic and appetising enough to satisfy my parents palates. We've all been on my healthy eating plan for two weeks now and I feel a lot better! I hope they do too.

#csiro #csirodiet #csirolowcarbdiet #chronicillness #autoimmuneillness #healthyeating #eatingforhealth #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #thislupuslife #lupie #lupielife #lupus
Porridge and spiced nut granola breakfast? Don't mind if I do! I'm do pleased with this healthy eating plan. Most of the recipes align with the foods recommended to me by my nutritionist. The recipes are realistic and appetising enough to satisfy my parents palates. We've all been on my healthy eating plan for two weeks now and I feel a lot better! I hope they do too. #csiro  #csirodiet  #csirolowcarbdiet  #chronicillness  #autoimmuneillness  #healthyeating  #eatingforhealth  #systemiclupuserythematosus  #lupuscerebritis  #autoimmuneillness  #thislupuslife  #lupie  #lupielife  #lupus 
Them seizure days. I won't drive after even the smallest of seizures. And on a day like today, with the weather hitting with severe storm winds and rain, and a freeway southbound commute from the city center, I'd be crazy to think about it. The  seizure was small, I was present for the full 2 1/2 minutes of it. My left side numbness went within 30 minutes and I had most of my coordination back in 2 hours. But the giddiness traded itself in for a period of glumness which, I know, will become a migraine by dinnertime. I'm soaked and sulky, but forever grateful I have parents who can help me in times like this. 
#seizure #seizuredays #epilepsy #lupus #lupuscerebritis #cerebralvasculitis #butyoudontlooksick #chronicillness #autoimmuneillness #blog #blogger
Them seizure days. I won't drive after even the smallest of seizures. And on a day like today, with the weather hitting with severe storm winds and rain, and a freeway southbound commute from the city center, I'd be crazy to think about it. The seizure was small, I was present for the full 2 1/2 minutes of it. My left side numbness went within 30 minutes and I had most of my coordination back in 2 hours. But the giddiness traded itself in for a period of glumness which, I know, will become a migraine by dinnertime. I'm soaked and sulky, but forever grateful I have parents who can help me in times like this. #seizure  #seizuredays  #epilepsy  #lupus  #lupuscerebritis  #cerebralvasculitis  #butyoudontlooksick  #chronicillness  #autoimmuneillness  #blog  #blogger 
I have been having irregular heart beats. Why is it worth my worrying about this? Am I obsessing, or am I being wisely cautious, given my current health issues and Lupus history?  http://www.thislupuslife.com/my-heart/ 
#heart #heartbeat #health #lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #thislupuslife #lupie #lupielife #butyoudontlooksick #blog #blogger
That's right folks! I've just undertaken a 24-hr medical test. I didn't even need to take my clothes off for it 😁 watch my video on This Lupus Life's YouTube channel! 
https://youtu.be/VYB9q4_k2Qk

#lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #thislupuslife #lupie #lupielife #butyoudontlooksick #blog #blogger #vlog #vlogger
I have been speaking to many people recently about how unfair it is that there has been no cure found to 'fix' Lupus. Yes I agree, this sucks, but I also tend to question the thinking. Can Lupus be 'fixed'? Can any chronic illness be fixed? What does it mean to fix something in the body which is as widespread as Lupus? It is not as simple as wiping out your immune system (God knows I've tried that a few times!) Nor is it a case of removing the 'culprit organ'. So, if we were to fix it, what would it look like? And why are we so adamant to get this quick fix anyway? What, in our society has led us to the presumption and demand for healing the body with a basic dose of a particular pharmaceutical product?

thislupuslife.com/can-you-fix-lupus/

#lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #thislupuslife #lupie #lupielife #butyoudontlooksick #blog #blogger
I have been speaking to many people recently about how unfair it is that there has been no cure found to 'fix' Lupus. Yes I agree, this sucks, but I also tend to question the thinking. Can Lupus be 'fixed'? Can any chronic illness be fixed? What does it mean to fix something in the body which is as widespread as Lupus? It is not as simple as wiping out your immune system (God knows I've tried that a few times!) Nor is it a case of removing the 'culprit organ'. So, if we were to fix it, what would it look like? And why are we so adamant to get this quick fix anyway? What, in our society has led us to the presumption and demand for healing the body with a basic dose of a particular pharmaceutical product? thislupuslife.com/can-you-fix-lupus/ #lupus  #systemiclupuserythematosus  #lupuscerebritis  #autoimmuneillness  #thislupuslife  #lupie  #lupielife  #butyoudontlooksick  #blog  #blogger 
I've lost my voice, my senses of taste and smell, and have been bringing up yucky stuff all day. This cold isn't going to let me off easy. Seems about par for this year... So I've made myself my favourite soup, from my favourite recipe and am sharing it with a cup of herbal tea. 
The soup: Corn Chowder with Garlic and Bacon. 
The tea: Ginger and Lemongrass. 
How I'm feeling: Like crap.

#lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #butyoudontlooksick #lupusawareness #thislupuslife #chronicillness #blog #blogger
I've lost my voice, my senses of taste and smell, and have been bringing up yucky stuff all day. This cold isn't going to let me off easy. Seems about par for this year... So I've made myself my favourite soup, from my favourite recipe and am sharing it with a cup of herbal tea. The soup: Corn Chowder with Garlic and Bacon. The tea: Ginger and Lemongrass. How I'm feeling: Like crap. #lupus  #systemiclupuserythematosus  #lupuscerebritis  #autoimmuneillness  #butyoudontlooksick  #lupusawareness  #thislupuslife  #chronicillness  #blog  #blogger 
An amazing snippet from a newly recieved email direct from the USA! It may be their money for their organizations,  but it is our win because it is our united interests (Lupus research) that this money goes towards. Hooray!!! Now we just need to get our own booties moving on this... #lupus #systemiclupuserythematosus #lupuscerebritis #lupusnephritis #lupusawareness #butyoudontlooksick #chronicillness #autoimmuneillness #discoidlupus #thislupuslife #lupie #lupielife
The Rituximab chemo has made my legs hairs super fine. In some places the hair hasn't grown back and in others it cannot break the surface of my skin. It's embarrassing showing my legs with so many red nasty bumps on them!! And my skin is so fine I can't exfoliate them. I have finally found a dream for them that doesn't give me a stingy inflammatory experience. Cross your fingers!

#ingrownhair #sensitiveskin #chemo #rituximab #nastyredbumps #legshairs #firstworldproblems #lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #butyoudontlooksick #lupusawareness #thislupuslife #blog #blogger
The Rituximab chemo has made my legs hairs super fine. In some places the hair hasn't grown back and in others it cannot break the surface of my skin. It's embarrassing showing my legs with so many red nasty bumps on them!! And my skin is so fine I can't exfoliate them. I have finally found a dream for them that doesn't give me a stingy inflammatory experience. Cross your fingers! #ingrownhair  #sensitiveskin  #chemo  #rituximab  #nastyredbumps  #legshairs  #firstworldproblems  #lupus  #systemiclupuserythematosus  #lupuscerebritis  #autoimmuneillness  #butyoudontlooksick  #lupusawareness  #thislupuslife  #blog  #blogger 
Yes, that is right. My life is in the midst of a great change. I have made some big decisions and hope there will be new and great things to come. Read what these are and why I have made these decisions. The blog posts also includes a new video. 
Blog:  http://www.thislupuslife.com/eating-for-my-lupus-brain/

Video: https://youtu.be/pUvpAtsaxes

#eatingforhealth #wellness #diet #newdiet #neweating #healthyeatinghabits #thislupuslife #lupus #systemiclupuserythematosus #lupuscerebritis #cerebritis #cerebralvasculitis #braininflammation #blog #blogger #vlog #vlogger #video
Yes, that is right. My life is in the midst of a great change. I have made some big decisions and hope there will be new and great things to come. Read what these are and why I have made these decisions. The blog posts also includes a new video. Blog: http://www.thislupuslife.com/eating-for-my-lupus-brain/ Video: https://youtu.be/pUvpAtsaxes #eatingforhealth  #wellness  #diet  #newdiet  #neweating  #healthyeatinghabits  #thislupuslife  #lupus  #systemiclupuserythematosus  #lupuscerebritis  #cerebritis  #cerebralvasculitis  #braininflammation  #blog  #blogger  #vlog  #vlogger  #video 
This cool cat is bringing you, with love, a second attempt at her first video. 
https://youtu.be/JstkzCbOkno 
Have a good weekend everyone!!!
#video #videoblog #vlog #vlogger #blog #blogger #thislupuslife #lupie #lupielife #butyoudontlooksick #autoimmuneillness #lupus #systemiclupuserythematosus #lupuscerebritis
What an embarrassing topic to speak of, you think? Well, jump on in, and have a read. Yes this is a symptom of autoimmune, chronic and many illnesses. It is just sadly unspoken of. I shared mine, now for you to share yours!  http://www.thislupuslife.com/incontinence-with-lupus/

#incontinence #toilettroubles #needtowee #lupus #systemiclupuserythematosus #lupuscerebritis #cerebralvasculitis #cerebritis #autoimmuneillness #braindisease #butyoudontlooksick #blog #blogger
I'm so Lupus,  I keep my make up pencils and brushes in sample cups haha!

#lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #blog #blogger #thislupuslife #butyoudontlooksick #samplecups #thrifty #makeup
A small treat from a friend on her travels. I found this to be strangely satisfying. 
#lupus #systemiclupuserythematosus #lupuscerebritis #lupusstreet #tourist #travels #blog #blogger #thislupuslife #lupie
Update: I've been having dizzy spells and feeling like I'm going to pass out when I do very little walking. My headache was excruciating last night and I could do nothing but cry. I'll see a specialist at UCLA next week. Other than the headache I've been feeling much better. #polymyositis #Lupus #lupuslife #lupuswarrior #lupusflare #lupuscerebritis #lupusla #pain #stayingstrong #stayingpositive #lovinglife #findacure #mixconnectivetissuedisease
The good news is I'm out of bed and out of my pjs. The not as impressive news is I'm in my tracks and snuggled under blankets on the sofa... #lazy #lupus #systemiclupuserythematosus #autoimmuneillness #chronicillness #immunesystem #butyoudontlooksick #blog #blogger #thislupuslife #lupuscerebritis
The last few weeks have been focused on how my Lupus troubles have involved my parents directly. It took a lot of strength from them, I am sure and I can only thank them. You may have noticed, from the information I have trickled into the last 8 months of posts but some pretty big changes are happening in my life at the moment. It has left me scatterbrained and feeling quite insecure. But I would like to share with you the first crossroad I am coming up to. Incredibly it is not so much a crossroad as it is a three-way-intersection. I have some big choices to make and the first of those to bring more clarity to my intentions and communications with y'all. 
Have a read now and see how it grabs you. If you decide to follow through, as the end of the text suggests, please feel free to share your actions, thoughts, ideas with me!! Let's get it started in here!  http://www.thislupuslife.com/my-lupus-in-my-twenties/ ‎

#twenties #lupus #systemiclupuserythematosus #lupuscerebritis #cerebritis #lupie #lupielife #blog #blogger #lupuswa #butyoudontlooksick #thislupuslife
The last few weeks have been focused on how my Lupus troubles have involved my parents directly. It took a lot of strength from them, I am sure and I can only thank them. You may have noticed, from the information I have trickled into the last 8 months of posts but some pretty big changes are happening in my life at the moment. It has left me scatterbrained and feeling quite insecure. But I would like to share with you the first crossroad I am coming up to. Incredibly it is not so much a crossroad as it is a three-way-intersection. I have some big choices to make and the first of those to bring more clarity to my intentions and communications with y'all. Have a read now and see how it grabs you. If you decide to follow through, as the end of the text suggests, please feel free to share your actions, thoughts, ideas with me!! Let's get it started in here! http://www.thislupuslife.com/my-lupus-in-my-twenties/ ‎ #twenties  #lupus  #systemiclupuserythematosus  #lupuscerebritis  #cerebritis  #lupie  #lupielife  #blog  #blogger  #lupuswa  #butyoudontlooksick  #thislupuslife 
Update on my current flare up. I'm starting to feel a lot better. I'm still very fatigued and tired all the time. But my appetite is better and I'm not as nauseous. Headache is bearable. Thanks for the prayers, I love you all. #Lupus #lupuslife #lupuswarrior #lupusflare #lupuscerebritis #lupusla #polymyositis #stayingstrong #stayingpositive #imthankful #mctd
How is it that I look this good as I go to bed, but a complete mess throughout the rest of the day?! #lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #butyoudontlooksick #lupusawareness #thislupuslife #chronicillness #invisibleillness #blog #blogger #bedtime
Strong woman have begun some of the most incredible scientific and mathematic inquiries of history. Rachel Carson, one such woman was the foundational drive behind the largest environmental protection movement still promoted today, the Environmental Protection Agency (EPA). She was fundamental in the push for the ban of DDT usage. 
Lupus is an horrific illness, prominent in some (arguably minority) communities of the world: women, Asians, Africans and African Americans. We need to advocate, support and promote this disease for the improvement of treatment and funding of research. Just as Rachel Carson, we need to overcome the barriers and impress the importance of treatment and a cure. All of our minorities together make a majority and make us strong. Life is beautiful. Science is amazing. Lupus is beatable. 
#lupus #systemiclupuserythematosus #lupuscerebritis #lupusnephritis #lupusawareness #discoidlupus #chronicillness #autoimmuneillness #butyoudontlooksick #thislupuslife #blog #blogger #strength #rachelcarson
Strong woman have begun some of the most incredible scientific and mathematic inquiries of history. Rachel Carson, one such woman was the foundational drive behind the largest environmental protection movement still promoted today, the Environmental Protection Agency (EPA). She was fundamental in the push for the ban of DDT usage. Lupus is an horrific illness, prominent in some (arguably minority) communities of the world: women, Asians, Africans and African Americans. We need to advocate, support and promote this disease for the improvement of treatment and funding of research. Just as Rachel Carson, we need to overcome the barriers and impress the importance of treatment and a cure. All of our minorities together make a majority and make us strong. Life is beautiful. Science is amazing. Lupus is beatable. #lupus  #systemiclupuserythematosus  #lupuscerebritis  #lupusnephritis  #lupusawareness  #discoidlupus  #chronicillness  #autoimmuneillness  #butyoudontlooksick  #thislupuslife  #blog  #blogger  #strength  #rachelcarson 
The attached piece was written by Noli, my mother and one of my parent-carers. These are her thoughts on the Journey through this Lupus life, my Lupus life, and how it has brought her from a mother of three entering the ‘empty nest’ phase of her life, to wading through the health troubles of one of her children (me). I only asked for ’500 words or so.’ But here you go.

http://www.thislupuslife.com/caring-for-jess-…parent-and-carer/

#lupus #lupuscerebritis #systemiclupuserythematosus #blog #blogger #thislupuslife #lupie #carer #parent #parentcarer
The attached piece was written by Noli, my mother and one of my parent-carers. These are her thoughts on the Journey through this Lupus life, my Lupus life, and how it has brought her from a mother of three entering the ‘empty nest’ phase of her life, to wading through the health troubles of one of her children (me). I only asked for ’500 words or so.’ But here you go. http://www.thislupuslife.com/caring-for-jess-…parent-and-carer/ #lupus  #lupuscerebritis  #systemiclupuserythematosus  #blog  #blogger  #thislupuslife  #lupie  #carer  #parent  #parentcarer 
I'm very excited for my post today. My mother has willingly allowed me to share her thoughts, in her own words, on how this Lupus life (my Lupus life) has affected her and what it has meant for her to become a parent-carer. Stay tuned for my post to come out at about 12:30 AWST!! #lupus #systemiclupuserythematosus #lupuscerebritis #braindisease #blog #blogger #thislupuslife #parentcarer #carer #parents
You know when you get out old pictures and reminisce on when you were younger? It was 5 years ago in October that these scans were taken. That is when my life, world, and body became alien and different to me. Nothing has been the same since. I will never be that person, not the naive, rusting, lassez faire attitude nor the characteristically robust, boisterous young woman, or the healthy and physically active go-getter. I do not regret or yearn for her. Some of the changes are just natural and come from maturing into adulthood, they would have happened regardless. I think I am a better, more considerate and caring person now. I hope I have been able to give others what they need from me, when I could. And I hope I find a place to be happy in the world to come. 
#lupus #systemiclupuserythematosus #lupuscerebritis #braindisease #strong #lupusawareness #butyoudontlooksick #chronicillness #autoimmuneillness #blog #blogger #immunesystem #thislupuslife #brainlesions
You know when you get out old pictures and reminisce on when you were younger? It was 5 years ago in October that these scans were taken. That is when my life, world, and body became alien and different to me. Nothing has been the same since. I will never be that person, not the naive, rusting, lassez faire attitude nor the characteristically robust, boisterous young woman, or the healthy and physically active go-getter. I do not regret or yearn for her. Some of the changes are just natural and come from maturing into adulthood, they would have happened regardless. I think I am a better, more considerate and caring person now. I hope I have been able to give others what they need from me, when I could. And I hope I find a place to be happy in the world to come. #lupus  #systemiclupuserythematosus  #lupuscerebritis  #braindisease  #strong  #lupusawareness  #butyoudontlooksick  #chronicillness  #autoimmuneillness  #blog  #blogger  #immunesystem  #thislupuslife  #brainlesions 
#Repost @mickeynsync with @get_repost
・・・
Feeling good to be home, I'm dealing with a few minor side effects but I'll be okay. I'm strong and I got this. #Lupus #lupuslife #lupuscerebritis #findacure #polymyositis #lupusla #fighter #stayingstrong #stayingpositive #lovinglife
Another new blog post...as much as I hate lupus, I’m thankful that it lead me to blogging. Even though my IG stats suck right now. I’m trying to blog again for the sheer joy and fun of it again like I was in 2015 and not get so caught up in stats. Anyway, there’s a new post about my lupus and how I started blogging #linkinbio
Another new blog post...as much as I hate lupus, I’m thankful that it lead me to blogging. Even though my IG stats suck right now. I’m trying to blog again for the sheer joy and fun of it again like I was in 2015 and not get so caught up in stats. Anyway, there’s a new post about my lupus and how I started blogging #linkinbio 
Feeling good to be home, I'm dealing with a few minor side effects but I'll be okay. I'm strong and I got this. #Lupus #lupuslife #lupuscerebritis #findacure #polymyositis #lupusla #fighter #stayingstrong #stayingpositive #lovinglife
Didn't get much sleep last night because I've been drinking a lot of water to flush as much of the chemo out as possible. My tummy is upset and my appetite is nonexistent. I'm fatigued also, but I think my first treatment went well. #chemotherapy #lupuscerebritis #lupus #lupuslife #lupuswarrior #findacure #fighter #polymyositis #positivity #stayingpositive #nevergiveup
How is everyone doing with this cooling weather? I love the cold...in theory. I hate what it does to me! 
#lupus #systemiclupuserythematosus #lupuscerebritis #autoimmuneillness #butyoudontlooksick #lupusawareness #thislupuslife #chronicillness #invisibleillness #blog #blogger
I was diagnosed with my illness as an adult. I never really thought my early years of adulthood would see me being cared for by anyone, let alone my parents. I am blessed to be in a situation in which this is possible, and blessed that my situation is not like some younger adults who are in a patient-carer situation. But my illness is Lupus, and I cannot truly know what is in my future, or how long that will be. I guess that is why my parents are my carers. Read about my first few years and what has already happened. 
http://www.thislupuslife.com/parents-as-carers/

#lupus #systemiclupuserythematosus #lupuscerebritis #braindisease #strong #blog #blogger #thislupuslife #lupie
I was diagnosed with my illness as an adult. I never really thought my early years of adulthood would see me being cared for by anyone, let alone my parents. I am blessed to be in a situation in which this is possible, and blessed that my situation is not like some younger adults who are in a patient-carer situation. But my illness is Lupus, and I cannot truly know what is in my future, or how long that will be. I guess that is why my parents are my carers. Read about my first few years and what has already happened. http://www.thislupuslife.com/parents-as-carers/ #lupus  #systemiclupuserythematosus  #lupuscerebritis  #braindisease  #strong  #blog  #blogger  #thislupuslife  #lupie 
My latest blog post talks about loving and trusting in God in the midst of having a chronic illness. Oh and I talk more in to detail about my hospitalization at the beginning of the month. Warning: it’s pretty heavy. If you’d like to read, please check it out #linkinbio
My latest blog post talks about loving and trusting in God in the midst of having a chronic illness. Oh and I talk more in to detail about my hospitalization at the beginning of the month. Warning: it’s pretty heavy. If you’d like to read, please check it out #linkinbio