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NEW PODCAST EPISODE on Health & Fitness. Ever thought about ACUPUNCTURE? 
Most of us find it more normal to be a pin cushion at a doctor’s office rather than with an Acupuncturist. Parnia Ayari @parnianyx has her Masters and a license to use this form of Eastern Medicine, which can be used to treat everything from insomnia to autoimmune illness. How does it work and why can’t Western and Eastern Medicine just get along? Parnia shares her thoughts and advice on connecting the body to the mind. #thacompoundmovement #fitnessmotivation #fitness #abworkout #acupuncture #doctors #easternmedicine #alternativemedicine #lupus #autoimmunedisease #lupie #wellness #health #fit #podcast
NEW PODCAST EPISODE on Health & Fitness. Ever thought about ACUPUNCTURE? Most of us find it more normal to be a pin cushion at a doctor’s office rather than with an Acupuncturist. Parnia Ayari @parnianyx has her Masters and a license to use this form of Eastern Medicine, which can be used to treat everything from insomnia to autoimmune illness. How does it work and why can’t Western and Eastern Medicine just get along? Parnia shares her thoughts and advice on connecting the body to the mind. #thacompoundmovement  #fitnessmotivation  #fitness  #abworkout  #acupuncture  #doctors  #easternmedicine  #alternativemedicine  #lupus  #autoimmunedisease  #lupie  #wellness  #health  #fit  #podcast 
#alhamdulillah Here I am... And yes I am still in the hospital after having a GJ Tube Placement which is a feeding tube for a health issue called #gastroparesis I have lost so much weight that I am in starvation Dr’s say so I was given a feeding tube This entire procedure was suppose to take a week but as I always say nothing is ever easy for the #lupie and #spoonie and all those whom suffer with #autoimmunedisease such as #lupus Now a month later here I am still in the hospital and just when I thought I was going home I seem to be having another issue and a problem with this tube I’m beginning to regret putting it in and I have asked them to take it out but they said that until it’s healed (which takes about 6 weeks #subhanaallah ) they cannot remove it safely they want to remedy this new situation with a second tube placement ARE THEY CRAZY OR WHAT? They want me to get a second hole in my stomach like this one isn’t enough and it’s either that or TPN feeds (which comes with a risk of infection for someone fighting lupus after one week of TPN feeds) for the remaining 2 weeks until it’s healed and then they want to remove it and put in a new one 😳 I can be honest with all of  my #igfamily My #spooniecommunity and everyone who follows me I am starting to feel like I shouldn’t have ever let them put it in... I’m reaching out for some information Does anyone who follows me know anyone else who has one of these tubes that can give me some tips or information about how they are doing with their GJ Tubes? 
#lupusstrong #spoonielife #lupussucks #pain #fatigue #chronicillness #invisibleillness #giissuessuck #gastroparesisawareness #lupusawareness #fibromyalgia #lupusawareness #muslimahwithlupus
#alhamdulillah  Here I am... And yes I am still in the hospital after having a GJ Tube Placement which is a feeding tube for a health issue called #gastroparesis  I have lost so much weight that I am in starvation Dr’s say so I was given a feeding tube This entire procedure was suppose to take a week but as I always say nothing is ever easy for the #lupie  and #spoonie  and all those whom suffer with #autoimmunedisease  such as #lupus  Now a month later here I am still in the hospital and just when I thought I was going home I seem to be having another issue and a problem with this tube I’m beginning to regret putting it in and I have asked them to take it out but they said that until it’s healed (which takes about 6 weeks #subhanaallah  ) they cannot remove it safely they want to remedy this new situation with a second tube placement ARE THEY CRAZY OR WHAT? They want me to get a second hole in my stomach like this one isn’t enough and it’s either that or TPN feeds (which comes with a risk of infection for someone fighting lupus after one week of TPN feeds) for the remaining 2 weeks until it’s healed and then they want to remove it and put in a new one 😳 I can be honest with all of my #igfamily  My #spooniecommunity  and everyone who follows me I am starting to feel like I shouldn’t have ever let them put it in... I’m reaching out for some information Does anyone who follows me know anyone else who has one of these tubes that can give me some tips or information about how they are doing with their GJ Tubes? #lupusstrong  #spoonielife  #lupussucks  #pain  #fatigue  #chronicillness  #invisibleillness  #giissuessuck  #gastroparesisawareness  #lupusawareness  #fibromyalgia  #lupusawareness  #muslimahwithlupus 
Remember the cat fountain that I was going to build a few posts ago? This is it! It’s been up for a few days and so far my oldest and my youngest love it! My middle baby doesn’t get it😂• I was going over some of what I said in my last post and I 100% stand by it but I want to make sure everyone knows that I wasn’t singling anyone out as a “bad” spoonie• Honestly I think we fail to kind of...grow up, for lack of a better term. Like I’m sorry, but you’re not my hero because you went grocery shopping. You do not deserve praise for that- you are not five. I think that this happens a lot because we tend to have to rely on others a lot and it makes it easier to rely on them for everything and expect them to do everything• This is not to say that you should be able to do everything an abled person does. You may also need more accommodations than an abled person. But don’t let your disability stop you from living an independent life where you do other things than just be sick• This is just an ongoing thought I’ve been having about the community as a whole and who I want to be as a chronically ill person. If you like what I’m saying I recommend checking out the #sickpeopledoingthings tag and @chronicmotivation for lots of incredible content. Becky gives so much advice on stuff like this and is a boss ass bitch!• I love you guys and I appreciate each of you!💜
Remember the cat fountain that I was going to build a few posts ago? This is it! It’s been up for a few days and so far my oldest and my youngest love it! My middle baby doesn’t get it😂• I was going over some of what I said in my last post and I 100% stand by it but I want to make sure everyone knows that I wasn’t singling anyone out as a “bad” spoonie• Honestly I think we fail to kind of...grow up, for lack of a better term. Like I’m sorry, but you’re not my hero because you went grocery shopping. You do not deserve praise for that- you are not five. I think that this happens a lot because we tend to have to rely on others a lot and it makes it easier to rely on them for everything and expect them to do everything• This is not to say that you should be able to do everything an abled person does. You may also need more accommodations than an abled person. But don’t let your disability stop you from living an independent life where you do other things than just be sick• This is just an ongoing thought I’ve been having about the community as a whole and who I want to be as a chronically ill person. If you like what I’m saying I recommend checking out the #sickpeopledoingthings  tag and @chronicmotivation for lots of incredible content. Becky gives so much advice on stuff like this and is a boss ass bitch!• I love you guys and I appreciate each of you!💜
Yall! It's a Christmas miracle. The No- Tomato sauce is good! So is the nutritional yeast. Here's being able to feel like I'm enjoying a splurge without actually splurging OR eating all the stuff that makes me sick. Edamame noodles, tomato less sauce, cheese free cheese, and primal kitchen salad dressing.  I will figure out all this food stuff eventually, so happy tonight was a small success! #lupusawareness #lupuswarrior #lupie #lupus #chronicillness #chronicfatigue #cfs #autoimmunedisease #autoimmune #spoonie #spoonielife #cleanliving #themoreyouknow #cleaneating #toxinfree #yayforcarbs
Yall! It's a Christmas miracle. The No- Tomato sauce is good! So is the nutritional yeast. Here's being able to feel like I'm enjoying a splurge without actually splurging OR eating all the stuff that makes me sick. Edamame noodles, tomato less sauce, cheese free cheese, and primal kitchen salad dressing. I will figure out all this food stuff eventually, so happy tonight was a small success! #lupusawareness  #lupuswarrior  #lupie  #lupus  #chronicillness  #chronicfatigue  #cfs  #autoimmunedisease  #autoimmune  #spoonie  #spoonielife  #cleanliving  #themoreyouknow  #cleaneating  #toxinfree  #yayforcarbs 
Estamos muito curiosos pra saber o que a princesa Gabi viu!! Ela veste #afabula e #lupie . 💕💕💕
Estamos muito curiosos pra saber o que a princesa Gabi viu!! Ela veste #afabula  e #lupie  . 💕💕💕
Sunday activities plans when you live with #lupus ... P. S. I’d like to let you know that through my website you can get a FREE bottle of a live high potency probiotic (50 billion good bacteria) and a FREE container of a premium quality protein. They provide nutrients that are often lacking in people with lupus and #autoimmune disorders. It’s truly free, no strings attached. You can get it via my website http://lupusselfhelp.com/free or just click the link in my instagram profile @lupusselfhelp <<<===clickable link
Sunday activities plans when you live with #lupus  ... P. S. I’d like to let you know that through my website you can get a FREE bottle of a live high potency probiotic (50 billion good bacteria) and a FREE container of a premium quality protein. They provide nutrients that are often lacking in people with lupus and #autoimmune  disorders. It’s truly free, no strings attached. You can get it via my website http://lupusselfhelp.com/free or just click the link in my instagram profile @lupusselfhelp <<<===clickable link
Stolen with love from @ninajean 💜 go follow her- she’s awesome! • So this is a bit of a difficult subject to broach considering the current atmosphere of the chronic illness community but after seeing my lovely friend’s post, I wanted to say something as well. •I am not an inspiration. I am simply a sick person living my life. That’s all ANY of us are. I am not “inspirational” because I went to Wal-Mart yesterday. I am not a “warrior” because I cleaned my house- I actually hate that word now. I’ve made accommodations to be able to live my life with chronic illness. That’s not praise-worthy. •My illness is not glamorous. I don’t lie around doing at home spa treatments. I don’t take lavish vacations where my illness magically disappears. I don’t go shopping everyday. •You’ll never catch me on Instagram during 10/10 pain- because I’d be unconscious. I won’t ever do this 💪 or this 👍. I won’t complain and bash my healthcare providers. 
I’m not the “popular Instagram spoonie” that gets 20,000 followers. That’s cool with me if it means I keep my dignity. I’m not going to follow the pattern acting like I’m a hero for living, because I’m not. This is my life. I’m just a normal person.
Stolen with love from @ninajean 💜 go follow her- she’s awesome! • So this is a bit of a difficult subject to broach considering the current atmosphere of the chronic illness community but after seeing my lovely friend’s post, I wanted to say something as well. •I am not an inspiration. I am simply a sick person living my life. That’s all ANY of us are. I am not “inspirational” because I went to Wal-Mart yesterday. I am not a “warrior” because I cleaned my house- I actually hate that word now. I’ve made accommodations to be able to live my life with chronic illness. That’s not praise-worthy. •My illness is not glamorous. I don’t lie around doing at home spa treatments. I don’t take lavish vacations where my illness magically disappears. I don’t go shopping everyday. •You’ll never catch me on Instagram during 10/10 pain- because I’d be unconscious. I won’t ever do this 💪 or this 👍. I won’t complain and bash my healthcare providers. I’m not the “popular Instagram spoonie” that gets 20,000 followers. That’s cool with me if it means I keep my dignity. I’m not going to follow the pattern acting like I’m a hero for living, because I’m not. This is my life. I’m just a normal person.
My co-worker knows I love rose gold and her hair accessories so she made me my own loc beads and earrings ♡ 
#locbeads #rosegold #Loclivin #locstyles #melanin #blackgirlmagic #locqueen #locnation #locsaremyhalo #locjourney #locmaintenance #natural #blackhair #loclove #locstylesforwomen #locking #iamlocd#lupussurvivor #lupie #fibromyalgia #rheumatoidarthritis
In bed watching TV Cos the lights hurting my eyes and my back hurts so bad! Well Dans watching tv whilst I try and get some #sleep my #head #eye and #body are #killingme ❤️💔🥺😫 #lupusflare #lupus #lollyandlupus #mylifewithlupus #poorlysick #warrior #spoonie #lupie #bedtime #relax #allthepills #bedtime #medication 💉💊
We hope you like our re-vamped Instagram for 2019! Stay tuned next week!
We're going to post on a variety of topics starting with education, empowerment, and then offer our lupus life hacks™️
✨Lupus Health Shop is all about improving our quality of life without sacrificing our health! That includes affordability for the product type,  Lupus Life Hacks™️, educating our community on how our diet, supplements, and how mental health can heavily influence our disease progression or regression. Lastly, empower each other to be the best self-advocate for your needs with healthcare providers.
- @gigi8030 , Co-founder & CEO
⠀⠀⠀⠀⠀⠀⠀⠀⠀
subscribe to my email list to get weekly, detailed tips on the lupus life hacks™️ I use to live a healthier and happier life with Lupus!
#linkinbio
⠀⠀⠀⠀⠀⠀⠀⠀⠀ #lupus #lupie #lupuslife #lupiewarriors #lupuswarrior💜 #sle #lupussucks #lupuscantstopme #lupiechick #lupusnephritis #lupussurvivor #lupusstrong #strongerthanlupus #fucklupus #lupussle #lupusdisease #lupussisters
We hope you like our re-vamped Instagram for 2019! Stay tuned next week! We're going to post on a variety of topics starting with education, empowerment, and then offer our lupus life hacks™️ ✨Lupus Health Shop is all about improving our quality of life without sacrificing our health! That includes affordability for the product type, Lupus Life Hacks™️, educating our community on how our diet, supplements, and how mental health can heavily influence our disease progression or regression. Lastly, empower each other to be the best self-advocate for your needs with healthcare providers. - @gigi8030 , Co-founder & CEO ⠀⠀⠀⠀⠀⠀⠀⠀⠀ subscribe to my email list to get weekly, detailed tips on the lupus life hacks™️ I use to live a healthier and happier life with Lupus! #linkinbio  ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #lupus  #lupie  #lupuslife  #lupiewarriors  #lupuswarrior 💜 #sle  #lupussucks  #lupuscantstopme  #lupiechick  #lupusnephritis  #lupussurvivor  #lupusstrong  #strongerthanlupus  #fucklupus  #lupussle  #lupusdisease  #lupussisters 
Lupus Health Shop is all about improving our quality of life without sacrificing our health! That includes affordability for the product type,  Lupus Life Hacks ™️, educating our community on how our diet, supplements, and mental health can heavily influence our disease progression or regression, and lastly, empower each other to be the best self-advocate for your needs with healthcare providers.
- @gigi8030 , Co-founder & CEO
⠀⠀⠀⠀⠀⠀⠀⠀⠀
subscribe to my email list to get weekly, detailed tips on the lupus life hacks™️ I use to live a healthier and happier life with Lupus!
#linkinbio
⠀⠀⠀⠀⠀⠀⠀⠀⠀ #lupus #lupie #lupuslife #lupiewarriors #lupuswarrior💜 #sle #lupussucks #lupuscantstopme #lupiechick #lupusnephritis #lupussurvivor #lupusstrong #strongerthanlupus #fucklupus #lupussle #lupusdisease #lupussisters
Lupus Health Shop is all about improving our quality of life without sacrificing our health! That includes affordability for the product type, Lupus Life Hacks ™️, educating our community on how our diet, supplements, and mental health can heavily influence our disease progression or regression, and lastly, empower each other to be the best self-advocate for your needs with healthcare providers. - @gigi8030 , Co-founder & CEO ⠀⠀⠀⠀⠀⠀⠀⠀⠀ subscribe to my email list to get weekly, detailed tips on the lupus life hacks™️ I use to live a healthier and happier life with Lupus! #linkinbio  ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #lupus  #lupie  #lupuslife  #lupiewarriors  #lupuswarrior 💜 #sle  #lupussucks  #lupuscantstopme  #lupiechick  #lupusnephritis  #lupussurvivor  #lupusstrong  #strongerthanlupus  #fucklupus  #lupussle  #lupusdisease  #lupussisters 
We hope you like our re-vamped Instagram for 2019! Stay tuned next week!
We're going to post on a variety of topics starting with education, empowerment, and then offer our lupus life hacks™️ :)
⠀⠀⠀⠀⠀⠀⠀⠀⠀
Lupus Health Shop is all about improving our quality of life without sacrificing our health! That includes affordability for the product type,  Lupus Life Hacks™️, educating our community on how our diet, supplements, and mental health can heavily influence our disease progression or regression, and lastly, empower each other to be the best self-advocate for your needs with healthcare providers.
- @gigi8030 , Co-founder & CEO
⠀⠀⠀⠀⠀⠀⠀⠀⠀
subscribe to my email list to get weekly, detailed tips on the lupus life hacks™️ I use to live a healthier and happier life with Lupus!
#linkinbio
⠀⠀⠀⠀⠀⠀⠀⠀⠀ #lupus #lupie #lupuslife #lupiewarriors #lupuswarrior💜 #sle #lupussucks #lupuscantstopme #lupiechick #lupusnephritis #lupussurvivor #lupusstrong #strongerthanlupus #fucklupus #lupussle #lupusdisease #lupussisters
We hope you like our re-vamped Instagram for 2019! Stay tuned next week! We're going to post on a variety of topics starting with education, empowerment, and then offer our lupus life hacks™️ :) ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Lupus Health Shop is all about improving our quality of life without sacrificing our health! That includes affordability for the product type, Lupus Life Hacks™️, educating our community on how our diet, supplements, and mental health can heavily influence our disease progression or regression, and lastly, empower each other to be the best self-advocate for your needs with healthcare providers. - @gigi8030 , Co-founder & CEO ⠀⠀⠀⠀⠀⠀⠀⠀⠀ subscribe to my email list to get weekly, detailed tips on the lupus life hacks™️ I use to live a healthier and happier life with Lupus! #linkinbio  ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #lupus  #lupie  #lupuslife  #lupiewarriors  #lupuswarrior 💜 #sle  #lupussucks  #lupuscantstopme  #lupiechick  #lupusnephritis  #lupussurvivor  #lupusstrong  #strongerthanlupus  #fucklupus  #lupussle  #lupusdisease  #lupussisters 
Lupus DLE patients in Denmark can be part of a great patient engagement. Share your patient experience and opinion and get paid while doing us all a favor. Contact info@lupusfriendsandfamily.org if interested
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I Danmark kan vi nu tilbyde en unik patient inddragelsens mulighed for Lupus DLE (discoid) patienter som bor i Danmark. Del din patient viden og indsigter og tjen lidt på det - mens du gør os alle en tjeneste. Kontakt info@lupusfriendsandfamily.org hvis interesseret eller har spørgsmål.
Lupus DLE patients in Denmark can be part of a great patient engagement. Share your patient experience and opinion and get paid while doing us all a favor. Contact info@lupusfriendsandfamily.org if interested . . . I Danmark kan vi nu tilbyde en unik patient inddragelsens mulighed for Lupus DLE (discoid) patienter som bor i Danmark. Del din patient viden og indsigter og tjen lidt på det - mens du gør os alle en tjeneste. Kontakt info@lupusfriendsandfamily.org hvis interesseret eller har spørgsmål.
First Sunday after wedding and we went to tulja mandir to seek the blessings of Maa... She is very important for me and Ajay... We see our parents in her!

Goddess Tulja Maa.. our everything! 
We start our new wedded life with her blessings today... Grateful for life and everything !

#grateful #gratitude #tuljabhavani #blessed #countonblessings #lupusawareness #livinglifeontheedge #lupie #lupus #celiacdisease #vegan ##celiac #glutenfree #gastroparesisawareness #gastroparesis #celiacawareness #newlymarried #love
First Sunday after wedding and we went to tulja mandir to seek the blessings of Maa... She is very important for me and Ajay... We see our parents in her! Goddess Tulja Maa.. our everything! We start our new wedded life with her blessings today... Grateful for life and everything ! #grateful  #gratitude  #tuljabhavani  #blessed  #countonblessings  #lupusawareness  #livinglifeontheedge  #lupie  #lupus  #celiacdisease  #vegan  ##celiac  #glutenfree  #gastroparesisawareness  #gastroparesis  #celiacawareness  #newlymarried  #love 
Скоро Новый Год! Я чувствую это в воздухе, я чувствую это в воде и в винах🥂, везде и повсюду #новогоднеенастроение!
Подарки подготовлены, в доме чистота и порядок, осталось живую ёлку купить и нарядить старинными нашими семейными игрушками. Люблю наряжать ёлку! 
#красотастрашнаясила #москва #стрижка  #pouretrebelleilfautsouffrir #cheveaux #hairstyle #beautystudio #msk #beautiful #beautiful #hair #haircut #haircutsforwomen #selfie #lupusadvocate_russia #lupus #lupuslife #lupie #newyearselfie #салонкрасотыграфиня #сквнеприговор #волчанка #newlook
Скоро Новый Год! Я чувствую это в воздухе, я чувствую это в воде и в винах🥂, везде и повсюду #новогоднеенастроение ! Подарки подготовлены, в доме чистота и порядок, осталось живую ёлку купить и нарядить старинными нашими семейными игрушками. Люблю наряжать ёлку! #красотастрашнаясила  #москва  #стрижка  #pouretrebelleilfautsouffrir  #cheveaux  #hairstyle  #beautystudio  #msk  #beautiful  #beautiful  #hair  #haircut  #haircutsforwomen  #selfie  #lupusadvocate_russia  #lupus  #lupuslife  #lupie  #newyearselfie  #салонкрасотыграфиня  #сквнеприговор  #волчанка  #newlook 
I’ve #cleaned the #house got up to date with the #washing and have a #roastdinner #cooking in the range! Now I am chilling out for 5 minutes! This #coffee may contain #rumchata too! 😂 but it’s ok it’s almost #Christmas 😂❤️🎄🎉⛄️🎅🏼❄️🎁🌟🥳 #itsthemostwonderfultimeoftheyear #itsbeginningtolookalotlikechristmas #santaclausiscomingtotown #lupusflare #lupie #spoonie #warrior #lollyandlupus #mylifewithlupus
Going into the holiday season filled up after support group today. Come join us for the next support group on January 19th. 🦋
Going into the holiday season filled up after support group today. Come join us for the next support group on January 19th. 🦋
Eating fermented foods feed the beneficial microbes in your gut. The foods are easier to digest and the nutrients are made more available to nourish us. When milk is cultured, the lactose is digested so if you're like me and you have lactose intolerance, drinking homemade kefir is a good way to get the nutrients without the reactions.
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#lupus #lupuswarrior #lupusawareness #lupusfighter #lupussucks #lupuslife #chronicillness #lupussurvivor #lupusflare #autoimmunedisease #lupuswalk #lupusstrong #spoonie #lupusawarenessmonth #invisibleillness #lupuswarriors #sle #purpleforlupus #chronicpain #lupusproblems #lupusadvocate #lupie #nutrition #nutritiontips #nutritional #health #healthylifestyle #healthy #healthyfood #sjogrenssyndrome
Eating fermented foods feed the beneficial microbes in your gut. The foods are easier to digest and the nutrients are made more available to nourish us. When milk is cultured, the lactose is digested so if you're like me and you have lactose intolerance, drinking homemade kefir is a good way to get the nutrients without the reactions. . . . . . . . . #lupus  #lupuswarrior  #lupusawareness  #lupusfighter  #lupussucks  #lupuslife  #chronicillness  #lupussurvivor  #lupusflare  #autoimmunedisease  #lupuswalk  #lupusstrong  #spoonie  #lupusawarenessmonth  #invisibleillness  #lupuswarriors  #sle  #purpleforlupus  #chronicpain  #lupusproblems  #lupusadvocate  #lupie  #nutrition  #nutritiontips  #nutritional  #health  #healthylifestyle  #healthy  #healthyfood  #sjogrenssyndrome 
Today’s ruling affects me personally. My coverage through the ACA (at $425/month) starts January 1st. If California and 16 other states were not willing, able, and excited to appeal this ruling that the ACA is “unconstitutional”, I could easily die. You see, I’ve been without insurance since about April, so eight months. In those eight months I’ve not seen a rheumatologist for my lupus, not gotten a surgery that four doctors (including two surgeons) confirm I need, and I’ve gotten diagnosed with another illness, this time a rare one- and I can’t afford to see a specialist for it. Do you know how I’m surviving? My father. But 95% of people in my position don’t have that resource. I’m counting on this appeal...on the Democrats I know and love, to fight the uncaring, heartless Republicans on this. I’m counting on the Supreme Court, one I have very little faith in. If you’ve got a pre existing condition, if you’re disabled, if you’re reading this post, and you’re a Republican- ask yourself if you’re proud of the utter fear your party is causing. Are you PROUD of what Trump is doing? Are you PROUD you or I could lose our healthcare? Think on it, and get back to me.
Today’s ruling affects me personally. My coverage through the ACA (at $425/month) starts January 1st. If California and 16 other states were not willing, able, and excited to appeal this ruling that the ACA is “unconstitutional”, I could easily die. You see, I’ve been without insurance since about April, so eight months. In those eight months I’ve not seen a rheumatologist for my lupus, not gotten a surgery that four doctors (including two surgeons) confirm I need, and I’ve gotten diagnosed with another illness, this time a rare one- and I can’t afford to see a specialist for it. Do you know how I’m surviving? My father. But 95% of people in my position don’t have that resource. I’m counting on this appeal...on the Democrats I know and love, to fight the uncaring, heartless Republicans on this. I’m counting on the Supreme Court, one I have very little faith in. If you’ve got a pre existing condition, if you’re disabled, if you’re reading this post, and you’re a Republican- ask yourself if you’re proud of the utter fear your party is causing. Are you PROUD of what Trump is doing? Are you PROUD you or I could lose our healthcare? Think on it, and get back to me.
Anyone diagnosed with lupus whether it’s SLE or any of the other types experience different symptoms, different struggles and yet the same !! We read stories of celebrities who have lupus and their symptoms are different like #nickcannon Or #tonibraxton However it does not make it less painful!! •
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#lupie #lupusfighters #become1withthewolf #nmo #nickcannon #tonibraxton #endlupus #lupusfoundationofamerica #sticktogether #mindwhatyoueat #holisticmeansnaturalhealing #electricfoods #alkalinefoods 
Stay grounded no matter what!!
Anyone diagnosed with lupus whether it’s SLE or any of the other types experience different symptoms, different struggles and yet the same !! We read stories of celebrities who have lupus and their symptoms are different like #nickcannon  Or #tonibraxton  However it does not make it less painful!! • • • • • • • • #lupie  #lupusfighters  #become1withthewolf  #nmo  #nickcannon  #tonibraxton  #endlupus  #lupusfoundationofamerica  #sticktogether  #mindwhatyoueat  #holisticmeansnaturalhealing  #electricfoods  #alkalinefoods  Stay grounded no matter what!!
Breakfast goals!!! .
1. Vegan Green smoothie (beetroots, spinach, celery, apples, bottle gourds) 🥬🥑🥒🍐 .
2. Stir fry - Mushrooms, bay corn, multi coloured 
capsicum , broccoli , lettuce .
3. Buy multi grain millet Pizza base (NOT FLOUR) !! Add the left over topings with Nutritional yeast!!!
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#Vegan #VeganLove #HappyVegan #Semivegan
#Lupus #Lupie #LupusLife #LupusLove #LupusWarrior #LupusIndia #LupusBlogger #cyclophosphamide #LupusNephritis #LupusIndia #LupusSucks #FuckLupus #SystemicLupusErythematosus #LupusWarrior  #LupusCarditis  #LupusAwareness #Lupusproblems #LupusHumour #lupusfacts #lupussle #lupusproblems #LupusJokes #lupusnutrition #GoodByeLupus #LupusDiet
Breakfast goals!!! . 1. Vegan Green smoothie (beetroots, spinach, celery, apples, bottle gourds) 🥬🥑🥒🍐 . 2. Stir fry - Mushrooms, bay corn, multi coloured capsicum , broccoli , lettuce . 3. Buy multi grain millet Pizza base (NOT FLOUR) !! Add the left over topings with Nutritional yeast!!! . . . #Vegan  #VeganLove  #HappyVegan  #Semivegan  #Lupus  #Lupie  #LupusLife  #LupusLove  #LupusWarrior  #LupusIndia  #LupusBlogger  #cyclophosphamide  #LupusNephritis  #LupusIndia  #LupusSucks  #FuckLupus  #SystemicLupusErythematosus  #LupusWarrior  #LupusCarditis  #LupusAwareness  #Lupusproblems  #LupusHumour  #lupusfacts  #lupussle  #lupusproblems  #LupusJokes  #lupusnutrition  #GoodByeLupus  #LupusDiet 
To all the men I pushed out of my life. It truly wasn't you, it was me. Anyone with a chronic illness will understand and relate to this.  Thank you God for being by my side in my many battles. I've been through alot but I won . And I am winning! #lupussucks#warrior#lupie#lupus#fucklupus#butterfly#strengthquotes#love#healing#women#men#relationships#poetry#gratitude
My 2 new bedmates:
cbd sublingual spray.
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We were able to elimimate 4 pills with these.
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Now that I know that it works for me, I need to look into more options! .
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#lupus #lupussuck #lupie #lupussupport #lupusawareness #lupuswarrior #cbd #marijuanaismedicine #naturalmedicine #holistic #cannabis #cbdspray #canada #lupuschick #painmanagement #pain #chronicillness #chronicpain #autoimmunedisease #chronicallyill #ulcerativecolitis #sarcoidosis #myositis #rhumatoidarthritis
My 2 new bedmates: cbd sublingual spray. . We were able to elimimate 4 pills with these. . Now that I know that it works for me, I need to look into more options! . . #lupus  #lupussuck  #lupie  #lupussupport  #lupusawareness  #lupuswarrior  #cbd  #marijuanaismedicine  #naturalmedicine  #holistic  #cannabis  #cbdspray  #canada  #lupuschick  #painmanagement  #pain  #chronicillness  #chronicpain  #autoimmunedisease  #chronicallyill  #ulcerativecolitis  #sarcoidosis  #myositis  #rhumatoidarthritis 
#Lupie enjoying an active positive lifestyle. Seeing some gains 💪. Slow but will continue pushing on. Tank by @naturalfitdesigns. #Spoonie for life and I'm ok with it
#Lupie  enjoying an active positive lifestyle. Seeing some gains 💪. Slow but will continue pushing on. Tank by @naturalfitdesigns. #Spoonie  for life and I'm ok with it
Pneumonia life😅 Hopefully getting Rocephin when I see the doctor on Monday because I JUST finished a course of Cipro for my UTI. Rocephin shots suck though tbh. It’s better than feeling like your lungs are made of plastic bags though! Today was okay, but I keep forgetting to eat due to my IH med. It’s worth it though, because I was able to go to Walmart, put the groceries up, and clean! I feel mega proud💁‍♀️
Pneumonia life😅 Hopefully getting Rocephin when I see the doctor on Monday because I JUST finished a course of Cipro for my UTI. Rocephin shots suck though tbh. It’s better than feeling like your lungs are made of plastic bags though! Today was okay, but I keep forgetting to eat due to my IH med. It’s worth it though, because I was able to go to Walmart, put the groceries up, and clean! I feel mega proud💁‍♀️
Fun fact- nutritional yeast has a cheesy, nutty, savory flavor to it and can be used as an alternative to dairy. 
You can use nooch in almost anything. Add to salads, sprinkle on steamed veggies, blend into sauces and dressings, and used like Parmesan on spaghetti. BONUS its typically fortified with B12. And if you haven't paid attention to my rants on the importance of B12 yet- well let's just say everyone should be on the vitamin B12 train. This months vitacost shipment made me SUPER happy!
 #lupusawareness #lupuswarrior #lupie #lupus #chronicillness #chronicfatigue #cfs #autoimmunedisease #autoimmune #spoonie #spoonielife #themoreyouknow #cleaneating #toxinfree
Fun fact- nutritional yeast has a cheesy, nutty, savory flavor to it and can be used as an alternative to dairy. You can use nooch in almost anything. Add to salads, sprinkle on steamed veggies, blend into sauces and dressings, and used like Parmesan on spaghetti. BONUS its typically fortified with B12. And if you haven't paid attention to my rants on the importance of B12 yet- well let's just say everyone should be on the vitamin B12 train. This months vitacost shipment made me SUPER happy! #lupusawareness  #lupuswarrior  #lupie  #lupus  #chronicillness  #chronicfatigue  #cfs  #autoimmunedisease  #autoimmune  #spoonie  #spoonielife  #themoreyouknow  #cleaneating  #toxinfree 
Keto antipasto plate 😆 pickles / garlic herb cheese / cherry tomatoes / pepperoncini with a short coffee; ordered it 2 hours ago, just drinking it now 😠 Heading to a fancy dinner tonight with my hub’s so, saving carbs / calories for that 🍽  #keto #ketoqueenb71 #ketoweightloss #ketofam #ketosis #ketolife #ketodiet #ketotransformation #intermittentfastingresults  #ketocommunity #ketolifestyle #ketogirl #lowcarb #lchf #lowcarb #ketoweightloss #lowcarblifestyle #lowcarbhighfat #intermittentfasting #lowcarbdiet #bulletproofcoffee #weightloss #weightlossjourney #weightlossmotivation #fitness #lupie #lupus #benlysta #lupuswarrior #lupussucks #sle
Keto antipasto plate 😆 pickles / garlic herb cheese / cherry tomatoes / pepperoncini with a short coffee; ordered it 2 hours ago, just drinking it now 😠 Heading to a fancy dinner tonight with my hub’s so, saving carbs / calories for that 🍽 #keto  #ketoqueenb71  #ketoweightloss  #ketofam  #ketosis  #ketolife  #ketodiet  #ketotransformation  #intermittentfastingresults  #ketocommunity  #ketolifestyle  #ketogirl  #lowcarb  #lchf  #lowcarb  #ketoweightloss  #lowcarblifestyle  #lowcarbhighfat  #intermittentfasting  #lowcarbdiet  #bulletproofcoffee  #weightloss  #weightlossjourney  #weightlossmotivation  #fitness  #lupie  #lupus  #benlysta  #lupuswarrior  #lupussucks  #sle 
"Эпоха колонизации Египта" 
В Египте современном курортном нам нравится многое: климат, разнообразные обитатели Красного Моря, недорогие услуги, изобилие фруктов, Задорнов, помню, писал, что египтяне - это то, что ему не нравится в Египте.
 Берберы, бедуины, арабы(в Шарме работают люди со всего Египта) дружелюбны, хорошо владеют несколькими иностранными языками, зачастую освоенными в процессе работы с туристами, умеют продавать свои товары и услуги.
 Повышенный интерес к европейским женщинам и славянкам и местами вульгарное проявление внимания откровенно бесит! Не все египтяне таковы. Только необразованные и невоспитанные сельские жители. Зачастую они и работают в отелях. 
Стоит учитывать, что вы находитесь в мусульманской стране, где женщины традиционно носят консервативную одежду и с рождения воспитаны в скромности.  Если приезжие женщины надевают открытую одежду за пределами отеля и к тому же вызывающе себя ведут, то тем самым невольно привлекают к себе нежелательное внимание. 
На страже туристов стоят посты Туристической Полиции, турист неприкосновенен и его интересы блюдутся тщательно. 
В эту свою поездку я познакомилась с двумя египетскими женщинами, одна из них из Александрии, вторая из Каира. С ними я продолжаею общение в соцсетях, сами себе Couch Serfing😀, а мы с мужем думаем о Египте туристическом, дворцах и музеях Каира, Гизе, Белой Пустыне, Луксоре, Александрии, Долине Нила. Прямые рейсы из Москвы в Каир открыли уже весной.
Я до сих пор не видела Египта. Только Красное Море
Photo by @milaiseeva
#шармэльшейх #египет #отдыхвегипте #моиканикулы#красноеморе #ноябрь2018 #верблюд #индивидуальныйтуризм #travelblog #sharmelsheikh #egypt #nabq #camelrider #camels #camel #путевыезаметки #travel #travelegypt #discoveregypt #redsea #lupus #сквнеприговор #жизньсволчанкой #lupusadvocate_russia #lupusadvocate #lupus #lupie #lupiesunite #instadaily #instamood #ladyinred
"Эпоха колонизации Египта" В Египте современном курортном нам нравится многое: климат, разнообразные обитатели Красного Моря, недорогие услуги, изобилие фруктов, Задорнов, помню, писал, что египтяне - это то, что ему не нравится в Египте. Берберы, бедуины, арабы(в Шарме работают люди со всего Египта) дружелюбны, хорошо владеют несколькими иностранными языками, зачастую освоенными в процессе работы с туристами, умеют продавать свои товары и услуги. Повышенный интерес к европейским женщинам и славянкам и местами вульгарное проявление внимания откровенно бесит! Не все египтяне таковы. Только необразованные и невоспитанные сельские жители. Зачастую они и работают в отелях. Стоит учитывать, что вы находитесь в мусульманской стране, где женщины традиционно носят консервативную одежду и с рождения воспитаны в скромности. Если приезжие женщины надевают открытую одежду за пределами отеля и к тому же вызывающе себя ведут, то тем самым невольно привлекают к себе нежелательное внимание. На страже туристов стоят посты Туристической Полиции, турист неприкосновенен и его интересы блюдутся тщательно. В эту свою поездку я познакомилась с двумя египетскими женщинами, одна из них из Александрии, вторая из Каира. С ними я продолжаею общение в соцсетях, сами себе Couch Serfing😀, а мы с мужем думаем о Египте туристическом, дворцах и музеях Каира, Гизе, Белой Пустыне, Луксоре, Александрии, Долине Нила. Прямые рейсы из Москвы в Каир открыли уже весной. Я до сих пор не видела Египта. Только Красное Море Photo by @milaiseeva #шармэльшейх  #египет  #отдыхвегипте  #моиканикулы #красноеморе  #ноябрь2018  #верблюд  #индивидуальныйтуризм  #travelblog  #sharmelsheikh  #egypt  #nabq  #camelrider  #camels  #camel  #путевыезаметки  #travel  #travelegypt  #discoveregypt  #redsea  #lupus  #сквнеприговор  #жизньсволчанкой  #lupusadvocate_russia  #lupusadvocate  #lupus  #lupie  #lupiesunite  #instadaily  #instamood  #ladyinred 
(Regarding pain) “DON’T FUCKING ACKNOWLEDGE IT, SARA. IT WILL ONLY STOP YOU IF YOU LET IT.” -Pete @futurefitnesspro screaming in my ear many times when he was coaching me through one of his rigorous training sessions. I was a college basketball player and a skinny little freshman when I met Pete, he was our strength & conditioning coach. 🏀💪 I was the gym rat who would hang around and ask Pete a million nerdy questions after 🤓 so finally one day he asked me if I wanted to do an internship at his gym that summer. 😳🙌🤗 I said yes and became obsessed with training and learning everything I could from him, I WANTED HIS JOB. He also coached me as an athlete, he turned me from a skinny freshman into a machine. He’s the reason I earned a starting position my soph, junior, and senior years. Heading into my senior season I was as strong and well conditioned as I had ever been thanks to Pete. I was co-captain, second leading scorer on the team, and our team was preseason picked as the #1 seed in our conference that year. NOTHING COULD STOP ME. Ohhh except maybe a Lupus diagnosis 😑😑😑 NOPE, definitely hadn’t considered that, AAAND THEN BOOM 💥⚡️🌪 LUPUS HIT 🙍🏻‍♀️🥊😷🤒🤢🤧🤮🤕😵😴 I was passing off a lot of symptoms as the rigorous Div. I training schedule taking a toll on my body but then one day I got sick and never got better. 😷 A few months later I was diagnosed with Lupus at the age of 20, 6 months before my senior 🏀 season. 
Enter Pete’s voice in my ear. He knew this was serious. He would always tell me to take care of myself and rest more than I think I should when I’m sick, but “once you step onto that court DON’T FUCKING ACKNOWLEDGE IT, SARA. IT WILL ONLY STOP YOU IF YOU LET IT.” He’s why I could separate myself from it mentally when I needed to and get done what I needed to get done despite having Lupus.

So maybe this whole time Pete wasn’t just making me tough for basketball, maybe unbeknownst to both of us he was preparing me and instilling in me the resiliency I would need for my lifelong battle with Lupus. He got me through that final bball season and his voice has gotten me through the last 15 years that I’ve battled this brutal disease. 💜
(Regarding pain) “DON’T FUCKING ACKNOWLEDGE IT, SARA. IT WILL ONLY STOP YOU IF YOU LET IT.” -Pete @futurefitnesspro screaming in my ear many times when he was coaching me through one of his rigorous training sessions. I was a college basketball player and a skinny little freshman when I met Pete, he was our strength & conditioning coach. 🏀💪 I was the gym rat who would hang around and ask Pete a million nerdy questions after 🤓 so finally one day he asked me if I wanted to do an internship at his gym that summer. 😳🙌🤗 I said yes and became obsessed with training and learning everything I could from him, I WANTED HIS JOB. He also coached me as an athlete, he turned me from a skinny freshman into a machine. He’s the reason I earned a starting position my soph, junior, and senior years. Heading into my senior season I was as strong and well conditioned as I had ever been thanks to Pete. I was co-captain, second leading scorer on the team, and our team was preseason picked as the #1  seed in our conference that year. NOTHING COULD STOP ME. Ohhh except maybe a Lupus diagnosis 😑😑😑 NOPE, definitely hadn’t considered that, AAAND THEN BOOM 💥⚡️🌪 LUPUS HIT 🙍🏻‍♀️🥊😷🤒🤢🤧🤮🤕😵😴 I was passing off a lot of symptoms as the rigorous Div. I training schedule taking a toll on my body but then one day I got sick and never got better. 😷 A few months later I was diagnosed with Lupus at the age of 20, 6 months before my senior 🏀 season. Enter Pete’s voice in my ear. He knew this was serious. He would always tell me to take care of myself and rest more than I think I should when I’m sick, but “once you step onto that court DON’T FUCKING ACKNOWLEDGE IT, SARA. IT WILL ONLY STOP YOU IF YOU LET IT.” He’s why I could separate myself from it mentally when I needed to and get done what I needed to get done despite having Lupus. So maybe this whole time Pete wasn’t just making me tough for basketball, maybe unbeknownst to both of us he was preparing me and instilling in me the resiliency I would need for my lifelong battle with Lupus. He got me through that final bball season and his voice has gotten me through the last 15 years that I’ve battled this brutal disease. 💜
I drink homemade chicken stock with my homemade bone broth because the gelatin in the stock helps with my digestion and keeps my skin, bones and joints strong and healthy.
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#lupus #lupuswarrior #lupusawareness #lupusfighter #lupussucks #lupuslife #chronicillness #lupussurvivor #lupusflare #autoimmunedisease #lupuswalk #lupusstrong #spoonie #lupusawarenessmonth #invisibleillness #lupuswarriors #sle #purpleforlupus #chronicpain #lupusproblems #lupusadvocate #lupie #nutrition #nutritiontips #nutritional #health #healthylifestyle #healthy #healthyfood #sjogrenssyndrome
I drink homemade chicken stock with my homemade bone broth because the gelatin in the stock helps with my digestion and keeps my skin, bones and joints strong and healthy. . . . . . . . #lupus  #lupuswarrior  #lupusawareness  #lupusfighter  #lupussucks  #lupuslife  #chronicillness  #lupussurvivor  #lupusflare  #autoimmunedisease  #lupuswalk  #lupusstrong  #spoonie  #lupusawarenessmonth  #invisibleillness  #lupuswarriors  #sle  #purpleforlupus  #chronicpain  #lupusproblems  #lupusadvocate  #lupie  #nutrition  #nutritiontips  #nutritional  #health  #healthylifestyle  #healthy  #healthyfood  #sjogrenssyndrome 
Realizing more & more the importance of being open & accepting of the challenges that come with living with a chronic illness. We used to be very secretive about what we were dealing with - not wanting to be perceived or looked upon a certain way, but it’s a hard path to walk alone. Connecting with others who are dealing with their own struggles be it similar or different has given us a greater strength. We’re proud of our journey & of what we’ve had to overcome thus far. Love to all our spoonies tonight 🥄 ❤️✨
Realizing more & more the importance of being open & accepting of the challenges that come with living with a chronic illness. We used to be very secretive about what we were dealing with - not wanting to be perceived or looked upon a certain way, but it’s a hard path to walk alone. Connecting with others who are dealing with their own struggles be it similar or different has given us a greater strength. We’re proud of our journey & of what we’ve had to overcome thus far. Love to all our spoonies tonight 🥄 ❤️✨
I can’t believe I’m a mom. Lots of Doctors told me I shouldn’t even try, and here I am living the best moment of all my life. ❤️
My Biggest Dream came true, and even better than I dreamed it. 🥰 
It’s hard, It’s painful, it’s exhausting, fatigue gets worse, brain fog kicking...
BUT EVERYTHING IS WORTH✨
When I feel like I can’t continue, I just look at him. I’m not a perfect mom, but I’m sure a awesome one 💪🏼
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#Lupus #Lupusmom #supermom #badassmom #christmas #christmaslove #autoinmune #lupie #lupielife #lupiemom #lupusmommies #baby #babyboy #lupuschick #30andfabulous #lupusfatigue #brainfog #avascularnecrosis #awsomemom
I can’t believe I’m a mom. Lots of Doctors told me I shouldn’t even try, and here I am living the best moment of all my life. ❤️ My Biggest Dream came true, and even better than I dreamed it. 🥰 It’s hard, It’s painful, it’s exhausting, fatigue gets worse, brain fog kicking... BUT EVERYTHING IS WORTH✨ When I feel like I can’t continue, I just look at him. I’m not a perfect mom, but I’m sure a awesome one 💪🏼 . . . . #Lupus  #Lupusmom  #supermom  #badassmom  #christmas  #christmaslove  #autoinmune  #lupie  #lupielife  #lupiemom  #lupusmommies  #baby  #babyboy  #lupuschick  #30andfabulous  #lupusfatigue  #brainfog  #avascularnecrosis  #awsomemom 
Truth!!!! #invisibleillness #lupie #spoonielife #dailytruthism
@Regrann from @lupa_vita - You never know what someone else may be going through so be kind to one another today, Warriors. 💜 Keep smiling!
I’ve had an insane stomach virus for the last 2 days. Beyond gross. So this light lunch is pretty benign on my GI tract while still remaining Keto & tasty after a 17+ hour fast 😋 @pearls_olives (my easy go-to), 2 oz cherry tomatoes 🍅, 1 tbsp @picklejuiceranch & 1 cup cauliflower 🥗  #keto #ketoqueenb71 #ketoweightloss #ketofam #ketosis #ketolife #ketodiet #ketotransformation #intermittentfastingresults  #ketocommunity #ketolifestyle #ketogirl #lowcarb #lchf #lowcarb #ketoweightloss #lowcarblifestyle #lowcarbhighfat #intermittentfasting #lowcarbdiet #bulletproofcoffee #weightloss #weightlossjourney #weightlossmotivation #fitness #lupie #lupus #benlysta #lupuswarrior #lupussucks #sle #pearlsfamily
I’ve had an insane stomach virus for the last 2 days. Beyond gross. So this light lunch is pretty benign on my GI tract while still remaining Keto & tasty after a 17+ hour fast 😋 @pearls_olives (my easy go-to), 2 oz cherry tomatoes 🍅, 1 tbsp @picklejuiceranch & 1 cup cauliflower 🥗 #keto  #ketoqueenb71  #ketoweightloss  #ketofam  #ketosis  #ketolife  #ketodiet  #ketotransformation  #intermittentfastingresults  #ketocommunity  #ketolifestyle  #ketogirl  #lowcarb  #lchf  #lowcarb  #ketoweightloss  #lowcarblifestyle  #lowcarbhighfat  #intermittentfasting  #lowcarbdiet  #bulletproofcoffee  #weightloss  #weightlossjourney  #weightlossmotivation  #fitness  #lupie  #lupus  #benlysta  #lupuswarrior  #lupussucks  #sle  #pearlsfamily 
You never know what someone else may be going through so be kind to one another today, Warriors. 💜 Keep smiling!
You never know what someone else may be going through so be kind to one another today, Warriors. 💜 Keep smiling!
Time is passing by but are there any improvements in #lupus diagnosis and care? Many people still struggle to get a proper diagnosis for years because lupus can affect everybody differently and there is no definitive test for lupus. Some symptoms are very debilitating and profoundly affect #lupies lives but they are difficult to treat and treatment options are limited. Do you sometimes feel like you are alone in this battle against lupus? P. S. I’d like to let you know that through my website you can get a FREE bottle of a live high potency probiotic (50 billion good bacteria) and a FREE container of a premium quality protein. They provide nutrients that are often lacking in people with lupus and #autoimmunedisease . It’s truly free, no strings attached. You can get it via my website http://lupusselfhelp.com/free or just click the link in my instagram profile @lupusselfhelp <<<===clickable link
Time is passing by but are there any improvements in #lupus  diagnosis and care? Many people still struggle to get a proper diagnosis for years because lupus can affect everybody differently and there is no definitive test for lupus. Some symptoms are very debilitating and profoundly affect #lupies  lives but they are difficult to treat and treatment options are limited. Do you sometimes feel like you are alone in this battle against lupus? P. S. I’d like to let you know that through my website you can get a FREE bottle of a live high potency probiotic (50 billion good bacteria) and a FREE container of a premium quality protein. They provide nutrients that are often lacking in people with lupus and #autoimmunedisease  . It’s truly free, no strings attached. You can get it via my website http://lupusselfhelp.com/free or just click the link in my instagram profile @lupusselfhelp <<<===clickable link
One of the most thoughtful gifts I’ve ever received, from my bestie!!! 🖤🖤🖤 #spoontheory #spoonie #lupie
Nothing feels better than getting back at the yoga after a couple day break ahhhh 🥴#thursday #breathing #yoga#art#artist#yogapose#yogaposes#practice#balance#yogaeveryday #yogi #yogini #yogis #fit#fitness#fitmom#yogamom#peace#lupie#lupuswarrior#patience#lupus#hippy#hipster#arthritis#energy
Dyed my hair and took a couple day break from yoga for the first time since July. Here’s what I’m up to now, learning to control my breathing! #breathing #thursday#almostfriday#kendricklamar #yoga#art#artist#yogapose#yogaposes#practice#balance#yogaeveryday #yogi #yogini #yogis #fit#fitness#fitmom#yogamom#peace#lupie#lupuswarrior#patience#lupus#hippy#hipster#arthritis#energy
Don't close the book when bad things happen in your life. 
Just turn the page and begin a new chapter.

#life #RaiZoeMika #Lupus #LupusFighter #Zoe #Sle #Selfie #SelfPhoto #lupuspatient💜 #LupusFighter #LupusLife #Spoonie #Lupie #ButYouDontLookSick
Lupus patients can relate very well.🙄🙄
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Any kind of Comments are appreciated here as well may be a story or just a thought u want to share🤗 .
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#lupusnephritis #juvenilesle #lupus #lupusblogger #lupusawareness #lupusflare #lupie #lupussurvivor #autoimmunedisease #autoimmunity #survivor #healwithishita #myocarditisawareness #myocarditis #myocarditissurvivor #macrophageactivationsyndrome #mas #congestiveheartfailure #heartfailure #kidneyfailure #lifeisprecious #survival #nevergiveup #Indianhealthblogger #lupuswestbengal #staybrave #staypositive #moveforward. #mentalhealthawareness #meantalhealth
Lupus patients can relate very well.🙄🙄 . . . . . . . 🕯️ Join the healer's community in Facebook if you want to become a part of this beautiful journey where people love each other and talk real life stuffs! Any kind of Comments are appreciated here as well may be a story or just a thought u want to share🤗 . . . . . . . . . . #lupusnephritis  #juvenilesle  #lupus  #lupusblogger  #lupusawareness  #lupusflare  #lupie  #lupussurvivor  #autoimmunedisease  #autoimmunity  #survivor  #healwithishita  #myocarditisawareness  #myocarditis  #myocarditissurvivor  #macrophageactivationsyndrome  #mas  #congestiveheartfailure  #heartfailure  #kidneyfailure  #lifeisprecious  #survival  #nevergiveup  #Indianhealthblogger  #lupuswestbengal  #staybrave  #staypositive  #moveforward . #mentalhealthawareness  #meantalhealth 
Привет!
День удался!
1.Илья привит Превенаром.
2. Я сделала несколько медицинских тестов. 
3. Мы с Ильей впервые после нашего возвращения домой насладились снежной погодой и отлично поиграли в снегу. Аклиматизация на этот раз у меня заняла 2 недели 
4. Я отправила по почте весточки @abyssinian_regtime и @volchya_yagoda79
Отделение Почты России многолюдно и открыто было всего 1 окно😱
Но если я что-то задумала, "вижу цель, преград не вижу". Такой уж я человек
А как ваш день проходит? 
Приятного вам снежного вечера! 🌨️❄️☃️⛄☄️
#москва #цдм #цдмналубянке #матьидитя #жизньмоя #повседневное #обомне #будни #волчанканеприговор #сквнеприговор #жизньсволчанкой #системнаякраснаяволчанка #lupusadvocate_russia #lupusadvocate #lupus #lupuslife #lupie #momandson #
 #motherandchild #lupusmom #lupusmommy #invisibleillness #youdontlooksick #lupie #lupiesunite #iammom #instamom #modernmom #transformers #msk #moscow
Привет! День удался! 1.Илья привит Превенаром. 2. Я сделала несколько медицинских тестов. 3. Мы с Ильей впервые после нашего возвращения домой насладились снежной погодой и отлично поиграли в снегу. Аклиматизация на этот раз у меня заняла 2 недели 4. Я отправила по почте весточки @abyssinian_regtime и @volchya_yagoda79 Отделение Почты России многолюдно и открыто было всего 1 окно😱 Но если я что-то задумала, "вижу цель, преград не вижу". Такой уж я человек А как ваш день проходит? Приятного вам снежного вечера! 🌨️❄️☃️⛄☄️ #москва  #цдм  #цдмналубянке  #матьидитя  #жизньмоя  #повседневное  #обомне  #будни  #волчанканеприговор  #сквнеприговор  #жизньсволчанкой  #системнаякраснаяволчанка  #lupusadvocate_russia  #lupusadvocate  #lupus  #lupuslife  #lupie  #momandson  # #motherandchild  #lupusmom  #lupusmommy  #invisibleillness  #youdontlooksick  #lupie  #lupiesunite  #iammom  #instamom  #modernmom  #transformers  #msk  #moscow 
My 2018 summed up 🥊 
Here’s what the past year with Lupus looked like for me... 6 hospitalizations 
40 hours of chemotherapy infusions 
1 kidney biopsy 
1 upper endoscopy
4 ultrasounds 
2 chest x-rays 
4 CT Scans 
3 24 hour urine tests 
37 urine spot tests 
26 blood draws 
4 continuous glucose monitors worn 
29 doctor appointments 
4 new drug treatments introduced, only 1 out of 4 was effective (chemotherapy) 
New 2018 Diagnoses: 
Acute Kidney Failure (from Lupus Nephritis)
Primary Adrenal Insufficiency (Addison’s disease) 
Non-Diabetic Hypoglycemia 
Anemia (previous iron deficiency issue that resurfaced)

My Lupus Organ Involvement: 
Kidneys (Class IV Lupus Nephritis) 
Lungs (pleurisy)
Bone Marrow
Skin (rashes, scarring, thinning from Prednisone)
Liver (caused by Lupus drugs) 
Pancreas (still being diagnosed)
Brain (daily cognitive dysfunction) 
Averages:
Pills taken per day: 9-10
Days per week spent mostly in bed: 4-5
Number of days spent while on corticosteroids (Prednisone or Hydrocortisone): 365
Number of days spent while on chemotherapy: 268 
The number of times I whisper “what the fuck” to myself each day: COUNTLESS 
Sooooo I’ve had some better years lol 2018 was quite the doozy and was my absolutely worst in terms of my health/ my disease activity. It was a lot of pain and crushing defeats but you know what else happened despite all that suffering? I found her. ❤️ @amyvforme walked into my life just when I needed her the most. And I’d suffer through a list 10x longer than the one above if I knew she was waiting for me at the end of it. 😍

I hope all of you Lupus Warriors have someone in your life who makes you want to keep going because this disease is too difficult to face alone. If you do feel all alone please know that you’re welcome to DM myself or Amy over at @caregiver_corner. (Just FYI I’m running about a week or more behind on my DMs because my inbox was flooded with love over the weekend when I was in the hospital ☺️, so please be patient in waiting for a response). I hope ya’ll had a better 2018 than me and I hope better health days await us all!! 🦋💜 #lupusadvocate #lupusawareness #yearinreview
My 2018 summed up 🥊 Here’s what the past year with Lupus looked like for me... 6 hospitalizations 40 hours of chemotherapy infusions 1 kidney biopsy 1 upper endoscopy 4 ultrasounds 2 chest x-rays 4 CT Scans 3 24 hour urine tests 37 urine spot tests 26 blood draws 4 continuous glucose monitors worn 29 doctor appointments 4 new drug treatments introduced, only 1 out of 4 was effective (chemotherapy) New 2018 Diagnoses: Acute Kidney Failure (from Lupus Nephritis) Primary Adrenal Insufficiency (Addison’s disease) Non-Diabetic Hypoglycemia Anemia (previous iron deficiency issue that resurfaced) My Lupus Organ Involvement: Kidneys (Class IV Lupus Nephritis) Lungs (pleurisy) Bone Marrow Skin (rashes, scarring, thinning from Prednisone) Liver (caused by Lupus drugs) Pancreas (still being diagnosed) Brain (daily cognitive dysfunction) Averages: Pills taken per day: 9-10 Days per week spent mostly in bed: 4-5 Number of days spent while on corticosteroids (Prednisone or Hydrocortisone): 365 Number of days spent while on chemotherapy: 268 The number of times I whisper “what the fuck” to myself each day: COUNTLESS Sooooo I’ve had some better years lol 2018 was quite the doozy and was my absolutely worst in terms of my health/ my disease activity. It was a lot of pain and crushing defeats but you know what else happened despite all that suffering? I found her. ❤️ @amyvforme walked into my life just when I needed her the most. And I’d suffer through a list 10x longer than the one above if I knew she was waiting for me at the end of it. 😍 I hope all of you Lupus Warriors have someone in your life who makes you want to keep going because this disease is too difficult to face alone. If you do feel all alone please know that you’re welcome to DM myself or Amy over at @caregiver_corner. (Just FYI I’m running about a week or more behind on my DMs because my inbox was flooded with love over the weekend when I was in the hospital ☺️, so please be patient in waiting for a response). I hope ya’ll had a better 2018 than me and I hope better health days await us all!! 🦋💜 #lupusadvocate  #lupusawareness  #yearinreview 
Overcome your greatest fears!
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🕯️ Join the healer's community in Facebook if you want to become a part of this beautiful journey where people love each other and talk real life stuffs!
Any kind of Comments are appreciated here as well may be a story or just a thought u want to share🤗 .
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#lupusnephritis #juvenilesle #lupus #lupusblogger #lupusawareness #lupusflare #lupie #lupussurvivor #autoimmunedisease #autoimmunity #survivor #healwithishita #myocarditisawareness #myocarditis #myocarditissurvivor #macrophageactivationsyndrome #mas #congestiveheartfailure #heartfailure #kidneyfailure #lifeisprecious #survival #nevergiveup #Indianhealthblogger #lupuswestbengal #staybrave #staypositive #moveforward. #mentalhealthawareness #meantalhealth
Overcome your greatest fears! . . . . . 🕯️ Join the healer's community in Facebook if you want to become a part of this beautiful journey where people love each other and talk real life stuffs! Any kind of Comments are appreciated here as well may be a story or just a thought u want to share🤗 . . . . . . . #lupusnephritis  #juvenilesle  #lupus  #lupusblogger  #lupusawareness  #lupusflare  #lupie  #lupussurvivor  #autoimmunedisease  #autoimmunity  #survivor  #healwithishita  #myocarditisawareness  #myocarditis  #myocarditissurvivor  #macrophageactivationsyndrome  #mas  #congestiveheartfailure  #heartfailure  #kidneyfailure  #lifeisprecious  #survival  #nevergiveup  #Indianhealthblogger  #lupuswestbengal  #staybrave  #staypositive  #moveforward . #mentalhealthawareness  #meantalhealth 
Had to get a new CGM (Continuous Glucose Monitor) installed today because the one I’ve been wearing for the last 2 weeks had a malfunction. Due to that malfunction it only recorded 1 out of the 14 days so unfortunately we have to redo it for another 2 weeks. This also means we will have to postpone my hospital admittance (that was supposed to happen tomorrow) for the overnight insulinoma fasting test until after the holidays. 
I’m honestly relieved it isn’t happening tomorrow because I’m still recovering from being in the hospital this past weekend. It hit me hard and I haven’t been right since I got home. The thought of being admitted again tomorrow for a 24 hour fast seems unfathomable. Although the CGM malfunction was inconvenient and annoying I’m grateful it has allowed me more time to recover and prepare for another hospital stay. 🙏🏥🛌 I was having a lot of lightheadedness and nausea today so my girlfriend @amyvforme drove me to the Endocrinologist. I’m very lucky to have a girlfriend like Amy who always wants to help and wants to listen and remember what questions I need to ask when I’m in these doctor appointments. The brain fog and low blood sugar issues make it very challenging for me to retain all the info and instructions my docs tell me. It helps so much to have her there 😍🦋💜 Thank you Amy 😘❤️ @caregiver_corner
Had to get a new CGM (Continuous Glucose Monitor) installed today because the one I’ve been wearing for the last 2 weeks had a malfunction. Due to that malfunction it only recorded 1 out of the 14 days so unfortunately we have to redo it for another 2 weeks. This also means we will have to postpone my hospital admittance (that was supposed to happen tomorrow) for the overnight insulinoma fasting test until after the holidays. I’m honestly relieved it isn’t happening tomorrow because I’m still recovering from being in the hospital this past weekend. It hit me hard and I haven’t been right since I got home. The thought of being admitted again tomorrow for a 24 hour fast seems unfathomable. Although the CGM malfunction was inconvenient and annoying I’m grateful it has allowed me more time to recover and prepare for another hospital stay. 🙏🏥🛌 I was having a lot of lightheadedness and nausea today so my girlfriend @amyvforme drove me to the Endocrinologist. I’m very lucky to have a girlfriend like Amy who always wants to help and wants to listen and remember what questions I need to ask when I’m in these doctor appointments. The brain fog and low blood sugar issues make it very challenging for me to retain all the info and instructions my docs tell me. It helps so much to have her there 😍🦋💜 Thank you Amy 😘❤️ @caregiver_corner
🎶Smile though your joints are aching :) 🎶 #lupie #lupielife #rheumaday #lupuswarrior #cankles #christmasblingbling
OMG YOU GUYS- isn’t @thelupustrainer the most majestic beast you’ve ever seen 😍😍 today I got to drive the big gay truck! To the Endo so Sara could get yet another 2 wk CGM (continuous glucose monitor) y’all it took us a good 4 trips around this building and we still couldn’t find the office 😂😂 LUCKILY, Sara is pretty memorable and a member of the Endo staff happened to be walking outside and led the way 🤣🤣 even though she was struggling with her energy today and just coming off a nasty flare she still had a smile on her face 😘 all went well and we’ll find out more in 2 weeks. 💜 I love attending her doctors appointments for a few reasons. I’m totally a medicine geek and learning new things is my favorite. I retain a lot of the information given at these appointments and sometimes when brain fog hits I can fill in the missing pieces. It’s always an adventure with Bubs 😂Happy Wednesday everyone 🙏💜 #loveoverlupus #lovesomeonewithlupus #hugsomeonewithlupus #biggaytruckadventures #ifimlostsaraisdefinitelylost #sendhelp 😂😂 #lupus #lupuswarrior #lupusflare #lupuschat #lupusfighter #thelupustrainer #lupusproblems #lupusawareness #lupuslife #lupuswalk #lupussurvivor #lupiewarriors #lupie #lupussymptoms #spoonie #lupusfacts #lupustruth #spooniecommunity #knowlupus #lupuswarriors #lupiewarriortakeover #chronicpain #autoimmune #chronicillness #thelupustrainer
OMG YOU GUYS- isn’t @thelupustrainer the most majestic beast you’ve ever seen 😍😍 today I got to drive the big gay truck! To the Endo so Sara could get yet another 2 wk CGM (continuous glucose monitor) y’all it took us a good 4 trips around this building and we still couldn’t find the office 😂😂 LUCKILY, Sara is pretty memorable and a member of the Endo staff happened to be walking outside and led the way 🤣🤣 even though she was struggling with her energy today and just coming off a nasty flare she still had a smile on her face 😘 all went well and we’ll find out more in 2 weeks. 💜 I love attending her doctors appointments for a few reasons. I’m totally a medicine geek and learning new things is my favorite. I retain a lot of the information given at these appointments and sometimes when brain fog hits I can fill in the missing pieces. It’s always an adventure with Bubs 😂Happy Wednesday everyone 🙏💜 #loveoverlupus  #lovesomeonewithlupus  #hugsomeonewithlupus  #biggaytruckadventures  #ifimlostsaraisdefinitelylost  #sendhelp  😂😂 #lupus  #lupuswarrior  #lupusflare  #lupuschat  #lupusfighter  #thelupustrainer  #lupusproblems  #lupusawareness  #lupuslife  #lupuswalk  #lupussurvivor  #lupiewarriors  #lupie  #lupussymptoms  #spoonie  #lupusfacts  #lupustruth  #spooniecommunity  #knowlupus  #lupuswarriors  #lupiewarriortakeover  #chronicpain  #autoimmune  #chronicillness  #thelupustrainer 
Come out on Sunday and send up some words to our beautiful Angel in Heaven. Balloons and markers will be provided by BLACK GIRLS Network. We are painting the sky purple for Marcia that day 💜💜💜 #lupussucks ucks #curelupus #lupusawareness #lupuswarrior  #lupie #lupus#PurpleHeart #MarciBowens #Peach #lupusfighter #jacksonvilleblack #jacksonville #Repost @blackgirlsnetworkinc #TheSetMagazineFL TheSetMagazine.com
According to Dr. Natasha Campbell-McBride, author of "Gut and Psychology Syndrome" and "Gut and Physiology Syndrome" bone broth is excellent for healing the gut. By healing and sealing the gut, the immune system can be optimized and the risk of getting these disorders is lowered. Bone broth is full of glucosamine and chondroitin sulfate which have been shown to help keep cartilage healthy. It also contains hyaluronic acid which is given as an oral  supplement for osteoarthritis, and given as an injection to reduce pain and increase mobility and function. I've noticed that drinking some bone broth every day has helped to decrease my severe ankle pain and swelling. .
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#lupus #lupuswarrior #lupusawareness #lupusfighter #lupussucks #lupuslife #chronicillness #lupussurvivor #lupusflare #autoimmunedisease #lupuswalk #lupusstrong #spoonie #lupusawarenessmonth #invisibleillness #lupuswarriors #sle #purpleforlupus #chronicpain #lupusproblems #lupusadvocate #lupie #nutrition #nutritiontips #nutritional #health #healthylifestyle #healthy #healthyfood #sjogrenssyndrome
According to Dr. Natasha Campbell-McBride, author of "Gut and Psychology Syndrome" and "Gut and Physiology Syndrome" bone broth is excellent for healing the gut. By healing and sealing the gut, the immune system can be optimized and the risk of getting these disorders is lowered. Bone broth is full of glucosamine and chondroitin sulfate which have been shown to help keep cartilage healthy. It also contains hyaluronic acid which is given as an oral supplement for osteoarthritis, and given as an injection to reduce pain and increase mobility and function. I've noticed that drinking some bone broth every day has helped to decrease my severe ankle pain and swelling. . . . . . #lupus  #lupuswarrior  #lupusawareness  #lupusfighter  #lupussucks  #lupuslife  #chronicillness  #lupussurvivor  #lupusflare  #autoimmunedisease  #lupuswalk  #lupusstrong  #spoonie  #lupusawarenessmonth  #invisibleillness  #lupuswarriors  #sle  #purpleforlupus  #chronicpain  #lupusproblems  #lupusadvocate  #lupie  #nutrition  #nutritiontips  #nutritional  #health  #healthylifestyle  #healthy  #healthyfood  #sjogrenssyndrome 
Come out on Sunday and send up some words to our beautiful Angel in Heaven. Balloons and markers will be provided by BLACK GIRLS Network. We are painting the sky purple for Marcia that day 💜💜💜 #lupussucks ucks #curelupus #lupusawareness #lupuswarrior  #lupie #lupus#PurpleHeart #MarciBowens #Peach #lupusfighter #jacksonvilleblack #jacksonville
Wishing my beautiful Nana #Guadalupe Lomelin Chavez” a wonderful heavenly bday! #Nana #Lupie #Lou #wemissyounana #tillwemeetagain❤️ 🎂🎈
These next two weeks are going to be so stressful😅 Tomorrow I’m going to the optometrist for the first time since 2012 because hashtag I’m poor and used my monthly contacts longer than a month and now I don’t have any and I’m blind as a bat🦇! I’m actually super excited to go since I can’t really see that well. Then on Monday I have to see the doctor (for the thousandth time) to have him fill out some paperwork for me and to get a five day course of Rocephin/Ceftriaxone because I’ve got a UTI. I’m on Cipro but I’m almost out (tomorrow morning’s my last pill) and I’m still having to take Pyridium. Then on Friday, I’ve got something going on I’m not comfortable sharing publicly but if we’re close/have talked a bit/whatever, you can DM and ask me what’s going on because it could be life changing. I hope it is as I’ve been working towards it for almost two years! Anyway, very stressful! But today I’m just relaxing, practicing self care, and thanking God that things are going okay. I’m also super thankful for my husband for being willing to take me to all these places💜 How are y’all doing? I hope you’re well and happy! Sending so much love and happiness your way!💜
These next two weeks are going to be so stressful😅 Tomorrow I’m going to the optometrist for the first time since 2012 because hashtag I’m poor and used my monthly contacts longer than a month and now I don’t have any and I’m blind as a bat🦇! I’m actually super excited to go since I can’t really see that well. Then on Monday I have to see the doctor (for the thousandth time) to have him fill out some paperwork for me and to get a five day course of Rocephin/Ceftriaxone because I’ve got a UTI. I’m on Cipro but I’m almost out (tomorrow morning’s my last pill) and I’m still having to take Pyridium. Then on Friday, I’ve got something going on I’m not comfortable sharing publicly but if we’re close/have talked a bit/whatever, you can DM and ask me what’s going on because it could be life changing. I hope it is as I’ve been working towards it for almost two years! Anyway, very stressful! But today I’m just relaxing, practicing self care, and thanking God that things are going okay. I’m also super thankful for my husband for being willing to take me to all these places💜 How are y’all doing? I hope you’re well and happy! Sending so much love and happiness your way!💜
Want 30% off your LupaVita order?! 🌟 Use coupon code: ‘xmas2018’ at www.lupavita.com for 30% off your holiday shopping! 🎁
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Link in bio!
Want 30% off your LupaVita order?! 🌟 Use coupon code: ‘xmas2018’ at www.lupavita.com for 30% off your holiday shopping! 🎁 . Link in bio!
Spending a lot of tome in these buildings before the holidays, trying to squeeze in all the necessary appointments before the new year. At the hospital & waiting for my cardiologist, but I can’t complain of that view 🏥
Spending a lot of tome in these buildings before the holidays, trying to squeeze in all the necessary appointments before the new year. At the hospital & waiting for my cardiologist, but I can’t complain of that view 🏥
Thank goodness we’re halfway though the week! 🙌🏻 We definitely have this secret talent 😂 Who else can relate?!
Thank goodness we’re halfway though the week! 🙌🏻 We definitely have this secret talent 😂 Who else can relate?!
3 years ago today my story on my experience at the pain management clinic in Children’s Hospital LA was featured on their page. Going through services like breathing therapy , and acupuncture really did wonders for my pain , i would recommenced either to anyone seeking some non-drug options to relief pain. This hospital literally saved my life when I just got admitted for two months this was my new home. To this day I still am very close to my CHLA family . And that’s what we are family ! I still go back now as a young adult to support younger patients and speak in the name of awareness . #LupusBlog #LupusBlogger #LupusLife #LupusPain #LupusSupport #LupusChick #LupusArticle #SLE #SystemicLupus #SystemicLupusErythematosus #LupusAwareness #LupusAdvocate #Lupie #LupieLife #LupieSupport #Spoonie #SpoonieLife #SpoonieSupport #SpoonieBlog #ChronicPain #ChronicIllness #ChronicallyIll #AutoimmuneDisease #ButYouDontLookSick #Fibromyalgia #InvisibleIllness.  https://www.chla.org/blog/patient-stories/second-home-vania
3 years ago today my story on my experience at the pain management clinic in Children’s Hospital LA was featured on their page. Going through services like breathing therapy , and acupuncture really did wonders for my pain , i would recommenced either to anyone seeking some non-drug options to relief pain. This hospital literally saved my life when I just got admitted for two months this was my new home. To this day I still am very close to my CHLA family . And that’s what we are family ! I still go back now as a young adult to support younger patients and speak in the name of awareness . #LupusBlog  #LupusBlogger  #LupusLife  #LupusPain  #LupusSupport  #LupusChick  #LupusArticle  #SLE  #SystemicLupus  #SystemicLupusErythematosus  #LupusAwareness  #LupusAdvocate  #Lupie  #LupieLife  #LupieSupport  #Spoonie  #SpoonieLife  #SpoonieSupport  #SpoonieBlog  #ChronicPain  #ChronicIllness  #ChronicallyIll  #AutoimmuneDisease  #ButYouDontLookSick  #Fibromyalgia  #InvisibleIllness . https://www.chla.org/blog/patient-stories/second-home-vania
The flu has definitely had me down and out this week but you know what cheers me back up? Registration for the 2019 Orlando Walk To End Lupus Now is open! 🤩
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I can’t wait for the day when we can destroy this disease and everything is represents. I dream of the day when no person has to know of the physical and mental struggles that come with a diagnosis. 💜
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Do you want to help me achieve my dream? Visit the link in my bio! You can donate to help us obliterate our goal this year. Or you can sign up to walk yourself. Heck, you can even join the Marching Mermaids! Y’all rock! 🧜🏻‍♀️🧜🏻‍♀️
The flu has definitely had me down and out this week but you know what cheers me back up? Registration for the 2019 Orlando Walk To End Lupus Now is open! 🤩 • I can’t wait for the day when we can destroy this disease and everything is represents. I dream of the day when no person has to know of the physical and mental struggles that come with a diagnosis. 💜 • Do you want to help me achieve my dream? Visit the link in my bio! You can donate to help us obliterate our goal this year. Or you can sign up to walk yourself. Heck, you can even join the Marching Mermaids! Y’all rock! 🧜🏻‍♀️🧜🏻‍♀️
Infusion Day and Doctor Visits same time Lupus Life All About Bookie!!WcW 💪💪💜💜💜😎✌#lupusproblems #lupuswarrior💜 #lupusfighter #lupussucks #lupusawareness #lupusfacts #lupusstrong #livingwithlupus #lupie #strongwomen #lupuslife #lupusrash #lupusflare #lupustruth #lupuschick #chronicillness #
Time to walk. So one of the symptoms common for Lupies is Raynaud’s syndrome. Essentially your fingers and toes can go numb due to blood flow restriction. I have it so I need to take extra care not to go out when it’s too cold. My symptoms usually result in facial numbness and numb toes. It’s very distracting. Not too cold out so I’m going for a walk and of course I applied sunscreen. Sun exposure increases flares which is quite a problem because I’m Vitamin D deficient due to Lupus and Vitamin D production in the body depends on sun exposure. That’s life with an invisible disease. #lupus #fibromyalgia #chronicillness #lupusawareness #chronicpain #Lupus #autoimmunedisease #lupuswarrior #autoimmune #invisibleillness #rheumatoidarthritis #lymedisease #staypositive #spoonie #multiplesclerosis #survivor #lupusflare #arthritis #endometriosis #fitness #lupussucks #fibrosucks #thissucks #warrior #lupie #SLE #LupusWarrior #staystrong #fighters #motivation Powered by @tagomatic
Time to walk. So one of the symptoms common for Lupies is Raynaud’s syndrome. Essentially your fingers and toes can go numb due to blood flow restriction. I have it so I need to take extra care not to go out when it’s too cold. My symptoms usually result in facial numbness and numb toes. It’s very distracting. Not too cold out so I’m going for a walk and of course I applied sunscreen. Sun exposure increases flares which is quite a problem because I’m Vitamin D deficient due to Lupus and Vitamin D production in the body depends on sun exposure. That’s life with an invisible disease. #lupus  #fibromyalgia  #chronicillness  #lupusawareness  #chronicpain  #Lupus  #autoimmunedisease  #lupuswarrior  #autoimmune  #invisibleillness  #rheumatoidarthritis  #lymedisease  #staypositive  #spoonie  #multiplesclerosis  #survivor  #lupusflare  #arthritis  #endometriosis  #fitness  #lupussucks  #fibrosucks  #thissucks  #warrior  #lupie  #SLE  #LupusWarrior  #staystrong  #fighters  #motivation  Powered by @tagomatic
And of course I've got 2 doctors apts today, I am not sure how I'm gonna do it but let's go 😉 regular colds are so brutal with lupus 🙄
#lupussucks #lupuswarrior #sle #lupus #systemiclupuserythematosus #chronicillness #chronicpain #autoimmunedisease #sick #cold #invisibleillness #lupie #lupusproblems
Do you have a friend or loved one with Lupus? Give them the gift of relief with LupaVita! 🎁 Help them manage their Lupus symptoms so they can enjoy the holidays! 💫 .
Learn more at the link in bio!
Do you have a friend or loved one with Lupus? Give them the gift of relief with LupaVita! 🎁 Help them manage their Lupus symptoms so they can enjoy the holidays! 💫 . Learn more at the link in bio!