Thanks once again for all the messages asking for Lucy and I’m sorry I haven’t got back to everyone yet. They did a chest X-ray yesterday and she has a chest infection along with the viruses and tonsillitis 😓 they changed her antibiotics last night, she had a difficult night again and pulled her NG Tube our again, so I hid out in the corridor reading where’s Wally at 1am (could not find the wee bugger on any pages 🤷♀️😂) whilst they held her down to get a new one in, bad Mummy I know, but after seeing it done for the millionth time it takes it’s toll eventually!) but she did managed to eat a wee slice of toast this morning with much encouragement/ dancing / singing being a lunatic from me 😂😂🙊🙊 nurses must think I’m mental!!! Anyways, it’s a good wee sign for now but she is still refusing all liquids so still be tube fed until she starts again but the toast was a good wee start! She was sitting up reading books and pulling my hair this morning so little by little I’m hoping the new meds are starting to help her 🙏🏻❤️ I can’t say thank you enough for all the offers of help and words of support, it’s been the worst time since she was in Intensive Care I have to admit, never seen her so unwell and as a mum you feel utterly helpless / useless. I’m home now getting some sleep as the nurse told me I looked shattered about 3 times this morning 😂😂 thank god for grandparents 💖💖💖 also, thanks to my work for being understanding as a lot of places wouldn’t have been so good 👍🏼 ok speech over for now 🙄😂 (not like me to talk a lot tho eh?!!!) much love to you all 💓💓💓#downsyndromeawareness t21#fighter#warrior#lovedoesnotcountchromosomes#t21rocks#youcandothisgirl#yougotthis#love#cutebaby#mydaughterismyworld#getwellsoon#ilovelucy#myworldtour#mummylovesyou#downsyndrome#havenofear#strongbaby 💓💓💓
On 19 December 2011, the United Nations General Assembly declared 21 March as World Down Syndrome Day. The General Assembly decided, with effect from 2012, to observe World Down Syndrome Day on 21 March each year, and invites all Member States, relevant organizations of the United Nations system and other international organizations, as well as civil society, including non-governmental organizations and the private sector, to observe World Down Syndrome Day in an appropriate manner, in order to raise public awareness of Down syndrome.