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Not gonna lie, some days I’m frustrated and fed up with having to force myself to do every little thing. It’s exhausting battling with myself regularly and having to negotiate, bribe, and trick myself into doing things, even things I like doing. .

Sometimes I wish it could be easier and I get really mad that this is how it is. Other times I accept that this is a part of the illness I have. That a lack of motivation and interest in regular activities is a symptom of depression and thus is an obstacle that I ought to embrace and try to work with. .

It’s okay to feel frustrated and defeated by an illness sometimes, because you know what? It IS frustrating. Practicing acceptance is very helpful for me. I try to accept that this is my reality and not get stuck for too long in resistance and resentment, but also I know now that it’s important to let myself have those feelings too because they are real and completely valid. .
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#depression #depressionrecovery #majordepressivedisorder #chronicdepression #persistentdepressivedisorder #chronicillness #frustration #mentalhealth #mentalillness #illness #invisableillness #acceptance #mentalhealthart #art #illustration #drawing #tiger
Not gonna lie, some days I’m frustrated and fed up with having to force myself to do every little thing. It’s exhausting battling with myself regularly and having to negotiate, bribe, and trick myself into doing things, even things I like doing. . Sometimes I wish it could be easier and I get really mad that this is how it is. Other times I accept that this is a part of the illness I have. That a lack of motivation and interest in regular activities is a symptom of depression and thus is an obstacle that I ought to embrace and try to work with. . It’s okay to feel frustrated and defeated by an illness sometimes, because you know what? It IS frustrating. Practicing acceptance is very helpful for me. I try to accept that this is my reality and not get stuck for too long in resistance and resentment, but also I know now that it’s important to let myself have those feelings too because they are real and completely valid. . . . . #depression  #depressionrecovery  #majordepressivedisorder  #chronicdepression  #persistentdepressivedisorder  #chronicillness  #frustration  #mentalhealth  #mentalillness  #illness  #invisableillness  #acceptance  #mentalhealthart  #art  #illustration  #drawing  #tiger 
Lunch lately 🖤 hot rice, cold cucumbers, and a tiny bit of spicy BBQ sauce. So simple and yummy, plus easy to digest 🖤

Missing my chopsticks, going to be getting new ones soon! 
#lunch #rice #whiterice #cucumber #asianstyle #riceforlife #bbqsauce #spicy #hashimotos #hypothyroidism #autoimmune #autoimmunedisease #invisableillness #mentalhealth #loveyourself #feedyourself #food #foodie #foodislife #foodismedicine
Y'all got through Monday - give yourself a pat on the back 💜 This necklace is a Depop exclusive but there are other mental health-related items on our website, and we're donating a percentage of the profits going to @theblurtfoundation 💘
Y'all got through Monday - give yourself a pat on the back 💜 This necklace is a Depop exclusive but there are other mental health-related items on our website, and we're donating a percentage of the profits going to @theblurtfoundation 💘
If you ever look at yourself in a photo or a mirror and feel shit... An  think how come I don't look like that person or this person. And wonder why you bother... Stop!!!!
These two photos were taken a second apart... No filters, not effects... One is in good light, one is in bad. I'm 33, and feel 93...somedays in some light I look it. In others I don't.
Embrace the greys and just learn to smile!

#chronicfatigue #me #selflove #selfcare #chronicillness #invisableillness
#gonethroughalot
If you ever look at yourself in a photo or a mirror and feel shit... An think how come I don't look like that person or this person. And wonder why you bother... Stop!!!! These two photos were taken a second apart... No filters, not effects... One is in good light, one is in bad. I'm 33, and feel 93...somedays in some light I look it. In others I don't. Embrace the greys and just learn to smile! #chronicfatigue  #me  #selflove  #selfcare  #chronicillness  #invisableillness  #gonethroughalot 
Paced exercise in the woods.... @spotify in one ear and wildlife in the other! 👌🏼🎶🐝🦆🐿 #invisableillness #painmanagement
Third tattoo done by @heath.laramie , an incredible artist! Beyond happy with the way this tattoo came out. 
Dysautonomia/POTS has been a real struggle learning to deal with life completely being changed. From the daily lightheaded, dizziness, chronic fatigue, blacking out, blood not returning to my heart like it should, tachycardia, and so on. Everyday is a fight with some kind of challenge. “But you don’t look sick”. Thankful to find a doctor who specializes in POTS and has helped me learn a lot. I hope to be a voice to others to lean about Dysautonomia and the hell it can put you through, and to keep fighting. 
#makenoiseforturquoise #dysautonomia #dysautonomiaawareness #potssyndrome #potsie #spoonie #invisableillness
Third tattoo done by @heath.laramie , an incredible artist! Beyond happy with the way this tattoo came out. Dysautonomia/POTS has been a real struggle learning to deal with life completely being changed. From the daily lightheaded, dizziness, chronic fatigue, blacking out, blood not returning to my heart like it should, tachycardia, and so on. Everyday is a fight with some kind of challenge. “But you don’t look sick”. Thankful to find a doctor who specializes in POTS and has helped me learn a lot. I hope to be a voice to others to lean about Dysautonomia and the hell it can put you through, and to keep fighting. #makenoiseforturquoise  #dysautonomia  #dysautonomiaawareness  #potssyndrome  #potsie  #spoonie  #invisableillness 
Migraine day 😞 - pain on the right side of my head, neck pain, blurry vision, droopy face, watery eyes and runny nose, sensitivity to light and sound, nausea, chills... And all I want to do is sleep, but my head hurts too much.
#migraine #migrainessuck #stigma #invisableillness #migraineawareness #migrainelife #chronicillness #pain #symptoms #sideeffects #sick #sickday
Going to the gym always makes me feel better, i just make sure i never do to much, or i end up in to much pain and not being able to walk.

#ankylosingspondylitis #fibromyalgia #autoimmune #invisableillness
Today is a new day. Totally had a major blessing to be able to do yoga for 4 days. Now the question becomes. What’s next? I have a major neck pain I woke up with. Think I slept wrong? So I’ll start over. Go slow. Move slow. Flow slow. Im posting these pics not because they are awesome. Im posting them to remind myself and others no matter the #chronicillness we can still find moments or days to fall in love with ourselves. Find one thing you can shower yourself with love today. I’m looking into swimming classes. Yoga classes I need to undo this neck again. Being stuck is not good. I encourage you to find something today  that will help you get unstuck. Be your best version of you. Happy Monday. ❤️#carpediem #yoga #yogaeverydamnday #plantbased #invisableillness #medicalmedium #try
Today is a new day. Totally had a major blessing to be able to do yoga for 4 days. Now the question becomes. What’s next? I have a major neck pain I woke up with. Think I slept wrong? So I’ll start over. Go slow. Move slow. Flow slow. Im posting these pics not because they are awesome. Im posting them to remind myself and others no matter the #chronicillness  we can still find moments or days to fall in love with ourselves. Find one thing you can shower yourself with love today. I’m looking into swimming classes. Yoga classes I need to undo this neck again. Being stuck is not good. I encourage you to find something today that will help you get unstuck. Be your best version of you. Happy Monday. ❤️#carpediem  #yoga  #yogaeverydamnday  #plantbased  #invisableillness  #medicalmedium  #try 
I have to admit, today I'm really struggling. Getting out of bed was mentally challenging for me. Didn't want to move. Having a Fibro flare. I suffer from many eye diseases and my Uveitis is flaring up and I can barely see. The metal in my back aches.
But I woke up. There's a roof over my head. I have a career and a job to do today. I woke up to an amazing partner and dog. Even though I hurt, I can move. Even though my eyes ache and I can barely see, I can see something. Even though my anxiety is so freaking high right now.. I got off my ass.
I will not allow my body to beat me today. It's Monday and I want to start the week off good. Is today going to be a bad day? Honestly, it's going to be shitty. But this chick chooses to push through it! 
#fibrowarrior #chronicillness  #chronicpain #mentalhealth #autoimmunedisease #dealingwithit #uveitis #uveitissucks #healthandwellness #anxiety #push #invisableillness
I have to admit, today I'm really struggling. Getting out of bed was mentally challenging for me. Didn't want to move. Having a Fibro flare. I suffer from many eye diseases and my Uveitis is flaring up and I can barely see. The metal in my back aches. But I woke up. There's a roof over my head. I have a career and a job to do today. I woke up to an amazing partner and dog. Even though I hurt, I can move. Even though my eyes ache and I can barely see, I can see something. Even though my anxiety is so freaking high right now.. I got off my ass. I will not allow my body to beat me today. It's Monday and I want to start the week off good. Is today going to be a bad day? Honestly, it's going to be shitty. But this chick chooses to push through it! #fibrowarrior  #chronicillness  #chronicpain  #mentalhealth  #autoimmunedisease  #dealingwithit  #uveitis  #uveitissucks  #healthandwellness  #anxiety  #push  #invisableillness 
I am not okay.... I'm really struggling to get a grip on my blood sugars these last few weeks and it's taking it's toll. I'm exhausted, groggy, upset and just generally all round frustrated.
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- One week I'm battling hypos while the next I'm dealing with unusual spikes (some of them even while at the gym. Who'd have thought exercise can also increase blood glucose levels??) There's not much more I can do to live a healthy lifestyle. You can see on my story that I eat healthy meals and I'm going to the gym 5 days a week. Yet all of that isn't good enough to get a grip of my diabetes. Honestly I just want to give up but unfortunately that's not an option. This illness isn't going anywhere. Hopefully I can get an appointment to see a diabetic' doctor and see what they can suggest.
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- I know I tend to put on a brave face regarding my diabetes and always vow to kick it's ass but honestly I'm fighting a losing battle at the moment. I'm gonna try and be more honest about my struggles in hope it will help others realize they arent alone with the difficulty of managing diabetes. -
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- #diabetes #diabetic #type1diabetes #t1d #t1dlookslikeme #t1diabetes #invisableillness #diabadass #strong #diabetescommunity #fitfam #exercise #bloodsugar #bloodglucose #insulin #novorapid #levemir #hypo #hypoglycemia #hyper #hyperglycemia #support #illness #chronicillness #togetherstronger #diabetesuk #weightloss #fatloss #health #gymlife
I am not okay.... I'm really struggling to get a grip on my blood sugars these last few weeks and it's taking it's toll. I'm exhausted, groggy, upset and just generally all round frustrated. - - One week I'm battling hypos while the next I'm dealing with unusual spikes (some of them even while at the gym. Who'd have thought exercise can also increase blood glucose levels??) There's not much more I can do to live a healthy lifestyle. You can see on my story that I eat healthy meals and I'm going to the gym 5 days a week. Yet all of that isn't good enough to get a grip of my diabetes. Honestly I just want to give up but unfortunately that's not an option. This illness isn't going anywhere. Hopefully I can get an appointment to see a diabetic' doctor and see what they can suggest. - - I know I tend to put on a brave face regarding my diabetes and always vow to kick it's ass but honestly I'm fighting a losing battle at the moment. I'm gonna try and be more honest about my struggles in hope it will help others realize they arent alone with the difficulty of managing diabetes. - - - - #diabetes  #diabetic  #type1diabetes  #t1d  #t1dlookslikeme  #t1diabetes  #invisableillness  #diabadass  #strong  #diabetescommunity  #fitfam  #exercise  #bloodsugar  #bloodglucose  #insulin  #novorapid  #levemir  #hypo  #hypoglycemia  #hyper  #hyperglycemia  #support  #illness  #chronicillness  #togetherstronger  #diabetesuk  #weightloss  #fatloss  #health  #gymlife 
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Who said a weekend of working, partying late nights, early mornings, drinking and eating crap doesn’t do wonders for your body. 💁🏼‍♀️🤩🤘🏻
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Sometimes you’ve just got to let your hair down and go with it. .
#lovewhatyoudo #rockandbike #whataweekend #friends #work #dusktilldawn #invisableillness #invisabledisability #imwhatapersonwithaninvisibleillnesslookslike #youdontlooksick #stoma #ileostomy #sepsissurvivor
Graduation time. Very very proud of my boyfriends sister! She’s going to go very far in life and make help so many people! It’s actually been a rather good day so far, other than the blisters I have on my heels from new shoes 😂 #chronicpainwarrior #chronicallyill #chronicmigraine #irritablebowelsyndrome #mentalhealthawareness #chronicpain #chronicillness #chronicpain #ibs #cfs #cps #illness #invisableillness #graduation #graduationday🎓
Multiple sclerosis weakness 😞 -
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I feel very weak down my right side. I don’t have the energy to even stand up. My face is numb & im tired. Very tired. B12 injection is at 11:45 so hopefully that make me feel better but we have made the decision we have to contact my ms nurse for advice. Praying I get to stay at home & get strong. I’m so upset that after a beautiful family weekend this is happening 😞 my anxiety is high & my blood pressure is through the roof but I’m trying to smile ☺️
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But.... we have a hedgehog in our garden & all my flowers have come out to say hello. & it’s cooler today. Chin up Hawkins, always 💜
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#multiplesclerosis #myjourney #multiplesclerosisawareness #multiplesclerosisfighter #medication #positivevibes #positiveenergy #sleepapnea #cpapmachine #medicaldevice #familytime #blessed #lucky #chronicillness #invisableillness #flowers #beautiful #garden #wildlife #anxiety #mentalhealth #positivevibes
Multiple sclerosis weakness 😞 - - I feel very weak down my right side. I don’t have the energy to even stand up. My face is numb & im tired. Very tired. B12 injection is at 11:45 so hopefully that make me feel better but we have made the decision we have to contact my ms nurse for advice. Praying I get to stay at home & get strong. I’m so upset that after a beautiful family weekend this is happening 😞 my anxiety is high & my blood pressure is through the roof but I’m trying to smile ☺️ - - But.... we have a hedgehog in our garden & all my flowers have come out to say hello. & it’s cooler today. Chin up Hawkins, always 💜 - - #multiplesclerosis  #myjourney  #multiplesclerosisawareness  #multiplesclerosisfighter  #medication  #positivevibes  #positiveenergy  #sleepapnea  #cpapmachine  #medicaldevice  #familytime  #blessed  #lucky  #chronicillness  #invisableillness  #flowers  #beautiful  #garden  #wildlife  #anxiety  #mentalhealth  #positivevibes 
No matter how long or rough my night has been. If I had a good nights rest or painsomnia all night long.
When I open those curtains and feel the sun on my face.. I am ready for this day! 
#summer #summergirl #bikinigirl #sunrise #sunshine #sunnyday #painsomnia #hystersister #endowarior #butyoudontlooksick #invisableillness #goodmorning #anewday #letsdothis
Couldn’t have said it better myself. Having a challenging day and came across post #resilience #strongwomen #goodvibes #sickofbeingsick #lifeqoutes #onedayatatime #ivegotthis #simple #butyoudontlooksick #invisableillness #selflove #selfcare #mindset #believeinyourself
A fresh haircut and a Snapchat filter will do wonders for the soul 😂😂😂
Well it’s on! IVF/ICSI round two here we come! First appointment/scan/bloods tomorrow at 12pm 🤩
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#IVF #ICSI #ivfcycle2 #ivfjourney #infertility #realfaceofendo #endo #endometriosis #endosucks #endowarrior #endostrong #endosister #endometriosisisreal #endoawareness #helpusfindacure #chronicpain #chronicillness #invisableillness #butyoudontlooksick #spoonie #endobelly #endobloat #painsucks #womensupportingwomen #femalehealth #endoaustralia #1in10 #fightlikeagirl #mystupidendo
A fresh haircut and a Snapchat filter will do wonders for the soul 😂😂😂 Well it’s on! IVF/ICSI round two here we come! First appointment/scan/bloods tomorrow at 12pm 🤩 . . . #IVF  #ICSI  #ivfcycle2  #ivfjourney  #infertility  #realfaceofendo  #endo  #endometriosis  #endosucks  #endowarrior  #endostrong  #endosister  #endometriosisisreal  #endoawareness  #helpusfindacure  #chronicpain  #chronicillness  #invisableillness  #butyoudontlooksick  #spoonie  #endobelly  #endobloat  #painsucks  #womensupportingwomen  #femalehealth  #endoaustralia  #1in10  #fightlikeagirl  #mystupidendo 
So no massive #pokehunt this weekend due to pain and headaches again but I caught both of these from my bed and the funny thing is they were both caught at 20:50pm on Saturday and Sunday. #pokemon #pokemongo #pokemongonorwich #pokemongofest #pokemongocommunityday #pokemongolowestoft #poketube #poketuber #pokemongamer #chronicillness #invisableillness #ehlersdanlossyndrome #osteogenesisimperfecta #osteoporosis #chronicasthma #cysticfibrosis
Sufferers of #mentalillness and #mentalhealth don't get told enough how proud they should feel for coming this far. Not that they want praise and recognition for surviving what other's think is everyday life. But reassurance that it has been noticed that not every day is as easy for you, the constant misunderstanding of why you act in a certain way, the times when people's jokes may actually annoy you in a way you can't explain. The times when concentrating on something simple like listening to something becomes as hard as quantum physics. #iamproudofyou 
#bdp #borderline #borderlinepersonalitydisorder #emotionallyunstablepersonalitydisorder #anxiety #stress #depression #bipolar #bipolardisorder #mentalhealthissues #mentalhealthmatters #stigma #mentalhealthawareness #mentalhealthstigma #malementalhealth  #invisableillness #itsoktobeyou
Sufferers of #mentalillness  and #mentalhealth  don't get told enough how proud they should feel for coming this far. Not that they want praise and recognition for surviving what other's think is everyday life. But reassurance that it has been noticed that not every day is as easy for you, the constant misunderstanding of why you act in a certain way, the times when people's jokes may actually annoy you in a way you can't explain. The times when concentrating on something simple like listening to something becomes as hard as quantum physics. #iamproudofyou  #bdp  #borderline  #borderlinepersonalitydisorder  #emotionallyunstablepersonalitydisorder  #anxiety  #stress  #depression  #bipolar  #bipolardisorder  #mentalhealthissues  #mentalhealthmatters  #stigma  #mentalhealthawareness  #mentalhealthstigma  #malementalhealth  #invisableillness  #itsoktobeyou 
Always make sure to have some fun 🌚🌝⠀
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Always make sure to have some fun 🌚🌝⠀ ⠀
Happy early birthday Hanj (Alex) 🎉

I made this blanket for him, but was keeping it a secret. 
It was the first time We we’re together since it has been completed and the last time before his birthday. 
He loved to and says he is planning to hang it on his wall when he gets to college. 
I have been loving working on my crocheting projects. Except for the added hand activity. For the most part everything is okay, but my right thumb has been having trouble. I can’t seem to keep it in place and it is a bit swollen. 
I don’t know how to keep it in or make it stay in. 
I love having my hands and mind busy but I might need to take a break if I can’t find a way to keep my thumb in. 
This week is going to be a busy one with doctors appointments and next week we get ready for Donner. Hopefully my thumb (and the rest of my body) will cooperate so things are not a bigger struggle than they are already going to be.
Happy early birthday Hanj (Alex) 🎉 I made this blanket for him, but was keeping it a secret. It was the first time We we’re together since it has been completed and the last time before his birthday. He loved to and says he is planning to hang it on his wall when he gets to college. I have been loving working on my crocheting projects. Except for the added hand activity. For the most part everything is okay, but my right thumb has been having trouble. I can’t seem to keep it in place and it is a bit swollen. I don’t know how to keep it in or make it stay in. I love having my hands and mind busy but I might need to take a break if I can’t find a way to keep my thumb in. This week is going to be a busy one with doctors appointments and next week we get ready for Donner. Hopefully my thumb (and the rest of my body) will cooperate so things are not a bigger struggle than they are already going to be.
I had a wonderful day with my friends and our children today.  BBQ & beautiful weather ☀️ I may not be able to get out and about as much as I’d like, it makes the days that I do get out of the house way more memorable especially when it’s spent with my nearest and dearest.  This weekend I’ve been lucky enough to see some of my favourite people, at home and away. 💖
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#nofilter #selfie #spoonie #ehlersdanlossyndrome #summertime #summervibes #glam #instastyle #fcuk #frenchconnection #curls #blonde #blondehair #singlelife #singlemom #bbw #chronicillness #chronicpain #invisableillness #raredisease #instahappy #sunglasses #shades #positivity #positivevibes #pma #singlemum #fibromyalgia #pain
I had a wonderful day with my friends and our children today. BBQ & beautiful weather ☀️ I may not be able to get out and about as much as I’d like, it makes the days that I do get out of the house way more memorable especially when it’s spent with my nearest and dearest. This weekend I’ve been lucky enough to see some of my favourite people, at home and away. 💖 .. .. .. .. .. #nofilter  #selfie  #spoonie  #ehlersdanlossyndrome  #summertime  #summervibes  #glam  #instastyle  #fcuk  #frenchconnection  #curls  #blonde  #blondehair  #singlelife  #singlemom  #bbw  #chronicillness  #chronicpain  #invisableillness  #raredisease  #instahappy  #sunglasses  #shades  #positivity  #positivevibes  #pma  #singlemum  #fibromyalgia  #pain 
We love our #Ruffwear leash! Wishing they made a treat pouch and a vest in this color. Anyone have suggestions for complimentary equipment colors?
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Photo description: Bendigo laying on the floor in a store with her orange service dog vest and magenta ruffwesr leash looking up at her handler who is sitting on a chair.
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#Accessibility #Accessible #EqualAccess #ServiceDog #ServiceDogs #ServiceDogGear #DogTraining #DogGear #SDIT #InvisableIllness #MentalHealth #PublicAccess #RespectTheVest #CincinnatiDog #WorkingDog #RuffwearGear #ServiceDogTeam #ServiceDogsOfInstagram #CincyDog #CincyPup #MobilitySupport #ADA
We love our #Ruffwear  leash! Wishing they made a treat pouch and a vest in this color. Anyone have suggestions for complimentary equipment colors? --- Photo description: Bendigo laying on the floor in a store with her orange service dog vest and magenta ruffwesr leash looking up at her handler who is sitting on a chair. --- #Accessibility  #Accessible  #EqualAccess  #ServiceDog  #ServiceDogs  #ServiceDogGear  #DogTraining  #DogGear  #SDIT  #InvisableIllness  #MentalHealth  #PublicAccess  #RespectTheVest  #CincinnatiDog  #WorkingDog  #RuffwearGear  #ServiceDogTeam  #ServiceDogsOfInstagram  #CincyDog  #CincyPup  #MobilitySupport  #ADA 
I have to say one of the biggest blessings that has come from being sick is being able to witness literal physical miracles. How amazing is it to know youve borrowed strength that wasn’t yours❤️
I have to say one of the biggest blessings that has come from being sick is being able to witness literal physical miracles. How amazing is it to know youve borrowed strength that wasn’t yours❤️
I'm such an idiot! I normally manage my health pretty well.... but I've been pushing myself at the gym more, was labouring & over doing it the heat yesterday ( which didn't end well ) the added  pressure of 2 important events to sort..... literally feel like I've been run over by a bus.... major fatigue,  burning muscles and limbs and an incredibly sore mouth. This is such bad timing! An early night and some self care is called for! #youdontlooksick #iveusedallmyspoons #nospoons #invisableillness #chronicillness #chronicpain #lyme #spoonie #fibro #ME #fibromyalgia #lymedisease #lymie #chronicfatigue
I'm such an idiot! I normally manage my health pretty well.... but I've been pushing myself at the gym more, was labouring & over doing it the heat yesterday ( which didn't end well ) the added pressure of 2 important events to sort..... literally feel like I've been run over by a bus.... major fatigue, burning muscles and limbs and an incredibly sore mouth. This is such bad timing! An early night and some self care is called for! #youdontlooksick  #iveusedallmyspoons  #nospoons  #invisableillness  #chronicillness  #chronicpain  #lyme  #spoonie  #fibro  #ME  #fibromyalgia  #lymedisease  #lymie  #chronicfatigue 
Good luck Everyone @lupus_uk @livingwithlupus3871 
@lupus_warriorss 
#lupus #sle #invisableillness #goodluck #thankyou
A week off #w2w has me keen to get back on the floor with the #teamaka to get ready for our #fight its getting closer to the date coaches we're all keen to demolish luck we have you @australian.kickboxing.academy @jimmykickbox @danielle_donnybrook @bondi_dojo @thatkidarmo @ibby_faour
Personally i'm more #confident than skilled. But we all know that.

#kickbox #aka #warrior #fight #kick #punch #weareaka #dutchkickboxing #boxing #bjj #amature #confidence #punchon #whilstyouweresleeping #w2w #anarchy #mrthemenace #submit #bottle #botllestab #dqisntaloss #themenace #fightnight #throwdown @punchequipment
A week off #w2w  has me keen to get back on the floor with the #teamaka  to get ready for our #fight  its getting closer to the date coaches we're all keen to demolish luck we have you @australian.kickboxing.academy @jimmykickbox @danielle_donnybrook @bondi_dojo @thatkidarmo @ibby_faour Personally i'm more #confident  than skilled. But we all know that. #kickbox  #aka  #warrior  #fight  #kick  #punch  #weareaka  #dutchkickboxing  #boxing  #bjj  #amature  #confidence  #punchon  #whilstyouweresleeping  #w2w  #anarchy  #mrthemenace  #submit  #bottle  #botllestab  #dqisntaloss  #themenace  #fightnight  #throwdown  @punchequipment
LoL, this made me think of you @shan_ehinger! 🤓💜
LoL, this made me think of you @shan_ehinger! 🤓💜
My room may be a hot mess but I am really comfortable doing my crocheting in my room now

I really like to sit curled up when I work on projects and the past few days I have been working on them quite a bit. The problem was my butt was hurting and my hips were extra popping. 
Solution, sit in a video game chair since it is meant to be sat in for long periods of time. 
Right now it kind of sounds like there is a bear in my belly. It is definitely not comfortable or easy to relax while this is happening but hopefully it is my insides working

That would be a really good thing because things have been at a stand still.
My room may be a hot mess but I am really comfortable doing my crocheting in my room now I really like to sit curled up when I work on projects and the past few days I have been working on them quite a bit. The problem was my butt was hurting and my hips were extra popping. Solution, sit in a video game chair since it is meant to be sat in for long periods of time. Right now it kind of sounds like there is a bear in my belly. It is definitely not comfortable or easy to relax while this is happening but hopefully it is my insides working That would be a really good thing because things have been at a stand still.
I did so much today and I am so happy I did it I helped at the ropes course and did the zip line! It was a lot to do for my body in one day but it was awesome! #challenge #challengeaccepted #highropes #spoonie #chronicillness #chronicallyfabulous #chronicillnesswarrior #warriors #invisableillness #chronicallyawesome #feedingtube #tubie #livinglife #strength #loveyourself #fight #follow #followme #
 #summer #summertime #summercamp #summeradventures #girlscouts #wip #thehumbleabode #gastroparesis #epilepsy #fight #fighter #campfriendsarethebestfriends
I did so much today and I am so happy I did it I helped at the ropes course and did the zip line! It was a lot to do for my body in one day but it was awesome! #challenge  #challengeaccepted  #highropes  #spoonie  #chronicillness  #chronicallyfabulous  #chronicillnesswarrior  #warriors  #invisableillness  #chronicallyawesome  #feedingtube  #tubie  #livinglife  #strength  #loveyourself  #fight  #follow  #followme  # #summer  #summertime  #summercamp  #summeradventures  #girlscouts  #wip  #thehumbleabode  #gastroparesis  #epilepsy  #fight  #fighter  #campfriendsarethebestfriends 
I’ve found strength in saying No. Listening to my intuition and trusting what is going to be best for me. I am at a place that I no longer seek inspiration, rather than keep inspiring myself. #reikihealing #reikipractitioner #goodvibes #meditation #healing #selflove #selfcare #strongwomen #lawofattraction #believeinyourself #believe #faith #onedayatatime #soulsearching #butyoudontlooksick #cfs #mecfs #invisableillness
Everyday has challenges. Everyday is a new day. Take a minute and enjoy the now. 
#fibromyalgia #thefibromyalgiafoundation #invisableillness #liveinthemoment #breathe
I do not have cancer! The bone marrow biopsy looked perfect, other than completely absent iron stores. I do admit that I would have rather had a name for my condition and something to actually treat, as bad as that sounds. My labs have continued to decline, however. They show anemia, rising widespread inflammation, clotting issues, and muscle breakdown. The hematologist believes I probably have some active GI bleeding and inflammation causing the anemia these last few months. She also believed that rheumatology held most of the answers with an autoimmune disease. She expressed that they both needed to get on the ball, otherwise the anemia would persist. My labs this far have pointed to a problem with my genes (mitochondrial/metabolic disorder), where certain ones have been “damaged.” Thank you for your prayers! I was lucky I had my mom with me the beginning of this last trip! I was EXTREMELY sick, but did much better this last week. Mom was a trooper and drove the whole time she was there, until she flew home. God blessed with me a wonderful mom. 💜 I made it home Wednesday night after another grueling 9hr drive. But the strongest emotion I am experiencing right now is fury... the X-Games is only an hour away from Mayo this week! I can’t believe I missed it! WORST PLANNING EVER.

#dysautonomia #teamdaf #dysautonomias #dysautonomiasucks #pots #spoonie #spoonieproblems #spoonielife #spoonies #health #healthproblems #invisableillness
I do not have cancer! The bone marrow biopsy looked perfect, other than completely absent iron stores. I do admit that I would have rather had a name for my condition and something to actually treat, as bad as that sounds. My labs have continued to decline, however. They show anemia, rising widespread inflammation, clotting issues, and muscle breakdown. The hematologist believes I probably have some active GI bleeding and inflammation causing the anemia these last few months. She also believed that rheumatology held most of the answers with an autoimmune disease. She expressed that they both needed to get on the ball, otherwise the anemia would persist. My labs this far have pointed to a problem with my genes (mitochondrial/metabolic disorder), where certain ones have been “damaged.” Thank you for your prayers! I was lucky I had my mom with me the beginning of this last trip! I was EXTREMELY sick, but did much better this last week. Mom was a trooper and drove the whole time she was there, until she flew home. God blessed with me a wonderful mom. 💜 I made it home Wednesday night after another grueling 9hr drive. But the strongest emotion I am experiencing right now is fury... the X-Games is only an hour away from Mayo this week! I can’t believe I missed it! WORST PLANNING EVER. #dysautonomia  #teamdaf  #dysautonomias  #dysautonomiasucks  #pots  #spoonie  #spoonieproblems  #spoonielife  #spoonies  #health  #healthproblems  #invisableillness 
Has anyone tried it? Considering asking my consultant about it, because I’m worn from pill popping! #rheumatoidarthritiswarrior #rheumatoidarthritisawareness #warriors #constantpain #rheumatoid #rheumatology #rheumatoiddisease #invisableillness #inflammation
this picture here shows one of the many reasons why I am marrying this man in 28 days!!! My body is not doing what it should today and my walking strength is limited, so when I walked from the living room to the kitchen and was too exhausted to stand any longer he came down and laid next to me on the floor until I could get back up 👍😘 #invisableillness #potssyndrome #ilovemyman #keepfighting #sickchick #rareillness
this picture here shows one of the many reasons why I am marrying this man in 28 days!!! My body is not doing what it should today and my walking strength is limited, so when I walked from the living room to the kitchen and was too exhausted to stand any longer he came down and laid next to me on the floor until I could get back up 👍😘 #invisableillness  #potssyndrome  #ilovemyman  #keepfighting  #sickchick  #rareillness 
Posting this before I wuss out. I’m trying to be brave and raise awareness and maybe help someone feel a little less alone in their fight. Thank you @marrresol for her inspiration.
P.S. I know labral is underlined but it’s correct. 🙃
#chronicillness #chronicpain #support #chronicillnessawareness #chronicillnesssupport #invisableillness #disabled #younganddisabled #fibromyalgia #arthritis #spondyloarthritis #autoimmunedisease #autoimmune
Tired as fuck from the pain, but can't sleep because of the pain. One of those days I can't do anything.. I got to accept that this is part of my life. This is a bad day that will pass if I just hang in there and keep breathing. Tomorrow will be BETTER!

#tiredaf #painsomnia #pain #inbed #excruciating #painmedsarenotworking #justhanginthere #hystersister #hysterectomy #adenomyosis #endometriosis #endowarior #invisableillness #nervedamage #butyoudontlooksick #mytruestory #greeneyedgirl #bikinigirl #tomorrowwillbebetter
Tired as fuck from the pain, but can't sleep because of the pain. One of those days I can't do anything.. I got to accept that this is part of my life. This is a bad day that will pass if I just hang in there and keep breathing. Tomorrow will be BETTER! #tiredaf  #painsomnia  #pain  #inbed  #excruciating  #painmedsarenotworking  #justhanginthere  #hystersister  #hysterectomy  #adenomyosis  #endometriosis  #endowarior  #invisableillness  #nervedamage  #butyoudontlooksick  #mytruestory  #greeneyedgirl  #bikinigirl  #tomorrowwillbebetter 
Hey y’all! If you’ve ever had any questions about traveling with a service dog this live is for you! Join me and @harleys_bigadventure for a live q&a on Tuesday, July 17th at 8pm EST! We’ll be answering y’alls questions, going over what to pack, what to expect, as well as sharing our experiences! It’s going to be a lot of fun so if you can join us please do! #servicedog #psychiatricservicedog #medicalalert #medicalalertdog #alertdog #responsedog #tasktrained #ownertrained #workingdog #workingk9 #bipolardisorder #anxiety #panicattack #chronicillness #invisableillness #mentalillness #diasability #disabled #invisabledisability #spoonie #dog #dogtraining #collie #roughcollie
Hey y’all! If you’ve ever had any questions about traveling with a service dog this live is for you! Join me and @harleys_bigadventure for a live q&a on Tuesday, July 17th at 8pm EST! We’ll be answering y’alls questions, going over what to pack, what to expect, as well as sharing our experiences! It’s going to be a lot of fun so if you can join us please do! #servicedog  #psychiatricservicedog  #medicalalert  #medicalalertdog  #alertdog  #responsedog  #tasktrained  #ownertrained  #workingdog  #workingk9  #bipolardisorder  #anxiety  #panicattack  #chronicillness  #invisableillness  #mentalillness  #diasability  #disabled  #invisabledisability  #spoonie  #dog  #dogtraining  #collie  #roughcollie 
5 random facts about me //
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I just thought I’d share a bit more about myself so that all of you can get to know me a bit better. I want to share my story, the good and the bad!
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🌱 I LOVE to sing, it’s my passion actually. Before I got sick I used to perform and I have had singing lessons for 7 years. My boyfriend plays the guitar and we make music together in our spare time.
🌱 I got diagnosed with Lyme disease in January 2017 even though I was bit by a tick when I was eight and had symptoms from that age.
🌱 I suffered from an eating disorder from the age of 10 until 23. I was a chubby kid and ever since people started calling me ‘fat’ or even ‘miss piggy’ it became my mission in life to be skinny. I can now finally say that I do NOT have an eating disorder anymore. 🌱 I have a dog named Bono and a cat named Roca. The two get along really well! Back in 2012 my ex-boyfriend and I saved my cat in Spain. She was only a few days old and she was abandoned but luckily we found her and brought her home.
🌱 I used to workout like crazy and I mean 6 times a week hardcore strength training and HIIT. I was workout addicted and didn’t care when my body screamed for rest. I will never go back to this way of living!
🌱 I’m 26 years old, my birthday is June 11th so I’m a gemini. How many of you are gemini?
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So that’s a bit about me. I would love to get to know you guys better! What are your hobbies or what is your passion? Do you have any pets?
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Photo by: @sannejennes_photography .
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#lymedisease #lymedontkillmyvibe #morethanlyme #fucklyme #spoonie #spoonielife #spooniestrong #lymewarrior #butyoudontlooksick #invisableillness #ibs #cfs #pots #potsie #invisabledisease #chronicpain #chronicillness #loveyourbody #selfie #selflove #factsaboutme #gettoknowme #selfworth #edrecovery #bodylove #treatyourbodyright #bodypositivity
5 random facts about me // . . I just thought I’d share a bit more about myself so that all of you can get to know me a bit better. I want to share my story, the good and the bad! . . 🌱 I LOVE to sing, it’s my passion actually. Before I got sick I used to perform and I have had singing lessons for 7 years. My boyfriend plays the guitar and we make music together in our spare time. 🌱 I got diagnosed with Lyme disease in January 2017 even though I was bit by a tick when I was eight and had symptoms from that age. 🌱 I suffered from an eating disorder from the age of 10 until 23. I was a chubby kid and ever since people started calling me ‘fat’ or even ‘miss piggy’ it became my mission in life to be skinny. I can now finally say that I do NOT have an eating disorder anymore. 🌱 I have a dog named Bono and a cat named Roca. The two get along really well! Back in 2012 my ex-boyfriend and I saved my cat in Spain. She was only a few days old and she was abandoned but luckily we found her and brought her home. 🌱 I used to workout like crazy and I mean 6 times a week hardcore strength training and HIIT. I was workout addicted and didn’t care when my body screamed for rest. I will never go back to this way of living! 🌱 I’m 26 years old, my birthday is June 11th so I’m a gemini. How many of you are gemini? . . So that’s a bit about me. I would love to get to know you guys better! What are your hobbies or what is your passion? Do you have any pets? . . Photo by: @sannejennes_photography . . #lymedisease  #lymedontkillmyvibe  #morethanlyme  #fucklyme  #spoonie  #spoonielife  #spooniestrong  #lymewarrior  #butyoudontlooksick  #invisableillness  #ibs  #cfs  #pots  #potsie  #invisabledisease  #chronicpain  #chronicillness  #loveyourbody  #selfie  #selflove  #factsaboutme  #gettoknowme  #selfworth  #edrecovery  #bodylove  #treatyourbodyright  #bodypositivity 
Happy 1 year of driving to me🎉 Can’t believe it’s been a year already and it’s brought me so much independence and has allowed me to work ♿️🚗 #blogger #welshbloggers #chronicillnessblogger #invisableillness  #disabledstudent #disability #disabilityawareness #edstype3 #ehlersdanlos #edsawarenessmonth #potssyndrome #posturalorthostatictachycardiasyndrome #chronicpain #chronicallyill #chronicillness #sograteful #positivity #summer #driving #drivingtest #car #positivevibes
Happy 1 year of driving to me🎉 Can’t believe it’s been a year already and it’s brought me so much independence and has allowed me to work ♿️🚗 #blogger  #welshbloggers  #chronicillnessblogger  #invisableillness  #disabledstudent  #disability  #disabilityawareness  #edstype3  #ehlersdanlos  #edsawarenessmonth  #potssyndrome  #posturalorthostatictachycardiasyndrome  #chronicpain  #chronicallyill  #chronicillness  #sograteful  #positivity  #summer  #driving  #drivingtest  #car  #positivevibes 
What a difference a week makes taking a selfie when you have the flu & having an endo flare feeling blah.................................................................................................................................................................................................... #sohotrightnow #sickasadog #nomakeup #trueself #crook #faceof #invisableillness #flu #endometriosis #sick #tired #dying #mycrazylife #endowarrior #fightlikeagirl
I think he’s a little tired from the walk this morning! #greyhoundsofinstagram #fibromyalgia #invisableillness #chronic #livingthroughfibromyalgia
Love this little fur baby sooo much she makes me laugh smile and cry all at once lol xxx always there for a cwtch when the pain is gettinh too much xxx
Would be lost sometimes withiut the comfort of mu four legged friend lol xxx
#spooniesupport #fibromyalgia #cfs #strokeawarness #stroke #pcos #cfs #chronicpain #invisableillness #photography #cornwall #shihzu #lhasaapso #lapdog #servicesog
At least if your forced to have a duvet day (me/cfs sucks) you may as well have matching pj's and bedlinen to try and distract you from how crap you feel....
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#mecfs #fibromyalgia #anxiety #depression #chronicillness #chronicillnesssucks #invisableillness #exhausted  #invisibleillnesssucks #duvetday #matchymatchy #mewarrior #spoonie #spoonielife #pleasefindacure #sickofbeingsick #millionsmissing
First park run was awesome!! Still waiting on timings but I think I managed 30mins :) no abdominal pain today a little discomfort on and off but nothing too serious which is good. As a treat after running we went to see @theincredibles , it was brilliant!!! Edna Mode will always be my favourite!! #lego #disneypixar #incredibles2 #parkrun #runner #ibd #ibdrunner #invisableillness #asicsfrontrunner #imoveme #asics24hourchallenge #asicschallenge
The weekend is here !!! 🌸🌺🌸 I have class today (EMERGE NM) in Albuquerque , and the kids get to enjoy time with their cousins❤️❤️. Persephone also had a check up on her optic nerves and vision while we have been up here. Unfortunately we did not get great results back, but we were able to make some more medication adjustments to help her. .#intercranialhypertension . .
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. @stylewithkels @stylewithpaigea  @lularoepro .
#lularoemae #kidsfashion #backtoschoolfashion #lularoeschooled #kidsofinstagram #kids_of_our_world #minifashionista #momswithcameras #igkids #lularoe #lularoestylingchallenge #lascruces #kidsootd #lularoe #brave #kidsstyle #chronicillness #invisableillness
The weekend is here !!! 🌸🌺🌸 I have class today (EMERGE NM) in Albuquerque , and the kids get to enjoy time with their cousins❤️❤️. Persephone also had a check up on her optic nerves and vision while we have been up here. Unfortunately we did not get great results back, but we were able to make some more medication adjustments to help her. .#intercranialhypertension  . . . . . . @stylewithkels @stylewithpaigea @lularoepro . #lularoemae  #kidsfashion  #backtoschoolfashion  #lularoeschooled  #kidsofinstagram  #kids_of_our_world  #minifashionista  #momswithcameras  #igkids  #lularoe  #lularoestylingchallenge  #lascruces  #kidsootd  #lularoe  #brave  #kidsstyle  #chronicillness  #invisableillness 
#crochetlife 
I had to put this project on pause for a while because of how my vestibular disorder effects my vision. But recently I started working on it again, going slowly and working on focusing my eyes. It's tough and I've come out with some headaches but I love this hobby and I don't want to let it go.
#mermaidstitch #dragonstitch #vestibulardisorder #invisableillness #crochet #blanket
In another otherwise disastrous hospital appointment earlier this week my specialist nurse said something that’s really had me thinking all week. When asked how I was doing I replied “ not too bad”. But then she asked are you really okay? To which I replied as I always do “im fine!!, my symptoms and pain could be and have been a lot worse”, I am generally doing better on this medication. To which she said but are you sure you’ve not just forgotten what it’s like to feel normal so accept any day that isn’t awful as feeling better? ⚡️well actually yes! ⚡️This has really made me think this week that a lot of people with a chronic illness simply forget what it’s like to feel normal and settle for anything that’s not feeling totally awful.  #dontsettle #fightformore #fundacure #cronicillness #crohns #whatisnormal #health #crohnsdisease #crohnsandcolitisuk #invisableillness #silentstruggle #dontjudge
In another otherwise disastrous hospital appointment earlier this week my specialist nurse said something that’s really had me thinking all week. When asked how I was doing I replied “ not too bad”. But then she asked are you really okay? To which I replied as I always do “im fine!!, my symptoms and pain could be and have been a lot worse”, I am generally doing better on this medication. To which she said but are you sure you’ve not just forgotten what it’s like to feel normal so accept any day that isn’t awful as feeling better? ⚡️well actually yes! ⚡️This has really made me think this week that a lot of people with a chronic illness simply forget what it’s like to feel normal and settle for anything that’s not feeling totally awful. #dontsettle  #fightformore  #fundacure  #cronicillness  #crohns  #whatisnormal  #health  #crohnsdisease  #crohnsandcolitisuk  #invisableillness  #silentstruggle  #dontjudge 
Upset stomach all day yesterday, woke up with a migraine today but hoping like always that a parkrun will sort me out. That short burst of exercise always gives me a lift and I even got brave and got my belly out 😁 #parkrun #5k #invisableillness #crohnsrunner #ibdfit #crohnsfit #getyourbellyout #crohnsbelly
Not easy but is the daily battle. Would be funny if it didn't hurt to laugh  #textgram #lupuswarrior #lupus #spoonie #fibromyalgia #fibro #chronicillness #chronicpain #invisableillness #spoonielife #spooniefighter #spoonieproblems
Bahahaha, it's kind of sad but true. 🥄🥄🥄
Bahahaha, it's kind of sad but true. 🥄🥄🥄
Up to do my first ever @parkrunuk I’m not running to get any specific time but would like to be finished around 30min. Will have to take this run easy though as I’ve been experiencing some abdominal pain on and off again with my UC so don’t want to push my body too hard. So Asics on and off we go. It’s a beautiful day for a run 🏃‍♀️ #asicsfrontrunner #asics #imoveme #parkrun #ibdrunner #ulcerativecolitis #ibd #invisableillness #ibdwarrior #running #runnergirl
Up to do my first ever @parkrunuk I’m not running to get any specific time but would like to be finished around 30min. Will have to take this run easy though as I’ve been experiencing some abdominal pain on and off again with my UC so don’t want to push my body too hard. So Asics on and off we go. It’s a beautiful day for a run 🏃‍♀️ #asicsfrontrunner  #asics  #imoveme  #parkrun  #ibdrunner  #ulcerativecolitis  #ibd  #invisableillness  #ibdwarrior  #running  #runnergirl 
And you are not to sick to attempt things that you like, like travel. I'm planning my next long weekend away even though my last trip was a disaster. I won't give up. If all goes well, I'll be meeting the family at the vic / nsw border this October. 
Last weekend I managed a huge family lunch ... first time in years my husbands family all got together with the blended family, all the inlaws and step relations.
I'm still looking, i got at vans and I'm taking my time. One day I will find the right one for us. Life with a chronic illness is challenging but we can try to be balanced, still give things a go while keeping in mind certain limitations and planning around them.
#nevergiveupneversurrender
#fibroawareoz #fibromyalgiaawareness#fibromyalgia#chronicillness#chronicfatigue#chronicpain#invisableillness#CFS#cantwork#askforhelp#painmanagement#dontgiveup#chronicpainsurvivor#spoonie#disability#fibrowarrior#fibrofighter#spoons#support#believeme#approvedillness#brainfog#insomnia#encouragement#explainingnotcomplaining#pain
And you are not to sick to attempt things that you like, like travel. I'm planning my next long weekend away even though my last trip was a disaster. I won't give up. If all goes well, I'll be meeting the family at the vic / nsw border this October. Last weekend I managed a huge family lunch ... first time in years my husbands family all got together with the blended family, all the inlaws and step relations. I'm still looking, i got at vans and I'm taking my time. One day I will find the right one for us. Life with a chronic illness is challenging but we can try to be balanced, still give things a go while keeping in mind certain limitations and planning around them. #nevergiveupneversurrender  #fibroawareoz  #fibromyalgiaawareness #fibromyalgia #chronicillness #chronicfatigue #chronicpain #invisableillness #CFS #cantwork #askforhelp #painmanagement #dontgiveup #chronicpainsurvivor #spoonie #disability #fibrowarrior #fibrofighter #spoons #support #believeme #approvedillness #brainfog #insomnia #encouragement #explainingnotcomplaining #pain 
Optimism is the faith that lead to achievement - Helen Keller

There are a couple of things that have been in the works the past few days neither of which I am going to go into detail on but both of which have the possibility of finding more answers. 
Which then makes me both nervous and excited. 
Excited because answers are answers, which means putting a name to what is happening. 
But then there is the fear of the reality that answers does not mean that there will be a fix or even a treatment. 
I am scared that as with my last diagnosis, having a name for it and realizing that ther is only symptom management sent me into a kind of fog. I wouldn’t call it a depression t was just a loss of that hope that what I was dealing with was “fixable”. I have become almost comfortable not knowing what I am dealing with because then in my mind there is infinite numbers of possibilities for things that could “fix it”. The problem with this logic is, many things once they have a name have a treatment. So getting to a name would mean having a handful of things that could actually work and not having a name is just living life without the possibly helpful solution. 
As it has been over a year since my last diagnosis (that wasn’t just a description of a symptom) I feel that these things are happening in the right time. I am at a place mentally where can face the risk of the diagnosis not leading to treatment. As well as at a place physically where it is time to move forward to find something that is able to direct us in our treatment decisions because as of right now strictly symptom management is not going all that well and treatment options are virtually non existent (as we don’t know what direction to head in).
Optimism is the faith that lead to achievement - Helen Keller There are a couple of things that have been in the works the past few days neither of which I am going to go into detail on but both of which have the possibility of finding more answers. Which then makes me both nervous and excited. Excited because answers are answers, which means putting a name to what is happening. But then there is the fear of the reality that answers does not mean that there will be a fix or even a treatment. I am scared that as with my last diagnosis, having a name for it and realizing that ther is only symptom management sent me into a kind of fog. I wouldn’t call it a depression t was just a loss of that hope that what I was dealing with was “fixable”. I have become almost comfortable not knowing what I am dealing with because then in my mind there is infinite numbers of possibilities for things that could “fix it”. The problem with this logic is, many things once they have a name have a treatment. So getting to a name would mean having a handful of things that could actually work and not having a name is just living life without the possibly helpful solution. As it has been over a year since my last diagnosis (that wasn’t just a description of a symptom) I feel that these things are happening in the right time. I am at a place mentally where can face the risk of the diagnosis not leading to treatment. As well as at a place physically where it is time to move forward to find something that is able to direct us in our treatment decisions because as of right now strictly symptom management is not going all that well and treatment options are virtually non existent (as we don’t know what direction to head in).
So tired, but I go up and out of bed..... god these filters really do make a difference! Loving my new do. #pink #pinkhair #snapchatfilter gonna chill, watch the #melbournestorm play later on. #iamreal #crps #crpswarrior #crpsawareness #crpsnetworkaustralia #purplepride #love #chronicpain #chronicillness #invisableillness
*that exact moment* It happened earlier in the week. I thought shit girl this Fibromyalgia is killing you. I meant mentally and zapping the lust for life. Im in the house most days with Chronic Pain. Theres an operation coming up for my back which has a 70% success rate. Im gonna need to strengthen my body, so Ive made a go fund me page to get extra treatments not avaliable on the NHS to help me. Please check out my go fund me page. Link in bio #gofundme #gofundmedonations #fibromyalgiaawareness #fibromyalgia #chronicpain #chronicpainwarrior #invisableillness #disability #disabilityawareness #everylittlehelps #chronicillness #fibromyalgiacankissmyass #northernlass #geordie #disabled #healing
*that exact moment* It happened earlier in the week. I thought shit girl this Fibromyalgia is killing you. I meant mentally and zapping the lust for life. Im in the house most days with Chronic Pain. Theres an operation coming up for my back which has a 70% success rate. Im gonna need to strengthen my body, so Ive made a go fund me page to get extra treatments not avaliable on the NHS to help me. Please check out my go fund me page. Link in bio #gofundme  #gofundmedonations  #fibromyalgiaawareness  #fibromyalgia  #chronicpain  #chronicpainwarrior  #invisableillness  #disability  #disabilityawareness  #everylittlehelps  #chronicillness  #fibromyalgiacankissmyass  #northernlass  #geordie  #disabled  #healing 
So Yesterday #Thursday My Queen👑 #BossLady My Mommy @marvelousvella & I Had Some Fun #FlickingItUp On #SnapChat Using Most Of the #SnapChatFilters Taking #SnapChatSelfies & Also Including Bookie💗 @twinjazz2 We Did A #BoomerRang Video too! I LOVE MY GALS SO MUCH☺️😍💜💙💗 SWIPE➡️TO SEE THEM ALL!  #ChronicGirlz #Gotillness #JoinTheSquad #TheTwinz #PublicFigures #TWINkle #JazzAndMela #WeHaveLupus #WeHaveArthritis #IHaveLupus #IHaveArthritis #Lupus #RA #RheumatoidArthritis #YoungAndSick #Invisableillness
So Yesterday #Thursday  My Queen👑 #BossLady  My Mommy @marvelousvella & I Had Some Fun #FlickingItUp  On #SnapChat  Using Most Of the #SnapChatFilters  Taking #SnapChatSelfies  & Also Including Bookie💗 @twinjazz2 We Did A #BoomerRang  Video too! I LOVE MY GALS SO MUCH☺️😍💜💙💗 SWIPE➡️TO SEE THEM ALL! #ChronicGirlz  #Gotillness  #JoinTheSquad  #TheTwinz  #PublicFigures  #TWINkle  #JazzAndMela  #WeHaveLupus  #WeHaveArthritis  #IHaveLupus  #IHaveArthritis  #Lupus  #RA  #RheumatoidArthritis  #YoungAndSick  #Invisableillness 
The progression of my treatment today. All started and ended well so that’s what matters. Reactions the first infusion are reasonably common. Hopefully next week there will be no reaction. Let’s seen how this effects my numbers!
The progression of my treatment today. All started and ended well so that’s what matters. Reactions the first infusion are reasonably common. Hopefully next week there will be no reaction. Let’s seen how this effects my numbers!
@dysautonomiajewelryforacause has some great Jewelry for you. 15% of Proceeds are donated to DAF! Have you checked her out?! Tons of designs options and of course teal!
@dysautonomiajewelryforacause has some great Jewelry for you. 15% of Proceeds are donated to DAF! Have you checked her out?! Tons of designs options and of course teal!