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Minha última infusão do Ano ...
Minhas gotas de esperança 🙏🏻⭐️
A tão esperada melhora e a esperança de uma vida normal ... 🙏🏻⭐️ #inflaximab #retocoliteulcerativa
Minha última infusão do Ano ... Minhas gotas de esperança 🙏🏻⭐️ A tão esperada melhora e a esperança de uma vida normal ... 🙏🏻⭐️ #inflaximab  #retocoliteulcerativa 
#truthtime About a month ago I had a colonoscopy and when it was over my doctor gleamed with happiness and told me I was going to live a normal life and the hard parts were behind me.. once again I felt the superwomen  I was raised to be, come out of me and everyday. I went to work  early and I tried to make all the events and in my heart I was leaping towards my dreams finally feeling like I can have the life I know I deserve.. Then Tuesday came.. I woke up so excited to take my kids trick or treating and steal their candy,  but by noon I knew I wasn't gonna make it. By 2pm I couldn't keep anything down and the sharp pains weren't  getting better and by the end of the day I had to make plans for my children for a few days and figure out where am i going to find the money to pay the rent this month? This year wss supposed to be my first year doing thanksgiving.  Being in the hospital is a financial burden in itself.  My support team is strong but they have their own crosses to bare and they cannot carry this one for me.. It has not been easy for me these past few years but God has never forsaken me,  my only question to him now is how? HOW am I going to make this work? I can't give 40 hours to a job because my time and energy is precious and when I'm finished I have so little left for what matters.. #crohns #crohnslife #spoonie #fightlikeagirl #fighttoeat #love #power #remicaide #inflaximab
#truthtime  About a month ago I had a colonoscopy and when it was over my doctor gleamed with happiness and told me I was going to live a normal life and the hard parts were behind me.. once again I felt the superwomen I was raised to be, come out of me and everyday. I went to work early and I tried to make all the events and in my heart I was leaping towards my dreams finally feeling like I can have the life I know I deserve.. Then Tuesday came.. I woke up so excited to take my kids trick or treating and steal their candy, but by noon I knew I wasn't gonna make it. By 2pm I couldn't keep anything down and the sharp pains weren't getting better and by the end of the day I had to make plans for my children for a few days and figure out where am i going to find the money to pay the rent this month? This year wss supposed to be my first year doing thanksgiving. Being in the hospital is a financial burden in itself. My support team is strong but they have their own crosses to bare and they cannot carry this one for me.. It has not been easy for me these past few years but God has never forsaken me, my only question to him now is how? HOW am I going to make this work? I can't give 40 hours to a job because my time and energy is precious and when I'm finished I have so little left for what matters.. #crohns  #crohnslife  #spoonie  #fightlikeagirl  #fighttoeat  #love  #power  #remicaide  #inflaximab 
Hoje é dia de infusão 🙏🏻
#inflaximab #retocolite #retocoliteulcerativa
Mais uma infusão pra conta 🙏🏻 Hoje termina a segunda dose de  ataque 😓
Agora só daqui 1 mês .
#infusao #crohn #retocoliteulcerativa #retocolite #inflaximab #remicade #imunossupressor
14/09/2017 
As gotas de esperança que passam por minhas veias mostram que aquele que começou a boa obra é fiel e Justo para cumpri-las até o fim . 
Dono do meu ser
Guardião dos meus anseios
O conhecedor do meu coração

Eu me entrego a ti
Eu me entrego a ti

Meu coração é só teu
Eu sou achado em teu amor
Meu coração é só teu
Eu sou achado em teu amor
Dono do meu ser
Guardião dos meus anseios  #crohn #retocolite #inflaximab #imunossupressor
14/09/2017 As gotas de esperança que passam por minhas veias mostram que aquele que começou a boa obra é fiel e Justo para cumpri-las até o fim . Dono do meu ser
Guardião dos meus anseios
O conhecedor do meu coração
 Eu me entrego a ti Eu me entrego a ti Meu coração é só teu
Eu sou achado em teu amor
Meu coração é só teu
Eu sou achado em teu amor Dono do meu ser
Guardião dos meus anseios #crohn  #retocolite  #inflaximab  #imunossupressor 
Ostentação da esperança 🙏🏻 A minha esperança está naquele que fez o céu e a terra , está no criador do mundo . Ele tudo pode e tudo faz , ele usa o meio que ele quer e ele faz da forma que ele quer 💉💊e Ele trata como ele quer tratar ✝️
#inflaximab #remicade #retocolite #retocoliteulcerativa #imunossupressor #crohn
Love our nurses❤️ #infusionday
Parece inofensivo ... Mas os dias também tem sido assim . Remédios , exames e tudo mais ... Jaja vamos saber se vou poder iniciar meu tratamento com imunossupressores . 
Vida que segue , o importante vai ser fuçar bem para poder zelar por aqueles que eu quero bem ❤️🙏🏻🌟#retocoliteulcerativa #dii #crohn #inflaximab
Parece inofensivo ... Mas os dias também tem sido assim . Remédios , exames e tudo mais ... Jaja vamos saber se vou poder iniciar meu tratamento com imunossupressores . Vida que segue , o importante vai ser fuçar bem para poder zelar por aqueles que eu quero bem ❤️🙏🏻🌟#retocoliteulcerativa  #dii  #crohn  #inflaximab 
💉💉💉16th and last infusion of the year! So happy how far my journey has come with this miracle drug. Truly am blessed 🙏🏽 #remicade #inflaximab #iv #yeg  #crohnie #crohns
Really struggling today... In a really bad place. Feel like crap, look like crap and in a crap load of pain. Feeling very empty, alone and emotional. Haven't even been able to get out of bed yet today. Got my biopsy on Tuesday, and I will be pushing for the Humira or Inflaximab as this is ridiculous and I cannot and will not carry on like this 😣 #spoonie #spoonielife #behcets #fibromyalgia #me #cfs #chronicilless #invisibleillness #autoimmunedisease #chronicpain #fatigue #cantsleep #pain #exhausted #spoonsneeded #feelshit #lonely #anxiety #humira #inflaximab #infusions #needhelp #thisisridiculous
Really struggling today... In a really bad place. Feel like crap, look like crap and in a crap load of pain. Feeling very empty, alone and emotional. Haven't even been able to get out of bed yet today. Got my biopsy on Tuesday, and I will be pushing for the Humira or Inflaximab as this is ridiculous and I cannot and will not carry on like this 😣 #spoonie  #spoonielife  #behcets  #fibromyalgia  #me  #cfs  #chronicilless  #invisibleillness  #autoimmunedisease  #chronicpain  #fatigue  #cantsleep  #pain  #exhausted  #spoonsneeded  #feelshit  #lonely  #anxiety  #humira  #inflaximab  #infusions  #needhelp  #thisisridiculous