It’s been a good afternoon! 🌞 My little came and we are playing games and snuggling. I was able to get off a liquid diet and put my own clothes on. I even got to walk around on a different floor (which had to be approved first of course). #crohnsdisease#ibd#ibdwarrior#hospital
Need "motivation" to work out? Ha! Don't we ALL. 😉 Especially THIS time of year am I right? 🎄🎅🍾 📣Spoiler Alert!📣
👉 DISCIPLINE > MOTIVATION!
But, HOW? You might ask.🙃 Consider THIS! ⬇️⬇️ Sometimes your passion just won't PULL you and it’s necessary to let the pain PUSH you!
Say what? Well…
For one thing...I do NOT work out for abs or a number on a scale or a bikini body (HAHAHA!!) If the only thing getting me to exercise every day was the thought that…if I don't workout, I'll never have abs…I'd be sitting on my behind in the recliner for a Hallmark Christmas movie marathon so dang fast! 🎅🎄🤣 (yeah I know you think I already do this!) Thoughts like that do NOT get me moving…AT ALL!
But when I let the thought of…if I don't work out and learn to take care of myself WHILE I AM healthy…I could end up in a full blown IBD flare up or with heart disease, high blood pressure, high cholesterol, or any other chronic disease that runs in my family only to live a life consumed with medication!
PUSH me... you best believe I will be busting butt to get it done EVERY dang day. 💪 So no you don’t HAVE to work out but what will happen if you don’t???
This semester has been really hard. It was my first in school with UC. I always had stomach problems before, but never like this. Juggling the side effects of this disease and my medicines was really hard, but I did it. I have officially finished my last semester of freshman year of college. I passed 5/6 classes (don't get me started on geology honestly), and I did it!!!!!!!
*** About Us *** Donna (one of our owners) has an autoimmune condition known as Ulcerative #Colitis (which is a form of inflammatory bowel disease (IBD)). For a long time, she struggled badly with her health.
She was extremely fatigued, in a lot of pain, and was visiting the toilet (urgently) several times a day.
The doctors had told her that very little else could be done to help.
However, over time, using a range of diet and lifestyle changes, protocols, and supplements, Greg (a nutritionist and her husband) was able to help Donna completely turn her health around.
She now lives symptom and medication free.
This experience showed Greg and Donna that people with chronic health problems typically aren't given all the help they need to feel dramatically better, and live a happy, confident life on their own terms.
One important part of being able to do that is through the use of high quality, effective supplements that help bring the body back to the healthy place it needs to be.
Therefore, they decided to produce a range of ultra-high quality supplements, with very pure ingredients, that are extremely effective for someone struggling with their health. And so the Autoimmune Institute was born.
Your health matters to us. We know what it can be like living with a chronic health problem and know you need the very best if you are to turn things around as quickly and effectively as you'd like.
Therefore, we will never offer you second rate #supplements .
We will offer you the products and services that we truly believe can help to build your health and will not compromise our products in helping to do that.
What's more, we know this can be a very confusing area, so we promise to always be as helpful as we can and are always contactable if you need any advice about what we offer. Should you have any questions at any time, then please do not hesitate to get in touch!
Как войти в ремиссию?
1. Адекватная, работающая терапия.
Сколько же я слышу от людей наподобие такого: «Мучаюсь пол года, принимаю Месакол 2 гр» 🤦🏻♀️.
Если при длительном приеме препаратов не наступает улучшение, меняйте терапию, если врач - олень, меняйте врача.
🔹 НЯК: САЛОФАЛЬК 4 г таблетки/гранулы
Салофальк свечи только нижний отдел
Микроклизма действуют выше
Пена доходит до самых дальних отделов толстого кишечника
🔹 БК: ПЕНТАСА (высвобождается в тонком кишечнике) 4 г. Если есть повержение в толстом, то так же свечи, клизмы, пена.
Многие хвалят Мезавант.
🔹 МЕЗИМ 10000 или несколько таблеток обычного
🔹 ФОСФАЛЮГЕЛЬ - отлично снимает боль и успокаивает живот (на меня действует просто шикарно!)
🔹 МОДУЛЕН - супер вешь! Из обострения можно выйти вообще только на нём, но он не из дешевых, поэтому предлагаю такую схему:
Два дня пить его вместо еды (завтрак, обед, и ужин), больше никакой другой еды, если уж очень есть хочется, можно ещё выпить (читайте в инструкции максимальную дозу). Кто может больше дней продержаться и деньги позволяют - продолжайте пить его вместо еды. Остальные вводят обычную пищу, Модулен пьют вместо ужина.
🔹 При тяжелых состояниях БК используют АЗАТИОПРИН, это нормальный вариант лечения, но с него потом уходят!
Принимать только под наблюдением врача! У меня оказалась непереносимость - упали лейкоциты, самостоятельный приём строго запрещён.
🔹 БУДЕНОФАЛЬК - гормон, который не всасывается, действует местно. Я не принимала, у меня был слишком запущенный случай.
🔹 Если легкая терапия не сработала, то ПРЕДНИЗОЛОН. Отличное изобретение медицины, которое даёт шанс на жизнь. Без него и меня возможно не было бы. Вредный очень, переносится тяжело, много побочек, зато дает возможность передохнуть и телу начать заживление.
Нужно взять волю в кулак и понять, что это мероприятие временное, всё проходит и это пройдёт.
Приём СТРОГО по назначению врача.
При приеме Преднизолона обязателен приём ОМЕЗА или других аналогов и КАЛЬЦИЯ.
🔹 Если Преднизолон не помогает (резистентность) или наоборот - зависимость, то БИОЛОГИЧЕСКАЯ ТЕРАПИЯ. Вы имеете на это законное право. С неё тоже уходить потом.
🔹 Не помогает БИОЛОГИЯ, тогда ...⤵️
Hello, I’m Sharan. I was diagnosed with Crohn's Disease in 2002 and until my diagnosis, I was completely unaware of what Inflammatory Bowel Disease was. Being diagnosed as a teenager, I think part of me was in denial and refused to accept the severity of it until I went to university. I realised then how difficult it was for me to have a ‘normal’ experience because the condition felt so isolating and embarrassing. For years I pushed myself, trying to keep up with everyone around me but after having emergency surgery, I came to realise that I needed to do things at my own pace.
As a member of Crohn's & Colitis UK, I’ve always felt incredibly supported by everything the charity does to support members and raise awareness, so I made the decision to join my local network as a volunteer in Berkshire.
Since joining the network, I’ve been managing our networks social media accounts and helping with events where I'm able to. It’s coming up to a year now since I started volunteering and I honestly think this is the first time I’ve ever felt so passionate about the work I’ve been doing. Our network has worked very hard this year to raise awareness throughout Berkshire and our monthly coffee morning's have proved to be a great support for people who have said they were too afraid to speak to anyone about their condition until now.
Joining the network has not only had a positive impact on others, but I feel it in myself too and I’m more determined now than ever to raise awareness and to continue to support those who need it.
Sharan and Crohn's & Colitis UK - fighting Inflammatory Bowel Disease together
So many squarsh! And locally grown. If you’re going to eat cooked foods to slow down the detox or feel a little more grounded (‘cause we all need it sometimes!), choose the gentle low acid forming, low mucous forming foods.
Things like your cooked meats, fish, eggs, dairy & processed foods are going to be very inflammatory and very damaging to your gentle little gut! So get into things like quinoa, millet, sweet potatoes or squash to keep it easy on your belly.
Although I do believe the healing happens on a living foods diet like every other animal in Nature follows, sometimes coolin’ out the emotional detox with grounding foods is not a bad idea. We don’t have to beat ourselves up over whether we’re not following a diet perfectly.
Sometimes I think being a purist or an orthorexic person can cause you to do a mega binge that’ll set your healing journey back way more than just eating a pumpkin once in a while.
I remember when I first dove into raw foods the cravings were INSANE. Especially for salt & dense foods. Now that I realize how damaging salt is literally just by feeling how much it burns in my intestines, I would have had NO idea what it was ever doing to me!! Salt burns rusty holes in cars. It also burns open wounds on your skin! Put that ish inside yo body—similar story.
But the cravings for dense foods were stronggg. Between low quality fruit & not being able to eat large quantities at first, I wanted DENSE concentrated calories. But these came with a lot of repercussions. Anytime I ate cooked food, my body was a train wreck—even the gentle stuff. Yikes! I had so much healing to do.
Now I tolerate cooked foods ok but they’re still not ideal. Your energy levels with cooked foods the next morning aren’t anywhere near the level of #rawfoods . Never would’ve known if I hadn’t tried it for years to develop the body awareness to really find out how food made me feel. Even drinking water. You’ll never know how hydrated you are if you’re perpetually eating dehydrating meals. It’s a wild journey but all a blessing in learning.
Mostly raw but still eat some cooked food once ina while? I wanna know below!! No shame 😛 I still love you.
Just rubbing ma food belly... 🤰🏻⠀
🤣 Lol just kidding.⠀
I’m actually doing diaphragmatic breathing before my workout.⠀
Why, you ask?⠀
Because when you’re in a flare, or you’re stressed from work/holidays/life, it’s good for your body to get out of that stressed state before you stress it again with your workout.⠀
What is diaphragmatic breathing?⠀
According to the Cleveland clinic, it’s basically a breathing technique to strengthen your diaphragm (a muscle by the lungs) so that you can slow your breathing rate, decrease the amount of oxygen needed and make it easier for you to breathe.⠀
It’s also a great stress reliever 💆🏻♀️ that you can do anywhere 🙌🏻
I strongly believe that your attitude towards things has a direct impact on how you cope. For me, remaining positive, whilst also realistic is really important for my mental health.
It's impossible to be positive 100% of the time, and that's okay. But today I needed a reminder not to wallow.
Things have been pretty tough for the last couple of years and with each new drug I've tried I have gone into it with an open mind. When I'm not seeing any improvement it's difficult to remain hopeful so I'm giving myself a little time to acknowledge how I'm feeling and all that is happening with my health and then it will be back to positivity.
I’m Danielle and I was diagnosed with Ulcerative Colitis in February 2018 after 4 and a 1/2 years of symptoms. In that time I was constantly told it was IBS & to change my diet, but my symptoms of diarrhoea, abdominal pain, urgency and the occasional bit of blood continued, as did the doctors trips but I was still told the same thing.
It was around October 2017 that my symptoms started to worsen. I was going to the toilet 10-15 times a day, and some trips were a massive waterfall/explosion of blood. Finally my GP referred me for a colonscopy from which I was diagnosed.
I was put straight onto steroids & started on the maximum dosage of asacol, with a hospital stay to add due to the severity of my symptoms. After finishing the course of steroids, it appeared that the disease was already under control, however around 4 weeks later, all of my symptoms returned. My IBD nurse tried me on rectal foam which failed for me, and then I ended up back on oral steroids which also didn’t work the second time round. 🔸
I was sent for another camera as my consultant wanted to see how my bowel was looking as he wanted to escalate my treatment to Azathioprine. The camera showed that my bowel was in really bad condition & my consultant described my UC as severe. He decided to skip Aza & put me straight onto Humira. I’ve been on Humira for almost 6 weeks now & although at first I noticed a slight improvement, unfortunately since my last injection my symptoms have returned. I’m extremely frustrated at the minute & having this disease has severely affected my mental health to the point where I’ve had to request help but I’m keeping my head up and hoping that Humira kicks in or something else works for me. I refuse to let it affect my life anymore!
Danielle @daniellemckie and Crohn's & Colitis UK - fighting Inflammatory Bowel Disease together
‼️Vulnerable Post Alert‼️
Okay these past 8 weeks have been a rollercoaster of emotions + pushing myself to the absolute limit!
My first instinct was to criticize the comparison photos and focus on what I DIDN'T see. 🙈 "Not the results I wanted", "I could've worked harder", "I don't see a difference" ......
After a confiding conversation with the amazing @cam_quin, I took a second look and chose to focus on what I COULD see. This IS the product of hard work + dedication.
Change does not happen over night + there is no "perfect ending" to this journey. It is one that continues every day because it is a lifestyle. I would rather be proud of my progress than regret not starting at all.
All it takes is one step forward each day, whether it's big or small. If you're ready to take a step towards your goals, shoot me a DM + just say HI 👋🏼
Mornings are my favorite time of day☀️
Something about the fresh start of a new day....OH! And coffee of course ☕️
Today's concoction was made at home with @Starbucks peppermint mocha coffee + @traderjoes cocoa almond/cashew beverage 😍 2 ingredients, half the sugar, and half the cost?! Sounds good to me!
How do you take your coffee?!
My whole life changed at the age of 18...
I went from being the Emo girl obsessed with music (pictured in this throwback photo), to a university student recently diagnosed with Ulcerative Colitis in denial..
I had no idea what a Chronic Illness was. I couldnt fathom that I was going to be sick forever. So I tried to ignore it. I sometimes would have accidents at school. Other times I would miss class because I would have to sit in the bathroom for thr entire hour. .
I pushed as hard as I could every day. I worked as a hairstylist after school and on weekends. I spent endless hours studying, completing essays. I never went to the bar or put with friends because I was just to sick. .
Every single exam period I would push as hard as I could. I was a perfectionist. I needed to get good grades. BUT THEN..
As soon as exams where over I would get sick.... really sick. Many times I would end up in the hospital.
This continued for 6 years! .
See our bodies are amazing machines! When they need to they will focus and you can push, but if you dont take care of yourself properly while you are pushing your body to the max you WILL get sick once the stress is gone. .
What is something you can do for yourself to lower your stress in this crazy season?? .
💜 On November 28, 2018 I finally overcame my 2 Year and 8 month battle with Severe Ulcerative Pancolitis. Throughout the life of my disease, I failed all available medications that I was able to get the chance to try. The quality of my life was greatly enhanced through the supplementation of drinking Pruvit’s Pure Therapeutic Ketones and a Ketogenic Lifestyle, but inside my colon a war was waging and I had one of the most aggressive forms of the disease that doctors had ever seen.
On November 14, 2018 I was informed that I was also failing prednisone steroids and that nothing else could be done for me other than to perform a Full Colectomy with End Ileostomy or I would not survive the disease. The part that was the hardest to let go of is that I would never achieve the remission that I had fought so hard and come so close to achieving through lifestyle changes and diligence in my health.
With that said, I am grateful to announce that I was able to donate my colon to research the day it was removed. In doing so, I am hopeful that better medications or a cure can be found. This was the least I can do to make my contribution and it warms my heart to know that even though I will never be able to go back to how I was prediagnosis, I was able to make a contribution that may help others who are still battling this debilitating and ruthless disease. My prayer is that with my colon being one of the most damaged, that it will open doors and shed some light for researchers to get what they need to make a miracle happen. 🙏🏼 #ibdwarrior#crohnsandcolitis#ileostomy#colectomy#ostomy#vanderbilt#research#colondonation#tissuedonation#findacure#ibd#pruvitforward#pruvit#ketosis