Me and cancer boi Josh went on a 40 mile ride in forresthill today. He's tryna kill me I swear. Only video I got cuz my GoPro is broken and it looks lame I know... Trail 5 loop is so gnarly. It's my favorite now. Pretty incredible this dude battled hodgkin's lymphoma and is right back on the bike. Not only that but he's insanely fast. #ridediamonds#yamaha#ktm#forresthill#hodgkins#johnnyhodgkins
I finally had the energy to paint my countertops to look like granite (and then do another section)! It took me until now, but I’m ready to keep tackling the DIY projects I had planned before my diagnosis. As of right now, I can finally say I feel like I have more energy than I’ve had in the last year or two. Everyone kept promising me chemo would make my energy worse so it could get better, but there were a lot of times I didn’t believe them. It’s easy to feel discouraged. It’s easy to feel like you’ll never feel like yourself again. It’s easy to feel like someone who hasn’t experienced this couldn’t understand what you are feeling or what you will feel going forward. But it’s worth the fight, and the energy does come back! It gets better. #hodgkins#ayacancerawareness#ayacancer#hodgkinslymphoma#hodgkinslymphomaawareness#lymphoma#4monthsoutofchemo
I’ve become accustomed to looking in the mirror and not recognizing myself after this wild year; before my cancer diagnosis I had not even acknowledged my body was just a bag of bones potentially days from dead. I was blacking out standing up and clenching my fists and jaw in drenching night sweats where I felt like my body was trying to fight off heart failure before my diagnosis. Doctors at the campus medical center told me I was an anxious college student that just needed some therapy, but really I had a 17 cm tumor in my chest and a partially collapsed lung, drowning in fluid. I had become bitter, hopeless, and so confused with my digression, and pissed that they just missed all of it. Upon returning home, treatment made me feel stronger than I was before, I had gained 30 pounds which made me very uncomfortable with my image, and I eventually became bald as chemo began to work. It made me question if I was bipolar, I went from being wired and wanting to crawl out of my skin to feeling completely isolated and numb as I have ever felt. Now, 7 months later, the storm is long behind me. It takes a whole lot of work and a whole lot of will, but I promise, hell on earth doesn’t last forever. I still have moments of great anxiety walking into doctors offices, I still uncover my buried scary memories, and I still hold pain in losing some of the most precious time of my life. That doesn’t stop me from living now, in this moment, giving myself what I need to thrive at my best. Looking at this headshot makes me so damn proud, because it reminds me that I chose to scrape myself off the floor and to accept and live by the love that my soul was clawing from the inside out to be guided by in this life. Thank you to those that showed me that I can do this, I owe you with every sunrise, every moment in the studio and on stage, and every full breath of oxygen I now feel so privileged to take. I feel like I’m reaching a precipice and I don’t know exactly what it is yet - all I know is my village helped me get here. All the love xx
روش درمانی IMRT یک روش رادیوتراپی است که به جای تاباندن اشعه در محیطی وسیع که علاوه بر از بین بردن تودههای سرطانی به بافتهای اطراف آن صدمه میزنه، توده سرطانی را به قسمتهای کوچکتر تقسیم و اشعه را به محدود به خود توده میکنن. این روش از نظر اثر بخشی ممکن است تفاوت چندانی با متد مرسوم نداشته باشه، اما به دلیل سالم ماندن اعضای پیرامون توده، عوارض کمتری برای بیمار در کوتاه و یا بلند مدت داره. البته هنگامی ارزش این روش درمانی بیشتر درک میشه که بدونیم تومور در منطقه حساسی مانند ریه یا نزدیک عضوی مانند چشمه. از طرفی ممکنه این روش به همه تجویز نشه (اطلاعات دقیق رو از پزشکتون بگیرین). اگر دوست یا آشنایی دارید که پس از شیمی درمانی نیاز به رادیوتراپی داره حتما وجود این روش را به وی گوش زد کنین. در مشهد مرکز آنکولوژی رضا واقع در قاسم آباد (فلاحی ۴) به یک دستگاه ویژه IMRT مجهز شده. آقای دکتر سالک و خانم دکتر دیانی دو پزشک بسیار حاذق در درمان بیماران به این روش هستن- هم بسیار دقیق و هم با حوصله در توضیح مراحل و عوارض درمان. من با دکتر سالک درمان خود را شروع کردم و ایشان بسیار دلگرم کننده و در عین حال واقع بینانه همه چیز را برای من توضیح دادن. طراح درمان من نیز خانم سارا عبداللهی بودن که بسیار فردی خوشمشرب و آگاه هستن. این درمان اینقدر خوب بود (تاثیرش روهنوز نمیدانم چون باید آزمایش انجام بشود ولی مرا از زندگی روزمره باز نداشت) که من حتی در اواخر درمان دوباره شروع به ورزش هوازی کردم با اینکه تومور در ناحیه ریه بود. به عنوان کسی که تجربه رادیوتراپی مرسوم رو هم داشته، به شدت این روش رو توصیه میکنم. (البته نمیدونم همیشه میشه ازش استفاده کرد یا خیر). این پست دو هدف داشت: دادن آگاهی نسبت به وجود این روش و تشکر از کادر درمانی و اجرایی مرکز رضا. از مریم یاسی بسیار تشکر میکنم بابت پیگیرهای عالی و کمکهای همیشگیش و از برو بچ تسریعکننده خطی ۵. با دقت همه چیز رو کنترل میکردن و همیشه خوشبرخورد بودن. جلسه آخر بود امروز و منتظر میمونم تا نتیجه آزمایشات رو بگیرم و قدم بعدی رو بردارم.
#flashbackfriday to around this time last year when I started chemo... I just wanted to make a quick post to inform everyone that in September I’m running from #Baltimore to #KeyWest with @ulmancancerfund to raise funds to support cancer patients and their families in their arduous journey with cancer. Please head over to my bio and click the link I provided. There, you can find out more about this event as well as my own journey with cancer. Thank you all! #Stage4#hodgkins#lymphoma#cancer#survivor
It’s been an awesome week in O’ahu celebrating being done with treatment! I’m glad I started working out after radiation to get ready for this trip. My husband and I hiked Manoa falls and Diamond Head, each almost 2 Miles round trip. We also snorkeled Hanauma Bay and Turtle Bay (with green sea turtles!). I definitely get tired more quickly than before cancer, but my fatigue is already much better! I’m also really excited to get back to the things that make me feel like me. I can’t wait to get back to scuba diving and to try surfing at some point, but I’m thankful for the progress I’ve already made. 🌺🌴 #hodgkinslymphoma#hodgkinslymphomaawareness#ayacancer#ayacancerawareness#hodgkins
Sorry for the Instagram disappearance act lately. This will explain why...
In January 2018, I was diagnosed Hodgkin’s lymphoma. Now six months later after over 50 hospital appointments, 2 operations, 2 different chemo regimes, 10 radiotherapy sessions, 7 A&E/ambulatory visits, numerous scans, countless cannulas and a lot of tears... I am over the moon to say that I have now finished treatment and… ALL CLEAR!
This would not have been possible without the #nhs .
As we celebrates the 70th anniversary of the NHS, I reflect on how extremely lucky I am to live in a country with such amazing healthcare available, alongside nurses that truly care about our wellbeing and recovery.
I am eternally grateful for the NHS and the brilliant nurses at St George’s Hospital for all the support throughout this massive journey in my life. And most importantly… Thank you for saving my life!
I done a big thing for me today.... HUGE! I had to go back to the hospital today. First time to my chemo hospital since 26th April.
I knew with my head it would all be ok, I’m in remission, my pet scan was clear- but my god, my anxiety went through the roof. I’ve been waking up at 4am, I’ve been unable to switch off! I’ve been an emotional wreck! The thought of sitting in that waiting room again, going into that consultation room again, seeing the same doctors who gave me my diagnosis! 😩😞
This morning was hard, I felt like my patience with the children wasn’t there, I was nervous & short tempered!
But I went, I was brave, I was ok- & do you know what- after a wait of one hour & 15 mins- my appointment was literally 5 mins!
Im boring to these doctors, I’m in remission! & I’ve never ever been more pleased to be boring!!! 😀🙌🏻
Thank you again to my wonderful husband for putting up with my anxiety & to my mum for coming to the appointment! Another hurdle jumped, i’m doing ok!
Ps- Lexa & I are tigers 🐯🐯🐯 & you’re going to hear us ROOOAAAARRRR..... 🐯🐯🐯🐯
Facing cancer is one thing. Facing people for the first time is a whole other thing.
My little sisters engagement was last night, i was a little anxious.
Please don't feel sorry for me, i can see it in your eyes, i can hear it in your voice and i hate that ive made you sad.
This is just my journey, it is what it is and i will do what i gotta do.
I'm still the same Sam. Just a little bit stronger.
Congratulations Ash and Dean 💞
First of all I want to say thank you. The outpouring of love and support has been sobering and encouraging to say the least.
This here is my best friend. Alex Hart. He was recently diagnosed with Stage 2 Hodgkins Lymphoma and started chemo just yesterday. This news hasn't been easy, especially after just having their first child.
I wouldn't be who I am today if it wasnt for this guy, and I definitely wouldn't have ever joined crossfit. He is one of the healthiest people I know which makes this so much more serious for me. Mortality is a real thing. Alex is a part of the @hybridperformancemethod family who has been so tremendously generous in their support. It's surreal to see how fast a community can come together to help a member.
This #GoFundMe was put together to help with his medical bills, but to also help give him and his newly growing family peace of mind in this trying time.
Link is in the bio. Thank you and much love
Wow. 2 years ago today, Blaise took Ryan for his last chemo at Institut Curie in Paris. On one hand, it feels like it never actually happened. On the other hand, being a patient was never Ryan’s number one priority. 😎
Monday. 5.30am start. Pick up hubby from the airport then its an anxious wait.
I had planned to call for my results at 3pm..but i picked up the phone at 10am - reception said they are in.
Dr sat me down and said she has called but they arent ready yet..she will follow up herself at 2pm and call me either way.
1pm my phone rings mid massage 'your results are in, Dr would like to see you now'.
I ask my masseuse to stop and walk down.. there are 3 people waiting for her but she has held an appointment and was waiting for me.
"Not great news. Your results have come back as hodgkins lymphoma". 😭😭
Next steps..you'll be assigned a cancer care doctor who will call you this afternoon and see you within the week.
I was given details of my Dr within 3 hours with an appointment the next day.
I’ve been dragging my feet for the last few days. More often than not I feel like I’ve been forcing myself to go through the motions so I can start creating better, healthier habits. Recovery is hard: it’s like a constant reminder of how limited I am and how much longer the journey will be. Tuning out the discouraging voice in my head is difficult (actually, it’s impossible), and my own negativity can be deafening.
That being said, there are smalls gains here and there. Little fuzzy hairs are starting to coat my scalp. My energy is creeping back up. On top of that, yesterday’s labs showed my blood counts have bounced back to normal!
I can feel myself getting stronger with every Sun A flow, every twist and lunge, and every breath. It doesn’t take much to make me sweat, and it takes even less to make muscles shake or get tired. But I’ll take a small win this morning for a short flow filled with twisting and chair pose. My spine and back have been thanking me today 🙏🏻 We have a guest this week, which forced me to practice on our outside terrace – 22 floors up on a cloudy morning is the perfect way to start the day 😍🌆 (PS sorry for the leftover flash tattoos from this weekend... the unicorns and rainbows won’t come off! 🌈🦄)
The next 3 days were nothing short of torture
I get a phone call at 3 Friday. Its my first doctor.
He is asking me if i managed to get all my tests done...he has gone over my results so far and stressed the seriousness of what this could be... tells me where to be referred to next cuz he is on leave next week... I pack up and ditch work, mind racing...'why would he call if its nothing..'
Every morning i'd wake up, check my neck for the lump and just cry. Nothing feels real anymore.
Saturday i ask my other half if he can be home by Monday - he had been in russia for the world cup. He jumps on the next plane while i question everything ive ever done.. "maybe im being dramatic and this is just nothing- man im gana feel dumb then"
Naturally, I go home and learn all i can about tumors, becoming more sure as i read.
I was referred a core biospy and flow cytometry..marked 'urgent'.
Now im speaking a language i don't understand, calling around because the doctor didnt know where to get them done..not many people did. 'I havent seen a request for this test in 20 years...' - great.
Found it. Did it (shaking like a leaf). And now i wait...
Blood results were next. All clear! Fit as a fiddle. I had learned enough to know that all this meant was a lot of the better things were ruled out, my chances of cancer just increased.
So i cried myself to work and got on with it.
Ultrasound next day. He is really quiet. I ask what the point of this step is..what can you see? 'You have masses. Two large growths and multiple smaller masses in the area'. ... 'so there's more than one...but they still could be cysts, right?'
'They are not cysts..they are tumors. Ill put an urgent rush on the report and referral, you'll have them in half an hour'. 😥
My last chemo was on March 8th, and I lost my hair about 2-3 weeks after that. It’s about 3 months now since the day I had my husband buzz it and I’m really excited to see it coming back more! My oncologist said it was fine to resume taking women’s one-a-day vitamins and I’ve used my organix shampoo and conditioner all throughout treatment (pictured). I think it’s helped, but I don’t have anything to compare it to either. I’ve heard that Monet and Shapiro MD are good shampoos for hair growth too, but they are more expensive. The puffiness in my face (and all over) from the steroids is going down and I’ve been working out about 4 times a week for the past month. In that month I’ve lost 6 lbs! I’m still working to get my body back, but my energy levels have been better than I can remember for the past couple years! This finally feels like what I hoped being cancer free would feel like. #hodgkinslymphoma#hodgkins#hodgkinslymphomaawareness#ayacancer#ayacancerawareness#blessed#thankful
There is a Can in Cancer because we CAN beat it... #Repost @angyyyyyy19 with @get_repost
Putting the I CAN into finish cancer! This is something I will never put behind me... my first hand experience with cancer! As crazy as it sounds, I'm so thankful God gave me this battle to fight. It has humbled me in so many different ways, allowing me to empathize and relate to those going through cancer. We are all in need of support, love, and encouragement during our fights. Each survivor's story is unique. Our lives are changed forever, and this all depends on how we react to the situation. #ICAN#finishcancer#icanfinish#happysurvivalday#survivorday#hodgkinslymphoma#hodgkins#hodgkinslymphomasurvivor#hodgkinslymphomaawareness
I still have to get my port flushed every 6 weeks and so far I’ve had to request and schedule the appointments myself. You can see my bandaid in the first photo, but it hurts less and bleeds less lately! I still get nauseous at the saline push though. After chemo, I started associating plain water with being nauseous since I would sip on it to help with nausea. I’m gradually getting back into drinking plain water with a new water bottle I got after I found that fruit-infused water didn’t make me nauseous. My nurses told me these associations will pass over time. I also got my first post-chemo manicure! I’m up to 4 workout days each week on the elliptical to build my energy back up and I’m already seeing results in the first couple weeks! Scarring is improving too! And yes, sometimes I change my hair mid-day lol #hodgkins#hodgkinslymphoma#hodgkinslymphomaawareness#ayacancer#ayacancerawareness
Got what might be my last port flush today!!!! Am now waiting for the surgeon to schedule my surgery to have it removed! I'm knocking on so much wood right now, but I saw my Doctor for my one year check yesterday and we both feel good about getting it removed. I'll have another scan in 3 months but she said I don't have to wait for those results 😊👍
I also, serendipitously, was contacted by @imermanangels yesterday to get my mentor-application rolling! My cancer mentor, @mklf3014 was such a huge source of support and understanding during my darkest days. I'm so grateful that I am now in the position to pay this forward and hopefully be of some service to someone else. .
It took a year after chemo to finally feel like myself. That was really tough to come to terms with - I thought I would feel back to 100% in a week! .
Swipe to see a pic of me during my last chemo... I was so beaten down at that point and walking down the hall to the infusion center was a real battle of the wills over my every instinct screaming at me to run in the opposite direction. It's crazy to look at my pictures from that time, because my mind shielded me from how sick I really was and looked. I'm glad I took the photos I did. My nurse was laughing with me as I took these selfies today but she understood 🤣
So grateful to my family, friends, community, doctors, nurses, and all of my good fortune. I don't take any of it for granted. I think about those I met during my journey who didn't make it, or are still fighting, daily. I still have PTSD and still worry this will come back... Hence the hesitancy in making this post! I'm a Turk and my fear of the evil eye is ingrained in me! But I really want to share that even though it might take longer than you expect, eventually, you might feel stronger and happier than ever before. Things aren't perfect, and whopping disappointments are still a part of my life - but they're somewhat easier to live with knowing how loved and supported I am 💛 .
“Not just surviving, but living + thriving” — No words have ever been truer in this past year. Happy National Cancer Survivor’s Day to those who fought through a diagnosis and continue to persevere through survivorship, which is a whole different battle in itself. Exactly six years + two months today, and I still haven’t stopped fighting. 💜
Perspective. I never imagined my life to take the path that it did but living out my wildest dreams has been nothing short of an adventure. Who would've thought?! 1/25/12 💜
[Post shared from 2013]
“My fight is one year old today! Loretta is what Matt named the bump on my neck since it took over two months for the doctors to give it a real name. Being “diagnosed” with anything is ugly, and being any sorts of associated with the C word is just cruel but when those two words are stuck after your name, every bit of normalcy falls from beneath you. I could never admit that I’m some sort of happy that this all happened to me but I do certainly appreciate and love life more than any twenty-some year old ever could so I guess I can be grateful! I want to be a Jill of all Trades, go to school and master every field possible, have every important set of initials after my name and every strong title listed before it. There are endless goals and new roads that all this has brought about for me and without this last year, I would never feel as challenged and willing to chase these dreams!”
Happy, happy day to the friends that I get to celebrate days like today with! To the friends who understand the courage, strength, humility and humor it takes to be sent through this journey. It's been all the more fun because of y'all! 💜 #worldcancerday