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A busy couple of days sorting Amara's bedroom ready to redecorate ,so tomorrow while my hubby dose the decorating im starting a new project a friend has asked me to make ๐Ÿ˜Š#yarn #crochetblanket #crochetponcho #crochetscarf #crochet #crochetgifts #fragilexsyndrome #autismawareness
#Repost @sweetnectarsociety with @get_repost
ใƒปใƒปใƒป
Meet Jason!
Jason is a happy, rambunctious boy. He is non-verbal, uses the PEC system or minimal words to communicate. He struggles in large groups but is so loving. He is making strides in school and is meeting goals that were set out for him. He is a great big brother to his baby sister and loves his mom and dad.

Join Sweet Nectar Society in sending Jason some positive vibes! #photographywithapurpose #livesweetloveall #canon #fragilexsyndrome #autism @sweetnectarsociety 
Photography donated by Brittany Wilbur Photography
#Repost  @sweetnectarsociety with @get_repost ใƒปใƒปใƒป Meet Jason! Jason is a happy, rambunctious boy. He is non-verbal, uses the PEC system or minimal words to communicate. He struggles in large groups but is so loving. He is making strides in school and is meeting goals that were set out for him. He is a great big brother to his baby sister and loves his mom and dad. Join Sweet Nectar Society in sending Jason some positive vibes! #photographywithapurpose  #livesweetloveall  #canon  #fragilexsyndrome  #autism  @sweetnectarsociety Photography donated by Brittany Wilbur Photography
"I'd Rather Burn Than Freeze" round 1.
Written by my Uncle Mike (Michael Bachstein), 1/13/83. Mike had cerebral palsy well before developmental disabilities were as accepted as they are today. His beautiful sister (my Mommy ๐Ÿ˜Š) made sure to teach her children why using the word "retarded" is not fucking cool, ever, introducing us to the power of certain words and ideas and our own responsibilities when choosing those words. 
I grew up and had a son with Fragile X Syndrome, forever thankful for that lesson (and wishing I'd fully taken her advice). Mike died young and tragic. I have boxes of his words and feelings. 
#michaelbachsteinspoetry #poetry #cerebralpalsy #fragilexsyndrome #specialneeds #poem 
#songwriter #ibanez #artcore #guitar
"I'd Rather Burn Than Freeze" round 1. Written by my Uncle Mike (Michael Bachstein), 1/13/83. Mike had cerebral palsy well before developmental disabilities were as accepted as they are today. His beautiful sister (my Mommy ๐Ÿ˜Š) made sure to teach her children why using the word "retarded" is not fucking cool, ever, introducing us to the power of certain words and ideas and our own responsibilities when choosing those words. I grew up and had a son with Fragile X Syndrome, forever thankful for that lesson (and wishing I'd fully taken her advice). Mike died young and tragic. I have boxes of his words and feelings. #michaelbachsteinspoetry  #poetry  #cerebralpalsy  #fragilexsyndrome  #specialneeds  #poem  #songwriter  #ibanez  #artcore  #guitar 
Ugh Monday... you come around way too quick โšก๏ธ๐Ÿ˜ญ#mewaybackwhen #mustacheman #damnyoumonday #cash_man_x #fragilextraordinary #fragilexsyndrome
These are only a few highlights of being in #korea and working with the #specialolympicskorea  and #specialmusicandartfestival, but it was an AMAZING week and experience indeed! It (as always) was a true honor to represent #unitedbymusicnorthamerica along with Amanda Gresham, artistic Director and producer of UBMNA. Anytime that I get an opportunity to encourage and inspire people like me, those with โ€œ #intellectualdisabilties โ€œ or as I like to call us... #superheroes to aim higher, push farther, and to show the world how much better it is when we are all included and celebrated...in all in!! It was an amazing week, and I wear the titles #ambassador and #mentor proudly. โ€œTogether we can, Together we playโ€ ๐Ÿ’ช๐Ÿฝ #aspergers #specialolympics #pyeongchang #tourlife #singer #musicphotography #authenticliving #autism #autismawareness #fragilexsyndrome #FASD #autismspectrumdisorder #downsyndrome
These are only a few highlights of being in #korea  and working with the #specialolympicskorea  and #specialmusicandartfestival , but it was an AMAZING week and experience indeed! It (as always) was a true honor to represent #unitedbymusicnorthamerica  along with Amanda Gresham, artistic Director and producer of UBMNA. Anytime that I get an opportunity to encourage and inspire people like me, those with โ€œ #intellectualdisabilties  โ€œ or as I like to call us... #superheroes  to aim higher, push farther, and to show the world how much better it is when we are all included and celebrated...in all in!! It was an amazing week, and I wear the titles #ambassador  and #mentor  proudly. โ€œTogether we can, Together we playโ€ ๐Ÿ’ช๐Ÿฝ #aspergers  #specialolympics  #pyeongchang  #tourlife  #singer  #musicphotography  #authenticliving  #autism  #autismawareness  #fragilexsyndrome  #FASD  #autismspectrumdisorder  #downsyndrome 
Estรกs son algunas de las actividades que realiza nuestra Corporaciรณn y que se financian con lo recaudado en la cena anual, que es nuestra principal fuente de financiamiento. La Corporaciรณn #Xfragil la hacemos todos, para conseguir una mejor calidad de vida para quienes la padecen y sus familias, abriendo espacios para la inclusiรณn de la discapacidad. 
10 de septiembre en Casapiedra, cena anual a beneficio, 19:30 H.
#xfragil #fragilex #fragilexsyndrome #inclusion #corporaciรณn #discapacidad #septiembre
Estรกs son algunas de las actividades que realiza nuestra Corporaciรณn y que se financian con lo recaudado en la cena anual, que es nuestra principal fuente de financiamiento. La Corporaciรณn #Xfragil  la hacemos todos, para conseguir una mejor calidad de vida para quienes la padecen y sus familias, abriendo espacios para la inclusiรณn de la discapacidad. 10 de septiembre en Casapiedra, cena anual a beneficio, 19:30 H. #xfragil  #fragilex  #fragilexsyndrome  #inclusion  #corporaciรณn  #discapacidad  #septiembre 
Love how this has come out ,started this while away &just finished it ๐Ÿ˜#yarn #crochetshawl #crochetroadtripscarf #crochet #crochetgifts #autismawareness #fragilexsyndrome
Harley Loved top golf and was soooo calm and well behaved.. After this video he ran round with his hands in the air celebrating winning.. ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ ๐Ÿ’—๐Ÿ’—๐Ÿ’—๐Ÿ’—๐Ÿ’—๐Ÿ’—๐Ÿ’—๐Ÿ’— #FirstTime #TopGolf #Pro #NotQuite #Happy #Chap #Lad #MyBoy #GettingThere #Progress #InvisibleDisability #FragileX #FragileXSyndrome #FragileXAwareness #Love #Mwah xx
Cant leave my hubby for a few minutes and he's up to mischief  sitting on a Victorian toilet ๐Ÿ˜‚ ,we are back home from a lovely few days away ,lots of gorgeous sunshine and lots of memories made ๐Ÿ˜ #yarn #crochetblanket #crochet #crichetgifts #autismawareness #fragilexsyndrome
Proud Dad โœ–๏ธ
This photo really made my heart burst... Luke is such an incredible Dad ๐Ÿ’™ Those that know him, will know his passion and love for football is next level... Iโ€™m so grateful that the Coolbinia Football Club have the Starkick program so Luke and Ethan can still have their footy moments together. Such a proud Dad seeing how far Ethan has come this year! ๐Ÿ’› Maria
Proud Dad โœ–๏ธ This photo really made my heart burst... Luke is such an incredible Dad ๐Ÿ’™ Those that know him, will know his passion and love for football is next level... Iโ€™m so grateful that the Coolbinia Football Club have the Starkick program so Luke and Ethan can still have their footy moments together. Such a proud Dad seeing how far Ethan has come this year! ๐Ÿ’› Maria
Trent did a thing tonight.
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Trent deadlifted 120kg.
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Trent did not wait for me to cue him.
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Trent just lifted.
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My reaction says it all ๐Ÿ˜‚
Trent did a thing tonight. . Trent deadlifted 120kg. . Trent did not wait for me to cue him. . Trent just lifted. . My reaction says it all ๐Ÿ˜‚
Today my son Elias was diagnosed with ASD (Autism Spectrum Disorder) and a general cognitive delay. This is in addition to his Fragile X Syndrome. I am glad we did the evaluation and that he will be getting the correct services to help him succeed. I also feel emotional knowing my boy has more obstacles to face in life. It is overwhelming keeping track of and going to each appointment, therapy, and school. But if that is what it takes to get Elias everything he needs then I will make sure it gets done. It is not easy raising a child period. Raising Elias as a single parent has its challenges but we always find our way through. 
I just want to take the time to share that no matter what happens I will always put Elias first. I will always make sure he is taken care of. I refuse to let him be left behind or treated as if he cannot do something. Being a mother is what gives me the strength to get through the day. As much as I get frustrated, tired, or feel helpless I know once I look at my son I will know what is important. 
It is important for me to take care of myself so I am here to give Elias all he needs, NOBODY will ever love him like his momma does and I must love myself to be the best mom Elias needs and deserves. Thank you Elias Alexander for being my motivation, my inspiration, and my best friend. Momma loves you xo
Today my son Elias was diagnosed with ASD (Autism Spectrum Disorder) and a general cognitive delay. This is in addition to his Fragile X Syndrome. I am glad we did the evaluation and that he will be getting the correct services to help him succeed. I also feel emotional knowing my boy has more obstacles to face in life. It is overwhelming keeping track of and going to each appointment, therapy, and school. But if that is what it takes to get Elias everything he needs then I will make sure it gets done. It is not easy raising a child period. Raising Elias as a single parent has its challenges but we always find our way through. I just want to take the time to share that no matter what happens I will always put Elias first. I will always make sure he is taken care of. I refuse to let him be left behind or treated as if he cannot do something. Being a mother is what gives me the strength to get through the day. As much as I get frustrated, tired, or feel helpless I know once I look at my son I will know what is important. It is important for me to take care of myself so I am here to give Elias all he needs, NOBODY will ever love him like his momma does and I must love myself to be the best mom Elias needs and deserves. Thank you Elias Alexander for being my motivation, my inspiration, and my best friend. Momma loves you xo
Starkick Footyโœ–๏ธ
Last night Ethan and his Starkick teammates had some @freodockers players come to training and do some skills training with them... it was a great opportunity for all the kids to get involved and have some fun! Great work Coolbinia Footy Club ๐Ÿ’› Maria
Starkick Footyโœ–๏ธ Last night Ethan and his Starkick teammates had some @freodockers players come to training and do some skills training with them... it was a great opportunity for all the kids to get involved and have some fun! Great work Coolbinia Footy Club ๐Ÿ’› Maria
Thatโ€™s how we roll!! Today we spent our afternoon playing a game of kickball. Congrats to the red team on their win, but at WMM weโ€™re all winners ๐Ÿ†๐Ÿฅ‡.
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#ballsohard #kickball #kickballers #whatmattersmost #wmm #concord #nc #cabarruscounty #dayprogram #autism #autismspeaks #autismawareness #family #downsyndrome #downsyndromeawareness #love #fragilexsyndrome
So proud of my #fragilex son... just amazing....8 years holding down a job .... thank you #homebase #fragilexuk #fragilexsociety #fragilexsyndrome #fragilextraordinary
The #Fruitful trainees work so hard making the juice and selling it at events so it's a real proud moment when they get back to PiP HQ and count up the how much money they have raised ๐Ÿ‰๐Ÿคฉ๐Ÿ
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#Proud #Charity #HelpUsGrow #VocationalSkills #LifeSkills #GoodForYouGoodForMe #FragileXSyndrome #SocialEnterprise
If #mom sits down, you know she wonโ€™t be alone for long. #bohdan was too quick for B ๐Ÿ˜œ #Abraham #Aurelia #fragilex #fragilexsyndrome #autism
Beautiful gardens at Gunby Hall ๐Ÿ˜
Such a beautiful peaceful place๐Ÿ˜
#yarn
#crochetblanket #crochet #crochetgifts #crochetblankets #fragilexsyndrome #autismawareness
Beautiful Gunby Hall ๐Ÿ˜ 
Enjoying some family time for Amara and hubbys birthdays #yarn #handmade #crochet #crochetblanket #crochetshawl #crochetgifts #fragilexsyndrome #specailneeds #autismawareness
โ€œYou are not a drop in the ocean, you are the entire ocean in a dropโ€ - Rumi 
Meet my inspiration behind the brand KIRANA. My little man Mr. Ocean ! ๐ŸŒŠ Thank you for all the love and support for Oceanโ€™s therapy and equipment.
โ€œYou are not a drop in the ocean, you are the entire ocean in a dropโ€ - Rumi Meet my inspiration behind the brand KIRANA. My little man Mr. Ocean ! ๐ŸŒŠ Thank you for all the love and support for Oceanโ€™s therapy and equipment.
This is the face of a young man who just saw his favorite player, @arizz_44 , take the field to bat.
This is the face of a young man who loves his @cubs and got to see all of his favorite players on the field today... Rizzo, @jlester34 @javy23baez , @benzobrist18 @albertalmorajr , @jheylove22 , @kschwarb12 , Edwards, @addison_russell , LaStella, @willsoncontreras40 , @ihapp_1 ..at Wrigley field. 
This is the face of pure happiness.
Today wasn't the Win that we had hoped for but it was am amazing day at Wrigley that we all were able to be a part of.
We saw him stand and cheer, we saw the excitement as Baez & Zobrist hit their homeruns, we saw the sadness when "his babies failed him".
It was #EverybodyIn for Parker and the Cubs today, just as we do our best for it to be everyday. 
This is the face of a happy young man, surrounded by all his family... his sister, his step-sisters, his best friend, his dad, his step-mom, mom's boyfriend and...his mom for his 1st Cubs game.
Most of all, this is the face of a young man who is loved more than the world by the people in his life who were honored to be a part of his big day! His first, but not last, Cubs game.
No matter the score, today we all won. โค
#Wrigley #ChicagoCubs #Rizzo #EverybodyIn #Family #FragileX #FragileXSyndrome #FXS #FX #GoCubsGo #WrigleyField #9Tickets #Happy  #GoCubsGo
This is the face of a young man who just saw his favorite player, @arizz_44 , take the field to bat. This is the face of a young man who loves his @cubs and got to see all of his favorite players on the field today... Rizzo, @jlester34 @javy23baez , @benzobrist18 @albertalmorajr , @jheylove22 , @kschwarb12 , Edwards, @addison_russell , LaStella, @willsoncontreras40 , @ihapp_1 ..at Wrigley field. This is the face of pure happiness. Today wasn't the Win that we had hoped for but it was am amazing day at Wrigley that we all were able to be a part of. We saw him stand and cheer, we saw the excitement as Baez & Zobrist hit their homeruns, we saw the sadness when "his babies failed him". It was #EverybodyIn  for Parker and the Cubs today, just as we do our best for it to be everyday. This is the face of a happy young man, surrounded by all his family... his sister, his step-sisters, his best friend, his dad, his step-mom, mom's boyfriend and...his mom for his 1st Cubs game. Most of all, this is the face of a young man who is loved more than the world by the people in his life who were honored to be a part of his big day! His first, but not last, Cubs game. No matter the score, today we all won. โค #Wrigley  #ChicagoCubs  #Rizzo  #EverybodyIn  #Family  #FragileX  #FragileXSyndrome  #FXS  #FX  #GoCubsGo  #WrigleyField  #9Tickets  #Happy  #GoCubsGo 
There are over 7,000 rare diseases. 1/10 people is affected by a rare disease. As carriers, even though our respective diseases are different, we must join forces and empower one another to spread awareness of the issues we all face. When we come together, rare is powerful ๐Ÿ’™ [photo on the left is from September 2017, photo on the right is from July 2018] ~
#RareIs #HorizonPharma #RareDisease #Adrenoleukodystrophy #DucheneMuscularDystrophy #KennedysDisease #AlportSyndrome #FragileXSyndrome #NotJustCarriers
There are over 7,000 rare diseases. 1/10 people is affected by a rare disease. As carriers, even though our respective diseases are different, we must join forces and empower one another to spread awareness of the issues we all face. When we come together, rare is powerful ๐Ÿ’™ [photo on the left is from September 2017, photo on the right is from July 2018] ~ #RareIs  #HorizonPharma  #RareDisease  #Adrenoleukodystrophy  #DucheneMuscularDystrophy  #KennedysDisease  #AlportSyndrome  #FragileXSyndrome  #NotJustCarriers 
Dear @arizz_44 
Later today, I will be bringing my incredibly amazing 19 year old son, Parker,  to watch you and your awesome teammates play. While Parker is 19 by age, because of having Fragile X Syndrome (an intellectual disability) it's more like having a 6 foot five year old. 
While he faces many challenges in life, the one thing that brings him the most happiness is the @cubs , he knows and loves every player but you are his favorite!
We will be in section 27, row 11, seats 1-9, it was the closest we could get him to you. He's too old for the kids autograph area but we will be watching for you to look our way to tell him you know he's there. 
This is going to be a tremendous challenge with his anxiety and sensory needs but I believe his love for the Cubs, you and being surrounded by family that he can do this! 
If you could... he would really love  to see you hit a home run ๐Ÿ˜ and "Spank those Padres!"
See you soon,
Parker's mom 
#ChicagoCubs #Rizzo #EverybodyIn #Family #FragileX #FragileXSyndrome #FXS #FX  #GoCubsGo #Wrigley
Dear @arizz_44 Later today, I will be bringing my incredibly amazing 19 year old son, Parker, to watch you and your awesome teammates play. While Parker is 19 by age, because of having Fragile X Syndrome (an intellectual disability) it's more like having a 6 foot five year old. While he faces many challenges in life, the one thing that brings him the most happiness is the @cubs , he knows and loves every player but you are his favorite! We will be in section 27, row 11, seats 1-9, it was the closest we could get him to you. He's too old for the kids autograph area but we will be watching for you to look our way to tell him you know he's there. This is going to be a tremendous challenge with his anxiety and sensory needs but I believe his love for the Cubs, you and being surrounded by family that he can do this! If you could... he would really love to see you hit a home run ๐Ÿ˜ and "Spank those Padres!" See you soon, Parker's mom #ChicagoCubs  #Rizzo  #EverybodyIn  #Family  #FragileX  #FragileXSyndrome  #FXS  #FX  #GoCubsGo  #Wrigley 
This sweet boy. The view from his bed that he fell asleep to at Hotel Zachary, looking right down the first base line where later today he will be just 10 rows back from his most favorite Cubs player, @arizz_44 ! (He loves every single player but Rizzo the most!)
This trip has been months in the planning and I still cannot believe we are here!
When it comes to Parker, it's Everybody In,  just like with the Cubs โค Parker will be surrounded by his entire family... Me, Allison , Dan, Scott , Jennifer , Abby, Grace and of course,  Rylee for this super special day!
While we have been preparing him for a long time, extra well wishes, fingers crossed and prayers are always appreciated.  You never know what Fragile X will bring... We all know he is ready!
Prepare for an overload of pictures! Look for the 9 of us in the stands, by the 1st base line, 10 rows up! Cubs vs Padres at 1:20 CST
#Chicago #ChicagoCubs #Rizzo #EverybodyIn #FragileX #FragileXSyndrome #FXS #FX #Family #GoCubsGo #Wrigley #WrigleyField
This sweet boy. The view from his bed that he fell asleep to at Hotel Zachary, looking right down the first base line where later today he will be just 10 rows back from his most favorite Cubs player, @arizz_44 ! (He loves every single player but Rizzo the most!) This trip has been months in the planning and I still cannot believe we are here! When it comes to Parker, it's Everybody In, just like with the Cubs โค Parker will be surrounded by his entire family... Me, Allison , Dan, Scott , Jennifer , Abby, Grace and of course, Rylee for this super special day! While we have been preparing him for a long time, extra well wishes, fingers crossed and prayers are always appreciated. You never know what Fragile X will bring... We all know he is ready! Prepare for an overload of pictures! Look for the 9 of us in the stands, by the 1st base line, 10 rows up! Cubs vs Padres at 1:20 CST #Chicago  #ChicagoCubs  #Rizzo  #EverybodyIn  #FragileX  #FragileXSyndrome  #FXS  #FX  #Family  #GoCubsGo  #Wrigley  #WrigleyField 
Gracias a nuestro amigo @paulofloresgol por esta invitaciรณn a sumarse a la cena anual a beneficio de las personas con sรญndrome #XFragil y sus familias. Tu apoyo nos permite seguir trabajando para mejorar su calidad de vida y avanzar en una sociedad mรกs inclusiva. Este 10 de septiembre en casa piedra mรกs info www.xfragil.cl #fragilex #pauloflores #fragilexsyndrome #xfragil #inclusion #discapacidad
Gracias a nuestro amigo @paulofloresgol por esta invitaciรณn a sumarse a la cena anual a beneficio de las personas con sรญndrome #XFragil  y sus familias. Tu apoyo nos permite seguir trabajando para mejorar su calidad de vida y avanzar en una sociedad mรกs inclusiva. Este 10 de septiembre en casa piedra mรกs info www.xfragil.cl #fragilex  #pauloflores  #fragilexsyndrome  #xfragil  #inclusion  #discapacidad 
@_mrs_marriott_ had a lovely lunch with my lovely niece and Amara ,cuddled up on the sofa now enjoying a treat ,strawberry ice cream & cadbury flake ๐Ÿ˜#yarn #crochet #crochetgifts  #crochetblanket #crochetblanket #fragilexsyndrome #autismawareness
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œeveryone can paint, itโ€™s the truth, I donโ€™t understand people that say they canโ€™t. You are human, you think, you feel, you explore and experience...you can paint!! ...you may not like the outcome, itโ€™s definitely messy and if youโ€™re anything like me you will always want to change things! #welcometolife ...Looking at things with a new perspective, and learning to open your mind, thatโ€™s the shit that matters. Kids of course are the best at this, they donโ€™t even know how good they are. They donโ€™t worry, or plan or procrastinate-in truth no shits are given so long as itโ€™s fun!! So we should all be embracing our #innerchild and just go get happy!!๐Ÿ˜ ...loving life with this absolute little dude ๐Ÿ’œ๐Ÿ’œ #ziggypaints #painting #creative #acyrlicpainting #abstractart #expressyourself #explore #summerfun #paintingforall #lovetolearn #goodvibesonly #artforthesoul #artistsoninstagram #kidsart #arty #colour #arttherapy #minime #lovethiskid #painteveryday #fragilexsyndrome #autismawareness #messyisbest #createchaos #happiness #peaceandlove #justlove ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œeveryone can paint, itโ€™s the truth, I donโ€™t understand people that say they canโ€™t. You are human, you think, you feel, you explore and experience...you can paint!! ...you may not like the outcome, itโ€™s definitely messy and if youโ€™re anything like me you will always want to change things! #welcometolife  ...Looking at things with a new perspective, and learning to open your mind, thatโ€™s the shit that matters. Kids of course are the best at this, they donโ€™t even know how good they are. They donโ€™t worry, or plan or procrastinate-in truth no shits are given so long as itโ€™s fun!! So we should all be embracing our #innerchild  and just go get happy!!๐Ÿ˜ ...loving life with this absolute little dude ๐Ÿ’œ๐Ÿ’œ #ziggypaints  #painting  #creative  #acyrlicpainting  #abstractart  #expressyourself  #explore  #summerfun  #paintingforall  #lovetolearn  #goodvibesonly  #artforthesoul  #artistsoninstagram  #kidsart  #arty  #colour  #arttherapy  #minime  #lovethiskid  #painteveryday  #fragilexsyndrome  #autismawareness  #messyisbest  #createchaos  #happiness  #peaceandlove  #justlove  ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ
Haven't read a book for a while ,so tonight i have my music on and a good book ,#yarn #crochet #crochetblanket #crochethats #crochetgifts #fragilexsyndrome #autismawareness
Itโ€™s haircut ๐Ÿ’‡โ€โ™‚๏ธ time!! It still amazes me how far this boy has come when it comes to overcoming sensory overload. Putting noisy clippers close to your head can be scary for any child but typically developing kiddos are able to get past the fear pretty quickly.

Audric wasnโ€™t really able to handle this until a couple years ago. Before then it was a two man job...Pete did the clippers and I held him down through the tears and tantrum! We honestly felt he would never get past it but here we are in a salon where he handles everything appropriately!!๐Ÿ™๐Ÿ™Œโค๏ธ It helps that he likes to look his best too ๐Ÿ˜‰๐Ÿ˜Š #haircut #fadehaircut #sensoryoverload #sensoryprocessingdisorder #fragilex #fragilexsyndrome #fragilexawareness #wecelebrateeverything #hope #believe #faith #nevergiveup #anythingispossible
Itโ€™s haircut ๐Ÿ’‡โ€โ™‚๏ธ time!! It still amazes me how far this boy has come when it comes to overcoming sensory overload. Putting noisy clippers close to your head can be scary for any child but typically developing kiddos are able to get past the fear pretty quickly. Audric wasnโ€™t really able to handle this until a couple years ago. Before then it was a two man job...Pete did the clippers and I held him down through the tears and tantrum! We honestly felt he would never get past it but here we are in a salon where he handles everything appropriately!!๐Ÿ™๐Ÿ™Œโค๏ธ It helps that he likes to look his best too ๐Ÿ˜‰๐Ÿ˜Š #haircut  #fadehaircut  #sensoryoverload  #sensoryprocessingdisorder  #fragilex  #fragilexsyndrome  #fragilexawareness  #wecelebrateeverything  #hope  #believe  #faith  #nevergiveup  #anythingispossible 
AXEL our Super Pup โœ–๏ธ
The boys and I are thrilled to introduce you all to our Super Pup AXEL... he will be part of the upcoming @guidedogswa Pup Art Exhibition to celebrate National Dog Day. 
The launch of the exhibition will be taking place at the upcoming Perth Art Market @perthupmarket at UWA on Saturday 25th August. 
When I was first asked to take part the first thing that came to mind was turning him into a Super Hero following the amazing work of the Buddy Dog for Kids Program. His name means something pretty special too ๐Ÿ’›
A - Awareness
X - Fragile X
E - Ethan
L - Logan
It was a huge honour to be asked to take part and I look forward to seeing him showcased along with all the other amazing Pups. ๐Ÿ’› Maria
AXEL our Super Pup โœ–๏ธ The boys and I are thrilled to introduce you all to our Super Pup AXEL... he will be part of the upcoming @guidedogswa Pup Art Exhibition to celebrate National Dog Day. The launch of the exhibition will be taking place at the upcoming Perth Art Market @perthupmarket at UWA on Saturday 25th August. When I was first asked to take part the first thing that came to mind was turning him into a Super Hero following the amazing work of the Buddy Dog for Kids Program. His name means something pretty special too ๐Ÿ’› A - Awareness X - Fragile X E - Ethan L - Logan It was a huge honour to be asked to take part and I look forward to seeing him showcased along with all the other amazing Pups. ๐Ÿ’› Maria
Making sensory bottles โœจ๐ŸŒ€
Making sensory bottles โœจ๐ŸŒ€
A day well spent at Tiger World ๐Ÿซ๐Ÿฆ๐Ÿ…๐Ÿ’๐Ÿ๐Ÿฆ’๐Ÿฆƒ๐Ÿ“
A day well spent at Tiger World ๐Ÿซ๐Ÿฆ๐Ÿ…๐Ÿ’๐Ÿ๐Ÿฆ’๐Ÿฆƒ๐Ÿ“
Fun in the sun โ˜€๏ธ
Fun in the sun โ˜€๏ธ
We are very thankful Not Just Franks allowed us to come in and learn how to make pretzels. Our guys and girls really enjoyed this tasty snack ๐Ÿฅจ๐Ÿฅจ๐Ÿฅจ
We are very thankful Not Just Franks allowed us to come in and learn how to make pretzels. Our guys and girls really enjoyed this tasty snack ๐Ÿฅจ๐Ÿฅจ๐Ÿฅจ
Nothing like a good game of bowling ๐ŸŽณ
Nothing like a good game of bowling ๐ŸŽณ
Extended School Year is over.  First day of the second half of summer! #fragilexsyndrome #notv yet ๐Ÿ˜†
Extended School Year is over. First day of the second half of summer! #fragilexsyndrome  #notv  yet ๐Ÿ˜†
Last day of school ๐Ÿ™Œ๐Ÿฝ๐Ÿ™Œ๐Ÿฝ#giriusowen #crosbyjohn #fragilex #fragilexsyndrome #fragilextraordinary
The great paradox of parenting is that it moves in both slow motion and fast speed @jamiederrickson ๐Ÿ™ˆ๐Ÿ™Š๐Ÿ™‰ #notsolittleanymore #fragilex #fragilexsyndrome #fragilextraordinary
Crosby!!!๐Ÿ˜๐Ÿ˜ #fragilex #fragilexsyndrome #fragilextraordinary
It was an experience and pleasure to be apart of Fragile X Advocacy Day in Capitol Hill! ๐Ÿ’š๐Ÿ’š #fragilex #fragilexsyndrome #fragilextraordinary