Originally posted by @zulufucxs
As we are kicking back at the bunker, today's topic amongst the ZF crew is westerns...so what's your all time favorite?
Yes, that's Medal of Honor and skullfucker extraordinaire Audie Murphy in Gunsmoke (1953)
Have you ever heard of Niemann-Pick Type C Disease? I hadn't until earlier this year when our friends little boy, Tommy, was diagnosed.
Niemann-Pick Disease is a rare, genetic condition that is unfortunately terminal. It is also known as childhood Alzheimers.
My sister is raffling a Thermomix with all profits going directly to Niemann-Pick Type C Disease Foundation Inc to fund more research into this little known disease and maybe one day find a cure.
All details are on the final picture if you would like to purchase or join the Facebook page https://www.facebook.com/Thermomix-Raffle-for-Australian-Niemann-Pick-Type-C-Disease-foundation-Inc-2309853742419827/?ti=as for more information.
Day 768 for #20tocrushcancer , in support of those who are battling #cancer (in any form), or who have survived it. This one hits close to home for me, as some of the people in my life deal with both the daily challenges and the medical procedures in order to get through their day. Helping to raise #awareness is one way to show that I'm looking out for you.
Take time to let those people in your life who deal with the challenges and treatments of this illness know that they are loved and appreciated. It could make all the difference in their day, and help give them the courage to work through their challenges. #letscheckonafriend
If you are seeing this post, know that you are a awesome and amazing person. And yes, you matter to me.
The world famous @City2Surf Sydney is back in 2019! General entries aren’t open yet, but you can register your interest in joining our team today. Our NBCF Charity Superstars will receive free entry, an NBCF singlet and a start time ahead of the pack. Spots are limited so don’t delay! Register using the link in our bio #ZeroBy2030#City2Surf
We need to find a cure for Sickle cell, Beta Thalassemia and other blood disorders. Glad to be working with Australian Sickle Cell Association to advocate for a cure.
Check out founder Agnes Nsofwa's OZ African TV interview 2nd week of Jan on community Tv Aurora channel 173 on Foxtel and Free to air on Channel 31.
💜 Exactly 1 year ago today, December 11th, Roman had his first seizure. It came unexpected and out of nowhere. He was 2 weeks in to having a mild case of chicken pox, no fever and barely any spots. He was smiling and playing one second, and the next second he was convulsing, not breathing... I had seen 1 seizure before in my life. Roman's dad had a seizure the year before, and it was traumatizing for me.. but we had no idea what was to come... we spent most of December in the hospital with Roman. Doing MRIs, spinal taps, blood tests, EEGs. I was going through the motions and not even understanding what was happening to my little boy. We got home Christmas Eve, and we were back in the hospital by his 3rd birthday on the 30th. His seizures were progressing quickly, going from having only Tonic Clonics, to having Myoclonic jerks everytime he tried eating or drinking. The medications weren't working and were making him very drowsy and aggressive. He became very unbalanced, his eyes started to lose their sparkle.. I think that has been the hardest for me. To look into his eyes and see someone else there. A veil covering his radiance, and taking my happy, goofy little monkey away from me... as the seizures continued to progress, Roman began having absence seizures, impaired awareness, and an increase of Myoclonic jerks, to the point where he couldn't fall asleep because he would constantly wake up from jerking. This went on for months, and in April he had his first Atonic drop seizure, which confirmed the diagnosis of Doose syndrome. At this point, with the medications not working, I was desperate to find another solution. I had been researching CBD oil since his first seizure, but I was scared to try something that wasn't prescribed by a doctor. I took my chances though and went with my gut feeling, and I started giving Roman CBD oil in May. Literally that SAME day, his MCs before falling asleep stopped. Within 2 months we gained daytime seizure freedom (aside from small twitches when he is sick). He went from having all of these different types of seizures to having pretty much zero, in just a matter of months. (Continued in comments)
Thanks for the tour around the lab & explaining so much more what goes into the research. We are so pleased we can help you with donating the money that will help in so many ways. #willsway#braintumours#findacure
I am so excited to announce my joining of Melon Mafia!! Love Your Melon is an amazing company that donates 50% of their sales price to pediatric cancer research!! Many of you know, I lost my best friend, Sami, last year due to her battle with cancer. Sami LOVED Love Your Melon and through her love I found mine. Let's get into the giving spirit and buy a beautiful product and help us find a cure to pediatric cancer!! 🗣🗣🗣 Use my code: @tollsamantha
Ted words can't express how much I love and miss you. I know ur resting well and at peace. So I promise today I'm not going to cry anymore I know u hate to see me cry. I'm screaming all the way to heaven Happy 45th Birthday to my one and only Brother.. Tell Ma to stop embarrassing u by telling the to play electric slide😂😂 Continue to S.I.P Ted #tstrong#fukcancer#ihatecancer#cancersucks#findacure
Spent a night in hospital 2 nights ago after having an allergic reaction to Keflex antibiotic, which is strange because I thought I’d had it previously & been fine 🤔
Still recovering from the reaction & a respiratory infection - which the antibiotics were prescribed for 🤦🏽♀️ - puffy face & extra red cheeks ☺️
Now on doxycycline & regular pain relief which is helping.
Today’s goal = finally set up my Christmas Tree 🎄 which has been put off since the 1st due to illness & other commitments. I was so keen to get into the Christmas spirit this year but feel like the month is just getting away from me & I’m going to miss my chance. Sick of feeling out of control & like I’m constantly missing out
We lost a really good one this week. 💜 Ron Grant gave me my first shot ever at performing in New York City at The Village Underground. I arrived too late to sign up for the jam session that night but stuck around just to soak in the vibe. Three songs in Ron randomly pulled me on stage from the audience to sing MJ’s Off The Wall... and to think I was just going to leave that night. I will never forget the way he made me feel and believe every time I had the pleasure of hearing him sing. He will forever remain a giant in the New York Scene for me and will be greatly missed. Rest In Power Sir. 💎 #Legend#VillageUnderground#RIP#RonGrant#FCancer#FindACure
5 years have gone by and not a day has passed without thinking of you, my angel. ✨✨👼🏻 You fought so hard and despite how difficult things got, you always got through it with a smile on your face and with the most amazing attitude. You marched to the beat of your own drum, and taught me to live life bold and vivaciously. You taught me the meaning of true friendship. You radiated with love and light, and everyone who met you or ever had even just one single conversation with you knew just how magical you were. Being your friend was one of the most cherished things I’ve ever been. I see you in the beautiful sunsets you paint in the sky, in the skywriting up above, in the aisles of Target as I pass the Little Mermaid toys and accessories. I see you in the music I listen to, and because I know how much you love music and concerts as much as I do, I wear your bracelet to every one I go to just so you can experience it with me from up above. I know you’re up in heaven with the most elegant angel wings and the most beautiful mermaid tail. I love you so much, Meg. Until we meet again... 🦋🎗#FindACure#LifeIsWhy#CHDawareness#HeartHeroes#DonateLife#LiveLoveDonate
Steven Mata my brother is a hard working single father of 5, grandfather of his 8 month old grandson. He loves his family so much.He wants to fight and survivor. Steven has recently been diagnosed with stage 4 cancer (adenocarcinoma lung cancer) that lead up to him developing ( leptomengeal brain cancer). Due to this illness he has become disabled and unable to provide for his family. Unfortunately Steven Mata has no health insurance or finances to pay for his medical treatment. Steven is in dire need of immediate body image to see where aggressively his cancer is and spread and is in need of immediately radiation to his spine to expand his life. Total in all he needs estimated 6 chemo treatment to his body and same amount of treatment to his brain. 1 radiation to his brain and another to his spine, all of this has taken a toll on him and his children and at this moment is displaced and is residing at his mothers and stepfathers house. Please pray share and reach out to my son as we have a very long journey. Details of donations are link down to Stevens pay pal acct and his bank acct thank you and god bless you all !!https://www.paypal.me/stevenmata2018
Grace cavazos ( mother)
I am way behind posting on my website blog. For some reason, I find it daunting. I’m basically trying to practice enough to “feel out” what is happening with the settings I’m currently on. I’m gradually pushing the voltage up on one setting. I have four possible settings that I can switch between, but the other three don’t seem to work as well as my “A” setting.
Don’t worry- my doctor did put an upper limit on my remote control. I can, however, get lightheaded and experience some spasms on my left side when I have pushed the “A” setting too high. I just turned the setting back down when that happened.
That said, what caused me to experience a spasm last week, isn’t causing one this week. Apparently, there’s a threshold I might reach that is optimal. Is everything optimal now? Not just yet. I am playing, performing, teaching. I just want more perfection in my left hand! I learn more at every visit, and I’ve learned they have many possible parameters as possibilities for me.#focaldystonia#flute#deepbrainsurgery#nationalinstitutesofhealth#godoctors#mylife#flutegirl#findacure#professor#musicteacher
I was reading my delightful #birthday gift, 📖 “Crafting with Feminist” 📖 from @shedandrea and came across this quote.
It resonated with me today because it’s been a hard day, a hard week, a hard month, a hard year. I am afraid but right now I need to be brave and make hard decisions very soon.
I have to remember there’s a reason this happened to me. Who knows why I’ve been so brutal punished with this disease. But this is the hand I’m dealt...so that’s that. #cancer#gist#raredisease#sarcoma#sarcomaawareness#rarediseaseawareness#findacure#helpnikkibeatgist
It is our honor and privilege to announce Rick Dunetz as the recipient of the 2018 Sports Imports/AVCA Courage Award. The Courage Award was founded to recognize a member of the volleyball community who in the face of hardship and adversity displays great courage and determination to use their experience to better the world around them. Thank you, Rick for all of your hard work to help find a cure, and for giving kids the opportunity to make a difference with @digpink! To read about Rick and the courage award, visit www.sportsimports.com and click on “blog!” #CourageAward#DigPink#SideoutFoundation#FindACure#MakeADifference#CausesWeCareAbout#SportsImports
I changed my set this morning and I guess my pump prime didn’t work because I went about 6 hours not getting insulin. .
It took me a while to figure out why I felt so sick because my cgm & pump didn’t warn me that my bg was so high. (and my body was being polluted by toxic sugar levels) By the time I looked, my pump said it needed a calibration. I tested, saw the number and knew why I felt so sick. I grabbed a syringe and vial, stumbled into the bathroom, laid on the floor and cried. (I know it’s not a happy story but it’s my reality) I puked 3 times. Within 45 min of injecting, I started feeling better and here I am 4 hours later, feeling exhausted but so much better with normal bg.
Insulin is liquid gold. Without it, people who have T1D die. Remember that when you hear the news stories about the high cost of insulin. (it’s the 6th most expensive liquid in the world) Remember that when you vote. .
At the end of the day, I can workout, eat clean, be responsible and take care of myself but all I have are tools to manage this disease and they aren’t perfect. After my bg came down, my sensor updated for 3 hours and then it died. Since PB is out of town interviewing, I would have loved the reassurance sleeping with a cgm can bring after a day like that, but that’s not an option because the transmitter needs to charge and go through a 6 hour calibration cycle. .
That’s one afternoon with T1D. I’ve had 3,796 of those. Not all so terrible, but all living as my own pancreas, doing the math, being a control freak and managing this disease the best I can. I hate it. We need a cure for T1D.
The giving season is upon us! Please consider making a gift to The Lewin Fund this holiday season. Your contribution supports women with cancer and their loved ones. Make a donation via the link in our bio.
“There is one thing Alzheimer’s can’t take, Love 💕 “ Beautiful photo of Emily’s mother, Aunt and Grandmother. The photo was taken last weekend when Emily and her family went back to the house where her grandmother grew up in. For a brief 20 minutes Emily’s grandmother was there with them, laughing and telling stories of her childhood 💜💜 #endalz#dementia#alzheimers#findacure#alzheimersawareness#alzheimersfight
Here’s a clip from my session with @dietitiananna this past Saturday. She goblet squatted the 40-pound dumbbell for 5 (missed the first rep, whoops). We have days where this happens, and we have days where bodyweight squats are tough. #MultipleSclerosis is unpredictable in regards to our training sessions, but our overall progress continues to trend upwards. Great work, Anna!
Patti Robinson Kaufmann First Connection Program
LLS offers this program that gives patients and family members the opportunity to share experiences with someone who has "been through it," and obtain valuable information about LLS and the other resources available to support them.
Darling @jbosshart15, Bristol and Skye.
I love love love you! Thanks for carving out some time for your auntie this weekend. Slumber parties are the best!
I loved listening to you girls talk about everything under the sun..it reminded me so much of the way I used to curl up and talk to your mommies when we were your age..every single weekend through high school, college, first jobs, boyfriends, our love for our second home Jamaica, roadtrips, concerts, husbands, and then you three came out and I couldn't wait to hug and kiss you..we are family...life is really beautiful and can be very fragile at times. I love that you love me through my imperfections, and understand when I sometimes cant find the right words to say that you all hug me even tighter.. Sickle cell is a dreadful disease ...your mothers were fierce and strong and fought the disease like gladiators. MY heart and soul misses them but when I see the three of you and how close you are as cousins I know how very proud Lisa and Donna would be. They loved you so so much..#bighugs#Loveyoutoinfinityandbeyond#sicklecellanemia#findacure
From experiences to stocking stuffers and some luxury items in-between, #AlexsLemonade has the best gifts that will delight everyone on your list and benefit childhood cancer research.
Swipe ➡️ to see some of our favorite things to give this holiday season and visit Shop.AlexsLemonade.org to see even more gifts that give back to childhood cancer research 🎁🎗
IT’S THAT TIME AGAIN! Time for The Lupus Project for 2019! The goal of The Lupus Project has always been to bring together individuals living with lupus and their families to a convenient, fun, informative, and social affair where businesses and Lupus organizations can share about their products/resources. This year's TLP will be slightly different. For The Lupus Project 2019, we want to take an opportunity to allow the “support” (the people living/working/caring for those with lupus) to present at this year’s event! We hope to see you there! Register using link in bio💜
I'm dreaming of a WARM Christmas! HAHA! Really I am dreaming of a Christmas with loads of love, gratitude, and peace.
This is a special time of year for me because I was diagnosed 5 days before Christmas. Boy did I have a lot to learn in thoes days leading up to and after my breast cancer diagnosis.
Here is something that really stuck out to me in my discoveries.
Did you know your attitude plays a role in your recovery from an illness like cancer?
When we are sick or in pain we might get a little grumpy or have a shorter fuse than normal. Lord knows I did!
What I found was if I walked in love and let my cancer put my life in perspective of peace, I did much better. I had less pain, less grumpiness, and less emotional outburst. It was so much easier than my cancer tantrums.
What has your cancer taught you about your life?
A sad state of affairs. Food allergy costs have skyrocketed over the last 25 years. The U.S. pays over $24.8 billion annually on the epidemic yet there is only $76 million in public funding to address it.
There is so much promising research out there. Our government officials must recognize food allergies as a true epidemic at the national level. In the meantime, Red Sneakers for Oakley supports @EndAllergiesTogether in its efforts to fund research to find a cure. .
It’s MRI day!!! This is the part of my life I don’t like talking about very much.. I’m not sure how I feel about my MRIs being bumped from every 6months to every 2/3 months but I know it needs to be done so here I am. Also, they said they would give me something to relax but really I think they gave me a cry baby pill cause I’m all sorts of emotional about this MRI. whatever the results will be today can really make or break the upcoming months so I could use all the positive vibes!! #DesmoidTumorAwarness#DesmoidTumorResearchFoundataion#FindACure#DesmoidTumor