@addie.belle 3 years ago today, Adeline had her first surgery(of 12). 3 years ago today, I handed my 3lb baby over to a surgeon and really did not know if it was the right choice. 3 years ago today, I had come into my own as a fierce medical advocate for my daughter.
My role as an advocate for her started in the NICU - when Adeline was constantly getting sick, with regularity, every 10 days. She’d start to have feeding intolerance, her belly would blow up, and she’d start excessively vomiting. The doctors would say that she had a C-Papp belly, or that she was just a "happy spitter". I heard their words, but I knew something wasn’t right. Each time it occurred, the treatment was the same. NPO and gut rest until she baselined. But when we reintroduced feeds, the cycle would repeat. It was the first time I really thought that I needed to question the plan. These professionals weren’t seeing what I was seeing. I needed to voice my concerns. I was with her all day long and there was nothing "happy" about her spitting. I
I pushed for tests, consultations with GI, then surgery. Nothing would show up on tests, and they'd come to see her on NPO and she'd "look good". Finally one day I said, enough is enough. John took off work, we called a meeting with her entire team, and we sat next to her isolette and fought for her. I became a different human that I am in IRL, relentless, unapologetic, fierce, firm, strong, and I would not accept the same course of action any longer. We decided to do an exploratory surgery, to see what was going on.
We made that decision and John and I went into the "parent rooms" on the NICU unit and held each other and cried. Did we make the right choice? Did we just send our daughter to surgery without warrant? Did we put her life at risk?
Adeline had a blockage, a pretty intense one, and we made the right choice. He said he could barely fit a point of a pen through her intestines. We made the right call and my Mama gut was right. t was at that moment I stepped into the role as mother AND advocate, and I haven’t stepped out since!
When did you step into that role? #Advocate#MedicalAdvocate#SheGotGuts#Fierce#mic
Kayla the Swamp Queen has a decree.
If you video/photograph/record/snap/tic toc/what the fuck ever y'all genZ kids doing these days.... if you utilize any of these methods on people just living their lives without consent as a joke for your social media... ya gahbage. Ok maybe not that far but please be aware it's a common form of bullying and harassment. Being racist rude shits? Record them. Yelling at Starbucks employees? Record them. Cops? Shit don't stop recording them. I am NOT saying don't hold people accountable for their shit. However. **
I have been the victim of being used as a joke on the internet for simply existing and it's not fun. Instances I am aware of: walking through Lowes. Eating in public. Waiting in line at grocery store. At the gym on the treadmill. You start to become anxious. Are people taking pictures of me now? Every phone up in a certain position triggers panic. You never get used to it. Even confronting those who do it, you never get the ability to overcome it. **
Just. Don't do it. We are all wacky anxious goofballs in a skin bag. Let us all be skin bags in piece.
This scratchy terrifyingly uncomfortable and I'll fitting dress is something I tried on at goodwill.
When I first saw this idea, it transformed the way I start my week. Mondays are now totally MY day. I pick a fancy outfit to wear to work and make Monday a special day instead of one to dread. My schedule today was bananas, but I slayed the day one moment, one task, and one goal at a time. Am I tired? Sure. But I am also happy and satisfied with what I accomplished. Did you make Monday YOUR day? What did you do?
Narasimha is an angry god. He broke demon Hiranyakashipu’s neck like a twig and clawed his stomach and wore his intestines as a garland, screaming in extreme delight. All because the demon king had forbidden his son Prahlad from worshipping Vishnu in the Asuric kingdom and was trying to murder the devout boy.
Then, according to one spectacular tale, the same Narasimha, after killing the demon, couldn’t control his own wrath and like an unstoppable nuclear bomb, kept exploding, burning and destroying the universe till Shiva, the god of destruction, had to intervene at the request of the devas and stop Narasimha. ✨🦁🙏🕉
What a great reminder I needed today. Maybe you need it too?
It is so hard to be patient with my body as I begin to heal. It’s only been seven days since my tissue expander exchange surgery (the final surgery step from the prophylactic double mastectomy I underwent in August). As much as I want to be feeling great (and I know I will be soon), I’m sore from simple tasks like switching a load of laundry, lifting our tea kettle and walking to the mailbox. The voice inside says, “do more, you’re fine,” but I am also very aware there can be serious long term consequences if I don’t allow myself to heal properly. I’m quite sore on my left side, bruised and fighting an allergic reaction to the glue they used to close me up. I’m also still sleeping in a recliner. 😌 Against my stubborn “old self,” I grabbed a cold kombucha, my buttery soft blankee and snuggled up on the sofa with my little pup, Lucy. I told myself, “I am enough and I need rest.” Laundry can wait.
Tomorrow is my post op appointment and I’m hoping the allergic reaction is much better and the doctor is happy I’m becoming a great patient (and learning to have patience).
Be kind to yourself. No one can take better care of you, then YOU!
Hey y'all, its @ageofaquaria 's ratchet cousin: Capricorn. ♑😂😂 Didn't hit me how LIT dancing last night was until it was over. I definitely still feel that straddle though... This was my first time experiencing the gay and drag scene in Philly hands-on... Even if just for one number. A lot of people thought I was like 19 years old 😬 But I definitely plan on bringing some "sex kitten androgyny" back to the city soon... 😏😏 At least that's how one drunk patron described it.
The talent and KINDNESS I experienced from the other groups and Queens last night was really heart warming and encouraging. What they do seems effortless but I know from standing in these heels and lashes for hours that it is anything but. Everyone was so talented and accepting and diverse. I fell in love. Expect full body pics... Soon. At least one to show off them legs girl 👌 😉😉 Also @facesbydani was kind enough to paint me for this fundraiser (@maccosmetics) so if you see this look in a second post don't give me full credit. 🙌