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Trans Pride! I didn’t realise how beautiful it was going to be. I didn’t realise how loved I would feel to be in such an accepting, queer space. I didn’t realise how important it was to see other queer disabled people. It was an absolute joy to be able to help in my small way and be part of this indescribably beautiful community. Can’t wait for next year ❤️ #transpride 
#heds #eds #ehlersdanlos #pots #potsie #dysautonomia #myalgicencephalomyelitis #chronicfatiguesyndrome #cfs #spoonies #chronicillness #disabled #disability #invisibleillness #butyoudontlooksick #wheelchair
Trans Pride! I didn’t realise how beautiful it was going to be. I didn’t realise how loved I would feel to be in such an accepting, queer space. I didn’t realise how important it was to see other queer disabled people. It was an absolute joy to be able to help in my small way and be part of this indescribably beautiful community. Can’t wait for next year ❤️ #transpride  #heds  #eds  #ehlersdanlos  #pots  #potsie  #dysautonomia  #myalgicencephalomyelitis  #chronicfatiguesyndrome  #cfs  #spoonies  #chronicillness  #disabled  #disability  #invisibleillness  #butyoudontlooksick  #wheelchair 
✨first of all, this photo makes me giggle. I love Lulu’s bugg eyes 👀😍😂 This photo is from last night, and I was really struggling to keep my blood pressure up. I was moving very slow, slurring my words.. you know, the usual.(perfect that I was wearing sloth socks) 🧦 Chris (hubby) sprang into action like he always does and got me everything I needed. Fluids and salts galore!! It was scary but together we were able to get my bp up to a more reasonable level. Who else goes through this? It’s quite frustrating, isn’t it? ✨💛🌻 •
@chrisflesh @littleladylulu 
#chronicillness #chronicpain #raredisease #disabledandcute #cripplepunk #eds #heds #hypermobileeds #ehlersdanlos #ehlersdanlossyndrome #pots #dysautonomia #hypotension #syncope #fainting #mcas #mcad #mastcell #mastcellactivationdisorder #mastcellactivationsyndrome #spoonie #spooniewarrior #zebra #zebrastrong #bendyaf #darkcomedy
✨first of all, this photo makes me giggle. I love Lulu’s bugg eyes 👀😍😂 This photo is from last night, and I was really struggling to keep my blood pressure up. I was moving very slow, slurring my words.. you know, the usual.(perfect that I was wearing sloth socks) 🧦 Chris (hubby) sprang into action like he always does and got me everything I needed. Fluids and salts galore!! It was scary but together we were able to get my bp up to a more reasonable level. Who else goes through this? It’s quite frustrating, isn’t it? ✨💛🌻 • @chrisflesh @littleladylulu #chronicillness  #chronicpain  #raredisease  #disabledandcute  #cripplepunk  #eds  #heds  #hypermobileeds  #ehlersdanlos  #ehlersdanlossyndrome  #pots  #dysautonomia  #hypotension  #syncope  #fainting  #mcas  #mcad  #mastcell  #mastcellactivationdisorder  #mastcellactivationsyndrome  #spoonie  #spooniewarrior  #zebra  #zebrastrong  #bendyaf  #darkcomedy 
So after #orthopedics doing knee and hip checks and one #joint #,dislocating in front of him he apologised and put it back in to find I need orthopedic help as the joints are bad due to eds .  He's a fantastic #surgeon who knows about #EDS but walking is crazy mental right now as it's hard as knees are swollen and hip is buggered but I won't stop as for me I want to keep going. But happy the surgeon is fantastic everyone with #ehlersdanlos goes through trust issues due to lack of #knowledge but don't be afraid as it might just help you. #hip #knee #dislocation #legday #gymrat #restday #positivevibes  #invisibleillness #chronicillness #physiotherapy #physio #hypermobility #tomorrowisanewday #trysomethingnew #injury #ehlersdanlossyndrome
So after #orthopedics  doing knee and hip checks and one #joint  #,dislocating in front of him he apologised and put it back in to find I need orthopedic help as the joints are bad due to eds . He's a fantastic #surgeon  who knows about #EDS  but walking is crazy mental right now as it's hard as knees are swollen and hip is buggered but I won't stop as for me I want to keep going. But happy the surgeon is fantastic everyone with #ehlersdanlos  goes through trust issues due to lack of #knowledge  but don't be afraid as it might just help you. #hip  #knee  #dislocation  #legday  #gymrat  #restday  #positivevibes  #invisibleillness  #chronicillness  #physiotherapy  #physio  #hypermobility  #tomorrowisanewday  #trysomethingnew  #injury  #ehlersdanlossyndrome 
Happy laughing boy (photo from bookstore outing last week). He's been really helpful around the house and loving working a little more. He does so well when he feels like he has something to do, even if it's just be under my wheelchair while I make coffee. We're working on his "put it" for placing objects where directed and he's doing really well - loves putting clothes in the hamper. I'm about to start trying to train a laser light retrieval where I'll use a laser to indicate which object I want him to pick up. If it goes well then I'll extend the use of the laser to pushing buttons, doors, etc. He's a good candidate for laser retrieval because he notices the dot and will investigate but he doesn't get hyperactive trying to catch it. He'd rather watch Mila play with it than obsess over it himself! .
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#spoonie  #spoonielife  #chronicallyill #chronicillness #POTs #potsie  #eds #edszebra #ehlersdanlos #ehlersdanlossyndrome #chronicpain #ehlersdanlostype3 #edstype3 #hypermobileehlersdanlos #migraines #hypermobileeds #hypermobility #fibromyalgia #chronicfatiguesyndrome #chronicfatigue #ehlersdanloszebra #chronicmigraines #gastroparesis  #dysautonomia #sdit #servicedogintraining #servicedog #servicedogteam
Happy laughing boy (photo from bookstore outing last week). He's been really helpful around the house and loving working a little more. He does so well when he feels like he has something to do, even if it's just be under my wheelchair while I make coffee. We're working on his "put it" for placing objects where directed and he's doing really well - loves putting clothes in the hamper. I'm about to start trying to train a laser light retrieval where I'll use a laser to indicate which object I want him to pick up. If it goes well then I'll extend the use of the laser to pushing buttons, doors, etc. He's a good candidate for laser retrieval because he notices the dot and will investigate but he doesn't get hyperactive trying to catch it. He'd rather watch Mila play with it than obsess over it himself! . . #spoonie  #spoonielife  #chronicallyill  #chronicillness  #POTs  #potsie  #eds  #edszebra  #ehlersdanlos  #ehlersdanlossyndrome  #chronicpain  #ehlersdanlostype3  #edstype3  #hypermobileehlersdanlos  #migraines  #hypermobileeds  #hypermobility  #fibromyalgia  #chronicfatiguesyndrome  #chronicfatigue  #ehlersdanloszebra  #chronicmigraines  #gastroparesis  #dysautonomia  #sdit  #servicedogintraining  #servicedog  #servicedogteam 
Today I am feeling so much pain. More than I have in awhile, but I remain so happy and optimistic as I look around at all the boxes, because soon this will not be my everyday. It has been many years of daily chronic pain. It is almost hard to believe that I will be so much better in a little over a month, when for so long I saw no hope for less pain. We went twice and twice it was proven that with desert climate and cannabis I can live a much different life. I can not wait for this next chapter. This pain is officially for now....😊🙌🌿🌵
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#spoonielife #ehlersdanlos #heds #ehlersdanlossyndrome #chronicbackpain #chronicpain #cervicalstenosis #herniateddisc #zebralife #holistichealth #holisticmedicine #legalizemedicalmarijuana #weedismedicine #marijuanamovement #nevadabound #medicalrefugee #invisibleillness #doilooksick #risingzebra
Today I am feeling so much pain. More than I have in awhile, but I remain so happy and optimistic as I look around at all the boxes, because soon this will not be my everyday. It has been many years of daily chronic pain. It is almost hard to believe that I will be so much better in a little over a month, when for so long I saw no hope for less pain. We went twice and twice it was proven that with desert climate and cannabis I can live a much different life. I can not wait for this next chapter. This pain is officially for now....😊🙌🌿🌵 . . . . #spoonielife  #ehlersdanlos  #heds  #ehlersdanlossyndrome  #chronicbackpain  #chronicpain  #cervicalstenosis  #herniateddisc  #zebralife  #holistichealth  #holisticmedicine  #legalizemedicalmarijuana  #weedismedicine  #marijuanamovement  #nevadabound  #medicalrefugee  #invisibleillness  #doilooksick  #risingzebra 
The only productive thing I have done today is loading the dishwasher, other than that I have just been lsying on the couch, with one of the cats and watching Modern family, much needed rest day

#chronicillness #chronicpain #spoonie #restday #ehlersdanlos #eds #fibro #fibromyalgia #adhd #aspergers #catstagram #catsofinstagram #cat
Fatigue from chronic illness feels like trudging through cement. Each step is a battle. Your eyelids feel like they are just not meant to be open. I remember going into a 12 hour shift with 4 to 5 hours of sleep and I promise you this is no where close to that feeling of tiredness. In these moments I always reach for tea. Usually Earl Grey or Green Tea. I also try to reach for energizing foods like nuts and seeds, hard boiled eggs, or fruit. If I can rest, I absolutely rest. What helps you on days where the fatigue is just too much? .
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#spoonielife #ehlersdanlos #heds #ehlersdanlossyndrome #chronicbackpain #chronicpain #cervicalstenosis #herniateddisc #zebralife #holistichealth #holisticmedicine #legalizemedicalmarijuana #weedismedicine #marijuanamovement #nevadabound #medicalrefugee #invisibleillness #doilooksick #risingzebra
Fatigue from chronic illness feels like trudging through cement. Each step is a battle. Your eyelids feel like they are just not meant to be open. I remember going into a 12 hour shift with 4 to 5 hours of sleep and I promise you this is no where close to that feeling of tiredness. In these moments I always reach for tea. Usually Earl Grey or Green Tea. I also try to reach for energizing foods like nuts and seeds, hard boiled eggs, or fruit. If I can rest, I absolutely rest. What helps you on days where the fatigue is just too much? . . . . #spoonielife  #ehlersdanlos  #heds  #ehlersdanlossyndrome  #chronicbackpain  #chronicpain  #cervicalstenosis  #herniateddisc  #zebralife  #holistichealth  #holisticmedicine  #legalizemedicalmarijuana  #weedismedicine  #marijuanamovement  #nevadabound  #medicalrefugee  #invisibleillness  #doilooksick  #risingzebra 
Our Co-Founder, Madee, dropping off dog treats for @keithurban @kelseaballerini  We hope your dogs enjoy the treats! #keithurban #kelseaballerini #dogs #laketahoe #treatsforacause
💍Nous voilà à deux mois du mariage. J'ai ma magnifique robe de chez @maisoncreanne 👰
Puis aujourd'hui j'ai passé une magnifique journée en compagnie de mon amie Chloé qui m'avait tellement manqué. Essai maquillages, essai des accessoires avec la robe etc. Mon futur époux a aussi repassé son magnifique costume @boss. 🤵 Pour mon plus grand plaisir. Et oui nous les coutumes on s'en fou un peu 😂 
Le grand jour approche de plus en plus, on a hâte mais du stress aussi il faut l'avouer.
Voilà pour les nouvelles mes 🦐 on vous embrasse 😚
💍Nous voilà à deux mois du mariage. J'ai ma magnifique robe de chez @maisoncreanne 👰 Puis aujourd'hui j'ai passé une magnifique journée en compagnie de mon amie Chloé qui m'avait tellement manqué. Essai maquillages, essai des accessoires avec la robe etc. Mon futur époux a aussi repassé son magnifique costume @boss. 🤵 Pour mon plus grand plaisir. Et oui nous les coutumes on s'en fou un peu 😂 Le grand jour approche de plus en plus, on a hâte mais du stress aussi il faut l'avouer. Voilà pour les nouvelles mes 🦐 on vous embrasse 😚
It was the best day in my live! It was like a dream - unbelievable. But the next day...pain pain and still more pain. All the wonderful moments must be paid. 
But now I'm married, I'm a wife. I'm so happy 👰🏼
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#chronicillness #chronicfatigue #chronicpain #invisibleillness #invisibledisability #spoonie #spoonielife #spooniefamily #spooniestrong #POTS #TMJ #HSD #eds #heds #MCAS #mastcell #dysautonomia #hypermobility #ehlersdanlos #zebrastrong #fightlikeawarrior #ehlersdanlossyndrome #dontjudgeaperson #dontjudge #alwaysfighting #mylife  #everyBodyisbeautiful #married #butyoudontlooksick #chroniczebra
It was the best day in my live! It was like a dream - unbelievable. But the next day...pain pain and still more pain. All the wonderful moments must be paid. But now I'm married, I'm a wife. I'm so happy 👰🏼 . . #chronicillness  #chronicfatigue  #chronicpain  #invisibleillness  #invisibledisability  #spoonie  #spoonielife  #spooniefamily  #spooniestrong  #POTS  #TMJ  #HSD  #eds  #heds  #MCAS  #mastcell  #dysautonomia  #hypermobility  #ehlersdanlos  #zebrastrong  #fightlikeawarrior  #ehlersdanlossyndrome  #dontjudgeaperson  #dontjudge  #alwaysfighting  #mylife  #everyBodyisbeautiful  #married  #butyoudontlooksick  #chroniczebra 
So I’ve been in physical therapy and started using the leg press machine. I can press 15 lbs! 😋👍🏻 I didn’t know I could do that! #ehlersdanlos #loosejoints #mcas #chronicillness #mastocytosis #spoonie #wheelie #diabetic #type1 #eds #zebra #chronicpain #wheelchairgirl #selfie #pots #tachycardia
8 weeks between the first and last picture. I’m not gonna lie I haven’t been super dedicated to my diet. I’ve never eaten terrible but I did add more cardio to my routine and it’s paying off! 🙌🏼 I’m going to get back to posting my workouts soon!
8 weeks between the first and last picture. I’m not gonna lie I haven’t been super dedicated to my diet. I’ve never eaten terrible but I did add more cardio to my routine and it’s paying off! 🙌🏼 I’m going to get back to posting my workouts soon!
Quand la vie te fait un signe, donner est parfois le plus beau des cadeaux. #DeoGratias #EhlersDanlos #JournéeDeCrise #DouleursChroniques
🌺🌿🌻 Nouveau billet sur tumblr :
https://lafeedelumiere.tumblr.com/post/176129910713
When people ask me what EDS is it can be difficult to explain. You can have so many things going on that cause multiple symptoms. #ehlersdanlossyndrome #ehlersdanlos #eds #lifetimepatient #chronicpain #chronicfatigue
Today was my first iron infusion. I’ll do round two in a week. I’m hopeful getting my ferritin up where it should be reduces some Big symptoms. Time will tell but I’m glad to be making some small progress on my health journey. Ehlers Danlos blesses you with juggling a long list of symptoms and the need to see a lot of different doctors. It can feel never ending and gets overwhelming! I’m trying to focus on one step at a time while balancing family and business. And today that means going home to rest  while my body works hard. #ehlersdanlos #chronicillness #health #edswarrior #zebra #eatingdisorder #edrecovery #hypermobility #endometriosis
Today was my first iron infusion. I’ll do round two in a week. I’m hopeful getting my ferritin up where it should be reduces some Big symptoms. Time will tell but I’m glad to be making some small progress on my health journey. Ehlers Danlos blesses you with juggling a long list of symptoms and the need to see a lot of different doctors. It can feel never ending and gets overwhelming! I’m trying to focus on one step at a time while balancing family and business. And today that means going home to rest while my body works hard. #ehlersdanlos  #chronicillness  #health  #edswarrior  #zebra  #eatingdisorder  #edrecovery  #hypermobility  #endometriosis 
So I have realized I have been slacking hardcore on image and video descriptions. I'm definitely going to try to be better about it.
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{Video description: black lab trots towards the camera in slow motion with a yellow tennis ball in his mouth}
》 》 》 》 》 》 》 》 》 》 》 》 ° Follow our Partners ° 
@lexithesuperdog 
@service_dog_jewbs 
@working.dogs.for.life
#Labrador #labsofinstagram #dogpark #beautiful #ehlersdanlos #servicedog #servicelab #labradorretriever #americankennelclub #veganhuman #rawfeddog
So I have realized I have been slacking hardcore on image and video descriptions. I'm definitely going to try to be better about it. ▪▪▪▪▪▪▪▪▪▪▪▪▪▪▪▪▪▪▪▪▪▪▪▪▪ {Video description: black lab trots towards the camera in slow motion with a yellow tennis ball in his mouth} 》 》 》 》 》 》 》 》 》 》 》 》 ° Follow our Partners ° @lexithesuperdog @service_dog_jewbs @working.dogs.for.life #Labrador  #labsofinstagram  #dogpark  #beautiful  #ehlersdanlos  #servicedog  #servicelab  #labradorretriever  #americankennelclub  #veganhuman  #rawfeddog 
@keithurban & @kelseaballerini  are playing tonight at Harvey’s in South Lake Tahoe! Vendors are setup outside the amphitheater 🐾🐾 Stop by and grab some FurTastic 🍺 grain 🐶 treats for your pups!  #hardrocktahoe #dogfriendly #beergraindogtreats
@keithurban & @kelseaballerini are playing tonight at Harvey’s in South Lake Tahoe! Vendors are setup outside the amphitheater 🐾🐾 Stop by and grab some FurTastic 🍺 grain 🐶 treats for your pups! #hardrocktahoe  #dogfriendly  #beergraindogtreats 
A post we had on our Facebook page from #rarediseaseday -What have you learned through your condition?

For some they have learned to be kinder to themselves, while others learned who in their lives are really there for them when times get tough. It’s important to stop and take stock of what we have sometimes. What do you think has been the biggest lesson this life with EDS/ HSD has taught you?
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#eds4ire #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlosawareness #edsireland #irishedsandhsd #chronicillness #chronicillnesswarrior #spoonie #disabilitypride #rarediseaseire #raredisease #rarelydiagnosed #rarediseaseday2018 #zebra #zebrastrong #EDS
A post we had on our Facebook page from #rarediseaseday  -What have you learned through your condition? For some they have learned to be kinder to themselves, while others learned who in their lives are really there for them when times get tough. It’s important to stop and take stock of what we have sometimes. What do you think has been the biggest lesson this life with EDS/ HSD has taught you? • • • #eds4ire  #ehlersdanlos  #ehlersdanlossyndrome  #ehlersdanlosawareness  #edsireland  #irishedsandhsd  #chronicillness  #chronicillnesswarrior  #spoonie  #disabilitypride  #rarediseaseire  #raredisease  #rarelydiagnosed  #rarediseaseday2018  #zebra  #zebrastrong  #EDS 
💪Starting the day to combat pain!💪 What is you favorite food or drink to fight inflammation? .
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I ran out of tumeric capsules so I am back to using powder. The shot is 1tsp fresh grated ginger, 1 tsp turmeric, and a pinch of black pepper. .
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For breakfast I am doing a chia seed pudding with almond milk. Also adding cinnamon once it sets. 🙌 
#anti-inflammatory
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#spoonielife #ehlersdanlos #heds #ehlersdanlossyndrome #chronicbackpain #chronicpain #cervicalstenosis #herniateddisc #zebralife #holistichealth #holisticmedicine #legalizemedicalmarijuana #weedismedicine #marijuanamovement #nevadabound #medicalrefugee #invisibleillness #doilooksick #risingzebra
💪Starting the day to combat pain!💪 What is you favorite food or drink to fight inflammation? . . I ran out of tumeric capsules so I am back to using powder. The shot is 1tsp fresh grated ginger, 1 tsp turmeric, and a pinch of black pepper. . . For breakfast I am doing a chia seed pudding with almond milk. Also adding cinnamon once it sets. 🙌 #anti -inflammatory . . . #spoonielife  #ehlersdanlos  #heds  #ehlersdanlossyndrome  #chronicbackpain  #chronicpain  #cervicalstenosis  #herniateddisc  #zebralife  #holistichealth  #holisticmedicine  #legalizemedicalmarijuana  #weedismedicine  #marijuanamovement  #nevadabound  #medicalrefugee  #invisibleillness  #doilooksick  #risingzebra 
Hello everyone!
Lately, I’ve been dealing with some new things that I’ve never had to deal with before. Adjusting is very hard, especially when you’re adjusting to more pain or a lower functioning level.
For the moment, I’ve been dealing with my left leg (which was the good one) suddenly becoming just as bad as my left. My knee subluxes too much so it makes my walking slower and my legs are now in immense pain almost 24/7. But they will suddenly stop hurting, and then all of the sudden it’ll hit me again. It’s frustrating because one leg like that was bad enough... now I’ve got two? Smh. My right hand is still deteriorating to the point where just typing on my phone is painful >.> idk what to do about it. Oh well. I’m trying my best!
I had another depression weird episode last night but I expressed my feelings to my mom about how I’ve been declining and how I feel angry and sad about it. Technically, I would have received my ASL certificate from College and would have been Interpreting by now. But, now I’m just stuck in a wheelchair when I go out of the house, and I’ve lost my functions to even handwrite really. I’ve had to give up thing after thing after thing and it’s painful and saddening.
BUT! There are things to help! I have braces that are being made, I will go to a neurologist to check I’m okay, I will be going to a neck person too because I know my neck is unstable but I haven’t gotten around to dealing with it. Also, I saw someone getting a custom compression suit 😱 Which would be epic for my sensory problems as well as pots so I’m going to look into that. I also have to call the eye doctor, pick a new pcp and get my wheelchair eval process started. I’m excited to get a better wheelchair (one that fits me like a glove) and a smartdrive so I won’t be damaging my shoulders anymore.
I keep reminding myself that I won’t be magically fixed overnight, but I am here for those like me. I want to write a book from a chronically ill person’s perspective to help normal people understand. So they can read my struggles and come to understand that we need more care, more love, but we are tender hearted and just people under all the medical equipment.
Let me know!!
Hello everyone! Lately, I’ve been dealing with some new things that I’ve never had to deal with before. Adjusting is very hard, especially when you’re adjusting to more pain or a lower functioning level. For the moment, I’ve been dealing with my left leg (which was the good one) suddenly becoming just as bad as my left. My knee subluxes too much so it makes my walking slower and my legs are now in immense pain almost 24/7. But they will suddenly stop hurting, and then all of the sudden it’ll hit me again. It’s frustrating because one leg like that was bad enough... now I’ve got two? Smh. My right hand is still deteriorating to the point where just typing on my phone is painful >.> idk what to do about it. Oh well. I’m trying my best! I had another depression weird episode last night but I expressed my feelings to my mom about how I’ve been declining and how I feel angry and sad about it. Technically, I would have received my ASL certificate from College and would have been Interpreting by now. But, now I’m just stuck in a wheelchair when I go out of the house, and I’ve lost my functions to even handwrite really. I’ve had to give up thing after thing after thing and it’s painful and saddening. BUT! There are things to help! I have braces that are being made, I will go to a neurologist to check I’m okay, I will be going to a neck person too because I know my neck is unstable but I haven’t gotten around to dealing with it. Also, I saw someone getting a custom compression suit 😱 Which would be epic for my sensory problems as well as pots so I’m going to look into that. I also have to call the eye doctor, pick a new pcp and get my wheelchair eval process started. I’m excited to get a better wheelchair (one that fits me like a glove) and a smartdrive so I won’t be damaging my shoulders anymore. I keep reminding myself that I won’t be magically fixed overnight, but I am here for those like me. I want to write a book from a chronically ill person’s perspective to help normal people understand. So they can read my struggles and come to understand that we need more care, more love, but we are tender hearted and just people under all the medical equipment. Let me know!!
My view today.
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I woke up grumpy because I’m still feeling weak and lightheaded and am just TOTALLY OVER IT. I’m over chronic illness. Like, ok, I gave it the old college try for the last 4+ years, but it’s not going to work out. It’s not me, chronic illness, it’s you. I want to see other people.
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So, grumpy. Because despite my forceful break-up speech, chronic illness is not going anywhere. I don’t get to decide enough is enough. I’m not the boss of this situation.
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What I AM the boss of is my attitude, and I get to decide how I want to spend my days. So instead of focusing on what I can’t do and what I don’t have, today I’m focusing on what I can do and do have. I’ve got a gorgeous front porch, the world’s best dog, and a huge stack of books waiting to be read.
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So that’s what I’m doing, and this is where I’ll be. Happy Saturday.
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💕Eliza
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#ehlersdanlossyndrome #yourenotthebossofme #ehlersdanlos #chronicillness #chronicbabe #livingwell #porchlife #goldendoodle #doodle #dogsofinstagram #therapydogintraining #mastcell #mcas #mastcellactivationdisorder #mcad #posturalorthostatictachycardiasyndrome #pots #potsie #spoonie #spoonielife
My view today. • I woke up grumpy because I’m still feeling weak and lightheaded and am just TOTALLY OVER IT. I’m over chronic illness. Like, ok, I gave it the old college try for the last 4+ years, but it’s not going to work out. It’s not me, chronic illness, it’s you. I want to see other people. • So, grumpy. Because despite my forceful break-up speech, chronic illness is not going anywhere. I don’t get to decide enough is enough. I’m not the boss of this situation. • What I AM the boss of is my attitude, and I get to decide how I want to spend my days. So instead of focusing on what I can’t do and what I don’t have, today I’m focusing on what I can do and do have. I’ve got a gorgeous front porch, the world’s best dog, and a huge stack of books waiting to be read. • So that’s what I’m doing, and this is where I’ll be. Happy Saturday. • 💕Eliza • • • #ehlersdanlossyndrome  #yourenotthebossofme  #ehlersdanlos  #chronicillness  #chronicbabe  #livingwell  #porchlife  #goldendoodle  #doodle  #dogsofinstagram  #therapydogintraining  #mastcell  #mcas  #mastcellactivationdisorder  #mcad  #posturalorthostatictachycardiasyndrome  #pots  #potsie  #spoonie  #spoonielife 
My new fishes saved from my mum’s colleague who has had to get rid of their tank. They were going to flush these beauties! How many can you identify?

There is one massive issue though, and his name is Hagrid the common pleco. Hagrid is currently 20cm long and will likely grow to 30cm (plecos can grow as big as 60cm) so he needs a new home or I need to buy a bigger tank ASAP.
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#pots #posturalorthostatictachycardiasyndrome #potssyndrome #potsie #ehlersdanlos #ehlersdanlossyndrome #eds #heds #spoonie #chronicillness #fish #fishkeeping #fishtank #tropicalfish
My new fishes saved from my mum’s colleague who has had to get rid of their tank. They were going to flush these beauties! How many can you identify? There is one massive issue though, and his name is Hagrid the common pleco. Hagrid is currently 20cm long and will likely grow to 30cm (plecos can grow as big as 60cm) so he needs a new home or I need to buy a bigger tank ASAP. _____ #pots  #posturalorthostatictachycardiasyndrome  #potssyndrome  #potsie  #ehlersdanlos  #ehlersdanlossyndrome  #eds  #heds  #spoonie  #chronicillness  #fish  #fishkeeping  #fishtank  #tropicalfish 
My hands are so swollen it’s sad.  They never really addressed the swelling in the hospital. I’m hoping this new #endocrinology doc can address the swelling. My #primarycare doc thinks #cannabisisthecure and while I love me some #cannabis I can’t spend my life all #cheechandchong up. Just can’t and don’t want to. With that said, I’m glad he’s pro cannabis. 
The truth is I just want to be on comfort measures. I can’t live with this deteriorating body another decade. I just can’t and I wish my doctors would understand that and honor my wishes: keep me comfortable as possible and no heroic measures. I’m tired. I’m swollen and my health is going downhill again and I’m done being sick. 
@ehlers.danlos @ehlersdanlosuk @themightysite @aiunited 
#adrenalinsufficiency #posturalorthostatictachycardiasyndrome #potssyndrome #pots #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlosawareness #ehlersdanlossociety #mastcellactivationdisorder #mcas #raredisease #invisibledisease #invisibleillness #chronicallyrara #chronicallyfabulous
My hands are so swollen it’s sad. They never really addressed the swelling in the hospital. I’m hoping this new #endocrinology  doc can address the swelling. My #primarycare  doc thinks #cannabisisthecure  and while I love me some #cannabis  I can’t spend my life all #cheechandchong  up. Just can’t and don’t want to. With that said, I’m glad he’s pro cannabis. The truth is I just want to be on comfort measures. I can’t live with this deteriorating body another decade. I just can’t and I wish my doctors would understand that and honor my wishes: keep me comfortable as possible and no heroic measures. I’m tired. I’m swollen and my health is going downhill again and I’m done being sick. @ehlers.danlos @ehlersdanlosuk @themightysite @aiunited #adrenalinsufficiency  #posturalorthostatictachycardiasyndrome  #potssyndrome  #pots  #ehlersdanlos  #ehlersdanlossyndrome  #ehlersdanlosawareness  #ehlersdanlossociety  #mastcellactivationdisorder  #mcas  #raredisease  #invisibledisease  #invisibleillness  #chronicallyrara  #chronicallyfabulous 
THIS 🙌
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It’s officially been four days that I’ve been suffering with this horrific GP flare, unable to keep anything down ☹️.
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I was meant to be going to a friends dinner party this evening, catching up with lots of friends I haven’t seen in a while. It’s so frustrating having to cancel but I know I’m listening to my body, and let’s face it, I can’t really fight through the sickness at a party anyway! 🤷🏻‍♀️
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You may have seen I went out for dinner last night which didn’t last long at all, I wasn’t doing too badly and suddenly took a horrible turn and had to be carried home... I took a doggy bag of my food and attempted to have it for lunch, but it didn’t stay down 😪.
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Just to add more salt to my wounds.. I’ve also been suffering with one of the worst migraines in quite some time, and had to take my sumatriptan injection, which I really try to avoid as the side effects aren’t pleasant!.
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So, I shall continue napping (dreaming of sushi) and sipping on my hot water with ginger and lemon and watch some trash tv on the sofa 🛋 📺
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#thehopefulchronic #chronicmigraines #eds #words #bodycare #body #chronicillness
THIS 🙌 • It’s officially been four days that I’ve been suffering with this horrific GP flare, unable to keep anything down ☹️. • I was meant to be going to a friends dinner party this evening, catching up with lots of friends I haven’t seen in a while. It’s so frustrating having to cancel but I know I’m listening to my body, and let’s face it, I can’t really fight through the sickness at a party anyway! 🤷🏻‍♀️ • You may have seen I went out for dinner last night which didn’t last long at all, I wasn’t doing too badly and suddenly took a horrible turn and had to be carried home... I took a doggy bag of my food and attempted to have it for lunch, but it didn’t stay down 😪. • Just to add more salt to my wounds.. I’ve also been suffering with one of the worst migraines in quite some time, and had to take my sumatriptan injection, which I really try to avoid as the side effects aren’t pleasant!. • So, I shall continue napping (dreaming of sushi) and sipping on my hot water with ginger and lemon and watch some trash tv on the sofa 🛋 📺 • • • #thehopefulchronic  #chronicmigraines  #eds  #words  #bodycare  #body  #chronicillness 
Those days where you wake up and think, How can I feel so much pain? How can I continue? How much fight is left in me?...and then some how you continue...that is your strength. When your at war with your own body and mind it may seem like everything is spiraling and your loosing it, but your not! Your fighting your hardest and surviving! These are the days we learn our strength and courage. These are the days we earn the title WARRIOR!
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#spoonielife #ehlersdanlos #heds #ehlersdanlossyndrome #chronicbackpain #chronicpain #cervicalstenosis #herniateddisc #zebralife #holistichealth #holisticmedicine #legalizemedicalmarijuana #weedismedicine #marijuanamovement #nevadabound #medicalrefugee #invisibleillness #doilooksick #risingzebra
Those days where you wake up and think, How can I feel so much pain? How can I continue? How much fight is left in me?...and then some how you continue...that is your strength. When your at war with your own body and mind it may seem like everything is spiraling and your loosing it, but your not! Your fighting your hardest and surviving! These are the days we learn our strength and courage. These are the days we earn the title WARRIOR! . . . . #spoonielife  #ehlersdanlos  #heds  #ehlersdanlossyndrome  #chronicbackpain  #chronicpain  #cervicalstenosis  #herniateddisc  #zebralife  #holistichealth  #holisticmedicine  #legalizemedicalmarijuana  #weedismedicine  #marijuanamovement  #nevadabound  #medicalrefugee  #invisibleillness  #doilooksick  #risingzebra 
Recently I purchased Vital Protein Collagens to help with my collagen disorder.  I know homemade bone broth is the best but until I have the time to make it, this will have to do. .
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What does my collagen disorder mean? .
🔹I am hyper flexible without even trying. .
🔹My finger joints hyperextend. .
🔹I have scoliosis and disc degeneration. ..
🔹My joints can subluxate and then slip back into place. ..
🔹My skin is velvety soft and thin .
🔹I hardly have any wrinkles on my face (bonus!) but I also have cellulite on my arms and legs. .
🔹I form cigarette-paper keloid scars
🔹My veins are becoming varicose
🔹I exhibit leaky gut and leaky vein symptoms .
🔹Due to leaky veins, my leg and arm tissue has become inflamed and are beginning to form scars in my fat and possibly muscle tissue. .
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I’m hoping to stop and possibly reverse the damage from having this issue. 🤞🏼
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#vitalproteins #vitalproteinscollagenpeptides #collagendisorder #ehlersdanlos #MTHFR #varicoseveins #lipedema #lipedemalegs #lipedemasucks #lipedemawarrior #stressisakiller
Recently I purchased Vital Protein Collagens to help with my collagen disorder. I know homemade bone broth is the best but until I have the time to make it, this will have to do. . . What does my collagen disorder mean? . 🔹I am hyper flexible without even trying. . 🔹My finger joints hyperextend. . 🔹I have scoliosis and disc degeneration. .. 🔹My joints can subluxate and then slip back into place. .. 🔹My skin is velvety soft and thin . 🔹I hardly have any wrinkles on my face (bonus!) but I also have cellulite on my arms and legs. . 🔹I form cigarette-paper keloid scars 🔹My veins are becoming varicose 🔹I exhibit leaky gut and leaky vein symptoms . 🔹Due to leaky veins, my leg and arm tissue has become inflamed and are beginning to form scars in my fat and possibly muscle tissue. . . I’m hoping to stop and possibly reverse the damage from having this issue. 🤞🏼 . . #vitalproteins  #vitalproteinscollagenpeptides  #collagendisorder  #ehlersdanlos  #MTHFR  #varicoseveins  #lipedema  #lipedemalegs  #lipedemasucks  #lipedemawarrior  #stressisakiller 
Global Genes, Rare on the Road. Learning to advocate for rare disease patients, to educate and influence.

#rareontheroad #globalgenes #mastcellactivation #ehlersdanlos #posturalorthostatictachycardia #careaboutrare #nashville #rarediseases
Hoe ga je om met alles om je heen, je vrienden, een nieuwe baan, seks, uitgaan, onzekerheid? Soms wil je gewoon dingen weten die je met je arts, ouders of vrienden niet wil of kan bespreken. ALL OF ME is een plek waar jonge mensen met een chronische aandoening elkaar kunnen vinden.
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#positief #vrolijk #chronischziek #diabetes #diabetestype1 #diabetestype2 #ms #chronischvermoeid #chronischpositief #autoimuunziekte #multiplesclerosis  #ehlersdanlos #hms #reuma #neuropathie #depressie #migraine #ibd #crohn #lyme #hersenletsel #rolstoel #cvs #crps #epilepsie #cf #cysticfibrosis
Hoe ga je om met alles om je heen, je vrienden, een nieuwe baan, seks, uitgaan, onzekerheid? Soms wil je gewoon dingen weten die je met je arts, ouders of vrienden niet wil of kan bespreken. ALL OF ME is een plek waar jonge mensen met een chronische aandoening elkaar kunnen vinden. . . #positief  #vrolijk  #chronischziek  #diabetes  #diabetestype1  #diabetestype2  #ms  #chronischvermoeid  #chronischpositief  #autoimuunziekte  #multiplesclerosis  #ehlersdanlos  #hms  #reuma  #neuropathie  #depressie  #migraine  #ibd  #crohn  #lyme  #hersenletsel  #rolstoel  #cvs  #crps  #epilepsie  #cf  #cysticfibrosis 
Pendant environ 4 ans, à cause de ma gastroparésie, j’ai dû éviter de manger des fruits et des légumes, des légumineuses, du steak, des noix... comme c’était pas une allergie, je trichais quelques fois par année (Noël, ma fête...). Je devais aussi me limiter à des petites portions (1 tasse en moyenne). Ironiquement, je n’ai pas perdu 1lbs, même quand j’ai eu des crises sévères et dû passer au régime liquide pendant plusieurs semaines! 
Il y a quelques mois, j’ai eu de nouveaux examens (vidange gastrique, gastroscopie) et mon gastroentérologue m’a dit que je pouvais essayer de manger normalement à nouveau, que ma nouvelle médication semblait fonctionner... pour le moment. Nous sommes conscients que c’est évolutif et que ça risque de ne pas durer, mais je vais en profiter!
Et quel plaisir : ça se passe bien! 
Deux belles surprises : 1) j’ai perdu près de 10lbs depuis le printemps (mais ça ne paraît pas) 🤷‍♀️ Quel corps confus qui perds du poids quand on mange plus?! Non mais... 2) Je me sens beaucoup plus forte! J’ai encore mes symptômes du POTS bien sûr (ils étaient apparus bien avant la gastroparésie), j’ai des douleurs atroces (c’est pire depuis la dernière année), mais je me sens bien, j’ai l’énergie pour faire quelques activités, je me sens motivée! J’espère que les médicaments vont contrôler mes symptômes longtemps! #ehlersdanlos #gastroparesis #fruitsandveggies #energy #crazybody #plaisirdemanger
Pendant environ 4 ans, à cause de ma gastroparésie, j’ai dû éviter de manger des fruits et des légumes, des légumineuses, du steak, des noix... comme c’était pas une allergie, je trichais quelques fois par année (Noël, ma fête...). Je devais aussi me limiter à des petites portions (1 tasse en moyenne). Ironiquement, je n’ai pas perdu 1lbs, même quand j’ai eu des crises sévères et dû passer au régime liquide pendant plusieurs semaines! Il y a quelques mois, j’ai eu de nouveaux examens (vidange gastrique, gastroscopie) et mon gastroentérologue m’a dit que je pouvais essayer de manger normalement à nouveau, que ma nouvelle médication semblait fonctionner... pour le moment. Nous sommes conscients que c’est évolutif et que ça risque de ne pas durer, mais je vais en profiter! Et quel plaisir : ça se passe bien! Deux belles surprises : 1) j’ai perdu près de 10lbs depuis le printemps (mais ça ne paraît pas) 🤷‍♀️ Quel corps confus qui perds du poids quand on mange plus?! Non mais... 2) Je me sens beaucoup plus forte! J’ai encore mes symptômes du POTS bien sûr (ils étaient apparus bien avant la gastroparésie), j’ai des douleurs atroces (c’est pire depuis la dernière année), mais je me sens bien, j’ai l’énergie pour faire quelques activités, je me sens motivée! J’espère que les médicaments vont contrôler mes symptômes longtemps! #ehlersdanlos  #gastroparesis  #fruitsandveggies  #energy  #crazybody  #plaisirdemanger 
STANDING MY GROUND "So I fight on like the EDS Warrior that I am. And I will continue to fight and push on until I’m called home!" Read Sarah's #myEDS story at ehlers-danlos.com/SarahM

#EhlersDanlos #ChronicPain #hypermobile #hypermobility #EhlersDanlosSyndromes #pain #EDS #EDSAwareness #ChronicIllness #Spoonie #ZebraStrong #DazzleTogether #Zebra #vEDS
My knee is still unable to bend. I’ve had to use crutches because I can’t walk very well with a straight leg. Hopefully this is just a strain, and I didn’t tear anything that would require surgery. •
I love this quote, I go through this every day. My family, friends, and even people I don’t know very well tell me that they’ve seen me do the thing before so I should be able to do it or it’s not that hard, I should just get it over with. It makes me upset since some of them don’t understand, no matter how many times I’ve tried to explain it to them. •
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#chronicillness #chronicpain #chronicillnesswarrior #endometriosis #migraines #asthma #pots #pain #celiac #gastritis #ehlersdanlos #raynauds #endowarrior #eds #endometriosisawareness #invisibleillness
My knee is still unable to bend. I’ve had to use crutches because I can’t walk very well with a straight leg. Hopefully this is just a strain, and I didn’t tear anything that would require surgery. • I love this quote, I go through this every day. My family, friends, and even people I don’t know very well tell me that they’ve seen me do the thing before so I should be able to do it or it’s not that hard, I should just get it over with. It makes me upset since some of them don’t understand, no matter how many times I’ve tried to explain it to them. • • • #chronicillness  #chronicpain  #chronicillnesswarrior  #endometriosis  #migraines  #asthma  #pots  #pain  #celiac  #gastritis  #ehlersdanlos  #raynauds  #endowarrior  #eds  #endometriosisawareness  #invisibleillness 
♥︎ With #chronicillness comes a lot of unknowns. So it’s easy to get stuck in the cycle of ‘what-ifs.’ Because well let’s face it, our bodies haven’t exactly had the best track records. • But staying paralyzed in those fears. Worrying about when the next shoe will drop. Doesn’t serve a purpose either. No amount of worry is going to fix or prevent anything. • It’s so much easier said than done, but try to take things as they come. When and if something happens then you’ll figure it out. In the meantime we have to learn to let go a little more. And not let our thoughts get ahead of our circumstances.
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#truth #onedayatatime #thestruggleisreal #lifegoeson #countyourblessings
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#mood #mentalhealth #quoteoftheday #ehlersdanlos #nevergiveup #autoimmunedisease #crohnsdisease #ostomy #spoonie #nocolonstillrollin #autoimmune #truth #IBD #potsie #inflammatoryboweldisease #EDS #dysautonomia #chronicillness #crohns #crohnsandcolitis #fibromyalgia #invisibledisease #chronicpain #invisibleillness #youarenotalone #posturalorthostatictachycardiasyndrome 📷:Pinterest(ColorEdit:Me)
♥︎ With #chronicillness  comes a lot of unknowns. So it’s easy to get stuck in the cycle of ‘what-ifs.’ Because well let’s face it, our bodies haven’t exactly had the best track records. • But staying paralyzed in those fears. Worrying about when the next shoe will drop. Doesn’t serve a purpose either. No amount of worry is going to fix or prevent anything. • It’s so much easier said than done, but try to take things as they come. When and if something happens then you’ll figure it out. In the meantime we have to learn to let go a little more. And not let our thoughts get ahead of our circumstances. . #truth  #onedayatatime  #thestruggleisreal  #lifegoeson  #countyourblessings  . . . . . . . . . . . #mood  #mentalhealth  #quoteoftheday  #ehlersdanlos  #nevergiveup  #autoimmunedisease  #crohnsdisease  #ostomy  #spoonie  #nocolonstillrollin  #autoimmune  #truth  #IBD  #potsie  #inflammatoryboweldisease  #EDS  #dysautonomia  #chronicillness  #crohns  #crohnsandcolitis  #fibromyalgia  #invisibledisease  #chronicpain  #invisibleillness  #youarenotalone  #posturalorthostatictachycardiasyndrome  📷:Pinterest(ColorEdit:Me)
HOPEFULLY HAPPY 🌟
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I am by no means better, but I am beginning to see an improvement. It’s small, but to me it is making quite a massive difference! On Thursday I was able to go on an outing, which was spontaneous in my books, with my Mum to pick up something for my room. It was amazing to be out on the coast, enjoying the beautiful weather & scenery! Isla & Ruby came along with us which was a added bonus.
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I can’t really explain with words how great is was to be out enjoying the surroundings, it actually made me emotional, I felt nostalgic. The simple thing of being able to go out for a couple of hours & not have to plan everything in advance in fine detail I really appreciate. Of course it still takes a lot of organisation & I was absolutely exhausted from being out.
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It’s great because within the last 4 weeks I have been busy with things other than appointments, usually I would try to spread events like these over a few months, but they weren’t in my control to rearrange...so I’ve had to grin & bear it, enjoy what I can & crash when I’ve needed to. Thankfully I have coped better than I expected & my symptoms haven’t flared too badly. I am so glad the B12 injections, along with herbal protocol I’m on & what I’m taking to help mop up any herxing reactions are assisting me!
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I am feeling happily optimistic that I will be able to have more of these days ✨
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#invisibleillness #chronicillness #chronicpain #chronicfatigue #hypermobilitysyndrome #hypermobility #eds #ehlersdanlos #ehlersdanlossyndrome #lymedisease #lymewarrior #lymie #lymedontkillmyvibe #morethanlyme #spoonielife #spoonie #posturalorthostatictachycardiasyndrome #thisisinvisibleillness #thisischronicillness #bekind #positivevibes #happiness #gratitude #grateful #smallachievements #smallaccomplishments #littlethings #hopeful #goodtimes
HOPEFULLY HAPPY 🌟 • I am by no means better, but I am beginning to see an improvement. It’s small, but to me it is making quite a massive difference! On Thursday I was able to go on an outing, which was spontaneous in my books, with my Mum to pick up something for my room. It was amazing to be out on the coast, enjoying the beautiful weather & scenery! Isla & Ruby came along with us which was a added bonus. • I can’t really explain with words how great is was to be out enjoying the surroundings, it actually made me emotional, I felt nostalgic. The simple thing of being able to go out for a couple of hours & not have to plan everything in advance in fine detail I really appreciate. Of course it still takes a lot of organisation & I was absolutely exhausted from being out. • It’s great because within the last 4 weeks I have been busy with things other than appointments, usually I would try to spread events like these over a few months, but they weren’t in my control to rearrange...so I’ve had to grin & bear it, enjoy what I can & crash when I’ve needed to. Thankfully I have coped better than I expected & my symptoms haven’t flared too badly. I am so glad the B12 injections, along with herbal protocol I’m on & what I’m taking to help mop up any herxing reactions are assisting me! • I am feeling happily optimistic that I will be able to have more of these days ✨ • #invisibleillness  #chronicillness  #chronicpain  #chronicfatigue  #hypermobilitysyndrome  #hypermobility  #eds  #ehlersdanlos  #ehlersdanlossyndrome  #lymedisease  #lymewarrior  #lymie  #lymedontkillmyvibe  #morethanlyme  #spoonielife  #spoonie  #posturalorthostatictachycardiasyndrome  #thisisinvisibleillness  #thisischronicillness  #bekind  #positivevibes  #happiness  #gratitude  #grateful  #smallachievements  #smallaccomplishments  #littlethings  #hopeful  #goodtimes 
An article I wrote for @themightysite about Sustainable Public Dentistry (and why we need it NOW) was featured on @themightysite ‘s Disability FB page - check it out!
https://themighty.com/2018/07/sustainable-public-dental-care/?utm_source=engagement_bar&utm_medium=link&utm_campaign=topic_feed.story_feed.story_preview_card.engagement_bar
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#sustainabledentistry #dentist #dentistry #themighty #ontario #canada #chronicwarrior #chronicillnesswarrior #governmentofcanada #ehlersdanlos #writing #spoonie #spoon #spoons  #spoonlife #spoonielife #spooniecommunity #spoonies #medicalwriter #health #healthcare #healthiswealth #knowledgeispower #read #reading #depression #anxiety #mentalhealthawareness #mentalhealth
An article I wrote for @themightysite about Sustainable Public Dentistry (and why we need it NOW) was featured on @themightysite ‘s Disability FB page - check it out! https://themighty.com/2018/07/sustainable-public-dental-care/?utm_source=engagement_bar&utm_medium=link&utm_campaign=topic_feed.story_feed.story_preview_card.engagement_bar ... #sustainabledentistry  #dentist  #dentistry  #themighty  #ontario  #canada  #chronicwarrior  #chronicillnesswarrior  #governmentofcanada  #ehlersdanlos  #writing  #spoonie  #spoon  #spoons  #spoonlife  #spoonielife  #spooniecommunity  #spoonies  #medicalwriter  #health  #healthcare  #healthiswealth  #knowledgeispower  #read  #reading  #depression  #anxiety  #mentalhealthawareness  #mentalhealth 
Depression is to happiness what blurry is to sight.
Depression is to happiness what blurry is to sight.
From scared of surgery in pre-op and able to move my neck way more than any normal human...to attempting to go home today despite awful occipital neuralgia still blinding me. I’m fused! But I walked again with the sweet PT ladies and every staff member here is amazing! I can drink easier...didn’t feel the need to choke. I can’t wait to feel better and better and attempt art again! Balloons (thanks @e_belanger2 @e_belanger1  for everything!) And sweet visits (@theistammy) and gifts...I love you all so much. Lots of pain shooting on my right side of head but hanging in there. - -
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#chronicillness #ehlerdanlossyndromesucks 
#ehlersdanlossyndrome #ehlersdanlos #edsfusion #spinalfusion #ehlersdanlospain #hospital #chronicpain @ehlers.danlos
From scared of surgery in pre-op and able to move my neck way more than any normal human...to attempting to go home today despite awful occipital neuralgia still blinding me. I’m fused! But I walked again with the sweet PT ladies and every staff member here is amazing! I can drink easier...didn’t feel the need to choke. I can’t wait to feel better and better and attempt art again! Balloons (thanks @e_belanger2 @e_belanger1 for everything!) And sweet visits (@theistammy) and gifts...I love you all so much. Lots of pain shooting on my right side of head but hanging in there. - - - - - - - #chronicillness  #ehlerdanlossyndromesucks  #ehlersdanlossyndrome  #ehlersdanlos  #edsfusion  #spinalfusion  #ehlersdanlospain  #hospital  #chronicpain  @ehlers.danlos
Pictures don’t do the lipedema progress justice.  I decided to post a video.  It was much quicker. ...
▫️My legs look beat up from a venous ablation and a venogram of the pelvis but they are improving!  I can see a little of my calf muscle!!! 😁 .
▫️Addressing the varicose veins has helped with the intense fatty tissue pain and swelling but I still have to be very careful why I eat and drink. .
▫️I am doing my best to eliminate soda and processed drinks of any kind, fried foods, processed foods, junk food, animal products, alcohol, and anything else that makes my legs swell... I feel like what goes in my mouth eventually settles in my leg and arm tissue so I am keeping it clean, simple, and natural. .
▫️My mindful eating exercise is enjoying absorbing nutrients from food instead of enjoying the taste.  Not that my meals don’t taste good, but it’s about the nutrient content and how it improves the lipedema that I look forward too now.  I eat, listen to my body and then crave what does not hurt me. .
▫️The weight just keeps coming off by doing this: .
🔹trying to keep “clean” calories below 1200,
🔹hydrating, .
🔹eating plenty of fiber, .
🔹walking, .
🔹getting MLD, .
🔹treating my varicose veins,
🔹conquering or eliminating stress in my life, and .
🔹keeping my heart filled with love... . .
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#lipedema #lipedemasucks #lipedemalegs #lipedemawarrior #painfulfat #mindfuleating #pelviccongestion #pelviccongestionsyndrome #abdominaladhesions #abdominaladhesionscausingvaricoseveins #varicoseveins #vasculardisease #leakyveins #badveins #venousablation #venogram #poorlymphaticdrainage #collagendisorder #ehlersdanlos #ehlersdanlosveins #ehlersdanlosadhesions #ehlersdanlosscartissue #collagendisorder #MTHFR #stressisakiller
Pictures don’t do the lipedema progress justice. I decided to post a video. It was much quicker. ... ▫️My legs look beat up from a venous ablation and a venogram of the pelvis but they are improving! I can see a little of my calf muscle!!! 😁 . ▫️Addressing the varicose veins has helped with the intense fatty tissue pain and swelling but I still have to be very careful why I eat and drink. . ▫️I am doing my best to eliminate soda and processed drinks of any kind, fried foods, processed foods, junk food, animal products, alcohol, and anything else that makes my legs swell... I feel like what goes in my mouth eventually settles in my leg and arm tissue so I am keeping it clean, simple, and natural. . ▫️My mindful eating exercise is enjoying absorbing nutrients from food instead of enjoying the taste. Not that my meals don’t taste good, but it’s about the nutrient content and how it improves the lipedema that I look forward too now. I eat, listen to my body and then crave what does not hurt me. . ▫️The weight just keeps coming off by doing this: . 🔹trying to keep “clean” calories below 1200, 🔹hydrating, . 🔹eating plenty of fiber, . 🔹walking, . 🔹getting MLD, . 🔹treating my varicose veins, 🔹conquering or eliminating stress in my life, and . 🔹keeping my heart filled with love... . . . #lipedema  #lipedemasucks  #lipedemalegs  #lipedemawarrior  #painfulfat  #mindfuleating  #pelviccongestion  #pelviccongestionsyndrome  #abdominaladhesions  #abdominaladhesionscausingvaricoseveins  #varicoseveins  #vasculardisease  #leakyveins  #badveins  #venousablation  #venogram  #poorlymphaticdrainage  #collagendisorder  #ehlersdanlos  #ehlersdanlosveins  #ehlersdanlosadhesions  #ehlersdanlosscartissue  #collagendisorder  #MTHFR  #stressisakiller 
My trip to Melbourne was exhausting but unbelievably worth it! -
This year was the first time I skippered at nationals and I had the best time. I am not sure if I will continue to sail after I finish high school with my EDS becoming more difficult to manage during physical activity but I try and enjoy every moment I can. I really love it and I am so thankful to my school, family and team for making my final nationals so special. As Mary Frey always says “do what you think you can’t do” ☺️
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My first big set of exams are coming up this week and I am unbelievably nervous but also confident in my abilities so that’s good 👍 hope everyone is doing ok xx
My trip to Melbourne was exhausting but unbelievably worth it! - This year was the first time I skippered at nationals and I had the best time. I am not sure if I will continue to sail after I finish high school with my EDS becoming more difficult to manage during physical activity but I try and enjoy every moment I can. I really love it and I am so thankful to my school, family and team for making my final nationals so special. As Mary Frey always says “do what you think you can’t do” ☺️ - My first big set of exams are coming up this week and I am unbelievably nervous but also confident in my abilities so that’s good 👍 hope everyone is doing ok xx
Silly little pishi 💕🌸🐱 Woke early this morning with a foggy head. I got my medicine situation fixed and I feel like I actually slept...but now the nausea is back 🤢I took antacids and Onadestron so hopefully that will ease my discomfort.

I'm having serious concerns about gastroparesis. The past 3 months or so, my nausea has increased significantly. When I eat, I can only eat a few bites before feeling full, and then it feels like the food just sits in my belly like a rock. I've lost 15 lbs (7 kg) in the last couple months. After eating, I get clammy and sweaty and EXHAUSTED. Hell, last night, I had 4 bites of a salad and a chicken tender and 40 minutes later, I was in Target in my wheelchair willing myself not to get sick in the store. 
I know EDS and gastroparesis have high comorbidity...I just wish my body would chill out. I'm so tired of being sick and tired. I don't want any more diagnoses. I just want to learn to live well with what I already have. But new symptoms keep showing up 😣😣😣 Have a good Saturday, guys. Love and spoons! 🥄🥄🥄🥄 #spoonie #spoonielife #ehlersdanlossyndrome #ehlersdanlos #fibromyalgia #dysautonomia #interstitialcystitis #arthritis #osteoarthritis #hippain #hipfai #femoralacetabularimpingement #chronicillness #chronicpain #chronicwarrior #gastroparesis #sick #kitten #tuxedokittensofinstagram #tuxedocat #tuxedokitten #baercatmouse
Silly little pishi 💕🌸🐱 Woke early this morning with a foggy head. I got my medicine situation fixed and I feel like I actually slept...but now the nausea is back 🤢I took antacids and Onadestron so hopefully that will ease my discomfort. I'm having serious concerns about gastroparesis. The past 3 months or so, my nausea has increased significantly. When I eat, I can only eat a few bites before feeling full, and then it feels like the food just sits in my belly like a rock. I've lost 15 lbs (7 kg) in the last couple months. After eating, I get clammy and sweaty and EXHAUSTED. Hell, last night, I had 4 bites of a salad and a chicken tender and 40 minutes later, I was in Target in my wheelchair willing myself not to get sick in the store. I know EDS and gastroparesis have high comorbidity...I just wish my body would chill out. I'm so tired of being sick and tired. I don't want any more diagnoses. I just want to learn to live well with what I already have. But new symptoms keep showing up 😣😣😣 Have a good Saturday, guys. Love and spoons! 🥄🥄🥄🥄 #spoonie  #spoonielife  #ehlersdanlossyndrome  #ehlersdanlos  #fibromyalgia  #dysautonomia  #interstitialcystitis  #arthritis  #osteoarthritis  #hippain  #hipfai  #femoralacetabularimpingement  #chronicillness  #chronicpain  #chronicwarrior  #gastroparesis  #sick  #kitten  #tuxedokittensofinstagram  #tuxedocat  #tuxedokitten  #baercatmouse 
Chronic fatigue syndrome is a complicated disorder characterized by extreme fatigue that can't be explained by any underlying medical condition. The fatigue may worsen with physical or mental activity, but doesn't improve with rest.
This condition is also known as systemic exertion intolerance disease or myalgic encephalomyelitis. Sometimes it's abbreviated as ME/CFS.

People who have chronic fatigue syndrome appear to be hypersensitive to even normal amounts of exercise and activity.
Why this occurs in some people and not others is still unknown. Some people may be born with a predisposition for the disorder, which is then triggered by a combination of factors.

For me the term "fatigue" doesn’t represent the situation well. We are not tired like normal people returning from a day's work for example. We are exhausted, sometimes unable to get up or talk. I think that is why many people do not understand when they are told chronic fatigue because they too are maybe tired.

Since childhood I have always been easily tired. I could not play sports at school because then I could not follow the classes of the day. Everyone thought I was lazy so I thought it was that. And then I started working and there I was totally exhausted. I did a very physical job that was horrible in terms of fatigue but also pain. 
Since I have oxygen I feel a little less tired but there are always days when I can not get up, I can not do anything so much fatigue trumps me. I do a lot of research on chronic fatigue but there is not really any cure for that.

Do you have something that improves your chronic fatigue?  #syndromedehlersdanlos #fatigue #chroniclife #chronicfatigue #chronicallyill #chronicwarrior #invisiblepain #invisibleillness #autoimmunedisease #ehlersdanlos #eds #ehlersdanlossyndrome #spoonie #spoonielife #spooniestrong #zebra #zebrawarrior #spooniewarrior #fatiguechronique #chronicfatiguesyndrome #chronicpain
Chronic fatigue syndrome is a complicated disorder characterized by extreme fatigue that can't be explained by any underlying medical condition. The fatigue may worsen with physical or mental activity, but doesn't improve with rest. This condition is also known as systemic exertion intolerance disease or myalgic encephalomyelitis. Sometimes it's abbreviated as ME/CFS. People who have chronic fatigue syndrome appear to be hypersensitive to even normal amounts of exercise and activity. Why this occurs in some people and not others is still unknown. Some people may be born with a predisposition for the disorder, which is then triggered by a combination of factors. For me the term "fatigue" doesn’t represent the situation well. We are not tired like normal people returning from a day's work for example. We are exhausted, sometimes unable to get up or talk. I think that is why many people do not understand when they are told chronic fatigue because they too are maybe tired. Since childhood I have always been easily tired. I could not play sports at school because then I could not follow the classes of the day. Everyone thought I was lazy so I thought it was that. And then I started working and there I was totally exhausted. I did a very physical job that was horrible in terms of fatigue but also pain. Since I have oxygen I feel a little less tired but there are always days when I can not get up, I can not do anything so much fatigue trumps me. I do a lot of research on chronic fatigue but there is not really any cure for that. Do you have something that improves your chronic fatigue? #syndromedehlersdanlos  #fatigue  #chroniclife  #chronicfatigue  #chronicallyill  #chronicwarrior  #invisiblepain  #invisibleillness  #autoimmunedisease  #ehlersdanlos  #eds  #ehlersdanlossyndrome  #spoonie  #spoonielife  #spooniestrong  #zebra  #zebrawarrior  #spooniewarrior  #fatiguechronique  #chronicfatiguesyndrome  #chronicpain 
Dry shampoo is wonderful. Lazy? Dry shampoo! Tired? Dry shampoo! Joints not behaving? Dry shampoo! Shower too risky? Dry shampoo! Should probably avoid all naked flames for the foreseeable future though... #ehlersdanlossyndrome #ehlersdanlos #fibromyalgia #reactivearthritis #gastroparesis #spoonie #spoonielife #spooniesquad #spooniesunite #spooniediaries #pain #chronicpain #chronicillness #chronicallyfabulous #lifeafterdiagnosis #laurasspooniediaries #hospital #hospitallife #hospitalappointment #linkinbio #blog #blogpost #blogger #bloggerlife #lblogger #lbloggers #spoonieblogger #spoonieblog
Dry shampoo is wonderful. Lazy? Dry shampoo! Tired? Dry shampoo! Joints not behaving? Dry shampoo! Shower too risky? Dry shampoo! Should probably avoid all naked flames for the foreseeable future though... #ehlersdanlossyndrome  #ehlersdanlos  #fibromyalgia  #reactivearthritis  #gastroparesis  #spoonie  #spoonielife  #spooniesquad  #spooniesunite  #spooniediaries  #pain  #chronicpain  #chronicillness  #chronicallyfabulous  #lifeafterdiagnosis  #laurasspooniediaries  #hospital  #hospitallife  #hospitalappointment  #linkinbio  #blog  #blogpost  #blogger  #bloggerlife  #lblogger  #lbloggers  #spoonieblogger  #spoonieblog 
So my last foot alignment took out something in my back again and I have really bad sciatica. Being nerve pain, painkillers won’t do much. Also, my muscles are tending up to keep me aligned and compensate for the pain. I rarely stretch due to EDS because I’m hypermobile aside from joints and muscles that are tense due to weakness, injury or overcompensation. Here’s a stretching routine that works on the muscles the sciatica nerve goes through. My hope is that as the muscles relax, the nerve will be less irritated and as my back settles, the nerve will finish settling. As with any stretching regime, go as far as is sensible. Breathe through it and try and keep the stretches moving. I was adding little movements in each stretch. @ehlersdanlosuk #amputeegirl #luckyfin #ehlersdanlossyndrome #inpain #hypermobility #hypermobilitysyndrome #ehlersdanlos #sciatica #lotsofpain #chronicpain #chronicfatigue #chronicillness #injury #stretching #mobilisation #keepmoving #selfcare #selfcarematters #useitorloseit #cancersurvivor #keepongoing #worktowardsyourgoals #onlyyoucandoit #staymotivated #puttheworkin #stretchingtime #cooldown #physiotherapy #rangeofmotion
So my last foot alignment took out something in my back again and I have really bad sciatica. Being nerve pain, painkillers won’t do much. Also, my muscles are tending up to keep me aligned and compensate for the pain. I rarely stretch due to EDS because I’m hypermobile aside from joints and muscles that are tense due to weakness, injury or overcompensation. Here’s a stretching routine that works on the muscles the sciatica nerve goes through. My hope is that as the muscles relax, the nerve will be less irritated and as my back settles, the nerve will finish settling. As with any stretching regime, go as far as is sensible. Breathe through it and try and keep the stretches moving. I was adding little movements in each stretch. @ehlersdanlosuk #amputeegirl  #luckyfin  #ehlersdanlossyndrome  #inpain  #hypermobility  #hypermobilitysyndrome  #ehlersdanlos  #sciatica  #lotsofpain  #chronicpain  #chronicfatigue  #chronicillness  #injury  #stretching  #mobilisation  #keepmoving  #selfcare  #selfcarematters  #useitorloseit  #cancersurvivor  #keepongoing  #worktowardsyourgoals  #onlyyoucandoit  #staymotivated  #puttheworkin  #stretchingtime  #cooldown  #physiotherapy  #rangeofmotion 
Wonder where I am today.....well it's my mum's birthday tomorrow, so it's her treat weekend. Out for breakfast first. In a lovely setting. Peaceful and relaxing with beautiful surroundings. Cinema later to see mum's choice of film. Mum does so much for me and for my boyfriend, but his weekend to have his youngest so he couldn't be part of it. Only right she gets spoilt every now and then. She has fought for me all my life and still does as an adult. She was the one who first found out about Ehlers Danlos Syndrome but the doctors wouldn't listen, saying it was too rare. My mum turned to me Monday after my renal appointment to say "it's ok, I'll give you one of my kidneys when the time comes" Mum has always said I am special, always taught me to stand up to others and not waste my time on those who don't deserve it. My mum is always there for me and I am there for her, "mother by chance, friends by choice" #mumsbirthday #birthdaytreat #roses #davidaustinroses #tea #breakfast #breakfasttreat #mymumisamazing #motherdaughter #motherdaughtertime #birthdayweekend #birthday #igetbywithalittlehelpfrommymum #belostwithoutyou #ehlersdanlossyndrome #ehlersdanlos #chronicallyill #chronicfatigue #alwaysthere #poshtea #poshcuppa #poshbreakfast
Wonder where I am today.....well it's my mum's birthday tomorrow, so it's her treat weekend. Out for breakfast first. In a lovely setting. Peaceful and relaxing with beautiful surroundings. Cinema later to see mum's choice of film. Mum does so much for me and for my boyfriend, but his weekend to have his youngest so he couldn't be part of it. Only right she gets spoilt every now and then. She has fought for me all my life and still does as an adult. She was the one who first found out about Ehlers Danlos Syndrome but the doctors wouldn't listen, saying it was too rare. My mum turned to me Monday after my renal appointment to say "it's ok, I'll give you one of my kidneys when the time comes" Mum has always said I am special, always taught me to stand up to others and not waste my time on those who don't deserve it. My mum is always there for me and I am there for her, "mother by chance, friends by choice" #mumsbirthday  #birthdaytreat  #roses  #davidaustinroses  #tea  #breakfast  #breakfasttreat  #mymumisamazing  #motherdaughter  #motherdaughtertime  #birthdayweekend  #birthday  #igetbywithalittlehelpfrommymum  #belostwithoutyou  #ehlersdanlossyndrome  #ehlersdanlos  #chronicallyill  #chronicfatigue  #alwaysthere  #poshtea  #poshcuppa  #poshbreakfast 
One of the main types of #hypermobile #EhlersDanlos pain is a feeling of heaviness that brings intense, deep, burning, stabbing pain to the effected area. My neck has been in a bad way since Monday night. Tonight, I can feel it in my right shoulder, right ear, my neck/shoulder intersection, my right scalp, my right temple, myth right cheek and the length of the big tendon that runs up my neck on the right side in the back. 
It's maddening. From what I understand, some of this (maybe all of it) is myofascial. I have also learned tonight that this intense pain is remarkably common in #EDS patients. This makes the second time in recent memory that this hasn't gone away in a day or two with rest, cold/heat, muscle relaxers and anti-inflammatories. So, tonight, we went to the late night #Walgreens and picked this gem up. Almost immediately, a sense of some relief!

The pain is still there but it doesn't feel like my head weighs 300 pounds and is going to crush my neck and fall into my body cavity. I actually feel genuinely relaxed (as much as I can be) for the first time this week. 
Thank you, #zebras, for suggesting this #cervicalcollar to me. Your stripes are showing and they are beautiful.
One of the main types of #hypermobile  #EhlersDanlos  pain is a feeling of heaviness that brings intense, deep, burning, stabbing pain to the effected area. My neck has been in a bad way since Monday night. Tonight, I can feel it in my right shoulder, right ear, my neck/shoulder intersection, my right scalp, my right temple, myth right cheek and the length of the big tendon that runs up my neck on the right side in the back. It's maddening. From what I understand, some of this (maybe all of it) is myofascial. I have also learned tonight that this intense pain is remarkably common in #EDS  patients. This makes the second time in recent memory that this hasn't gone away in a day or two with rest, cold/heat, muscle relaxers and anti-inflammatories. So, tonight, we went to the late night #Walgreens  and picked this gem up. Almost immediately, a sense of some relief! The pain is still there but it doesn't feel like my head weighs 300 pounds and is going to crush my neck and fall into my body cavity. I actually feel genuinely relaxed (as much as I can be) for the first time this week. Thank you, #zebras , for suggesting this #cervicalcollar  to me. Your stripes are showing and they are beautiful.
Blood & urine tests for today were apparently marked urgent so should be in soon! 😊 I do have petrichae from the band, though 🤷🏼‍♀️ I’m more than ready for these results!🦋
#ChronicIllnessChallenge
Day1️⃣8️⃣
I do think illness has made me kinder and more empathetic. It’s helped me to see plights I might never have otherwise understood, and to consider what’s really important! 🥄🦓🦋
Blood & urine tests for today were apparently marked urgent so should be in soon! 😊 I do have petrichae from the band, though 🤷🏼‍♀️ I’m more than ready for these results!🦋 #ChronicIllnessChallenge  Day1️⃣8️⃣ I do think illness has made me kinder and more empathetic. It’s helped me to see plights I might never have otherwise understood, and to consider what’s really important! 🥄🦓🦋
🖤 Regrann from @crohns_spoonie - 👉 #TRUTH The physical scars... and the emotional ones. Everything we’ve had to fight... and are still fighting. The disease on the inside... and the bag or tube on the outside. The pain we swallow... and the smile we wear. Whatever you think you know... we are more than what meets the eye! We all have a story to be told ❤️
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#invisibleillnessawareness #youarenotalone
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#ehlersdanlos #nevergiveup #autoimmunedisease #crohnsdisease #ostomy #spoonie #nocolonstillrollin #chronicallyill #selflove #potssyndrome #keepgoing #inflammatoryboweldisease #eds #dysautonomia #crohnsandcolitis #mastcell #ehlersdanlossyndrome #fibromyalgia #invisibledisease #chronicpain #IBD #mastcellactivation #autoimmune #chronicillness #posturalorthostatictachycardiasyndrome #crohns #invisibleillness 📷: Google
🖤 Regrann from @crohns_spoonie - 👉 #TRUTH  The physical scars... and the emotional ones. Everything we’ve had to fight... and are still fighting. The disease on the inside... and the bag or tube on the outside. The pain we swallow... and the smile we wear. Whatever you think you know... we are more than what meets the eye! We all have a story to be told ❤️ . #invisibleillnessawareness  #youarenotalone  . . . . . . . . . . . #ehlersdanlos  #nevergiveup  #autoimmunedisease  #crohnsdisease  #ostomy  #spoonie  #nocolonstillrollin  #chronicallyill  #selflove  #potssyndrome  #keepgoing  #inflammatoryboweldisease  #eds  #dysautonomia  #crohnsandcolitis  #mastcell  #ehlersdanlossyndrome  #fibromyalgia  #invisibledisease  #chronicpain  #IBD  #mastcellactivation  #autoimmune  #chronicillness  #posturalorthostatictachycardiasyndrome  #crohns  #invisibleillness  📷: Google
Today - Saturday, July 21st, 2018! ‘Restorative Exercise & Mind-Body Movement Strategies for Restoring Function & Living Well’ - Discussion & Workshop for the DC/MD/VA MCAS (mast cell) support group in collaboration with Dysautonomia Support Network (DSN) (& @edswellness - me!). Time: 1-4pm EST at Restore Physical Therapy & Wellness in Ashburn, Va. Email mariacdastur@gmail.com for more info or if interested in attending. This is not a “class,” but will be an interactive learning discussion on various types of mind-body movement strategies, biomechanics, natural movement, research, resources and other pertinent information related to moving more and moving well. And ways to climb out of the spiral or “EDS/MCAS Spiral.” There may be a short gentle chair yoga class at the end for those interested and time depending. #Just5Minutes #NaturalMovement #LiveEDSStrong #Persevere #restorativeexercise #EDSWellness #Gratitude #LiveEveryDayBetter #HealthEducator #MovementMatters #correctiveexercise #barefoot #Namaste #MoveMore #MoveYourDNA #hypermobility #EhlersDanlos #restoredwellness #ZebraStrong #patientadvocate
Today - Saturday, July 21st, 2018! ‘Restorative Exercise & Mind-Body Movement Strategies for Restoring Function & Living Well’ - Discussion & Workshop for the DC/MD/VA MCAS (mast cell) support group in collaboration with Dysautonomia Support Network (DSN) (& @edswellness - me!). Time: 1-4pm EST at Restore Physical Therapy & Wellness in Ashburn, Va. Email mariacdastur@gmail.com for more info or if interested in attending. This is not a “class,” but will be an interactive learning discussion on various types of mind-body movement strategies, biomechanics, natural movement, research, resources and other pertinent information related to moving more and moving well. And ways to climb out of the spiral or “EDS/MCAS Spiral.” There may be a short gentle chair yoga class at the end for those interested and time depending. #Just5Minutes  #NaturalMovement  #LiveEDSStrong  #Persevere  #restorativeexercise  #EDSWellness  #Gratitude  #LiveEveryDayBetter  #HealthEducator  #MovementMatters  #correctiveexercise  #barefoot  #Namaste  #MoveMore  #MoveYourDNA  #hypermobility  #EhlersDanlos  #restoredwellness  #ZebraStrong  #patientadvocate 
#nofilter The #surfacepro will legit change my school game so hard. I am SO GLAD that I didnt go with the iPad or Galaxy Tab. The iPad seems to be geared towards artists and the Galaxy tab is geared towards the general public, I think. The SurfacePro was fucking MADE for us medical students and science majors! The amount of things you can do with this baby is incredible! The OneNote along is a game changer for school. You can record audio, take notes, draw. . .switching between pens and sizes and colours is so simple and fast and the highlighters are GREAT and work better than real highlighters and the pen is pressure sensitive and it's so smooth to write with. No more stopping to put down a pen while colour coding and highlight notes. No more taking extra time to go over your words a million times to make them bigger. The onenote app makes it that much easier and saves you time so you can do it while your professors talks. Then there's freehand drawing as well as drawing that can be fit to perfection from your freehand (ie; draw a circle freehand and it will correct it to a perfect circle for you) and it has built in graphs and table and diagrams that you can size and position to your liking on the page and write/draw in/around/on/etc at your leisure. You can do all this right next to your recorded audio while it is recording. And the organization factors of this tablet is incredible! There are main folders and then folders inside of the folders and they are right on the side and they are colour coded and named to your liking so they're easy to be sorted through. As someone who is #premed and has #osteoarthritis and cannot carry heavy things around campus all day, this is very literally a game changer for me. I can leave all my books and notebooks at home and get the ebooks pulled up here and use the dual view to take notes while my book is on the other side of the page. You can turn off having it register any touch sensation while you're writing with the pen, too, so no worries about you laying your hand on the screen while you write like you would on a notepad. And no more obnoxiously time consuming flipping of pages because all you need to do is scroll down!
#nofilter  The #surfacepro  will legit change my school game so hard. I am SO GLAD that I didnt go with the iPad or Galaxy Tab. The iPad seems to be geared towards artists and the Galaxy tab is geared towards the general public, I think. The SurfacePro was fucking MADE for us medical students and science majors! The amount of things you can do with this baby is incredible! The OneNote along is a game changer for school. You can record audio, take notes, draw. . .switching between pens and sizes and colours is so simple and fast and the highlighters are GREAT and work better than real highlighters and the pen is pressure sensitive and it's so smooth to write with. No more stopping to put down a pen while colour coding and highlight notes. No more taking extra time to go over your words a million times to make them bigger. The onenote app makes it that much easier and saves you time so you can do it while your professors talks. Then there's freehand drawing as well as drawing that can be fit to perfection from your freehand (ie; draw a circle freehand and it will correct it to a perfect circle for you) and it has built in graphs and table and diagrams that you can size and position to your liking on the page and write/draw in/around/on/etc at your leisure. You can do all this right next to your recorded audio while it is recording. And the organization factors of this tablet is incredible! There are main folders and then folders inside of the folders and they are right on the side and they are colour coded and named to your liking so they're easy to be sorted through. As someone who is #premed  and has #osteoarthritis  and cannot carry heavy things around campus all day, this is very literally a game changer for me. I can leave all my books and notebooks at home and get the ebooks pulled up here and use the dual view to take notes while my book is on the other side of the page. You can turn off having it register any touch sensation while you're writing with the pen, too, so no worries about you laying your hand on the screen while you write like you would on a notepad. And no more obnoxiously time consuming flipping of pages because all you need to do is scroll down!
I LOVE #marktwain and after reading the news, dealing with my health insurance, and the new restrictions on my pain medications at the Pharmacy I really do like this little girl more than 80% of humans and that is after she destroyed the comforter. #pug #quoteoftheday #theeverygirl #risingtidesociety #marriage #relationshipgoals #snarky #sarcasm #spoonie #ehlersdanlos #chronicillness #invisibleillness #disabled #selfcare #eds #chronicpain #prorecovery #pots #dysautonomia #fibromyalgia #raredisease #spooniestrong #sickandtiredofbeingsickandtired #disability #wellnessblogger #chronicillnesswarrior #spoonielife #fatigue #sickgirl
I LOVE #marktwain  and after reading the news, dealing with my health insurance, and the new restrictions on my pain medications at the Pharmacy I really do like this little girl more than 80% of humans and that is after she destroyed the comforter. #pug  #quoteoftheday  #theeverygirl  #risingtidesociety  #marriage  #relationshipgoals  #snarky  #sarcasm  #spoonie  #ehlersdanlos  #chronicillness  #invisibleillness  #disabled  #selfcare  #eds  #chronicpain  #prorecovery  #pots  #dysautonomia  #fibromyalgia  #raredisease  #spooniestrong  #sickandtiredofbeingsickandtired  #disability  #wellnessblogger  #chronicillnesswarrior  #spoonielife  #fatigue  #sickgirl 
Today was exhausting, in the best way. Both James and I are sore af and ready for more (after a rest day or two 😂). ❤️ Hope everyone is having a good Fri-yay!
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#ehlersdanlossyndrome #ehlersdanlos #chronicillness #chronicpain #pain #disability #invisibleillness #hypermobility #edswarrior #edsawareness #EDSathlete #fragilebutunbreakable #EDS #lupus #sjogrens #sjögrens #instafit #instafitness #myfitnesspal #flexibledieting #gymgirls #gymgirl #weightlifting #girlswholift #gwl #gymrat #grrrlarmy #strongman #disabledstrongman
Today was exhausting, in the best way. Both James and I are sore af and ready for more (after a rest day or two 😂). ❤️ Hope everyone is having a good Fri-yay! . #ehlersdanlossyndrome  #ehlersdanlos  #chronicillness  #chronicpain  #pain  #disability  #invisibleillness  #hypermobility  #edswarrior  #edsawareness  #EDSathlete  #fragilebutunbreakable  #EDS  #lupus  #sjogrens  #sjögrens  #instafit  #instafitness  #myfitnesspal  #flexibledieting  #gymgirls  #gymgirl  #weightlifting  #girlswholift  #gwl  #gymrat  #grrrlarmy  #strongman  #disabledstrongman 
“Once you’ve accepted your flaws no one can use them against you” I thought of this quote because the last few days have been rough and I'm still in a lot of pain. (seriously, this is my I'm fucking over it face) I used to think I just needed to accept my flaws. They had been used against me a lot and my self image suffered greatly because of it. I had a lot of flaws, according to other people and struggled to accept them. I thought there was something inherently wrong with me. The truth is, there isn’t. Do I have some issues? Hell yeah. Am I sick? Yup. Do I make mistakes? Absolutely.

Why do we look at things as flaws? They are part of us, they make us who we are, how we see the world, how we interact with people.  That being said, we should take time to reflect, to see where we can be better humans, and do what we can do make that happen. To suggest someone is flawed is telling them they cannot be "fixed". I'm not talking about abusive or hurtful behaviors or things we know are not okay to do. There are things however that we cannot change about ourselves and those are often looked at as flaws. Flawed suggest you are broken, not enough, not worthy of love….. I was there, I still struggle accepting myself sometimes. 
My challenge is to look at those things and see how they have helped me. Being sick has given me more compassion and understanding. It’s teaching me self-care and balance. It taught me there are people who are okay with me being sick, they accept it and see beyond it.  My marriage taught me to look at people as they are not who they say they want to or will be. I've learned to stand up for myself and have boundaries. My mistakes each teach me a different lesson if I allow them to. These are not flaws, they are a part of me and my life. Even while I am still sorting things out I am worthy of love, I am a decent human being who tries to be kind, I am not less than because I am sick. I am not flawed. I may be weird and a little bit crazy but that just adds to my charm and I accept that ;) #chronicillness #chronicpain #ehlersdanlos #eds #loveyourself
“Once you’ve accepted your flaws no one can use them against you” I thought of this quote because the last few days have been rough and I'm still in a lot of pain. (seriously, this is my I'm fucking over it face) I used to think I just needed to accept my flaws. They had been used against me a lot and my self image suffered greatly because of it. I had a lot of flaws, according to other people and struggled to accept them. I thought there was something inherently wrong with me. The truth is, there isn’t. Do I have some issues? Hell yeah. Am I sick? Yup. Do I make mistakes? Absolutely. Why do we look at things as flaws? They are part of us, they make us who we are, how we see the world, how we interact with people. That being said, we should take time to reflect, to see where we can be better humans, and do what we can do make that happen. To suggest someone is flawed is telling them they cannot be "fixed". I'm not talking about abusive or hurtful behaviors or things we know are not okay to do. There are things however that we cannot change about ourselves and those are often looked at as flaws. Flawed suggest you are broken, not enough, not worthy of love….. I was there, I still struggle accepting myself sometimes. My challenge is to look at those things and see how they have helped me. Being sick has given me more compassion and understanding. It’s teaching me self-care and balance. It taught me there are people who are okay with me being sick, they accept it and see beyond it. My marriage taught me to look at people as they are not who they say they want to or will be. I've learned to stand up for myself and have boundaries. My mistakes each teach me a different lesson if I allow them to. These are not flaws, they are a part of me and my life. Even while I am still sorting things out I am worthy of love, I am a decent human being who tries to be kind, I am not less than because I am sick. I am not flawed. I may be weird and a little bit crazy but that just adds to my charm and I accept that ;) #chronicillness  #chronicpain  #ehlersdanlos  #eds  #loveyourself 
In the last few days we’ve had excessive heat warnings, and it’s going to continue into next week. The “real feel” today reached 111•F (43•C), plus humidity. 🌡🔥 For those of us that have been hit really hard by the soaring temps, here are just a few things to keep in mind: • People with chronic illness are at a higher risk for heat related issues • Medications can affect how your body responds to heat and how it regulates your body temperature • There *are* things you can do to help keep yourself cool, and lower your risk of heat stroke and heat exhaustion. • Be sure to play close attention to how your body reacts to the heat, and your ability to sweat. Antidepressants, antihistamines, and beta blockers are some of the meds that can hinder your response to heat. Ive found that summer in particular is the worst “season” for my inflammation. I can also expect dizziness, nausea, zero energy & appetite, inability to regulate my body temp, and a good ol fashioned heat headache. ☀️ But I am vigilant in how much liquid I’m taking in. I drink a ton of electrolyte water and coconut water to stay hydrated. I LOVE popsicles, and I have my #Ensure drinks to make sure I get some #vitamins and #protein, and I am a big fan of using cold compresses on my pulse points: neck, temples, throat, wrists, elbows and behind my knees. Limiting outdoor activities to only what’s necessary can play a large role in staying comfortable during the heat wave. Be smart, pay attention, take care of your pets, and stay cool! ❄️⛄️ What sort of things do you do to help survive the summer temps?? ⛄️❄️ #summer #heatwave #louisianasummer #protectyourself #selfcare #chronicillness #medical #medication #spoonie #excessiveheatwarning #staycool #beattheheat #crohns #autoimmune #MALS #EDS #ehlersdanlos #educate #advocate #support #awareness
In the last few days we’ve had excessive heat warnings, and it’s going to continue into next week. The “real feel” today reached 111•F (43•C), plus humidity. 🌡🔥 For those of us that have been hit really hard by the soaring temps, here are just a few things to keep in mind: • People with chronic illness are at a higher risk for heat related issues • Medications can affect how your body responds to heat and how it regulates your body temperature • There *are* things you can do to help keep yourself cool, and lower your risk of heat stroke and heat exhaustion. • Be sure to play close attention to how your body reacts to the heat, and your ability to sweat. Antidepressants, antihistamines, and beta blockers are some of the meds that can hinder your response to heat. Ive found that summer in particular is the worst “season” for my inflammation. I can also expect dizziness, nausea, zero energy & appetite, inability to regulate my body temp, and a good ol fashioned heat headache. ☀️ But I am vigilant in how much liquid I’m taking in. I drink a ton of electrolyte water and coconut water to stay hydrated. I LOVE popsicles, and I have my #Ensure  drinks to make sure I get some #vitamins  and #protein , and I am a big fan of using cold compresses on my pulse points: neck, temples, throat, wrists, elbows and behind my knees. Limiting outdoor activities to only what’s necessary can play a large role in staying comfortable during the heat wave. Be smart, pay attention, take care of your pets, and stay cool! ❄️⛄️ What sort of things do you do to help survive the summer temps?? ⛄️❄️ #summer  #heatwave  #louisianasummer  #protectyourself  #selfcare  #chronicillness  #medical  #medication  #spoonie  #excessiveheatwarning  #staycool  #beattheheat  #crohns  #autoimmune  #MALS  #EDS  #ehlersdanlos  #educate  #advocate  #support  #awareness 
i got ginger 2 bandanas and they’re reversible!! i love the way they look on her 
swipe to see a cute little video of her doing her “dance” trick!! (i did this to make sure she was comfortable in a bandana, as i can’t remember the last time she had one on)
i got ginger 2 bandanas and they’re reversible!! i love the way they look on her swipe to see a cute little video of her doing her “dance” trick!! (i did this to make sure she was comfortable in a bandana, as i can’t remember the last time she had one on)
As long as you’re in my tribe you’re never alone.
As long as you’re in my tribe you’re never alone.
After some four to five years I'm having my first eczema flare up. It makes sense, since stress has a huge impact on every aspect of my health.
 It seems like such a tiny thing- such a normal problem- but for me it's maddening. My skin is already incredibly fragile due to my EDS, so having the angry patch of dry and cracking skin right between my fingers makes doing nearly anything painful.
I almost wish it was hives. At least those go away fairly quickly.
Nearly three weeks into this flare up. Longest I've ever had. Let's see how long it stays.
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#SkinCondition #Eczema #EhlersDanlos #ConnectiveTissueDisorder
After some four to five years I'm having my first eczema flare up. It makes sense, since stress has a huge impact on every aspect of my health. It seems like such a tiny thing- such a normal problem- but for me it's maddening. My skin is already incredibly fragile due to my EDS, so having the angry patch of dry and cracking skin right between my fingers makes doing nearly anything painful. I almost wish it was hives. At least those go away fairly quickly. Nearly three weeks into this flare up. Longest I've ever had. Let's see how long it stays. . . . . . #SkinCondition  #Eczema  #EhlersDanlos  #ConnectiveTissueDisorder 
Due to chronic illness and being generally overwhelmed with life, I've been a homebody lately. Luckily, I've succeeded at making my home the coziest, most relaxing, and happiest place for me. I have my dog and all my plants and everything I need to create anything I want.
Who else is a chronically ill homebody introvert artist like myself?
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#homesweethome #selfie #cozy #dreadlocks #girlswithdreads #darkmori #tattoos #alternativegirl #gothgoth #artist #introvert #chronicillness #ehlersdanlos #actuallyautistic #faerie #hairliketreeroots
Due to chronic illness and being generally overwhelmed with life, I've been a homebody lately. Luckily, I've succeeded at making my home the coziest, most relaxing, and happiest place for me. I have my dog and all my plants and everything I need to create anything I want. Who else is a chronically ill homebody introvert artist like myself? . . . . . #homesweethome  #selfie  #cozy  #dreadlocks  #girlswithdreads  #darkmori  #tattoos  #alternativegirl  #gothgoth  #artist  #introvert  #chronicillness  #ehlersdanlos  #actuallyautistic  #faerie  #hairliketreeroots 
"Although the world is full of suffering, it is also full with the overcoming of it." -Helen Keller- .
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For so long I saw little to no hope for myself and just accepted it. Finally I had to do something and did tons of research. Through climate and cannabis I can control my pain, and in return work out to grow my muscles to support my joints since my collagen can not. It will be painful, difficult, and a long road but I am absolutely willing to fight! One day, some how, this pain will be worth it, because my good days will out weigh the bad days! 💚Love and hugs to you all! .
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#spoonielife #ehlersdanlos #heds #ehlersdanlossyndrome #chronicbackpain #chronicpain #cervicalstenosis #herniateddisc #zebralife #holistichealth #holisticmedicine #legalizemedicalmarijuana #weedismedicine #marijuanamovement #nevadabound #medicalrefugee #invisibleillness #doilooksick #risingzebra
"Although the world is full of suffering, it is also full with the overcoming of it." -Helen Keller- . . . For so long I saw little to no hope for myself and just accepted it. Finally I had to do something and did tons of research. Through climate and cannabis I can control my pain, and in return work out to grow my muscles to support my joints since my collagen can not. It will be painful, difficult, and a long road but I am absolutely willing to fight! One day, some how, this pain will be worth it, because my good days will out weigh the bad days! 💚Love and hugs to you all! . . . . #spoonielife  #ehlersdanlos  #heds  #ehlersdanlossyndrome  #chronicbackpain  #chronicpain  #cervicalstenosis  #herniateddisc  #zebralife  #holistichealth  #holisticmedicine  #legalizemedicalmarijuana  #weedismedicine  #marijuanamovement  #nevadabound  #medicalrefugee  #invisibleillness  #doilooksick  #risingzebra 
Sometimes it is hard to appreciate the good things when everything seems to be going wrong, but once you do it makes things seem just a little bit brighter. On the other hand it DOES NOT make you a bad/negative/etc person if you are too overwhelmed or upset to appreciate it in the moment. Things can suck. Things do suck! And you know what? You’re kicking ass anyway. **
I am pretty proud of myself today. I finished summer school, went to the dog park with Hedwig and June + my sister and stepmom, and I just got home from seeing a movie! I am exhausted and in pain but I had fun despite that and I am glad to have soldiered through. Now for a nap and cooling off!
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#chronicillness #chronicpain #ehlersdanlossyndrome #ehlersdanlos #eds #ehlersdanlosawareness #dysautonomia #dysautonomiaawareness #pots #eds #gastroparesis #gastroparesisawareness #spreadlove #servicedogintraining #servicedog #spoonie #spoonielife
Sometimes it is hard to appreciate the good things when everything seems to be going wrong, but once you do it makes things seem just a little bit brighter. On the other hand it DOES NOT make you a bad/negative/etc person if you are too overwhelmed or upset to appreciate it in the moment. Things can suck. Things do suck! And you know what? You’re kicking ass anyway. ** I am pretty proud of myself today. I finished summer school, went to the dog park with Hedwig and June + my sister and stepmom, and I just got home from seeing a movie! I am exhausted and in pain but I had fun despite that and I am glad to have soldiered through. Now for a nap and cooling off! 🌻 #chronicillness  #chronicpain  #ehlersdanlossyndrome  #ehlersdanlos  #eds  #ehlersdanlosawareness  #dysautonomia  #dysautonomiaawareness  #pots  #eds  #gastroparesis  #gastroparesisawareness  #spreadlove  #servicedogintraining  #servicedog  #spoonie  #spoonielife 
You are your own best advocate. You know what you need. You know what you can and cannot do. You alone are the one with YOUR body. You’ve got this!
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#chronicillness #chronicpain #ehlersdanlossyndrome #ehlersdanlos #eds #ehlersdanlosawareness #dysautonomia #dysautonomiaawareness #pots #eds #gastroparesis #gastroparesisawareness #spreadlove #servicedogintraining #servicedog #spoonie #spoonielife
I just realized I have not really introduced my cat to y’all! This is Percy AKA Perseus AKA Pers AKA “God Dammit Cat!” and she is my little baby. I got her after my therapist decided it would be good for me to have a pet to help with my severe anxiety, depression, and panic disorder. My aunt’s cat, Lola, wound up having kittens right after my dad agreed to getting a cat. Percy was the ONLY kitten of the four kitten litter to be colored like she is with the tabby and white markings. The rest of her family were black and white with the most amazing long fur. I picked Percy after a friend pointed out her cinnamon roll markings in the first picture I got of the kittens the day they were born. I didn’t officially pick her out until a month later and we all thought she was a boy (hence the name Perseus). But when I got her on June 11th two years ago, we found out that she’s a she. She had already gotten used to the name and it fit her so I kept it. She is now a spoiled princess and an excellent ESA!
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#chronicillness #chronicpain #ehlersdanlossyndrome #ehlersdanlos #eds #ehlersdanlosawareness #dysautonomia #dysautonomiaawareness #pots #eds #gastroparesis #gastroparesisawareness #spreadlove #servicedogintraining #servicedog #spoonie #spoonielife
I just realized I have not really introduced my cat to y’all! This is Percy AKA Perseus AKA Pers AKA “God Dammit Cat!” and she is my little baby. I got her after my therapist decided it would be good for me to have a pet to help with my severe anxiety, depression, and panic disorder. My aunt’s cat, Lola, wound up having kittens right after my dad agreed to getting a cat. Percy was the ONLY kitten of the four kitten litter to be colored like she is with the tabby and white markings. The rest of her family were black and white with the most amazing long fur. I picked Percy after a friend pointed out her cinnamon roll markings in the first picture I got of the kittens the day they were born. I didn’t officially pick her out until a month later and we all thought she was a boy (hence the name Perseus). But when I got her on June 11th two years ago, we found out that she’s a she. She had already gotten used to the name and it fit her so I kept it. She is now a spoiled princess and an excellent ESA! 🌻 #chronicillness  #chronicpain  #ehlersdanlossyndrome  #ehlersdanlos  #eds  #ehlersdanlosawareness  #dysautonomia  #dysautonomiaawareness  #pots  #eds  #gastroparesis  #gastroparesisawareness  #spreadlove  #servicedogintraining  #servicedog  #spoonie  #spoonielife 
Listen to that little voice! We will never give up our quest for better health! Together, we can do this! 📷: @livelikeitsthewknd
#chronicloveclub
Listen to that little voice! We will never give up our quest for better health! Together, we can do this! 📷: @livelikeitsthewknd #chronicloveclub 
Tiiiiiiilt! First tilt in years. My technique is nowhere near awesome, but my hips felt stable and nothing popped out. PT works, y'all.

#ehlersdanlos #chronicallyillacrobat #extension #tilt #dancer #turnout #dance #queerdancer #nonbinary #blue
Hi y’all, I are selling T-shirts to raise money for my upcoming #surgery in Maryland. The shirts are $25, and proceeds go towards travel, medical, and other needed expenses. Those of you w/#chronicillness, #ehlersdanlos, and/or #raredisease know the struggles of traveling for medical treatment. Unfortunately, Texas is no different. No specialists, have to travel. Please #buy a shirt, #share this post, and help me get to Maryland! Link is in my profile #fundraiser #fundraising #ehlersdanlossyndrome #osteogenesisimperfecta #addisonsdisease #avascularnecrosis #butyoudontlooksick #chiari #dysautonomia #gerd #invisibleillness #invisibledisease #mcad #mcas #nervepain #reynauds #spoonie #spoonies #spooniestrong #tmj #vertigo #zebra #zebrastrong #zebras
Hi y’all, I are selling T-shirts to raise money for my upcoming #surgery  in Maryland. The shirts are $25, and proceeds go towards travel, medical, and other needed expenses. Those of you w/#chronicillness , #ehlersdanlos , and/or #raredisease  know the struggles of traveling for medical treatment. Unfortunately, Texas is no different. No specialists, have to travel. Please #buy  a shirt, #share  this post, and help me get to Maryland! Link is in my profile #fundraiser  #fundraising  #ehlersdanlossyndrome  #osteogenesisimperfecta  #addisonsdisease  #avascularnecrosis  #butyoudontlooksick  #chiari  #dysautonomia  #gerd  #invisibleillness  #invisibledisease  #mcad  #mcas  #nervepain  #reynauds  #spoonie  #spoonies  #spooniestrong  #tmj  #vertigo  #zebra  #zebrastrong  #zebras 
1 Peter 4:11 Trust yourself to the God who made you for He will never fail you. GIVE ALL YOUR WORRIES AND CARES TO GOD FOR HE CARES WHAT HAPPENS TO YOU. .
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#bibleverse #faith #faithful #faithfulness #bible #scripture #verse #positivesayings #God #1peter4 #newtestament #1peter #spoonielife #chronicillnesswarrior #dysautonomia #ehlersdanlossyndrome #ehlersdanlos #potssyndrome  #pots #zebra #lifewithstripes #support #zebrastrong #inspiration #inspirationalquotes #ehlersdanlossociety #invisibleillness
1 Peter 4:11 Trust yourself to the God who made you for He will never fail you. GIVE ALL YOUR WORRIES AND CARES TO GOD FOR HE CARES WHAT HAPPENS TO YOU. . . . . . . #bibleverse  #faith  #faithful  #faithfulness  #bible  #scripture  #verse  #positivesayings  #God  #1peter4  #newtestament  #1peter  #spoonielife  #chronicillnesswarrior  #dysautonomia  #ehlersdanlossyndrome  #ehlersdanlos  #potssyndrome  #pots  #zebra  #lifewithstripes  #support  #zebrastrong  #inspiration  #inspirationalquotes  #ehlersdanlossociety  #invisibleillness 
The mat can bring out a completely different side of your personality. Always work towards approaching both sides of life with respect, kindness, and a humble spirit ❤️🥋
#friends #friendsthatpunchtogether #allwalksoflife #karate #karatefit #karategirl #karatebabe #karatehottie #karatelife #karatelifestyle #martialarts #martialartslife #martialartslifestyle
#ehlersdanlos #ehlersdanlossyndrome #hypermobility #spoonie #spooniewarrior #chronicillness #chronicpainwarrior #invisibleillness #butyoudontlooksick #fightlikeazebra
The mat can bring out a completely different side of your personality. Always work towards approaching both sides of life with respect, kindness, and a humble spirit ❤️🥋 #friends  #friendsthatpunchtogether  #allwalksoflife  #karate  #karatefit  #karategirl  #karatebabe  #karatehottie  #karatelife  #karatelifestyle  #martialarts  #martialartslife  #martialartslifestyle  #ehlersdanlos  #ehlersdanlossyndrome  #hypermobility  #spoonie  #spooniewarrior  #chronicillness  #chronicpainwarrior  #invisibleillness  #butyoudontlooksick  #fightlikeazebra 
// Grade 8 - Ed Sheeran // God knows I'm flawed. I complain all day even though I have it better than 95% of the people in this world. I like alcohol and cigarettes and swearing like a sailor and I don't like to do what I'm told.
But my heart is always in the right place. Never doubt my intentions or my will. I will give and give until there is nothing left to take, and then I will give you the broken remains that are left behind. 
I don't regret anything I've done, and I don't claim to be a good person. But I'm good where it counts. I am a warrior in my own rite, and I cannot be knocked down.

Sky above.
Earth below.
Fire within.

#grade8 #edsheeran #teddysphotos #selfie #spoonie #spoonielife #ehlersdanlossyndrome #ehlersdanlos #fibromyalgia #dysautonomia #interstitialcystitis #arthritis #osteoarthritis #hippain #hipdysplasia #hipfai #headache #migraine #chronicpain #chronicillness #chroniclife #truth #warrior #life #21
// Grade 8 - Ed Sheeran // God knows I'm flawed. I complain all day even though I have it better than 95% of the people in this world. I like alcohol and cigarettes and swearing like a sailor and I don't like to do what I'm told. But my heart is always in the right place. Never doubt my intentions or my will. I will give and give until there is nothing left to take, and then I will give you the broken remains that are left behind. I don't regret anything I've done, and I don't claim to be a good person. But I'm good where it counts. I am a warrior in my own rite, and I cannot be knocked down. Sky above. Earth below. Fire within. #grade8  #edsheeran  #teddysphotos  #selfie  #spoonie  #spoonielife  #ehlersdanlossyndrome  #ehlersdanlos  #fibromyalgia  #dysautonomia  #interstitialcystitis  #arthritis  #osteoarthritis  #hippain  #hipdysplasia  #hipfai  #headache  #migraine  #chronicpain  #chronicillness  #chroniclife  #truth  #warrior  #life  #21 
I'd forgotten how awesome it is to have a dog follow you everywhere! Maypo has been glued to my side ever since I came to visit. After she followed me back to the living room, she hopped on to my dad's lap for some cuddle time.
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#dog #dogs #dogsofinstagram #cute #awwww #puppy #newhampshire #dogsofnewengland #pretty #ehlersdanlos #eds #cuddle