We just want to give a HUGE thank you to all of our family, friends, and supporters. Finley’s story was shared over at “Love What Matters” and we had a huge outpouring of love and support that we are so thankful for. Thank you to everyone who liked, commented and shared her story. It truly means the world to us. •
Of course with all of this, I put myself out there and I expect to have some negativity and/or differing opinions. But just know that I am human. I do not want my words to come across to anyone that I am being negative towards doctors or other babies with differences. I simply am sharing our journey over the last 18 months. Was it scary? Yes. Did we expect it? No. Was it hard 19 months ago? Yes. But as my husband continued to tell me over and over during the last few weeks of pregnancy, “6 months from now we are going to look back at ourselves and wish we could say everything is going to be alright.” This is exactly what we do. Finley is perfect. Does she have differences? Yes. But we ALL have differences and it’s time to accept them. That is why I put myself out there with sharing Finley’s story. We want to teach others about differences. We want to advocate for our daughter so that hopefully as she grows up the world will be more accepting of differences. We want to be a support for others who are going through similar situations. We want to show the world that there is no such thing as “normal”. Our normal isn’t the same as your normal and that’s okay!! •
We will forever be her greatest advocates and supporters and we appreciate everyone who is part of our journey!! Thank you for learning, accepting and spreading kindness with us. Welcome to our journey!! 💕
@ablefinder is an online global community that connects parents and primary carers of children with different abilities with others on similar journeys. Start growing your support network and get connected @ablefinder today! 💚💚💚 *
Eden is 2 years old. She was diagnosed with Achondroplasia at the age of 5 months old. Being connected with those that are on the same or similar journeys matters. I can not express how difficult it is to deal with people that just don’t get it or don’t bother to try. The beginning was so hard. Mainly because we didn’t have the information and support needed. And maybe because I was just as ignorant with Eden’s diagnosis as the people I had to deal with. Having knowledge and support are power. Knowledge and support allowed us to know that the road less traveled was not only doable, but also beautiful with knowledge and support. Eden’s diagnosis is a life changing experience ...we are better because of it. She is nothing less than awesome and the perfect daughter for us. We wouldn’t want to do life with out her. 💚💚💚 *
Thank you @ablefinder for creating such a wonderful community. And thank you for the awesome T-shirt. 💚💚💚 #IamAble#AbleFinder
Sweet dreams are made of this🎶 does anybody make gingerbread houses for the Christmas season? My sister and I started yesterday.... AND IT’S STILL NOT DONE YET!! My mom always loves decorating gingerbread houses on her own so my sister and I decided to try it out for ourselves this year. Let👏🏻me👏🏻tell👏🏻you👏🏻. We are struggling!!!!! .
No va ser fácil, pero jamás imposible #todoesposible#Repost @brodysbigadventure
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While we’re on a posting kick tonight, here’s another interesting fact for #dwarfismawarenessmonth . Brody’s fingers do not bend. This is another trait of #diastrophicdysplasia which is his form of #dwarfism . This condition actually is called #symphalangism . Like everything else with DD, there are varying degrees of this. Some DDs have a few select fingers that bend and others that don’t. None of Brody’s fingers bend except at the fingertip. This means he cannot close his fingers to make a fist. Most therapists see this and immediately want to stretch or do exercises, but this isn’t something that can be fixed, and ultimately stressing the joints to move in a way they just can’t is actually detrimental. Many therapists immediately want to give tools to help with this also, but as with everything in life for DDs, most just figure it out on their own. Brody holds his silverware and crayons like this balanced between his fingers and does pretty well
30th Nov 2018, the day I decided to fuck with 30,000 STEPS! That's right, over 3 times the recommend daily steps of 10k. It was a target I set myself last month, mostly to prove to myself what I'm capable of. And also for all the pussies that tell me 10k daily is difficult! 2 cardio sessions in a day and a whole lotta walking around the house like a mad man just to get it done! My legs were fucking jacked by the time I started my afternoon cardio! 10,000 steps daily is just A THIRD of this! You really gonna tell a little person that it's a struggle?
P.S.: If you look below the steps counter, it says "Ahead of 100% of users". Which was pretty rad.
Parker’s recovery has been going well. The most significant part of recovery is needing to wear immobilizers on his legs. Since the incision is right at a joint, his legs need to stay straight in order to prevent the stitches from popping. There were some rough spots the first couple days as he figured out how to get comfortable at night, deal with not being able to itch the incision, and realized he would miss out on some fun as his siblings ran around. Honestly, the worst part of the whole thing was having to change the gauze because it was covered by a huge bandage (tegaderm) and Parker was not a fan of ripping off a giant bandaid to say the least. Otherwise, he’s been a great sport and has found creative ways to play. #pseudoparents#pseudoachondroplasia#dwarfism#surgery#8platesurgery
I’ll have better pictures tomorrow but this blanket y’all. We were gifted from a company that makes these for kids with chronic, life threatening illnesses, those that spend more time inpatient than out. It’s lead free (can go into cat scans and mri’s) it’s fuzz free (won’t end up in trach), hypoallergenic and stays soft. Tens had it all of 5 mins before succumbing to its sweet embrace. We were going to wait until the hospital to give it too him... but didn’t happen! If you are looking for a tax deduction before the new year, please consider @binkeezforcomfort
This is truly a wonderful gift. You can also purchase your own on their site binkeezforcomfort.org
For my fellow #medicalmama , please contact them! These blankets are everything!
Facebook let me set up a donation link and set post to public.
Thank you binkeez and those that support this amazing cause.
Every time I write this post it turns into a novel. So I’ll just leave ya’ll with this:
Dear entertainment industry, we’ve made some headway for POC... but what about for people with disabilities? I’m both so this minority battle is... 😱🤷🏻♀️ ya knowww.