Hi lovelies I feel I need to write this as it has deeply affected me to the point I haven’t slept & I’ve seriously thought about closing. Yesterday I found out a bow maker said that I use my disability to gain the publics sympathy & attention. She has admitted saying it & has apologised. I have accepted the apology but I feel very deeply hurt by it.
This could not be further from the truth. I started crafting as it was very therapeutic & although I can only manage an hour here and there I never set out to be a business. I started by giving the little I made to the spinal injuries association as they have supported me since I became paralysed & also an animal charity.
This was not only for my own self worth but also so I could contribute to the charities close to my heart.
I do crafting to get away from my health issues, it’s been an escape for me, and even though I’m dosed up on opiates I still fight through the pain.
I’d hate to think that anyone else would think this of me.
I love what I do & i don’t think many of my customers even know I’m disabled. Yes I agree my reps know as I need there understanding & support & maybe a couple of customers regarding there order whilst I’ve been in hospital but I’ve never wanted sympathy & certainly not used it to get attention. It shouldn’t make a difference whether I’m disabled or not I’m still a human being with feelings. I never asked for this too happen too me, it’s hard enough having to change your whole life around & lose everything without people judging me. I really hope no one else has thought this of me xxx
It’s hard not to think about being able to do more things, or live closer to where I know more people. Or to have that 1 person, a companion I can talk shit out instead of putting it all out there?! But at the same time. I’m grateful for the support I do have, there’s a lot of people in difficult situations that have it worse. Not hard to find! ~ I know what it’s like to be on both sides. The opposite side, not being a quad, living on my own, working a great job, completely independent. I was 26 when I broke my neck, and happy, mostly. One minute I’m driving down the Jersey shore with my windows down and doing that worm thing with my hand in the wind and grooving to my tunes. And the next day, I’m getting my swim shorts cut off and fighting to move in the back of an ambulance, feeling nothing but being aware enough to realize what happened. Life flashing, the easy part was over. I don’t remember the next 7 days. Woke up with a trach, and vent. Everything became a lot more complicated after that. Respect everything about your life and know it can all change in the blink of an eye no matter who you are, or what you do?!?! It could happen to you too! ~NOW after all this time, I’m starting to feel a little bit more comfortable in my life. Some self help audiobooks recommended by a friend has helped 🙏🏻 occupies my mind? And as hard as things are now, I know that there’s good people out there that look at me as an inspiration!) And some great people help me to believe more in myself, forever grateful 🙏🏻🤗 I think it’s about time I started thinking and acting like it! Although I still don’t really see myself as inspirational, but I’m trying! I still have my really bad days and you’re probably going to hear about em. But if I can can get a taste of the independence I had in my car all those years ago, I’ll be a happier person. Have a great but safe Sunday! Thanks for looking 🤗❣️#respectyourself#independence#inspiration#disabledlife#disabledcommunity#cannabiscommunity#livingmybestlife#concentrates#njdabbers#d # #heybud#teamsizelove#teampuffco#itzarevolution#nathanmiers#diamondbaron#teamechelon#pukinbeagle
As time goes on, my legs become weaker due to my joints being “loosey-goosey” as the doctors call it (ok it’s just me who calls it that). I do physio and try to strengthen the muscles around my joints, but I’m on a regular schedule of exercising, re-injuring something, waiting to recover enough to exercise again, and then right back to the start. In a couple years I have gone from no mobility aids, to sometimes one, to almost always one, and now to sometimes two. I’m told I rock these mobility aids (which I totally do let’s be honest💁🏻♀️) but it really takes a lot of practice to be comfortable with them and to get used to functioning with them by my side all the time. Initially I didn’t really break out the two crutches unless my back was swollen af or my bestie was over and wanted to play around on them. But I’ve been trying them out more around the house lately in preparation for the days when my bones feel like they’ve been replaced with jello (it’s totally fine don’t be alarmed)(haha jk it’s awful). It’s been quite a learning experience figuring out how to use both crutches while doing things involving my arms. I usually get by using one and holding things with my other arm but I know I need to learn these skills on both crutches for the days when my options are either: A) use both crutches or B) lay in bed forever and ever until the end of time (realistically when Matt gets home from work & not the actual end of time). I’m a strong independent woman so I want to be able to get around my house while Matt is at work. So I practice with both. Sometimes my crutches are very helpful! Sometimes they frustrate me. And sometimes Matt finds them abandoned in weird places throughout the house where I’ve probably sighed dramatically and dropped them because my plate of cookies seemed more important. He then returns them to me and reminds me that I bought them for using, and they can’t help me when I’m in our room and they’re nestled in the empty space between our fridge and the stove. I KNOW THAT, MATTHEW. But cookies! Anywho, the struggle is real. Mobility aids are awesome and I bow down to them but also this is a huge ass learning curve & boy does it take practice.
Have some cute dog photos.
I've been at an EDS UK group meeting today and it's wiped me out. @ehlersdanlosuk
So I've been crashed out on the sofa asleep all afternoon. The joys of dealing with chronic illness and chronic pain.
These are my huskies Freyja and Fenrir. They're my world and incredibly important to me. They both look after me in their own way.
Freyja (black and white husky) especially is very attentive, always checking up on me. They both cuddle with with me on the sofa. It makes a world of difference when your body is in agony and you feel rotten to reach out and be able to stroke their fur. It's very soothing. It makes things more bearable.
Not to mention they provide plenty of distraction with their crazy antics!
They'd never make assistance dogs, too easily distracted. But they are a massive help especially since becoming disabled.
They keep me sane. 💜
@huskyfenrirandfreyja 📷 @ssephi2
Now I'm all dressed up and ready to go out! Yaay! 👍🏽
But first, put up my hair and have a rest to try to get up some energy and at least try not to antagonize the pain from the standing and moving around i did while gettin ready for my evening.
Can't wait to go out in like an hour so that i can (hopefully) be moderately social!! 😃
[Image : Kassandra is sitting in her bed in front of a window, wearing a blue dress, with a scowl and slight trout mouth on her face.]
WOW STEVEN! I had no idea that disabled women such as myself were considered second-rate bargain bin! 🤣 Thanks for the notification!
🤔 Funnily enough, I have met veterans like @fredlewistp who were disabled in the line of duty, avid fitness junkies who are disabled AF (just look at the @shieldmaiden.socal), and country boys? I’m certain there are a million disabled ones out there. 🤠
Ah, If only you can see how much we are like you, Steven, you’d be quick to differentiate from us with your #AbleistLanguage . 😉
[💌 Steven’s romantic profile courtesy of @caromully by way of @andreasilenzi who produces the podcasts 🎧 “Shortest Longest Time” and “Why Oh Why”.]
I’m finally bouncing back from the Lamictal disaster enough to be able to do a few errands here and there without collapsing onto my rollator and needing to give up and go home. It’s amazing how taking away my ability to leave the condo for a few hours a week can send my mental health into a complete nose dive. The residual side effects also caused me to miss some very important appointments that I’m not quite ready to face the consequences of just yet.
On a good note, the purple Halloween flower crown and pothole tights worked some magic today. A mom told me I looked amazing and asked her young daughter, “did you see her? Isn’t she beautiful?” And then a woman walking up from behind me said, “Best. Outfit. Ever!” And when I thanked her she just beamed at me. Okay humans, I guess you’re alright sometimes. Maybe I won’t give up on you.