That feeling when you’re just so happy to finally love the body you’re in and you finally stop trying to hide who you are from the world. 💝
The number one way I got over my negative body image was to realize that I didn’t need anyone else’s approval to love myself. I didn’t need society’s approval, a guys approval, or anyone else’s. It was truly the most liberating and empowering realization I’ve ever had. The only opinion on my body that matters is my own. 💞
I think I’ve shared this photo before but it’s literally one of my favorites. Thank you again, @boudoirbyjnp for capturing my personality so well. 💗
When you somehow get your leg into a tricky position and before you know it #subluxations have begun
Me: This is it
Me: This is me now.
Me: This is how I die...
Now for some #honesty .
I've always said I'd be transparent with you guys...
⬆️ That up top is my current humour, masking the fact I feel like I'm losing again. Feeling as though a break down in the near future is coming and it truly sucks.
My body hurts SO MUCH and I'm struggling to cope. Not to mention the nausea & exhaustion too.
Of course I will go on, that's what I do! 😪 But will I practice healthy coping mechanisms? Probably not.
'What doesn't kill you gives you a set of unhealthy coping mechanisms and a dark sense of humour' comes to mind...
That being said, after the busy week I've had at hospital I'm doing my very best to listen to what my body wants.
I'm RESTING right now and I'm TALKING (venting) on here, so maybe that's a start towards a somewhat healthy approach? Idk.
All I know is my knees are a mess when laying straight, let alone trying that position again 🙃 and I'm back to taking slightly over 30 medications a day 😔
As my previous post explains though, I must be about to experience growth. I'm feeling buried and suffocated in a tough time which means it's time to bloom and to learn something new...
After all, there's no such thing as failure, only feedback and a lesson 💛✨
'This is just a blip' I try telling myself.
To all you fierce fighters out there... THANK YOU. For being so kind and helping me along the way.
Got nothing but love, gentle hugs and LOTS of low pain vibes being sent your way 💪
Have a great weekend all. Be sure to remember your worth🥄 🥄 🥄 🥄
#laughelseyouwillcry#tb#invisibleillness#neveragain#chronicpain#chronicillness#dislocatedknee#spoonie#spoonieproblems#disability#disabledandcute#throwback#mentalhealth#knowyourworth#knowyourworth 💎 #recovery#nosuchthingasfailure#mentalhealthawareness#selflove#selfcare#yougitthis#toughtimes#restlesslegsyndrome#restnotquit#dysautonomia#newmedication#copingmechanisms
Left or right?
Don't forget I'm doing a LIVE lush (remote control vibe) show tomorrow evening hope you can come hang out!
ALSO WE REACHED A PATREON GOAL LAST NIGHT AND I AM SO HAPPY THERE'S BEEN UNCONTROLLABLE SQUEEING thank youuuuu ❤️
I'm totally knocked on my ass at the moment from the traveling for meetings and appts (I forgot how much more brutal on my health this weather is) but I'm still really proud of how much I've managed to get done, and super hyped for upcoming projects! This year has been absolutely brutal but I feel like I'm finally working my ass off for small results instead of just setbacks, it's so incredibly difficult to to say remotely sane running your own business with a chronic illness, feeling like you're pushing as hard as you can constantly and still spending so much time feeling useless! #spoonie#disabledandcute#disabledmodel#fibromyalgia#chronicpain
this isn’t a meme but I just wanted to say that our little neurodiverse community has over 2100 followers and this aspie gal couldn’t be more glad. Y’all are so so special and I’m so grateful. Keep being you, my beautiful neurodiverse friends - the world needs people like us. ♥️🌟 #actuallyautistic
How not to be an ally to disabled people: part 2. ‘Helping’ without consent. Luckily as my chair is electric I’ve never had this issue. But so many disabled people I know say this happens often. People think they have a right to touch you and your mobility equipment purely cause you’re disabled. Consent is essential. Ask someone if they want help! Don’t just touch people!
We are not children. We can do things ourselves. If we need help, we’ll ask!
[image description: a drawing of a white person pushing a black person in a wheelchair. The white person is saying ‘I’m a feminist’, ‘let me help you’ and ‘are you alright’. The black person is saying ‘erm who are you’, ‘i didn’t ask for help’ and ‘please stop pushing me’. The main text says ‘how not to be an ally to disabled people. With the subheading saying ‘part 1: helping without consent’. The background is pink.]
♿️W H E E L S N O H E E L S ♿️ pumpkin and pistachio soup anyone? 🥣 check my story’s soon for the recipe! My husband made it for me the other night. Easy and vegan too! You can also keep it in the freezer and pop some out for the cold days. Fantastic “spoonie” food!
💗Have you seen my latest video? With those dark long evenings I can sometimes feel unsafe on my own. So I made a video on some self defence ideas, and tips to keeping you safe. I highly recommend you watch it whether your on wheels or heels!!! Link in bio!! 👌🏻
Great breakfast yesterday hosted by @respecttheability with LA/SF Bay Area disability leaders and advocates, brainstorming ideas around philanthropy and representation. It was cool to have #JoeyTravolta join the conversation as well! More to come!
[image descriptions: 1. two rows of about 20 people of mixed abilities posing for the camera with a large piece of artwork with spirals behind them. 2. Taken from one end of a long table, people of mixed abilities sitting at the table listening to a man speaking at the other end.]
💝 ༄ 𝑭𝒖𝒆𝒓 𝑺𝒄𝒉𝒖𝒉𝒆 𝒖𝒏𝒅 𝑴𝒆𝒏𝒔𝒄𝒉𝒆𝒏
𝒈𝒊𝒍𝒕 𝒅𝒂𝒔 𝑮𝒍𝒆𝒊𝒄𝒉𝒆,
𝒕𝒖𝒏 𝒔𝒊𝒆 𝑫𝒊𝒓 𝒘𝒆𝒉,
𝒅𝒂𝒏𝒏 𝒑𝒂𝒔𝒔𝒆𝒏 𝒔𝒊𝒆 𝒏𝒊𝒄𝒉𝒕 ༅ 💖
Ja auch ich bin manchmal nachdenklich.
Doch darum geht es eigentlich gar nicht.
Eher darum, dass ich mich bei #Euch allen wirklich von
💖-en bedanken möchte, wie sehr #ihr mir in letzter #Zeit doch zur #Seite steht.
Hier auf #Instagram habe ich wahre Unterstützer, Zuhörer, Mutmacher, Mitfühlende, Mitleidende (leider 🙈), also so viele gute Feen 🧚♀️ gefunden, wie ich sie in meinem wahren #Leben leider nur noch wenige habe.
Klar, meine #Kinder , meinen #Freund , seine Mama und eine Handvoll #Freundinnen .
Aber ich denke fast, wenn ich in all Eurer Nähe wohnen würde, würde mich bestimmt die ein oder andere im Krankenhaus oder daheim besuchen. Ist ja schon mal passiert 😄. Alleine schon die vielen Nachfragen, wie es mir geht, machen mich sprachlos.
#Bitte seid mir nicht böse, wenn ich mit dem zurück liken und dem Kommentieren Eurer #Bilder nicht so nachkomme, aber die letzte #Zeit war einfach zu anstrengend und schön langsam hole ich das nach. Also wundert Euch nicht, wenn plötzlich ein ganzer Schwall #Kommentare und Likes kommt, weil ich es gerade nach und nach mache.
Aber eben in Raten.
#Immer schön langsam mit den galoppierenden Pferdchen, muss ja etwas auf mich acht geben, denn #gesund bin ich noch nicht.
Ich habe Euch nun schon so in mein #Herz geschlossen, dass ich es aber #liebe auch an Eurem Leben teilzuhaben und meinen Senf abzugeben 😂. Bis bald 😘💖😘
Surgery went well, hooray! Hubby has been amazing and thankfully they have given him a bed in my room so that he can help with everything 😊
Very pleased that the op is over and done with now! Just got to get through the long recovery 💪
Hope you are all doing well and have a lovely weekend 💗