For the last month my pain levels have held steady. High enough to be a constant nagging distraction, high enough to interrupt my thoughts and focus, enough to impact my emotions - over the years I've believed all the points on this list at one time or another. It's challenging to not believe them now. The thought of a few days of inactivity erasing all the discomfort, or meds that can poof it away so I can keep thriving at what I do is a tempting dragon to chase - but chronic pain is different from standard pain. It doesn't respond the same, it doesnt behave the same, and so I've learned to react differently as well. I withdraw socially, I get quiet at home, I seek out comfort where I can find it, I work hard to keep organized so my priorities dont get lost in the shuffle - I start talking about it more, because it helps me turn the intangible into something I can actively fight. #chronicpain#invisibledisease#awareness#crohnsdisease#crohnslife#ibd#autoimmunewarrior#painmyths#helpfulreminders#wordsofwisdom
🇬🇧 At key west with the sponge man. The sponge is one of the many emblems of Key West. The others are on the rooster, we see everywhere, crossing the road and make their vocalises, here are the kings. The Key Lime Pie (lemon tart), the 0 miles (the end of route 1), the conch (big shell well known Caribbean). ---------------------------------------------------------------------------------🇫🇷 A Key west avec l'homme éponge. L'éponge est l'une des nombreuses emblèmes de Key west. Les autres étant bien sur le coq, on en voit partout, qui traversent la route et qui font leurs vocalises, ici ce sont les rois. La Key Lime Pie (tarte au citron), le miles 0 (la fin de la route 1), le conch (gros coquillage bien connu des Caraïbes).
A fine work of art submitted by @leonnaise Have you read the latest blog post? It’s all fun and games until you shit yourself. Read it at www.crohnsiscray.com or visit the direct link in our bio! #crohnsiscray#crohns#colitis
Was lining up the shot quite nicely thanks very much and then this happened...needless to say these @scharglutenfreeuk Tempties are too good to hang around waiting for mum to finish messing around with?! £2.50 @asda
I’m home!! Third admission since March 😴 After spending 6 days at the hospital again I’m now home with my furbaby and can relax! 😍😴 Crohn’s flares are no fun at all but back on steroids and on a liquid diet and starting infliximab soon 🤞🏻
There are nights when I’m very slow with my #humira injections. I’ve found that aggressive music helps get me psyched up - so last night, I turned on #ACDC and on about the third “thunderstruck” it was done! What’s your injection soundtrack? #crohns#colitis#ibd
Takhle nějak jsem “spuchla”, když jsem byla na kortikoidech ..krom milionů vedlejších účinků, je asi tento pro nás jeden z nejtěžších, ptž jde vidět! nejsou to tuky, je to voda v celém těle a člověk má rázem nahoře 18kg ..tenhle nárůst se nedá vůbec srovnat s těhotenstvím,kila přibudou během týdne a pak postupně s vysazováním kortikoidů jdou dolů, teda já to tak mám, někdo se těch kil zbavuje sakra těžko.. nesuďme lidi podle toho jestli jsou chudí nebo tlustí, nikdy nevíte,jaký boj za tím vším je!! ☝🏻 #fuckcrohn#crohnslife#ibd#9yearsago
Sharing some of my journey with Crohn’s disease on the @oshihealth app. It’s an emotional rollercoaster, but I’m learning a lot along the way.
I feel so blessed to be a contributor to this app for IBD patients!
Guys— this is the best IBD app I have ever seen (and I’ve tried A LOT!) Tons of amazingly helpful content, you can get your Q’s answered by experts & track your disease progression! 😱😍
I just love it and I’m so glad to be a part of it! Thanks OSHI!
It is so beautiful outside!! I wish it could stay summer forever sometimes. My legs are so sore from yesterday’s hike, the only thing that could make it better was to go for another walk. Did 2.5 miles with my daughter. And bonus, at one point I embarrassed her, I was doing walking lunges right by the main road. So people driving by may have thought I looked a little silly. Oh the joys of parenthood 😂😂 Good Times!! Hope you all had a fantastic Monday!!💕 #getupgetmoving#ificanyoucan#crohnsfit#crohnslife#crohnswarrior#crohnsdisease#crohnssucks
Thanks to all you savages out there who follow along with the ‘Cray’. As a way to say thank you, we will be giving away a free Crohn’s is Cray mug!
To enter: 1. Comment below about what you like most about Crohn’s is Cray and 2. Like Crohn’s is Cray on Facebook. Winner who meets this criteria will be picked at random on August 31!
It was so good to get away this weekend and explore a little bit of Northern Arizona. Even a few hours in the woods made a huge difference.
For those of you who have only been in the Phoenix area, these are called "trees". Say it with me now- "trees" 😂
IBD in Pregnancy ~ Throwback to when I was 8 months pregnant & one of the first patients ever at the IBD Pregnancy GI clinic at the Foothills hospital in Calgary. There are many obstacles when you have IBD and getting pregnant is no exception. The wonderful GI docs at this clinic helped me navigate this even before I was thinking about having a baby, so I want to share some tips I learned along the way for expectant mothers suffering from IBD.
Before trying to get pregnant it is best to be in remission. It would be a challenge to even get pregnant when in a flare as most patients are not absorbing nutrients properly. If you go into the pregnancy healthy, you have a better chance of a healthy pregnancy. Data shows that patients that flare during pregnancy have a higher risk of being hospitalized and delivering smaller babies.
One of the biggest challenges is to navigate the many medications one can be on when they have IBD. I was on Methotrexate and that can be harmful to babies, so you need to be off for some time before getting pregnant. I was also on Remicade and to minimize potential exposure of the drug for the baby my dosing schedule had to be changed to ensure I was timed properly to have my last dose right before the third trimester (as the drug can cross the placenta in the 3rd). The day after delivering, I was hooked up and given Remicade while still in the hospital. (see a doctor for advice)
After all the struggles in my pregnancies I was able to cope and get through it, and now I have two beautiful little boys that light up my world.