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🎁G I V E A W A Y!!
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💩It's day 1 of 12 days of Crohnmas!! Yes that's right CROHNSMAS!! 💚❤💚❤.
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To raise awareness of IBD, we have teamed up with @thegrumblinggut again on a giveaway!!
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🎖To win this heart & skeletal badge/pin all you have to do is:
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1. Like this post
2. Follow @thegrumblinggut and @thebiosisters
3. Tag 3 friends in the comments section.
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🎉Giveaway is open to everyone and will close at midnight on Monday 24th December 2018. Winner will be announced on Christmas day!!
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🎊You can enter as many times as you like. Good luck.
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Instagram: @thegrumblinggut
Facebook.com/thegrumblinggut 
Twitter.com/thegrumblinggut 
YouTube.com/thegrumblinggut 
www.thegrumblinggut.com
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#thegrumblinggut #beatthestigma #crohnsdisease #12daysofchristmas #invisibleillness #crohnsdiseaseawareness #ItTakesGuts #christmas #crohnsandcolitisawareness #ibdawareness #ibdawarenessweek #crohnscolitis #giveawaytime #tag #tagsomeone #love #instagiveaway #festive #invisibleillness #youlookfine
🎁G I V E A W A Y!! 🔹 💩It's day 1 of 12 days of Crohnmas!! Yes that's right CROHNSMAS!! 💚❤💚❤. 🔹 To raise awareness of IBD, we have teamed up with @thegrumblinggut again on a giveaway!! 🔹 🎖To win this heart & skeletal badge/pin all you have to do is: 🔹 1. Like this post 2. Follow @thegrumblinggut and @thebiosisters 3. Tag 3 friends in the comments section. 🔹 🎉Giveaway is open to everyone and will close at midnight on Monday 24th December 2018. Winner will be announced on Christmas day!! 🔹 🎊You can enter as many times as you like. Good luck.  _______________ Instagram: @thegrumblinggut Facebook.com/thegrumblinggut Twitter.com/thegrumblinggut YouTube.com/thegrumblinggut www.thegrumblinggut.com 🔹 #thegrumblinggut  #beatthestigma  #crohnsdisease  #12daysofchristmas  #invisibleillness  #crohnsdiseaseawareness  #ItTakesGuts  #christmas  #crohnsandcolitisawareness  #ibdawareness  #ibdawarenessweek  #crohnscolitis  #giveawaytime  #tag  #tagsomeone  #love  #instagiveaway  #festive  #invisibleillness  #youlookfine 
I'm crazy about the loco moco! I lived on the Big Island for a year after I graduated high school in 1999...and one of my most favorite meals in Hawaii was always the loco moco.
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If you haven't had one, it's rice, topped with a hamburger patty, fried egg, and gravy.
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Since I don't eat rice or gravy, I just brown some ground beef and top it with an over easy egg...and voilà, it's close enough for me!
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What's one of your favorite meals to make?
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#locomoco #islandstyle #carnivore #meatheals #carnivorediet #carnivoreketo #ketocarnivore #carnivoreplus #keto #foodismedicine #grassfed #crohnscarnivorediet #crohnsfitnessfood #crohns #crohnswarrior #crohnsdisease #crohnscolitis #IBD #chronicillness #crohnsawareness #crohnsfighter #crohnslife #crohnsandcolitis #crohnsgirl #ibdwarrior #crohnscarnivore #crohnie #autoimmunedisease #inflammation
I'm crazy about the loco moco! I lived on the Big Island for a year after I graduated high school in 1999...and one of my most favorite meals in Hawaii was always the loco moco. . If you haven't had one, it's rice, topped with a hamburger patty, fried egg, and gravy. . Since I don't eat rice or gravy, I just brown some ground beef and top it with an over easy egg...and voilà, it's close enough for me! . What's one of your favorite meals to make? . . . #locomoco  #islandstyle  #carnivore  #meatheals  #carnivorediet  #carnivoreketo  #ketocarnivore  #carnivoreplus  #keto  #foodismedicine  #grassfed  #crohnscarnivorediet  #crohnsfitnessfood  #crohns  #crohnswarrior  #crohnsdisease  #crohnscolitis  #IBD  #chronicillness  #crohnsawareness  #crohnsfighter  #crohnslife  #crohnsandcolitis  #crohnsgirl  #ibdwarrior  #crohnscarnivore  #crohnie  #autoimmunedisease  #inflammation 
If this isn’t our bowels talkin’, I don’t know what is! Up at 4AM this morning but made some lemonade and forced myself to the gym. A feat no less! 🤙🏻 How’s y’alls sleep? #crohnsiscray #crohns #colitis #sleep
If this isn’t our bowels talkin’, I don’t know what is! Up at 4AM this morning but made some lemonade and forced myself to the gym. A feat no less! 🤙🏻 How’s y’alls sleep? #crohnsiscray  #crohns  #colitis  #sleep 
During our cool crisp walk around the lake on Sunday morning, Adam played a clip of Eric Thomas’ motivational speeches. Have you heard of him? He’s pretty incredible. If you ever need a swift kick in the pants give him a listen! He really knows how to light a fire within you! Be ready to be yelled at though! He speaks with a lot of passion. And rightfully so, he has quite the story. As we listened, so much of what he said resonated with me but this phrase has continued to come back to me. We can’t succumb to a victim mentality. We all have hardships in life but it’s up to us to turn our pain into power. I could hide behind my battle with Crohn’s and colorectal cancer. I could remain withdrawn in fear that my current good health won’t last. But what good would that do me? And even if I’m faced with more health challenges in the future, the person I become will be stronger and more capable to fight. @etthehiphoppreacher.
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#ihavethepower #dontbeavictim #workhard #changeyourlifetoday #whoareyou #whodoyouwanttobe #changeyourmindset #backtothegrind #grindeveryday #colorectalcancer #crohnscolitis #momwarrior
During our cool crisp walk around the lake on Sunday morning, Adam played a clip of Eric Thomas’ motivational speeches. Have you heard of him? He’s pretty incredible. If you ever need a swift kick in the pants give him a listen! He really knows how to light a fire within you! Be ready to be yelled at though! He speaks with a lot of passion. And rightfully so, he has quite the story. As we listened, so much of what he said resonated with me but this phrase has continued to come back to me. We can’t succumb to a victim mentality. We all have hardships in life but it’s up to us to turn our pain into power. I could hide behind my battle with Crohn’s and colorectal cancer. I could remain withdrawn in fear that my current good health won’t last. But what good would that do me? And even if I’m faced with more health challenges in the future, the person I become will be stronger and more capable to fight. @etthehiphoppreacher. . . #ihavethepower  #dontbeavictim  #workhard  #changeyourlifetoday  #whoareyou  #whodoyouwanttobe  #changeyourmindset  #backtothegrind  #grindeveryday  #colorectalcancer  #crohnscolitis  #momwarrior 
Following on from CCAW I took a few days off from posting. It’s been my dad’s surprise party that my brother, my sister and I organised for him. It was an absolute amazing night but that’s for another post. I thought I’d take this opportunity now to update on where I am up to at the minute with my illness. - 
I started having symptoms again in August this year after having my surgery in March. Things like rushing to the loo with mucus coming out, lots of pain, cramping in my tummy/back, lots of pressure in my rectum and just feeling fatigued all the time. I had an MRI scan, bloods and a sigmoidoscopy which confirmed I’m in a flare. I got told just after my scope, I didn’t expect it at all and I just cried. I knew something was wrong but I didn’t expect to be flaring so soon after. I cried on and off for two days. I thought the #stoma would stop me from flaring but it hadn’t and I was at a loss. It’s been one thing after another and this was the straw that broke the camels back so to speak. -
I thought about it over the weekend and decided to give myself a head wobble. Sulking isn’t going to help, yeah it’s rubbish news but me moping  about isn’t going to do anything so when I saw this on a support group I follow, I’m sorry I forgot which, I thought it was very apt. -
Crohn’s Colitis you didn’t stop me the first time, you’re not going to stop me now. 💪🏻 I’m going to have my bad days and gonna get back up because that’s what I do. 
#ibdawareness #raiseawareness #invisibleillness #crohnscolitis #stomasquad #ostomy #ibdsuperheroes #ibd #crohns #colitis #crohnssucks
Following on from CCAW I took a few days off from posting. It’s been my dad’s surprise party that my brother, my sister and I organised for him. It was an absolute amazing night but that’s for another post. I thought I’d take this opportunity now to update on where I am up to at the minute with my illness. - I started having symptoms again in August this year after having my surgery in March. Things like rushing to the loo with mucus coming out, lots of pain, cramping in my tummy/back, lots of pressure in my rectum and just feeling fatigued all the time. I had an MRI scan, bloods and a sigmoidoscopy which confirmed I’m in a flare. I got told just after my scope, I didn’t expect it at all and I just cried. I knew something was wrong but I didn’t expect to be flaring so soon after. I cried on and off for two days. I thought the #stoma  would stop me from flaring but it hadn’t and I was at a loss. It’s been one thing after another and this was the straw that broke the camels back so to speak. - I thought about it over the weekend and decided to give myself a head wobble. Sulking isn’t going to help, yeah it’s rubbish news but me moping about isn’t going to do anything so when I saw this on a support group I follow, I’m sorry I forgot which, I thought it was very apt. - Crohn’s Colitis you didn’t stop me the first time, you’re not going to stop me now. 💪🏻 I’m going to have my bad days and gonna get back up because that’s what I do. #ibdawareness  #raiseawareness  #invisibleillness  #crohnscolitis  #stomasquad  #ostomy  #ibdsuperheroes  #ibd  #crohns  #colitis  #crohnssucks 
Dating with Crohn’s. I was thinking to myself last night, if I was single would I have had the guts to set this page up? The guy I was with when I was diagnosed at 19 was hugely supportive and everyone else I was with with during my 20s, not so much. I remember losing a huge amount of blood when I’d got home from a holiday and wanting to go to a&e, the guy i was with and had been for three years at this point wouldn’t drive me there and didn’t even ask how it was when I got home. I spent years trapped in a relationship because I thought no one else would want me, that I was damaged goods. I remember staying at another ex boyfriends house when I wasn’t feeling too well and coming back into the bedroom after a visit to the loo to find a horrified face. I’d try my hardest to disguise being unwell- pretending to go downstairs to get a drink when really i needed the loo, pretending I’d left something in the car when I needed to 💨. After that relationship I thought fuck it, do I want a relationship where I don’t feel comfortable asking for some TLC? No. So I started being open and honest about it, admittedly in small stages so I didn’t scare them off but open none the less and that has worked wonders for me! (Oh god and here’s where I get soppy 🙄) my boyfriend takes time off from his stupidly busy job to come to appointments with me, doesn’t moan when I have to have naps on weekends away because I’m exhausted and has taken the time to understand what I should and shouldn’t eat and cooks me dinners that don’t make me poorly. If I was single I’d probably share this page on my tinder profile or whatever app it is these days 😂 it would be much easier from both sides!  What has your experience of dating with Crohn’s disease been like?  #crohns #crohnsdisease #ibd #chronicillness #spoonie #colitis #autoimmunedisease #crohnswarrior #invisibleillness #ibs #ulcerativecolitis #health #crohnsfighter #crohnsawareness #chronicpain #ibdawareness #crohnie #crohnslife #crohnscolitis #fighter #crohnswarrior #sickbutinvisable #chronicillness #chronicpain #chronicdisease #chronicdiseases #chronicpainwarrior #invisibleillness #pain #guts #ittakesguts #ibdstrong @crohnsandcolitisuk
Dating with Crohn’s. I was thinking to myself last night, if I was single would I have had the guts to set this page up? The guy I was with when I was diagnosed at 19 was hugely supportive and everyone else I was with with during my 20s, not so much. I remember losing a huge amount of blood when I’d got home from a holiday and wanting to go to a&e, the guy i was with and had been for three years at this point wouldn’t drive me there and didn’t even ask how it was when I got home. I spent years trapped in a relationship because I thought no one else would want me, that I was damaged goods. I remember staying at another ex boyfriends house when I wasn’t feeling too well and coming back into the bedroom after a visit to the loo to find a horrified face. I’d try my hardest to disguise being unwell- pretending to go downstairs to get a drink when really i needed the loo, pretending I’d left something in the car when I needed to 💨. After that relationship I thought fuck it, do I want a relationship where I don’t feel comfortable asking for some TLC? No. So I started being open and honest about it, admittedly in small stages so I didn’t scare them off but open none the less and that has worked wonders for me! (Oh god and here’s where I get soppy 🙄) my boyfriend takes time off from his stupidly busy job to come to appointments with me, doesn’t moan when I have to have naps on weekends away because I’m exhausted and has taken the time to understand what I should and shouldn’t eat and cooks me dinners that don’t make me poorly. If I was single I’d probably share this page on my tinder profile or whatever app it is these days 😂 it would be much easier from both sides! What has your experience of dating with Crohn’s disease been like? #crohns  #crohnsdisease  #ibd  #chronicillness  #spoonie  #colitis  #autoimmunedisease  #crohnswarrior  #invisibleillness  #ibs  #ulcerativecolitis  #health  #crohnsfighter  #crohnsawareness  #chronicpain  #ibdawareness  #crohnie  #crohnslife  #crohnscolitis  #fighter  #crohnswarrior  #sickbutinvisable  #chronicillness  #chronicpain  #chronicdisease  #chronicdiseases  #chronicpainwarrior  #invisibleillness  #pain  #guts  #ittakesguts  #ibdstrong  @crohnsandcolitisuk
Nutrition clinic day. Meeting a dietitian for the first time to see what she recommends for my Crohn's since my body is depleting a lot of nutrients. Not sure what to expect at this point but I think it's going to be ok. #crohns #crohnswarrior #crohnscolitis #crohnslife #crohnsproblems #ibdlife #ibdproblems #ibd #crohnie #crohnielife #crohnieproblems #spoonie #spoonielife #spoonieproblems #nutrition #nutritionist #nutritionclinic #crohnsnutrition #chronicillness #chronicallyill #chronicillnesswarrior #chronicinvisibleillness #invisibleillness #lifelongillness #myibd #myibdlife #outpatient #outpatientnutrition #illness #autoimmunedisease
Nutrition clinic day. Meeting a dietitian for the first time to see what she recommends for my Crohn's since my body is depleting a lot of nutrients. Not sure what to expect at this point but I think it's going to be ok. #crohns  #crohnswarrior  #crohnscolitis  #crohnslife  #crohnsproblems  #ibdlife  #ibdproblems  #ibd  #crohnie  #crohnielife  #crohnieproblems  #spoonie  #spoonielife  #spoonieproblems  #nutrition  #nutritionist  #nutritionclinic  #crohnsnutrition  #chronicillness  #chronicallyill  #chronicillnesswarrior  #chronicinvisibleillness  #invisibleillness  #lifelongillness  #myibd  #myibdlife  #outpatient  #outpatientnutrition  #illness  #autoimmunedisease 
My whole life changed at the age of 18...
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I went from being the Emo girl obsessed with music (pictured in this throwback photo), to a university student recently diagnosed with Ulcerative Colitis in denial..
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I had no idea what a Chronic Illness was. I couldnt fathom that I was going to be sick forever. So I tried to ignore it. I sometimes would have accidents at school. Other times I would miss class because I would have to sit in the bathroom for thr entire hour. .
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I pushed as hard as I could every day. I worked as a hairstylist after school and on weekends. I spent endless hours studying, completing essays. I never went to the bar or put with friends because I was just to sick. .
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Every single exam period I would push as hard as I could. I was a perfectionist. I needed to get good grades. BUT THEN..
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As soon as exams where over I would get sick.... really sick. Many times I would end up in the hospital.
This continued for 6 years! .
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See our bodies are amazing machines! When they need to they will focus and you can push, but if you dont take care of yourself properly while you are pushing your body to the max you WILL get sick once the stress is gone. .
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What is something you can do for yourself to lower your stress in this crazy season?? .
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#crohnslife #crohnsfighter #unistudent #spoonie #ibdwarrior #crohnswarrior #crohns #crohnscolitis #crohnsproblems #forthehealth #ulcerativecolitis #ulcerativecolitisfighter #crohnsfitness #crohnsfood #crohnscoach #crohnsdiet
My whole life changed at the age of 18... . . I went from being the Emo girl obsessed with music (pictured in this throwback photo), to a university student recently diagnosed with Ulcerative Colitis in denial.. . . I had no idea what a Chronic Illness was. I couldnt fathom that I was going to be sick forever. So I tried to ignore it. I sometimes would have accidents at school. Other times I would miss class because I would have to sit in the bathroom for thr entire hour. . . I pushed as hard as I could every day. I worked as a hairstylist after school and on weekends. I spent endless hours studying, completing essays. I never went to the bar or put with friends because I was just to sick. . . Every single exam period I would push as hard as I could. I was a perfectionist. I needed to get good grades. BUT THEN.. . . As soon as exams where over I would get sick.... really sick. Many times I would end up in the hospital. This continued for 6 years! . . See our bodies are amazing machines! When they need to they will focus and you can push, but if you dont take care of yourself properly while you are pushing your body to the max you WILL get sick once the stress is gone. . . What is something you can do for yourself to lower your stress in this crazy season?? . . #crohnslife  #crohnsfighter  #unistudent  #spoonie  #ibdwarrior  #crohnswarrior  #crohns  #crohnscolitis  #crohnsproblems  #forthehealth  #ulcerativecolitis  #ulcerativecolitisfighter  #crohnsfitness  #crohnsfood  #crohnscoach  #crohnsdiet 
The avocado is 16 weeks young (4 months)🥑✨ .
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What was one of your favorite things during pregnancy? Mine is my tummy so far, also been feeling little limbs moving around👽
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#crohns #crohnsdisease #ibd #chronicillness #spoonie #colitis #autoimmunedisease #crohnswarrior #invisibleillness #cbd #anxiety #fibromyalgia #ibs #ulcerativecolitis #health #babybelly #crohnsfighter #warrior #inspired #arthritis #fitness #happy #crohnsawareness #chronicpain #ibdawareness #crohnie #crohnslife #crohnscolitis #fighter #pregnant
The avocado is 16 weeks young (4 months)🥑✨ . . What was one of your favorite things during pregnancy? Mine is my tummy so far, also been feeling little limbs moving around👽 . . . . . . . . . . . #crohns  #crohnsdisease  #ibd  #chronicillness  #spoonie  #colitis  #autoimmunedisease  #crohnswarrior  #invisibleillness  #cbd  #anxiety  #fibromyalgia  #ibs  #ulcerativecolitis  #health  #babybelly  #crohnsfighter  #warrior  #inspired  #arthritis  #fitness  #happy  #crohnsawareness  #chronicpain  #ibdawareness  #crohnie  #crohnslife  #crohnscolitis  #fighter  #pregnant 
Fancy these dropping on your doorstep for free? Order today and delivery is on us! Just enter FREESHIPZUK at the checkout! 📦 UK orders only. 🇬🇧
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Thanks to the lovely @_chronically_chloe_ for the picture! 🖤
Fancy these dropping on your doorstep for free? Order today and delivery is on us! Just enter FREESHIPZUK at the checkout! 📦 UK orders only. 🇬🇧 . . Thanks to the lovely @_chronically_chloe_ for the picture! 🖤
Hmmmm 🤔 They forgot one! Even though as IBD Warriors we do experience many of these “sensations” they forgot to add a #7). Take two Dulcolax with a whole bottle of Magnesium Citrate and see what it’s like going to the bathroom 20 times a day 😏
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#lifewithachronicillness #chronicillnesslife #lifewithcrohns #crohnslife #crohnsdisease #crohnscolitis #crohns #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
Hmmmm 🤔 They forgot one! Even though as IBD Warriors we do experience many of these “sensations” they forgot to add a #7 ). Take two Dulcolax with a whole bottle of Magnesium Citrate and see what it’s like going to the bathroom 20 times a day 😏 . #lifewithachronicillness  #chronicillnesslife  #lifewithcrohns  #crohnslife  #crohnsdisease  #crohnscolitis  #crohns  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Christmas treats as promised! 🎄🎁 We are offering FREE SHIPPING for today only! This discount is valid on UK ORDERS ONLY 🇬🇧 Just enter code: FREESHIPZUK at the checkout. Expires midnight tonight. 👀
Christmas treats as promised! 🎄🎁 We are offering FREE SHIPPING for today only! This discount is valid on UK ORDERS ONLY 🇬🇧 Just enter code: FREESHIPZUK at the checkout. Expires midnight tonight. 👀
Hello everyone! I will be away from 13-16th December and unable to process any orders during this time. However the shop will still be open, and it will be the last chance to order for UK. ++ MIDDAY 17th December is the last UK order deadline for Christmas ++ .
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Thank you for your ongoing support and patience! There’s a Christmas treat coming your way.. Al 🖤
Hello everyone! I will be away from 13-16th December and unable to process any orders during this time. However the shop will still be open, and it will be the last chance to order for UK. ++ MIDDAY 17th December is the last UK order deadline for Christmas ++ . . Thank you for your ongoing support and patience! There’s a Christmas treat coming your way.. Al 🖤
Radar Keys 
There have been many many occasions where the radar key has prevented huge embarrassment. Knowing I don’t have to queue at Waterloo station when people are already angry from their jam packed commute makes me feel a lot more relaxed when running from platform 1 to 19 where the toilets are. Unfortunately there have been a few occasions when things haven’t gone as expected, people tutting at me when coming out, people saying I shouldn’t be using those toilets etc. Those comments I can deal with, sometimes I laugh it off, sometimes I’ll explain my illness, and there might have been one time I called someone an ignorant something or other but I had had a REALLY bad day and I promise I won’t do it again 😂🙈. There was one bad experience that really sticks in my mind- see picture 2 for the disgusting state I found the Disabled toilets in and the following 3 to show my complaint. I really hope that the guys at this place have learnt their lesson but like I said to the manager on the phone when he tried to fob me off with a dinner voucher, I will never be stepping foot in there again but I really hope if anyone who needs an accessible toilet, whether they are in a chair or not has a better experience than I did. What have your experiences been like using disabled toilets or radar keys? @crohnsandcolitisuk 
#crohns #crohnsdisease #ibd #chronicillness #spoonie #colitis #autoimmunedisease #crohnswarrior #invisibleillness #ibs #ulcerativecolitis #health #crohnsfighter #crohnsawareness #chronicpain #ibdawareness #crohnie #crohnslife #crohnscolitis #fighter #crohnswarrior #sickbutinvisable #chronicillness #chronicpain #chronicdisease #chronicdiseases #chronicpainwarrior #invisibleillness #invisibleillness #pain #guts #disabilityawareness #disability #visibility93 #radarkey
Radar Keys There have been many many occasions where the radar key has prevented huge embarrassment. Knowing I don’t have to queue at Waterloo station when people are already angry from their jam packed commute makes me feel a lot more relaxed when running from platform 1 to 19 where the toilets are. Unfortunately there have been a few occasions when things haven’t gone as expected, people tutting at me when coming out, people saying I shouldn’t be using those toilets etc. Those comments I can deal with, sometimes I laugh it off, sometimes I’ll explain my illness, and there might have been one time I called someone an ignorant something or other but I had had a REALLY bad day and I promise I won’t do it again 😂🙈. There was one bad experience that really sticks in my mind- see picture 2 for the disgusting state I found the Disabled toilets in and the following 3 to show my complaint. I really hope that the guys at this place have learnt their lesson but like I said to the manager on the phone when he tried to fob me off with a dinner voucher, I will never be stepping foot in there again but I really hope if anyone who needs an accessible toilet, whether they are in a chair or not has a better experience than I did. What have your experiences been like using disabled toilets or radar keys? @crohnsandcolitisuk #crohns  #crohnsdisease  #ibd  #chronicillness  #spoonie  #colitis  #autoimmunedisease  #crohnswarrior  #invisibleillness  #ibs  #ulcerativecolitis  #health  #crohnsfighter  #crohnsawareness  #chronicpain  #ibdawareness  #crohnie  #crohnslife  #crohnscolitis  #fighter  #crohnswarrior  #sickbutinvisable  #chronicillness  #chronicpain  #chronicdisease  #chronicdiseases  #chronicpainwarrior  #invisibleillness  #invisibleillness  #pain  #guts  #disabilityawareness  #disability  #visibility93  #radarkey 
Meet Lokahi 🤗🚤 Jeff installed the boat name this weekend, we named her Lokahi...which is an ancient Hawaiian word for harmony. But, it's more than just that; basically, it's the kind of peace and harmony that can only be attained after struggle and being broken, then becoming whole and united again.
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Jeff and I have both faced many challenges in our lives before meeting and so we thought the word Lokahi describes perfectly the happiness, peace, and wholeness we find together. Since we were married in Hawaii, the word holds extra meaning for us.
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In some ways, I think I'm reaching Lokahi with Crohn's, too. Despite the struggles and challenges I've faced with Crohn's, it has also made me stronger, more determined, and given me a purpose in raising awareness and sharing my experiences.
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Have you found your Lokahi?
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#harmony #peace #boatlife #boating #lakelife #boatname #lokahi #crohnsfitnessfood #crohns #ibdawareness #crohnswarrior #crohnsdisease #crohnscolitis #crohnswarrior #crohnsjourney #IBD #chronicillness #crohnsawareness #inflammatoryboweldisease #crohnsfighter #crohnslife #crohnsandcolitis #crohnsgirl #ibdwarrior #crohnie #autoimmunedisease #invisibleillness #myIBD
Meet Lokahi 🤗🚤 Jeff installed the boat name this weekend, we named her Lokahi...which is an ancient Hawaiian word for harmony. But, it's more than just that; basically, it's the kind of peace and harmony that can only be attained after struggle and being broken, then becoming whole and united again. . Jeff and I have both faced many challenges in our lives before meeting and so we thought the word Lokahi describes perfectly the happiness, peace, and wholeness we find together. Since we were married in Hawaii, the word holds extra meaning for us. . In some ways, I think I'm reaching Lokahi with Crohn's, too. Despite the struggles and challenges I've faced with Crohn's, it has also made me stronger, more determined, and given me a purpose in raising awareness and sharing my experiences. . Have you found your Lokahi? . . . #harmony  #peace  #boatlife  #boating  #lakelife  #boatname  #lokahi  #crohnsfitnessfood  #crohns  #ibdawareness  #crohnswarrior  #crohnsdisease  #crohnscolitis  #crohnswarrior  #crohnsjourney  #IBD  #chronicillness  #crohnsawareness  #inflammatoryboweldisease  #crohnsfighter  #crohnslife  #crohnsandcolitis  #crohnsgirl  #ibdwarrior  #crohnie  #autoimmunedisease  #invisibleillness  #myIBD 
When someone asks you what Crohn’s disease is, what do you say? I’m never sure how best to explain it but I think this picture sums it up quite nicely! 
#crohns #crohnsdisease #ibd #chronicillness #spoonie #colitis #autoimmunedisease #crohnswarrior #invisibleillness #ibs #ulcerativecolitis #health #crohnsfighter #crohnsawareness #chronicpain #ibdawareness #crohnie #crohnslife #crohnscolitis #fighter #crohnswarrior #sickbutinvisable #chronicillness #chronicpain #chronicdisease #chronicdiseases #chronicpainwarrior #pain #guts
When someone asks you what Crohn’s disease is, what do you say? I’m never sure how best to explain it but I think this picture sums it up quite nicely! #crohns  #crohnsdisease  #ibd  #chronicillness  #spoonie  #colitis  #autoimmunedisease  #crohnswarrior  #invisibleillness  #ibs  #ulcerativecolitis  #health  #crohnsfighter  #crohnsawareness  #chronicpain  #ibdawareness  #crohnie  #crohnslife  #crohnscolitis  #fighter  #crohnswarrior  #sickbutinvisable  #chronicillness  #chronicpain  #chronicdisease  #chronicdiseases  #chronicpainwarrior  #pain  #guts 
That feeling when you realize it’s the last day to get your Crohn’s is Cray orders in to arrive before Christmas! (In the USA.) Checkout www.crohnsiscray.com/shop to get the best gift on your wish list! #crohnsiscray #crohns #colitis #ibdawarenessweek
That feeling when you realize it’s the last day to get your Crohn’s is Cray orders in to arrive before Christmas! (In the USA.) Checkout www.crohnsiscray.com/shop to get the best gift on your wish list! #crohnsiscray  #crohns  #colitis  #ibdawarenessweek 
Confidence...
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I have had a roller coast ride with my confidence over the years. I was always loud and outgoing but I wasnt alwyas confident.
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When I was diagnosed with IBD I still didnt know how much it would really effect my life. I fought to keep everything the same as long as I could. .
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But as the years past the disease slowly started stripping away my confidence. Leaving the house was more of a problem because of accidents. Going out was stressful because I didnt know if I would get sick or again have an accident. .
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My body changed it seemed like yearly. I would loose weight and gain extreme weight. I would look hollow and then I would look swollen. .
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This disease can squash you confidence pretty quickly but I am working really really hard to build that up. Dont get me wrong I dont have it all figured out at all. I have bad weeks still and good ones. .
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But one thing I know is I will never again let this disease stop me from anything.
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How is your confidence ???
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#crohnscolitis #crohnswarrior #crohnsfighter #crohnslife #crohnsproblems #crohns #crohnsfit #crohnsfit #crohnsfitness #crohnscoach #forthehealth #ulcerativecolitis #ulcerativecolitisfighter #spoonie
Confidence... . . I have had a roller coast ride with my confidence over the years. I was always loud and outgoing but I wasnt alwyas confident. . . When I was diagnosed with IBD I still didnt know how much it would really effect my life. I fought to keep everything the same as long as I could. . . But as the years past the disease slowly started stripping away my confidence. Leaving the house was more of a problem because of accidents. Going out was stressful because I didnt know if I would get sick or again have an accident. . . My body changed it seemed like yearly. I would loose weight and gain extreme weight. I would look hollow and then I would look swollen. . . This disease can squash you confidence pretty quickly but I am working really really hard to build that up. Dont get me wrong I dont have it all figured out at all. I have bad weeks still and good ones. . . But one thing I know is I will never again let this disease stop me from anything. . . How is your confidence ??? . . #crohnscolitis  #crohnswarrior  #crohnsfighter  #crohnslife  #crohnsproblems  #crohns  #crohnsfit  #crohnsfit  #crohnsfitness  #crohnscoach  #forthehealth  #ulcerativecolitis  #ulcerativecolitisfighter  #spoonie 
You may have noticed that our hoodies disappeared from the website. But good news is that they’re back! The product switch will be happening after Christmas, so if you want to get hold of one of our premium hoodies before they are discontinued, gets your order in ASAP! ⏳ And if you would like a BARBIE BUTT hoodie, please write in the comments section of the order, when purchasing either BAG LADY or HANG OUT. 🖤
You may have noticed that our hoodies disappeared from the website. But good news is that they’re back! The product switch will be happening after Christmas, so if you want to get hold of one of our premium hoodies before they are discontinued, gets your order in ASAP! ⏳ And if you would like a BARBIE BUTT hoodie, please write in the comments section of the order, when purchasing either BAG LADY or HANG OUT. 🖤
But like, imagine if we had a diagnostics reader that would actually tell us how to fix it? #goals #crohnsiscray #crohns #colitis
Diet is a piece of the puzzle and it’s a very important one, but it’s also a very sensitive & controversial subject. Even when we do find a very alkaline, healing, whole foods living diet as we’d find in Nature, it’s still going to be very difficult to see our healing progress. Sometimes we have to take even more extreme steps for an extreme condition combined with a lotta patience.
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This is where fasting has saved my life but it’s not for everyone starting out tomorrow. Fasting takes a lot of years to work up to and #fasting alone isn’t the answer. It’s only but a gateway to activating deeper healing systems in our bodies we’ve never experienced before. We’ve never experienced them before because we’ve never been taught.
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It also sounds counterintuitive—stop eating and I heal deeper? Don’t I need nutrients from food and protein to heal my body?! I cover these topics in my new video! Which raises a lot of feely feels inside us over the things I mention. I get it! I’ve been there too. Feeling so much pain and feeling like there’s no way out.
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And it doesn’t end with the proper diet and fasting either. There are many pillars of health we must address before getting on the road to feeling better, lessening our symptoms and one day never feeling symptoms again. It takes a lotta discipline and years of trust especially if we’ve gone through a surgery and been on meds like I have. It’s a slow process, but a real one. Much love y’all 💚
Diet is a piece of the puzzle and it’s a very important one, but it’s also a very sensitive & controversial subject. Even when we do find a very alkaline, healing, whole foods living diet as we’d find in Nature, it’s still going to be very difficult to see our healing progress. Sometimes we have to take even more extreme steps for an extreme condition combined with a lotta patience. - This is where fasting has saved my life but it’s not for everyone starting out tomorrow. Fasting takes a lot of years to work up to and #fasting  alone isn’t the answer. It’s only but a gateway to activating deeper healing systems in our bodies we’ve never experienced before. We’ve never experienced them before because we’ve never been taught. - It also sounds counterintuitive—stop eating and I heal deeper? Don’t I need nutrients from food and protein to heal my body?! I cover these topics in my new video! Which raises a lot of feely feels inside us over the things I mention. I get it! I’ve been there too. Feeling so much pain and feeling like there’s no way out. - And it doesn’t end with the proper diet and fasting either. There are many pillars of health we must address before getting on the road to feeling better, lessening our symptoms and one day never feeling symptoms again. It takes a lotta discipline and years of trust especially if we’ve gone through a surgery and been on meds like I have. It’s a slow process, but a real one. Much love y’all 💚
*The PSA that few people want to post but that everyone should read* "What is something you never leave the house without?" Actually, there are three things! My medical ID bracelet, a snack (college taught me this one), and this handy medical request card, thanks to Ally's Law.
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A lot of the stigma surrounding IBD revolves around how people perceive it as being "just a bathroom disease." In reality, the side effects of IBD can occur inside AND outside the digestive system (like my recent hand sores). Still, the "bathroom" aspect can be a highly significant -- and sometimes humiliating -- dimension of IBD.
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So that's where Ally's Law comes into play! As part of the Americans with Disabilities Act, Ally's Law requires retail stores to allow individuals with inflammatory bowel disease or related conditions to use employee restrooms if no public restroom is available. Hence, people like me carry in-case-of-emergency medical access cards to remind others that we are legally permitted to use a private bathroom if we need it. While people without IBD sometimes poke fun at cards like these, the goal is to help people with IBD avoid dehumanizing situations due to flare-ups of their conditions. The more you know! #dearcrohns #standupkeepfighting
*The PSA that few people want to post but that everyone should read* "What is something you never leave the house without?" Actually, there are three things! My medical ID bracelet, a snack (college taught me this one), and this handy medical request card, thanks to Ally's Law. • A lot of the stigma surrounding IBD revolves around how people perceive it as being "just a bathroom disease." In reality, the side effects of IBD can occur inside AND outside the digestive system (like my recent hand sores). Still, the "bathroom" aspect can be a highly significant -- and sometimes humiliating -- dimension of IBD. • So that's where Ally's Law comes into play! As part of the Americans with Disabilities Act, Ally's Law requires retail stores to allow individuals with inflammatory bowel disease or related conditions to use employee restrooms if no public restroom is available. Hence, people like me carry in-case-of-emergency medical access cards to remind others that we are legally permitted to use a private bathroom if we need it. While people without IBD sometimes poke fun at cards like these, the goal is to help people with IBD avoid dehumanizing situations due to flare-ups of their conditions. The more you know! #dearcrohns  #standupkeepfighting 
Ready for the holidays! 🎄Can you tell...that's actually a pop-up Christmas tree!! It's pre-lit and pre-decorated, so I literally just pop it up every year :-)
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What can I say...I like relaxing more than I like spending 5 hours decorating a tree. But, there's nothing like a tree (whether it's pop-up or real) to make the holiday atmosphere come alive!
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And that's my one-eyed dog, 🐶Lion in the forefront :-) He likes relaxing by the tree, too.
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I actually hate how material the holidays have become, but I love the Christmas spirit and overall feeling of joy the holidays bring. Jeff and I don't have any kids and both of our families live in other states, so there's not much to do for the holidays for us...other than to relax and appreciate the days. So, I'm probably in a very small group of people who can say the holidays aren't stressful!
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What's your favorite part about the holiday season?
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#christmas #popuptree #holiday #oneeyeddog #christmastree #christmasdog #dogs #doglover #noholidaystress #dogsofinstagram #crohnsfitnessfood #crohns #ibdawareness #crohnswarrior #stressfree #crohnscolitis #crohnswarrior #crohnsjourney #IBD #chronicillness #crohnsawareness #crohnsfighter #crohnslife #crohnsgirl #ibdwarrior #crohnie #invisibleillness
Ready for the holidays! 🎄Can you tell...that's actually a pop-up Christmas tree!! It's pre-lit and pre-decorated, so I literally just pop it up every year :-) . What can I say...I like relaxing more than I like spending 5 hours decorating a tree. But, there's nothing like a tree (whether it's pop-up or real) to make the holiday atmosphere come alive! . And that's my one-eyed dog, 🐶Lion in the forefront :-) He likes relaxing by the tree, too. . I actually hate how material the holidays have become, but I love the Christmas spirit and overall feeling of joy the holidays bring. Jeff and I don't have any kids and both of our families live in other states, so there's not much to do for the holidays for us...other than to relax and appreciate the days. So, I'm probably in a very small group of people who can say the holidays aren't stressful! . What's your favorite part about the holiday season? . . #christmas  #popuptree  #holiday  #oneeyeddog  #christmastree  #christmasdog  #dogs  #doglover  #noholidaystress  #dogsofinstagram  #crohnsfitnessfood  #crohns  #ibdawareness  #crohnswarrior  #stressfree  #crohnscolitis  #crohnswarrior  #crohnsjourney  #IBD  #chronicillness  #crohnsawareness  #crohnsfighter  #crohnslife  #crohnsgirl  #ibdwarrior  #crohnie  #invisibleillness 
Today we had Christmas Day in my house. My boyfriend will be in Ireland, I’ll be volunteering in a soup kitchen and my brother and his girlfriend will be at my dads. Lots of things I shouldn’t eat and did anyway - namely braised cabbage and Brussels sprouts. What shouldn’t you be eating on Christmas Day but probably will anyway? #sorrynotsorry #baconwitheverything #crohns #crohnsdisease #ibd #chronicillness #spoonie #colitis #autoimmunedisease #crohnswarrior #invisibleillness #ibs #ulcerativecolitis #health #crohnsfighter #crohnsawareness #chronicpain #ibdawareness #crohnie #crohnslife #crohnscolitis #fighter #crohnswarrior #sickbutinvisable #christmas #christmasdinner #sundayroast
Today we had Christmas Day in my house. My boyfriend will be in Ireland, I’ll be volunteering in a soup kitchen and my brother and his girlfriend will be at my dads. Lots of things I shouldn’t eat and did anyway - namely braised cabbage and Brussels sprouts. What shouldn’t you be eating on Christmas Day but probably will anyway? #sorrynotsorry  #baconwitheverything  #crohns  #crohnsdisease  #ibd  #chronicillness  #spoonie  #colitis  #autoimmunedisease  #crohnswarrior  #invisibleillness  #ibs  #ulcerativecolitis  #health  #crohnsfighter  #crohnsawareness  #chronicpain  #ibdawareness  #crohnie  #crohnslife  #crohnscolitis  #fighter  #crohnswarrior  #sickbutinvisable  #christmas  #christmasdinner  #sundayroast 
Great love to all the Crohn' s & Colitis warriors out there as CC awareness week draws to a close!
Great love to all the Crohn' s & Colitis warriors out there as CC awareness week draws to a close!
You should probably buy my book GO YOUR CROHN WAY for yourself or wife or husband or lover or all three this Christmas! I'm still pretty proud of it and here are two nice people who wrote some lovely things about it x 💛 x💛 x .
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#merrychristmas #IBD #crohns #crohnsdisease #crohnsawareness #chronicillness #chronicpain #colitis #crohnscolitis #ccuk #crohn #crohnswarrior #crohnicfatigue #boweldisease #pain #surgery #singingdragon
6 weeks after I started my #LondonMarathon training I decided to go on the same route today to see if I'm improving and I was 12 mins faster over 13.5 k and in the new year I'm on a donut ban and slowly going to go further!
#charity #crohnscolitis #crohns #running #strava #run
Backpacking with Crohn’s. A #gapyear was something I always always wanted to do. I traveled loads with my parents when I was small and one of my mums favourite places was India and Nepal so I was desperate to go back. I worked full time as a PA during my degree and didn’t want to leave so I managed to persuade them to give me two months sabbatical. Admittedly India was a brave choice for someone with Crohn’s but I told myself if I get ill I can get an early flight home on a credit card and then at least I tried. I feel very strongly that we shouldn’t miss out on ANYTHING because of Crohn’s. Before I left my dr gave me some steroids to take with me incase I felt unwell and I packed a small plastic box to keep any spare tissues dry and safe in as most toilets had a jet wash thing rather than paper which I personally find a bit weird (how do you dry yourself before putting your trousers back on?!?) This picture was taken  on a trek near Himachal Pradesh in the Himalayas, we walked for two days in the pouring rain and once we got to our destination we had chicken flavour instant noodles and nothing has ever tasted so delicious! Yes, I felt poorly but so did everyone on the group I went with- curry for every meal takes a lot of getting used to! 
#crohns #crohnsdisease #ibd #chronicillness #spoonie #colitis #autoimmunedisease #crohnswarrior #invisibleillness #ibs #ulcerativecolitis #health #crohnsfighter #crohnsawareness #chronicpain #ibdawareness #crohnie #crohnslife #crohnscolitis #fighter #gapyear #gapyah #india #nepal #travel #travelphotography #travelphotographer #travelling
Backpacking with Crohn’s. A #gapyear  was something I always always wanted to do. I traveled loads with my parents when I was small and one of my mums favourite places was India and Nepal so I was desperate to go back. I worked full time as a PA during my degree and didn’t want to leave so I managed to persuade them to give me two months sabbatical. Admittedly India was a brave choice for someone with Crohn’s but I told myself if I get ill I can get an early flight home on a credit card and then at least I tried. I feel very strongly that we shouldn’t miss out on ANYTHING because of Crohn’s. Before I left my dr gave me some steroids to take with me incase I felt unwell and I packed a small plastic box to keep any spare tissues dry and safe in as most toilets had a jet wash thing rather than paper which I personally find a bit weird (how do you dry yourself before putting your trousers back on?!?) This picture was taken on a trek near Himachal Pradesh in the Himalayas, we walked for two days in the pouring rain and once we got to our destination we had chicken flavour instant noodles and nothing has ever tasted so delicious! Yes, I felt poorly but so did everyone on the group I went with- curry for every meal takes a lot of getting used to! #crohns  #crohnsdisease  #ibd  #chronicillness  #spoonie  #colitis  #autoimmunedisease  #crohnswarrior  #invisibleillness  #ibs  #ulcerativecolitis  #health  #crohnsfighter  #crohnsawareness  #chronicpain  #ibdawareness  #crohnie  #crohnslife  #crohnscolitis  #fighter  #gapyear  #gapyah  #india  #nepal  #travel  #travelphotography  #travelphotographer  #travelling 
Had a little date day today and ended it with a few cocktails in a bar at nova in Victoria. Alcohol is one of those things I know is really bad for me but I just can’t give up- life would be really boring if it was always sober!! Do you find some alcohol better than others? I still haven’t quite figured out what affects me the least 💜

#crohns #crohnsdisease #ibd #chronicillness #spoonie #colitis #autoimmunedisease #crohnswarrior #invisibleillness #ibs #ulcerativecolitis #health #crohnsfighter #crohnsawareness #chronicpain #ibdawareness #crohnie #crohnslife #crohnscolitis #fighter #cocktail #alcohol #winterwonderland #nationalhistorymuseum #iceskating
Had a little date day today and ended it with a few cocktails in a bar at nova in Victoria. Alcohol is one of those things I know is really bad for me but I just can’t give up- life would be really boring if it was always sober!! Do you find some alcohol better than others? I still haven’t quite figured out what affects me the least 💜 #crohns  #crohnsdisease  #ibd  #chronicillness  #spoonie  #colitis  #autoimmunedisease  #crohnswarrior  #invisibleillness  #ibs  #ulcerativecolitis  #health  #crohnsfighter  #crohnsawareness  #chronicpain  #ibdawareness  #crohnie  #crohnslife  #crohnscolitis  #fighter  #cocktail  #alcohol  #winterwonderland  #nationalhistorymuseum  #iceskating 
Huge thanks to the staff @greggs_official Tonypandy for giving up their time to judge #rhonddahousing #fundraising #bakeoff and helping us to raise money for #CrohnsColitis and @hoperescuewales 
We hope #MaryBerry would have been proud, there was none left!
Huge thanks to our #fantasticstaff
Still so in love with our grey tees! 😍 Have you ordered yours yet? 📦
Still so in love with our grey tees! 😍 Have you ordered yours yet? 📦
NEW POST: Workout motivation and tips. 19 years of working out and I STILL find it hard to get motivated most days.
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We all know fitness is important for getting the most out of life. Vanity aside, the real benefits of keeping our bodies healthy and strong is that it allows us to hike a trail on vacation, run around with grandkids, put a suitcase in the overhead bin...and the list goes on.
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So what tips and tricks do I use to get out of bed at 5am or hit the gym after work? I share these, describe how I've set up my home gym, and share some of my favorite workout activities in this new post.
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Short disclaimer, if you can't tell from my IG posts...I like to write. So this workout blog post got a little long and this first article is actually part 1 of 4...lots of tips, tricks, and motivation to share!
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How many years have you been dedicated to making fitness a part of your everyday life?
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#crohnsfitnessfood #workoutmotivation #workouttips #homeworkout #fitness #health #habits #workout #fitnessblog #crohns #crohnswarrior #crohnsfit #crohnsstrong #crohnscolitis #crohnsjourney #IBD #chronicillness #crohnsawareness #crohnsfighter #crohnslife #crohnsandcolitis #crohnsgirl #ibdwarrior #crohnie #autoimmunedisease #invisibleillness #myIBD
NEW POST: Workout motivation and tips. 19 years of working out and I STILL find it hard to get motivated most days. . We all know fitness is important for getting the most out of life. Vanity aside, the real benefits of keeping our bodies healthy and strong is that it allows us to hike a trail on vacation, run around with grandkids, put a suitcase in the overhead bin...and the list goes on. . So what tips and tricks do I use to get out of bed at 5am or hit the gym after work? I share these, describe how I've set up my home gym, and share some of my favorite workout activities in this new post. . Short disclaimer, if you can't tell from my IG posts...I like to write. So this workout blog post got a little long and this first article is actually part 1 of 4...lots of tips, tricks, and motivation to share! . How many years have you been dedicated to making fitness a part of your everyday life? . . . . #crohnsfitnessfood  #workoutmotivation  #workouttips  #homeworkout  #fitness  #health  #habits  #workout  #fitnessblog  #crohns  #crohnswarrior  #crohnsfit  #crohnsstrong  #crohnscolitis  #crohnsjourney  #IBD  #chronicillness  #crohnsawareness  #crohnsfighter  #crohnslife  #crohnsandcolitis  #crohnsgirl  #ibdwarrior  #crohnie  #autoimmunedisease  #invisibleillness  #myIBD 
Having a chronic disease has negatively impacted my life in more ways than I can count, but I think it’s worth shedding light on some unexpected positives!
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Ever since I was little, I was terrified of illness. ‘Do I have a cold or is this meningitis?’ I was paranoid, a hypochondriac, and everything related to illness, from going to the doctor and getting vaccinations, to visiting my grandparents in hospital, was a source of huge anxiety.
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Then in 2015, I suddenly became seriously ill. It was ulcerative colitis, and along with it came hospital visits, colonoscopies, a plethora of pills, self-administered enemas, blood tests, IV infusions. In short, I was living my worst nightmare.
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But you know what? I survived. And more than that, the whole experience gave me a strange sense of happiness, and relief. J.K. Rowling said ‘my greatest fears had been realised and it set me free’, and this is exactly how I felt. It was as if I had spent my whole life perched on the edge of a cliff, paralysed with fear. One day, I fell off head first: the worst thing that happened was that I landed at the bottom. And that gave me the greatest sense of liberation. 
Have you experienced anything like this? If you wouldn’t mind sharing, I’d love for you to leave a comment below😊
PS. The coat is FAKE FUR!
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#ulcerativecolitis #ibd #crohns #ibdawareness #colitis #crohnsdisease #chronicillness #chronicdisease #autoimmunedisease #veganjourney #vegan #foodblogger #veganfood #plantbased #veganrecipes #invisibleillness #ittakesguts #crohnscolitisawarenessweek #crohnscolitisawareness @crohnsandcolitisuk @ulcerativecolitissupport #crohnscolitis #crohnscolitisuk #illness #inspiration #positivethinking #hypochondriac #kyoto #japan #kyotojapan #japan_of_insta
Having a chronic disease has negatively impacted my life in more ways than I can count, but I think it’s worth shedding light on some unexpected positives! . Ever since I was little, I was terrified of illness. ‘Do I have a cold or is this meningitis?’ I was paranoid, a hypochondriac, and everything related to illness, from going to the doctor and getting vaccinations, to visiting my grandparents in hospital, was a source of huge anxiety. . Then in 2015, I suddenly became seriously ill. It was ulcerative colitis, and along with it came hospital visits, colonoscopies, a plethora of pills, self-administered enemas, blood tests, IV infusions. In short, I was living my worst nightmare. . But you know what? I survived. And more than that, the whole experience gave me a strange sense of happiness, and relief. J.K. Rowling said ‘my greatest fears had been realised and it set me free’, and this is exactly how I felt. It was as if I had spent my whole life perched on the edge of a cliff, paralysed with fear. One day, I fell off head first: the worst thing that happened was that I landed at the bottom. And that gave me the greatest sense of liberation. Have you experienced anything like this? If you wouldn’t mind sharing, I’d love for you to leave a comment below😊 PS. The coat is FAKE FUR! . . . . #ulcerativecolitis  #ibd  #crohns  #ibdawareness  #colitis  #crohnsdisease  #chronicillness  #chronicdisease  #autoimmunedisease  #veganjourney  #vegan  #foodblogger  #veganfood  #plantbased  #veganrecipes  #invisibleillness  #ittakesguts  #crohnscolitisawarenessweek  #crohnscolitisawareness  @crohnsandcolitisuk @ulcerativecolitissupport #crohnscolitis  #crohnscolitisuk  #illness  #inspiration  #positivethinking  #hypochondriac  #kyoto  #japan  #kyotojapan  #japan_of_insta 
Me, trying to get the eff out of bed right now 😴 #crohnsiscray #crohns #colitis #myibd
Had fun stepping back to the 80’s last night for our work Christmas party 🎉 
The 80’s band were great and loved wearing this 80’s velvet black dress I got from an op shop years ago
Couldn’t even see my bag! (thanks to my @vanillablush underwear)
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#eighties #eightiesfashion #whatbag #ostomyfashion #nocolonstillrollin #ileostomy #stoma #crohnscolitis #crohns #ulcerativecolitis
I got back to the bar this week after almost 3 months off. Finally being able to lift weights again feels good...not just physically but for my overall well-being.
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Having IBD has always put a limitation on what I can do physically, but that hasn’t stopped me from trying. Exercise makes me feel good, it gives me energy, mental clarity and confidence. However learning my limitations when it comes to my UC hasn’t been easy.
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Many of you know that I used to run and that just isn’t in the cards for me anymore. As my disease has progressed, the stress of running makes my system kick into overdrive and I can’t be far from a bathroom. Makes even a one mile jog around the neighborhood impossible. This is why weightlifting and CrossFit have been great for me because I am now relegated to the indoors. Bonus...they make me feel better than running ever did.
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Probably the hardest lesson to learn had been to allow my body to heal and to rest. I don’t understand rest. Yoga has drastically helped in my healing because I can stay active but in a gentle way. Most recently I’ve started Kundalini Yoga which has been incredibly transformative in my mental healing from this past flare as well.
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While IBD can be horribly debilitating, exercise has become such an important part of helping to keep the rest of me healthy to fight this disease. I’m grateful to be able to move my body and I allow myself grace when I can’t do the things I used to. It’s all a work in progress but an important part of treatment.
I got back to the bar this week after almost 3 months off. Finally being able to lift weights again feels good...not just physically but for my overall well-being. . Having IBD has always put a limitation on what I can do physically, but that hasn’t stopped me from trying. Exercise makes me feel good, it gives me energy, mental clarity and confidence. However learning my limitations when it comes to my UC hasn’t been easy. . Many of you know that I used to run and that just isn’t in the cards for me anymore. As my disease has progressed, the stress of running makes my system kick into overdrive and I can’t be far from a bathroom. Makes even a one mile jog around the neighborhood impossible. This is why weightlifting and CrossFit have been great for me because I am now relegated to the indoors. Bonus...they make me feel better than running ever did. . Probably the hardest lesson to learn had been to allow my body to heal and to rest. I don’t understand rest. Yoga has drastically helped in my healing because I can stay active but in a gentle way. Most recently I’ve started Kundalini Yoga which has been incredibly transformative in my mental healing from this past flare as well. . While IBD can be horribly debilitating, exercise has become such an important part of helping to keep the rest of me healthy to fight this disease. I’m grateful to be able to move my body and I allow myself grace when I can’t do the things I used to. It’s all a work in progress but an important part of treatment.
💜 Perspective 💜

As i look back at pictures over the last year its said to see so many at the hospital.  But on my last stay this past October, which was particularly hard, i stared out this window nightly just wanting some kind of freedom.  I wanted my family to be there to take me home everyday.  So on this last day of Crohn's and Colitis awareness week i just want to thank my family for always supporting me no matter what. Anything life throws at me they are right there with me.  This disease doesn't just affect me, it effects the ones i love the most in so many ways and its definitely not easy for them.  No parent wants to see their child so sick they can't get out of bed for days. Or seeing ur child go through multiple serious operations and meds bc this disease is a beast. My mom and dad don't live close so they can't always be physically with me but they absolutely do when they can and visit a lot. I see my brother as often as we can, he is always a phone call away and lives in CT too.  We have always been very close and that has just grown as we've gotten older.  And my soon to be sister in law is a strong, badass, beautiful woman who inspires me to keep going.  I love my family, and yes that includes pepper of course 🐶, more than anything and i honestly don't know where id be with out them.  I keep going and stay smiling for you guys and i love you so much.  Thank you for supporting, loving and caring for me and for everything you have done to guide me.  @jamesrotchford @marycg9y @mikesbag007 @allisonvandermaelen 🙏🤗💜❤😘. So please thank your families and let them know how grateful you are for them 💜. The journey with this disease isn't an easy for us or them and we rely on our families the most ❤🤗.
#crohnsandcolitisawarenessweek #ibdawarenessweek #crohns #ibd #crohnscolitis #ostomy #ilesotomy #ilovemyfamily #thankyoufamily #ilovemybrother #ilovemyparents #hartfordhospital #gtube #feedingtube #nocolonstillrollin #babeswithbags #dogsofinstagram #inkedgirls #girlswithtattoos #bekind #loveyourself #loveeachother
💜 Perspective 💜 As i look back at pictures over the last year its said to see so many at the hospital. But on my last stay this past October, which was particularly hard, i stared out this window nightly just wanting some kind of freedom. I wanted my family to be there to take me home everyday. So on this last day of Crohn's and Colitis awareness week i just want to thank my family for always supporting me no matter what. Anything life throws at me they are right there with me. This disease doesn't just affect me, it effects the ones i love the most in so many ways and its definitely not easy for them. No parent wants to see their child so sick they can't get out of bed for days. Or seeing ur child go through multiple serious operations and meds bc this disease is a beast. My mom and dad don't live close so they can't always be physically with me but they absolutely do when they can and visit a lot. I see my brother as often as we can, he is always a phone call away and lives in CT too. We have always been very close and that has just grown as we've gotten older. And my soon to be sister in law is a strong, badass, beautiful woman who inspires me to keep going. I love my family, and yes that includes pepper of course 🐶, more than anything and i honestly don't know where id be with out them. I keep going and stay smiling for you guys and i love you so much. Thank you for supporting, loving and caring for me and for everything you have done to guide me. @jamesrotchford @marycg9y @mikesbag007 @allisonvandermaelen 🙏🤗💜❤😘. So please thank your families and let them know how grateful you are for them 💜. The journey with this disease isn't an easy for us or them and we rely on our families the most ❤🤗. #crohnsandcolitisawarenessweek  #ibdawarenessweek  #crohns  #ibd  #crohnscolitis  #ostomy  #ilesotomy  #ilovemyfamily  #thankyoufamily  #ilovemybrother  #ilovemyparents  #hartfordhospital  #gtube  #feedingtube  #nocolonstillrollin  #babeswithbags  #dogsofinstagram  #inkedgirls  #girlswithtattoos  #bekind  #loveyourself  #loveeachother 
#ibdawarenessweek #ibd #ibdawareness #crohnscolitis 💜💜💜💜It’s the last day of IBD Awareness week, and it’s taken me all week to piece this together.

My diagnosis story.

I’ve ready MANY stories in the support groups of which I’m part, and although I know not everyone’s is dramatic, it feels like so many people struggled just as much as I did. There’s such a gray area when it comes to GI disorders that things are so often overlooked and ignored - which is one reason I am so open, personal, and detailed about my experiences. 
So, as a warning, this is very very detailed, personal, and may be TMI, but I’m not ashamed or intimidated by my story.

It turns out that I’ve been experiencing subtle IBD symptoms my whole life. Once we got the diagnosis, so many things from earlier in my childhood and such just clicked - oh THATS why I had that issue!! Although putting a name for my suffering helped be able to treat it, it’s done little for complete relief (reference: the previous post about my treatment journey). As I said in my post about treatments, I wasn’t diagnosed with IBD until I ended up in the hospital in October of 2015, but I’d been experiencing intense and noticeable symptoms as early as 2012. In fact, the primary care physician I was seeing at the time in Indiana ALMOST caught it. When I described my symptoms, (at that point I was dealing with constant pain in my right side and a sharp pain that intensified when I strained to have a bowel movement) she did an initial test for blood in my stool, thinking Crohns or Ulcerative colitis but it was negative, so we started exploring other possibilities. I even had CT scan but all it showed were some ovarian cysts, so it was determined that those were the most likely cause of my issues and no additional tests were performed for quite a while. 
I lived with this pain for years - finding that not much relieved it. I assumed it was woman-specific problems, and that made me not discuss it with others even more since such topics are always taboo. (Continued in comments)
#ibdawarenessweek  #ibd  #ibdawareness  #crohnscolitis  💜💜💜💜It’s the last day of IBD Awareness week, and it’s taken me all week to piece this together. My diagnosis story. I’ve ready MANY stories in the support groups of which I’m part, and although I know not everyone’s is dramatic, it feels like so many people struggled just as much as I did. There’s such a gray area when it comes to GI disorders that things are so often overlooked and ignored - which is one reason I am so open, personal, and detailed about my experiences. So, as a warning, this is very very detailed, personal, and may be TMI, but I’m not ashamed or intimidated by my story. It turns out that I’ve been experiencing subtle IBD symptoms my whole life. Once we got the diagnosis, so many things from earlier in my childhood and such just clicked - oh THATS why I had that issue!! Although putting a name for my suffering helped be able to treat it, it’s done little for complete relief (reference: the previous post about my treatment journey). As I said in my post about treatments, I wasn’t diagnosed with IBD until I ended up in the hospital in October of 2015, but I’d been experiencing intense and noticeable symptoms as early as 2012. In fact, the primary care physician I was seeing at the time in Indiana ALMOST caught it. When I described my symptoms, (at that point I was dealing with constant pain in my right side and a sharp pain that intensified when I strained to have a bowel movement) she did an initial test for blood in my stool, thinking Crohns or Ulcerative colitis but it was negative, so we started exploring other possibilities. I even had CT scan but all it showed were some ovarian cysts, so it was determined that those were the most likely cause of my issues and no additional tests were performed for quite a while. I lived with this pain for years - finding that not much relieved it. I assumed it was woman-specific problems, and that made me not discuss it with others even more since such topics are always taboo. (Continued in comments)
I went from that picture, to vomiting on the side of the road and coming home early to hug the toilet bowl. I really do need to stop pushing myself before I do some real damage! Credit to my beautiful girl Faye for making me look less anemic and lifeless 😂 #sick #looklikeroadkillnow #porcelaingod #thankgodformakeup #pinkhair #peircings #crohnscolitis #invisableillness
Indeed! As we close out Crohn’s & Colitis Week, I felt this quote would be perfect to post. I had a hard time accepting the hand that was dealt to me in my life and as I reflect on my past, I truly wished I had done some things differently and one of those was to not live in fear of Crohn’s and withdrawing myself from the world and the other to have self-love especially for all that I had overcome, like life with an ostomy and the growth from the experience I’ve developed instead of having resentment for the struggles that were bestowed upon me. Be kind to yourselves out there. It’s ok to get mad, to cry, to be frustrated, to vent and to feel defeated as long as you get back out there and live your life to best you can and show the world what you’re made of. We also must stay strong and continue to raise awareness and break the stigma of living with an ostomy and help support and encourage who may be feeling those fears and doubts that we have had at one point in our own journey. Stay strong everyone and let’s continue to fight and have each other’s backs as we continue our journeys 💪🏼💜💜
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#johnlennon #johnlennonquote #quotes #quoteoftheday #selflove #NoColonStillRollin #CrohnsAndColitisAwareness #CrohnsAndColitisAwarenessWeek #myIBD #crohnsdisease #crohnscolitis #crohns #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
Indeed! As we close out Crohn’s & Colitis Week, I felt this quote would be perfect to post. I had a hard time accepting the hand that was dealt to me in my life and as I reflect on my past, I truly wished I had done some things differently and one of those was to not live in fear of Crohn’s and withdrawing myself from the world and the other to have self-love especially for all that I had overcome, like life with an ostomy and the growth from the experience I’ve developed instead of having resentment for the struggles that were bestowed upon me. Be kind to yourselves out there. It’s ok to get mad, to cry, to be frustrated, to vent and to feel defeated as long as you get back out there and live your life to best you can and show the world what you’re made of. We also must stay strong and continue to raise awareness and break the stigma of living with an ostomy and help support and encourage who may be feeling those fears and doubts that we have had at one point in our own journey. Stay strong everyone and let’s continue to fight and have each other’s backs as we continue our journeys 💪🏼💜💜 . . #johnlennon  #johnlennonquote  #quotes  #quoteoftheday  #selflove  #NoColonStillRollin  #CrohnsAndColitisAwareness  #CrohnsAndColitisAwarenessWeek  #myIBD  #crohnsdisease  #crohnscolitis  #crohns  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
My ulcerative colitis has led to a bunch of digestive issues over the years; of which heartburn is one of the more severe ones..
•
What can you do about it?
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Drink bone broth and celery juice. Both bone broth and celery juice increase gastric acid production and aid digestion, but via different pathways. It’s the glycine in the bone broth that helps, and the naturally occurring salt in celery juice. They both have a myriad of other digestive benefits too (such as healing wounds in the digestive tract). Contrary to what a lot of mainstream medical literature would have you believe, heartburn is often caused by too little stomach acid.
• 
Take an HCl supplement with Pepsin. Basically when your stomach acid is too low, food reaches your small bowel in tact, feeds gas producing bacteria, and the gas forces stomach acid back up your esophagus. In addition, the lack of stomach acid means you could have an overgrowth of these gas producing bacteria, and food will sit around in your stomach for longer increasing gastric pressure. This is a double whammy for increasing heartburn. HCl with Pepsin is basically supplementary stomach acid to improve digestion.
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Cut out coffee and chocolate. I noticed a difference when I applied the steps above, but an even bigger difference was when I removed coffee and chocolate. Both coffee and chocolate relax your lower esophageal sphincter (the bit of muscle that separates your esophagus from your stomach), thus allowing even small amounts of pressure to force stomach acid back up.
•
Consider a SIBO diet. If the steps above don’t work, you may need to take more drastic steps to eliminate an overgrown of bacteria in your small bowel that are creating pressure by producing gas every time you eat. Have a google around for SIBO diets and consider combining them with some antimicrobials like monolaurin, garlic, berberine, and even oregano oil. Be careful with oregano oil though; it’s very strong.
My ulcerative colitis has led to a bunch of digestive issues over the years; of which heartburn is one of the more severe ones.. • What can you do about it? • Drink bone broth and celery juice. Both bone broth and celery juice increase gastric acid production and aid digestion, but via different pathways. It’s the glycine in the bone broth that helps, and the naturally occurring salt in celery juice. They both have a myriad of other digestive benefits too (such as healing wounds in the digestive tract). Contrary to what a lot of mainstream medical literature would have you believe, heartburn is often caused by too little stomach acid. • Take an HCl supplement with Pepsin. Basically when your stomach acid is too low, food reaches your small bowel in tact, feeds gas producing bacteria, and the gas forces stomach acid back up your esophagus. In addition, the lack of stomach acid means you could have an overgrowth of these gas producing bacteria, and food will sit around in your stomach for longer increasing gastric pressure. This is a double whammy for increasing heartburn. HCl with Pepsin is basically supplementary stomach acid to improve digestion. • Cut out coffee and chocolate. I noticed a difference when I applied the steps above, but an even bigger difference was when I removed coffee and chocolate. Both coffee and chocolate relax your lower esophageal sphincter (the bit of muscle that separates your esophagus from your stomach), thus allowing even small amounts of pressure to force stomach acid back up. • Consider a SIBO diet. If the steps above don’t work, you may need to take more drastic steps to eliminate an overgrown of bacteria in your small bowel that are creating pressure by producing gas every time you eat. Have a google around for SIBO diets and consider combining them with some antimicrobials like monolaurin, garlic, berberine, and even oregano oil. Be careful with oregano oil though; it’s very strong.
In the 7+ months since I had my stoma surgery in April, I’ve hidden away my stomach from as many people as possible for the whole time.

No more. This is me, improving with every day and ready to tell you about how this bag has changed my life for the better and will be the reason I will make 2019 the best I’ve had in a long, long time.

This is me, putting my middle finger up to the condition that’s made my life a living hell for ten years.

@crohnsandcolitisuk @instacrohns #crohnsdisease #crohnscolitis #stoma #ostomy #awareness #awarenessweek #purple #gopurple #Scottish #student #proud
In the 7+ months since I had my stoma surgery in April, I’ve hidden away my stomach from as many people as possible for the whole time. No more. This is me, improving with every day and ready to tell you about how this bag has changed my life for the better and will be the reason I will make 2019 the best I’ve had in a long, long time. This is me, putting my middle finger up to the condition that’s made my life a living hell for ten years. @crohnsandcolitisuk @instacrohns #crohnsdisease  #crohnscolitis  #stoma  #ostomy  #awareness  #awarenessweek  #purple  #gopurple  #Scottish  #student  #proud 
Don’t forget to layer up your Baggy tee in the cold weather! 😬❄️
Don’t forget to layer up your Baggy tee in the cold weather! 😬❄️
I’ve gone back and forth so many times with sharing this post. But today feels like the right day to do it. I’ve had lots of fear and anxiety around sharing publicly the disease that has changed EVERY aspect of my life over the past two years! Fear that people will see me in a different light, fear of being labeled as weak or incapable (even though sometimes I am). I’m choosing to share today because this week is Crohns Colitis Awareness week and as someone who struggles with this awful disease, I feel it’s my responsibility to spread awareness and fight for a cure! 
I also share because at times, this disease has made me feel so alone and isolated. And I want those who are suffering from this disease (or any other) to know that you are not alone! 
I want this post to be a reminder that everyone is fighting their own battles! All we see on social media are the highlights of people’s life’s. I have shared all of my highs with the public! But what people don’t see are the days I couldn’t get out of bed, times I couldn’t care for my child, the nights i nearly collapsed after getting off stage. 
This is what they call an invisible disease, making it very hard for people to understand that your sick when you look fine on the outside.  I live in fear of what my future will be like. If I’ll be able to have more children. How long until I run through all my treatment options? 
I don’t have the answers to these questions but I do know that I’m a fighter and that though this disease often makes my life come to a crashing halt, I will keep pushing forward for a cure and living the days that I feel good to the fullest!
Thank you @crohnscolitisfoundation for helping me not feel so alone in my fight! 
If this post helps even one person who is struggling, then my sharing has been successful! 
#facingmyfears #ccawarenessweek #bebrave #ulcerativecolitis #ucsucks #autoimmunedisease #fighter #austintexas #singersongwriter #crohnscolitis
I’ve gone back and forth so many times with sharing this post. But today feels like the right day to do it. I’ve had lots of fear and anxiety around sharing publicly the disease that has changed EVERY aspect of my life over the past two years! Fear that people will see me in a different light, fear of being labeled as weak or incapable (even though sometimes I am). I’m choosing to share today because this week is Crohns Colitis Awareness week and as someone who struggles with this awful disease, I feel it’s my responsibility to spread awareness and fight for a cure! I also share because at times, this disease has made me feel so alone and isolated. And I want those who are suffering from this disease (or any other) to know that you are not alone! I want this post to be a reminder that everyone is fighting their own battles! All we see on social media are the highlights of people’s life’s. I have shared all of my highs with the public! But what people don’t see are the days I couldn’t get out of bed, times I couldn’t care for my child, the nights i nearly collapsed after getting off stage. This is what they call an invisible disease, making it very hard for people to understand that your sick when you look fine on the outside. I live in fear of what my future will be like. If I’ll be able to have more children. How long until I run through all my treatment options? I don’t have the answers to these questions but I do know that I’m a fighter and that though this disease often makes my life come to a crashing halt, I will keep pushing forward for a cure and living the days that I feel good to the fullest! Thank you @crohnscolitisfoundation for helping me not feel so alone in my fight! If this post helps even one person who is struggling, then my sharing has been successful! #facingmyfears  #ccawarenessweek  #bebrave  #ulcerativecolitis  #ucsucks  #autoimmunedisease  #fighter  #austintexas  #singersongwriter  #crohnscolitis 
💩It's the last day of @crohnsandcolitisuk awareness week, so I thought I'd share some facts with you.
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👪300,000+ people in the UK have Crohn's or Colitis - painful diseases that affect the whole body.
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🏃7/10 people with Crohn’s or Colitis suffer from negative body image - dramatically impacting their relationships.
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💉1/2 of people with Crohn’s or Colitis have faced discrimination because of their condition.
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🚻75% of people with Crohn’s or Colitis have had an accident in public because they couldn't get to a toilet in time.
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🏥57% of people with Crohn’s or Colitis have reduced their working hours because of their illness.
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💊 47% of people have experienced mental health issues because of their Crohn's or Colitis.
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Instagram: @thegrumblinggut
Facebook.com/thegrumblinggut 
Twitter.com/thegrumblinggut 
YouTube.com/thegrumblinggut 
www.thegrumblinggut.com
🔹 
#thegrumblinggut #beatthestigma #crohnsdisease #crohnsfighter #invisibleillness #chronicloveclub #instacrohns #ItTakesGuts #mentalhealth #discrimination #ibdawareness #ibdawarenessweek #crohns #colitis #bodyimage #relationshipgoals #work #noteverydisabilityisvisible #dontjudge #facts #awareness #ulcerativecolitis #illness #supportyourfriends #support #crohnscolitis #love #medicine #education #stoma
💩It's the last day of @crohnsandcolitisuk awareness week, so I thought I'd share some facts with you. 🔹 👪300,000+ people in the UK have Crohn's or Colitis - painful diseases that affect the whole body. 🔹 🏃7/10 people with Crohn’s or Colitis suffer from negative body image - dramatically impacting their relationships. 🔹 💉1/2 of people with Crohn’s or Colitis have faced discrimination because of their condition. 🔹 🚻75% of people with Crohn’s or Colitis have had an accident in public because they couldn't get to a toilet in time. 🔹 🏥57% of people with Crohn’s or Colitis have reduced their working hours because of their illness. 🔹 💊 47% of people have experienced mental health issues because of their Crohn's or Colitis. _______________ Instagram: @thegrumblinggut Facebook.com/thegrumblinggut Twitter.com/thegrumblinggut YouTube.com/thegrumblinggut www.thegrumblinggut.com 🔹 #thegrumblinggut  #beatthestigma  #crohnsdisease  #crohnsfighter  #invisibleillness  #chronicloveclub  #instacrohns  #ItTakesGuts  #mentalhealth  #discrimination  #ibdawareness  #ibdawarenessweek  #crohns  #colitis  #bodyimage  #relationshipgoals  #work  #noteverydisabilityisvisible  #dontjudge  #facts  #awareness  #ulcerativecolitis  #illness  #supportyourfriends  #support  #crohnscolitis  #love  #medicine  #education  #stoma 
C&M Shareholders and staff are passionate about community work and organizations that are close to their heart. Shareholder Sarah Russell, @crohnscolitisfoundation Board Member, will once again sponsor a team for the 'Touch a Football' event that benefits this foundation on December 9th. •
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#crohnscolitis #ccawarenessweek #communitywork
C&M Shareholders and staff are passionate about community work and organizations that are close to their heart. Shareholder Sarah Russell, @crohnscolitisfoundation Board Member, will once again sponsor a team for the 'Touch a Football' event that benefits this foundation on December 9th. • • • #crohnscolitis  #ccawarenessweek  #communitywork 
⚫️⚪️⚫️⚪️
⚫️⚪️⚫️⚪️
We may have many different journeys. We may have different symptoms and unique treatments. We can live around the world in different countries and zip codes. But, we will always have one thing in common. We are all in this together.

I get many positive messages and sentiments from people thanking me for spreading awareness and bringing a slice of humor to an otherwise dark place. Just know, I’m as thankful to have you guys. It gives me hope and strength to have so many strong people out here fighting through every.single.damn.day.

Hope y’all had a good #ccawarenessweek ...Let the meme flow resume! #crohnsiscray #myibd #crohns #colitis
We may have many different journeys. We may have different symptoms and unique treatments. We can live around the world in different countries and zip codes. But, we will always have one thing in common. We are all in this together. I get many positive messages and sentiments from people thanking me for spreading awareness and bringing a slice of humor to an otherwise dark place. Just know, I’m as thankful to have you guys. It gives me hope and strength to have so many strong people out here fighting through every.single.damn.day. Hope y’all had a good #ccawarenessweek  ...Let the meme flow resume! #crohnsiscray  #myibd  #crohns  #colitis 
Another post for Crohn's and Colitis awareness week. After being diagnosed I struggled with the reality of my career. The trades can be very unforgiving and extremely hard on the body. When I first started working in the field I was in some toxic environments that ended up being unhealthy. I’ve since overcome a lot of obstacles, but I can say that I enjoy what I do now! Anyone dealing with Crohn's and Colitis in a similar field as me ... trust me I feel for you! 
I’ve learned to never let your work keep you from your health. That is most important, if you’re in a toxic environment get out. Leave work AT WORK!!! I have a huge problem with this.. but it's way less stress once you get the hang of it trust me. Go home meditate, take your dog for a walk, find a hobby. Being such a huge cannabis supporter, I can say it does wonders for de-stressing! If anyone has any questions, feel free to DM about anything. I’m here to tell my story, offer support, and hopefully be able to guide you in a positive direction. 
For the record if I could get a job being paid to smoke weed I would 😉 just saying!
#crohnsandcolitisawarenessweek #crohnscolitis #colitis #autoimmunedisease #ibdfam #ibdawareness #work #trades  #journeyman #stayactive #health #positivethinking #positivevibes #wisdom #unbreakable #followforfollowback #follow #friday
Another post for Crohn's and Colitis awareness week. After being diagnosed I struggled with the reality of my career. The trades can be very unforgiving and extremely hard on the body. When I first started working in the field I was in some toxic environments that ended up being unhealthy. I’ve since overcome a lot of obstacles, but I can say that I enjoy what I do now! Anyone dealing with Crohn's and Colitis in a similar field as me ... trust me I feel for you! I’ve learned to never let your work keep you from your health. That is most important, if you’re in a toxic environment get out. Leave work AT WORK!!! I have a huge problem with this.. but it's way less stress once you get the hang of it trust me. Go home meditate, take your dog for a walk, find a hobby. Being such a huge cannabis supporter, I can say it does wonders for de-stressing! If anyone has any questions, feel free to DM about anything. I’m here to tell my story, offer support, and hopefully be able to guide you in a positive direction. For the record if I could get a job being paid to smoke weed I would 😉 just saying! #crohnsandcolitisawarenessweek  #crohnscolitis  #colitis  #autoimmunedisease  #ibdfam  #ibdawareness  #work  #trades  #journeyman  #stayactive  #health  #positivethinking  #positivevibes  #wisdom  #unbreakable  #followforfollowback  #follow  #friday 
In honor of Crohns and Colitis week. Funny how a disease that has destroyed my body has made me comfortable in my skin. As a child I wouldn't even take my shirt off in a pool, now I could walk naked down the street and not care what others think. Make others feel uncomfortable with your comfort in yourself. #crohnscolitis #crohns #colitis #ibd #ibdawareness #crohnsandcolitisweek #ibdwarrior #ostomy #ostomate #stoma #nocolonstillrollin #nocares
Leaky Gut is increasingly becoming more accepted as the root cause of a lot of autoimmune diseases.
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If you have autoimmune disease or know someone that has, it’s worth considering this if you haven’t already.
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So what can you do about it?
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Remove problem foods. I’m sure you can already work out what some of the obvious culprits are like processed, high sugar foods.. But what may interest you is that lectins are one of the primary causes of intestinal permeability. Lectins are carbohydrate binding proteins that create havoc for your epithelial lining. Gluten is an example of a lectin, and A1 Casein is a lectin-like protein that plays a similar role. Where are lectins found? It would take a long time to explain but a simple Google search will tell you everything you need to know. For now I’ll say that they’re in more places than you’d expect (like potatoes!).
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Replace digestive essentials. Adding HCl with Pepsin and a good multi-enzyme will help you to break down your foods better. This will mean that you don’t feed bad bacteria by letting food sit around in your intestines before it’s absorbed. Also, by adding HCl with Pepsin for proper protein digestion, you render proteins unrecognizable as foreign invaders to your body. This means that if these proteins do find their way into your bloodstream, your body won’t attack them causing inflammation as with an autoimmune response.
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Re-inoculate with good bugs. Adding fermented foods like fermented vegetables, yoghurt, kefir, and probiotics to your diet can help restore microbial balance in your gut which protects against inflammation and leaky gut. Multiple studies have shown that an imbalance in gut bacteria ALONE can cause inflammation and a leaky gut.
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Repair the damage. Basically, eat good, whole foods that are easy to digest, and that are anti-inflammatory. You can also supplement your healthy diet with glutamine, bone broth, and cabbage juice to super-charge the repair.
Leaky Gut is increasingly becoming more accepted as the root cause of a lot of autoimmune diseases. • If you have autoimmune disease or know someone that has, it’s worth considering this if you haven’t already. • So what can you do about it? • Remove problem foods. I’m sure you can already work out what some of the obvious culprits are like processed, high sugar foods.. But what may interest you is that lectins are one of the primary causes of intestinal permeability. Lectins are carbohydrate binding proteins that create havoc for your epithelial lining. Gluten is an example of a lectin, and A1 Casein is a lectin-like protein that plays a similar role. Where are lectins found? It would take a long time to explain but a simple Google search will tell you everything you need to know. For now I’ll say that they’re in more places than you’d expect (like potatoes!). • Replace digestive essentials. Adding HCl with Pepsin and a good multi-enzyme will help you to break down your foods better. This will mean that you don’t feed bad bacteria by letting food sit around in your intestines before it’s absorbed. Also, by adding HCl with Pepsin for proper protein digestion, you render proteins unrecognizable as foreign invaders to your body. This means that if these proteins do find their way into your bloodstream, your body won’t attack them causing inflammation as with an autoimmune response. • Re-inoculate with good bugs. Adding fermented foods like fermented vegetables, yoghurt, kefir, and probiotics to your diet can help restore microbial balance in your gut which protects against inflammation and leaky gut. Multiple studies have shown that an imbalance in gut bacteria ALONE can cause inflammation and a leaky gut. • Repair the damage. Basically, eat good, whole foods that are easy to digest, and that are anti-inflammatory. You can also supplement your healthy diet with glutamine, bone broth, and cabbage juice to super-charge the repair.
I know cats aren’t everyone’s thing 😂 so I promise (for now..) this will be my only cat related post 😂 This is Papisse and he sits on my tummy and keeps it warm when it’s sore, he also keeps me company when I spend lots of time on the loo 😂💜
#crohns #crohnsdisease #ibd #chronicillness #spoonie #colitis #autoimmunedisease #crohnswarrior #invisibleillness #ibs #ulcerativecolitis #health #crohnsfighter #crohnsawareness #chronicpain #ibdawareness #crohnie #crohnslife #crohnscolitis #fighter #cats #blackcat #cat #catsofinstagram #catstagram
I know cats aren’t everyone’s thing 😂 so I promise (for now..) this will be my only cat related post 😂 This is Papisse and he sits on my tummy and keeps it warm when it’s sore, he also keeps me company when I spend lots of time on the loo 😂💜 #crohns  #crohnsdisease  #ibd  #chronicillness  #spoonie  #colitis  #autoimmunedisease  #crohnswarrior  #invisibleillness  #ibs  #ulcerativecolitis  #health  #crohnsfighter  #crohnsawareness  #chronicpain  #ibdawareness  #crohnie  #crohnslife  #crohnscolitis  #fighter  #cats  #blackcat  #cat  #catsofinstagram  #catstagram 
As we continue on to Day 6 of Crohn’s & Colitis Awareness Week, I will share how I came across our awesome IBD Community which I posted about back in August. It was August of 2017 when I had made this post not realizing what was going to be in store for me all throughout the rest of 2017 to now. I had never given much thought about raising awareness of IBD or breaking the stigma of life with an ileostomy. My IG profile had no direction and the posts I made were humorous posts or selfies of what I’m up to for my friends and family that were following me. Throughout the years, I was always shy of showing off my ileostomy and I had only shown it to my closest friends and ladies I was involved with. My therapist had made a suggestion back in 2016 for me to break my shyness of my ileostomy by posting a pic of myself with it. At the encouragement of her and a few of my other close female friends I went ahead and did so with very little fanfare. As I mentioned in my post yesterday, I started working on documenting my weightloss journey in early 2017. When I made this post above last year after a trip to the beach, which I hadn’t done in ages at the time, I was coming to terms with my own acceptance of my body image and working hard on losing weight. When I made this post above, I was extremely amazed at the likes I was getting despite it being an art piece by @jude_devir and using proper hashtags for IBD and ostomies. What caught my eye the most was a like by a user which contained ileostomy and Crohn in the same handle. Curious, I looked up the person who we all know as @ileostomy_crohn_princess and I was awestruck by her beauty and her positivity and the shine that she radiates to many of us! I was a little hesitant to interact with her but when I did, she encouraged me to show off my ostomy and told me that there’s nothing to be ashamed of. With her words echoing in my mind, I went ahead and went for it. She had also asked me to help her and others raise awareness and give support and encouragement to those in need. As I mentioned, I never gave a thought about it and at the time, I didn’t know how to go about it. (Continued in the comments below 👇🏼)
As we continue on to Day 6 of Crohn’s & Colitis Awareness Week, I will share how I came across our awesome IBD Community which I posted about back in August. It was August of 2017 when I had made this post not realizing what was going to be in store for me all throughout the rest of 2017 to now. I had never given much thought about raising awareness of IBD or breaking the stigma of life with an ileostomy. My IG profile had no direction and the posts I made were humorous posts or selfies of what I’m up to for my friends and family that were following me. Throughout the years, I was always shy of showing off my ileostomy and I had only shown it to my closest friends and ladies I was involved with. My therapist had made a suggestion back in 2016 for me to break my shyness of my ileostomy by posting a pic of myself with it. At the encouragement of her and a few of my other close female friends I went ahead and did so with very little fanfare. As I mentioned in my post yesterday, I started working on documenting my weightloss journey in early 2017. When I made this post above last year after a trip to the beach, which I hadn’t done in ages at the time, I was coming to terms with my own acceptance of my body image and working hard on losing weight. When I made this post above, I was extremely amazed at the likes I was getting despite it being an art piece by @jude_devir and using proper hashtags for IBD and ostomies. What caught my eye the most was a like by a user which contained ileostomy and Crohn in the same handle. Curious, I looked up the person who we all know as @ileostomy_crohn_princess and I was awestruck by her beauty and her positivity and the shine that she radiates to many of us! I was a little hesitant to interact with her but when I did, she encouraged me to show off my ostomy and told me that there’s nothing to be ashamed of. With her words echoing in my mind, I went ahead and went for it. She had also asked me to help her and others raise awareness and give support and encouragement to those in need. As I mentioned, I never gave a thought about it and at the time, I didn’t know how to go about it. (Continued in the comments below 👇🏼)
Lets talk about medications...ahhhh the best and worst thing to happen to someone with IBD 😐💊
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Over the past 15 years, I’ve tried numerous different medications to try to get my UC under control. Pills, suppositories, enemas, infusions, injections...all the things! While I’ve had success with some, I’ve had complete misses and horrible reactions with others.
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These drugs are supposed to help your disease, but sometimes the side effects can be worse than the disease itself. For me, some side effects have been minor like “moon face” and agitation with Prednisone (there is only a 5 lb difference in that first photo...can you tell which one was when I was on Prednisone?) or upper respiratory infections with Entyvio. And some have been major like Pancreatitis with 5-ASAs and Humira kicking off the worst flare I’ve ever had.
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The problem is, I need SOMETHING to help keep things under control. I have tried holistic treatments, medical marijuana and managing with diet, but it’s never enough. So I just have to keep trying.
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I’m currently calming down with daily Budesinide (a steroid that is focused in the GI tract) and I’m starting Xeljanz soon which I’m hopeful will help. But it’s a never ending trial to find what is going to work for me. Unfortunately there is no cure for IBD and every patient reacts to medication and diet differently, so we all have to do what works best for us. Just remember to be honest with your doctor and to stand up for what you feel is right for you...don’t get pushed into something you’re not comfortable with. 👊🏻
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Got medication questions? I’m happy to answer anything based on my experience 💕✌🏻
Lets talk about medications...ahhhh the best and worst thing to happen to someone with IBD 😐💊 . Over the past 15 years, I’ve tried numerous different medications to try to get my UC under control. Pills, suppositories, enemas, infusions, injections...all the things! While I’ve had success with some, I’ve had complete misses and horrible reactions with others. . These drugs are supposed to help your disease, but sometimes the side effects can be worse than the disease itself. For me, some side effects have been minor like “moon face” and agitation with Prednisone (there is only a 5 lb difference in that first photo...can you tell which one was when I was on Prednisone?) or upper respiratory infections with Entyvio. And some have been major like Pancreatitis with 5-ASAs and Humira kicking off the worst flare I’ve ever had. . The problem is, I need SOMETHING to help keep things under control. I have tried holistic treatments, medical marijuana and managing with diet, but it’s never enough. So I just have to keep trying. . I’m currently calming down with daily Budesinide (a steroid that is focused in the GI tract) and I’m starting Xeljanz soon which I’m hopeful will help. But it’s a never ending trial to find what is going to work for me. Unfortunately there is no cure for IBD and every patient reacts to medication and diet differently, so we all have to do what works best for us. Just remember to be honest with your doctor and to stand up for what you feel is right for you...don’t get pushed into something you’re not comfortable with. 👊🏻 . Got medication questions? I’m happy to answer anything based on my experience 💕✌🏻
🎁G I V E A W A Y!!
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💩It's IBD awareness week and to show that #noteverydisabilityisvisible I have teamed up with @instacrohns on a giveaway.
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🎖There will be 4 winners. 1st place will win a not every disability is visible badge while 3 runners up will get an #instacrohns wrist band. To win, all you have to do is:
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1. Like this post
2. Follow @thegrumblinggut and @instacrohns
3. Tag 3 friends in the comments section.
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🎉Giveaway is open to everyone and will close at midnight on Sunday 9th December 2018. Winner will be announced on Monday 10th December 2018.
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🎊You can enter as many times as you like. Good luck.
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Instagram: @thegrumblinggut
Facebook.com/thegrumblinggut 
Twitter.com/thegrumblinggut 
YouTube.com/thegrumblinggut 
www.thegrumblinggut.com
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#thegrumblinggut #beatthestigma #crohnsdisease #crohnsfighter #invisibleillness #crohnsdiseaseawareness #ItTakesGuts #instacrohns #crohnsandcolitisawareness #ibdawareness #ibdawarenessweek #crohnscolitis #giveawaytime #tag #tagsomeone #love #instagiveaway #equality #invisibleillness #youlookfine #poo #crohnsawareness #crohnslife #ulcerativecolitis  #chronicillness #ulcerativecolitisfighter #raiseawareness #volunteering #pin
🎁G I V E A W A Y!! 🔹 💩It's IBD awareness week and to show that #noteverydisabilityisvisible  I have teamed up with @instacrohns on a giveaway. 🔹 🎖There will be 4 winners. 1st place will win a not every disability is visible badge while 3 runners up will get an #instacrohns  wrist band. To win, all you have to do is: 🔹 1. Like this post 2. Follow @thegrumblinggut and @instacrohns 3. Tag 3 friends in the comments section. 🔹 🎉Giveaway is open to everyone and will close at midnight on Sunday 9th December 2018. Winner will be announced on Monday 10th December 2018. 🔹 🎊You can enter as many times as you like. Good luck.  _______________ Instagram: @thegrumblinggut Facebook.com/thegrumblinggut Twitter.com/thegrumblinggut YouTube.com/thegrumblinggut www.thegrumblinggut.com 🔹 #thegrumblinggut  #beatthestigma  #crohnsdisease  #crohnsfighter  #invisibleillness  #crohnsdiseaseawareness  #ItTakesGuts  #instacrohns  #crohnsandcolitisawareness  #ibdawareness  #ibdawarenessweek  #crohnscolitis  #giveawaytime  #tag  #tagsomeone  #love  #instagiveaway  #equality  #invisibleillness  #youlookfine  #poo  #crohnsawareness  #crohnslife  #ulcerativecolitis  #chronicillness  #ulcerativecolitisfighter  #raiseawareness  #volunteering  #pin 
DAY 6 Crohn’s and Colitis Awareness Week 2018 - #myIBDstory

FRIDAY 16th MARCH 2018 - this is a very raw post just FYI. 
Today was the day I could test if I was pregnant. I had been wanting to have another baby for a while. JJ has brought so much happiness into our little family and I’ve always wanted another baby. Some people will know, others won’t, but I had a miscarriage in August last year and ever since then all I wanted was to conceive again so I was so chuffed when it came to Friday and there was a positive result on that test! Even though I still felt so poorly, still throwing up absolutely knackered because I’d had NO sleep all week and still cramping like mad, I was over the moon and reasoned this was the reason why I felt so bad. I even likened myself to Kate Middleton when she had her sickness. 😂🤦‍♀️ Even my family I told put my sickness down to that and I’d just have to wait till it passed. I was still going to the toilet A LOT and had passed blood a few times but still not enough to worry about, I’d been to the docs hadn’t I?! Looking at it now I’m even shouting at myself, WHY DIDNT YOU GO TO A&E? But it’s easy to do that when you’re looking back after what’s happened. 
Because I wasn’t eating or drinking at this point, I was worried. If I couldn’t look after myself how could I look after a baby? I needed to speak to my doctor again. I had got the impression the day before that they thought I was overreacting so I didn’t want to go again I rang up instead. I told the receptionist what happened and to get my doctor to ring me back. It was afternoon before I got a call back. In that time I’d still been throwing up and going to the toilet a lot. I was just lying on the couch most of the time. Jjs nursery rhymes he listened to on YouTube were engrained in my head. 😂 When they rang it was the receptionist again and she just said she’d spoken to the doctor, nothing changed and not to worry 🤷‍♀️ #crohnscolitis #ibdawareness #invisibleillness #ileostomy #blogpost #crohnsandcolitisawarenessweek #1weekofIBD #Day6ofIBD #pregnancy #symptoms #raiseawareness #ibdsuperheroes @ibdsuperheroes @crohnsandcolitisuk
DAY 6 Crohn’s and Colitis Awareness Week 2018 - #myIBDstory  FRIDAY 16th MARCH 2018 - this is a very raw post just FYI. Today was the day I could test if I was pregnant. I had been wanting to have another baby for a while. JJ has brought so much happiness into our little family and I’ve always wanted another baby. Some people will know, others won’t, but I had a miscarriage in August last year and ever since then all I wanted was to conceive again so I was so chuffed when it came to Friday and there was a positive result on that test! Even though I still felt so poorly, still throwing up absolutely knackered because I’d had NO sleep all week and still cramping like mad, I was over the moon and reasoned this was the reason why I felt so bad. I even likened myself to Kate Middleton when she had her sickness. 😂🤦‍♀️ Even my family I told put my sickness down to that and I’d just have to wait till it passed. I was still going to the toilet A LOT and had passed blood a few times but still not enough to worry about, I’d been to the docs hadn’t I?! Looking at it now I’m even shouting at myself, WHY DIDNT YOU GO TO A&E? But it’s easy to do that when you’re looking back after what’s happened. Because I wasn’t eating or drinking at this point, I was worried. If I couldn’t look after myself how could I look after a baby? I needed to speak to my doctor again. I had got the impression the day before that they thought I was overreacting so I didn’t want to go again I rang up instead. I told the receptionist what happened and to get my doctor to ring me back. It was afternoon before I got a call back. In that time I’d still been throwing up and going to the toilet a lot. I was just lying on the couch most of the time. Jjs nursery rhymes he listened to on YouTube were engrained in my head. 😂 When they rang it was the receptionist again and she just said she’d spoken to the doctor, nothing changed and not to worry 🤷‍♀️ #crohnscolitis  #ibdawareness  #invisibleillness  #ileostomy  #blogpost  #crohnsandcolitisawarenessweek  #1weekofIBD  #Day6ofIBD  #pregnancy  #symptoms  #raiseawareness  #ibdsuperheroes  @ibdsuperheroes @crohnsandcolitisuk
How convenient that I have a #remicade infusion during #crohnscolitisawarenessweek. One of my least favorite parts of it all.. Sitting here for a few hours just to get meds. Wish it was all as easy as taking vitamins. I'll be set for 8 weeks after this!
How convenient that I have a #remicade  infusion during #crohnscolitisawarenessweek . One of my least favorite parts of it all.. Sitting here for a few hours just to get meds. Wish it was all as easy as taking vitamins. I'll be set for 8 weeks after this!
It’s a blessing and a curse that our outside doesn’t look like our insides. After coming back from being hospitalized, a coworker said he thought I was dieting for my wedding when I lost 30lbs in only a couple months. The more you know....#crohnsiscray #crohns #colitis #myibd #ccawarenessweek
It’s a blessing and a curse that our outside doesn’t look like our insides. After coming back from being hospitalized, a coworker said he thought I was dieting for my wedding when I lost 30lbs in only a couple months. The more you know....#crohnsiscray  #crohns  #colitis  #myibd  #ccawarenessweek 
IBD BREAK FREE ACADEMY is a 6 week group coaching program that is a hybrid between 1 on 1 coaching and group coaching.
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Nothing like this exists! It was created specifically for woman with IBD to have the tools to start living the life they dream of. .
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We have weekly group coaching calls where we focus on 3 pillars of health. Nutrition (how to eat healthy without pooping your pants instantly after). Movement (how to stay active or moving through a flare and after) workout plans specific for woman with IBD. Mindset (how to leave the "why me" mentality behind and take full control over the life you are living. .
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There are only 6 spots left at 50% off rate. This is a once in a lifetime opportunity. .
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After taking this course you will not only have the tools to confidently continue healing your body, but you will have a group of 7 other woman to do this journey with who know exactly what you are going through.
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YOU ARE NOT ALONE, and you don't need to be. .
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Level up and take this leap. Feel free to dm me any questions you may have. .
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Link is in the bio to sign up!
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#crohnswarrior #crohnsfighter #crohnslife #crohns #crohnsfit #crohnsgirl #crohnsfitness #crohnscoach #crohnscolitis #crohnsproblems #forthehealth #ulcerativecolitis #ulcerativecolitisfighter #spoonie #doilooksick #doilooksicktoyou
IBD BREAK FREE ACADEMY is a 6 week group coaching program that is a hybrid between 1 on 1 coaching and group coaching. . . Nothing like this exists! It was created specifically for woman with IBD to have the tools to start living the life they dream of. . . We have weekly group coaching calls where we focus on 3 pillars of health. Nutrition (how to eat healthy without pooping your pants instantly after). Movement (how to stay active or moving through a flare and after) workout plans specific for woman with IBD. Mindset (how to leave the "why me" mentality behind and take full control over the life you are living. . . There are only 6 spots left at 50% off rate. This is a once in a lifetime opportunity. . . After taking this course you will not only have the tools to confidently continue healing your body, but you will have a group of 7 other woman to do this journey with who know exactly what you are going through. . . YOU ARE NOT ALONE, and you don't need to be. . . Level up and take this leap. Feel free to dm me any questions you may have. . . Link is in the bio to sign up! . . #crohnswarrior  #crohnsfighter  #crohnslife  #crohns  #crohnsfit  #crohnsgirl  #crohnsfitness  #crohnscoach  #crohnscolitis  #crohnsproblems  #forthehealth  #ulcerativecolitis  #ulcerativecolitisfighter  #spoonie  #doilooksick  #doilooksicktoyou 
St Pete tonight is the night to come out and register to bowl in the 1st Annual Crohn’s/Colitis Bowl-A-Thon. We will be at Sunrise Bowling Lanes from 6pm-8pm to register you and your family. 
#authorsambition #crohnscolitis #familyfun #bowlbowlbowl #stpetestandup
St Pete tonight is the night to come out and register to bowl in the 1st Annual Crohn’s/Colitis Bowl-A-Thon. We will be at Sunrise Bowling Lanes from 6pm-8pm to register you and your family. 
#authorsambition #crohnscolitis #familyfun #bowlbowlbowl #stpetestandup
The last few days have been great & terrible. The great was Tommy’s heart being ok & seeing family & friends, the terrible is this...
About 3 weeks ago I started getting sick again, like sick as I was when I was pregnant.
So that involves really intense pain, fatigue, a very sick stomach & just feeling terrible.
And of course it’s the busiest time of year.
I don’t have time to be sick. So I contacted my specialist who got me to do a test that would show us how much inflammation I have in my intestines. A beautifully humiliating test that Medicare doesn’t feel it should cover nor my private health. 🙄😒💸 Monday I get a call from the receptionist saying “look doctor doesn’t work Tuesdays, but you need to be here in the morning so she can speak with you about these results...” great, if you’ve ever had any sort of medical testing done this is never a good call to get.
So what was already going to be a stressful few days with Tommy suddenly got more stressful. 
The appointment revealed my score for the test was in the 1850s, a normal persons score is about 50 or less 😐🤦🏻‍♀️ Look at me, the overachiever! 🙄 this means I have very active disease & it’s thought to be tinkering between moderate - severe. And my disease as seen in my scopes effects my entire large intestine - so it’s pan colitis.
Results like this always shock me, I continually think/tell myself I’m not that sick & just shove my illness to the back of my mind... Sometimes I struggle with “am I really sick? Or is this just normal?”. So being told I’m actually very sick just surprises me, which is stupid. 
Anyway, for Christmas I get... steroids! 😐😭 I really have been trying my best to avoid these, because I don’t feel like getting puffy & crazy over Christmas. 🌝🤪
So lucky me. 
And between now & February we have to up my intense medication from 5mg to 25mg, so this weekend we start doubling the dose... we need to get to the 25mg to see if this drug is having any effect on my condition, we fear it isn’t but we can’t make that call without giving it a chance at 25mg. If I continue to be sick after getting to that point we will explore level 3 treatment, whatever that is.
Cont in comments ⬇️
The last few days have been great & terrible. The great was Tommy’s heart being ok & seeing family & friends, the terrible is this... About 3 weeks ago I started getting sick again, like sick as I was when I was pregnant. So that involves really intense pain, fatigue, a very sick stomach & just feeling terrible. And of course it’s the busiest time of year. I don’t have time to be sick. So I contacted my specialist who got me to do a test that would show us how much inflammation I have in my intestines. A beautifully humiliating test that Medicare doesn’t feel it should cover nor my private health. 🙄😒💸 Monday I get a call from the receptionist saying “look doctor doesn’t work Tuesdays, but you need to be here in the morning so she can speak with you about these results...” great, if you’ve ever had any sort of medical testing done this is never a good call to get. So what was already going to be a stressful few days with Tommy suddenly got more stressful. The appointment revealed my score for the test was in the 1850s, a normal persons score is about 50 or less 😐🤦🏻‍♀️ Look at me, the overachiever! 🙄 this means I have very active disease & it’s thought to be tinkering between moderate - severe. And my disease as seen in my scopes effects my entire large intestine - so it’s pan colitis. Results like this always shock me, I continually think/tell myself I’m not that sick & just shove my illness to the back of my mind... Sometimes I struggle with “am I really sick? Or is this just normal?”. So being told I’m actually very sick just surprises me, which is stupid. Anyway, for Christmas I get... steroids! 😐😭 I really have been trying my best to avoid these, because I don’t feel like getting puffy & crazy over Christmas. 🌝🤪 So lucky me. And between now & February we have to up my intense medication from 5mg to 25mg, so this weekend we start doubling the dose... we need to get to the 25mg to see if this drug is having any effect on my condition, we fear it isn’t but we can’t make that call without giving it a chance at 25mg. If I continue to be sick after getting to that point we will explore level 3 treatment, whatever that is. Cont in comments ⬇️
💜💜💜So let’s talk IBD treatment options. ***Disclaimer: this is how I understand it and by no means solid medical or treatment suggestions!*** Also, this is very long, detailed, and personal, so just a heads up! I’m still working on my diagnosis story, so that will piggy back off of this later in the week. 
Inflammatory Bowel Disease is understood to be an autoimmune disease, meaning that it causes the body’s immune system to attack itself, though the reason is often debated and ultimately unknown. Although there is a whole class of autoimmune diseases, IBD centers its attacks to the GI tract and bowels, resulting in bleeding inflammation, open sores, fat-wrapping, fissures, etc. Although food can make symptoms worse, it’s NOT caused by foods. Most IBD patients have foods they know will make them sick or flare and avoid it, and some are on specialized diets. What works for some might not work for others - everyone is different. 
Medication regimens vary by patient and doctor, once again supported by the understanding that everyone is different and that not just one things works for everyone. Some doctors (like mine) use steroids (like prednisone) to quell active inflammation. My doctor explained to me that there are three main levels of maintenance medicines - and most patients will start at the lowest level and work their way up depending on the effectiveness. Some are oral, some are suppositories, some are injection, and some are intravenous. 
And of course, there’s surgery, which is used to remove severely damaged stretches of bowels, or connecting a JPouch, ileostomy,  or colostomy (there are other options too but I’m not too familiar with them all). Luckily, my doctor realizes how young I am and has not considered this for me just yet, and my damage has not yet presented as severe enough for any emergency surgery (since prednisone has always been able to help me). That being said, I have read posts from people my age or younger who have opted for the surgery and have exclaimed that they should have done so sooner due to the increased quality of life it provides. (CONTINUED IN COMMENTS) #crohnscolitis #ibd #ibdwarrior #ibdawarenessweek
💜💜💜So let’s talk IBD treatment options. ***Disclaimer: this is how I understand it and by no means solid medical or treatment suggestions!*** Also, this is very long, detailed, and personal, so just a heads up! I’m still working on my diagnosis story, so that will piggy back off of this later in the week. Inflammatory Bowel Disease is understood to be an autoimmune disease, meaning that it causes the body’s immune system to attack itself, though the reason is often debated and ultimately unknown. Although there is a whole class of autoimmune diseases, IBD centers its attacks to the GI tract and bowels, resulting in bleeding inflammation, open sores, fat-wrapping, fissures, etc. Although food can make symptoms worse, it’s NOT caused by foods. Most IBD patients have foods they know will make them sick or flare and avoid it, and some are on specialized diets. What works for some might not work for others - everyone is different. Medication regimens vary by patient and doctor, once again supported by the understanding that everyone is different and that not just one things works for everyone. Some doctors (like mine) use steroids (like prednisone) to quell active inflammation. My doctor explained to me that there are three main levels of maintenance medicines - and most patients will start at the lowest level and work their way up depending on the effectiveness. Some are oral, some are suppositories, some are injection, and some are intravenous. And of course, there’s surgery, which is used to remove severely damaged stretches of bowels, or connecting a JPouch, ileostomy, or colostomy (there are other options too but I’m not too familiar with them all). Luckily, my doctor realizes how young I am and has not considered this for me just yet, and my damage has not yet presented as severe enough for any emergency surgery (since prednisone has always been able to help me). That being said, I have read posts from people my age or younger who have opted for the surgery and have exclaimed that they should have done so sooner due to the increased quality of life it provides. (CONTINUED IN COMMENTS) #crohnscolitis  #ibd  #ibdwarrior  #ibdawarenessweek 
10 years ago I was diagnosed with Crohn’s Disease.  It has been an absolute rollercoaster.  Hospitalizations, chronic pain, chronic discomfort, pills, needles, doctors appointments, anxiety, pain, pain, and more pain.  The worst.  Today, however, I count my blessings. I’ve found victory in choosing to not let this diagnosis define me.  I have an absolutely incredible care team that has brought me to remission.  I’ve embraced the world of fitness and now consider myself a runner.  10 years ago, I didn’t think this was possible.  It is.  December 1-7 is IBD Awareness Week.  Do us all a favor and hug your local Crohnie!
10 years ago I was diagnosed with Crohn’s Disease. It has been an absolute rollercoaster. Hospitalizations, chronic pain, chronic discomfort, pills, needles, doctors appointments, anxiety, pain, pain, and more pain. The worst. Today, however, I count my blessings. I’ve found victory in choosing to not let this diagnosis define me. I have an absolutely incredible care team that has brought me to remission. I’ve embraced the world of fitness and now consider myself a runner. 10 years ago, I didn’t think this was possible. It is. December 1-7 is IBD Awareness Week. Do us all a favor and hug your local Crohnie!
Just a few stages of my stoma over the years, if it wasn’t  swollen massively, twisted up inside or closed up internally it was prolapsing, lost count how many surgeries I’ve had for prolapsing alone 😩fingers crossed this last one at St Marks works

#Crohns #colitis #crohnscolitis #crohnswarrior #chronsfighter #crohnslife #purplewings #charity #crohnsandcolitisuk #instacrohns #ibd #awareness #ostomy #surgery #hospital #chronicpain #ileostomy #stoma #mylife #operations #onethingafteranother
Just a few stages of my stoma over the years, if it wasn’t swollen massively, twisted up inside or closed up internally it was prolapsing, lost count how many surgeries I’ve had for prolapsing alone 😩fingers crossed this last one at St Marks works #Crohns  #colitis  #crohnscolitis  #crohnswarrior  #chronsfighter  #crohnslife  #purplewings  #charity  #crohnsandcolitisuk  #instacrohns  #ibd  #awareness  #ostomy  #surgery  #hospital  #chronicpain  #ileostomy  #stoma  #mylife  #operations  #onethingafteranother 
Being held back by #crohnsdisease was the worst thing I could have ever dreamt. Rather than go about your day as a normal person, ever moment of your life was dictated by up & down symptoms. To go through years of pain to get rid of the pain was a process that I didn’t expect. I mean, to go through pain to get rid of pain, what?! Healing is a difficult process and hard to trust.
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But to get your freedom back and really explore what you’re here to do on this planet is a BLESSING. I just had no idea. Having gone through the nightmare of #crohns really woke me up. This was something that literally could have killed me at one point because I was so stubborn. So stubborn I avoided going to the hospital. So stubborn I avoided even telling my parents! But it was hard to hide after a while. I even tried hiding it from myself. I’m young. I’m not supposed to be in this much pain. It’ll just go away—right?
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Well it didn’t. Fast forward many years later and I have my life back. Worth all the pain, experimentation and going against what science & society says? Totally.
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Alexandra @happily_healing healing & I spent 6 months living in a van to explore the country. If I was still dominated by the crazy whirlwind of symptoms, it’d be impossible traveling in a van across the country never knowing where you’re gonna sleep next!! Not saying it was easy but I am blessed to have worries other than my body while traveling. Real talk—both of us had some bodily malfunctions traveling.
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Honestly if it weren’t for traveling, we never would have figured out we had so so so much deeper to go with our healing physically, emotionally & spiritually. My ego needed to go through the washing machine. My mind needed reprogramming. My anxiety needed lifted. My traumas needed to be REALIZED. And my physical body needed a deep cleansing & regeneration.
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Traveling opened up a can of worms but it prepared us for much bigger things in life. Blessed to be here with all of you to share everything that we can to help you come into your body’s power. No one should be held back by unpredictable bodily symptoms. Your body is a miracle healer. If you want to connect, reach out to us. Much love y’all.
Being held back by #crohnsdisease  was the worst thing I could have ever dreamt. Rather than go about your day as a normal person, ever moment of your life was dictated by up & down symptoms. To go through years of pain to get rid of the pain was a process that I didn’t expect. I mean, to go through pain to get rid of pain, what?! Healing is a difficult process and hard to trust. - But to get your freedom back and really explore what you’re here to do on this planet is a BLESSING. I just had no idea. Having gone through the nightmare of #crohns  really woke me up. This was something that literally could have killed me at one point because I was so stubborn. So stubborn I avoided going to the hospital. So stubborn I avoided even telling my parents! But it was hard to hide after a while. I even tried hiding it from myself. I’m young. I’m not supposed to be in this much pain. It’ll just go away—right? - Well it didn’t. Fast forward many years later and I have my life back. Worth all the pain, experimentation and going against what science & society says? Totally. - Alexandra @happily_healing healing & I spent 6 months living in a van to explore the country. If I was still dominated by the crazy whirlwind of symptoms, it’d be impossible traveling in a van across the country never knowing where you’re gonna sleep next!! Not saying it was easy but I am blessed to have worries other than my body while traveling. Real talk—both of us had some bodily malfunctions traveling. - Honestly if it weren’t for traveling, we never would have figured out we had so so so much deeper to go with our healing physically, emotionally & spiritually. My ego needed to go through the washing machine. My mind needed reprogramming. My anxiety needed lifted. My traumas needed to be REALIZED. And my physical body needed a deep cleansing & regeneration. - Traveling opened up a can of worms but it prepared us for much bigger things in life. Blessed to be here with all of you to share everything that we can to help you come into your body’s power. No one should be held back by unpredictable bodily symptoms. Your body is a miracle healer. If you want to connect, reach out to us. Much love y’all.
As we continue on to Day 5 of Crohn’s & Colitis Week, I will share the next stage of my Crohn’s journey. When I started to seek counseling, one of the subjects we often discussed was my body image and coming to terms with my Ileostomy. I would tell my therapist that when I looked at myself in the mirror, I didn’t recognize the person looking back at me. I explained how I hated how the ostomy looked on me and how it made me look heavier. Another subject we spoke of often was the weight gain. I remember her telling me that the ostomy will take time to accept but the weight is something I can control if I wanted to. I joined a gym and did my best to do what I could. Initially, I dropped about 10lbs but I ended up gaining it back which ended up discouraging me. After about a year, I came close to giving up on losing weight. When I went to get my blood levels checked towards the end of 2016, I found out that I was at high risk of diabetes, high cholesterol and, to make things even worse, I developed a fatty liver. I’m 5’7 and I was pushing over 220lbs which is definitely not a healthy weight for someone like me and I was already struggling with a chronic illness. My knees hurt like hell and my doctor even made the suggestion that if I lost weight, the strain on my knees wouldn’t be too bad. I was so angry when I developed these health risks. I literally came close to drinking again but then I remembered that drinking probably messed up my liver. The temptation was there but I resisted it. During January 2017, I took some pictures for a friend and I was ashamed of them. My toxic ex-friend was pissing me off, someone close to me cut me off and my bosses at work we’re picking on me. Finally, I just snapped but not in a bad way. I used all the negative energy and channeled it to push myself to limits that I thought I didn’t have. I became determined to lose weight. When I created this Instagram account, it had no direction at all but I decided to use it as a means to document my weightloss journey at the time. I kept pushing myself so hard that I achieved my goal and dropped 35lbs in 2017! I was really happy at the progress I had made. (Continued in the comments👇🏼)
As we continue on to Day 5 of Crohn’s & Colitis Week, I will share the next stage of my Crohn’s journey. When I started to seek counseling, one of the subjects we often discussed was my body image and coming to terms with my Ileostomy. I would tell my therapist that when I looked at myself in the mirror, I didn’t recognize the person looking back at me. I explained how I hated how the ostomy looked on me and how it made me look heavier. Another subject we spoke of often was the weight gain. I remember her telling me that the ostomy will take time to accept but the weight is something I can control if I wanted to. I joined a gym and did my best to do what I could. Initially, I dropped about 10lbs but I ended up gaining it back which ended up discouraging me. After about a year, I came close to giving up on losing weight. When I went to get my blood levels checked towards the end of 2016, I found out that I was at high risk of diabetes, high cholesterol and, to make things even worse, I developed a fatty liver. I’m 5’7 and I was pushing over 220lbs which is definitely not a healthy weight for someone like me and I was already struggling with a chronic illness. My knees hurt like hell and my doctor even made the suggestion that if I lost weight, the strain on my knees wouldn’t be too bad. I was so angry when I developed these health risks. I literally came close to drinking again but then I remembered that drinking probably messed up my liver. The temptation was there but I resisted it. During January 2017, I took some pictures for a friend and I was ashamed of them. My toxic ex-friend was pissing me off, someone close to me cut me off and my bosses at work we’re picking on me. Finally, I just snapped but not in a bad way. I used all the negative energy and channeled it to push myself to limits that I thought I didn’t have. I became determined to lose weight. When I created this Instagram account, it had no direction at all but I decided to use it as a means to document my weightloss journey at the time. I kept pushing myself so hard that I achieved my goal and dropped 35lbs in 2017! I was really happy at the progress I had made. (Continued in the comments👇🏼)
But you don’t look sick?
Having an invisible illness is both a blessing and a curse. I don’t think anyone looks at me and thinks I look unwell but also I don’t think anyone would look at me and realise what was going on inside my body. I don’t have to deal with people staring at me, giving pity or being judgemental because of my disease but on the other hand if I’m feeling especially tired no one would think to offer me a seat on the tube, understand when I say I am not feeling well enough to participate in things or realise I’m not a weird fussy eater, I genuinely will feel a lot of pain if I eat particular foods. Crohn’s is one of many invisible illnesses and I guess the whole reason I set up this page is to raise awareness of this. Be kind, for everyone you meet is fighting a battle you know nothing about 💜 
#crohns #crohnsdisease #ibd #chronicillness #spoonie #colitis #autoimmunedisease #crohnswarrior #invisibleillness #ibs #ulcerativecolitis #health #crohnsfighter #crohnsawareness #chronicpain #ibdawareness #crohnie #crohnslife #crohnscolitis #fighter #kind #kindness #invisibleillnessawareness #bekind #happiness #crohnsandcolitisuk #london @crohnsandcolitisuk
But you don’t look sick? Having an invisible illness is both a blessing and a curse. I don’t think anyone looks at me and thinks I look unwell but also I don’t think anyone would look at me and realise what was going on inside my body. I don’t have to deal with people staring at me, giving pity or being judgemental because of my disease but on the other hand if I’m feeling especially tired no one would think to offer me a seat on the tube, understand when I say I am not feeling well enough to participate in things or realise I’m not a weird fussy eater, I genuinely will feel a lot of pain if I eat particular foods. Crohn’s is one of many invisible illnesses and I guess the whole reason I set up this page is to raise awareness of this. Be kind, for everyone you meet is fighting a battle you know nothing about 💜 #crohns  #crohnsdisease  #ibd  #chronicillness  #spoonie  #colitis  #autoimmunedisease  #crohnswarrior  #invisibleillness  #ibs  #ulcerativecolitis  #health  #crohnsfighter  #crohnsawareness  #chronicpain  #ibdawareness  #crohnie  #crohnslife  #crohnscolitis  #fighter  #kind  #kindness  #invisibleillnessawareness  #bekind  #happiness  #crohnsandcolitisuk  #london  @crohnsandcolitisuk