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I’m really happy and excited to announce that after many years of searching, luck has finally hit me and I have found my half-sister, whom I haven’t seen or spoke to for over 20 years and I thought for this throwback Thursday, I’d share some old pics of her and I together along with our father and her mom. My dad was the only link I had to connect with her but after he passed away in 1996, the link I had with her was lost. In 2002 when I started doing my family history on Ancestry.com, I did my utmost to try and find her but to no avail. As the years went by, I would feel the desire to keep trying despite coming to numerous dead ends. With the recent AncestryDNA test I took and sharing my family tree with y’all here on Instagram, I felt that spark to try and find her again. This time was a major success as I have found her after all these years this past Sunday! @elisakresch Sis, I can’t tell you how much I have missed you! You have two cousins who can’t wait to meet you as well and I hope we can meet up soon and reconnect after all these years 😃🤗❤️❤️❤️
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#throwbackthursday #tbt #sister #brother #brotherandsister #siblings #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
I’m really happy and excited to announce that after many years of searching, luck has finally hit me and I have found my half-sister, whom I haven’t seen or spoke to for over 20 years and I thought for this throwback Thursday, I’d share some old pics of her and I together along with our father and her mom. My dad was the only link I had to connect with her but after he passed away in 1996, the link I had with her was lost. In 2002 when I started doing my family history on Ancestry.com, I did my utmost to try and find her but to no avail. As the years went by, I would feel the desire to keep trying despite coming to numerous dead ends. With the recent AncestryDNA test I took and sharing my family tree with y’all here on Instagram, I felt that spark to try and find her again. This time was a major success as I have found her after all these years this past Sunday! @elisakresch Sis, I can’t tell you how much I have missed you! You have two cousins who can’t wait to meet you as well and I hope we can meet up soon and reconnect after all these years 😃🤗❤️❤️❤️ . #throwbackthursday  #tbt  #sister  #brother  #brotherandsister  #siblings  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
#🎧 Reel Big Fish - Sell Out by @sounds_app #soundsapp on https://get.sounds.am/DBvgw4vwpP
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Just thought I’d play some 90’s ska to get through this hump day! I hope everyone is having a good week so far 😄💜
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#90s #90smusic #skamusic #alternativerock #rockmusic #ilovemusic #musicislife #musicforthesoul #musicforhealing #crohnsdisease #crohnscolitis #crohns #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #stomalife
#🎧 Reel Big Fish - Sell Out by @sounds_app #soundsapp  on https://get.sounds.am/DBvgw4vwpP . Just thought I’d play some 90’s ska to get through this hump day! I hope everyone is having a good week so far 😄💜 . #90s  #90smusic  #skamusic  #alternativerock  #rockmusic  #ilovemusic  #musicislife  #musicforthesoul  #musicforhealing  #crohnsdisease  #crohnscolitis  #crohns  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #stomalife 
Werbung | Nennung  Crohnie-Einkauf 🙆🏻‍♀️😬 @lidlde @alpro Alles, was einem gut bekommt, darf auf dem Speiseplan stehen.  Everything that’s fine for your Crohn’s could be on the menu. 🥒🥥🍌🥚🧀🍖🥜 #food #supermarket #foodstagram #instafood #einkauf #crohnie #crohns #crohn #crohnsdisease #crohnfighter #crohnlife #morbuscrohn #crohnscolitis #crohnsfighter #crohnswarrior #autoimmune #autoimmunedisease #ibd #ibdwarrior #ibdawareness #raiseawareness #ced #invisibleillness #inflammatoryboweldisease #chronicillness #chronicallyill #chronicallyawesome #bauchhelden #chronischglücklich #crohn
Werbung | Nennung Crohnie-Einkauf 🙆🏻‍♀️😬 @lidlde @alpro Alles, was einem gut bekommt, darf auf dem Speiseplan stehen. Everything that’s fine for your Crohn’s could be on the menu. 🥒🥥🍌🥚🧀🍖🥜 #food  #supermarket  #foodstagram  #instafood  #einkauf  #crohnie  #crohns  #crohn  #crohnsdisease  #crohnfighter  #crohnlife  #morbuscrohn  #crohnscolitis  #crohnsfighter  #crohnswarrior  #autoimmune  #autoimmunedisease  #ibd  #ibdwarrior  #ibdawareness  #raiseawareness  #ced  #invisibleillness  #inflammatoryboweldisease  #chronicillness  #chronicallyill  #chronicallyawesome  #bauchhelden  #chronischglücklich  #crohn 
The down point of having Crohns, just wanting to be in bed all the time due to fatigue. Have also had my back flare up so not trained properly in about a month. Sometimes you do just have to listen to your body and rest, which is so much harder when completion date for one of your goals is looming near. Can't wait to get back in the gym as determined to not let this setback destroy my goal for my 30th!

#crohnscolitis #ibdsuperheroes #ibd #ibdproblems #fatigue #justwannasleep #goalsonhold #backinjury #neversimplewithme #inflammation #jointpain #determinedtogetbackonit #goals #gymlifestyle #restisimportant
The down point of having Crohns, just wanting to be in bed all the time due to fatigue. Have also had my back flare up so not trained properly in about a month. Sometimes you do just have to listen to your body and rest, which is so much harder when completion date for one of your goals is looming near. Can't wait to get back in the gym as determined to not let this setback destroy my goal for my 30th! #crohnscolitis  #ibdsuperheroes  #ibd  #ibdproblems  #fatigue  #justwannasleep  #goalsonhold  #backinjury  #neversimplewithme  #inflammation  #jointpain  #determinedtogetbackonit  #goals  #gymlifestyle  #restisimportant 
WebMD has no chill 😂 (via: @turrajane) #crohnsiscray #webmd
Another pre opperation assessment.

Yesterday I stressed, and I questioned if I could afford the recovery, to have my opperation. The benefits system makes it difficult for single people like me to move forward in life. 
But after 10 years of pain and discomfort I will no way be turning this chance to live a better quality of life. 
Thank you #nhs 😍
#crohnscolitis
#crohns
#crohnsrunner 
#prestomaopperation 
#stoma
#thepoobag
Another pre opperation assessment. Yesterday I stressed, and I questioned if I could afford the recovery, to have my opperation. The benefits system makes it difficult for single people like me to move forward in life. But after 10 years of pain and discomfort I will no way be turning this chance to live a better quality of life. Thank you #nhs  😍 #crohnscolitis  #crohns  #crohnsrunner  #prestomaopperation  #stoma  #thepoobag 
After going to see the Made For More movie event last night with Rachel Hollis I was all fired up to get busy making all my dreams come true. What a bummer that a prolapsed stoma has stopped me dead in my tracks today. In case you haven’t seen my post in my stories and don’t know what that is, I’ll tell you. When you have a stoma it’s supposed to stick out about an inch from your belly. When it prolapses it comes out further. Having your intestine poke out out of your belly at all is weird enough but seeing it protrude several inches or more has my stomach queasy. Not only is it so bazaar and uncomfortable but it hurts! I’ve been online researching what I can do to fix it in my own. Laying down, pouring sugar on it, or applying an ice pack are all temporary fixes. I really don’t want to have to go see my surgeon about it and I really don’t want surgery to have to fix it. Above all I really don’t want a prolapsed stoma. It’s prolapsed on occasion in the past but has always gone back in and stayed. I keep wondering if I did something during our hike at Kanarra Falls that had caused it. I noticed it was prolapsed then and have had a hard time getting it to stay since. If it’s not better tomorrow I think I need to make an appointment to find out my options. 08/14/18 #stoma #stomas #prolapse #ostomy #ileostomy #ostomyproblems #ostomylife #crohnscolitis #colorectalcancer
After going to see the Made For More movie event last night with Rachel Hollis I was all fired up to get busy making all my dreams come true. What a bummer that a prolapsed stoma has stopped me dead in my tracks today. In case you haven’t seen my post in my stories and don’t know what that is, I’ll tell you. When you have a stoma it’s supposed to stick out about an inch from your belly. When it prolapses it comes out further. Having your intestine poke out out of your belly at all is weird enough but seeing it protrude several inches or more has my stomach queasy. Not only is it so bazaar and uncomfortable but it hurts! I’ve been online researching what I can do to fix it in my own. Laying down, pouring sugar on it, or applying an ice pack are all temporary fixes. I really don’t want to have to go see my surgeon about it and I really don’t want surgery to have to fix it. Above all I really don’t want a prolapsed stoma. It’s prolapsed on occasion in the past but has always gone back in and stayed. I keep wondering if I did something during our hike at Kanarra Falls that had caused it. I noticed it was prolapsed then and have had a hard time getting it to stay since. If it’s not better tomorrow I think I need to make an appointment to find out my options. 08/14/18 #stoma  #stomas  #prolapse  #ostomy  #ileostomy  #ostomyproblems  #ostomylife  #crohnscolitis  #colorectalcancer 
A fine work of art submitted by @leonnaise Have you read the latest blog post? It’s all fun and games until you shit yourself. Read it at www.crohnsiscray.com or visit the direct link in our bio! #crohnsiscray #crohns #colitis
A fine work of art submitted by @leonnaise Have you read the latest blog post? It’s all fun and games until you shit yourself. Read it at www.crohnsiscray.com or visit the direct link in our bio! #crohnsiscray  #crohns  #colitis 
So since I’m trying to be a real adult now... 😂 I’m having a Norwex party tonight on Facebook to try to get free cleaning products! 😝 • 
If you haven’t heard of Norwex, you should seriously check it out! It’s done WONDERS for helping me with dog hair in my house, car, and on my clothes. And their cloths are the only thing that gets lollipop sticky messes out of my car and off my carpets! 👍🏼 •
I wasn’t going to post this but then I realized someone might need these chemical free cleaning miracles so I figured I’d at least throw it out there! •
So let me know if you want an invite to the FB party, or the link to shop and look around! 🙃💜 .
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#norwex #cleaning #chemicalfree #cleaningproducts #green #crohns #crohnslife #crohnscolitis #crohnsfighter #crohnswarrior #crohnsdisease #colitis #ulcerativecolitis #ulcerativecolitisawareness #spoonie #autoimmune #autoimmunedisease #ibd #ibdwarrior #ibdawareness #chronicillness #chronicillnesswarrior #chronicillnessawareness #party #hostess #cleanup
So since I’m trying to be a real adult now... 😂 I’m having a Norwex party tonight on Facebook to try to get free cleaning products! 😝 • If you haven’t heard of Norwex, you should seriously check it out! It’s done WONDERS for helping me with dog hair in my house, car, and on my clothes. And their cloths are the only thing that gets lollipop sticky messes out of my car and off my carpets! 👍🏼 • I wasn’t going to post this but then I realized someone might need these chemical free cleaning miracles so I figured I’d at least throw it out there! • So let me know if you want an invite to the FB party, or the link to shop and look around! 🙃💜 . . . . . . . . #norwex  #cleaning  #chemicalfree  #cleaningproducts  #green  #crohns  #crohnslife  #crohnscolitis  #crohnsfighter  #crohnswarrior  #crohnsdisease  #colitis  #ulcerativecolitis  #ulcerativecolitisawareness  #spoonie  #autoimmune  #autoimmunedisease  #ibd  #ibdwarrior  #ibdawareness  #chronicillness  #chronicillnesswarrior  #chronicillnessawareness  #party  #hostess  #cleanup 
I’m home!! Third admission since March 😴 After spending 6 days at the hospital again I’m now home with my furbaby and can relax! 😍😴 Crohn’s flares are no fun at all but back on steroids and on a liquid diet and starting infliximab soon 🤞🏻
I’m home!! Third admission since March 😴 After spending 6 days at the hospital again I’m now home with my furbaby and can relax! 😍😴 Crohn’s flares are no fun at all but back on steroids and on a liquid diet and starting infliximab soon 🤞🏻
Tuesday Tip 🍳🥚| Rührei, Spinat gepimped mit Ziegenkäse. Bekömmlich für Herrn Crohn (ohne Gewürze, ohne KH). Scrambled eggs, spinach pimped with goat cheese. Fine for Mr Crohn (without spices, no carbs). #food #foodstagram #instafood #healthy #cleaneating #crohnie #crohns #crohn #crohnsdisease #crohnfighter #crohnlife #morbuscrohn #crohnscolitis #crohnsfighter #crohnswarrior #autoimmune #autoimmunedisease #ibd #ibdwarrior #ibdawareness #raiseawareness #ced #invisibleillness #inflammatoryboweldisease #chronicillness #chronicallyill #chronicallyawesome #bauchhelden #chronischglücklich #crohn
Tuesday Tip 🍳🥚| Rührei, Spinat gepimped mit Ziegenkäse. Bekömmlich für Herrn Crohn (ohne Gewürze, ohne KH). Scrambled eggs, spinach pimped with goat cheese. Fine for Mr Crohn (without spices, no carbs). #food  #foodstagram  #instafood  #healthy  #cleaneating  #crohnie  #crohns  #crohn  #crohnsdisease  #crohnfighter  #crohnlife  #morbuscrohn  #crohnscolitis  #crohnsfighter  #crohnswarrior  #autoimmune  #autoimmunedisease  #ibd  #ibdwarrior  #ibdawareness  #raiseawareness  #ced  #invisibleillness  #inflammatoryboweldisease  #chronicillness  #chronicallyill  #chronicallyawesome  #bauchhelden  #chronischglücklich  #crohn 
Hitting the gym this morning but not pushing myself too hard and feeling a little annoyed. As I’ve mentioned, I hadn’t been feeling so great the past month or so. My back and joint pain had been doing a number on me throughout the year and although I had days where things were better and manageable than others I had requested for some blood work to be drawn. The good news is that my iron and B-12 levels are great especially since my iron levels had a big improvement since the last blood test. However, my Vitamin D levels came back really low and below normal range just barely. Also, I discovered that I was deficient in trace minerals as well prior to these tests being done and that was the reason why I had these requested. I’ve had 3 Vitamin D deficiencies within the last 3 years and I now know when they start up and it always seems to start when I get lower back pain which I just blew off as aches and pains from the work I do. If you’re feeling pain or fatigued or just not right in general, do your best to get things checked ASAP! I’ve made it a habit to try and see the doctor for anything no matter how small or trivial it may be. Living with a chronic illness has made me more cautious and maybe a hypochondriac at times but it’s better to be safe than sorry 💪🏼💜
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#health #vitamindeficiency #gym #gymlife #weightlossjourney #weightlossjourney #crohnsdisease #crohnscolitis #crohns #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
Hitting the gym this morning but not pushing myself too hard and feeling a little annoyed. As I’ve mentioned, I hadn’t been feeling so great the past month or so. My back and joint pain had been doing a number on me throughout the year and although I had days where things were better and manageable than others I had requested for some blood work to be drawn. The good news is that my iron and B-12 levels are great especially since my iron levels had a big improvement since the last blood test. However, my Vitamin D levels came back really low and below normal range just barely. Also, I discovered that I was deficient in trace minerals as well prior to these tests being done and that was the reason why I had these requested. I’ve had 3 Vitamin D deficiencies within the last 3 years and I now know when they start up and it always seems to start when I get lower back pain which I just blew off as aches and pains from the work I do. If you’re feeling pain or fatigued or just not right in general, do your best to get things checked ASAP! I’ve made it a habit to try and see the doctor for anything no matter how small or trivial it may be. Living with a chronic illness has made me more cautious and maybe a hypochondriac at times but it’s better to be safe than sorry 💪🏼💜 . #health  #vitamindeficiency  #gym  #gymlife  #weightlossjourney  #weightlossjourney  #crohnsdisease  #crohnscolitis  #crohns  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Thanks to all you savages out there who follow along with the ‘Cray’. As a way to say thank you, we will be giving away a free Crohn’s is Cray mug!
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To enter: 1. Comment below about what you like most about Crohn’s is Cray and 2. Like Crohn’s is Cray on Facebook. Winner who meets this criteria will be picked at random on August 31!
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#crohnsiscray #thanks
Thanks to all you savages out there who follow along with the ‘Cray’. As a way to say thank you, we will be giving away a free Crohn’s is Cray mug! . To enter: 1. Comment below about what you like most about Crohn’s is Cray and 2. Like Crohn’s is Cray on Facebook. Winner who meets this criteria will be picked at random on August 31! . #crohnsiscray  #thanks 
💜UPDATE💜

mri clear which is unusual as it’s not even showing inflammation which is good but my blood markers are up for inflammation 🙂 
dr wants to start me on infliximab but she can’t do that until she’s spoken to my TB specialist as they may want to wait until I’ve finished the 3 month treatment for TB but my dr wants to push for it now! 
My bloods for my liver aren’t good so my TB meds have been withheld until my dr has spoken to the respiratory team! My dr is also gonna ask the radiographer about my scan to definitely check it’s normal because my bloods are still showing high inflammation.

I’m better on my steroids so getting switched to oral steroids and keeping with the liquid diet! She said once I’ve been switched to oral steroids and my bloods come back fine I can go home and then get treated as an outpatient with infliximab whenever that may be! 🤞🏻hopefully tomorrow!! basically what’s happened is that I’m having a bad flare seeing as I’m not on long term meds so her plan is to get me on that ASAP!! It’s all just a waiting game now to see when I can get home! 
Wearing my amethyst bracelet for those positive healing vibes and stress reliever (also my favourite crystal) 💜💜
💜UPDATE💜 mri clear which is unusual as it’s not even showing inflammation which is good but my blood markers are up for inflammation 🙂 dr wants to start me on infliximab but she can’t do that until she’s spoken to my TB specialist as they may want to wait until I’ve finished the 3 month treatment for TB but my dr wants to push for it now! My bloods for my liver aren’t good so my TB meds have been withheld until my dr has spoken to the respiratory team! My dr is also gonna ask the radiographer about my scan to definitely check it’s normal because my bloods are still showing high inflammation. I’m better on my steroids so getting switched to oral steroids and keeping with the liquid diet! She said once I’ve been switched to oral steroids and my bloods come back fine I can go home and then get treated as an outpatient with infliximab whenever that may be! 🤞🏻hopefully tomorrow!! basically what’s happened is that I’m having a bad flare seeing as I’m not on long term meds so her plan is to get me on that ASAP!! It’s all just a waiting game now to see when I can get home! Wearing my amethyst bracelet for those positive healing vibes and stress reliever (also my favourite crystal) 💜💜
Ein gutes Ergebnis für mich und Herrn Crohn. Kortison und Stelara wirken in Kombi. Es war nichts zu sehen, nichts! Wie bei einem ‚gesunden‘ Menschen 😅 da fühlt mich sich sehr besonders! 
Das wichtigste, was mir diese, wenn auch ‚bösen‘ Medikamente mit vielen Nebenwirkungen schenken ist: Zeit! Zeit, dass der Darm sich schonen kann, lange fit bleibt und eventuelle OPs hoffentlich in weite Ferne rücken. 
Das schönste Geschenk: Zeit. 
An awesome result today after my colonoscopy for me and Mr Crohn. 
Prednisone and Stelara in combination are effective. There were no signs of inflammation, nothing! It looked like a ‚healthy‘ colon which made me feel very special. The most important thing these ‚dangerous‘ medications with many side effects can give: time. 
Time for your colon to heal and to postpone possible surgeries. 
The most precious gift: time. 
Have a lovely evening. 😌✊🏻 #crohnie #crohns #crohn #crohnsdisease #crohnfighter #crohnlife #morbuscrohn #crohnscolitis #crohnsfighter #crohnswarrior #autoimmune #autoimmunedisease #ibd #ibdwarrior #ibdawareness #raiseawareness #ced #invisibleillness #inflammatoryboweldisease #chronicillness #chronicallyill #chronicallyawesome #bauchhelden #chronischglücklich #crohn #brownhair #blueeyes #instahappy #instaday #instagood
Ein gutes Ergebnis für mich und Herrn Crohn. Kortison und Stelara wirken in Kombi. Es war nichts zu sehen, nichts! Wie bei einem ‚gesunden‘ Menschen 😅 da fühlt mich sich sehr besonders! Das wichtigste, was mir diese, wenn auch ‚bösen‘ Medikamente mit vielen Nebenwirkungen schenken ist: Zeit! Zeit, dass der Darm sich schonen kann, lange fit bleibt und eventuelle OPs hoffentlich in weite Ferne rücken. Das schönste Geschenk: Zeit. An awesome result today after my colonoscopy for me and Mr Crohn. Prednisone and Stelara in combination are effective. There were no signs of inflammation, nothing! It looked like a ‚healthy‘ colon which made me feel very special. The most important thing these ‚dangerous‘ medications with many side effects can give: time. Time for your colon to heal and to postpone possible surgeries. The most precious gift: time. Have a lovely evening. 😌✊🏻 #crohnie  #crohns  #crohn  #crohnsdisease  #crohnfighter  #crohnlife  #morbuscrohn  #crohnscolitis  #crohnsfighter  #crohnswarrior  #autoimmune  #autoimmunedisease  #ibd  #ibdwarrior  #ibdawareness  #raiseawareness  #ced  #invisibleillness  #inflammatoryboweldisease  #chronicillness  #chronicallyill  #chronicallyawesome  #bauchhelden  #chronischglücklich  #crohn  #brownhair  #blueeyes  #instahappy  #instaday  #instagood 
IBD: It’s all fun and games until you shit yourself. You’ll laugh and cry through the latest post on crohnsiscray.com highlighting the “shitty” parts of this disease 😂💩 link to post in profile! #crohnsiscray
IBD: It’s all fun and games until you shit yourself. You’ll laugh and cry through the latest post on crohnsiscray.com highlighting the “shitty” parts of this disease 😂💩 link to post in profile! #crohnsiscray 
So here’s a little update! If you watch my insta stories you will already know what’s been going on and that I’ve been admitted back into hospital. 
So on Thursday I went to A&E at the royal with very bad chest pains, it was sore to breath in and when I ate food. I got admitted into the royal infirmary 5 hours later after getting anti sickness meds and morphine. The next day I got an endoscopy (camera down my throat) to check my Crohn’s hadn’t spread to my stomach. Luckily that was all clear and it hadn’t spread any further. The next day I got transferred over to the western general so I could be with my GI team and discuss next steps. My drs from the GI team spoke to me and told me that because my Crohn’s is mainly in my small bowel what is happening because it is so inflamed and narrow every time I eat food it’s causing me a lot of pain. They are also thinking that I could have a blockage. I’ve been put on a polymeric diet which consists of clear soups only and ensure drinks. I’m also back on a list of meds steroids, lansoprazole, calcichew, rifinah, pyridoxine. Next step I’m waiting to go for an mri to check scar tissue has not developed or I’ve not developed any strictures. If this has happened my drs suggested that surgery would be the best option. Previously I was too wait to be put on biologics as I’m on a 3 month course of treatment for TB but now I’m getting to start my biologics tomorrow so I’ll be starting infliximab. 
I got diagnosed March this year. It’s been a tough few months three hospital admissions, three colonoscopy’s, one endoscopy, ultrasound, various X-rays, one mri and awaiting another one and lots of various other tests but I’ve managed to overcome some of my worst days in the past and I can do it again!!
So here’s a little update! If you watch my insta stories you will already know what’s been going on and that I’ve been admitted back into hospital. So on Thursday I went to A&E at the royal with very bad chest pains, it was sore to breath in and when I ate food. I got admitted into the royal infirmary 5 hours later after getting anti sickness meds and morphine. The next day I got an endoscopy (camera down my throat) to check my Crohn’s hadn’t spread to my stomach. Luckily that was all clear and it hadn’t spread any further. The next day I got transferred over to the western general so I could be with my GI team and discuss next steps. My drs from the GI team spoke to me and told me that because my Crohn’s is mainly in my small bowel what is happening because it is so inflamed and narrow every time I eat food it’s causing me a lot of pain. They are also thinking that I could have a blockage. I’ve been put on a polymeric diet which consists of clear soups only and ensure drinks. I’m also back on a list of meds steroids, lansoprazole, calcichew, rifinah, pyridoxine. Next step I’m waiting to go for an mri to check scar tissue has not developed or I’ve not developed any strictures. If this has happened my drs suggested that surgery would be the best option. Previously I was too wait to be put on biologics as I’m on a 3 month course of treatment for TB but now I’m getting to start my biologics tomorrow so I’ll be starting infliximab. I got diagnosed March this year. It’s been a tough few months three hospital admissions, three colonoscopy’s, one endoscopy, ultrasound, various X-rays, one mri and awaiting another one and lots of various other tests but I’ve managed to overcome some of my worst days in the past and I can do it again!!
Checked out this wonderful mural by @emjayuc after #city2surf today 
It’s raising awareness for #ostomates with her cute illustrations of ostomates at the beach
If you’re in #bondi go check it out 😀
#ostomyawareness @omnigon_healthcare #nocolonstillrollin #coloplast #getyourbellyout #crohns #crohnscolitis #ulcerativecolitis @crohns_and_colitis_australia #stoma #ileostomy #baglady #livewithguts #ibd #ibdawareness #autoimmunedisease #kickibd
Back from the grave💀still on a mostly liquid diet, but can swallow again so that’s a plus🙂
It’s not fall yet, but made a pumpkin pie smoothie today with turmeric so it’s also anti-inflammatory- yum 😋 
#closeenoughtofall #smoothies #pumpkin #pumpkinsmoothie #pumpkinpiesmoothie #pumpkinallyear #florida #tampa #foodie #antinflammatory #antiinflammatorydiet #ankylosingspondylitis #liquiddiet #idiopathichypersomnia #uveitis #sjorgens #crohns #spoonie #spoonielife #gastritis #esophagitis #ibd #crohnscolitis #autoimmunewarrior #autoimmunedisease #imfallingapart #bodyofan80yearold #autoimmuneflare #invisibleillness #chronicillness
Back from the grave💀still on a mostly liquid diet, but can swallow again so that’s a plus🙂 It’s not fall yet, but made a pumpkin pie smoothie today with turmeric so it’s also anti-inflammatory- yum 😋 #closeenoughtofall  #smoothies  #pumpkin  #pumpkinsmoothie  #pumpkinpiesmoothie  #pumpkinallyear  #florida  #tampa  #foodie  #antinflammatory  #antiinflammatorydiet  #ankylosingspondylitis  #liquiddiet  #idiopathichypersomnia  #uveitis  #sjorgens  #crohns  #spoonie  #spoonielife  #gastritis  #esophagitis  #ibd  #crohnscolitis  #autoimmunewarrior  #autoimmunedisease  #imfallingapart  #bodyofan80yearold  #autoimmuneflare  #invisibleillness  #chronicillness 
Somebody get this man a squatty potty....#crohnsiscray
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#crohns #colitis #crohnsdisease
#fbf with this lovely lady of mine. Only woman in this world who will put up with my sh#t....🤔 that may be a #Crohns joke 😂. She pushes me daily, supports my ambitions and helps me through the rough times. Love you @tswead!! #pilot #pilotwife #crohnswarrior #crohnswife #aviation #aviationlovers #aviator #aviatorwife #crohnsdisease #crohnscolitis #staypositive #positivevibes #findacure
How in the world was I misdiagnosed with stage 4 cancer? It’s a question I’ve wondered about and have been asked several times in the past month. The answer is, I’m not really sure. I’ll meet with my doctor next month but will share what I understand so far. The areas that light up on a PET scan indicate hypermetabolic activity. Often cancer cells fall into this category of being hyper metabolic but not always. In addition everything that is hyper metabolic is cancer. For most people a stage four cancer diagnosis would have been correct. But I am not most people. When it comes to health I am never normal. In this instance it worked to my benefit. As I met with Dr L after he got back into town our plans shifted from scheduling surgery for me to get my port implanted and finding out what kind of chemo I would be starting to getting some answers first. He knows my history and recognized it was complicated. He knew we couldn’t rely solely on the PET scan. It took some time and we had to be patient when we didn’t know if we had that luxury. He met with several of my doctors and surgeons to discuss my case. He met with the radiologist who wrote the report and my radiation oncologist who used to be a radiologist. He began to compare my CT scan scans from the previous year to the CT portion of the pet scan and felt the previous scans didn’t support the new findings. With each appointment I had with him, Dr L went from thinking it was cancer, to not convinced, to NOT thinking it was cancer. It’s been over a month now since the biopsy results came back showing NO CANCER! Hallelujah! What a miracle! So if it’s not cancer, what is it?? It’s inflammation. Most likely caused by Crohn’s or surgeries, or both. My next scan will be at the beginning of September. I will continue to have CT scans from here unless something shows up on one of them. I’ll meet with my doctor after the scan and hope the only thing we have to talk about is my new standing since the local recurrence from this past January. The war continues but for now we are enjoying right now. 08/10/18 #colorectalcancer #cancerfree #goodnews #crohnscolitis #ileostomy #cancerfight #cancersurvivor
How in the world was I misdiagnosed with stage 4 cancer? It’s a question I’ve wondered about and have been asked several times in the past month. The answer is, I’m not really sure. I’ll meet with my doctor next month but will share what I understand so far. The areas that light up on a PET scan indicate hypermetabolic activity. Often cancer cells fall into this category of being hyper metabolic but not always. In addition everything that is hyper metabolic is cancer. For most people a stage four cancer diagnosis would have been correct. But I am not most people. When it comes to health I am never normal. In this instance it worked to my benefit. As I met with Dr L after he got back into town our plans shifted from scheduling surgery for me to get my port implanted and finding out what kind of chemo I would be starting to getting some answers first. He knows my history and recognized it was complicated. He knew we couldn’t rely solely on the PET scan. It took some time and we had to be patient when we didn’t know if we had that luxury. He met with several of my doctors and surgeons to discuss my case. He met with the radiologist who wrote the report and my radiation oncologist who used to be a radiologist. He began to compare my CT scan scans from the previous year to the CT portion of the pet scan and felt the previous scans didn’t support the new findings. With each appointment I had with him, Dr L went from thinking it was cancer, to not convinced, to NOT thinking it was cancer. It’s been over a month now since the biopsy results came back showing NO CANCER! Hallelujah! What a miracle! So if it’s not cancer, what is it?? It’s inflammation. Most likely caused by Crohn’s or surgeries, or both. My next scan will be at the beginning of September. I will continue to have CT scans from here unless something shows up on one of them. I’ll meet with my doctor after the scan and hope the only thing we have to talk about is my new standing since the local recurrence from this past January. The war continues but for now we are enjoying right now. 08/10/18 #colorectalcancer  #cancerfree  #goodnews  #crohnscolitis  #ileostomy  #cancerfight  #cancersurvivor 
I usually balk at the spiritual sayings found at yoga practices but this one hit home. A good mantra for us Crohn’s and Colitis Warriors 💪🏻😎 #crohnsiscray
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#crohns #colitis #crohnsdisease
I usually balk at the spiritual sayings found at yoga practices but this one hit home. A good mantra for us Crohn’s and Colitis Warriors 💪🏻😎 #crohnsiscray  . . #crohns  #colitis  #crohnsdisease 
My L.ac always gives me the best goodies that actually work for me. My gut is still being weird after the cipro I had in June. Just one cupping sesh and I feel a wee bit better. Booked for acu tomorrow. #justsaynotocipro #postantibiotics #cdiff #guthealing #tcm #integrativemedicine #acupuncture #herbs #ulcerativecolitis #crohns #crohnscolitis
IBD babes, it’s my first day of #stelara getting my hour loading dose and then I’ll be switching to self shots every 8 weeks. Any of my babes here have experience with stelara? So far so good for me. I just really dislike sitting in infusion centers. Gives you a different perspective. #crohns #crohnsdisease #crohnscolitis #biologic
IBD babes, it’s my first day of #stelara  getting my hour loading dose and then I’ll be switching to self shots every 8 weeks. Any of my babes here have experience with stelara? So far so good for me. I just really dislike sitting in infusion centers. Gives you a different perspective. #crohns  #crohnsdisease  #crohnscolitis  #biologic 
Aprons courtesy of @rsvpbywr ! 😍 •
Seriously the cutest for those of you that like to bake with your little one! Whitnie & I have been friends for years and she recently launched her storefront in Hanover, PA! From Etsy to a real life storefront, I’m SO proud! ❤️ She’s also an amazing photographer, so she’s like a jack of all trades!😝 •
Baking with Jude is one of my favorite things and each time I can give her more and more responsibility! I think she’s gonna love it just like I do! 💜😘
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#thekitchenismyhappyplace #crohns #crohnie #crohnslife #crohnscolitis #crohnsfighter #crohnswarrior #crohnsdisease #colitis #ulcerativecolitis #ulcerativecolitisawareness #spoonie #ibd #ibdwarrior #ibdawareness #ibdsuperheroes #bake #baking #mommadaughterduo #chronicillness #chronicillnesswarrior #chronicillnessawareness #invisibleillness #autoimmune #autoimmunedisease #bakeon #foodie #babygirlryno
Aprons courtesy of @rsvpbywr ! 😍 • Seriously the cutest for those of you that like to bake with your little one! Whitnie & I have been friends for years and she recently launched her storefront in Hanover, PA! From Etsy to a real life storefront, I’m SO proud! ❤️ She’s also an amazing photographer, so she’s like a jack of all trades!😝 • Baking with Jude is one of my favorite things and each time I can give her more and more responsibility! I think she’s gonna love it just like I do! 💜😘 . . . . . . . #thekitchenismyhappyplace  #crohns  #crohnie  #crohnslife  #crohnscolitis  #crohnsfighter  #crohnswarrior  #crohnsdisease  #colitis  #ulcerativecolitis  #ulcerativecolitisawareness  #spoonie  #ibd  #ibdwarrior  #ibdawareness  #ibdsuperheroes  #bake  #baking  #mommadaughterduo  #chronicillness  #chronicillnesswarrior  #chronicillnessawareness  #invisibleillness  #autoimmune  #autoimmunedisease  #bakeon  #foodie  #babygirlryno 
Since I’ve shared my AncestryDNA earlier this week, I’d thought I’d share my family tree from Ancestry.com! I originally started it back in 2002 with very little information because my father and his parents had passed on in the early to mid 1990’s and my maternal grandparents didn’t remember the family history very well because they were migrant workers that had immigrated from Mexico to the north with my grandfather’s family making it to Nebraska on a Sioux Indian reservation and my grandmother’s family reached Texas and she unfortunately came from a broken home. It wasn’t easy trying to find records for my family but I’m happy about how far I’ve come along so far and I’ve added pictures to those I have! It’s definitely fun and interesting to learn your roots and where you come from 😄💜
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#Ancestry #AncestryDNA #genealogy #familyhistory #familytree #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
Since I’ve shared my AncestryDNA earlier this week, I’d thought I’d share my family tree from Ancestry.com! I originally started it back in 2002 with very little information because my father and his parents had passed on in the early to mid 1990’s and my maternal grandparents didn’t remember the family history very well because they were migrant workers that had immigrated from Mexico to the north with my grandfather’s family making it to Nebraska on a Sioux Indian reservation and my grandmother’s family reached Texas and she unfortunately came from a broken home. It wasn’t easy trying to find records for my family but I’m happy about how far I’ve come along so far and I’ve added pictures to those I have! It’s definitely fun and interesting to learn your roots and where you come from 😄💜 . #Ancestry  #AncestryDNA  #genealogy  #familyhistory  #familytree  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Excited to try this! I have a banana everyday in my morning smoothie as my prebiotic, but sometimes I worry it isn’t as potent as a prebiotic as my milk kefir is as a probiotic. I got a free starter pack from the @isothrive website so I’ll be reporting back at the end of my experience, but I’m totally excited! .
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#Paleo #PaleoFood #PaleoHealth #GutFood #GutHealth #Microfood #Potent #Prebiotic #Probiotic #GutHealthy #GutApproved #IBD #IBDVisible #IBDAwareness #IBDVisibility #Crohns #CrohnsDisease #CD #UC #UlcerativeColitis #CrohnsColitis
Excited to try this! I have a banana everyday in my morning smoothie as my prebiotic, but sometimes I worry it isn’t as potent as a prebiotic as my milk kefir is as a probiotic. I got a free starter pack from the @isothrive website so I’ll be reporting back at the end of my experience, but I’m totally excited! . . . . . . #Paleo  #PaleoFood  #PaleoHealth  #GutFood  #GutHealth  #Microfood  #Potent  #Prebiotic  #Probiotic  #GutHealthy  #GutApproved  #IBD  #IBDVisible  #IBDAwareness  #IBDVisibility  #Crohns  #CrohnsDisease  #CD  #UC  #UlcerativeColitis  #CrohnsColitis 
T O X I C _ L O A D 😵

For a while now I've been working on sharing something that was a B I G part of my healing journey.... Reducing the toxic load on my body. You can do this in many ways...especially by being aware of what you're putting IN and ON your body. •
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Many of us unknowingly put toxic products on our skin, and create additional "work" for our body. Each product we come in contact with (shampoo, toothpaste, face wash, soap...) adds up. •
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It was a rude awakening for me when I realized that a lot of the products (even the ones that claimed to be "natural") were adding additional stress to my body. And quite honestly, this stress was contributing to me being able to fight off my autoimmune disease. •
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I'm super excited to share some of the products that I came up with during my (still continuing) journey of reducing the toxic load I put on my body. 
Today was a milestone as I picked my launching skincare products...I can't wait to share them with y'all! 🤗
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🌿 #nontoxicskincare #autoimmuneremission #crohnscolitis #toxicload #parabenfree #crueltyfree #smallbatch #organicskincare #sulfatefree #nontoxic #feedyourskin #skinfood #sweetcarolineorganics #sweetcarolineorganicskincare #organiccleansingoil #magnesium #topicalmagnesium
T O X I C _ L O A D 😵 For a while now I've been working on sharing something that was a B I G part of my healing journey.... Reducing the toxic load on my body. You can do this in many ways...especially by being aware of what you're putting IN and ON your body. • • Many of us unknowingly put toxic products on our skin, and create additional "work" for our body. Each product we come in contact with (shampoo, toothpaste, face wash, soap...) adds up. • • It was a rude awakening for me when I realized that a lot of the products (even the ones that claimed to be "natural") were adding additional stress to my body. And quite honestly, this stress was contributing to me being able to fight off my autoimmune disease. • • I'm super excited to share some of the products that I came up with during my (still continuing) journey of reducing the toxic load I put on my body. Today was a milestone as I picked my launching skincare products...I can't wait to share them with y'all! 🤗 • • 🌿 #nontoxicskincare  #autoimmuneremission  #crohnscolitis  #toxicload  #parabenfree  #crueltyfree  #smallbatch  #organicskincare  #sulfatefree  #nontoxic  #feedyourskin  #skinfood  #sweetcarolineorganics  #sweetcarolineorganicskincare  #organiccleansingoil  #magnesium  #topicalmagnesium 
I am SO happy to find that @seedzprovisions here in STL has started carrying @thecoconutcult probiotic yogurt. I learned about this yogurt quite a while ago when @aiplifestyle mentioned what an amazing product it is. We relocated from Cali to MO, and lately I’ve really been missing some of my favorite gut supportive foods that were so easy to locate out there. I look at this product as if it were medicine, and not just yogurt (high price tag, but I use it just like medicine with a very small dose- a tablespoon daily). It contains multiple strains of bacteria (way more than regular off the shelf yogurt) and is dairy free and gut-busting thickener and emulsifier free (no starches or gums). Totally #AIP if that’s your thing and #IBDAID compliant. You can order it, but I’m extremely hesitant right now with the delays in shipping with the fires and I always get anxious about shipping foods that need to stay cold in the hottest days of summer. I’ll post the label in my stories. #dairyfree #paleo #autoimmuneprotocol #guthealing #foodasmedicine #ulcerativecolitis #crohns #crohnscolitis #cdiff #mycobacteriumaviumsubspeciesparatuberculosis #antimycobacterialantibiotictherapy #probiotics
I am SO happy to find that @seedzprovisions here in STL has started carrying @thecoconutcult probiotic yogurt. I learned about this yogurt quite a while ago when @aiplifestyle mentioned what an amazing product it is. We relocated from Cali to MO, and lately I’ve really been missing some of my favorite gut supportive foods that were so easy to locate out there. I look at this product as if it were medicine, and not just yogurt (high price tag, but I use it just like medicine with a very small dose- a tablespoon daily). It contains multiple strains of bacteria (way more than regular off the shelf yogurt) and is dairy free and gut-busting thickener and emulsifier free (no starches or gums). Totally #AIP  if that’s your thing and #IBDAID  compliant. You can order it, but I’m extremely hesitant right now with the delays in shipping with the fires and I always get anxious about shipping foods that need to stay cold in the hottest days of summer. I’ll post the label in my stories. #dairyfree  #paleo  #autoimmuneprotocol  #guthealing  #foodasmedicine  #ulcerativecolitis  #crohns  #crohnscolitis  #cdiff  #mycobacteriumaviumsubspeciesparatuberculosis  #antimycobacterialantibiotictherapy  #probiotics 
Half a year at the hospital today! Don't know if that's something to celebrate, and even if I did, how the fuck do I celebrate it? I can hardly eat or drink, isn't eating and drinking the way to do that stuff?😁
#sunderbysjukhus
#halfayearatthehospital
#crohns
#shortbowelsyndrome
#fistula
#crohnscolitis
#crohnsdisease
#crohnsawareness
Going to have to try a Crohn’s version of this sometime.... #crohnsiscray
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#crohnsdisease #crohns
For this throwback Thursday, I found a really old and unkempt pic of me and my younger brother at an amusement park out here in Southern California known as Knott’s Berry Farm @knottsberryfarm We loved Knott’s so much that it was the only way to get a picture of us together as we didn’t exactly get along. But as we got older and our parents had separated, we got along a lot better.
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#throwbackthursday #tbt #brothers #sinlings #siblingrivalry #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
For this throwback Thursday, I found a really old and unkempt pic of me and my younger brother at an amusement park out here in Southern California known as Knott’s Berry Farm @knottsberryfarm We loved Knott’s so much that it was the only way to get a picture of us together as we didn’t exactly get along. But as we got older and our parents had separated, we got along a lot better. . #throwbackthursday  #tbt  #brothers  #sinlings  #siblingrivalry  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
This is my #wish @poshmark has helped me raise thousands of dollars for #charities through the #poshmarkcommunity and years of  #poshnsip #poshnsips MY wish is that success comes for everyone.  #theposhlife day 3 
Live life to its fullest you never know when it will be taken away. #inspire #support one another. Be yourself. SOME Charities I support @steppingstonesupport is an amazing foundation based out of #LongIsland Help stomp out cancer! Along with #camillescrusaders who run in the #nationalracetoendwomenscancer This November 4.  @crohnscolitisfoundation helps families and find a cure for #crohnscolitis - almost lost my cousin who is like my sister to this terrible disease.  #huntingtingtonsdiseaseofamerica #Hdsa Helps families and looking for cures for Huntington’s Disease.  Horrible illness I lost my dear sister to at such a young age.  Last but certainly not least in this grouping is trying to help find a cure for AIDS. I lost my father to this. Miss him everyday. So THANK YOU Poshmark.
This is my #wish  @poshmark has helped me raise thousands of dollars for #charities  through the #poshmarkcommunity  and years of #poshnsip  #poshnsips  MY wish is that success comes for everyone. #theposhlife  day 3 Live life to its fullest you never know when it will be taken away. #inspire  #support  one another. Be yourself. SOME Charities I support @steppingstonesupport is an amazing foundation based out of #LongIsland  Help stomp out cancer! Along with #camillescrusaders  who run in the #nationalracetoendwomenscancer  This November 4. @crohnscolitisfoundation helps families and find a cure for #crohnscolitis  - almost lost my cousin who is like my sister to this terrible disease. #huntingtingtonsdiseaseofamerica  #Hdsa  Helps families and looking for cures for Huntington’s Disease. Horrible illness I lost my dear sister to at such a young age. Last but certainly not least in this grouping is trying to help find a cure for AIDS. I lost my father to this. Miss him everyday. So THANK YOU Poshmark.
Ugh! This fucking shit sucks! Looking for some advice or opinions about humira and other possible options as far as crohns disease treatment and suppression. I wouldnt wish this shit on donald trump.. thanks 😳😳😳 #fuckcrohns #fuckibd #fuckliferightnow  #crohnsdisease #crohnscolitis #humira
Got my medal from my running challenge in July. 😁 I am still so proud of myself for pushing through and this little medal is a nice reminder that I can do anything I set my mind to! 💜 .
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#crohns #crohnslife #crohnscolitis #crohnsfighter #crohnswarrior #crohnsdisease #colitis #ulcerativecolitis #ulcerativecolitisawareness #spoonie #ibd #ibdwarrior #ibdawareness #ibdsuperheroes #pushitrealgood #poop #poopmedal #chronicillness #chronicillnesswarrior #chronicillnessawareness #invisibleillness #autoimmune #autoimmunedisease
Got my medal from my running challenge in July. 😁 I am still so proud of myself for pushing through and this little medal is a nice reminder that I can do anything I set my mind to! 💜 . . . . . . . #crohns  #crohnslife  #crohnscolitis  #crohnsfighter  #crohnswarrior  #crohnsdisease  #colitis  #ulcerativecolitis  #ulcerativecolitisawareness  #spoonie  #ibd  #ibdwarrior  #ibdawareness  #ibdsuperheroes  #pushitrealgood  #poop  #poopmedal  #chronicillness  #chronicillnesswarrior  #chronicillnessawareness  #invisibleillness  #autoimmune  #autoimmunedisease 
I started treatment for Crohn's two years ago today, and the felt differences have been incredible! I went from less than 90 pounds to more than 100; to feeling my body getting better; to studying abroad in seven countries; to running my first mile since the day that I was diagnosed. 10,220+ pills later, and I am grateful! #standupkeepfighting #dearcrohns
I started treatment for Crohn's two years ago today, and the felt differences have been incredible! I went from less than 90 pounds to more than 100; to feeling my body getting better; to studying abroad in seven countries; to running my first mile since the day that I was diagnosed. 10,220+ pills later, and I am grateful! #standupkeepfighting  #dearcrohns 
Since I came of Prednisolone two weeks ago, I've been in constant pain. Mainly upper abdomen on the right that spreads to lower abdomen and back. Have had a scan of pancreas and gallbladder requested but Dr thinks it's likely to be side effects from the Prednisolone so have been prescribed Omeprazole to try and help.
Definitely at the stage where I'm feeling like this is never going to end. Took two years to get my diagnosis and nothing seems to have improved since. 
Could really do with a win right now. 🤒😷💊 #crohns #crohnsdisease #colitis #crohnsandcolitisuk #crohnsandcolitis #crohnscolitis #IBD #omeprazole #omeprazol #iheartguts #intestines
Since I came of Prednisolone two weeks ago, I've been in constant pain. Mainly upper abdomen on the right that spreads to lower abdomen and back. Have had a scan of pancreas and gallbladder requested but Dr thinks it's likely to be side effects from the Prednisolone so have been prescribed Omeprazole to try and help. Definitely at the stage where I'm feeling like this is never going to end. Took two years to get my diagnosis and nothing seems to have improved since. Could really do with a win right now. 🤒😷💊 #crohns  #crohnsdisease  #colitis  #crohnsandcolitisuk  #crohnsandcolitis  #crohnscolitis  #IBD  #omeprazole  #omeprazol  #iheartguts  #intestines 
Enjoy every breath, every second of your life & live life to the fullest! #crohnsdisease  #morbuscrohnfighter #fuckyounegativity #keepyourheadup #ibdawareness #crohnscolitis  #motivation
A year ago today, I had made this post not realizing what was going to be in store for me all throughout this past year. Prior to this post, I had never given much thought about raising awareness of IBD or breaking the stigma of life with an ileostomy. My IG profile had no direction and the posts I made were humorous posts or selfies of what I’m up to for my friends and family that were following me. Throughout the years, I was always shy of showing off my ileostomy and I had only shown it to my closest friends and ladies I was involved with. My therapist had made a suggestion back in 2016 for me to break my shyness of my ileostomy by posting a pic of myself with it. At the encouragement of him and a few of my other close female friends I went ahead and did so with very little fanfare. Then starting in 2017, I started working on documenting my weightloss journey on here and dropped 35lbs in the process. When I made this post above last year after a trip to the beach which I hadn’t done in ages at the time, I was coming to terms with my own acceptance of my body image and working hard on losing weight. I was extremely amazed at the likes I was getting despite it being an art piece by @jude_devir and using proper hashtags for IBD and ostomies and I usually average about 5-15 likes per post during that time. What caught my eye the most was a like by a user which contained ileostomy and Crohn in the same handle. Curious, I looked up the person who we all know as @ileostomy_crohn_princess and I was awestruck by not only her beauty but her positivity and the shine that she radiates to many of us! I was a little hesitant to interact with her but when I did, she encouraged me to show off my ostomy and told me that there’s nothing to be ashamed of. With her words echoing in my mind, I went ahead and went for it. She had also asked me to help her and others raise awareness and give support and encouragement to those in need. As I mentioned, I never gave a thought about it and at the time, I didn’t know how to go about it. [Continued in the comments below👇🏼]
A year ago today, I had made this post not realizing what was going to be in store for me all throughout this past year. Prior to this post, I had never given much thought about raising awareness of IBD or breaking the stigma of life with an ileostomy. My IG profile had no direction and the posts I made were humorous posts or selfies of what I’m up to for my friends and family that were following me. Throughout the years, I was always shy of showing off my ileostomy and I had only shown it to my closest friends and ladies I was involved with. My therapist had made a suggestion back in 2016 for me to break my shyness of my ileostomy by posting a pic of myself with it. At the encouragement of him and a few of my other close female friends I went ahead and did so with very little fanfare. Then starting in 2017, I started working on documenting my weightloss journey on here and dropped 35lbs in the process. When I made this post above last year after a trip to the beach which I hadn’t done in ages at the time, I was coming to terms with my own acceptance of my body image and working hard on losing weight. I was extremely amazed at the likes I was getting despite it being an art piece by @jude_devir and using proper hashtags for IBD and ostomies and I usually average about 5-15 likes per post during that time. What caught my eye the most was a like by a user which contained ileostomy and Crohn in the same handle. Curious, I looked up the person who we all know as @ileostomy_crohn_princess and I was awestruck by not only her beauty but her positivity and the shine that she radiates to many of us! I was a little hesitant to interact with her but when I did, she encouraged me to show off my ostomy and told me that there’s nothing to be ashamed of. With her words echoing in my mind, I went ahead and went for it. She had also asked me to help her and others raise awareness and give support and encouragement to those in need. As I mentioned, I never gave a thought about it and at the time, I didn’t know how to go about it. [Continued in the comments below👇🏼]
Undoing the button and the zipper on the way can make all the difference in the world doe...happened to me last weekend 🙄 #everysecondcounts #crohnsiscray
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#crohns #crohnsdisease #depends
#stelara time, so grateful I’ve got my gorgeous girl home to help me with my meds. I Have been feeling so poorly the past few weeks and that’s mainly down to needing my next lot of meds. So I’ve been down morphine alley and trying my hardest to cope but having my PIP assessment last week has made my anxiety go into overdrive and resulting in more of a hurty tummy than usual 🖤 need these meds to kick in, I’m bridesmaid next week! 
#crohnsdisease #fuckyoucrohns #stelara #ustekinumab #crohnscolitis #colostomy #crohnsawareness #ccuk #medication #injections #kgh
#stelara  time, so grateful I’ve got my gorgeous girl home to help me with my meds. I Have been feeling so poorly the past few weeks and that’s mainly down to needing my next lot of meds. So I’ve been down morphine alley and trying my hardest to cope but having my PIP assessment last week has made my anxiety go into overdrive and resulting in more of a hurty tummy than usual 🖤 need these meds to kick in, I’m bridesmaid next week! #crohnsdisease  #fuckyoucrohns  #stelara  #ustekinumab  #crohnscolitis  #colostomy  #crohnsawareness  #ccuk  #medication  #injections  #kgh 
Alright, time to do some binge-watching on my night off with a few of these classics from my childhood 😃🤩😁 I hope everyone is off to a good start for the week 💜💙 @marksleper I hope you have these in your collection 😉😎
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#bluray #bluraycollection #movies #movienight #goonies #thegoonies #themonstersquad #standbyme  #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
Alright, time to do some binge-watching on my night off with a few of these classics from my childhood 😃🤩😁 I hope everyone is off to a good start for the week 💜💙 @marksleper I hope you have these in your collection 😉😎 . #bluray  #bluraycollection  #movies  #movienight  #goonies  #thegoonies  #themonstersquad  #standbyme  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Ah ha, they do exist!! I’m finally in remission although it’s not exactly the total vacation from Crohn’s I thought it would be. Read about this and nine other things they never tell you about having Crohn’s at www.crohnsiscray.com or use the link to the post in bio. .
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#crohnsiscray #crohnsdisease #remission
Ah ha, they do exist!! I’m finally in remission although it’s not exactly the total vacation from Crohn’s I thought it would be. Read about this and nine other things they never tell you about having Crohn’s at www.crohnsiscray.com or use the link to the post in bio. . . #crohnsiscray  #crohnsdisease  #remission 
✨ F U E L ✨
• Is anyone else guilty of going to @barryscanada just for a smoothie? 🙊😂 (to be fair, I live around the corner 🏃🏻‍♀️)
• Giving my body a bit of a rest this week 💪🏻, but making sure to still give it the fuel it needs ⚡️💚
• This one has spinach, mango, #veganprotein, and almond butter 😋
• What do you guys like in your smoothies? 👇🏻
✨ F U E L ✨ • Is anyone else guilty of going to @barryscanada just for a smoothie? 🙊😂 (to be fair, I live around the corner 🏃🏻‍♀️) • Giving my body a bit of a rest this week 💪🏻, but making sure to still give it the fuel it needs ⚡️💚 • This one has spinach, mango, #veganprotein , and almond butter 😋 • What do you guys like in your smoothies? 👇🏻
Did I mention that my husband is an amazing chef? 😏This was an easy Sunday evening salad dinner to end a crazy week. We will definitely make more time for rest during this upcoming week! #newweek #thankgod #homemadebalsamic #autoimmuneremission #paleo #easydinner #crohnsdisease #crohns #crohnscolitis #autoimmunediseases #salad #sundaysalad
Everyday @_winchxster_ 💚 #bestrong #staystrong #crohnscolitis #strongerthanyouthink 💚
Had one of the best weekends with my brother and his family. 💜 •
It’s not often we all can get together just to spend time with each other but after one of the best weekends, I think we’ll be doing it more often!😊 •
It’s so funny how your sibling can go from being someone you can’t stand to someone you want to spend time with and cherish those moments as you get older.💜 .
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#brother #family #familytime #whatdoyoumeme #crohnscolitis #crohns #crohnslife #crohnsfighter #crohnswarrior #crohnsdisease #colitis #ulcerativecolitis #ulcerativecolitisawareness #spoonie #ibd #ibdwarrior #ibdawareness #ibdsuperheroes #chronicillness #chronicillnesswarrior #chronicillnessawareness #invisibleillness #autoimmune #autoimmunedisease #gamenight #games #fun #familyfun
Had one of the best weekends with my brother and his family. 💜 • It’s not often we all can get together just to spend time with each other but after one of the best weekends, I think we’ll be doing it more often!😊 • It’s so funny how your sibling can go from being someone you can’t stand to someone you want to spend time with and cherish those moments as you get older.💜 . . . . . . . #brother  #family  #familytime  #whatdoyoumeme  #crohnscolitis  #crohns  #crohnslife  #crohnsfighter  #crohnswarrior  #crohnsdisease  #colitis  #ulcerativecolitis  #ulcerativecolitisawareness  #spoonie  #ibd  #ibdwarrior  #ibdawareness  #ibdsuperheroes  #chronicillness  #chronicillnesswarrior  #chronicillnessawareness  #invisibleillness  #autoimmune  #autoimmunedisease  #gamenight  #games  #fun  #familyfun 
Just because I eat real food to support my healing doesn’t mean it’s tasteless or gross or that I can’t enjoy myself when we’re out. We’re in Chicago on this beautiful Saturday morning and it’s already 90 degrees out, so I ordered this cold brew blended drink with house made hazelnut milk, frozen banana, coconut caramel (refined sugar free), vanilla, and sea salt. While this has more sugar than I would typically consume, its not full of junk or ingredients that trigger more inflammation for me.#paleo #grainfree #ulcerativecolitis #crohns #crohnscolitis #antiinflammatory
Just because I eat real food to support my healing doesn’t mean it’s tasteless or gross or that I can’t enjoy myself when we’re out. We’re in Chicago on this beautiful Saturday morning and it’s already 90 degrees out, so I ordered this cold brew blended drink with house made hazelnut milk, frozen banana, coconut caramel (refined sugar free), vanilla, and sea salt. While this has more sugar than I would typically consume, its not full of junk or ingredients that trigger more inflammation for me.#paleo  #grainfree  #ulcerativecolitis  #crohns  #crohnscolitis  #antiinflammatory 
4 years ago I was diagnosed with colitis. This disease does not affect just your stomach, it affects your whole life!! I have to watch what I eat and have had to give up foods that I love😓 This disease is debilitating and it sucks!! Since I started this fitness journey my life has changed😊I feel better, I haven’t had a flare up in a month which is HUGE!! Just a few changes in our lives can make a dramatic change in our overall well-being 🧘‍♂️ if you’re struggling like I am I’d love to help. Life does not have to suck😣I am by no means an expert or a doctor, I’m just someone who wants to pass along what I’ve learned in the past month that has changed my life for the better in the hopes that it can help someone else😊🤗 please message me or leave a comment if you’d like to find out more❤️💞
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#crohnscolitis #lovelife #youcanbeatthis #colitissucks
4 years ago I was diagnosed with colitis. This disease does not affect just your stomach, it affects your whole life!! I have to watch what I eat and have had to give up foods that I love😓 This disease is debilitating and it sucks!! Since I started this fitness journey my life has changed😊I feel better, I haven’t had a flare up in a month which is HUGE!! Just a few changes in our lives can make a dramatic change in our overall well-being 🧘‍♂️ if you’re struggling like I am I’d love to help. Life does not have to suck😣I am by no means an expert or a doctor, I’m just someone who wants to pass along what I’ve learned in the past month that has changed my life for the better in the hopes that it can help someone else😊🤗 please message me or leave a comment if you’d like to find out more❤️💞 * * * #crohnscolitis  #lovelife  #youcanbeatthis  #colitissucks 
Tomorrow marks two years since I was diagnosed with Crohn's disease, and it has me feeling all sorts of emotions. In some ways, Crohn's has finally become a fairly normal, routine part of my daily life; in other ways, it still presents a host of challenges that I will never be able to live my life without. Honestly, I'm not sure what I expected in regards to receiving my diagnosis. I guess I had visions that I would bounce back quickly and get on with my life within three weeks. But life isn't always what you expect it to be. Fortunately, since August 5th two years ago, I have bounced back. Sometimes I still have "bad days." But these days, as well as the better ones, have taught me to appreciate life's little things -- like eating food; walking my dog; sleeping on my left side; riding my bike -- all things that were taken for granted pre-diagnosis. And I have also discovered that I have a wonderful support system, a system of people whom I never would have connected with had I not been diagnosed with Crohn's -- from family members to friends to fellow IBDers to community members whom I didn't even know before. The other day, I was asked by someone, if you could take back your diagnosis, would you do it? This is still a tough question for me! Two years ago tomorrow, I would have said yes. Some days, I still think I might say yes. But in addition to the challenges, Crohn's has taught me patience, trust, perseverance, and resilience. It has taught me that no matter how terrible of a day I might be having, I will always have a community who is willing to stand by my side and help me through it until I am ready to get up and walk again. So, sure, I'd give up having Crohn's any day of the week. But at the expense of giving up the community that it's given me? Not a chance. 🎗#standupkeepfighting #dearcrohns
Tomorrow marks two years since I was diagnosed with Crohn's disease, and it has me feeling all sorts of emotions. In some ways, Crohn's has finally become a fairly normal, routine part of my daily life; in other ways, it still presents a host of challenges that I will never be able to live my life without. Honestly, I'm not sure what I expected in regards to receiving my diagnosis. I guess I had visions that I would bounce back quickly and get on with my life within three weeks. But life isn't always what you expect it to be. Fortunately, since August 5th two years ago, I have bounced back. Sometimes I still have "bad days." But these days, as well as the better ones, have taught me to appreciate life's little things -- like eating food; walking my dog; sleeping on my left side; riding my bike -- all things that were taken for granted pre-diagnosis. And I have also discovered that I have a wonderful support system, a system of people whom I never would have connected with had I not been diagnosed with Crohn's -- from family members to friends to fellow IBDers to community members whom I didn't even know before. The other day, I was asked by someone, if you could take back your diagnosis, would you do it? This is still a tough question for me! Two years ago tomorrow, I would have said yes. Some days, I still think I might say yes. But in addition to the challenges, Crohn's has taught me patience, trust, perseverance, and resilience. It has taught me that no matter how terrible of a day I might be having, I will always have a community who is willing to stand by my side and help me through it until I am ready to get up and walk again. So, sure, I'd give up having Crohn's any day of the week. But at the expense of giving up the community that it's given me? Not a chance. 🎗#standupkeepfighting  #dearcrohns 
I have taken the DNA test from Ancestry.com and words can’t describe the amazement from the results I have received! Many years ago, I had opened up an Ancestry account and tried to create my family tree and do a little genealogy to see where I come from. I knew right off the bat that I was Mexican with some Native American from the Sioux tribe and some Spanish ancestry as well and that my paternal grandfather had changed our last name from Herrera to Howard in the 1920s to be an American citizen. Making my family tree was really difficult because I had to do searches for him under both his original name of Juan Herrera and to his Americanized name of John Howard. As the years progressed I was able to find more records and when I saw the AncestryDNA kit on sale, I really wanted to give it a shot! I was surprised to find out that I have more Southern European than I do from the Iberian Peninsula which covers Spain and Portugal and that I also have some British blood in me! What’s even more amazing is that I’m already finding possible relative matches on Ancestry as well as you can see in the last picture! I’m really excited to continue to do some more of my family history!
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#ancestry #ancestrydna #genealogy #familyhistory #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
I have taken the DNA test from Ancestry.com and words can’t describe the amazement from the results I have received! Many years ago, I had opened up an Ancestry account and tried to create my family tree and do a little genealogy to see where I come from. I knew right off the bat that I was Mexican with some Native American from the Sioux tribe and some Spanish ancestry as well and that my paternal grandfather had changed our last name from Herrera to Howard in the 1920s to be an American citizen. Making my family tree was really difficult because I had to do searches for him under both his original name of Juan Herrera and to his Americanized name of John Howard. As the years progressed I was able to find more records and when I saw the AncestryDNA kit on sale, I really wanted to give it a shot! I was surprised to find out that I have more Southern European than I do from the Iberian Peninsula which covers Spain and Portugal and that I also have some British blood in me! What’s even more amazing is that I’m already finding possible relative matches on Ancestry as well as you can see in the last picture! I’m really excited to continue to do some more of my family history! . #ancestry  #ancestrydna  #genealogy  #familyhistory  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
I’m going to get real with this post so be aware. As you know, I love love love my ostomy! I just didn’t love it quite so much this morning at 3:30 when I woke up to an ostomy leak! It’s not the first time I’ve had a leak and it won’t be the last. First, I swore, then I got out of bed and went into the bathroom to clean up. My bag was tucked into my pajama bottoms and the waist elastic had cut off access to the bottom of the bag. There just wasn’t any room for my output (and by that I mean poop), so it came out the side of the barrier. I’ll have to give a lesson sometime on appliances and how they work because I realize a lot of people don’t know. I got out of my soiled clothes, showered, and put on a new appliance. Then I went out to tackle the mess in the bed. Ugh! It was now 4:30. Adam’s alarm was going off for him to get up to go to the gym otherwise I would have sent him to the couch so I could strip the sheets. I kept thinking how it could have been so much worse. The last leak I had was when I was at girls camp last month. Yeah, that wasn’t fun, although there were SO SO many ways it could have been worse. So many! I had to tap in to my inner MacGyver. This time was worse than at camp so I was glad to have a shower and washing machine close by. I really don’t deal with leaks too often, especially now that I’ve figured out some things to help my bag to stick to my belly better. When I sleep is not the only time I get leaks but it’s definitely the most common. An ostomy is a new normal and it comes with its own set of difficulties. But I’ll take them ANYDAY over the symptoms I dealt with from Crohn’s that the ostomy alleviated. My favorite part about this whole story, yes, I have a favorite part, is while I was spraying spot remover on my pajamas and underwear Adam tells me, as he has done before, that I never need to be embarrassed. He’s always wanted me as I am...with Crohn’s, with an ostomy, with cancer. I’m a lucky girl. My second favorite part is that I got a shower in, even washed my hair, and now have clean sheets! 08/03/18.
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#ileostomy #ileostomybag #ostomy #ostomybag #ostomylife #stoma #crohnscolitis #colorectalcancer #surgeryscars #luckyinlove
I’m going to get real with this post so be aware. As you know, I love love love my ostomy! I just didn’t love it quite so much this morning at 3:30 when I woke up to an ostomy leak! It’s not the first time I’ve had a leak and it won’t be the last. First, I swore, then I got out of bed and went into the bathroom to clean up. My bag was tucked into my pajama bottoms and the waist elastic had cut off access to the bottom of the bag. There just wasn’t any room for my output (and by that I mean poop), so it came out the side of the barrier. I’ll have to give a lesson sometime on appliances and how they work because I realize a lot of people don’t know. I got out of my soiled clothes, showered, and put on a new appliance. Then I went out to tackle the mess in the bed. Ugh! It was now 4:30. Adam’s alarm was going off for him to get up to go to the gym otherwise I would have sent him to the couch so I could strip the sheets. I kept thinking how it could have been so much worse. The last leak I had was when I was at girls camp last month. Yeah, that wasn’t fun, although there were SO SO many ways it could have been worse. So many! I had to tap in to my inner MacGyver. This time was worse than at camp so I was glad to have a shower and washing machine close by. I really don’t deal with leaks too often, especially now that I’ve figured out some things to help my bag to stick to my belly better. When I sleep is not the only time I get leaks but it’s definitely the most common. An ostomy is a new normal and it comes with its own set of difficulties. But I’ll take them ANYDAY over the symptoms I dealt with from Crohn’s that the ostomy alleviated. My favorite part about this whole story, yes, I have a favorite part, is while I was spraying spot remover on my pajamas and underwear Adam tells me, as he has done before, that I never need to be embarrassed. He’s always wanted me as I am...with Crohn’s, with an ostomy, with cancer. I’m a lucky girl. My second favorite part is that I got a shower in, even washed my hair, and now have clean sheets! 08/03/18. . #ileostomy  #ileostomybag  #ostomy  #ostomybag  #ostomylife  #stoma  #crohnscolitis  #colorectalcancer  #surgeryscars  #luckyinlove 
Liquid gold day, doodling and cheering for Tasty #orangeisthenewblack #crohnscolitisawareness #crohnscolitis
People on discussion boards be like....
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#crohnsiscray #crohns #colitis (via: @fuckitimarobot)
✨ S U P E R F O O D ✨
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• The term “superfood” is used quite loosely these days, but refers to foods rich in a variety of nutrients! I posted about Tigernuts the other day, so thought I’d break-down some nutrients in this #superfood ! Tigernuts are actually TUBERS (a type of root VEGETABLE!🥕 although they look & taste similar to nuts).
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✨ VITAMIN E - Most of us know that vitamin E has anti-oxidant properties, but how? Well, this vitamin protects red blood cells and cell membranes from free radicals that cause oxidative stress ☄️🙅🏻‍♀️.
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✨ VITAMIN C - Also has antioxidant properties & it increases the absorption of IRON 👊🏻.
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✨ MAGNESIUM - Needed as a cofactor for many of the biochemical reactions in our body. Important in energy production🙌🏻, bone composition, muscle contraction 🏃🏻‍♀️, nerve signalling ⚡️& heart rhythm 📈.
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✨ AMINO ACIDS - rich in Arginine, which helps dilate blood vessels & improve circulation💫.
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✨ POTASSIUM - important in muscle contraction 💪🏻, ❤️ function & nervous system regulation 🧠.
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✨✨BONUS: Tigernuts are rich in non-soluble FIBER. This binds to carbohydrates 🍕, toxins 🔥 & fats 🥓 & helps excrete them from the body & regulate blood sugar (more on this in another post!).
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TIP: You can also use tigernut flour as a nutrient-rich alternative to GF or nut flour! I’m also going to try making a “nut" milk 🥛 with these!
✨ S U P E R F O O D ✨ . • The term “superfood” is used quite loosely these days, but refers to foods rich in a variety of nutrients! I posted about Tigernuts the other day, so thought I’d break-down some nutrients in this #superfood  ! Tigernuts are actually TUBERS (a type of root VEGETABLE!🥕 although they look & taste similar to nuts). . ✨ VITAMIN E - Most of us know that vitamin E has anti-oxidant properties, but how? Well, this vitamin protects red blood cells and cell membranes from free radicals that cause oxidative stress ☄️🙅🏻‍♀️. . ✨ VITAMIN C - Also has antioxidant properties & it increases the absorption of IRON 👊🏻. . ✨ MAGNESIUM - Needed as a cofactor for many of the biochemical reactions in our body. Important in energy production🙌🏻, bone composition, muscle contraction 🏃🏻‍♀️, nerve signalling ⚡️& heart rhythm 📈. . ✨ AMINO ACIDS - rich in Arginine, which helps dilate blood vessels & improve circulation💫. . ✨ POTASSIUM - important in muscle contraction 💪🏻, ❤️ function & nervous system regulation 🧠. . ✨✨BONUS: Tigernuts are rich in non-soluble FIBER. This binds to carbohydrates 🍕, toxins 🔥 & fats 🥓 & helps excrete them from the body & regulate blood sugar (more on this in another post!). . TIP: You can also use tigernut flour as a nutrient-rich alternative to GF or nut flour! I’m also going to try making a “nut" milk 🥛 with these!
Fun at work as usual (sh-yeah right 🙄) but feeling like hell today. As a matter of fact, I haven’t been feeling myself for the last 3 weeks. I’ve been feeling really fatigued and achy. At first, I just blew it off as a combination of Crohn’s and this crazy heatwave we’ve all been experiencing in our respective areas but I’m beginning to think I have a deficiency in something like Vitamin D, B-12 or iron. Either those or just old age kicking in 😛😅 Either way, I’ve made an appointment to see my doctor and requested to get some blood work done so I can see for myself what the hell’s wrong with me.
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#work #worklife #workselfie #supervisor #vons #safeway #heatwave #tired #fatigue #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
Fun at work as usual (sh-yeah right 🙄) but feeling like hell today. As a matter of fact, I haven’t been feeling myself for the last 3 weeks. I’ve been feeling really fatigued and achy. At first, I just blew it off as a combination of Crohn’s and this crazy heatwave we’ve all been experiencing in our respective areas but I’m beginning to think I have a deficiency in something like Vitamin D, B-12 or iron. Either those or just old age kicking in 😛😅 Either way, I’ve made an appointment to see my doctor and requested to get some blood work done so I can see for myself what the hell’s wrong with me. . #work  #worklife  #workselfie  #supervisor  #vons  #safeway  #heatwave  #tired  #fatigue  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Serei perdoada pois desfruto de tal iguaria com a alma livre e sem culpa. #cacau #chocolate #benditocacau #ostmy #crohndisease #crohnscolitis #vidadecronista #vidalinda
Although I’ve lost weight for unnatural reasons, I’m still glad to have the excess off of my body. I feel leaner and more comfortable in clothes. No more baggy/loose shirts to hide my tummy. No more suffering in the heat because of oversized garments to hide myself and what I was ashamed of. I’m happy with my body today. I hope things continue on a better path from now on, but the happiness is real. #ibdwarrior #invisibleillness #32lbsdownandcounting  #weightlossjourney #thicc #thickthighssavelives #formfitting #happiness #bodylove #crohnscolitis #majorboobage #chronicillness #autoimmunedisease
Although I’ve lost weight for unnatural reasons, I’m still glad to have the excess off of my body. I feel leaner and more comfortable in clothes. No more baggy/loose shirts to hide my tummy. No more suffering in the heat because of oversized garments to hide myself and what I was ashamed of. I’m happy with my body today. I hope things continue on a better path from now on, but the happiness is real. #ibdwarrior  #invisibleillness  #32lbsdownandcounting  #weightlossjourney  #thicc  #thickthighssavelives  #formfitting  #happiness  #bodylove  #crohnscolitis  #majorboobage  #chronicillness  #autoimmunedisease 
Setting records with the doc, but got a smiley face and avoided the hospital, so there’s that... 🤷🏻‍♀️ 💩 Let’s do this, Humira!! #ibdwarrior #crohnscolitis #justkeepswimming #ibdawareness #humira #calprotectin
The past few days have been CRAZY.....so I made it a priority to get some time to go out to brunch alone, and spent some time at @methodvabeach in their infrared sauna. 🙌🏻
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Making sure I have alone time to reflect and decompress has been a huge part of my gut healing journey. It's tempting to say "yes" to all that is demanded of us, but knowing (and enforcing) your boundaries will help you achieve a whole new level of healing. •
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I found that once I set the boundaries to make eating and reflecting a priority (rather than eating whenever my schedule would allow me to scarf something down), my gut was happier...and the severity of a lot of my symptoms subsided. I also found that when I made time for meals I would actually end up making better dietary choices as well. ☺️
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#holisticliving #crohnsdisease #ulcerativecolitis #crohnscolitis #autoimmuneremission #autoimmune #ibd #irritableboweldisease #remission #mindfulness #prayer #holisticnutrtion #nutritionaltherapy #foodismedicine #foodisfuel #braingutconnection #wholefoodie #wholefooddiet #nontoxicliving #guthealth #autoimmunediet #autoimmunediseases
The past few days have been CRAZY.....so I made it a priority to get some time to go out to brunch alone, and spent some time at @methodvabeach in their infrared sauna. 🙌🏻 • • Making sure I have alone time to reflect and decompress has been a huge part of my gut healing journey. It's tempting to say "yes" to all that is demanded of us, but knowing (and enforcing) your boundaries will help you achieve a whole new level of healing. • • I found that once I set the boundaries to make eating and reflecting a priority (rather than eating whenever my schedule would allow me to scarf something down), my gut was happier...and the severity of a lot of my symptoms subsided. I also found that when I made time for meals I would actually end up making better dietary choices as well. ☺️ • • #holisticliving  #crohnsdisease  #ulcerativecolitis  #crohnscolitis  #autoimmuneremission  #autoimmune  #ibd  #irritableboweldisease  #remission  #mindfulness  #prayer  #holisticnutrtion  #nutritionaltherapy  #foodismedicine  #foodisfuel  #braingutconnection  #wholefoodie  #wholefooddiet  #nontoxicliving  #guthealth  #autoimmunediet  #autoimmunediseases 
A weird sight... I know. These tiny little pills might look familiar to some of you. They are my anxiety pills. These pills gave me control of my mind back. 
But as with anything, sometimes you have to say goodbye. 💜
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After my colonoscopy in March, just 6 months after removing the disease portion of my intestines, my hubby and I were given some of the most fantastic news...They were clearing me to get pregnant! We’ve wanted baby number 2 since Jude could basically walk but it wasn’t in the cards. After talking with ALL of my doctors, we’ve decided that we will casually start trying this fall after one of my besties gets married (I didn’t want to be her 4th prego bridesmaid!) 😝 •
But... even though I’ll be entering a national database when I get pregnant for being on Stelara, to help other moms make decisions about their own families, my anxiety meds are not pregnancy friendly so they’ve gotta go. Today starts the weaning process and I’m super excited but also very nervous. Goodbye anxiety meds, I hope I don’t need you anymore.🙏🏼 .
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#crohns #crohnslife #crohnscolitis #crohnsfighter #crohnswarrior #crohnsdisease #colitis #ulcerativecolitis #ulcerativecolitisawareness #ibd #ibdwarrior #ibdawareness #ibdsuperheroes #chronicillness #chronicillnesswarrior #chronicillnessawareness #spoonie #invisibleillness #autoimmune #autoimmunedisease #mentalhealth #mentalhealthawareness #anxiety #weaning #familyplanning #stelara
A weird sight... I know. These tiny little pills might look familiar to some of you. They are my anxiety pills. These pills gave me control of my mind back. But as with anything, sometimes you have to say goodbye. 💜 • After my colonoscopy in March, just 6 months after removing the disease portion of my intestines, my hubby and I were given some of the most fantastic news...They were clearing me to get pregnant! We’ve wanted baby number 2 since Jude could basically walk but it wasn’t in the cards. After talking with ALL of my doctors, we’ve decided that we will casually start trying this fall after one of my besties gets married (I didn’t want to be her 4th prego bridesmaid!) 😝 • But... even though I’ll be entering a national database when I get pregnant for being on Stelara, to help other moms make decisions about their own families, my anxiety meds are not pregnancy friendly so they’ve gotta go. Today starts the weaning process and I’m super excited but also very nervous. Goodbye anxiety meds, I hope I don’t need you anymore.🙏🏼 . . . . . . . #crohns  #crohnslife  #crohnscolitis  #crohnsfighter  #crohnswarrior  #crohnsdisease  #colitis  #ulcerativecolitis  #ulcerativecolitisawareness  #ibd  #ibdwarrior  #ibdawareness  #ibdsuperheroes  #chronicillness  #chronicillnesswarrior  #chronicillnessawareness  #spoonie  #invisibleillness  #autoimmune  #autoimmunedisease  #mentalhealth  #mentalhealthawareness  #anxiety  #weaning  #familyplanning  #stelara 
Dinner for tonight! Avocado toast with egg,cheese, avocado hash 😀🥑🥔🍞🧀 #dinner #dinnertime #yummy #yummyinmytummy #foodstagram #foodie #foodiewithcrohns #foodforcrohns #foodporn #food #avocadotoast #avocado #eggs #hashbrowns #cheese #toast #🥑 #🧀 #🍞 #🥔 #ibdnutrition #nutrition #crohns #crohnscolitis #spooniecooking #spooniecooks #crohniecooking
A Buddha bowl a day.... this one in particular is making me so happy. .
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Today’s bowl: Mango, organic peas, avocado, cilantro, dill, lime juice, pink Himalayan sea salt and a tiny bit of coconut aminos. Over rice.
A Buddha bowl a day.... this one in particular is making me so happy. . . Today’s bowl: Mango, organic peas, avocado, cilantro, dill, lime juice, pink Himalayan sea salt and a tiny bit of coconut aminos. Over rice.
Partner Up! 🤜🏼🤛🏼 It’s been a long summer battling my invisible disease, but I remain in the fight because I have an amazing group surrounding me and pushing me to do and feel better. ♥️ I am now opening enrollment for my August Bootcamp. This month is a little different. 
Grab your husband, wife, bestie, neighbor...someone and let’s reach some health and fitness goals together!!! 💪🏻 If you need help finding a partner, I’ll find you one! 
You will succeed together and I’ll be there cheering you on while working on some serious goals of my own! #abs

Comment below or message me if you want to learn more about the workouts and nutrition plans we will be rocking! 
#strongisthenewskinny #strongertogether #healthandfitness #ibd #ibdawareness #ibdwarrior #invisabledisease #invisableillness #ucsucks #crohnscolitis #socal #socalhiking #hikingadventures #vsx #lamafit #sandiegofitness #dogmama #fitnessinstructor #fitnessjourney #weightlossjourney #takebackyourlife #healthjourney #itsyourtime #livehealthylivehappy
Partner Up! 🤜🏼🤛🏼 It’s been a long summer battling my invisible disease, but I remain in the fight because I have an amazing group surrounding me and pushing me to do and feel better. ♥️ I am now opening enrollment for my August Bootcamp. This month is a little different. Grab your husband, wife, bestie, neighbor...someone and let’s reach some health and fitness goals together!!! 💪🏻 If you need help finding a partner, I’ll find you one! You will succeed together and I’ll be there cheering you on while working on some serious goals of my own! #abs  Comment below or message me if you want to learn more about the workouts and nutrition plans we will be rocking! #strongisthenewskinny  #strongertogether  #healthandfitness  #ibd  #ibdawareness  #ibdwarrior  #invisabledisease  #invisableillness  #ucsucks  #crohnscolitis  #socal  #socalhiking  #hikingadventures  #vsx  #lamafit  #sandiegofitness  #dogmama  #fitnessinstructor  #fitnessjourney  #weightlossjourney  #takebackyourlife  #healthjourney  #itsyourtime  #livehealthylivehappy 
I fricken did it y’all! 💪🏻 I made a commitment to myself to run 31 miles this month and I freaking did it. 😀 •

Has it been easy? Absolutely not. But was it worth it? Yes. Every single step was worth it. 🏃🏻‍♀️ •

This might seem like an easy task to some, but to the girl who couldn’t even run the mile in high school, the girl who was in so much pain at this time last year she couldn’t get out of bed some days... this. is. a. huge. accomplishment. 💜 •

I am letting myself rest a little these next couple of days. But I still can’t believe I did this. ME. 100% ALL ME. 🙋🏻‍♀️ •

The power of determination and believing in yourself is crucial to accomplishing any goal. So set your goals high and fricken crush them!💪🏻💜
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#crohns #crohnslife #crohnscolitis #crohnsfighter #crohnswarrior #crohnsdisease #colitis #ulcerativecolitis #ulcerativecolitisawareness #ulcerativecolitisfighter #ibd #ibdwarrior #ibdawareness #ibdsuperheroes #spoonie #chronicillness #chronicillnesswarrior #chronicillnessawareness #invisibleillness #autoimmune #autoimmunedisease #running #pushitrealgood #ilovetorun #runtheworld
I fricken did it y’all! 💪🏻 I made a commitment to myself to run 31 miles this month and I freaking did it. 😀 • Has it been easy? Absolutely not. But was it worth it? Yes. Every single step was worth it. 🏃🏻‍♀️ • This might seem like an easy task to some, but to the girl who couldn’t even run the mile in high school, the girl who was in so much pain at this time last year she couldn’t get out of bed some days... this. is. a. huge. accomplishment. 💜 • I am letting myself rest a little these next couple of days. But I still can’t believe I did this. ME. 100% ALL ME. 🙋🏻‍♀️ • The power of determination and believing in yourself is crucial to accomplishing any goal. So set your goals high and fricken crush them!💪🏻💜 . . . . . . #crohns  #crohnslife  #crohnscolitis  #crohnsfighter  #crohnswarrior  #crohnsdisease  #colitis  #ulcerativecolitis  #ulcerativecolitisawareness  #ulcerativecolitisfighter  #ibd  #ibdwarrior  #ibdawareness  #ibdsuperheroes  #spoonie  #chronicillness  #chronicillnesswarrior  #chronicillnessawareness  #invisibleillness  #autoimmune  #autoimmunedisease  #running  #pushitrealgood  #ilovetorun  #runtheworld