Took a field trip today to the Getty Center 🖼🎨
The grounds, the sculptures, architecture, and views are stunning!
I'm having a hard time deciding if I like the outside or the art inside more. The Van Gogh's, Monet's, Degas' in person are breathtaking to see and imagining them as it was crafted by their hands 👨🎨
Little unknown fact....I fell in love with art as a young child, going to museums. The first piece of art I fell in love was Edgar Degas, The Little Fourteen Year Old Dancer as it stood on a pedestal in a white room all by itself on display. I remember it like is was yesterday.
Art has always been a passion of mine. I could've spent all day here and surprising with hours spent, still didn't see everything. That's okay....another trip is in order 🚗
Do you have a passion for something? What?
Initially we had 5 cuttings- but only two made it to the next level to have a pot of their own - two of the three that didn’t make it were goners but this clipping -Shawn decided to try again - so clipped again- dipped in the clone stuff he got that is supposed to stimulate root growth - and low and behold - it’s got a root! Congratulations little one- welcome to level two - your very own pot to hang out and grow in! We are going to have to come up with names.... Any suggestions? Feeling like we should have a #clonenaming contest??? What should we name #Doug ’s babies??? Look at us learning new things!!! 😁#lovemymmjlife#ourfirstclone#learningtogrow#grownmedicine
This is my life. Medical debt out my ass and then @prudential sends me this threatening letter, even though they’ve been taking $200 from my checks for 2 months now. I call at 3:30pm/C and I’m unable to speak to someone about this letter. I had to ask for a supervisor multiple times before the girl would reach out and then, over and over again, she comes back to the line to say they’ll call me back by end of business day tomorrow but no one is available.
THAT IS UNACCEPTABLE! IM A CUSTOMER!!
Every decision I made in my early twenties was trying to prepare for if i ever got this sick. Now the long term disability insurance is threatening to put me even further in debt while simultaneously refusing to speak to me. It feels criminal yet it’s allowed. I have to keep my stress low to avoid tachycardia, which will lead to an ICD shock, which will lead to more meds and worse symptoms.
Being chronically ill is torture. My entire life revolves around doctor’s appointments, meds and debt. 👉🏻If you’re in charge of picking the disability insurance for your company, go with someone else! Your employees will thank you. 💕
I don’t get involved in any of the debates in the chronic illness community. I know some people feel it makes people focus on their illness or try to diagnose themselves. But I strongly feel there are so many benefits to what this amazing community brings. Although it should never replace medical advice; sharing information, sharing what questions we should be asking and being aware of different treatment options really helps us feel more in control of our health.
After over a year of doctors initially dismissing symptoms relating to my heart, implying I am ‘obsessed’ with my HR on my watch & rejecting referrals from both specialists & my GP. My cardiac team finally have results showing there is something wrong & now who is the one obsessed with my heart rate as more tests are required?! If only they listened to me the first time 🙄
The best doctors are the ones who don’t judge but listen to our experience & knowledge too. If we as a community can learn so much from each other, then the Doctors can learn from us too! ♥️
EDS can cause many neck and spinal issues. 💥 (I know yesterday I said I’d be refraining from talking about my own medical issues while using the DNRS program, but I wanted to share this first.) I’ve had daily neck pain for as long as I can remember. It got really bad in grade 8, but I’ve had issues since childhood. I did laser pain therapy, acupuncture, physio, massage therapy, and saw a chiropractor for temporary pain relief. A week didn’t go by without seeing one or two of these specialists. As my neck issues got worse over the years, I was left in unbearable pain with no prescriptions as doctors couldn’t figure out what was wrong. Once it was soooo bad I took a hammer (not too hard) to the back of my neck for relief. 🔨 We knew I had mild scoliosis but the scoliosis clinic didn’t think my neck pain was being caused by this. The only other potential reason doctors could think of was the car accident I had in grade 5, so we blamed my neck pain on that. The year before I developed POTS, the pain was some of the worst pain I’ve ever experienced. Thankfully, although my pain isn’t still adequately under control, it’s much better today than it has been in the past. 🙌🏼
With an EDS diagnosis, came a lot of testing, a lot of answers, and better treatment. MRI’s showed moderate central canal stenosis at C3-4, disc herniations at C3-C4 and C5-C6. Upright MRI’s showed Craniocervical Instability (CCI), and diagnostic nerve blocks revealed Occipital Neuralgia. These issues, on top of scoliosis and a few messed up ribs, still bother me significantly, but physiotherapy and my pain management clinic has helped me immensely. 😊
If you have EDS, is your neck/back affected? ⬇️
So excited that today's @flashfoodinc box came with PEARS. Seriously brightened my day! 🍐💕
This is my haul. Can't wait to cook all of it. I have so many tomatoes though...still some left from my last box lol. Any suggestions on stuff to make with them? 🍅
Today was a pretty low energy day. Just super exhausted and nauseous from the pain. BUT I managed to do a tiny bit of tidying and I visited a close friend and her two kids. I just chilled on a super comfy armchair and watched them be adorable while we talked. 😊
Winston Porter is home. 😢😢🐇💜Unfortunately they couldn’t get us fur or a snout or paw 🐾 print due to the nature of her remains post necropsy. 😢 ...... I’m super bummed we don’t have these memories of her and it breaks my heart knowing her little perfect body was pulled apart. 😢 .....
Till we meet again sweet girl. 💜
Spinal cord stimulators can help manage #chronicpain , & they can also be used to help wean & stop opioids. It's time to be proactive & get off opioids; just ask #ourpainworld how. Read about how a Washington woman back pain implant got off opioids http://ow.ly/NS6P30lIHp3
Are you constantly in pain? Does it hurt to move? Do you hear your bones popping as you move? If it's a yes to any of these. You need some CBD in your life.. CBD has changed my life for the better. I won't go a day without my daily dose of CBD and trust me, if you forget to take it, your body will quickly remind you!! Want to learn more about CBD. Join me on Saturday, September 22nd from 10-6 pm at the Mesa CBD Dispensary and learn more about how CBD can help you. ** Tip.. Wear blue for discounts 😉
Follow CBD MSA for more specials and events. Also on Facebook and Twitter.
Join us next Tuesday, September 25th at 9:30 AM EST on Facebook Live and on our website to watch two live spine surgeries, including a Deuk Laser Disc Repair, broadcast directly from the Surgery Center of Viera. Dr. Deuk will be answering any questions that you have about the procedures or about neck and back pain in real-time throughout the stream.
The problem nobody is addressing with #chronicillness groups...
I’ve left many a forum and Facebook group during a painsomnia episode. The places where I thought I could go for support turned out to be the worst thing for me. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
They would start out okay but as time went on they became a place to just download problems, symptoms, meds... negatives. Admins were either never around or over the top strict - hiring lawyers and Qualified Doctors to police their group. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
I didn’t log in to them because it was a fun place to be, I simply had a question I needed advice on. As soon as I had my answer I’d turn off notifications and bolt. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
They depressed me more than my reality.
When I started to build Project Patchwork I knew I needed a different approach. I wouldn’t be able to go through all that again. I also didn’t want anyone else too either. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
The way around this was to inject balance into my community, give members different ways to interact with each area depending on their needs. If they can’t bare to see someone else’s pain day they can open up the forum and share some positive quotes or read some blogs. If they wanted to support people and make new friends they had personal messaging, a newsfeed and Hashtag Hours. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
Where you focus is is where your energy goes, and #invisibleillness can be a black hole for energy, using up every spoon. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
I wanted women to walk away feeling better, not worse.
Balance is the absolute Queen of Illness. Share in the successes as much as the bad days. Too much positivity leads to unrealistic expectations; too much negativity leads to bitterness. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
How do you feel about these groups?
Met @kristinbauer who brilliantly played #Pam on #Trueblood . 🧛♀️ What an honor. Kristin totally surpassed any expectations. She’s vegan (🚫🐥), an animal rights activist (🐶🦊🐋!) and a total empath. It was a pleasure meeting her for the True Blood 10th Anniversary reunion @keystonecomicon
SCRUNCHIES!! Oh how much I love them. I know they don’t look like much but for years my hair elastics always hurt my head from the sensitivity I had (I had a migraine a day and constant headaches). And whenever I wore my hair down my head just got even heavier than it already did. But lately I have been wearing scrunchies all the time. They don’t hurt my head at all! I always have one on my wrist. I would never have thought this tiny thing would help me😊 #dysautonomia#dysautonomiaawareness#chronicpain#chronicpainwarrior#chronicpainawareness#migraine#migrainerelief
I have some really exciting news to share! I am officially a published writer! The mighty published my very first blog post on their site!
You can view it here:
Riding out the waves ... Today was my first day feeling fully me after this chronic illness flare.
And I had the treat of working on a patient with a very different, chronic and permanent illness. And this is what she said to me "sometimes you just need to ride out the waves". In my work as an #RMT I love to treat patients with chronic illness and chronic pain...because I think there's a piece of the puzzle we can work on and relate to. #massagetherapists don't fix our patients. We help them. We help them keep their symptoms in check, and provide support when symptoms go nuts anyway.
The chronic illness does not have to stop your dreams and goals!
I planned to go to university to get my degree in interior design, my life-long passion. Then I got sick. I was unable to attend full-time classes.
But that did not stop me! I found a community college with an interior design program. The school's disability services ensured accommodations for me. My mom drove me to college and I took one class per semester. It was exhausting on my weak body.
Working towards this goal helped me cope with the chronic illness. It gave me something bigger to focus on and look forward to!
I took online classes that were available, but all my design and architecture classes were on campus. The last year, I was feeling a little better. I was able to take two classes per semester, and, towards the end, drive by myself! This was a huge accomplishment!
It took 7 years, but I finally earned my Associate's degree in interior design! Keep working towards your goals! It might take longer and look different than you thought, but it is still possible!
Join Dr. Hersel and Dr. Spiegel at this complimentary community event designed to educate the public about this cutting-edge treatment option. Light appetizers and refreshments will be served. Learn how you can finally find relief from chronic pain and get back to being you! Click the link in our bio to RSVP – Space is limited.
"It's just Fibromyalgia."
I have been searching for answers as to why I have have, for 7 years, been getting progressively sicker with fatigue, weakness, and pain. The decline over the past 2 years has been especially concerning. I now have to regularly use mobility aids, have energy only enough to barely survive working three days a week (sometimes), and am utterly useless for much else.
So, when my Neurologist recently told me all my tests are normal and thus all my symptoms are "just the Fibro" I was once again defeated in finding answers.
But, I was struck by the "just" and realized that I, too, am guilty of saying "just" Fibromyalgia as if it is your every day, run of the mill, cold.
Fibromyalgia is anything but "just" a simple condition that can be tossed aside or used as a fill in. I feel in my gut that there is a secondary condition to Fibro that I am dealing with, but Fibromyalgia is a beast of a condition itself and deserves respect for the havoc it reaps.
I realized that I was, in a way, disrespecting Fibromyalgia, and all who suffer from it, when I tell people, "It's just Fibromyalgia, but they are still testing to find something else."
I suffer with and fight Fibromyalgia everyday. And, there may or may not be a doctor or test out there willing to diagnose me with anything else that could provide a better plan of attack. But, I am for sure NEVER going to use "just" and Fibromyalgia in the same sentence again.
Certain brain and personality characteristics may help predict whether a sugar pill can provide relief to someone suffering from chronic pain.
In a small study, patients with persistent back pain who responded to a placebo treatment benefitted from up to a 33 percent reduction in their pain intensity.
Despite not having pharmacologically active properties, placebos such as sugar pills can produce a neurobiological effect, like a lessening of a patient’s symptoms.
My anxiety has been building all week. It's horrendous. It's all encompassing. It's the feeling like someone's sitting on your chest, you can't breathe, my skins on fire I want to scratch away my chest skin cos it feels like something's crawling over me. I retreat. I can't function. I feel paralysed. I cry. I wail. Why? well a million different reasons many too personal to talk about. I'm having a bad day pain wise. My arms and shoulders are agony. I cant lift my arms. Icant pick things up or Carry things. It takes an age to get up out of a chair. I know this will last many days now. My mind so busy my body so weak and letting me down. This boy though.... he is a one off. He comes downstairs and sits down like this is totally normal.. I love it. He needs me. I'm his safe place. I keep fighting #anxiety#depression#ptsd#ptsdawareness#my 🌍 #mumlife#struggleswithanxiety#fibrowarrior#fibromyalgia#warrior#chronicpain
Thank you for featuring us in your latest post @dbsalliance. We really appreciate the kind words of our @ketaminewellnesscenterstucson clinic and the support of your Tucson chapter! Copy and paste the link to learn more. https://bit.ly/2xKPqnF