✨For years I was sick. I grew up with asthma and would routinely go to the hospital when I got the flu. In college I was exposed to mold and my thyroid symptoms started to show up. I was tired, had anxiety, couldn't sleep, had stomach issues, my hair began falling out, and my skin was a mess. I literally did not feel beautiful from the ages of 20 to 26. I despised the reflection in the mirror. No amount of hair product, makeup or clothing could make me feel any different. ✨After years of working through my issues with Hashimotos (a thyroid disease) and Lyme disease, I began to feel better. But for another two years I didn't take care of my appearance because I was stuck in the survival mentality. In September of 2017, at the age of 28, I decided to invest in myself. I started a new workout program and a legit skincare regimen (Rodan and Fields). I watched my skin and body become different. The health and beauty I felt from the inside was starting to shine through. 3 months ago I invested in a hair care routine (Monat) and my hair is growing in thicker than ever. I also began investing in my wardrobe and makeup, something I've NEVER done. Today, when I look in the mirror, I like who I am. I feel confident in who I am WITHOUT this external stuff, but man it feels awesome to embody it fully in the physical form. ✨Clothing, makeup, and skincare cannot MAKE you feel beautiful. It cannot take away the pain you feel from being chronically ill. But if you're healing and making progress, or even if you're in the thick of it now, don't forget to invest in yourself and what makes YOU feel beautiful. Treat your body like a temple on the inside and out. Eat the right foods for your illness, drink green juice, take high quality supplements, and see a new doctor if your current one isn't helping you. Also, don't forget that you deserve to get your nails and hair done, you deserve a new pair of jeans that look fabulous on you, you deserve new foundation that isn't years old, and you deserve high quality skincare.
In our culture, progress is defined by a straight line headed up and to the right. We’re supposed to be always moving forward, moving on and moving up.
But growth and healing and relationships don’t chart that way. Feeling autumn in the air and in my bones is a sweet reminder that God has made our world seasonal. Just as sure as each season arrives, it also dies ... until is is born again next year.
I have really great seasons (that last months, days, or even hours) in caring for my body - where the weight of my brokenness lightens and management feels simple. And then metaphorical snow falls, and I’ll feel isolated and powerless.
That cycle feels very much like a hamster wheel sometimes, because obvious progress is much more satisfying. But maybe taking ground is less about what season I’m in, and more about my emerging maturity in ALL seasons.
Ahh! So excited! Join me on live at 2PM EST TODAY, using interactive video with @ZubiaLive (https://www.ZubiaLive.com) or on the iPhone app (https://apple.co/2dbYU4l) as I discuss what it means to be a “Patient Advocate” and how to get your foot in the door! Can’t wait to see you there! #Sponsored#ChronicIllness#Spoonie
👈vid cred to @sumshimko . I continue to progress on my long road back from chronic illness and chronic pain and have now been training and teaching since July @34_north 👈Since I always practice what I coach all my clients to do, I never stopped moving even though I wasn’t training and when I did something strenuous I didn’t recover well 👈That, along with good basic movement and self-care practices informed by my training in @functionalrangeconditioning @nutritiousmovement @kinstretch @mobilitywod and others allowed me to move better than others who were training without actually training myself 👈But now I am training and getting stronger and working out the last bits of inflammation 👈These are basic strict ring muscle-ups into some front lever practice 👈They aren’t really good yet. Too much piking and the elbows come out way too much and the eccentric portion is not tight but there is good external rotation at the top and more importantly, no pain!!!😃😃
"I was 19 years old, in my second year of college when I began to have some pretty alarming symptoms. I would have diarrhea for days on end. I told my parents, and the testing began in earnest, but even then, it was another six or seven years before I was diagnosed with Crohn's.
For years, my doctors had me on all sorts of medications for IBS (Irritable Bowel Syndrome) and nothing helped. I was continually losing weight. I got down to something like 113 pounds, which is scary, because I'm six feet tall and weighed 165 in high school. till, at least when I was diagnosed I could put a name to what was wrong, and I felt like I could finally really begin tackling it.
I'm not going to pretend that any of this has been easy. It's still a challenge to try and lead a so-called normal life. I do try and get out of the house and fight through the day, even when I sometimes don't know how I'm going to find the energy to literally put one foot in front of the other. I think my biggest challenge today -- and any other parent would understand this -- is being the best mom I can be for my children, despite my Crohn's.
I'm not going to say that I don't get depressed sometimes and wonder 'Why me?' But I can still be a strong example of a woman, a wife, and a mother to my children, and that's how I'm going to move forward in the world." - @Jessi_Moss
Read more of Jessi's story --> Link in bio.
#crohns#crohnsdisease#crohnswarrior#crohnie#crohnsawareness#crohnsandcolitis#ibd#ibdawareness#crohnsmom#crohnsgirl#chronicillness#chronicallyill#chronicillnesswarrior#spoonie#spoonielife#mom#invisibleillness @patientcoaches @intense_intestines @chronicallybetteryou @ibdgirls
Meet Jenn Walsh:⠀
“The most frustrating part is the fight - the fight for good care for your child. My oldest daughter Zoe has Juvenile Rheumatoid Arthritis. She was prescribed physical therapy by her Rheumatologist, 2 times per week for 3 to 4 months. The cost after insurance would be $80.00 per visit. That is $640 per month for 3 to 4 months. This is more than my monthly car payment and auto insurance put together. I struggled with this and felt extreme guilt when I had to conclude I just could not afford it. I’m a single mom and a small business owner. I did my best. ⠀
We researched and found other ways to help her with the swelling and stiffness at home. This consisted of purchasing an exercise bike, a fitbit, and aerobic workouts on youtube. The bike and fitbit cost $400.00 - much less than one month of physical therapy, I felt good about our choice and Zoe was getting a better daily exercise routine at home. Then we had her follow up appointment. Despite the value in the alternative route we took the Dr. noted “mother did not comply with prescribed physical therapy due to insurance cost.” This brought all the guilt back and I still feel awful about it. Is that going to come back to haunt me later? It’s a constant fight.”⠀
#juvenilearthritis#mommabear#chronicillness#caregiver#PatientRising#PatientsRisingNow#PatientsRisingUniversity#RisingTuesdays ™ #People#invisibleillness#physicaltherapy#mom#insurance#chronicillnesswarrior#chroniclife#youngandchronic Share your story at https://buff.ly/2Q4ayfM
First you gotta get rid of the not so good stuffs..
Before you can bring in reinforcements!
This means giving a good ‘ole heave ho to:
🍞 Processed foods
Those are the biggies..
But I can’t do that!
Yes, yes you can. (You’re stronger than you think 😉)
Plus, it’s NOT FOREVER.
It’s only until your innards calm themselves down and chill out.
Then you can bring them back to the dinner table,
if you want to (trust me, you probs won’t want to after you realize how stellar you feel 💁🏻♀️)
This removal is also a slow and controlled process.
Usually over the course of 4-6 weeks you remove these foods. Not ready, set, GO fashion.
Unless thats your jam.
You do you.
On your worst days with a chronic illness it can be daunting to have to take a shower. Having to wash your hair, condition, shave, dry, moisturize, get dressed, dry your hair. Each task takes energy. Energy that you don’t have. On those days, sometimes I have to choose between washing my hair or shaving. (thank you dry shampoo 🙏🏻) Or choose between actually showering and taking care of my myself and the kids 🤣 But that’s reality for life with chronic illness.
I’m not sure if I’ll ever be able to reverse my adrenal fatigue completely. But I know that with what I’m doing right now, I’ll be able to have more good days than bad days.
Today I had to wake up earlier than I wanted to since Jon is out of town and I needed to take Carter to school. I didn’t sleep well either. So today, even though I am very fatigued, I’m celebrating. Because I was able to shower (and wash my hair and shave 😏)! 🙌🏻 But I’m also pacing myself so I don’t burn out and can make it to my sons school event tonight. Which means my bathroom won’t be getting cleaned and laundry won’t get washed and folded. But that’s ok, because there’s always tomorrow. 💜
People have been asking me how I'm feeling after my #hysterectomy in July, and I've honestly been replying with "90 percent back to normal," and I'm so damn #grateful for it. I'm still figuring out the hormonal mood piece, of course, but it's a lot easier to find solutions for yourself when you don't wake up and go to bed every day in debilitating #pain .
The maddening thing about being a person with more than one chronic illness, however, is that just because you "fix" one, it doesn't mean the others magically disappear. It's been amazing and life-changing to not have to suffer the agony of #endometriosis or #adenomyosis as much.
But when a batch of rain-filled days is on the forecast (like now), my heart sinks and my joints and muscles ache in anticipation.
#Fibromyalgia is one of those mysterious, tricky chronic illnesses that seems part hereditary and part diet-related and also just something that seems to tag itself on to other ailments.
For the past few days, my knees and elbows and neck and knuckles have felt the precipitation on the way, and it's the first time since my operation that I've had to pop pills on a regular basis. But where #endo pain was soul-destroying, #fibro#flares (to me) are more soul-wearying.
They're unpleasant and tiring and annoying, yes, but I can still FUNCTION. I can still get up and live my life. And I know it will pass, too, usually when the rain arrives. That's huge. Until then, i just hold on, practice self-care, and try to show some #gratitude that it will be gone soon.
"Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe. No less than the trees and the stars. You have a right to be here." Happy Tuesday everyone! Our little instagram community has made it on to the official #nhwnews social media list, so we're celebrating 🙌 thanks to all of you who are helping us along the way 💕
Want to learn more about Functional Neurological Disorder?
Thriving While Disabled is broadcasting on the Zubia Live App and explaining everything you need to know- including symptoms and treatment of the condition.
Day 25 of #chronicpainawareness#chronicpainawarenesschallenge
What i wear on a daily basis and how it affects my pain.
This is the normal day to day wear. A pair of super soft leggings. Right now i can only tolerate @cuddlduds (i have managed to obtain 4 pairs which is nice) as normal leggings and pj bottoms are way too rough on my left leg where my chronic pain is partially located. I have to have something that can expand with swelling too. I wear a tank top or soft tees. Plus you will always find me wearing hoodies around the house. Its hard to find soft enough ones but i manage it.
Paired with my first compression socks which are helping me and my summer shoes. [I dont normally wear socks with sandals but i am worried about my feet over heating in my normal around the house shoes]
Also this is the first full body shot since losing 74 lbs through @ww which has been the only way ive managed to lose weight while being unable to really walk or move. (Not shown is my cane carefully tucked away in the room. I want to get a cuter one some day)
Your circumstances do not define you. Your situation does not limit your potential.
I have a few chronic illnesses. I am finally able to manage at home, but it’s been a battle for 2 years. I also have three small kids and a husband who travels every week.
And because our life has been not “normal”, I have built space in my life to do things that I love - things that make my heart sing! And you can too!
No matter where you are, you CAN live a life you love. Yes, the journey can be dark and difficult, you you CAN get through this season of growth! I want to help you! 👥
Send me a DM so we can learn how to work together to create a life you love!
✨"Have faith in your journey. Everything had to happen exactly as it did to get you where you're going next."✨
Happy Tuesday, it's a rainy day here in Toronto.☔☁☔☁☔☁☔
It's the perfect day to be curled up on the couch with a fuzzy blanket and a good book.📖
Today's post consists of curry and spices.💥🔥
This is my own recipe for an anti- inflammatory pot of curry chicken.🍲
How many of you like curry?☝💁
I don't use store bought broths or pre-made sauces that can be full of additives, preservatives or sugar.
💁Lucy's coconut curry chicken:
▫6 boneless chicken thighs ( choose organic- raised a/o hormones or antibiotics)
▫1 medium onion diced
▫4 cloves of garlic diced
▫1 inch of ginger root sliced thin
▫2 bell peppers ( red & yellow)
▫1 mediumzucchini chopped
▫2 chayotes chopped ( from parents garden- totally optional)
▫2 tablespoons of cocounut oil
▫1 can of cha's organic coconut milk ▫spices: organic sea salt* black pepper* cumin* turmeric powder* cinnamon
▫2 cups of organic short grain basmati rice 💁How to:
▫In a large pot, on low heat, add the coconut oil and add in the curry powder, swirl it all together. Add in the coconut milk, blending together.
Add in the garlic, ginger root, onions until traslucent.
Add in the chicken thighs, add your spices, add water that you had boiled prior to starting, just enough to cover the chicken.
CooI the chicken half way, now add in rest of vegetables, mix all together, turn heat up high, once boiling, cover and let cook for 1 hour.🍲🍲🍲🍲
To serve: add the curry chicken on top of freshly cooked brown basmati rice.😃
✨Dinner is ready...serve and enjoy.❤
The girl on the left had never imagined that by the time she was 30, her migraines would take over her life. By 35, she had 3 more diagnosises. By 45, another two. All incurable. All painful, all the time. By July 2017, she was on so many meds, (without relief) that she was falling— more than without them. She was desperate for a change. But like you, she felt powerless to do anything about her situation. In addition to her chronic illnesses, she was at least 50lbs overweight making her pain worse. It seemed hopeless. ~~~~~~~~~~~~~~~~~~
Enter her friend @hoffandcol (who just paid off her mortgage 15 years early with commissions and bonuses) asked her to try some greens and sent some samples. She was interested, but knew she couldn't afford them-her husband had recently lost his job. Colleen told her about becoming a distributor and eventually, she took a leap of faith. She figured if nothing else, she could earn her $100 shopping spree and have enough greens for a couple of months. ~~~~~~~~~~~~~~~~~
Then something amazing happened. She started having results immediately and immediately signed several customers who are also loving their product. ~~~~~~~~~~~~~~~~~~
It's been over a year now and the girl on the right is a changed woman. Her 33lb weight loss is visually obvious. What isn't obvious, is how great she feels inside! Her brain fog isgone. She’s been MIGRAINE FREE for A YEAR. The only prescription she takes on a regular basis is her allergy med. ~~~~~~~~~~~~~~~~~~
If you have health goals or are looking for a financial boost...raise your hand 🙋♀️
There is hope and I’d love to help you reach your goals.
Your health journey is something that is on-going, it lasts forever and finding the right balance is a day-to-day process as every day is different living with a chronic illness. Finding what works for you is important. I know sometimes it feels like you’ve literally tried everything under the sun, anybody else? 🙋🏻♀️ When you find something that works, you want to share it with anyone who will listen. Over the last 2 years, I have been using biofeedback and it has been such a helpful tool to have in my toolbox👝Check out my full review and how it works over on the blog!
💫❤️Juice Heals! Watch my stories for recipes ❤️💫
If you follow me then you see how I change what I’m consuming based on what my healing needs. I will always be plant based that’s a moral and health thing and it’s how I have been my whole life. Added oils and salt are also hard lines for me. .
If your looking for a sustainable way to eat and be healthy long term then @nutrition_facts_org and the book How Not to Die is the perfect guide to start. The videos and info Dr.G outs out is phenomenal.
However if your looking to heal from disease, cancer, and pathogens then you will have to use food as medicine and consume different things based on needs. ❤️.
Stabilization, pathogen removal, tumor and lymph gland shrinkage, leaky gut healing and pathogen removal, detoxing, repopulation of gut, and longevity healing. What’s a person to do? For parasites I went all fruit. It was intense, painful, and stripped me totally down physically and mentally. But now I’m in a whole different phase of healing leaky gut. Which for me requires cooked foods. Which I do not love ❤️ but I have to bend. That’s what healing is all about. .
I’m all about green juice right now. Low GI and tons of nutrients! One step at a time. And I’m feeling really really great! Happy Healing ❤️
You guys - I have to tell you that I absolutely love about the Autoimmune Strong community Facebook group. It is such a source of inspiration for me. I never imagined when I started Autoimmune Strong that it could be so warm ... and that this warmth would not be directed by my hand, but it would come from the hands of others, people I have never even met before! You see, the Facebook group is private for Autoimmune Strong members only. And these members, from all over the globe, from all walks of life, are getting together in this online space to share inspirational stories, their Autoimmune Strong success stories and to talk about their struggles, challenges, dreams and hopes. And the most beautiful thing that has come out of it is the way the members all support each other. They offer kind words, shared experiences, inspiring messages of hope and love, support and encouragement.
This quote was posted by a member a few days ago on the private Facebook group and I thought it was so perfect for what we are trying to do here, so I wanted to share. We need acceptance first and then a way to pull through. My intention through creating this program and this community was to offer a way to pull through it. And the beautiful thing is that we can all pull through it together, one day at a time. We are not alone. 💙
If you want to join this wonderful community, go to www.getautoimmunestrong.com or click on the link on my profile page.
And please, tag a friend who needs to hear this message!
Feeling like a shadow of myself lately.
In the midst of a flare up I’ve been able to see the lies my disease whispers to me.
I’m not good enough.
I’ll never be healthy.
Something worse is wrong with me.
No one loves me.
I can’t live a “normal” life.
I’ve been in these mind games for over a week and let me tell you the struggle to stay positive, to keep the truth and the knowledge that these whispers were lies alive was real. .
Today I feel mostly back to myself with lingering little whispers that are easily dismissed. I’m also feeling so grateful that the progress I’ve made in my almost 2 year journey back to health has improved EVERY part of my life not just the physical.
The mental strength to overcome life’s battles were honed in my home gym, overcoming all of my “I can’ts” into “I will, just watch me’s”.
As I gained physical muscle I also gained emotional muscle to get out of some toxic relationships and learned to stand up for what I want out of my life. .
These flare ups for me are a reminder of how far I’ve overcome some of life’s biggest challenges and it’s also a reminder for me to make myself a priority in my own life and to not give up on myself. .
What’s your reminder to make yourself a priority in your own life? .
“‘I’m really tired,’ you come to understand, is meaningless, giving the impression all will be well with a good rest and that if you’ve ever been tired, you know what it is to be exhausted.” ~Frances Ryan It’s that I’m going to drop dead feeling of exhaustion that makes even the simplest of chores, like getting dressed, seem almost impossible. Seriously, it would be so much easier to just curl up in the closet and go back to sleep. #chronicfatiguesyndrome#chronicillnesswarrior#chronicfatiguesucks#ishouldhavestayedinbed#mycatunderstandsme