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This has been my last few days ๐Ÿ˜ด up all night and asleep most of the day. The rollercoaster of emotions and energy of the past few weeks has really taken its toll and I could do very little to change it than to simply lie down and wait it out. Iโ€™ve been very lucky to have my gorgeous man by my side taking naps with me at some points so Iโ€™m not alone and overthinking. It can be really hard to recharge and feel so useless but I am learning that it has to be done sometimes, that Iโ€™m only human and thereโ€™s only so much one little body can take. With a super crazy week ahead I am taking comfort in this moment of stillness with my loved one and hoping it will gear me up to face the tasks ahead. 
#chronicillness #thyroidectomy #mentalhealth #awareness #onedayatatime #chronicfighter
This has been my last few days ๐Ÿ˜ด up all night and asleep most of the day. The rollercoaster of emotions and energy of the past few weeks has really taken its toll and I could do very little to change it than to simply lie down and wait it out. Iโ€™ve been very lucky to have my gorgeous man by my side taking naps with me at some points so Iโ€™m not alone and overthinking. It can be really hard to recharge and feel so useless but I am learning that it has to be done sometimes, that Iโ€™m only human and thereโ€™s only so much one little body can take. With a super crazy week ahead I am taking comfort in this moment of stillness with my loved one and hoping it will gear me up to face the tasks ahead. #chronicillness  #thyroidectomy  #mentalhealth  #awareness  #onedayatatime  #chronicfighter 
I got back from vacation on Tuesday, and havenโ€™t had much of an appetite at all... Iโ€™ve hardly eaten anything, and I guess the end result of that is Iโ€™m now in ketosis.  My blood sugarโ€™s fine, so Iโ€™m not worried about the ketones, and I might actually try and stay in ketosis for a little bit.
#diabetes #type1 #typeone #typeonediabetes #type1diabetes #typeonediabadass #insulinaddict #dexcom #partialcyborg #organonmanual #pancreas #pancreaticallychallenged #typeonestrong #spoonie #chronicallyawesome #chronicfighter #chronicallybeautiful #t1d #endocrine #a1c #ketosis
I got back from vacation on Tuesday, and havenโ€™t had much of an appetite at all... Iโ€™ve hardly eaten anything, and I guess the end result of that is Iโ€™m now in ketosis. My blood sugarโ€™s fine, so Iโ€™m not worried about the ketones, and I might actually try and stay in ketosis for a little bit. #diabetes  #type1  #typeone  #typeonediabetes  #type1diabetes  #typeonediabadass  #insulinaddict  #dexcom  #partialcyborg  #organonmanual  #pancreas  #pancreaticallychallenged  #typeonestrong  #spoonie  #chronicallyawesome  #chronicfighter  #chronicallybeautiful  #t1d  #endocrine  #a1c  #ketosis 
[infusion] days are always hard. i never know how my body will respond. i started with a migraine & felt rather fatigued. was woken up at 3am with severe adominal + pelvic pain//burning. i finally fell back asleep at 4:30am with slight relief, only to wake up at 6:30am in pain...again. iโ€™ve been up all morning managing it. i wonโ€™t lieโ€” iโ€™m struggling. this pain is terrible. this flare is terrible. i just want it to stop. #mylupiejourney
[infusion] days are always hard. i never know how my body will respond. i started with a migraine & felt rather fatigued. was woken up at 3am with severe adominal + pelvic pain//burning. i finally fell back asleep at 4:30am with slight relief, only to wake up at 6:30am in pain...again. iโ€™ve been up all morning managing it. i wonโ€™t lieโ€” iโ€™m struggling. this pain is terrible. this flare is terrible. i just want it to stop. #mylupiejourney 
Join us this Saturday at the @120diner for an amazing night of comedy, music & drag hosted by @pepper_mache ! All proceeds will go towards funding the production of a brand new play written by me in collaboration with my incredible team at @lunamtheatrecompany including @davrielle18
Our show explores the struggles and realities faced by youth living with chronic illnesses and invisible disabilities. As someone who has lived with chronic illnesses since childhood, I have always wanted to explore my story and the story of others like me through art. I am so lucky to be able to embark on that journey now and grateful to have the support of my collective and my family and friends to do so. So come on out this Saturday and join us in making art that makes a difference!

For more information & advanced tickets:
https://youlookfinefundraiser.eventbrite.ca

#fundraiser #chronicillness #disabilityawareness #disabilityrights #disabilityarts #chronicpain #chronicfighter #disabledcommunity #youth #teens #youngadults #kids #theatre #indietheatre #experimenttheatre #playwright #director #designer #womanempowerment #woc #poc #youthempowerment #canadian #torontoartist #toronto #arts #community
Join us this Saturday at the @120diner for an amazing night of comedy, music & drag hosted by @pepper_mache ! All proceeds will go towards funding the production of a brand new play written by me in collaboration with my incredible team at @lunamtheatrecompany including @davrielle18 Our show explores the struggles and realities faced by youth living with chronic illnesses and invisible disabilities. As someone who has lived with chronic illnesses since childhood, I have always wanted to explore my story and the story of others like me through art. I am so lucky to be able to embark on that journey now and grateful to have the support of my collective and my family and friends to do so. So come on out this Saturday and join us in making art that makes a difference! For more information & advanced tickets: https://youlookfinefundraiser.eventbrite.ca #fundraiser  #chronicillness  #disabilityawareness  #disabilityrights  #disabilityarts  #chronicpain  #chronicfighter  #disabledcommunity  #youth  #teens  #youngadults  #kids  #theatre  #indietheatre  #experimenttheatre  #playwright  #director  #designer  #womanempowerment  #woc  #poc  #youthempowerment  #canadian  #torontoartist  #toronto  #arts  #community 
#nemphotochallenge: today is supposed to be "sweet" but I'm going with "sweat" ๐Ÿ˜‚. Nothing sweet about #22minutehardcorps! Picked it for cardio because it's short, and I haven't slept and my gut is in an extra bad mood today ๐Ÿคฃ. It's so humid and I'm dripping. My eyes have been more light sensitive and irritated lately. I have #dryeye anyway but am wondering if all the sweat I keep having stinging my eyes is the issue! Whatever it is, I hope it goes away, as it's making driving even harder.
#workout #cardio #beachbody #spoonie #chronicillness #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #deathfat #eds #ehlersdanlos #edsathletes #sizeacceptance #fatacceptance #nofatshaming #flowers #sunshine
#nemphotochallenge : today is supposed to be "sweet" but I'm going with "sweat" ๐Ÿ˜‚. Nothing sweet about #22minutehardcorps ! Picked it for cardio because it's short, and I haven't slept and my gut is in an extra bad mood today ๐Ÿคฃ. It's so humid and I'm dripping. My eyes have been more light sensitive and irritated lately. I have #dryeye  anyway but am wondering if all the sweat I keep having stinging my eyes is the issue! Whatever it is, I hope it goes away, as it's making driving even harder. #workout  #cardio  #beachbody  #spoonie  #chronicillness  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #deathfat  #eds  #ehlersdanlos  #edsathletes  #sizeacceptance  #fatacceptance  #nofatshaming  #flowers  #sunshine 
Having a rough morning today. Dealing with the dispensaryโ€™s mistake is proving, once again, incredibly uncomfortable and difficult. Just goes to show that what is a small mistake at work for them means 3/4 days of increased pain and reduced mobility to me. I feel like half my spoons for the day have been stolen. .
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My meds are not just your job.
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Howโ€™s everyone else doing this morning? โ€ข
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#fibrowarrior #fibromyalgia #flareup #fibromyalgiaawareness #fibrosucks #medication #nhsproblems #spoonie #spoonieliving #spoonieproblems #spooniesisters #spooniebrothers #disabled #invisibleillness #invisibleillnessawareness #chronicallyill #chronicpain #chronicfatigue #chronicallyawesome #painmanagement #musclepain #jointpain #rest #fibrofighter #chronicfighter #painrelief #instapic #instalike #instagood #sickgirl
Having a rough morning today. Dealing with the dispensaryโ€™s mistake is proving, once again, incredibly uncomfortable and difficult. Just goes to show that what is a small mistake at work for them means 3/4 days of increased pain and reduced mobility to me. I feel like half my spoons for the day have been stolen. . โ€ข My meds are not just your job. โ€ข Howโ€™s everyone else doing this morning? โ€ข . . . . #fibrowarrior  #fibromyalgia  #flareup  #fibromyalgiaawareness  #fibrosucks  #medication  #nhsproblems  #spoonie  #spoonieliving  #spoonieproblems  #spooniesisters  #spooniebrothers  #disabled  #invisibleillness  #invisibleillnessawareness  #chronicallyill  #chronicpain  #chronicfatigue  #chronicallyawesome  #painmanagement  #musclepain  #jointpain  #rest  #fibrofighter  #chronicfighter  #painrelief  #instapic  #instalike  #instagood  #sickgirl 
Leg day today, and my knees were great, woo hoo! Used my new 10kg dumbbells for the first time ๐Ÿ™‚. Now sitting outside with my superfoods shake lol- I've gone the whole hog with cocoa, turmeric, matcha, maca and chia seeds, along with frozen berries, oats, whey protein, kefir and a dash of water ๐Ÿ˜‚๐Ÿ˜Š. #workout #bodybeast #legday #beachbody #proteinshake #superfoods #spoonie #chronicillness #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #deathfat #eds #ehlersdanlos #edsathletes #sizeacceptance #fatacceptance #nofatshaming #flowers #sunshine
Leg day today, and my knees were great, woo hoo! Used my new 10kg dumbbells for the first time ๐Ÿ™‚. Now sitting outside with my superfoods shake lol- I've gone the whole hog with cocoa, turmeric, matcha, maca and chia seeds, along with frozen berries, oats, whey protein, kefir and a dash of water ๐Ÿ˜‚๐Ÿ˜Š. #workout  #bodybeast  #legday  #beachbody  #proteinshake  #superfoods  #spoonie  #chronicillness  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #deathfat  #eds  #ehlersdanlos  #edsathletes  #sizeacceptance  #fatacceptance  #nofatshaming  #flowers  #sunshine 
!!!! THIS PUPPY !!! IS !!! AMAZING !!!
We visited some family today and one of them JUST got this puppy, and his name is Thor, and he is my favorite.
Also, my BG levels have been decent, despite my lack of lantus... and Voodoo Donuts... ๐Ÿ˜…
But THOR.

#diabetes #type1 #typeone #typeonediabetes #type1diabetes #typeonediabadass #insulinaddict #dexcom #partialcyborg #organonmanual #pancreas #pancreaticallychallenged #typeonestrong #spoonie #chronicallyawesome #chronicfighter #chronicallybeautiful #t1d #endocrine #a1c
!!!! THIS PUPPY !!! IS !!! AMAZING !!! We visited some family today and one of them JUST got this puppy, and his name is Thor, and he is my favorite. Also, my BG levels have been decent, despite my lack of lantus... and Voodoo Donuts... ๐Ÿ˜… But THOR. #diabetes  #type1  #typeone  #typeonediabetes  #type1diabetes  #typeonediabadass  #insulinaddict  #dexcom  #partialcyborg  #organonmanual  #pancreas  #pancreaticallychallenged  #typeonestrong  #spoonie  #chronicallyawesome  #chronicfighter  #chronicallybeautiful  #t1d  #endocrine  #a1c 
Hey yโ€™all... guess who forgot her Lantus last night. ๐Ÿ˜…๐Ÿ˜ญ Oh well.  My BG hasnโ€™t gotten too high, and Iโ€™m keeping a close eye on it.
In other news, heading off on a road trip through Oregon with my family! ๐Ÿ˜„
Also, I got new glasses. ๐Ÿค“
#diabetes #type1 #typeone #typeonediabetes #type1diabetes #typeonediabadass #insulinaddict #dexcom #partialcyborg #organonmanual #pancreas #pancreaticallychallenged #typeonestrong #spoonie #chronicallyawesome #chronicfighter #chronicallybeautiful #t1d #endocrine #a1c
Hey yโ€™all... guess who forgot her Lantus last night. ๐Ÿ˜…๐Ÿ˜ญ Oh well. My BG hasnโ€™t gotten too high, and Iโ€™m keeping a close eye on it. In other news, heading off on a road trip through Oregon with my family! ๐Ÿ˜„ Also, I got new glasses. ๐Ÿค“ #diabetes  #type1  #typeone  #typeonediabetes  #type1diabetes  #typeonediabadass  #insulinaddict  #dexcom  #partialcyborg  #organonmanual  #pancreas  #pancreaticallychallenged  #typeonestrong  #spoonie  #chronicallyawesome  #chronicfighter  #chronicallybeautiful  #t1d  #endocrine  #a1c 
Came back from vacay & this gem was waiting for me in the mail!! @lovesabrinaashley is helping to let Pretties everywhere know that selfish ainโ€™t always a bad thing! Lovingly packaged with roses & and handwritten note! Canโ€™t wait to rock this in the streets and let it be known!  Holla at this beautiful sista friend for yours!
Came back from vacay & this gem was waiting for me in the mail!! @lovesabrinaashley is helping to let Pretties everywhere know that selfish ainโ€™t always a bad thing! Lovingly packaged with roses & and handwritten note! Canโ€™t wait to rock this in the streets and let it be known! Holla at this beautiful sista friend for yours!
Itโ€™s not all fun though. Our big weekend means Iโ€™m now flaring again. ๐Ÿ˜ฉ #rheumatoidmumstar #rheumatoidarthritis #chronicpain #chronicillness #chronicfatigue #chronicfighter #everythinghurts
Some pics from our visit to an RHS garden yesterday โ˜บ๏ธ. Back to it today- am now on the 3rd phase of Body Beast which means a 50min workout today instead of 30mins. Wasn't a heat wave back when I was doing that before ๐Ÿ˜‚! Pleased with my progress. Tried my sliders yesterday and by doing BB have gone from not really being able to hold a plank on them, to being able to do mountain climbers with good form ๐Ÿ˜Š!! Pretty amazing for my bendy body!

#workout #bodybeast #chestandtris #beachbody #spoonie #chronicillness #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #deathfat #eds #ehlersdanlos #edsathletes #sizeacceptance #fatacceptance #nofatshaming #royalhorticulturalsociety #rhs #harlowcarr #gardens #flowers
Some pics from our visit to an RHS garden yesterday โ˜บ๏ธ. Back to it today- am now on the 3rd phase of Body Beast which means a 50min workout today instead of 30mins. Wasn't a heat wave back when I was doing that before ๐Ÿ˜‚! Pleased with my progress. Tried my sliders yesterday and by doing BB have gone from not really being able to hold a plank on them, to being able to do mountain climbers with good form ๐Ÿ˜Š!! Pretty amazing for my bendy body! #workout  #bodybeast  #chestandtris  #beachbody  #spoonie  #chronicillness  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #deathfat  #eds  #ehlersdanlos  #edsathletes  #sizeacceptance  #fatacceptance  #nofatshaming  #royalhorticulturalsociety  #rhs  #harlowcarr  #gardens  #flowers 
Today was a day of acceptance and forgiveness. Acceptance that it was going to be an extremely painful day, that each step I took was going to be difficult, that each time I breathed in, a part of my body would fire up, as flames entrapping each of my muscles. To that, there was forgiveness. Forgiveness because I didnโ€™t stop, I kept on walking, I didnโ€™t give up during that 50 minute gym session in my pain management program. I didnโ€™t back out, I kept on going. I needed to forgive myself for not giving in, because giving in would be the easier way, the one causing less pain. 
This is me, in my mid morning break, sitting on the hospital chair, being afraid of what would come next. But I survived. But I survived. 
#fibromyalgia #persistentpain #fibrostrong #fibrowarrior #chronicpain #chronicillness #fms #pain #painmanagementprogram #painmanagement #hospital #hospitallife #forgiveness #acceptance #selflove #love #chronicfighter #mobilityissues #disability #disabled
Today was a day of acceptance and forgiveness. Acceptance that it was going to be an extremely painful day, that each step I took was going to be difficult, that each time I breathed in, a part of my body would fire up, as flames entrapping each of my muscles. To that, there was forgiveness. Forgiveness because I didnโ€™t stop, I kept on walking, I didnโ€™t give up during that 50 minute gym session in my pain management program. I didnโ€™t back out, I kept on going. I needed to forgive myself for not giving in, because giving in would be the easier way, the one causing less pain. This is me, in my mid morning break, sitting on the hospital chair, being afraid of what would come next. But I survived. But I survived. #fibromyalgia  #persistentpain  #fibrostrong  #fibrowarrior  #chronicpain  #chronicillness  #fms  #pain  #painmanagementprogram  #painmanagement  #hospital  #hospitallife  #forgiveness  #acceptance  #selflove  #love  #chronicfighter  #mobilityissues  #disability  #disabled 
Photo Credit:  Peggy Nelson
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"When the world says, 'Give up', Hope whispers, 'Try it one more time'." -Unknown
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Many of you may be tired... tired of trying.  Tired of fighting.  Tired of medications not working.  Tired of the long list of diagnoses.  Tired of feeling bad all of the time.  You are struggling hard.
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The world looks at where you are at and what you are going through and whispers to you to give up.  Quit.  Don't fight.  Don't try.  It's not worth it.  You will never get better.  You will always have these struggles... Lies... each one of these are lies.  It is so easy to believe the whispers of negativity when we are unable to see how things are going to change or be different.
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Then, there is a small whisper of hope.  It quietly tells you to keep going.  Don't quit.  Keep trying.  You are worth it.  There will be better days ahead.  These whispers will fuel you to keep going even if it is one baby step at a time.
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So, when the negative words overwhelm you... don't listen.  Instead, try one more time and hold on to hope.
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#worldsaysgiveup #negativethoughts #tiredoffighting #tiredoffeelingbad #struggleisreal #lifeishard #lieswebelieve #whisperofhope #keepgoing #dontquit #keeptrying #betterdaysareahead #youareworthit #babysteps #dontlistentonegativity #focusonthepositive #hope #purpose #meaning #chronicillness #chronicfighter #thehealingfromwithin
Photo Credit: Peggy Nelson . . "When the world says, 'Give up', Hope whispers, 'Try it one more time'." -Unknown . . Many of you may be tired... tired of trying. Tired of fighting. Tired of medications not working. Tired of the long list of diagnoses. Tired of feeling bad all of the time. You are struggling hard. . . The world looks at where you are at and what you are going through and whispers to you to give up. Quit. Don't fight. Don't try. It's not worth it. You will never get better. You will always have these struggles... Lies... each one of these are lies. It is so easy to believe the whispers of negativity when we are unable to see how things are going to change or be different. . . Then, there is a small whisper of hope. It quietly tells you to keep going. Don't quit. Keep trying. You are worth it. There will be better days ahead. These whispers will fuel you to keep going even if it is one baby step at a time. . . So, when the negative words overwhelm you... don't listen. Instead, try one more time and hold on to hope. . . . . . #worldsaysgiveup  #negativethoughts  #tiredoffighting  #tiredoffeelingbad  #struggleisreal  #lifeishard  #lieswebelieve  #whisperofhope  #keepgoing  #dontquit  #keeptrying  #betterdaysareahead  #youareworthit  #babysteps  #dontlistentonegativity  #focusonthepositive  #hope  #purpose  #meaning  #chronicillness  #chronicfighter  #thehealingfromwithin 
Can't fit the dog photobomb and my head ๐Ÿคฃ. It's so humid today. Tried one of The 20s team workouts. It was fun! Now feel like I've been dunked in the sea ๐Ÿ˜‚. Then my daily pilates โ˜บ๏ธ. #workout #cardio #the20s #beachbody #pilates #spoonie #chronicillness #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #deathfat #eds #ehlersdanlos #edsathletes #sizeacceptance #fatacceptance #nofatshaming #schnauzer
Can't fit the dog photobomb and my head ๐Ÿคฃ. It's so humid today. Tried one of The 20s team workouts. It was fun! Now feel like I've been dunked in the sea ๐Ÿ˜‚. Then my daily pilates โ˜บ๏ธ. #workout  #cardio  #the20s  #beachbody  #pilates  #spoonie  #chronicillness  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #deathfat  #eds  #ehlersdanlos  #edsathletes  #sizeacceptance  #fatacceptance  #nofatshaming  #schnauzer 
Hanging out poolside with a good book is great... Iโ€™m not actually big on swimming, but I do enjoy warm weather, sun, and a cold diet drink of some kind.
And, surprisingly enough, the donut I had to celebrate my brotherโ€™s birthday didnโ€™t spike me too horribly. ๐Ÿ˜‚๐Ÿ‘Œ๐Ÿป
#diabetes #type1 #typeone #typeonediabetes #type1diabetes #typeonediabadass #insulinaddict #dexcom #partialcyborg #organonmanual #pancreas #pancreaticallychallenged #typeonestrong #spoonie #chronicallyawesome #chronicfighter #chronicallybeautiful #t1d #endocrine #a1c
Hanging out poolside with a good book is great... Iโ€™m not actually big on swimming, but I do enjoy warm weather, sun, and a cold diet drink of some kind. And, surprisingly enough, the donut I had to celebrate my brotherโ€™s birthday didnโ€™t spike me too horribly. ๐Ÿ˜‚๐Ÿ‘Œ๐Ÿป #diabetes  #type1  #typeone  #typeonediabetes  #type1diabetes  #typeonediabadass  #insulinaddict  #dexcom  #partialcyborg  #organonmanual  #pancreas  #pancreaticallychallenged  #typeonestrong  #spoonie  #chronicallyawesome  #chronicfighter  #chronicallybeautiful  #t1d  #endocrine  #a1c 
So apparently my whiter-than-white skin CAN in fact tan(or itโ€™s just very slightly burnt, which is waaayyy more likely)...
Also, let sites apparently arenโ€™t for me.  I only made it five days, because in the pasty 24 hours Iโ€™ve got the lovely โ€˜no readingsโ€™/โ€˜???โ€™ thrice, which is three too many times for the first week on a sensor.  So I gave up.  Iโ€™m actually up like a full box of sensors because of how often I can push to two weeks, so Iโ€™m not sweating losing this one before itโ€™s time.  Just annoyed.  And subtly spotted.
#diabetes #type1 #typeone #typeonediabetes #type1diabetes #typeonediabadass #insulinaddict #dexcom #partialcyborg #organonmanual #pancreas #pancreaticallychallenged #typeonestrong #spoonie #chronicallyawesome #chronicfighter #chronicallybeautiful #t1d #endocrine #a1c
So apparently my whiter-than-white skin CAN in fact tan(or itโ€™s just very slightly burnt, which is waaayyy more likely)... Also, let sites apparently arenโ€™t for me. I only made it five days, because in the pasty 24 hours Iโ€™ve got the lovely โ€˜no readingsโ€™/โ€˜???โ€™ thrice, which is three too many times for the first week on a sensor. So I gave up. Iโ€™m actually up like a full box of sensors because of how often I can push to two weeks, so Iโ€™m not sweating losing this one before itโ€™s time. Just annoyed. And subtly spotted. #diabetes  #type1  #typeone  #typeonediabetes  #type1diabetes  #typeonediabadass  #insulinaddict  #dexcom  #partialcyborg  #organonmanual  #pancreas  #pancreaticallychallenged  #typeonestrong  #spoonie  #chronicallyawesome  #chronicfighter  #chronicallybeautiful  #t1d  #endocrine  #a1c 
Just as I am...Today....Always a Fighter! Recently I have been sicker than Iโ€™ve been since my Kidney Transplant. I am fighting so hard! I Wonโ€™t Give Up!
#aprilstrong #pkd #pld #survivor #mysecondchancelife #fighting #hyperparathyroidism #partiallysighted #chronicpain #chronsandcolitis #chronicfatigue #anxietywarrior #chronicillnesswarrior #chronicfighter #chronicpainwarrior #chronicallygrateful #chronicallyawesome #singlemomstrong #warriorspirit #myfight #forlife #formychild #nevergiveup #endpkd
Just as I am...Today....Always a Fighter! Recently I have been sicker than Iโ€™ve been since my Kidney Transplant. I am fighting so hard! I Wonโ€™t Give Up! #aprilstrong  #pkd  #pld  #survivor  #mysecondchancelife  #fighting  #hyperparathyroidism  #partiallysighted  #chronicpain  #chronsandcolitis  #chronicfatigue  #anxietywarrior  #chronicillnesswarrior  #chronicfighter  #chronicpainwarrior  #chronicallygrateful  #chronicallyawesome  #singlemomstrong  #warriorspirit  #myfight  #forlife  #formychild  #nevergiveup  #endpkd 
I don't know why my head looks misshapen, I was too busy trying to get the traditional dog photobomb in to notice ๐Ÿ˜‚. T25 Cardio- and I look like someone's taken a hose to me ๐Ÿคฃ. Liked it a lot, I think this is my favourite kind of cardio workout. Dance based workouts use such a lot of my mental energy concentrating on what to do. Others like Shift Shop have moves that are a big strength challenge for me that I'm better off doing steadily and carefully. With some modifications, I could go for it with this one. I ended up working out my own modifications so less jumpy that the full version but more than the modifications given. Worked well ๐Ÿ˜Š. Finished off with a few Pilates style moves I'm now doing daily for my core, hips and knees โ˜บ๏ธ.
#workout #cardio #t25 #beachbody #pilates #spoonie #chronicillness #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #deathfat #eds #ehlersdanlos #edsathletes #sizeacceptance #fatacceptance #nofatshaming #schnauzer
I don't know why my head looks misshapen, I was too busy trying to get the traditional dog photobomb in to notice ๐Ÿ˜‚. T25 Cardio- and I look like someone's taken a hose to me ๐Ÿคฃ. Liked it a lot, I think this is my favourite kind of cardio workout. Dance based workouts use such a lot of my mental energy concentrating on what to do. Others like Shift Shop have moves that are a big strength challenge for me that I'm better off doing steadily and carefully. With some modifications, I could go for it with this one. I ended up working out my own modifications so less jumpy that the full version but more than the modifications given. Worked well ๐Ÿ˜Š. Finished off with a few Pilates style moves I'm now doing daily for my core, hips and knees โ˜บ๏ธ. #workout  #cardio  #t25  #beachbody  #pilates  #spoonie  #chronicillness  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #deathfat  #eds  #ehlersdanlos  #edsathletes  #sizeacceptance  #fatacceptance  #nofatshaming  #schnauzer 
Yep it's Sunday again. Therapeutic ouching ๐Ÿ˜‚, especially the day after leg day! My knees are more stable now thanks to exercises to help my kneecaps track properly, and stopping running I suspect. Which means I can do squats and lunges more properly. Which means "Oh my quad!" ๐Ÿคฃ

#foamroller #foamrolling #spikyball #massageball #stretches #spoonie #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #eds #ehlersdanlos #edsathletes #legday #bodybeast
Yep it's Sunday again. Therapeutic ouching ๐Ÿ˜‚, especially the day after leg day! My knees are more stable now thanks to exercises to help my kneecaps track properly, and stopping running I suspect. Which means I can do squats and lunges more properly. Which means "Oh my quad!" ๐Ÿคฃ #foamroller  #foamrolling  #spikyball  #massageball  #stretches  #spoonie  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #eds  #ehlersdanlos  #edsathletes  #legday  #bodybeast 
Been having some bad withdrawals past few days but feeling pretty better 
On Sunday my family had a nice little cookout and it was nice being with them getting my mind off the pain
Been having some bad withdrawals past few days but feeling pretty better On Sunday my family had a nice little cookout and it was nice being with them getting my mind off the pain
May soon come a day where I face that 1. My body just doesn't respond normally to exercise and 2. No matter how fit I do manage to get, I'll still be ill and 3. My energy could probably be put to better use than working so hard on fitness. But it is not this day! I'm so crap at giving up on things I'm really committed to ๐Ÿ˜‚, and also, what else is there? ๐Ÿค” I just can't give up the dream that one day I'll be fit and that'll mean not feeling so ill all the time and being able to do stuff, like earn money and see friends. But my body cannot be browbeaten into giving me the results I want or think I deserve! I need to face that, if I want to find greater peace and contentment. Self delusion is not positivity and doesn't help create a happy, healthy life.

#workout #fitness #spooniefitness #beachbody #spoonie #chronicillness #chronicfatigue #hypermobility #hypermobilitysyndrome #zebrastrong #chronicfighter #fitfam #noexcuses #eds #ehlersdanlos #edsathletes #positivity #positivethinking #acceptance #explainingnotcomplaining #disability #disabilityawareness #disabilityissues #ableism #healthism #peace #contentment #getreal #honesty #truth
May soon come a day where I face that 1. My body just doesn't respond normally to exercise and 2. No matter how fit I do manage to get, I'll still be ill and 3. My energy could probably be put to better use than working so hard on fitness. But it is not this day! I'm so crap at giving up on things I'm really committed to ๐Ÿ˜‚, and also, what else is there? ๐Ÿค” I just can't give up the dream that one day I'll be fit and that'll mean not feeling so ill all the time and being able to do stuff, like earn money and see friends. But my body cannot be browbeaten into giving me the results I want or think I deserve! I need to face that, if I want to find greater peace and contentment. Self delusion is not positivity and doesn't help create a happy, healthy life. #workout  #fitness  #spooniefitness  #beachbody  #spoonie  #chronicillness  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #eds  #ehlersdanlos  #edsathletes  #positivity  #positivethinking  #acceptance  #explainingnotcomplaining  #disability  #disabilityawareness  #disabilityissues  #ableism  #healthism  #peace  #contentment  #getreal  #honesty  #truth 
I for one am very thankful for #TheNHS  From day 1, it has been there for me, helped me through all of my life, continuing to help me even when the EDS throws a curve ball and to enable me to be the best me that I can be me by providing me with services/treatments/tests etc that I need. In the last few months, thereโ€™s not been a week where I havenโ€™t had a visit to my local hospital #FGH whether itโ€™s tests (which Iโ€™ve had to check my heart issues) or Hydrotherapy, and I still need to make a visit about my pelvic/hip area when I havenโ€™t got my other appointments. So if it wasnโ€™t for #TheNHS, I wouldnโ€™t be able to be as well as I can be.  Happy 70th Birthday NHS!! ๐ŸŽ‰๐ŸŽˆโค๏ธ Ps this is taken from my fb profile.  #EhlersDanlosSyndrome #ChronicFighter #EDSAwareness
I for one am very thankful for #TheNHS  From day 1, it has been there for me, helped me through all of my life, continuing to help me even when the EDS throws a curve ball and to enable me to be the best me that I can be me by providing me with services/treatments/tests etc that I need. In the last few months, thereโ€™s not been a week where I havenโ€™t had a visit to my local hospital #FGH  whether itโ€™s tests (which Iโ€™ve had to check my heart issues) or Hydrotherapy, and I still need to make a visit about my pelvic/hip area when I havenโ€™t got my other appointments. So if it wasnโ€™t for #TheNHS , I wouldnโ€™t be able to be as well as I can be. Happy 70th Birthday NHS!! ๐ŸŽ‰๐ŸŽˆโค๏ธ Ps this is taken from my fb profile. #EhlersDanlosSyndrome  #ChronicFighter  #EDSAwareness 
Yep I'm still here, and still getting beasty ๐Ÿ˜‚! Being ditched by my coach shook me a bit but I'm not going to let it derail me. I'd like to say though- if you're involved in health and fitness and want to help people, please don't do it by expecting to come sweeping in and fix someone's life with your diet and exercise plan. And then get angry with them when you don't get the results YOU wanted, call them "negative" and strop off. Also, being honest about what your own body can do, and sharing personal experiences for the purposes of awareness and encouragement is not negativity, and for an able bodied person to say that to a chronically ill or disabled person, well that's really out of order. Please treat people as equals and as fellow human beings, don't make someone your project, and don't patronise people or assume that they don't understand even the basics of how to care for their own body. Especially if you have no qualifications or training! Anyhow! The abs workout is getting more doable โ˜บ๏ธ. So hot for the evil Beast Cardio today, but done it!

#workout #bodybeast #cardio #beastcardio #beastabs #beachbody #spoonie #chronicillness #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #eds #ehlersdanlos #edsathletes #positivity #positivethinking #explainingnotcomplaining #disability #disabilityawareness #disabilityissues #checkyourprivilege #ableism
Yep I'm still here, and still getting beasty ๐Ÿ˜‚! Being ditched by my coach shook me a bit but I'm not going to let it derail me. I'd like to say though- if you're involved in health and fitness and want to help people, please don't do it by expecting to come sweeping in and fix someone's life with your diet and exercise plan. And then get angry with them when you don't get the results YOU wanted, call them "negative" and strop off. Also, being honest about what your own body can do, and sharing personal experiences for the purposes of awareness and encouragement is not negativity, and for an able bodied person to say that to a chronically ill or disabled person, well that's really out of order. Please treat people as equals and as fellow human beings, don't make someone your project, and don't patronise people or assume that they don't understand even the basics of how to care for their own body. Especially if you have no qualifications or training! Anyhow! The abs workout is getting more doable โ˜บ๏ธ. So hot for the evil Beast Cardio today, but done it! #workout  #bodybeast  #cardio  #beastcardio  #beastabs  #beachbody  #spoonie  #chronicillness  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #eds  #ehlersdanlos  #edsathletes  #positivity  #positivethinking  #explainingnotcomplaining  #disability  #disabilityawareness  #disabilityissues  #checkyourprivilege  #ableism 
Happy Independence Day!!! ๐ŸŽ†๐ŸŽ‡๐Ÿ‡บ๐Ÿ‡ธ Blood sugars have been all over the place today, but I wonโ€™t let it ruin the day.  I will enjoy myself, and enjoy sipping my Coke Zero while waiting for my levels to come down to normal. ๐Ÿ™ƒ
#diabetes #type1 #typeone #typeonediabetes #type1diabetes #typeonediabadass #insulinaddict #dexcom #partialcyborg #organonmanual #pancreas #pancreaticallychallenged #typeonestrong #spoonie #chronicallyawesome #chronicfighter #chronicallybeautiful #t1d #endocrine #a1c
Happy Independence Day!!! ๐ŸŽ†๐ŸŽ‡๐Ÿ‡บ๐Ÿ‡ธ Blood sugars have been all over the place today, but I wonโ€™t let it ruin the day. I will enjoy myself, and enjoy sipping my Coke Zero while waiting for my levels to come down to normal. ๐Ÿ™ƒ #diabetes  #type1  #typeone  #typeonediabetes  #type1diabetes  #typeonediabadass  #insulinaddict  #dexcom  #partialcyborg  #organonmanual  #pancreas  #pancreaticallychallenged  #typeonestrong  #spoonie  #chronicallyawesome  #chronicfighter  #chronicallybeautiful  #t1d  #endocrine  #a1c 
More from today ๐Ÿ˜‹ #family
More from today ๐Ÿ˜‹ #family 
A few pictures from today's hanging at the yard ๐Ÿ˜‹ its weird light outside so the pictures isnt that good but I still like some of them ๐Ÿ™‚ #family
A few pictures from today's hanging at the yard ๐Ÿ˜‹ its weird light outside so the pictures isnt that good but I still like some of them ๐Ÿ™‚ #family 
Today turned out to be a migraine day. I've just been resting and sleeping until now. Watched the last episode of The handmaidens tale and is sad it's so long until next season ๐Ÿ˜” now it's time to make some easy food and try to eat something ๐Ÿ˜ด๐Ÿ˜ท #migrainesucks
Today turned out to be a migraine day. I've just been resting and sleeping until now. Watched the last episode of The handmaidens tale and is sad it's so long until next season ๐Ÿ˜” now it's time to make some easy food and try to eat something ๐Ÿ˜ด๐Ÿ˜ท #migrainesucks 
โ€œI canโ€™t tell you when, but I can promise you it will get better, it will get easier, and it will all be worthwhile. Just promise me you wonโ€™t ever give up.โ€ โ€“ Unknown.  #childhoodphoto #inspirationalquotes #fibromyalgia #costchondritis #degenerativediscdisease #arthritis #inflammation #pituitaryadenoma #ptsd #migraine #majordepressivedisorder #adhd #spoonie #spooniestrong #spoonieencouragement #spooniewarrior #fibromyalgiawarrior #chronicpain #chronicillness #chronicillnessencouragement #chronicpainwarrior #chronicfatigue #chronicfighter #awareness #chronicillnessawareness
โ€œI canโ€™t tell you when, but I can promise you it will get better, it will get easier, and it will all be worthwhile. Just promise me you wonโ€™t ever give up.โ€ โ€“ Unknown. #childhoodphoto  #inspirationalquotes  #fibromyalgia  #costchondritis  #degenerativediscdisease  #arthritis  #inflammation  #pituitaryadenoma  #ptsd  #migraine  #majordepressivedisorder  #adhd  #spoonie  #spooniestrong  #spoonieencouragement  #spooniewarrior  #fibromyalgiawarrior  #chronicpain  #chronicillness  #chronicillnessencouragement  #chronicpainwarrior  #chronicfatigue  #chronicfighter  #awareness  #chronicillnessawareness 
Two of those I love the most ๐Ÿ’“ the third one didn't want to be in a  separate picture today ๐Ÿ˜Œ #love
Two of those I love the most ๐Ÿ’“ the third one didn't want to be in a separate picture today ๐Ÿ˜Œ #love 
Some photos from our water and cookie break in the forest ๐Ÿ˜ #nikond610
Some photos from our water and cookie break in the forest ๐Ÿ˜ #nikond610 
Dexter just had to look like Gollum ๐Ÿ™„๐Ÿคฃ #ohyou
Dexter just had to look like Gollum ๐Ÿ™„๐Ÿคฃ #ohyou 
People in Gnesta might think I'm out of my mind walking down the street with my two dogs... and a cat ๐Ÿ˜‚ for my defence we just came out of the woods and I felt like letting Meeko walk as long as he actually walked. He stoped more frequently further down the road so I did put him in his bag after a while ๐Ÿ˜…๐Ÿฑ #walkingthecat
People in Gnesta might think I'm out of my mind walking down the street with my two dogs... and a cat ๐Ÿ˜‚ for my defence we just came out of the woods and I felt like letting Meeko walk as long as he actually walked. He stoped more frequently further down the road so I did put him in his bag after a while ๐Ÿ˜…๐Ÿฑ #walkingthecat 
โ€ข DRร˜MME & VISIONER โ€ข โ˜€๏ธ๐Ÿ‘Œ๐Ÿป๐Ÿ’•
Nรฅr Liva er sendt til mormor og morfar pรฅ Fyn, kan hverdagshelten og jeg tage ud og se solnedgangen og snakke og drรธmmeโ˜€๏ธโ™ฅ๏ธ Sรฅ det gjorde vi i aftes๐Ÿ˜ƒ๐Ÿ‘Œ๐Ÿป selvom jeg er meget trรฆt efter alt, der er sket den sidste tid๐Ÿ˜…๐Ÿ˜ด
Mรฅ du ogsรฅ kunne nyde gaverne pรฅ din vej๐Ÿ’‹
#tiredbutblessed #creation #sunset #dreaming #mymanandme #secretspot #visitroskilde #giftsfromgod #grateful #sofiessofa
โ€ข DRร˜MME & VISIONER โ€ข โ˜€๏ธ๐Ÿ‘Œ๐Ÿป๐Ÿ’• Nรฅr Liva er sendt til mormor og morfar pรฅ Fyn, kan hverdagshelten og jeg tage ud og se solnedgangen og snakke og drรธmmeโ˜€๏ธโ™ฅ๏ธ Sรฅ det gjorde vi i aftes๐Ÿ˜ƒ๐Ÿ‘Œ๐Ÿป selvom jeg er meget trรฆt efter alt, der er sket den sidste tid๐Ÿ˜…๐Ÿ˜ด Mรฅ du ogsรฅ kunne nyde gaverne pรฅ din vej๐Ÿ’‹ #tiredbutblessed  #creation  #sunset  #dreaming  #mymanandme  #secretspot  #visitroskilde  #giftsfromgod  #grateful  #sofiessofa 
When you can stay on the couch AND play with your dogs ๐Ÿ˜ #badevening
When you can stay on the couch AND play with your dogs ๐Ÿ˜ #badevening 
Sat on the yard a while today, first with Meeko who was happy to come outside. He wandered around and kept close to Stina who also was outside. I'm so happy at least the cats around here isn't aggressive ๐Ÿ˜ #outdoorcat
Sat on the yard a while today, first with Meeko who was happy to come outside. He wandered around and kept close to Stina who also was outside. I'm so happy at least the cats around here isn't aggressive ๐Ÿ˜ #outdoorcat 
When you're resting and wakes up by the pup jumping up throwing a toy in your face... ๐Ÿ™„๐Ÿ˜ #cuddles
When you're resting and wakes up by the pup jumping up throwing a toy in your face... ๐Ÿ™„๐Ÿ˜ #cuddles 
ใ€‹ใ€‹Hi,ย My name is Kharlybia Roane I am 22 and I was born with Sickle Cell Anemia. Sickle Cell is a blood disorder the changes the shape of red blood cells into the size of a sickle. The sickled cells trap normal red blood cells causing lack of oxygen to the brain. This than causes severe pain in certain areas of the body. Although Iโ€™ve lived with this illness all my life Iโ€™ve learned to turn my disadvantage into my advantages in life. I could let this illness get the best of me but Iโ€™m stronger than that. At the age of 16 I decided to start modeling and because of that Iโ€™ve had the opportunity to walk in New York and Paris Fashion week. I believe itโ€™s important for those living with chronic illnesses to be more than just their disease. Finding hobbies or things to break the negative stereotype about your chronic illness is important. To see more of my journey please follow my Instagram @kharlybia.naomi
#sicklecellanemia #chronicillness #chronicrealness #invisibleillness #spoonie #spooniesisters #chronicwarrior #chronicfighter #model #fashionweek #sicklecell #anemia
ใ€‹ใ€‹Hi,ย My name is Kharlybia Roane I am 22 and I was born with Sickle Cell Anemia. Sickle Cell is a blood disorder the changes the shape of red blood cells into the size of a sickle. The sickled cells trap normal red blood cells causing lack of oxygen to the brain. This than causes severe pain in certain areas of the body. Although Iโ€™ve lived with this illness all my life Iโ€™ve learned to turn my disadvantage into my advantages in life. I could let this illness get the best of me but Iโ€™m stronger than that. At the age of 16 I decided to start modeling and because of that Iโ€™ve had the opportunity to walk in New York and Paris Fashion week. I believe itโ€™s important for those living with chronic illnesses to be more than just their disease. Finding hobbies or things to break the negative stereotype about your chronic illness is important. To see more of my journey please follow my Instagram @kharlybia.naomi #sicklecellanemia  #chronicillness  #chronicrealness  #invisibleillness  #spoonie  #spooniesisters  #chronicwarrior  #chronicfighter  #model  #fashionweek  #sicklecell  #anemia 
More beachfun ๐Ÿ˜Ž #nikond610
Fun at the beach ๐Ÿ˜Ž 
I who didn't think I would do much bathing did very much bathing ๐Ÿ˜‚ but first I took some photos! #nikond610
Fun at the beach ๐Ÿ˜Ž I who didn't think I would do much bathing did very much bathing ๐Ÿ˜‚ but first I took some photos! #nikond610 
The heat is finally BACK (it's way to hot with 32 degrees ๐Ÿ˜‚) so we are going to the beach with Anna, Elin and the kids! I finally get to use my new bikini ๐Ÿ˜Ž #bathingweather
The heat is finally BACK (it's way to hot with 32 degrees ๐Ÿ˜‚) so we are going to the beach with Anna, Elin and the kids! I finally get to use my new bikini ๐Ÿ˜Ž #bathingweather 
Kimmy the ray of sunshine ๐Ÿ˜ #nikond610
Kimmy the ray of sunshine ๐Ÿ˜ #nikond610 
Kimmy the ray of sunshine ๐Ÿ˜๐ŸŒž #nikond610
Kimmy the ray of sunshine ๐Ÿ˜๐ŸŒž #nikond610 
ใ€‹ใ€‹Today is PTSD Awareness Day
Slideโฌ…๏ธโžก๏ธ #ptsd #ptsdawareness #posttraumatic #chronicillness #invisbleillness #chronicrealness #anxiety #depression #cope #chronicfighter #warrior #support #wounds #strength
Lunch with this fellow and his mother after taking some photos ๐Ÿ˜Ž #lunch
Lunch with this fellow and his mother after taking some photos ๐Ÿ˜Ž #lunch 
Breakfast done, now time to go out in the beautiful weather to so some pgotography ๐Ÿ˜Ž #goodmorning
Breakfast done, now time to go out in the beautiful weather to so some pgotography ๐Ÿ˜Ž #goodmorning 
I donโ€™t know who made that big hole mommy I really donโ€™t!! ๐Ÿคท๐Ÿปโ€โ™€๏ธ ๐Ÿคฆ๐Ÿปโ€โ™€๏ธ hope you are having a fabulous Tuesday!! We WoofMew โœจ๐Ÿพ๐Ÿ’›๐Ÿพโœจ
I donโ€™t know who made that big hole mommy I really donโ€™t!! ๐Ÿคท๐Ÿปโ€โ™€๏ธ ๐Ÿคฆ๐Ÿปโ€โ™€๏ธ hope you are having a fabulous Tuesday!! We WoofMew โœจ๐Ÿพ๐Ÿ’›๐Ÿพโœจ
When youโ€™re trying to build up the motivation to run but you really just want to lie around doing nothing and then your low alert goes off...
#diabetes #type1 #typeone #typeonediabetes #type1diabetes #typeonediabadass #insulinaddict #dexcom #partialcyborg #organonmanual #pancreas #pancreaticallychallenged #typeonestrong #spoonie #chronicallyawesome #chronicfighter #chronicallybeautiful #t1d #endocrine #a1c #justdiabetesthings
*distant screaming*
...yay... I am at a little over a week with this sensor, so I might just swap it out, but I can usually get one to last closer to two weeks.  Oh well.  As long as I get at least a week in, Iโ€™m in the clear. ๐Ÿ˜Š
#diabetes #type1 #typeone #typeonediabetes #type1diabetes #typeonediabadass #insulinaddict #dexcom #partialcyborg #organonmanual #pancreas #pancreaticallychallenged #typeonestrong #spoonie #chronicallyawesome #chronicfighter #chronicallybeautiful #t1d #endocrine #a1c
*distant screaming* ...yay... I am at a little over a week with this sensor, so I might just swap it out, but I can usually get one to last closer to two weeks. Oh well. As long as I get at least a week in, Iโ€™m in the clear. ๐Ÿ˜Š #diabetes  #type1  #typeone  #typeonediabetes  #type1diabetes  #typeonediabadass  #insulinaddict  #dexcom  #partialcyborg  #organonmanual  #pancreas  #pancreaticallychallenged  #typeonestrong  #spoonie  #chronicallyawesome  #chronicfighter  #chronicallybeautiful  #t1d  #endocrine  #a1c 
Meeko and I planned alone time this morning but ended up in a cat meeting. There were Meeko, Anna's cat Stina and two other cats just staring at each other, completely calm. So thankful that at least the cats is not aggressive towards each other ๐Ÿ˜‚๐Ÿ˜ #cats
Meeko and I planned alone time this morning but ended up in a cat meeting. There were Meeko, Anna's cat Stina and two other cats just staring at each other, completely calm. So thankful that at least the cats is not aggressive towards each other ๐Ÿ˜‚๐Ÿ˜ #cats 
Today I was out on the yard with some neighbours and tried my new camera some more. It went fine but I really have to work on my focus in action pictures ๐Ÿ˜… #nikond610
Today I was out on the yard with some neighbours and tried my new camera some more. It went fine but I really have to work on my focus in action pictures ๐Ÿ˜… #nikond610 
Time to sleep ๐Ÿ˜ด #goodnight
Went to bed around 02 yesterday, I was all caught up in my project. But I finished and I'm happy with it! It's a church made in to a home for my vampire family with Skyrim names ๐Ÿ˜‡ today I woke up super dizzy, don't know why, so I guess we'll just take it easy hoping for it to pass. ๐Ÿ˜Œ #thesims4
Went to bed around 02 yesterday, I was all caught up in my project. But I finished and I'm happy with it! It's a church made in to a home for my vampire family with Skyrim names ๐Ÿ˜‡ today I woke up super dizzy, don't know why, so I guess we'll just take it easy hoping for it to pass. ๐Ÿ˜Œ #thesims4 
ใ€‹ใ€‹Hello everyone! My name is Emily, and Iโ€™m just your average 14-year-old girl with Complex Regional Pain Syndrome. โ€ข

My story began in September 2013, when I was doing a solo in an Irish dancing display. I fell and fractured my 5th metatarsal, but the fracture was missed for over a year. I developed symptoms of CRPS a few months after my accident, and I was finally diagnosed in June 2015. โ€ข

In November 2015, I was hospitalised for a month to learn to walk again, and to get my pain under control. โ€ข

Since then, I have been diagnosed with Full Body Crps, Restless Leg Syndrome, Osteoporosis, HSD, POTS, GERD, anxiety and depression. โ€ข

I fight everyday to try and be a normal 14 year old. Please please please remember that your illnesses and medical devices do not define you, but your strength and courage doesย ๐Ÿ’“

#crps #complexregionalpainsyndrome
#restlesslegsyndrome
#osteoporosis #hsd #pots #gerd #anxiety #depression #chronicillness #chronicrealness #chronicwarrior #chronicfighter #youngandsick #pain #courage
ใ€‹ใ€‹Hello everyone! My name is Emily, and Iโ€™m just your average 14-year-old girl with Complex Regional Pain Syndrome. โ€ข My story began in September 2013, when I was doing a solo in an Irish dancing display. I fell and fractured my 5th metatarsal, but the fracture was missed for over a year. I developed symptoms of CRPS a few months after my accident, and I was finally diagnosed in June 2015. โ€ข In November 2015, I was hospitalised for a month to learn to walk again, and to get my pain under control. โ€ข Since then, I have been diagnosed with Full Body Crps, Restless Leg Syndrome, Osteoporosis, HSD, POTS, GERD, anxiety and depression. โ€ข I fight everyday to try and be a normal 14 year old. Please please please remember that your illnesses and medical devices do not define you, but your strength and courage doesย ๐Ÿ’“ #crps  #complexregionalpainsyndrome  #restlesslegsyndrome  #osteoporosis  #hsd  #pots  #gerd  #anxiety  #depression  #chronicillness  #chronicrealness  #chronicwarrior  #chronicfighter  #youngandsick  #pain  #courage 
A walk in the woods is a part of Neas rehab and that's nice as it's one of the things we love the most! 20 minutes work up, such a patience test for all of us as Nea have to walk in slow walk all that time but we made it ๐Ÿ˜‚ I brought the camera but didn't take any pictures as I forgot the mosquito spray so had a hard time as it was. It feels like I won't be able to play in peace tonight due to all the bites ๐Ÿ˜… now Nea is stretched and I'm back to ts4 ๐Ÿ˜Ž #walking
A walk in the woods is a part of Neas rehab and that's nice as it's one of the things we love the most! 20 minutes work up, such a patience test for all of us as Nea have to walk in slow walk all that time but we made it ๐Ÿ˜‚ I brought the camera but didn't take any pictures as I forgot the mosquito spray so had a hard time as it was. It feels like I won't be able to play in peace tonight due to all the bites ๐Ÿ˜… now Nea is stretched and I'm back to ts4 ๐Ÿ˜Ž #walking 
Today I've finally got to play ts4 seasons! I stayed up way to late yesterday, playing Skyrim and at 02 I decided to chat with EA support. We fixed the problem and I'm so happy ๐Ÿ˜ now I'm building and creating as I have been planning for weeks, waiting for the update and seasons to be released. The animals are sleeping and I'm hoping for a walk later ๐Ÿ˜Š I've made potato salad with to much garlic, it's standing in the fridge waiting for dinner to be made ๐Ÿ˜ƒ #finally
Today I've finally got to play ts4 seasons! I stayed up way to late yesterday, playing Skyrim and at 02 I decided to chat with EA support. We fixed the problem and I'm so happy ๐Ÿ˜ now I'm building and creating as I have been planning for weeks, waiting for the update and seasons to be released. The animals are sleeping and I'm hoping for a walk later ๐Ÿ˜Š I've made potato salad with to much garlic, it's standing in the fridge waiting for dinner to be made ๐Ÿ˜ƒ #finally 
The day started with plans; grocery shopping and play ts4 as the new update and seasons is realised today. But somehow seasons won't install on my computer right now (๐Ÿ˜ญ๐Ÿ’”). Anna asked if I wanted to eat with them so I went up to her family and ate midsummer dinner and cake, we headed out a while and then I went home to cuddle Nea and Meeko who had stayed home. After a while I made my brownies with strawberries, got a glass of wine and have been playing Skyrim since ๐Ÿ˜Ž #happymidsummer
The day started with plans; grocery shopping and play ts4 as the new update and seasons is realised today. But somehow seasons won't install on my computer right now (๐Ÿ˜ญ๐Ÿ’”). Anna asked if I wanted to eat with them so I went up to her family and ate midsummer dinner and cake, we headed out a while and then I went home to cuddle Nea and Meeko who had stayed home. After a while I made my brownies with strawberries, got a glass of wine and have been playing Skyrim since ๐Ÿ˜Ž #happymidsummer 
Come along now body - I have plans & we are roughly 4 months behind schedule. ๐Ÿ™ƒ๐Ÿ˜ท๐Ÿ˜ช
Come along now body - I have plans & we are roughly 4 months behind schedule. ๐Ÿ™ƒ๐Ÿ˜ท๐Ÿ˜ช
I love snapchat filters... why? Because they hide chronic illness. They hide the tired eyes, the bags, the wrinkles, the breakouts, they even mask the pain. Looking at this pic you wouldn't know that there was shooting pains in my forearms, stabbing aches in my neck and back, numbness in my feet and toes and tingling in my legs. You wouldn't notice that I was extremely nauseous, you wouldn't notice that I was just a moment away from giving it all up. Snapchat filters are great. I don't have to worry about people saying I look like death because the filter gives me colour, 10 hours restful sleep and zero pain etc.
I love snapchat filters... why? Because they hide chronic illness. They hide the tired eyes, the bags, the wrinkles, the breakouts, they even mask the pain. Looking at this pic you wouldn't know that there was shooting pains in my forearms, stabbing aches in my neck and back, numbness in my feet and toes and tingling in my legs. You wouldn't notice that I was extremely nauseous, you wouldn't notice that I was just a moment away from giving it all up. Snapchat filters are great. I don't have to worry about people saying I look like death because the filter gives me colour, 10 hours restful sleep and zero pain etc.