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#chronicfatiguesyndrome medias

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Looking dubious because I'm heading out on a dog walk & feel like utter shit ๐Ÿค” But our thinking is I can spend all day recovering tomorrow, as the weather means it's unlikely a walk would be an option anyway! Apparently the storm's supposed to be really screwy for chronic #migraine sufferers too, so I'm not planning *anything* tomorrow!! I'm in a lot of pain, but the painkillers should kick in soon, & then we're good to go ๐Ÿ˜Œ 2nd pic is a hat I knitted, my first in the chunky grey wool...I really like it! Also it kinda looks like my eyes are legit bruised in that pic, but nah it's just the exhaustion ๐Ÿ˜‚
#spoonie #disabled #disability #chronicpain #POTSsyndrome #dysautonomia #hypermobile #actuallyautistic #spd #chronicpain #chronicfatigue #chronicfatiguesyndrome #myalgicencephalomyelitis  #chronicallyill #chronicillness #nonbinary #transgender #trans #genderqueer #queer
Looking dubious because I'm heading out on a dog walk & feel like utter shit ๐Ÿค” But our thinking is I can spend all day recovering tomorrow, as the weather means it's unlikely a walk would be an option anyway! Apparently the storm's supposed to be really screwy for chronic #migraine  sufferers too, so I'm not planning *anything* tomorrow!! I'm in a lot of pain, but the painkillers should kick in soon, & then we're good to go ๐Ÿ˜Œ 2nd pic is a hat I knitted, my first in the chunky grey wool...I really like it! Also it kinda looks like my eyes are legit bruised in that pic, but nah it's just the exhaustion ๐Ÿ˜‚ #spoonie  #disabled  #disability  #chronicpain  #POTSsyndrome  #dysautonomia  #hypermobile  #actuallyautistic  #spd  #chronicpain  #chronicfatigue  #chronicfatiguesyndrome  #myalgicencephalomyelitis  #chronicallyill  #chronicillness  #nonbinary  #transgender  #trans  #genderqueer  #queer 
The year was 2001. I just got married and was so excited about the future. Yet that nagging feeling wouldnโ€™t go away. What if he left me because I wasnโ€™t beautiful enough. Because of my deformity. So, I took the plunge and had the surgery. I got a breast implant in one of my breasts to correct something that I viewed as hideous. I was ashamed. I wasnโ€™t perfect. But this would fix everything and make me happier. Right?
:
My husband said I didnโ€™t have to do it. He loved me anyway I came. But I was so insecure about how I looked that I decided to have surgery to correct my flaw.
:
They said it was safe. It was a new kind of implant- part saline, part silicone. I was even part of a study.
:
But it didnโ€™t make me feel more beautiful or worthy. In the end I still didnโ€™t like how I looked. I actually regretted having the surgery because I often had pain in that area and numbness all the time. Too late to turn back.
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Then I listened to the Medical Medium radio show yesterday and wasnโ€™t happy at all with what I heard. In the back of my mind I knew the truth, but never wanted to face it.
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Implants are unhealthy for the body. They are after all a foreign object and are seen as such by the body. Implants are not tested throughly enough and actually contain metals in the solution. They off-gas as well which is not good at all.
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Did my implant cause my eczema, POTs symptoms, nausea, dizziness, tightness in my chest, chronic fatigue? Yes and no. The out gasing and heavy metals from the implant is food for viruses which can exacerbate any condition. The viruses in the body cause the illness. The implants create food for them.
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So, am I going to have the implant removed? Not now. When I get stronger. Just not yet. So, what am I going to do? Follow the anti-virtual guidelines in the Medical Medium protocol- zinc, Ester C, B-12, Cats Claw, Lemon Balm...
:
I have learned that Iโ€™m beautiful just the way God made me. And so are you. Breast implants are dangerous and not worth the risk of you getting sick. Your health is EVERYTHING. If you are thinking of getting breast implants- DONโ€™T. Itโ€™s not worth the risk. Please share my story and pass this message on. โค๏ธ
The year was 2001. I just got married and was so excited about the future. Yet that nagging feeling wouldnโ€™t go away. What if he left me because I wasnโ€™t beautiful enough. Because of my deformity. So, I took the plunge and had the surgery. I got a breast implant in one of my breasts to correct something that I viewed as hideous. I was ashamed. I wasnโ€™t perfect. But this would fix everything and make me happier. Right? : My husband said I didnโ€™t have to do it. He loved me anyway I came. But I was so insecure about how I looked that I decided to have surgery to correct my flaw. : They said it was safe. It was a new kind of implant- part saline, part silicone. I was even part of a study. : But it didnโ€™t make me feel more beautiful or worthy. In the end I still didnโ€™t like how I looked. I actually regretted having the surgery because I often had pain in that area and numbness all the time. Too late to turn back. : Then I listened to the Medical Medium radio show yesterday and wasnโ€™t happy at all with what I heard. In the back of my mind I knew the truth, but never wanted to face it. : Implants are unhealthy for the body. They are after all a foreign object and are seen as such by the body. Implants are not tested throughly enough and actually contain metals in the solution. They off-gas as well which is not good at all. : Did my implant cause my eczema, POTs symptoms, nausea, dizziness, tightness in my chest, chronic fatigue? Yes and no. The out gasing and heavy metals from the implant is food for viruses which can exacerbate any condition. The viruses in the body cause the illness. The implants create food for them. : So, am I going to have the implant removed? Not now. When I get stronger. Just not yet. So, what am I going to do? Follow the anti-virtual guidelines in the Medical Medium protocol- zinc, Ester C, B-12, Cats Claw, Lemon Balm... : I have learned that Iโ€™m beautiful just the way God made me. And so are you. Breast implants are dangerous and not worth the risk of you getting sick. Your health is EVERYTHING. If you are thinking of getting breast implants- DONโ€™T. Itโ€™s not worth the risk. Please share my story and pass this message on. โค๏ธ
Went for a walk earlier and it was blissful. I even killed my lungs running up a hill because I actually had some energy! (Chronic Fatigue is weird... if you have any energy at all you do mad shit because you can.) #walk #run #woods #trees #stokewoods #devon #woodland #chronicfatigue #cfs #chronicfatiguesyndrome #madshit #chronicillness #tired #gotsomeenergy #leaves #tree #treestuff #light
In the blink of an eye, your life can change due to disease or a illness. Your goals, dreams, and priorities are forced to take different turns.
You are grateful for the little things 
And worry less about the big things.
You leave behind the history of yesterday, and determine how you will use todayโ€™s energy.๐Ÿ’š๐ŸŒฟโœจ
.
.
#collectmemories #traveling #bucketlist #photographer #chronicillness #chronicpain #chronicfatiguesyndrome #chronicfatigue #lymedisease#lymediseaseawareness 
#lymewarrior #lupus#lupusawareness 
#freespirit #naturephotography #nature #naturelovers #explorer #natureheals #pickoftheday #awareness #endometriosis #endometriosisawareness #connecticut #meriden#travelpost#travelblogger #dominican
In the blink of an eye, your life can change due to disease or a illness. Your goals, dreams, and priorities are forced to take different turns. You are grateful for the little things And worry less about the big things. You leave behind the history of yesterday, and determine how you will use todayโ€™s energy.๐Ÿ’š๐ŸŒฟโœจ . . #collectmemories  #traveling  #bucketlist  #photographer  #chronicillness  #chronicpain  #chronicfatiguesyndrome  #chronicfatigue  #lymedisease #lymediseaseawareness  #lymewarrior  #lupus #lupusawareness  #freespirit  #naturephotography  #nature  #naturelovers  #explorer  #natureheals  #pickoftheday  #awareness  #endometriosis  #endometriosisawareness  #connecticut  #meriden #travelpost #travelblogger  #dominican 
After weeks of healing progress, I've hit my first big flare up. My throat and glands are so swollen that I can't talk for more than a minute. I'm exhausted and achy. My stomach is in knots.
.
Flare ups are scary. They feel like they're never going to end. But I know this one will. I know that I'm still healing, even if it isn't linear. I know that I am even now able to do things that I couldn't do before.
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I choose gratitude over disappointment. I'm grateful that I can read books again. I'm grateful that I can go up & down the stairs. I'm grateful that I can see the moon from my bed. I'm grateful for a husband who never stops caring for me. I'm grateful for ALL THE TEA. I'm grateful that I'm healing. Even when it looks like this.
After weeks of healing progress, I've hit my first big flare up. My throat and glands are so swollen that I can't talk for more than a minute. I'm exhausted and achy. My stomach is in knots. . Flare ups are scary. They feel like they're never going to end. But I know this one will. I know that I'm still healing, even if it isn't linear. I know that I am even now able to do things that I couldn't do before. . I choose gratitude over disappointment. I'm grateful that I can read books again. I'm grateful that I can go up & down the stairs. I'm grateful that I can see the moon from my bed. I'm grateful for a husband who never stops caring for me. I'm grateful for ALL THE TEA. I'm grateful that I'm healing. Even when it looks like this.
Have you been seeing doctor after doctor trying to find out why you have such extreme fatigue? โ€ข
Have you been told that your blood tests came back normal? โ€ข
Did your doctor then give you a diagnosis of chronic fatigue syndrome and tell you that you will have to live with it for the rest of your life? โ€ข
If so, then you are no doubt one of the millions of frustrated patients who were left feeling hopeless. But take heart, because it is very likely that your real diagnosis was overlooked.
โ€ข
A common cause of Chronic Fatigue Syndrome is Hypothyroidism!
โ€ข
With hypothyroidism (a sluggish Thyroid), your metabolism slows down and you donโ€™t have the energy you need to function well, and the resulting fatigue is a very common symptom.
โ€ข
By optimizing your thyroid hormone levels (and getting rid of other energy-snatching culprits ๐Ÿ˜‰), you can finally be Vibrant and Energetic again! 
#chronicfatiguesyndrome #thyroid #alwaystired #noenergy #fatigue #extremefatigue #sleepy #lackofenergy #misdiagnosed #misdiagnosis #hypothyroidism #optimal #vibrant #energy
Have you been seeing doctor after doctor trying to find out why you have such extreme fatigue? โ€ข Have you been told that your blood tests came back normal? โ€ข Did your doctor then give you a diagnosis of chronic fatigue syndrome and tell you that you will have to live with it for the rest of your life? โ€ข If so, then you are no doubt one of the millions of frustrated patients who were left feeling hopeless. But take heart, because it is very likely that your real diagnosis was overlooked. โ€ข A common cause of Chronic Fatigue Syndrome is Hypothyroidism! โ€ข With hypothyroidism (a sluggish Thyroid), your metabolism slows down and you donโ€™t have the energy you need to function well, and the resulting fatigue is a very common symptom. โ€ข By optimizing your thyroid hormone levels (and getting rid of other energy-snatching culprits ๐Ÿ˜‰), you can finally be Vibrant and Energetic again! #chronicfatiguesyndrome  #thyroid  #alwaystired  #noenergy  #fatigue  #extremefatigue  #sleepy  #lackofenergy  #misdiagnosed  #misdiagnosis  #hypothyroidism  #optimal  #vibrant  #energy 
๐ŸŒฟ Here's a great testimonial: โ€œAWESOME is how I would describe this probiotic! There are so many things I like about it. First, itโ€™s made in the USA. That's totally important to me! Second, it's non-GMO. After a very short period of time, you will start to notice improvement in your digestion, sleep, mental awareness and your skin. It also helps with dairy digestion. The unique formula of this particular probiotic is that it is designed for the entire family - men women and children. If you're trying to get a better handle on the health of your family, this is for you. I highly recommend it." Featured in Wellness Magazine, Harmony Probiotic Blend is premium quality. Good for kids, as well as adults. Non-GMO, gluten-free, dairy-free, soy-free and certified Kosher. Learn more at www.harmonyprobioticblend.com.๐ŸŒฟ
๐ŸŒฟ Here's a great testimonial: โ€œAWESOME is how I would describe this probiotic! There are so many things I like about it. First, itโ€™s made in the USA. That's totally important to me! Second, it's non-GMO. After a very short period of time, you will start to notice improvement in your digestion, sleep, mental awareness and your skin. It also helps with dairy digestion. The unique formula of this particular probiotic is that it is designed for the entire family - men women and children. If you're trying to get a better handle on the health of your family, this is for you. I highly recommend it." Featured in Wellness Magazine, Harmony Probiotic Blend is premium quality. Good for kids, as well as adults. Non-GMO, gluten-free, dairy-free, soy-free and certified Kosher. Learn more at www.harmonyprobioticblend.com.๐ŸŒฟ
Making progress on the Guaifenesin Protocol.๐Ÿฆ‹
The Guaifenesin Protocol Check list is a must!
Learn to recognize Salicylates and blue Dye !
We must avoid these while on the Guaifenesin Protocol for Fibromyalgia symptom reversal.
Check this IG post for info on blockers that stall the clearing on the Guaifenesin Protocol.
๐Ÿฆ‹๐Ÿฆ‹๐Ÿฆ‹๐Ÿฆ‹๐Ÿฆ‹ Salicylates block the affect of the Guaifenesin to encourage the release of the phosphates that build in the cells.  You may as well not take Guaifenesin if 
you arenโ€™t changing all your beauty products, etc to Salicylate free ones.
You DO need to check all your beauty products; inactive and active ingredients in all meds, vitamins, protein powders, eye drops, pain creams, flavors, Toothpaste, dental floss(mint), mouthwash, shampoo, conditioner, hair spray, perfume,ย  any sprays that touch your skin, hair gels, mousse, etc, body wash, hand soap, bubble bath, dish soap for washing by hands (unless you use gloves), deodorant, antiperspirant, lotion, sunscreen, face wash, face creams, makeup, makeup remover, Razors (aloe strip), shaving cream, mosquito repellent, nail polish, nail polish remover, aloe in toilet paper and tissue and anything else you can think of that goes on your skin!  Gardeners must wear gloves!
You need all these products without blue dye and without Salicylates in them. They WILL block your Guaifenesin from working.  You can do it !
Once you get rid of the products you are on your way for the protocol to work for you and begin to reverse and clear the phosphates that build in your cells that cause the pain and fatigue associated with severe fibromyalgia.
Learn more on
www.fibrobuddies.net
#fibromyalgia #fibro #fibrofighter #fibromyalgiaawareness #fibroflare #cfs #chronicillness #chronic #chronicfatiguesyndrome #spoonie #spoons #spooniesister #spoonielife #me #millionsmissing #fibrobuddiesonguaifenesin #guiafenesin
Making progress on the Guaifenesin Protocol.๐Ÿฆ‹ The Guaifenesin Protocol Check list is a must! Learn to recognize Salicylates and blue Dye ! We must avoid these while on the Guaifenesin Protocol for Fibromyalgia symptom reversal. Check this IG post for info on blockers that stall the clearing on the Guaifenesin Protocol. ๐Ÿฆ‹๐Ÿฆ‹๐Ÿฆ‹๐Ÿฆ‹๐Ÿฆ‹ Salicylates block the affect of the Guaifenesin to encourage the release of the phosphates that build in the cells. You may as well not take Guaifenesin if you arenโ€™t changing all your beauty products, etc to Salicylate free ones. You DO need to check all your beauty products; inactive and active ingredients in all meds, vitamins, protein powders, eye drops, pain creams, flavors, Toothpaste, dental floss(mint), mouthwash, shampoo, conditioner, hair spray, perfume,ย  any sprays that touch your skin, hair gels, mousse, etc, body wash, hand soap, bubble bath, dish soap for washing by hands (unless you use gloves), deodorant, antiperspirant, lotion, sunscreen, face wash, face creams, makeup, makeup remover, Razors (aloe strip), shaving cream, mosquito repellent, nail polish, nail polish remover, aloe in toilet paper and tissue and anything else you can think of that goes on your skin! Gardeners must wear gloves! You need all these products without blue dye and without Salicylates in them. They WILL block your Guaifenesin from working. You can do it ! Once you get rid of the products you are on your way for the protocol to work for you and begin to reverse and clear the phosphates that build in your cells that cause the pain and fatigue associated with severe fibromyalgia. Learn more on www.fibrobuddies.net #fibromyalgia  #fibro  #fibrofighter  #fibromyalgiaawareness  #fibroflare  #cfs  #chronicillness  #chronic  #chronicfatiguesyndrome  #spoonie  #spoons  #spooniesister  #spoonielife  #me  #millionsmissing  #fibrobuddiesonguaifenesin  #guiafenesin 
"Through her eyes I saw - Her vision guiding my hands to paint & draw.
Trusting my inner guidance & allowing my imagination to birth her into life.
I now see - all that was meant for me. Unfolding. Unravelling. I leave all that does not serve my soul. Connected with my highest truth I become whole." ๐Ÿ’œ
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Ajna - Third Eye Chakra ๐Ÿ’œ the 6th body of work in my Chakra Mandala series (the journey that began a couple of years ago & are finally being completed with splashes of watercolour!)....๐ŸŽจ๐Ÿ’™๐Ÿ’œ
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I trust my Inner Guidance
I am Intuitive and connected to my Inner Vision
I take responsibility for creating the life of my dreams
I trust that my life is unfolding exactly as it is meant to
I let go of limiting beliefs and old thought patterns
I have access to unlimited possibilities
I love and accept myself
.
Next on to...Crown Chakra Mandala ๐Ÿ’œ
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#thirdeyechakra #ajna #chakralove #chakraart #sacredart
"Through her eyes I saw - Her vision guiding my hands to paint & draw. Trusting my inner guidance & allowing my imagination to birth her into life. I now see - all that was meant for me. Unfolding. Unravelling. I leave all that does not serve my soul. Connected with my highest truth I become whole." ๐Ÿ’œ . Ajna - Third Eye Chakra ๐Ÿ’œ the 6th body of work in my Chakra Mandala series (the journey that began a couple of years ago & are finally being completed with splashes of watercolour!)....๐ŸŽจ๐Ÿ’™๐Ÿ’œ . I trust my Inner Guidance I am Intuitive and connected to my Inner Vision I take responsibility for creating the life of my dreams I trust that my life is unfolding exactly as it is meant to I let go of limiting beliefs and old thought patterns I have access to unlimited possibilities I love and accept myself . Next on to...Crown Chakra Mandala ๐Ÿ’œ . . . #thirdeyechakra  #ajna  #chakralove  #chakraart  #sacredart 
This morning, I woke up tired. I am sooo tired of being tired. I guess thatโ€™s #chronicfatiguesyndrome for you. -
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Hereโ€™s hoping my new routine and learning schedule will bring me back to life. -
Anyone else love doing stuff in bed? Definitely trying to make positive of the fact that I canโ€™t get up. Although itโ€™s hard. Iโ€™d love to be out in the sunshine. โ˜€๏ธ -
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#educationdays #growingthemind #expandingbrain #healthandglow #bodyworks #learningaboutmyself #womenwithwomen #womeninspo #womenempoweringwomen #chronicillnessclub #chronicallyfabulous #futuresuccessors #futuresuccessstory #iwillbeatthis #watchmedome #staytuned
This morning, I woke up tired. I am sooo tired of being tired. I guess thatโ€™s #chronicfatiguesyndrome  for you. - - Hereโ€™s hoping my new routine and learning schedule will bring me back to life. - Anyone else love doing stuff in bed? Definitely trying to make positive of the fact that I canโ€™t get up. Although itโ€™s hard. Iโ€™d love to be out in the sunshine. โ˜€๏ธ - - - - - - - - #educationdays  #growingthemind  #expandingbrain  #healthandglow  #bodyworks  #learningaboutmyself  #womenwithwomen  #womeninspo  #womenempoweringwomen  #chronicillnessclub  #chronicallyfabulous  #futuresuccessors  #futuresuccessstory  #iwillbeatthis  #watchmedome  #staytuned 
When your natural state is practically comatose ๐Ÿ›, it turns out it really upsets your animals ๐Ÿ• when you actually have energy.... ๐Ÿ˜…๐Ÿ˜‚ #petproblems #petmom #rareoccurance #energyforonce #sadbuttrue #pets #energy #chronicallyill #chronicfatigue #chronicillness #survivalofthefatigued #chronicfatiguesyndrome #rare #rachelwynne #lyme #lupus #spoonie #spoonies #thatraremoment #whenyoufinallyfeelgood #dogmom #didntknowwhoiwas
ใ€ŠTo Flu Shot or Not to Flu Shotใ€‹
โ €โ €โ €โ €โ €โ €โ €โ €โ €
Iโ€™ll cut to the chase, for ME the answer will always be NO.๐Ÿ™…๐Ÿปโ€โ™€๏ธ
โ €โ €โ €โ €โ €โ €โ €โ €โ €
Here are a few reasons why:
โ €โ €โ €โ €โ €โ €โ €โ €โ €
โ €โ €โ €๐Ÿ’‰1. The flu vaccine contains dangerous and toxic adjuvants like aluminum, mercury and formaldehyde which can penetrate the blood brain barrier leading to neurological dysfunction.
โ €โ €โ €๐Ÿ’‰2. The flu vaccine has been shown to incite AUTOIMMUNE responses.
โ €โ €โ €๐Ÿ’‰3. The efficacy rate of the flu vaccine is incredibly low (even without considering the risk).
โ €โ €โ €๐Ÿ’‰4. Due to something known as โ€œviral sheddingโ€, you are actually more likely to spread the flu if you get the vaccine.
โ €โ €โ €โ €โ €โ €โ €โ €โ €
Did you know that in 1986 the US government effectively released vaccine manufacturers from any liability concerning vaccine injured patients by creating a โ€œvaccine courtโ€ to pay off those affected while keeping the drug companies out of federal court?
โ €โ €โ €โ €โ €โ €โ €โ €โ €
๐Ÿ’ฐTo date theyโ€™ve paid out about $4 Billion. And do you know who paid that money? The drug companies? No. You did.
โ €โ €โ €โ €โ €โ €โ €โ €โ €
I recently moved and had to find a whole new team of doctors. Upon meeting my new GI doctor, whom I had waited 2 months to get an appointment with (a fact he was quick to remind me of when it became clear I had a few more questions than his typical patient), he was incredulous that I had never gotten a flu vaccine. In fact, he practically threatened not to treat me if I refused to get one.
โ €โ €โ €โ €โ €โ €โ €โ €โ €
His term โ€œrefuseโ€ implied that his โ€œordersโ€ were to be followed, and how dare I have a contrary opinion.
โ €โ €โ €โ €โ €โ €โ €โ €โ €
But the thing is, I donโ€™t go to my doctors for orders, I go for advice. And honestly at this point, I just go for blood work and cancer screenings.
โ €โ €โ €โ €โ €โ €โ €โ €โ €
I certainly donโ€™t go to be bullied into making healthcare decisions that go against my research and better judgment.
โ €โ €โ €โ €โ €โ €โ €โ €โ €
Now I say all of this to encourage you to look into the things your doctor is โ€œorderingโ€ you to do. Doctors are not the keepers of information. And they certainly donโ€™t know your body better than you.
โ €โ €โ €โ €โ €โ €โ €โ €โ €
I beg you to inform yourself. Do your own research, make your own healthcare decisions. And with flu season upon us, this is a great place to start. ๐Ÿ’ชโœจ
ใ€ŠTo Flu Shot or Not to Flu Shotใ€‹ โ €โ €โ €โ €โ €โ €โ €โ €โ € Iโ€™ll cut to the chase, for ME the answer will always be NO.๐Ÿ™…๐Ÿปโ€โ™€๏ธ โ €โ €โ €โ €โ €โ €โ €โ €โ € Here are a few reasons why: โ €โ €โ €โ €โ €โ €โ €โ €โ € โ €โ €โ €๐Ÿ’‰1. The flu vaccine contains dangerous and toxic adjuvants like aluminum, mercury and formaldehyde which can penetrate the blood brain barrier leading to neurological dysfunction. โ €โ €โ €๐Ÿ’‰2. The flu vaccine has been shown to incite AUTOIMMUNE responses. โ €โ €โ €๐Ÿ’‰3. The efficacy rate of the flu vaccine is incredibly low (even without considering the risk). โ €โ €โ €๐Ÿ’‰4. Due to something known as โ€œviral sheddingโ€, you are actually more likely to spread the flu if you get the vaccine. โ €โ €โ €โ €โ €โ €โ €โ €โ € Did you know that in 1986 the US government effectively released vaccine manufacturers from any liability concerning vaccine injured patients by creating a โ€œvaccine courtโ€ to pay off those affected while keeping the drug companies out of federal court? โ €โ €โ €โ €โ €โ €โ €โ €โ € ๐Ÿ’ฐTo date theyโ€™ve paid out about $4 Billion. And do you know who paid that money? The drug companies? No. You did. โ €โ €โ €โ €โ €โ €โ €โ €โ € I recently moved and had to find a whole new team of doctors. Upon meeting my new GI doctor, whom I had waited 2 months to get an appointment with (a fact he was quick to remind me of when it became clear I had a few more questions than his typical patient), he was incredulous that I had never gotten a flu vaccine. In fact, he practically threatened not to treat me if I refused to get one. โ €โ €โ €โ €โ €โ €โ €โ €โ € His term โ€œrefuseโ€ implied that his โ€œordersโ€ were to be followed, and how dare I have a contrary opinion. โ €โ €โ €โ €โ €โ €โ €โ €โ € But the thing is, I donโ€™t go to my doctors for orders, I go for advice. And honestly at this point, I just go for blood work and cancer screenings. โ €โ €โ €โ €โ €โ €โ €โ €โ € I certainly donโ€™t go to be bullied into making healthcare decisions that go against my research and better judgment. โ €โ €โ €โ €โ €โ €โ €โ €โ € Now I say all of this to encourage you to look into the things your doctor is โ€œorderingโ€ you to do. Doctors are not the keepers of information. And they certainly donโ€™t know your body better than you. โ €โ €โ €โ €โ €โ €โ €โ €โ € I beg you to inform yourself. Do your own research, make your own healthcare decisions. And with flu season upon us, this is a great place to start. ๐Ÿ’ชโœจ
๐Ÿ†๐Ÿ†๐Ÿ† Iโ€™m deliriously tired from lack of sleep over the past few nights and selectively using my only spoons to try on clothes (if you know me, you know). I really thought I had my sleep under control for a few weeks because I was sleeping ~10 hours a night and while mornings were rough I felt somewhat alive (!!!) when I woke up. The past few nights Iโ€™ve been waking up around 4am-5am alert and exhausted, and not able to fall back asleep despite trying for hours. ๐Ÿ› Iโ€™m SO much more exhausted and emotionally unstable during the day when this happens, and my lymph nodes are very painful. I suspect the HPA Axis/ANS are off and my adrenals and cortisol are out of whack somehow. Tonight Iโ€™m going to try going to bed earlier because my acupuncturist said 10pm-11pm is an important time for the adrenals. Iโ€™m also going to try some nighttime meditations. Open to all theories/ advice!! I need my sleep & corresponding sanity back. Xo๐Ÿ–ค #mecfs #myalgicencephalomyelitis #chronicillness #chronicpain #invisibleillness #chronicfatigue #chronicfatiguesyndrome #spoonie #spoonielife #butyoudontlooksick
๐Ÿ†๐Ÿ†๐Ÿ† Iโ€™m deliriously tired from lack of sleep over the past few nights and selectively using my only spoons to try on clothes (if you know me, you know). I really thought I had my sleep under control for a few weeks because I was sleeping ~10 hours a night and while mornings were rough I felt somewhat alive (!!!) when I woke up. The past few nights Iโ€™ve been waking up around 4am-5am alert and exhausted, and not able to fall back asleep despite trying for hours. ๐Ÿ› Iโ€™m SO much more exhausted and emotionally unstable during the day when this happens, and my lymph nodes are very painful. I suspect the HPA Axis/ANS are off and my adrenals and cortisol are out of whack somehow. Tonight Iโ€™m going to try going to bed earlier because my acupuncturist said 10pm-11pm is an important time for the adrenals. Iโ€™m also going to try some nighttime meditations. Open to all theories/ advice!! I need my sleep & corresponding sanity back. Xo๐Ÿ–ค #mecfs  #myalgicencephalomyelitis  #chronicillness  #chronicpain  #invisibleillness  #chronicfatigue  #chronicfatiguesyndrome  #spoonie  #spoonielife  #butyoudontlooksick 
Friends in the Fight, it's #PainAwarenessMonth this September.
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How do you manage pain?
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Share with us some tips that can help our community ๐Ÿค
Friends in the Fight, it's #PainAwarenessMonth  this September. . How do you manage pain? . Share with us some tips that can help our community ๐Ÿค
Yup.
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#chronicillness #chronicfatiguesyndrome #MEcfs #pwme #spoonie #hypermobility #hEDS #POTS #disabled #disautonomia #mcas #histamineintolerance
โ€œLiving Deeply in Tiny Rooms,โ€ my article on intersections of my #art and #chronicillness on @modspokeart was published today. See link in bio! โค๏ธ (Please refrain from providing me with medical advice or sales pitches.) #chronicillness #chronicfatiguesyndrome #cfsme #mecfs #myalgicencephalomyelitis #bedfest #cfids #disabledartist #disability #meaction #artist #modspoke #abstractartist #art #abstractart #portraiture #abstract #contemporaryart #maineartist #maineart #photography #portrait #queerartist
โ€œLiving Deeply in Tiny Rooms,โ€ my article on intersections of my #art  and #chronicillness  on @modspokeart was published today. See link in bio! โค๏ธ (Please refrain from providing me with medical advice or sales pitches.) #chronicillness  #chronicfatiguesyndrome  #cfsme  #mecfs  #myalgicencephalomyelitis  #bedfest  #cfids  #disabledartist  #disability  #meaction  #artist  #modspoke  #abstractartist  #art  #abstractart  #portraiture  #abstract  #contemporaryart  #maineartist  #maineart  #photography  #portrait  #queerartist 
All the energy in the world to look semi decent for an hour or so...the chronic life. Sometimes it's worth it and sometimes you wish you hadn't.  This is when we had the heatwave - i was merely going to the beach but staying in the car...crap mobility...I'll save that story for another day
All the energy in the world to look semi decent for an hour or so...the chronic life. Sometimes it's worth it and sometimes you wish you hadn't. This is when we had the heatwave - i was merely going to the beach but staying in the car...crap mobility...I'll save that story for another day
Energy is a precious thing. Itโ€™s about acknowledging where we are spending our energy and then consciously deciding what we spend it on each day. Mindfulness is key.
Stop. And breath.  Appreciate your energy. Respect it. And chose where you spend it.  #mindfulness #mindset #lifecoach #wellnesscoach #healing #butyoudontlooksick #onedayatatime๐Ÿ“† #chronicfatiguesyndrome #chronicfatigue #tiredallthetime #strongwomen #resilience #chronicallyill #healing #selfcare #selflove
Energy is a precious thing. Itโ€™s about acknowledging where we are spending our energy and then consciously deciding what we spend it on each day. Mindfulness is key. Stop. And breath. Appreciate your energy. Respect it. And chose where you spend it. #mindfulness  #mindset  #lifecoach  #wellnesscoach  #healing  #butyoudontlooksick  #onedayatatime ๐Ÿ“† #chronicfatiguesyndrome  #chronicfatigue  #tiredallthetime  #strongwomen  #resilience  #chronicallyill  #healing  #selfcare  #selflove 
โšก๏ธThe power plants of human muscle cells are the dense populations of mitochondriaโ€”heart cells have 5,000 each. โค๏ธHeart cells never rest. There is always a dynamic process of metabolism of fuel and oxygen, as well as a release of waste, and itโ€™s all based in redox reยญactions from RSM created by mitochondria
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๐Ÿ‹๏ธโ€โ™€๏ธMUSCLE RECOVERYโ€“Muscle cells love to work! They rise to the challenge, replicate themselves, and recover from exercise under the direction of RSM, and they develop more mitochondria with more exercise. But even with healthy habits, we lose 10% of our mitochondrial density every decade after age 20. RSM suppleยญmentation helps correct the effects of this, promoting faster recovery and reducing cell injury
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๐Ÿ› BONE DENSITY AND HEALINGโ€“As the structural framework for our bodies, bones do their cellular workโ€”including bringยญing calcium into the architectureโ€”through redox reactions. The bone density decline that comes with aging can accelerate with RSM imbalance. RSM balance along with proper mineral resources helps arrest this process
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AGINGโ€“A youthful abundance of REDOX signaling molecules signals the body to create the vitality we seek as we age in life. Aging in balance is possible provided we manage our REDOX potential with necessary lifestyle changes
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#naturalhealing #jointpain #nervepain #tumor #cancersupport #healthylife #naturalmedicine #spoonie #chronichealth #chronicillness #cancer #cells #lymes #diseaseprevention #autoimmunedisease #braininjury #arthritis #rheumatoidarthritis #chronicpainwarrior #autoimmunewarrior #chronicfatiguesyndrome #fibromyalgia #endometriosis #asthmasucks #backpain #jointpain #soremuscles #inflammation
โšก๏ธThe power plants of human muscle cells are the dense populations of mitochondriaโ€”heart cells have 5,000 each. โค๏ธHeart cells never rest. There is always a dynamic process of metabolism of fuel and oxygen, as well as a release of waste, and itโ€™s all based in redox reยญactions from RSM created by mitochondria . ๐Ÿ‹๏ธโ€โ™€๏ธMUSCLE RECOVERYโ€“Muscle cells love to work! They rise to the challenge, replicate themselves, and recover from exercise under the direction of RSM, and they develop more mitochondria with more exercise. But even with healthy habits, we lose 10% of our mitochondrial density every decade after age 20. RSM suppleยญmentation helps correct the effects of this, promoting faster recovery and reducing cell injury . ๐Ÿ› BONE DENSITY AND HEALINGโ€“As the structural framework for our bodies, bones do their cellular workโ€”including bringยญing calcium into the architectureโ€”through redox reactions. The bone density decline that comes with aging can accelerate with RSM imbalance. RSM balance along with proper mineral resources helps arrest this process . AGINGโ€“A youthful abundance of REDOX signaling molecules signals the body to create the vitality we seek as we age in life. Aging in balance is possible provided we manage our REDOX potential with necessary lifestyle changes . . . . . #naturalhealing  #jointpain  #nervepain  #tumor  #cancersupport  #healthylife  #naturalmedicine  #spoonie  #chronichealth  #chronicillness  #cancer  #cells  #lymes  #diseaseprevention  #autoimmunedisease  #braininjury  #arthritis  #rheumatoidarthritis  #chronicpainwarrior  #autoimmunewarrior  #chronicfatiguesyndrome  #fibromyalgia  #endometriosis  #asthmasucks  #backpain  #jointpain  #soremuscles  #inflammation 
HEALING is stepping into your power and owning who you are.
It is knowing you can be who you choose, when you choose.
Want to know how?
Let's chat
HEALING is stepping into your power and owning who you are. It is knowing you can be who you choose, when you choose. Want to know how? Let's chat
didnโ€™t post this yesterday! my brain is mush just now. 1lb above target. deserved way worse after this week ๐Ÿ™ˆ๐Ÿซ๐Ÿ˜ณ
didnโ€™t post this yesterday! my brain is mush just now. 1lb above target. deserved way worse after this week ๐Ÿ™ˆ๐Ÿซ๐Ÿ˜ณ
My day: ๐Ÿ‘ฉโ€๐Ÿณ cooked a vegetable curry with the welcome and appreciated help of my home health aide Jennifer; regular afternoon rest after ๐Ÿ˜ด; now some nature and earthing time laying on the ground in backyard. Doing my best to experience and notice PLEASUREABLE activities in every day. Happy helps me heal. ๐Ÿ’•๐Ÿ•Š๐ŸŒป๐ŸŒป โ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒ #cfs_hope #cfs #spoonie #chronicillness #cfstrongsexy #cfsme #cfsrecovery #invisibleillness #spoonielife #chronicfatiguesyndrome #chronicillnesswarrior #spooniestrong
My day: ๐Ÿ‘ฉโ€๐Ÿณ cooked a vegetable curry with the welcome and appreciated help of my home health aide Jennifer; regular afternoon rest after ๐Ÿ˜ด; now some nature and earthing time laying on the ground in backyard. Doing my best to experience and notice PLEASUREABLE activities in every day. Happy helps me heal. ๐Ÿ’•๐Ÿ•Š๐ŸŒป๐ŸŒป โ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒโ–ƒ #cfs_hope  #cfs  #spoonie  #chronicillness  #cfstrongsexy  #cfsme  #cfsrecovery  #invisibleillness  #spoonielife  #chronicfatiguesyndrome  #chronicillnesswarrior  #spooniestrong 
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love you fibromite family warrios.. You are the real warriors ๐Ÿ’œ๐Ÿ’œ
Lot of Love ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ
Please share and tag your fibro warriors ๐Ÿ’œ๐Ÿ’œ
#fibromyalgia #chronicpain #chronicillness #anxiety #spoonie #ptsd #chronicfatigue #health #pain #wellness #arthritis #invisibleillness #fibromyalgiawarrior #fibromyalgiaawareness #chronicfatiguesyndrome #healthylifestyle #lupus #wellbeing #painrelief #fibromyalgiafacts #strength #pregnancy #fibro #cbd #fibrowarrior #motivation #fibrostrong #chronicallyfabulous #liveyourbestlife #bhfyp
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love you fibromite family warrios.. You are the real warriors ๐Ÿ’œ๐Ÿ’œ Lot of Love ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Please share and tag your fibro warriors ๐Ÿ’œ๐Ÿ’œ #fibromyalgia  #chronicpain  #chronicillness  #anxiety  #spoonie  #ptsd  #chronicfatigue  #health  #pain  #wellness  #arthritis  #invisibleillness  #fibromyalgiawarrior  #fibromyalgiaawareness  #chronicfatiguesyndrome  #healthylifestyle  #lupus  #wellbeing  #painrelief  #fibromyalgiafacts  #strength  #pregnancy  #fibro  #cbd  #fibrowarrior  #motivation  #fibrostrong  #chronicallyfabulous  #liveyourbestlife  #bhfyp 
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love you fibromite family warrios.. You are the real warriors ๐Ÿ’œ๐Ÿ’œ
Lot of Love ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ
Please share and tag your fibro warriors ๐Ÿ’œ๐Ÿ’œ
#fibromyalgia #chronicpain #chronicillness #anxiety #spoonie #ptsd #chronicfatigue #health #pain #wellness #arthritis #invisibleillness #fibromyalgiawarrior #fibromyalgiaawareness #chronicfatiguesyndrome #healthylifestyle #lupus #wellbeing #painrelief #fibromyalgiafacts #strength #pregnancy #fibro #cbd #fibrowarrior #motivation #fibrostrong #chronicallyfabulous #liveyourbestlife #bhfyp
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love you fibromite family warrios.. You are the real warriors ๐Ÿ’œ๐Ÿ’œ Lot of Love ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Please share and tag your fibro warriors ๐Ÿ’œ๐Ÿ’œ #fibromyalgia  #chronicpain  #chronicillness  #anxiety  #spoonie  #ptsd  #chronicfatigue  #health  #pain  #wellness  #arthritis  #invisibleillness  #fibromyalgiawarrior  #fibromyalgiaawareness  #chronicfatiguesyndrome  #healthylifestyle  #lupus  #wellbeing  #painrelief  #fibromyalgiafacts  #strength  #pregnancy  #fibro  #cbd  #fibrowarrior  #motivation  #fibrostrong  #chronicallyfabulous  #liveyourbestlife  #bhfyp 
I had my appointment at the Vreeland Clinic today. I was feeling horrible and really struggled through the appointment. He definitely thinks there is some type of systemic infection or virus. He pulled blood to do some really in-depth testing including looking for tick born infections (beyond lyme). He looked at my most recent blood work and said that my tests are getting worse and Iโ€™m getting very malnourished. He said my protein levels were dangerously low. He said that my body was regulating levels by eating muscle and other things. So Iโ€™m going to have to try to push my stomach even more to try to get more food and protein in. I have some new abdominal massage and breathing exercises in hopes that that will help my gastroparesis. We also added some โ€œnerve flossingโ€ stretches because he thinks I have inflammation that is pinching my central nervous system. These exercises are extremely painful, but hopefully they will get easier with practice. So some new exercises to add to my regime, new supplements, new foods, and a lot of waiting. I see him again in a month. So hopeful for some relief, but sadly nothing to be done immediately. Really struggling to stay positive and keep up the fight today. But Iโ€™m just telling myself to fight for the rest of the day and take it one day at a time. Relief will come. *obviously I might have terms incorrectly and just explaining in layman terms* #dysautonomia #autonomicdysfunction #chronicillness #nerveflossing #gastroparesis #chronicnausea #functionalneurology #chronicpain #degenerativediscdisease #spoonie #spooniestrong #spooniewarrior #meningioma #seizure #posturalorthostatictachycardiasyndrome #pots #potsie #potsiestrong #potsiegirl #ehlersdanlossyndrome #zebra #zebrastrong #myalgicencephalomyelitis #chronicfatiguesyndrome
I had my appointment at the Vreeland Clinic today. I was feeling horrible and really struggled through the appointment. He definitely thinks there is some type of systemic infection or virus. He pulled blood to do some really in-depth testing including looking for tick born infections (beyond lyme). He looked at my most recent blood work and said that my tests are getting worse and Iโ€™m getting very malnourished. He said my protein levels were dangerously low. He said that my body was regulating levels by eating muscle and other things. So Iโ€™m going to have to try to push my stomach even more to try to get more food and protein in. I have some new abdominal massage and breathing exercises in hopes that that will help my gastroparesis. We also added some โ€œnerve flossingโ€ stretches because he thinks I have inflammation that is pinching my central nervous system. These exercises are extremely painful, but hopefully they will get easier with practice. So some new exercises to add to my regime, new supplements, new foods, and a lot of waiting. I see him again in a month. So hopeful for some relief, but sadly nothing to be done immediately. Really struggling to stay positive and keep up the fight today. But Iโ€™m just telling myself to fight for the rest of the day and take it one day at a time. Relief will come. *obviously I might have terms incorrectly and just explaining in layman terms* #dysautonomia  #autonomicdysfunction  #chronicillness  #nerveflossing  #gastroparesis  #chronicnausea  #functionalneurology  #chronicpain  #degenerativediscdisease  #spoonie  #spooniestrong  #spooniewarrior  #meningioma  #seizure  #posturalorthostatictachycardiasyndrome  #pots  #potsie  #potsiestrong  #potsiegirl  #ehlersdanlossyndrome  #zebra  #zebrastrong  #myalgicencephalomyelitis  #chronicfatiguesyndrome 
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love you fibromite family warrios.. You are the real warriors ๐Ÿ’œ๐Ÿ’œ
Lot of Love ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ
Please share and tag your fibro warriors ๐Ÿ’œ๐Ÿ’œ
#fibromyalgia #chronicpain #chronicillness #anxiety #spoonie #ptsd #chronicfatigue #health #pain #wellness #arthritis #invisibleillness #fibromyalgiawarrior #fibromyalgiaawareness #chronicfatiguesyndrome #healthylifestyle #lupus #wellbeing #painrelief #fibromyalgiafacts #strength #pregnancy #fibro #cbd #fibrowarrior #motivation #fibrostrong #chronicallyfabulous #liveyourbestlife #bhfyp
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love you fibromite family warrios.. You are the real warriors ๐Ÿ’œ๐Ÿ’œ Lot of Love ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Please share and tag your fibro warriors ๐Ÿ’œ๐Ÿ’œ #fibromyalgia  #chronicpain  #chronicillness  #anxiety  #spoonie  #ptsd  #chronicfatigue  #health  #pain  #wellness  #arthritis  #invisibleillness  #fibromyalgiawarrior  #fibromyalgiaawareness  #chronicfatiguesyndrome  #healthylifestyle  #lupus  #wellbeing  #painrelief  #fibromyalgiafacts  #strength  #pregnancy  #fibro  #cbd  #fibrowarrior  #motivation  #fibrostrong  #chronicallyfabulous  #liveyourbestlife  #bhfyp 
And just like that Iโ€™ve slept another day away๐Ÿ˜ณ๐Ÿคท๐Ÿปโ€โ™€๏ธ๐Ÿ™„. Back to work tomorrow night๐Ÿ˜! My body hates me. My mind is boggled but at least I fight every single day to do what makes ME happy๐Ÿ˜˜!! #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #chronicpainsucks #chronicfatiguesyndrome #chronicfatigue #inpain #tootired #anxiety #fibromyalgia #fibrosucks #fibro #rheumatoidarthritis #rheumatoidarthritiswarrior #arthritis #arthritissucks #spoonie #spoonielife #spoonies #spoonieproblems #spooniewarrior #fugly #ruined #invisibleillness #itsokaynottobeokay #keepfighting #autoimmunedisease #autoimmune #mybodyhatesme
And just like that Iโ€™ve slept another day away๐Ÿ˜ณ๐Ÿคท๐Ÿปโ€โ™€๏ธ๐Ÿ™„. Back to work tomorrow night๐Ÿ˜! My body hates me. My mind is boggled but at least I fight every single day to do what makes ME happy๐Ÿ˜˜!! #chronicillness  #chronicillnesswarrior  #chronicpain  #chronicpainwarrior  #chronicpainsucks  #chronicfatiguesyndrome  #chronicfatigue  #inpain  #tootired  #anxiety  #fibromyalgia  #fibrosucks  #fibro  #rheumatoidarthritis  #rheumatoidarthritiswarrior  #arthritis  #arthritissucks  #spoonie  #spoonielife  #spoonies  #spoonieproblems  #spooniewarrior  #fugly  #ruined  #invisibleillness  #itsokaynottobeokay  #keepfighting  #autoimmunedisease  #autoimmune  #mybodyhatesme 
Proud of my girl ๐Ÿ’—๐Ÿ’—๐Ÿ’—
โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”
#mybodyhurts #mysoulistired #chronicillness #chronicpain #chronicfatiguesyndrome #chronicpainwarrior #fibromyalgia #depression #anxiety #nervedamage #documentinglife #chronicallyfabulous #chronicallyliving #heath #recoveryquotes #spoonie #invisibleillness #chronicpain #chronicpainwarrior #animals #handmade #thearapy #bestfriend
Proud of my girl ๐Ÿ’—๐Ÿ’—๐Ÿ’— โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€” #mybodyhurts  #mysoulistired  #chronicillness  #chronicpain  #chronicfatiguesyndrome  #chronicpainwarrior  #fibromyalgia  #depression  #anxiety  #nervedamage  #documentinglife  #chronicallyfabulous  #chronicallyliving  #heath  #recoveryquotes  #spoonie  #invisibleillness  #chronicpain  #chronicpainwarrior  #animals  #handmade  #thearapy  #bestfriend 
Lyle switched some patches around & added a few (a new one & an old one I found)...it looks EPIC!!! ๐Ÿ˜ Thank you Lyle! ๐Ÿ’™๐Ÿ˜ Happy to report that Lyle recovered quickly from his poorly, & I took over feeling extremely fatigued & cold-y all day ๐Ÿ˜… Hoping to manage a dog walk through town (as I think walks won't be possible tomorrow?) & I'll take a benadryl early tonight to try encourage sleep, seeing as my body's being weird atm...really don't need a manic episode triggering ๐Ÿ˜Œ
#workofart #beautiful #pride #JurassicPark #dinosaurlover #lgbt+ #transpride #adventure #spaceexplorer #wheelchair #spoonie #disabled #disability #chronicpain #POTSsyndrome #dysautonomia #hypermobile #actuallyautistic #chronicpain #chronicfatigue #chronicfatiguesyndrome #myalgicencephalomyelitis  #chronicallyill #chronicillness
Lyle switched some patches around & added a few (a new one & an old one I found)...it looks EPIC!!! ๐Ÿ˜ Thank you Lyle! ๐Ÿ’™๐Ÿ˜ Happy to report that Lyle recovered quickly from his poorly, & I took over feeling extremely fatigued & cold-y all day ๐Ÿ˜… Hoping to manage a dog walk through town (as I think walks won't be possible tomorrow?) & I'll take a benadryl early tonight to try encourage sleep, seeing as my body's being weird atm...really don't need a manic episode triggering ๐Ÿ˜Œ #workofart  #beautiful  #pride  #JurassicPark  #dinosaurlover  #lgbt + #transpride  #adventure  #spaceexplorer  #wheelchair  #spoonie  #disabled  #disability  #chronicpain  #POTSsyndrome  #dysautonomia  #hypermobile  #actuallyautistic  #chronicpain  #chronicfatigue  #chronicfatiguesyndrome  #myalgicencephalomyelitis  #chronicallyill  #chronicillness 
You guys! Ouch!!! Yesterday I did my first workout with weights since before my accident. I felt it in my piriformis (a muscle in your booty that extends into your hamstrings and back) even before the workout was over. It's a muscle I've been struggling with in recovery. But I started feeling it in my quads by the evening. And today I'm moving like an old lady! I dread going to the bathroom but have to ask the time because I drink a lot of water. Ok goodness!
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I know the pain will pass. I remember feeling like this every time I've worked at getting back into regular exercise. The thing is, it hurts so much that if I were just doing this in my own I probably would have just rested today. But I'm not alone. I'm running a virtual boot camp and have committed to exercise every day this week. And, I just started a fit club and knew I had friends planning to join me for today's workout. And when I have people counting on me I'm not going to let them down!
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And that's really the reason I started coaching. I had found that when I got a group of friends to commit to doing a nothin and fitness program with me, for the first time in my life, I was consistent. I didn't let excuses derail me. While that accountability isn't the only reason I have to coach now, it even the main one, it is one of the reasons I'm so grateful to coach. Because I know I can come up with lots of reasons not to put my health first. Legitimate reasons. But when I'm committed and accountable I almost always find a way to reach my goals!
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Do you have someone it something that helps you stay committed and accountable?
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#nopainnogain #ahurtsogood #ouch #postworkout #smileanyway #worthit #goals #goalgetters
You guys! Ouch!!! Yesterday I did my first workout with weights since before my accident. I felt it in my piriformis (a muscle in your booty that extends into your hamstrings and back) even before the workout was over. It's a muscle I've been struggling with in recovery. But I started feeling it in my quads by the evening. And today I'm moving like an old lady! I dread going to the bathroom but have to ask the time because I drink a lot of water. Ok goodness! . I know the pain will pass. I remember feeling like this every time I've worked at getting back into regular exercise. The thing is, it hurts so much that if I were just doing this in my own I probably would have just rested today. But I'm not alone. I'm running a virtual boot camp and have committed to exercise every day this week. And, I just started a fit club and knew I had friends planning to join me for today's workout. And when I have people counting on me I'm not going to let them down! . And that's really the reason I started coaching. I had found that when I got a group of friends to commit to doing a nothin and fitness program with me, for the first time in my life, I was consistent. I didn't let excuses derail me. While that accountability isn't the only reason I have to coach now, it even the main one, it is one of the reasons I'm so grateful to coach. Because I know I can come up with lots of reasons not to put my health first. Legitimate reasons. But when I'm committed and accountable I almost always find a way to reach my goals! . Do you have someone it something that helps you stay committed and accountable? . . . . . #nopainnogain  #ahurtsogood  #ouch  #postworkout  #smileanyway  #worthit  #goals  #goalgetters 
I managed a saunter out today into Leeds City centre, without my chair no less. Celebrating the good days and not dwelling on the bad.

Today, in the metro I learned that, Justin Beiber, may or may not be married. Riveting.

#cfsrecovery #cfs #chronicillness #chronicpain #chronicfatiguesyndrome #chronicfatigue #fibrowarrior #fibromyalgia #glassesgirl #myalgicencephalomyelitis #fibrofog #fibro #disability #cuteanddisabled #recovery #wellness #leeds #glasses #leedsleedsleeds #glasses๐Ÿ˜Ž #autoimmunediseases #train #trainjourney #reading #newspaper #northernrail #citybreaks
I managed a saunter out today into Leeds City centre, without my chair no less. Celebrating the good days and not dwelling on the bad. Today, in the metro I learned that, Justin Beiber, may or may not be married. Riveting. #cfsrecovery  #cfs  #chronicillness  #chronicpain  #chronicfatiguesyndrome  #chronicfatigue  #fibrowarrior  #fibromyalgia  #glassesgirl  #myalgicencephalomyelitis  #fibrofog  #fibro  #disability  #cuteanddisabled  #recovery  #wellness  #leeds  #glasses  #leedsleedsleeds  #glasses ๐Ÿ˜Ž #autoimmunediseases  #train  #trainjourney  #reading  #newspaper  #northernrail  #citybreaks 
My absolute go toโ€™s!

I try an tackle my ailments and keep my general health up through supplements.
I try and have the best diet I can through food but my body doesnโ€™t always absorb the nutrients. Also with me not eating fish, eggs or meat I need a good Omega 3, B Vits (especially B12) and a multi vit that contains high levels of the vitamins and minerals I need plus some aminos. I have been taking Myo-Inositol and folic for my PCOS and trying to help my fertility and prepare my body for pregnancy.
My absolute go toโ€™s! I try an tackle my ailments and keep my general health up through supplements. I try and have the best diet I can through food but my body doesnโ€™t always absorb the nutrients. Also with me not eating fish, eggs or meat I need a good Omega 3, B Vits (especially B12) and a multi vit that contains high levels of the vitamins and minerals I need plus some aminos. I have been taking Myo-Inositol and folic for my PCOS and trying to help my fertility and prepare my body for pregnancy.
Moving house at 9am tomorrow... Iโ€™m approx 1/3 packed and Iโ€™ve ran out of energy completely ๐Ÿ˜ฑtime for a panic nap? #myalgicencephalomyelitis #chronicfatiguesyndrome #chronicpain #chronicfatigue
Second shaker full of liquid gold or mom crack as I call it!!
I am not ashamed as I have this pesky thing called chronic fatigue syndrome and I have crashes about this time everyday and feel the intense need for a nap!!
This is my keep going mid day drink LOL
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#chronicfatiguesyndrome #momcrack #liquidgold #mombod #keepgoing
Second shaker full of liquid gold or mom crack as I call it!! I am not ashamed as I have this pesky thing called chronic fatigue syndrome and I have crashes about this time everyday and feel the intense need for a nap!! This is my keep going mid day drink LOL . . #chronicfatiguesyndrome  #momcrack  #liquidgold  #mombod  #keepgoing 
Good things that happened today:
Spent the day in Florence, wandering around beautiful architecture and sampling incredible food (including vegan pizza by @misterpizzafirenze). Canโ€™t imagine a better way to spend my time than exploring romantic cities with @paul_thewinechap ๐Ÿ˜Š
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#lblog #lbloggersuk #positivity #positivevibes #positivity #happiness #travel #vegantravel #goodthings #chronicillness #chronicfatiguesyndrome #chronicillnesswarrior
Good things that happened today: Spent the day in Florence, wandering around beautiful architecture and sampling incredible food (including vegan pizza by @misterpizzafirenze). Canโ€™t imagine a better way to spend my time than exploring romantic cities with @paul_thewinechap ๐Ÿ˜Š โ€ข โ€ข โ€ข #lblog  #lbloggersuk  #positivity  #positivevibes  #positivity  #happiness  #travel  #vegantravel  #goodthings  #chronicillness  #chronicfatiguesyndrome  #chronicillnesswarrior 
๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love you fibromite family warrios.. You are the real warriors ๐Ÿ’œ๐Ÿ’œ
Lot of Love ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ
Please share and tag your fibro warriors ๐Ÿ’œ๐Ÿ’œ
#fibromyalgia #chronicpain #chronicillness #anxiety #spoonie #ptsd #chronicfatigue #health #pain #wellness #arthritis #invisibleillness #fibromyalgiawarrior #fibromyalgiaawareness #chronicfatiguesyndrome #healthylifestyle #lupus #wellbeing #painrelief #fibromyalgiafacts #strength #pregnancy #fibro #cbd #fibrowarrior #motivation #fibrostrong #chronicallyfabulous #liveyourbestlife #bhfyp
๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love you fibromite family warrios.. You are the real warriors ๐Ÿ’œ๐Ÿ’œ Lot of Love ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Please share and tag your fibro warriors ๐Ÿ’œ๐Ÿ’œ #fibromyalgia  #chronicpain  #chronicillness  #anxiety  #spoonie  #ptsd  #chronicfatigue  #health  #pain  #wellness  #arthritis  #invisibleillness  #fibromyalgiawarrior  #fibromyalgiaawareness  #chronicfatiguesyndrome  #healthylifestyle  #lupus  #wellbeing  #painrelief  #fibromyalgiafacts  #strength  #pregnancy  #fibro  #cbd  #fibrowarrior  #motivation  #fibrostrong  #chronicallyfabulous  #liveyourbestlife  #bhfyp 
Sigh. Relief. These words were spoken to me today. In that moment, the clouds started to part. Truthfully, I feel like Iโ€™ve been going backwards and getting sicker. Very little do doctors understand what Iโ€™m going through and at times it seems answers wonโ€™t ever come. Today I spent time with a doctor that not only suffered with what I am now but healed and is now helping many people. Only, there wasnโ€™t a prescription pad or cure. I was reminded my body heals itself when supported. Something Iโ€™ve known all along but it just rang extra true today! In the last 3 weeks, Iโ€™ve spent most of my time in bed, have had to leave my job, and have found it challenging to walk from one room to the next. Itโ€™s frightening and debilitating. Logic tells me Iโ€™m getting worse but the truth is my body (in its genius form) is healing. I will be well again because I will support it to heal. If youโ€™re faced with a chronic health condition and have thoughts that creep in that youโ€™ll continue to get worse, do these three things: 1. Trust God 2. Believe your body is healing. Youโ€™re not getting sicker 3. Learn how to support your body to heal!  #chronicfatiguesyndrome #healthandwellness #dnrs #neuroplacticity #healing #hypothyroid #paleo #cfs #myalgicencephalomyelitis #organicfoods #wellness
Sigh. Relief. These words were spoken to me today. In that moment, the clouds started to part. Truthfully, I feel like Iโ€™ve been going backwards and getting sicker. Very little do doctors understand what Iโ€™m going through and at times it seems answers wonโ€™t ever come. Today I spent time with a doctor that not only suffered with what I am now but healed and is now helping many people. Only, there wasnโ€™t a prescription pad or cure. I was reminded my body heals itself when supported. Something Iโ€™ve known all along but it just rang extra true today! In the last 3 weeks, Iโ€™ve spent most of my time in bed, have had to leave my job, and have found it challenging to walk from one room to the next. Itโ€™s frightening and debilitating. Logic tells me Iโ€™m getting worse but the truth is my body (in its genius form) is healing. I will be well again because I will support it to heal. If youโ€™re faced with a chronic health condition and have thoughts that creep in that youโ€™ll continue to get worse, do these three things: 1. Trust God 2. Believe your body is healing. Youโ€™re not getting sicker 3. Learn how to support your body to heal! #chronicfatiguesyndrome  #healthandwellness  #dnrs  #neuroplacticity  #healing  #hypothyroid  #paleo  #cfs  #myalgicencephalomyelitis  #organicfoods  #wellness 
My goal as a Licensed Naturopathic Doctor is to help:
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๐Ÿ™ŒGive you answers and & help you take back control
๐Ÿ™ŒGive you back the ability to travel
๐Ÿ™ŒGive you their personality & energy back
๐Ÿ™ŒListen to you rather than just tell you what to do
๐Ÿ™ŒValidate your concerns
๐Ÿ™ŒDo a thorough investigation & research your case until I solve the problem.
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#yourmanitoba
#manitoba
#selkirk
#exploremb
#winnipeg
#allthingswinnipeg
#functionalmedicine 
#functionalmedicinedoctor
#functionalmedicinefoods
#functionalfoods
#functionalnutrition
#integrativemedicine
#chronicillness
#chronicfatigue
#chronicpain
#chronicpainwarrior
#chronicfatiguesyndrome
#adrenalfatigue
#wpgnow
#gowpg
#onlyinthepeg
#yourwinnipeg
#fortheloveofwinnipeg
#winnipeghealth
My goal as a Licensed Naturopathic Doctor is to help: . ๐Ÿ™ŒGive you answers and & help you take back control ๐Ÿ™ŒGive you back the ability to travel ๐Ÿ™ŒGive you their personality & energy back ๐Ÿ™ŒListen to you rather than just tell you what to do ๐Ÿ™ŒValidate your concerns ๐Ÿ™ŒDo a thorough investigation & research your case until I solve the problem. . . . . . #yourmanitoba  #manitoba  #selkirk  #exploremb  #winnipeg  #allthingswinnipeg  #functionalmedicine  #functionalmedicinedoctor  #functionalmedicinefoods  #functionalfoods  #functionalnutrition  #integrativemedicine  #chronicillness  #chronicfatigue  #chronicpain  #chronicpainwarrior  #chronicfatiguesyndrome  #adrenalfatigue  #wpgnow  #gowpg  #onlyinthepeg  #yourwinnipeg  #fortheloveofwinnipeg  #winnipeghealth 
New video with tips on well being and health. Pls subscribe to the channel: The Feel Good Cafe ๐Ÿ™๐Ÿ™
New video with tips on well being and health. Pls subscribe to the channel: The Feel Good Cafe ๐Ÿ™๐Ÿ™
This is what graded exercise does to some one with M.E..nearly kills them..in my darker moments I wish all those naysayers within the medical profession globally could live in that body too right and bottom left.. the misery is excrutiating and the self loathing destroys self esteem..let's not forget being bed bound all but.  I may be smiling but behind those eyes all I'm thinking about is death.  Wake up medical folk.M.E is Real .A shrink graded my intelligence at top 5% and my mind as completely stopped balance and fully aware of my situation without anger or malice or hatred or bitterness..He , and three others, asked how I managed it.Simple. I no longer fear Death. And the book . Tibetan book of living and dying dried my tears and embrace my Destiny without wishing I could be either my old self. Or be someone else. #mecfs #chronicfatiguesyndrome #chronicfatigue #exhaustion #death #buddhism
This is what graded exercise does to some one with M.E..nearly kills them..in my darker moments I wish all those naysayers within the medical profession globally could live in that body too right and bottom left.. the misery is excrutiating and the self loathing destroys self esteem..let's not forget being bed bound all but. I may be smiling but behind those eyes all I'm thinking about is death. Wake up medical folk.M.E is Real .A shrink graded my intelligence at top 5% and my mind as completely stopped balance and fully aware of my situation without anger or malice or hatred or bitterness..He , and three others, asked how I managed it.Simple. I no longer fear Death. And the book . Tibetan book of living and dying dried my tears and embrace my Destiny without wishing I could be either my old self. Or be someone else. #mecfs  #chronicfatiguesyndrome  #chronicfatigue  #exhaustion  #death  #buddhism 
When you have an incredible solution to so many physical and emotional symptoms literally at your fingertips....that!! What a gift to be able to give to  be able to give to your family and friends! Form an orderly queue! ๐Ÿ˜‚ I can teach you to carry out this spinal therapy on your family so that you can start to benefit too! #spinaltherapy #spinaloiltherapy #essentialoils #symphonyofthecells #boydktruman #oilprotocols #inflammatoryprotocol #helpingothersnaturally  #16incredibleprotocols #doterraoils #chronicfatiguesyndrome #lupus #spondylitis #arthritis #exhaustion #epsteinbarr  #joints #migraine #thelistgoeson #getintouch #qualifiedinsymphonyofthecells
When you have an incredible solution to so many physical and emotional symptoms literally at your fingertips....that!! What a gift to be able to give to be able to give to your family and friends! Form an orderly queue! ๐Ÿ˜‚ I can teach you to carry out this spinal therapy on your family so that you can start to benefit too! #spinaltherapy  #spinaloiltherapy  #essentialoils  #symphonyofthecells  #boydktruman  #oilprotocols  #inflammatoryprotocol  #helpingothersnaturally  #16incredibleprotocols  #doterraoils  #chronicfatiguesyndrome  #lupus  #spondylitis  #arthritis  #exhaustion  #epsteinbarr  #joints  #migraine  #thelistgoeson  #getintouch  #qualifiedinsymphonyofthecells 
Chronic illness ain't fun. Even less fun: when documentary producers intentionally set out to make you look stupid & crazy. I was not one of the patients filmed, but I appreciate their struggle. Please TELL NETFLIX TO CANCEL THE SERIES 'AFFLICTED.' More info at the LA Times: https://tinyurl.com/suckitNetflix
Chronic illness ain't fun. Even less fun: when documentary producers intentionally set out to make you look stupid & crazy. I was not one of the patients filmed, but I appreciate their struggle. Please TELL NETFLIX TO CANCEL THE SERIES 'AFFLICTED.' More info at the LA Times: https://tinyurl.com/suckitNetflix
I found my photos from the big power cut/flooding in 2015! Not many photos as power cut ๐Ÿ˜ฌ But we were super lucky compared to surrounding areas in terms of the damage. 3rd pic was the main road into town, 4th pic was me trying to sleep & stay warm; it was 6C INDOORS, & I'm extremely sensitive to the cold ๐Ÿ˜… The last pic was taken on the 4th day, when the town had power back, but our village didn't ๐Ÿ˜‚ We had no phone coverage & Lyle's family in this area didn't even think to check up on us ๐Ÿ™„๐Ÿ˜… For the extent of the power cut we had no food, no way to travel...we cooked frozen 
food on a disposable BBQ we had in our shed ๐Ÿ˜ƒ Lyle almost set the garden on fire, accidentally leaving something near the BBQ, which we laughed about as we wouldn't have been able to call emergency services ๐Ÿ˜‚ All our neighbours on our street left to family members' houses on the 1st night, so it really felt like we were totally alone...very surreal experience ๐Ÿ˜ƒ
#coldurticaria #stormdesmond #powercut #weatherwarning #storm #flooding #floods #floodseason #disabled #disability #disabilityawareness #spoonie #myalgicencephalomyelitis #cfsme #chronicfatiguesyndrome #POTSsyndrome #actuallyautistic #chronicpain #painsomnia #chronicfatiguesyndrome
I found my photos from the big power cut/flooding in 2015! Not many photos as power cut ๐Ÿ˜ฌ But we were super lucky compared to surrounding areas in terms of the damage. 3rd pic was the main road into town, 4th pic was me trying to sleep & stay warm; it was 6C INDOORS, & I'm extremely sensitive to the cold ๐Ÿ˜… The last pic was taken on the 4th day, when the town had power back, but our village didn't ๐Ÿ˜‚ We had no phone coverage & Lyle's family in this area didn't even think to check up on us ๐Ÿ™„๐Ÿ˜… For the extent of the power cut we had no food, no way to travel...we cooked frozen food on a disposable BBQ we had in our shed ๐Ÿ˜ƒ Lyle almost set the garden on fire, accidentally leaving something near the BBQ, which we laughed about as we wouldn't have been able to call emergency services ๐Ÿ˜‚ All our neighbours on our street left to family members' houses on the 1st night, so it really felt like we were totally alone...very surreal experience ๐Ÿ˜ƒ #coldurticaria  #stormdesmond  #powercut  #weatherwarning  #storm  #flooding  #floods  #floodseason  #disabled  #disability  #disabilityawareness  #spoonie  #myalgicencephalomyelitis  #cfsme  #chronicfatiguesyndrome  #POTSsyndrome  #actuallyautistic  #chronicpain  #painsomnia  #chronicfatiguesyndrome 
About 2.5 million Americans have chronic fatigue syndrome (CFS, CFIDS). CFS is an autoimmune disorder that can cause extreme exhaustion, pain in your muscles/joints, and cognitive symptoms such as confusion. Some patients can be worn out by simply walking across a room. Talk to our pharmacist if you think you may have #CFS. #CFIDS #chronicfatiguesyndrome #autoimmunedisorder #health #compounding #compoundingpharmacy
GRIEVING MY OLD LIFE: the past week and a half has been intense to say the least... going back to school was a huge shift for me it made me see all the things Iโ€™ve been missing out on and then it turned into a whole spiral of everything that has happened since I got sick! 
Since last Monday Iโ€™ve been really sad and crying all the time till now so we increased my time with my psychiatrist and psychologist to help with that 
The headache specialist I saw yesterday thinks that all my pain is psychologically based so now we are really putting in effort to get that sorted out
She is working with my chronic pain team to lower my medication and to focus on the anti depressants and anti anxiety meds 
This last bit has been the hardest week Iโ€™ve been through from feeling sad 24/7 to crying randomly especially at night,  itโ€™s really just hit me what has happened to me in the last year
Keep you guys posted on this new treatment plan which includes trying new things that can make me happy like painting! .
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#chronicpain #chronicillness #chronicheadache #spoonieproblems #spoonielife  #chronicallyill #gastroparesis #myofascialpainsyndrome #spooniesupport #spooniecommunity #chronicheadaches #tired #spoonies #fibromyalgia  #spooniefamily #spoonieprobs #spoonieliving  #tryingmybest #reallife #chroniclife #chronicdisease #chronicfatiguesyndrome #chronicmigraine #chronicmigraines #chronicfatiguesyndrome #chronicfatigue #postviralfatigue #postviralfatiguesyndrome
GRIEVING MY OLD LIFE: the past week and a half has been intense to say the least... going back to school was a huge shift for me it made me see all the things Iโ€™ve been missing out on and then it turned into a whole spiral of everything that has happened since I got sick! Since last Monday Iโ€™ve been really sad and crying all the time till now so we increased my time with my psychiatrist and psychologist to help with that The headache specialist I saw yesterday thinks that all my pain is psychologically based so now we are really putting in effort to get that sorted out She is working with my chronic pain team to lower my medication and to focus on the anti depressants and anti anxiety meds This last bit has been the hardest week Iโ€™ve been through from feeling sad 24/7 to crying randomly especially at night, itโ€™s really just hit me what has happened to me in the last year Keep you guys posted on this new treatment plan which includes trying new things that can make me happy like painting! . . . . . . #chronicpain  #chronicillness  #chronicheadache  #spoonieproblems  #spoonielife  #chronicallyill  #gastroparesis  #myofascialpainsyndrome  #spooniesupport  #spooniecommunity  #chronicheadaches  #tired  #spoonies  #fibromyalgia  #spooniefamily  #spoonieprobs  #spoonieliving  #tryingmybest  #reallife  #chroniclife  #chronicdisease  #chronicfatiguesyndrome  #chronicmigraine  #chronicmigraines  #chronicfatiguesyndrome  #chronicfatigue  #postviralfatigue  #postviralfatiguesyndrome 
It's hard to eat out while on a Keto diet. But I find there's usually something on the menu that fits the bill or can be adapted on kind request.

I managed to stay keto friendly today at @wagamama_uk by ordering the  Tori Kara Age as a starter while keeping it light with the Pad Thai salad as a main. Yum.

Keeping to a keto diet has definitely helped my overall health and CFS symptoms. What's your experiences with Keto? 
#ketoeats #ketofood #ketofood #ketodiet #instafood #lowcarbdiet #lowcarbstyle  #lowcarbhighfat #healthylifestyle #healthyfood #foodphotography #foodporn #foody #yummy @leedstrinityshoppingcentre  #cfsrecovery #wellness #protein #lowcarbmeal #chronicillness #spoonie  #chronicfatiguesyndrome #spoonies #spooniewarrior #recoveryispossible #wagamama #salad #chicken
It's hard to eat out while on a Keto diet. But I find there's usually something on the menu that fits the bill or can be adapted on kind request. I managed to stay keto friendly today at @wagamama_uk by ordering the Tori Kara Age as a starter while keeping it light with the Pad Thai salad as a main. Yum. Keeping to a keto diet has definitely helped my overall health and CFS symptoms. What's your experiences with Keto? #ketoeats  #ketofood  #ketofood  #ketodiet  #instafood  #lowcarbdiet  #lowcarbstyle  #lowcarbhighfat  #healthylifestyle  #healthyfood  #foodphotography  #foodporn  #foody  #yummy  @leedstrinityshoppingcentre #cfsrecovery  #wellness  #protein  #lowcarbmeal  #chronicillness  #spoonie  #chronicfatiguesyndrome  #spoonies  #spooniewarrior  #recoveryispossible  #wagamama  #salad  #chicken 
In 1991 Feb there was a blizzard in Britain that last two weeks freezing up most of the UK..after the first week I decided I'd like to drive to n.w Scotland and take some photos although I live 350 miles away. My then wife begged me firstly not to go ,then seeing I was hell bent on going,begged me not to tell her parents as they'd drag her away and get me sectioned. You see, I had been 22hrs a day in bed by now for 18months and the mind kind of goes somewhere else. What had I to lose?I wanted to die anyway. So..smashing my body to more pieces by the time I'd got to Edinburgh in Scotland I had incredible flue like symptoms. . Everywhere we went the motorways were down in places to one lane or roads blocked..but I figured west coast would be fine.it was. To cut a very long story short I got M.E.. on top of everything else. But.  I got a few photos.here they are. #mecfs #fatigue #chronicfatiguesyndrome #chronicfatigue #scotland
In 1991 Feb there was a blizzard in Britain that last two weeks freezing up most of the UK..after the first week I decided I'd like to drive to n.w Scotland and take some photos although I live 350 miles away. My then wife begged me firstly not to go ,then seeing I was hell bent on going,begged me not to tell her parents as they'd drag her away and get me sectioned. You see, I had been 22hrs a day in bed by now for 18months and the mind kind of goes somewhere else. What had I to lose?I wanted to die anyway. So..smashing my body to more pieces by the time I'd got to Edinburgh in Scotland I had incredible flue like symptoms. . Everywhere we went the motorways were down in places to one lane or roads blocked..but I figured west coast would be fine.it was. To cut a very long story short I got M.E.. on top of everything else. But. I got a few photos.here they are. #mecfs  #fatigue  #chronicfatiguesyndrome  #chronicfatigue  #scotland 
Suit off and trainers on... I can cope with days in prison when this is me an hour later ๐Ÿ™Œ๐Ÿป @montaneofficial @suunto @mountainfuel_uk #lawyerswhorun #run #running #training #trailrunning #fellrunning #runitfast #swimbikerunworld #ultrarunning #ultramarathons #vegan #veganrunner #furtherfaster #mymontane #trailandkale #montane #ultrarunning #ultramarathons #moutainfuel #feelgoodfuel #loveliverun #outdoorwomen #vegan #peakdistrict #cfs #chronicfatiguesyndrome #thisismyadventure #derbyshire
Suit off and trainers on... I can cope with days in prison when this is me an hour later ๐Ÿ™Œ๐Ÿป @montaneofficial @suunto @mountainfuel_uk #lawyerswhorun  #run  #running  #training  #trailrunning  #fellrunning  #runitfast  #swimbikerunworld  #ultrarunning  #ultramarathons  #vegan  #veganrunner  #furtherfaster  #mymontane  #trailandkale  #montane  #ultrarunning  #ultramarathons  #moutainfuel  #feelgoodfuel  #loveliverun  #outdoorwomen  #vegan  #peakdistrict  #cfs  #chronicfatiguesyndrome  #thisismyadventure  #derbyshire 
The importance of detoxification / elimination / cleansing / maintenance of the body = maintenance of a car --> you change the oil and fluids periodically but we NEVER do that for our body!
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99.999% of doctors don't underatand the importance of detoxification!
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99.999% of doctors don't understand the connection of internal cleanliness with self-healing!
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99.999999% of doctors don't understand how to reverse chronic conditions!
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That's why this is so crucial to understand. Because if you don't understand it and you don't find a practitioner that truly understands it you will NOT HEAL.
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It's sad but true. Healing can only take place by means of the body's own self-healing, and self-healing only through an unobstructed vehicle
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If you enjoyed this post and would like more information about this kind of thing, join the private Healing ALS | MS Naturally Facebook Group: https://www.facebook.com/groups/healingalsmsnaturally/
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#mswarrior #autoimmunediet #als #chronicfatiguesyndrome #autoimmuneprotocol #detoxification #herbalism #multiplesclerosis #multiplesclerosisawareness #wahlsprotocol #multiplesclerosisfighter #fibromyalgiaawareness #fibromyalgiawarrior #scleroderma #neurological #epilepsy #asthma #spoonielife #spoonies #spoonieproblems #spooniewarrior #chronicallyill #chronicillnesswarrior #disabled #butyoudontlooksick #invisibleillnessawareness #cfs
The importance of detoxification / elimination / cleansing / maintenance of the body = maintenance of a car --> you change the oil and fluids periodically but we NEVER do that for our body! . 99.999% of doctors don't underatand the importance of detoxification! . 99.999% of doctors don't understand the connection of internal cleanliness with self-healing! . 99.999999% of doctors don't understand how to reverse chronic conditions! . That's why this is so crucial to understand. Because if you don't understand it and you don't find a practitioner that truly understands it you will NOT HEAL. . It's sad but true. Healing can only take place by means of the body's own self-healing, and self-healing only through an unobstructed vehicle . If you enjoyed this post and would like more information about this kind of thing, join the private Healing ALS | MS Naturally Facebook Group: https://www.facebook.com/groups/healingalsmsnaturally/ . . . . . . #mswarrior  #autoimmunediet  #als  #chronicfatiguesyndrome  #autoimmuneprotocol  #detoxification  #herbalism  #multiplesclerosis  #multiplesclerosisawareness  #wahlsprotocol  #multiplesclerosisfighter  #fibromyalgiaawareness  #fibromyalgiawarrior  #scleroderma  #neurological  #epilepsy  #asthma  #spoonielife  #spoonies  #spoonieproblems  #spooniewarrior  #chronicallyill  #chronicillnesswarrior  #disabled  #butyoudontlooksick  #invisibleillnessawareness  #cfs 
So true. Atleast of me. My CFS took hold just after my GCSEs. When yes I had balence in my life (well compared to now) but in the lead up to exams I stopped climbing, dog walking with the fam, going to church! Because I had to study. I was predicted straight A's and I wasn't on target for that.  Understandably because my secondary school years were far from easy. It's no wonder I didn't reach my academic potential. I went from C's and B's in Jan/Feb mocks to 2A*s 4As 2Bs and 2Cs. But still there was that part of me that felt I hadn't tried enough. A levels, AS I got 80-100% in most exams because God did I push myself in the lead up to exams.
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 A2 I had expectations to uphold and my CFS was worse than it had been before. I had to take a step back and again didn't reach my academic potential. Dropping from A's in AS exams to getting C's and Ds in A2 exams still affects me today. 
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Fast forward to uni, my focus was more on being a perfect person. Doing all the things. The job, the law activities, the degree, the social life. So obviously my first year grades suffered. Because I'd messed up (got 2:2s) in all my coursework exams I was not giving myself a break. Despite the fatigue. Despite endo pain being so bad that I was crying in the library toilets. 
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2nd year comes along. I start with the perfect person. 2 committee positions, job, other social activities and doing all my reading and seminar prep (go me!) But it wasn't working. I had to cut the majority of my life outside of law. Which fueled the perfectionism. I WAS SO INTENSE! And I got a first. But that only made my health worse. 
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It's only Tuesday and already I'm aware that I'm not well enough to be the law student I want to be. I expect myself to be. The overactivity of the last couple of days has started catching up. I can't do 4 modules and a dissertation. But I also can't quite face taking a year out. My family understand so little that they would hold it against me forever. 
#cfsme #mecfs #myalgicencephalomyelitis #chronicfatiguesyndrome #spoonie #spooniesisters
So true. Atleast of me. My CFS took hold just after my GCSEs. When yes I had balence in my life (well compared to now) but in the lead up to exams I stopped climbing, dog walking with the fam, going to church! Because I had to study. I was predicted straight A's and I wasn't on target for that. Understandably because my secondary school years were far from easy. It's no wonder I didn't reach my academic potential. I went from C's and B's in Jan/Feb mocks to 2A*s 4As 2Bs and 2Cs. But still there was that part of me that felt I hadn't tried enough. A levels, AS I got 80-100% in most exams because God did I push myself in the lead up to exams. ________ A2 I had expectations to uphold and my CFS was worse than it had been before. I had to take a step back and again didn't reach my academic potential. Dropping from A's in AS exams to getting C's and Ds in A2 exams still affects me today. ______ Fast forward to uni, my focus was more on being a perfect person. Doing all the things. The job, the law activities, the degree, the social life. So obviously my first year grades suffered. Because I'd messed up (got 2:2s) in all my coursework exams I was not giving myself a break. Despite the fatigue. Despite endo pain being so bad that I was crying in the library toilets. ____ 2nd year comes along. I start with the perfect person. 2 committee positions, job, other social activities and doing all my reading and seminar prep (go me!) But it wasn't working. I had to cut the majority of my life outside of law. Which fueled the perfectionism. I WAS SO INTENSE! And I got a first. But that only made my health worse. ___ It's only Tuesday and already I'm aware that I'm not well enough to be the law student I want to be. I expect myself to be. The overactivity of the last couple of days has started catching up. I can't do 4 modules and a dissertation. But I also can't quite face taking a year out. My family understand so little that they would hold it against me forever. #cfsme  #mecfs  #myalgicencephalomyelitis  #chronicfatiguesyndrome  #spoonie  #spooniesisters 
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love you fibromite family warrios.. You are the real warriors ๐Ÿ’œ๐Ÿ’œ
Lot of Love ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ
Please share and tag your fibro warriors ๐Ÿ’œ๐Ÿ’œ
#fibromyalgia #chronicpain #chronicillness #anxiety #spoonie #ptsd #chronicfatigue #health #pain #wellness #arthritis #invisibleillness #fibromyalgiawarrior #fibromyalgiaawareness #chronicfatiguesyndrome #healthylifestyle #lupus #wellbeing #painrelief #fibromyalgiafacts #strength #pregnancy #fibro #cbd #fibrowarrior #motivation #fibrostrong #chronicallyfabulous #liveyourbestlife #bhfyp
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love you fibromite family warrios.. You are the real warriors ๐Ÿ’œ๐Ÿ’œ Lot of Love ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Please share and tag your fibro warriors ๐Ÿ’œ๐Ÿ’œ #fibromyalgia  #chronicpain  #chronicillness  #anxiety  #spoonie  #ptsd  #chronicfatigue  #health  #pain  #wellness  #arthritis  #invisibleillness  #fibromyalgiawarrior  #fibromyalgiaawareness  #chronicfatiguesyndrome  #healthylifestyle  #lupus  #wellbeing  #painrelief  #fibromyalgiafacts  #strength  #pregnancy  #fibro  #cbd  #fibrowarrior  #motivation  #fibrostrong  #chronicallyfabulous  #liveyourbestlife  #bhfyp 
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love you fibromite family warrios.. You are the real warriors ๐Ÿ’œ๐Ÿ’œ
Lot of Love ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ
Please share and tag your fibro warriors ๐Ÿ’œ๐Ÿ’œ
#fibromyalgia #chronicpain #chronicillness #anxiety #spoonie #ptsd #chronicfatigue #health #pain #wellness #arthritis #invisibleillness #fibromyalgiawarrior #fibromyalgiaawareness #chronicfatiguesyndrome #healthylifestyle #lupus #wellbeing #painrelief #fibromyalgiafacts #strength #pregnancy #fibro #cbd #fibrowarrior #motivation #fibrostrong #chronicallyfabulous #liveyourbestlife #bhfyp
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love you fibromite family warrios.. You are the real warriors ๐Ÿ’œ๐Ÿ’œ Lot of Love ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Please share and tag your fibro warriors ๐Ÿ’œ๐Ÿ’œ #fibromyalgia  #chronicpain  #chronicillness  #anxiety  #spoonie  #ptsd  #chronicfatigue  #health  #pain  #wellness  #arthritis  #invisibleillness  #fibromyalgiawarrior  #fibromyalgiaawareness  #chronicfatiguesyndrome  #healthylifestyle  #lupus  #wellbeing  #painrelief  #fibromyalgiafacts  #strength  #pregnancy  #fibro  #cbd  #fibrowarrior  #motivation  #fibrostrong  #chronicallyfabulous  #liveyourbestlife  #bhfyp 
Not today & probably not tomorrow either.... Just bring me food hugs & meds.... Or.. Leave me be.... #mathematics #zeroblinders #oracle #chronicpain #chronicfatiguesyndrome #fibromyalgia #fibrowarrior #matter #oracle #feminine #divinemasculine #divineguidance #divinemother #recovery #healing #cptsd #fuckfibro
Why donโ€™t they get it?
โ €โ €โ €โ €โ €โ €โ €โ €โ €
Itโ€™s not just our family and our friends that donโ€™t understand, itโ€™s our own medical professionals.
โ €โ €โ €โ €โ €โ €โ €โ €โ €
If youโ€™ve ever been turned away from A&E or misdiagnosed youโ€™ll understand what Iโ€™m saying. It takes a toll.
โ €โ €โ €โ €โ €โ €โ €โ €โ €
Living with #invisibleillness is hard enough, but to not have it recognised, to not have it accepted? Thatโ€™s a whole extra level of pain right there. โ €โ €โ €โ €โ €โ €โ €โ €โ €
Iโ€™m on a mission to create a community, an online village, because being surrounded by other women who totally get it when I say today sucks, means more than most can understand.
โ €โ €โ €โ €โ €โ €โ €โ €โ €
Do you get it? 
#theprojectpatchwork
Why donโ€™t they get it? โ €โ €โ €โ €โ €โ €โ €โ €โ € Itโ€™s not just our family and our friends that donโ€™t understand, itโ€™s our own medical professionals. โ €โ €โ €โ €โ €โ €โ €โ €โ € If youโ€™ve ever been turned away from A&E or misdiagnosed youโ€™ll understand what Iโ€™m saying. It takes a toll. โ €โ €โ €โ €โ €โ €โ €โ €โ € Living with #invisibleillness  is hard enough, but to not have it recognised, to not have it accepted? Thatโ€™s a whole extra level of pain right there. โ €โ €โ €โ €โ €โ €โ €โ €โ € Iโ€™m on a mission to create a community, an online village, because being surrounded by other women who totally get it when I say today sucks, means more than most can understand. โ €โ €โ €โ €โ €โ €โ €โ €โ € Do you get it? #theprojectpatchwork 
Hey guys ๐Ÿ‘‹, Iโ€™m back from a lil hiatus on here. My health is fickle at the best of times but recently every time I try to pick myself back up I burn out and collapse in a heap again โ˜บ๏ธ. Anyone else experience this? Anyways, this green spinach and nana smoothie bowl was pretty epic. I snuck some ๐Ÿฅ‘ in there too obviously ๐Ÿ˜‰.
Hey guys ๐Ÿ‘‹, Iโ€™m back from a lil hiatus on here. My health is fickle at the best of times but recently every time I try to pick myself back up I burn out and collapse in a heap again โ˜บ๏ธ. Anyone else experience this? Anyways, this green spinach and nana smoothie bowl was pretty epic. I snuck some ๐Ÿฅ‘ in there too obviously ๐Ÿ˜‰.
When your body says no and your brain say yes...Lets make a #suculent #wreath ๐Ÿ˜„
#autoimmunedisease #chronicfatiguesyndrome #workoholic #nothingcanstopme #fibrowarrior #punterest#inspired #homedecor #paleohappymom
not the most aesthetically pleasing meal, but soooo tasty ๐Ÿ˜ iโ€™m going home on thursday for the weekend so wanted to just use up what i have in the flat - i messaged @livsfoodlife and told her what i had in and voila! she hit me with this from @pinchofnom ๐Ÿ™Œ๐Ÿผ sheโ€™s a good woman. never had this before but it was super easy to make and delicious! syn free using the cheese as my hex A. got the other half left over for tomorrowโ€™s lunch too ๐Ÿ˜๐Ÿ™Œ๐Ÿผ
not the most aesthetically pleasing meal, but soooo tasty ๐Ÿ˜ iโ€™m going home on thursday for the weekend so wanted to just use up what i have in the flat - i messaged @livsfoodlife and told her what i had in and voila! she hit me with this from @pinchofnom ๐Ÿ™Œ๐Ÿผ sheโ€™s a good woman. never had this before but it was super easy to make and delicious! syn free using the cheese as my hex A. got the other half left over for tomorrowโ€™s lunch too ๐Ÿ˜๐Ÿ™Œ๐Ÿผ
I may look โ€œnormalโ€ & โ€œable bodiedโ€ but Iโ€™m not... I get these lovely needles jammed into my back, neck, & shoulders to be able to somewhat somewhat function. Iโ€™m still in pain 24/7 but at least with these & a myriad of medications, Iโ€™m able to put on a brave face & act like Iโ€™m โ€œnormalโ€ #fibromyalgia #chronicpainwarrior #chronicpain #steroidinjections #needles #chronicfatiguesyndrome #chronicpainsyndrome #hypermobilitysyndrome #arthritissucks #invisibleillnessawareness #invisibleillness #justbecauseidontlooksickdoesntmeanimnot #justbecauseidontlookdisableddoesntmeanimnot
I may look โ€œnormalโ€ & โ€œable bodiedโ€ but Iโ€™m not... I get these lovely needles jammed into my back, neck, & shoulders to be able to somewhat somewhat function. Iโ€™m still in pain 24/7 but at least with these & a myriad of medications, Iโ€™m able to put on a brave face & act like Iโ€™m โ€œnormalโ€ #fibromyalgia  #chronicpainwarrior  #chronicpain  #steroidinjections  #needles  #chronicfatiguesyndrome  #chronicpainsyndrome  #hypermobilitysyndrome  #arthritissucks  #invisibleillnessawareness  #invisibleillness  #justbecauseidontlooksickdoesntmeanimnot  #justbecauseidontlookdisableddoesntmeanimnot 
I've uploaded this to push myself to get the story up this week. These pics are referenced in main text appearing soon..I'm aware that for every living being theirs a road mapped out for each as individual as a snowflake .but. ,that also there will always be a few bumpy parts to Navigate.. here's one of my bumps. ,And a picture of a car crash ๐Ÿ™„๐Ÿ˜† oh...and forgive the dick pose in the bottom right corner..it's relevant to next post #mecfs #fatigue #chronicfatiguesyndrome #chronicfatigue #exhaustion
I've uploaded this to push myself to get the story up this week. These pics are referenced in main text appearing soon..I'm aware that for every living being theirs a road mapped out for each as individual as a snowflake .but. ,that also there will always be a few bumpy parts to Navigate.. here's one of my bumps. ,And a picture of a car crash ๐Ÿ™„๐Ÿ˜† oh...and forgive the dick pose in the bottom right corner..it's relevant to next post #mecfs  #fatigue  #chronicfatiguesyndrome  #chronicfatigue  #exhaustion 
Tomorrow will be interesting! #stormhelene didn't affect us too much, just strong winds, but #stormali is set to hit us harder. We're scheduled 60mph wind, with some flooding. Our village ALWAYS floods, & we always have power cuts any time it rains heavily or there's #galeforcewinds, so ๐Ÿ™„ We haven't had a big power cut since 2015, when we were without power for 4 days...in winter, with no roads accessible due to flooding, no phone service, & no heating ๐Ÿ˜‚ I doubt we'll have a significant power cut (fingers crossed) but we're gonna get some candles in today just to be safe ๐Ÿ˜ฌ
#powercut #weatherwarning #storm #flooding #floods #floodseason #disabled #disability #disabilityawareness #spoonie #myalgicencephalomyelitis #cfsme #chronicfatiguesyndrome #POTSsyndrome #actuallyautistic #chronicpain #painsomnia #chronicfatiguesyndrome
Tomorrow will be interesting! #stormhelene  didn't affect us too much, just strong winds, but #stormali  is set to hit us harder. We're scheduled 60mph wind, with some flooding. Our village ALWAYS floods, & we always have power cuts any time it rains heavily or there's #galeforcewinds , so ๐Ÿ™„ We haven't had a big power cut since 2015, when we were without power for 4 days...in winter, with no roads accessible due to flooding, no phone service, & no heating ๐Ÿ˜‚ I doubt we'll have a significant power cut (fingers crossed) but we're gonna get some candles in today just to be safe ๐Ÿ˜ฌ #powercut  #weatherwarning  #storm  #flooding  #floods  #floodseason  #disabled  #disability  #disabilityawareness  #spoonie  #myalgicencephalomyelitis  #cfsme  #chronicfatiguesyndrome  #POTSsyndrome  #actuallyautistic  #chronicpain  #painsomnia  #chronicfatiguesyndrome 
This week I celebrated my 100 days post stem cells . The past three and a half months have been the hardest but most important days of my life as my stem cells are adapting and multiplying in their new home . Everyday I see improvements some big and some small .. when I was told sit tight for a year this was  the hardest part of my treatment but I have to remind myself Rome was not built in a day either is a new immune system . I canโ€™t thank the people enough that has stuck by me everyday especially the past few months . I also cannot thank INFUSIO and my medical team  enough for given me my life back I donโ€™t know how I can ever repay them . ๐Ÿ’š๐Ÿ’š This is the happiest I have ever been and I am enjoying every minute of my new life and I wanted to thank the people that  helped me get here .  Remember there is always HOPE (Hold on Pain Ends ) ๐Ÿ’š๐Ÿ’š๐Ÿ’š
#infusiofrankfurtgermany#infusiobeverlyhills #lymediseaseawareness#stemcells#fibromyalgia#lupus#chronicfatiguesyndrome #invisibleillness recovery#thebestisyettocomeโค๏ธ
This week I celebrated my 100 days post stem cells . The past three and a half months have been the hardest but most important days of my life as my stem cells are adapting and multiplying in their new home . Everyday I see improvements some big and some small .. when I was told sit tight for a year this was the hardest part of my treatment but I have to remind myself Rome was not built in a day either is a new immune system . I canโ€™t thank the people enough that has stuck by me everyday especially the past few months . I also cannot thank INFUSIO and my medical team enough for given me my life back I donโ€™t know how I can ever repay them . ๐Ÿ’š๐Ÿ’š This is the happiest I have ever been and I am enjoying every minute of my new life and I wanted to thank the people that helped me get here . Remember there is always HOPE (Hold on Pain Ends ) ๐Ÿ’š๐Ÿ’š๐Ÿ’š #infusiofrankfurtgermany #infusiobeverlyhills  #lymediseaseawareness #stemcells #fibromyalgia #lupus #chronicfatiguesyndrome  #invisibleillness  recovery#thebestisyettocome โค๏ธ
been dealing with a flare up for the past few weeks, but iโ€™m finally getting better! so thankful for my cuddle bugs to comfort me๐Ÿฐ๐Ÿถ
been dealing with a flare up for the past few weeks, but iโ€™m finally getting better! so thankful for my cuddle bugs to comfort me๐Ÿฐ๐Ÿถ
When you're not feeling your best, what's your go-to outfit?๐Ÿ‘š
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For us, we love the Mighty Wrap. It's not only functional, but it can make any outfit look more fab ๐Ÿ‘—
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Share with us your fave outfit in the comments below. ๐Ÿ‘‡
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๐Ÿ‘ฉ @olive_hold_the_fries
When you're not feeling your best, what's your go-to outfit?๐Ÿ‘š . For us, we love the Mighty Wrap. It's not only functional, but it can make any outfit look more fab ๐Ÿ‘— . Share with us your fave outfit in the comments below. ๐Ÿ‘‡ . ๐Ÿ‘ฉ @olive_hold_the_fries