Let’s talk about digestion!
Here’s a quote taken off google “Cystic fibrosis often affects the pancreas and digestive system because the mucus in these areas becomes thick and sticky. Your pancreas produces digestive enzymes, which travel to the intestines and break down (digest) food so that nutrients can be absorbed by the body.” .
So because my pancreas is effected by the CF it doesn’t produce the enzymes to break my foods down as well as take the vitamins and nutrients I need from my food and distribute it to my body. Without the orange pills in the picture above I wouldn’t gain weight and I wouldn’t get anything from my food. I would basically be eating for fun - but really, what’s more fun than that 😂. I have to take 6 enzymes (orange pills) every time I eat a meal, and 4-5 with snacks to get my nutrition. .
The other pills in my hand are vitamins and antibiotics I’m on daily. My body struggles with absorbing vitamins in my foods so these are back ups to make sure I’m actually getting them! .
I was thinking about all the amazing people in my life the other day, and I realized I personally know little ones with #foodallergies#autism#epilepsy#downsyndrome#cysticfibrosis and recently added is a darling great niece with #diabetes . I know as a care giver that all you want to do is give them the strength to endure the many daily challenges they face. One thing I did for my daughter with food allergies was to create a little stuffed support puppy. A safe listening ear, someone to hold tight when things get scary, and a buddy to help her raise awareness. Her puppy Princess has become such a beloved companion, we decided it was time for everyone to have the opportunity to bring a snuggly little companion into their home. Adopt yours today! Just $25 🐶💕 www.etsy.com/shop/pawsomesupportpups
It's all about balance 💛
The first appointment we ever went to at DeVos his doctor told us to have the same expectations for Miles as we would a child without CF. Sure, his day to day will look a little different than his friends', but I hope Miles remembers CF isn't his identifier, just one part of his life.
This is what a 10 day supply of antibiotics looks like when it's delivered to my door... Three boxes full of antibiotics and two boxes of supplies (saline, heparin, tubing, etc.) make up my largest medical courier delivery to date. 😆 Since tons of CF drugs have to be ordered specially and thus take longer to get our hands on we try to be flexible with delivery and pick up expectations. Last night I was scheduled to work at my family's restaurant (a position I love and is so flexible with my health and CF responsibilities) and my medications still hadn't arrived by the time I had to leave home so the courier brought them to me at work. Since I'll be reconstituting my own doses they were able to deliver the whole 10 day supply in one trip (usually they deliver 3-4 days at a time). The perks of being an experienced patient and leveling up in the IV game! 🤘