THIS IS ON MY MIND!
This is #mywhy
She was born without ear canals!
She was #afewmothsold here. #sheis12now
My body built her! My body forgot to give her hearing! #stupidbody
That headband has a hearing aid attached.
She can’t hear like we do. #borndeaf
She doesn’t have the halls that absorb and direct sound to her middle ear. #noearcanals
So, this #bahahearingaid , made by @cochlearamericas is the sound processor that delivers sound!
It makes sound into digital vibrations through her entire skull!
Unfortunately, this unit is dying, it’s technology is obsolete.
So, we are in the process of getting a new one.
But the cost of doc appointments, referrals, and insurance is #breakingmyheart
I will get her what she needs, but sometimes it feels like too much!
She has a #titaniumscrew that was surgically attached to her skull, she’s had 3 surgeries just for that.
And then, due to #microtiaatresia , she had #earreconstruction Surgery.
Calling on all parents for help! This is the sad little face I have been met by every sleep time since Friday. 😭 I thought it was because we traveled this weekend, but it is continuing and breaking my heart 💔 Alexandra cries hysterically and clutches to whatever body part she can get. It's like she's terrified we're going to leave her. Sunday night she stood in her crib waiting to see if we'd come back for her so long that she fell asleep standing up several times until she finally slid down asleep into a sitting position. 😲 I am devastated. This is my girl who sleeps 12 hours at night and takes 3 hour naps. Help please!