2 weeks to hysterectomy! TMI alert 🚨 aftermath of period cravings. 🍪🍫 My first period was on Valentine’s Day in 6th grade. 💜 I wasn’t completely informed. My mom said we needed to go pick up some pads. I was so confused, “but it’s done, it happened and it’s over!” My mom then very patiently (and without laughing) told me that it will last several days. WHAT!?!?!??? I was pissed!! Then I cried. Why in the world would God create us this way!!! I then remember, very vividly, standing in front of the bathroom mirror and saying to myself, “I’m a woman now.” 🤣 Since then - painful cramps, major moodiness, anxiety all surrounding my cycle. 🎈❤️❌🔴
So this morning I started my last period... and I cried again! Like, completely sobbed!!! Sad? Feeling weird about losing more body parts that make me a woman? Excited? Scared? Relief? All of the above?? Yes!!! This whole process of mentally preparing is a beautiful and scary process!
Periods 2/14/95-11/14/18 ✌🏼🔴 🤣
Hola! Es precisamente Chiara de @beautythroughthebeast quien ha inspirado a @daynadono a crear este precioso sujetador CHIAR tipo bralette para mujeres que no quieren pasar por una reconstrucción mamaria bilateral y se deciden por #flatandfabulous .
Para copas pequeñas es también el sujetador perfecto con mastectomía bilateral o unitaleral.
Detalle de encaje elástico con banda bajo-pecho elástica. Y como toda la colección, las costuras están escondidas para que no roce ni irrite nada la piel.
¿Quieres verlo en detalle? Lo tienes en divinaoncobeauty.com
👉Link en bio👈
And here we go! Off to the hospital for my double mastectomy!
I'd like to say it's been a good ride ladies, but you showed up when I was just a little kid, you've always been different sizes, you never let me breast feed, you sag to my belly button and now your trying to kill me....
And in the blink of an eye, it's 5 days until my double mastectomy.
I've decided there are a few rules I have to set for myself if I want to make it these next 5 days without completely falling apart...
The first rule is apparently I cannot be left alone, by myself, for even a moment to drive to the store, or my brain starts racing, the tears start rolling and what if's set in.... Not good.
Number 2. NO MUSIC! Why does every song make me cry?!?!
Number 3. I have cry bags under my eyes, I feel so unpretty and can't find the effort to change it. So I've convinced myself, it's ok to wear a unicorn onsie all day, even if I have to go to the store.......right?!?
Had my MRI follow up today for my breasts and my scan came back normal 🎉 it’s always a scary feeling heading into the appointment.
I asked about ovary screening - my surgeon said that there wasn’t reliable tests to be done and said we would go ahead with an oophorectomy when I’m 40. Do any of you screen your ovaries? Is it worth me calling a gyno to sort out my own screening?? #brca#brca1#brcapositive#surveillance#previvor
Please welcome our first Breastie Hero, @nick.wakelin , my partner. Through this whole thing he has stuck by me, he has been my rock and is the reason I keep going. I would love to feature more of the amazing partners of our Breastie community so that they too, can have access to support to help them also get through the emotional and mental battle that is this disease. Read Nicks story on the do your breast website now! #breastcancerawareness#brcaawareness#brcapositive#truelove#support#chemo#breastiehero
Yesterday was beautiful and amazing. I didn’t get the result I was hoping for due to medical issues I’m dealing with, but I didn’t stop and I’m so damn proud of myself for finishing. I’m going to take the next couple of months and practice some self love/care and get my body back. Thank you all for coming out and cheering 💛There’s truly nothing like running the @nycmarathon and I plan to come back with a vengeance 👊🏼
Tomorrow marks marathon #2 . A marathon is so much more than running. It’s a testament to what the human body can endure. It’s strips you down and exposes you for who you truly are.
If I’m truly honest, I didn’t know if I was going to be able to run my first marathon after my mastectomy. I was scared. I’m still scared, but I also know that I can do hard things. We can all do hard things. Whether you finish in 3 hours or 5, we all cross the same finish line and we can all say at the end-we ran the New York City marathon. 🍋🍋
Hola a tod@s!
Soy portadora de una mutación genética hereditaria en el gen BRCA1.
En 2016 mi hermana murió de cáncer de mama, y yo, hace 5 meses, me he sometido a una mastectomía profiláctica doble para prevenir la enfermedad.
Tener esta mutación genética y enfrentarme al dilema de operarme o no, me hizo darme cuenta de que el BRCA tiene cosas en común con el cáncer, pero también sus particularidades e implicaciones de diversa naturaleza y, cuando quise saber más, no encontré información que me allanara, al menos un poquito, el camino.
Por ello, en este duro, complejo y contradictorio proceso, he tomado la decisión de aportar toda aquella información experiencial que sentí que me faltó a mí.
Todo esto te lo voy a contar con la ayuda de la muñeca Bracky, un ser adorable que he creado recientemente con todo mi amor y mi caos interno.
Te quiero pedir que, si te parece un tema interesante, por favor, me sigas y compartas tanto la página como los contenidos, para que llegue a las máximas personas posibles.
Gracias de antemano 💜 por vuestra comprensión y colaboración. Sed felices! 😃🙏
During my appointment today I learned I am NOT a good candidate for the breast reconstruction options I really wanted. So...I guess the only logical way to deal with this blow is to steal the kids Halloween candy, snuggle up to the man, and make a new plan....
Genetic mutation in the Family, and breaking the news🖤
In my close family where BRCA2+ has been discovered, we are 7 girls & 2 boys.
My mom has 3 sisters, i have one brother, one little sister, a girl cousin and boy cousin.
Is it scary? Yes, it is.
Once you know you are carrier of a hereditary genetic mutation, your thoughts shift not only on yourself and your desire to have kids, but to your family members that might have to go through the same.
My grandmother passed it on to my mom who passed it on to me, putting a face on the 3rd registered mutant generation of our family.
When you are carrier and have a child, (s)he is 50% at risk to carry it as well.
People react differently to such news, and not everyone want to talk about it. It can be frustrating as you love your family and you want them to previve if they test positive.
However, it is essential to respect everybody's ways of receiving the news, as frustrating as it might be. Give your family member the time and space to process the news.
2 weeks after I knew i was carrier, i took the decision to go for a double mastectomy, at 22.
My family thought it was extreme, at first.
They eventually supported me in this decision, but i could feel that to some it was scary to think that right at the corner of their family tree, someone was taking drastic measures that they might have to take as well if they also have a mutated cancer suppressor gene.
Give them love, time, and support.
I have found that de-dramatizing the whole process has been helpful to some of my family members. Joking around about the foobs, about the surgeries etc has been a game changer.
If you are dramatic about it , and pushing in a way that they feel they are doing something wrong by not wanting to know about it - it will make it even scarier and threatening; resulting in a huge denial.
Be gentle, everyone has their own sensibility♥️
Life hack!! Match the colour of your workout clothes to your drink and you’ll instantly feel happier and more satisfied.... 🤷🏼♀️ Just joking, but in all seriousness, getting out and doing exercise is one of my favourite things and never fails to make me feel positive, refreshed and stronger. So today, in the midst of my uni stresses this is what I made time for! Tonight I handed in my last assignment for the semester! 🙌🏼 the excitement hasn’t quite overtaken the stress of the last couple of months, but I’m sure it will! Having to come to terms with my #BRCA2 gene has really put a mental strain on my ability to focus on uni. But, I did it (with the help and support of so many of course). Honestly, I’m so ready to have a break and focus on some exciting things that I am so passionate about and have been urging to plan but haven’t had the time do!! So, here is to another new week! Wishing you all a wonderful week ahead filled with happiness, love and support to get you through whatever life brings ✨✨💛 PS: don’t forget to make time for the things that make you feel amazing #bravingbrca
Chemo 6/6. Sigh.
Last night @dadsnacks and I were talking about life and parenthood, et al, and I started crying. And I couldn’t stop. I was crying about one thing but tears just kept coming and coming and coming. When I calmed down enough to talk, I told him how confused I was that this happened on the eve of my final chemo, which is a joyous thing, but the more I thought about it, I realized that for approximately three years, I haven’t really had time/given myself permission to grieve all the things I’ve/we’ve lost. My birth plan, a normal introduction to parenthood, my health, my colon (ha!), my breasts, my cancer-free-ness, and in the not too distant future my ovaries. And last night, crying about just one thing turned into sobbing about everything. It felt entirely involuntary - tears falling uncontrollably out of my eyes. And it was very therapeutic. It was like my subconscious knew that this was the END. And that it was SAFE to let go and feel all of it. And that’s what I’m believing.
I’m thankful this part is over and I feel a peace in my spirit about allowing myself to relax and trust God with my body, my mind and my life. And to be grateful for every day I have going forward. It’s really good to be here.
Please welcome breastie @sacha.snaps. She is a passionate teacher from New Zealand who underwent preventive surgery after discovering she was BRCA positive when devastatingly losing her Aunty to breast cancer. “In 2014, I first put my thoughts down into writing. At the time, most of the thoughts I had led back to the age-old question; ‘W hy me?’ I felt selfish thinking this, but controlling your thoughts and feelings often proves to be difficult. The mind is a very complex thing.” Read more of her amazing and courageous story on the Do Your Breast website coming soon! #doyourbreast#breastcancer#ovariancancer#brcapositive#mastectomy
I'm emotional and moody.
Biopsies are done and I'm sore as shit.
Waiting for results is always the hardest.
Surgery is less than 3 weeks away and a lot of people have asked how they can help. (Honestly, just message me and I'll give you a meal day.)
I have a few more last minute details to work out, and a lot of hugs and cuddles to fit in.
Eva Moon shares nine habits for keeping a sense of humor when the going gets rough in the latest link in our bio. One of our favorites:
“I’ve just had a genetic test. And I’m feeling a little depressed. It’s not just because I’ll have menopause. But I wasn’t quite done with my breasts.” #brca#brcapositive#breastcancer#ovariancancer#brca1#brca1positive @facingourrisk
In case you missed the FORCE: Facing Our Risk of Cancer Empowered 2018 conference in San Diego this past weekend, Basser funded scientist, Kim Reiss Binder, MD, gave a fascinating talk on BRCA-related pancreatic cancer. She discussed recent advances in treatment, ongoing studies involving PARP inhibitors, and hope for the future of pancreatic cancer care. If you missed her talk, you can catch up with this Basser webinar she did earlier this year: https://www.youtube.com/watch?v=8FffUqakQNA. #force18#pancreaticcancer#brca#brcapositive#brca2#previvor#shareandsavealife @facingourrisk @basserbrca @pinkandbluemovie @protectthepecs
Absorbing a little Vitamin D and information. I’ve decided to take it a little slower today after all of yesterday’s emotions. Ever since my surgical menopause, I like to experiment a bit with my nutrition and learn what may or may not work for me. A few years ago, I did a super short experiment on intermittent fasting but I recently got this book and am trying to learn the science behind and if it makes sense for me. I’m not sure yet? Anyone read this book or have any thoughts/experiences with intermittent fasting?
7 WEEKS Post-Mastectomy:
✅ The Des Moines Half Marathon
This is NOT a normal recovery from a mastectomy. Mastectomies are invasive, destructive, and debilitating. I’m so incredibly grateful for what my body can do at this point, but it’s unrealistic to think this is normal and that everyone else’s recovery will mimic my own.
There are so many variables in play throughout this recovery process, but I believe staying active has helped me recover faster. Goal setting keeps my head in the game and helps to push me when it’s easier to sit on the couch (I did a lot of that too during these last 7 weeks). The runs never get easier, you just get stronger. I’ve also had a really large fantastic team behind me that is owed a lot of credit.
Congrats to all the runners today! And a big THANK YOU to all volunteers and spectators who stood out in the freezing cold temps to keep us hydrated and cheer us on.
The real winner of the race: my 7 y/o niece, Nora, for her amazing sign. She drew a pic of me with my post-mastectomy drains and herself doing a high kick, that she’s so famous for. My brother is also positive for the BRCA1 mutation, meaning each of his kids have a 50% chance of also testing positive. I am proud to be able to pave the way for them with this journey, should they also test positive. My hope is that medicine will advance enough by then to where they won’t have to go through such invasive surgeries to aid in prevention. The only way to get there is through RESEARCH. Thank you everyone for donating to breast cancer RESEARCH in October and every month. Advancements in one type of cancer treatment is beneficial to ALL types of cancer. #ResearchIsTheReason I know what my mom didn’t have the privilege of knowing about our #GeneticMutation .
Basser Center Executive Director Susan Domchek, MD, receiving the Spirit of Empowerment Award at Facing Our Risk Of Cancer Empowered Conference 2018. The conference is packed with hundreds of inspiring people from around the globe, including Philly/NJ locals. #brca#brca2#brcapositive#genetics#gamechangers#force18#researchresults @basserbrca @facingourrisk
When your hair stylist picks you up and takes you to the salon to wash, blow dry and style your hair for you because you aren't able to do all that on your own, you know you have a fab stylist and an even more fabulous friend. It had been over 3 wks since my hair was blow dried or curled. So yes this was the look on my face. I'm grateful my husband has been able to wash it and brushes it for me. And I'm very thankful to have had my hair done today. It made me feel a little more normal. One day at a time. @ash_arbogast_hair
One year ago.
One year ago I said good-bye to a part of my body that nursed 3 babies, that comforted them, put them back to sleep at night, gave them all the anti-bodies they needed, and gave me a connection only a mother can have with her children.
One year ago I said good-bye to yet another part of my body that God gave Me as a woman.
One year ago I said good-bye to all sensation in my chest, not knowing if and when I'll ever get it back.
One year ago.
One year ago I said Good-bye to painful biopsies.
One year ago I said Good-bye to the undeniable worry as I waited for the call of my results to tests I needed so often.
One year ago I said good-bye to the self breast checks that would keep me up at night racing to call the oncologist in the morning.
One year ago I said Good-bye to the thoughts that would drown me "she will walk down the aisle one day and I will miss it." "I wont be there to watch her deliever her baby" "he will want to come to me and tell me his wife is having a baby and instead of me being there ro hug him he will be leaving flowers on dirt." "Adam will be alone at childrens deep in his thoughts trying to figure out not only how to comfort our youngest as a father but also as a mother." One year ago I said good bye to the sweet and I said good bye to the bitter.
Although I'm going on my 5th breast surgery in 1 month, I wouldn't change it for the world. I have trust without borders. This is almost over, and I can proudly say I beat cancer before it beat me. My 85% chance of getting breast cancer because of BRCA and PALB2, is now only 5%. #previvor#breastcancerawareness#breastreconstruction#implants#brca#mastectomy#breastcancer#brca2#brcaawareness#hboc#previvor#mastectomyrecovery#breastexpanders#breastcancerawareness#raw#trustwithoutborders#reconstructionsurgery#truth#brcapositive#prophylacticmastectomy#doublemastectomy#dangerousboobies#scars#scarsarebeautiful#mastectomyscars#fatgrafting
In honor of Breast Cancer Awareness Month last October, I was a guest speaker alongside @bebrightpink at my sister’s employer, @mattel. I stood in my sister’s place, as she was in the first phase of chemotherapy and didn’t feel up for it. For the first time, my family spoke about Trina’s cancer and the genetic mutation in our family. Much has changed since then; my Mom ended up joining my sister as a cancer warrior a month later, and I now face taking further actions in my own cancer prevention. 🎀 Huge thank you and respect to my sister’s Mattel family for being overwhelmingly generous and supportive while helping create awareness! 💕 #BRCApositive#awareness#Mattel#ourstory#motherdaughter#knowledgeispower#breastcancerawareness#brightpink#FORCE#facingourriskofcancerempowerment
#littlebookofhalloween photo challenge, day 15: Ancestors/ Beloved Dead.
This is my youngest aunt, Maria (far left), my mom, Stephanie (center left) and my dad, Ray. They've been dead fourteen, thirteen, and ten years, respectively. (The gorgeous lady with the dark hair is my Cioci, who is very much alive.)
I may be a witch, but I do believe in science and the power of modern medicine. Unfortunately, even witches can't cure cancer (which is why this #BRCApositive witch got a prophylactic double mastectomy and salpingo-oophorectomy.)Get tested! Knowledge is power! And don't support Komen, they're garbage!