Day 207. Today was a good day. I’ll get to what the flowers mean in a second. But in the meantime, we had a doc appt for Brian today that really set my mind at ease. And with the help of our patient advocate we are working on the next plan. We’ve done it one way for the first 3 months it’s time to readjust and find a new way to be. On the way home from the doc appt I decided to stop at @traderjoes. It’s not exactly close to our house - YET - and we were passing it so I thought why not. I had Brian with me - obviously - but had yet to take him out somewhere on my own aside from his own therapies and doc appts. I was a teeny bit nervous 😬 As I was finishing up I had a full basket and was pushing Brian and an employee (Heidi A at Mesa, AZ location) asked if she could take the basket. I let her and at checkout she then offered to help me to my car. I told her this was the first outing on my own with him and your kindness and helpfulness has really touched me. She was so sweet and then gave me flowers too 💛🌹 When we got to the car she asked “is he your family?” When I told her he was my husband I think she was a little shocked. She told me I was doing great and was glad she could help. She made my day and i made sure to let her know. If she only knew what the lay 2 days had been like she would understand the impact she had on me. But I already had cried enough with her so I didn’t go into detail. So these tiny yellow roses will forever have a special place in my heart. • be kind • for everyone you meet is fighting a battle you know nothing about •
#teamtambo 🤟🏼💛💛💛 #tbi#tbisurvivor#survivor#fighter#traumaticbraininjury#braininjury#hope#nevergiveup#traderjoes#kindness
Thank you for everyone who came along to Heading Out Teens and made it such a wonderful day!
Our teen event was held at the Yarraville Trugo Club and our wonderful vols ran some excellent activities. It was a beautiful sunny day to play Trugo, games, relax and have lots of laughs!
Looking forward to seeing everyone at the next Heading Out Teen event 🎈🎉
Helping you deal with a brain injury. Our specialist Brain Injury Solicitors will help you to seek compensation to pay for rehabilitation adaptions and aids, not just for now but to ensure you are financially secure in the future. Find out more about how Tollers can help, click here https://www.tollers.co.uk/for-injury-claims/types-of-personal-injury/serious-injury-claims/brain-injury-claims/ #BrainInjuryCompensation#BrainInjuryClaim#BrainInjurySolicitor#BrainInjury
Thinking back it almost seems like I’m looking in on someone else’s life. I can’t believe how far I have fallen sometimes. As I go on with these doctors appointments and MRIs, EEGs etc. I know that I will never be back to the person I was but I hope I can learn to better live with the person I am. #invisibleinjury#braininjury#seizuredisorder
Guess who has cool new t-shirts!! We do!👕 And they will be available for sale online very soon! Our art dept @bootothetwo of @vintagelycan designed these babies along with a few other designs and we can’t wait to put them on. 🤗 Plusssssssss we have something even bigger coming tomorrow - The NeuroNerds @Patreon page!!! If you love the work we do to support the stroke and brain injury community through our podcast and @joesorocks’ blog, now there is a way to support us so we can grow and do more! And there will be great insider gifts and exclusive content for our patrons too! We’ll announce it’s launch tomorrow so stay tuned! #theneuronerds#patreon#strokesurvivor#braininjurysurvivor
🧠#TBItuesday ! Check out my clip to visualize what the vestibulo-ocular reflex (aka VOR) is.
🧠This reflex is often compromised in response to concussion. It must be rehabilitated if deficits such as dizziness and target “movement” occur when trying to keep your eyes focused on something in front of you while your head is moving quickly.
🧠Reach out to your local concussion specialist if you have similar symptoms!
Status-quo is a fucking cop out. It’s for people who are ok with standing still and not taking chances. It’s for people who peaked at 20-years old and who limit their own growth by settling.
I don’t know about you but I’m not ok with status-quo. I always want more. To me, everything I do is impacting my future. From relationships to opportunities, I’m always looking and thinking forward. The question is, are you thinking about moving forward or acting on it, are you comfortable with the same shit everyday or do you want more?
Point being: Success starts with the simple want, to want. The desire to see yourself in the future and how everything impacts you everyday is part of that idea. Status-quo will become you if you’re not always actively thinking and acting... Don’t fucking cop
out @garyvee @yankees @etthehiphoppreacher @stevehappens @mykiez
Nobody has success on their own, nobody. The point of this post is to give thanks to people who’ve helped you along the way. Gratitude is undervalued and often not practiced.
Furthermore, you can’t be afraid to ask for help. Nobody got there alone and asking for help isn’t weakness, its fucking what smart people do and something you should embrace.
Point being: Understand that success isn’t overnight and despite what you see, success is often the product of many years of failing, trying new things and involves instrumental people who help drive that success. Ask for help and give thanks @mykiez @stevehappens @etthehiphoppreacher @yankees @garyvee
Faith, as a definition it means complete trust in a person or process. I’m not using it in a religious way but in a way where you trust the process in a goal or desired outcome.
Too many people quit the process because they want instant results. Don’t fucking do that, give time, time. You’re doing yourself a huge disservice by putting faith in the direction you want to go.
Point being: My life, in particular and many can relate, has been kicking me in the nuts over and over for a long time and it seems like I’m just one kick in the fleshy coin purse from giving up. But, I get up and I keep getting up and with time, results appear. Positive attitude creates positive results- have faith @garyvee @yankees @etthehiphoppreacher @stevehappens @mykiez
Tune into @Univision to hear about a $3.5 million dollar case @TinaOdjaghian settled today. @RaulGut34 reports for @Univision34LA. Watch tonight at 6 in LA or stream online at univision34.com. #LosAngeles#HumanRights
Because it’s not always about weight loss or building muscle. 🙏🏼❤️
I hesitated posting this, as I haven’t talked much about it. I don’t wish sympathy, but rather, I feel such a deep burning desire to educate and remind people how infinitely precious their life is.
These pictures are almost exactly 7 weeks apart. A freak accident that happened in seconds, leaving me unconscious, the side of my head sliced open, my entire frontal skull fractured, immobile with a fractured neck, and a significant traumatic brain injury with air pockets hovering around the brain.
I still remember the day I was discharged, after being in for two weeks. The neurosurgeon and multiple members of the team all said “You have healed incredibly quickly, and with unheard of strength. Yes you are very lucky, but, you obviously take unbelievable care of your body. We have never, ever seen someone heal this quick.”
We know what we should eat and not eat.
We know we should drink fresh water, get solid sleep and consume quality vitamins.
We know we should limit alcohol and move the body daily.
We know we should practice gratitude and give thanks.
We know we should take care of our body.
We know. We know. We know.
But what we don’t think, is that shit like this will ever, ever happen to us.
It’s always what we hear on the news.
What we see on TV.
It’s always the “other” people.
Not us. It could never be us.
But it WAS me. It was our family.
Some have commented how quickly I healed.
Yes, I did.
Were the injuries serious?
Hell yes, they were.
After the initial 48 hrs in the trauma unit and CT scans later, the prognosis was not great. At all.
For years I did not take care of my body.
Tipping at over 200lbs, a heavy smoker, and a massive binge eater, I was the definition of unhealthy.
But, for the past 3 years, I chose to take exceptional pride and care in my body, by flooding my body with superfoods, trace minerals, botanicals, adaptogens and telomere-supporting nutrients, as well as moving my body.
(Continued in comments)
It truly warms my heart that many of you took time to recommend options to help Jon communicate. Thank you all for your willingness to share ideas.
I wanted to post this to respond to some of your suggestions.
The bottom line with any technique, protocol, approach, device, etc. is Jon’s lack of willingness to participate. I know for a fact he can do many of the suggested techniques but participation is the missing piece. So many factors could be contributing to this , but one that stands out in my mind and continually returns is pain. There is no doubt Jon’s brain has been damaged and with that his brain can’t multitask like it did before. All the energy it takes for just one task is overwhelming. This one task or multiple task at one time can turn off Jon’s cognitive abilities. With that in mind, I pray and surrender this obstacle over to God because I know He is the ultimate healer. I keep myself open for ideas and know the Lord will guide the way. He will direct me to help Jon & provide the tools that will benefit Jon.
I felt I needed to post this since many of you have been so gracious to share ideas. Even though I don’t have the time to reply to them all, I do read through them. So thank you!
Then comes the next piece. As I was speaking to my dad today he asked if Jon is comfortable with anyone else taking care of him. This is a tough subject. Jon allows only a few people to work with him but, it is clear that he relies on me. Why? Because I am his constant. I am him translator. I communicate with Jon on a whole different level. A soul level. Even in the moments when his needs are not understood I give him the love & peace that everything will be okay. Like my last post, the inability to communicate is beyond comprehension. Jon went from being able to communicate for 35 years to losing that ability in the blink of an eye. I’m not sure I would be the fighter that Jon is being. He’s truly my hero.
Sometimes you just have to walk around dressed up like breakfast foods to support brain injury survivors. My family is my favorite. We're resilient, creative, and not that easily embarrassed 😂. #tbisurvivor#breakfastofchampions #🥓 #🥞
This is an extra special story... because it’s my dad ❤️
“I have been suffering with a debilitating condition that causes severe vertigo, nausea and vomiting, fullness of the eardrum and fluctuating hearing loss since 1990. Over time, this has caused severe damage in my left ear and in 2014 my conditions went bilateral and I became so bad I could no longer work. I went on sick leave for 7 months and was subsequently medically retired from my job (TPI).
I have tried a lot of things...diet,...Zerc, steroids.... and few more all except surgical intervention. As most of us who suffer with theses symptoms are aware, it’s a guessing game regarding the cause. Some suffer severely while others suffer..... It’s hard for friends, family and work colleagues to understand, because even when you are suffering prior to and after an episode you look well, that’s is until someone sees you having a full blown episode... turning pale... cold sweets... can’t stand up... nausea.. eyes bouncing around like the ball on a ping pong bat... all the while the vertigo is getting worse... laying down and closing your eyes provides little comfort, at least you won’t fall down, but it wont stop the spinning... then crawling to the bathroom and throwing up... crawling back to your bed and feeling absolutely exhausted, finally as it the episode subsides...falling asleep for hours.... waking up deaf and feeling flat no energy... then the anxiety kicks in which compounds how you feel, even worse if you are at work or driving
After my daughters came back from the redox event showed me the Gene Study, I thought I had nothing to lose but give it a try. I have been using redox for a year now. I have had fantastic results and I am getting my life back.
Before Redox, I was severely deaf in my left ear & the symptoms in my right ear were moderate and progressing. After 3 months on redox my symptoms started to subside...& the progression has stopped. Now 12months on Redox, I feel my left ear has improved to moderate, my right ear is mild and vertigo gone."
Just four days away from SHT 2018 in beautiful North Simcoe ! 🏘️ This Regrann from @ourhomesmagazine - HOMES THAT HEAL // Midland // shows a sneak preview of one our homes on the tour: Recovering from a catastrophic brain injury and battling depression, Forrest Willett and his wife Julie worked with @ihdbuild to design a home that would boost their mental health and happiness. While the home takes advantage of views of #AwendaProvincialPark and the @bluemtnresort ski hills, the view is more than just aesthetic; it’s therapeutic. Forrest recommends getting outside to help with depression and anxiety symptoms, and the Willetts surround themselves with greenery as much as possible (including lemon, orange, fig and pomegranate trees that grow indoors in cool weather!). The Willett home is on the @bbbsnorthsimcoe 💜 Showcase of Homes Tour this Saturday, September 29.
See the rest of this home in "This is a Home That Heals and Rehabilitates" at ourhomes.ca/barrie
Interior Doors: @elmvalehomebuildingcentre [Photos: Sandy MacKay. Editor @ggette65] #barrie#midland#georgianbay#Penetanguishene#Penetang#rehabilitation#depression#copper#forrestwillett#baseballsdontbounce#lemontree#figtree#orangetree#pomegranate#therapeutic#mentalhealth#healthyhome#braininjury - #regrann
This past weekend a girl complimented my hair and my reply was, “thanks, it’s totally fake!” She was surprised at my response, but thanked me for being so real💁♀️
That being said, not only do I have fake hair, but my eyelashes are not genetic, but rather false, same with my eye brows, I’m wearing TWO pairs of spanks in this picture. AND (gasp) I’ve had Botox before, even though I realize I’m putting botulism in my face...
Obviously, you do you girl, but ladies, there is no need to strive for something that is not real. You are beautiful just the way you are! And it is okay to purchase great genetics, again, you do you and I’ll do me, and I’ll tell you when the “me” has a little help😜
I’ve been writing a lot of personal blog posts recently and it’s made me wonder. With social media being the way it is... Everyone pretending their life is perfect. How much do you share online about your brain injury? ——————————————————
Twitter post from my audio book narrator:
“Not long now till this #audiobook#ButMyBrainHadOtherIdeas by @Debbrandon is ready for the keen hearing and attention to detail of my super-proofer @aliciaread18 before editing and mastering for publication by @FindawayVoices”
🚨📣Coming November 2018: We are teaming up with @alphahealthservices and opening up in Bridgepoint hospital @sinaihealthsystemto📣🚨
As the first privately funded clinic operating in a publicly funded hospital, we are uniquely positioned to bridge the gap between publicly and privately funded rehab and deliver this service in a more time effective manner. We will be providing expert physiotherapy in both neurological and orthopedic fields.
Located at Broadview and Gerrard we are easily accessible by car and TTC.
Check out our website for more info! And stay tuned for more details on opening day and upcoming events! @physiologicplus
Question everything, always. It’s your life, it’s your education and you can mold yourself into the person you want to be.
But, you can never just listen to someone. What they know and what they say is just what they believe, it is not fact. Read everything you can, question ideas and perspectives and challenge those with answers... Point being: There’s a million ways to do something and facts supporting both sides to an argument. Build your own set of information, don’t use someone else’s- question everything.
@yankees @garyvee @stevehappens @etthehiphoppreacher @vaynermedia
When my brain fog hits, the effort of trying to get the words out makes me forget what I'm trying to say - when this happens writing it on my phone, or even on paper, is a much better way of communicating for me. #AAC isn't about giving up, it's about communicating effectively.⠀
Card from: https://buff.ly/2D5nrEY⠀
We’re here at @torontopolice headquarters where Medic Alert Foundation is giving 100 FREE bracelets to folks living with conditions which can impact behaviour and memory such as #braininjury . They’re giving out 100 free bracelets until 3 pm so drop by 40 College Street today!
Day off timetable life (Link in bio) Lovely walk by the river 😌