Going out of town with anyone who has #Autism is quite stressful. They are so used to familiarity that when taken away from that it can cause chaos. From Elevator meltdowns to constant worry if a neighboring room might be distributed by sounds or cries to the 5 hr drive to and from the destination (yes I did that! Thank goodness he loves drives) it is Exhausting as I’ll get out! “Why can’t he just enjoy the day away from home and relax.” (There is no explanation & I have come to stop trying to find it!) Then BOOM he’s in love with the room and pool; we have a Great drive back... okay whew 🙋🏻♀️ (screeching holt) everything’s good until he realizes we are back 🏡 (insert WWE cage match here 📺[mankind vs. undertaker] 🤦🏻♀️) now he hates home. 🤷🏻♀️ it was a bit of heaven 😇& a bit a hell 🔥. This has opened my eyes and made me realize a) this will be hard. It will only get harder so grow a pair and be strong. b) people will always stare and judge, fuck them. c) you can feel like giving up. DON’T! d) Autism currently has no cure. You will not wake up & it magically be gone. This is your life. Put as much good into it bc it will pour down with bad. 📊 I am at a point where I want to be open and honest about how fucked up life with a disability can get. Why?! 🤔 Because I want others to know they aren’t alone in this. That there is beauty in the struggle & there are good people out there who care and have compassion. .
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Aydan was unusually upset early this morning. He refused to go to school. He didn’t want me to go to work.
There was a lot of shouting and crying.
He spit on the floor. Hit his head. Hit me in the face. On my back. Punched me in my stomach.
He peed all over the bathroom and on me.
So today was one of those days that I completely lost it.
I shouted, I cried and I tried to hurt him back. What stopped this from escalating further was his fear. I saw him cower in the shower.
It’s not easy to type all this and share with everyone because I’m extremely ashamed by my reaction and how I handled him. I also cant forget that look in his eyes.
But I feel it’s important for me to do this. This is the reality of living with autism. No matter how patient or positive you are about your child’s condition, autism is debilitating on the entire family. For many parents and caregivers there comes a time when we can’t take another minute of it. There is no respite from autism.
Often, I hear others telling me I can do this. And reminding me that this is a test from God - If God brings you to it; He will bring you through it. Some even sought advice on how to remain calm and positive. I never can bring myself to offer words of advice. Because I know there are days, like today, I feel like I have failed Aydan and Aadil.
I made waaaay too many slides and had to cut some things out, so there will be a part two eventually. Let me know if you want it today or later in the week, cause I’m open to whatever.
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As a family we try so hard to work with Vin and his ASD diagnosis. I struggle with the definitions of his behaviour, do we let him rule the roost, do we try and discipline him without his understanding, what? I worry he is becoming selfish, spoilt yet he is naturally empathetic and caring. When he doesnt get his own way it manifests in punching- himself, the furniture, me, yet he is apologetic straight away. How can we support and define for those unfamilar when this beast called Autism is constantly evolving, eroding and changing? Couple this with a mum who is dealing with depression and find a parent drowning! #autism#autisticcutie#autismawareness#autismlove#autismmum#autismfamily#autistickids
The jacket boyfriend convo continued... Mikey “but you love your phone too. Are you cheating on your phone with your jacket?” David “maybe she’s polyamorous?” 😬😬😬 Yeah you tube is banned in our house for the foreseeable future!
Our first solution is "Talkii", a digital companion for people with Autism spectrum disorder (ASD) and speech disorders. With our software and communication tool, "Talkii" reduces frustration and difficult situations in families. We enable language development and the growth of communication skills.💙
Notre première solution « Talkii » est un compagnon numérique pour des personnes souffrant du trouble du spectre de l’autisme (TSA) et de troubles de la parole. Avec notre logiciel et notre outil de communication, « Talkii » réduit la frustration et les situations difficiles dans les familles. Nous permettons le développement du langage et la croissance des compétences de la communication.💙
Today was hot. Too hot. The sort of humid day where you’re sweating just sitting still.
Yet when you’re the dad of Tommy and Jude, the chance to sit still is a luxury you don’t really get until they’re in bed 😂
So we went to the park, (here’s our 20 second break sitting on a bench before racing off to the swing again 😊) we danced to music, and we bounced on the trampoline...a lot!
It seems that Jude and his endless supply of energy are not affected by hot humid days. Me on the other hand, I’m struggling! 😓
And that’s all I’ve got, my brain is unable to come up with anything more profound today! It was a hot, exhausting day, but one filled with smiles and laughter 😍
And I’m just going to get back to being British and moaning about the weather 🙃
Hope you’ve all had a good weekend? ❤️