#MHAM30daychallenge day 17 is all about where we go for migraine support, and for me it’s my family, especially my Mum!
Migraines run in our family - my Mum, Nana, Great Nana and Great Great Nana all got them too. I am a fifth generation migraineur!
The only good part of that is that my Mum knows exactly what I’m going through with a migraine and can be there to offer me suggestions, unconditional love and understanding throughout. She also put a lot of time into reading up ideas to help me, which I sometimes can’t do for myself in a particularly bad patch. My Mum always pushes me to get the help I need, when I am trying to brave things out on my own, and she always catches me when I fall down. She is the most incredible support ❤️ #notjustaheadache#1in7#migraine#chronicmigraine#chronicillness#spoonie#spoonielife#makeitvisible#migraineawareness#MHAM#mum#motherdaughter
There were rainbows on my leg this morning and I'm trying to let that matter.
If you happened to catch my few Insta stories this week, you know that my lungs were giving me trouble and that I almost had to go into the hospital, but oral steroids seemed to patch me up enough to stay out. I was relieved beyond words, because I've been falling crazy behind in school and work, and (mainly) because I've had a trip planned to visit my favorite human in Virginia. I miss this human dearly and all I want to do is hug him.
But now, I'm not getting better, or even staying the same. I'm getting worse and my doctors don't want me to travel. They said that if I fly tomorrow, there's nothing they can do for me and that I'm risking a lot. They want me admitted immediately.
So that's where I'm at. It's always so hard to know what's push-through-able and what isn't, and it looks like I guessed wrong this time. My heart hurts (and the rest of my body haha geez this infection sucks...) + the struggle to let everyday moments, like rainbow legs, have significance is real. But it's a practice like anything else, and I will get better.
~ Before we move into the next week... Let's take a moment to pause and consider what we have achieved. No matter how small, it all counts.
Let us know below what you're proud of this week <3
This sums up how I felt 5 years ago and from what I have seen, it is a common thread through out this community. .
The courage and bravery it takes to open up and share your feelings, when everything that has happened in the past warns you not to. When the fear of being scolded or laughed at encourages you to keep it all inside.
I have since learnt that those people, who make you feel small and like your voice and emotions don’t matter, are toxic. People who are grateful for the part you play in their lives will be patient and kind when you choose to share what is in your heart and on your mind.
Don’t let people take away your courage, your warmth, your ability to connect with the people you love. Don’t let them make you feel small or that your voice isn’t important. .
You will find people who WANT to be in your life and who WANT to listen to what you have to say. They will encourage you to speak your truth and they will support you every step of the way.
FIND YOUR TRIBE AND LOVE THEM HARD 🌸💗🌸
They see me rolling they disapprove ♿
I'm okay everyone! My phone is out of commission (as are my legs) so this is all I have to communicate. Comments only, I can't get the update for DMs.
COWORKERS can someone drive me to work tomorrow 7:30 am?
Tomorrow I go and start my toughest period of exams yet. With over 1050 hours of studying and extra work done and over 650 hours of university in the past 6 months I am ready for a holiday 😂😂 It has been tought with 4 different infections 3 different antibiotics and no enbrel to give my immune system a break but I was tougher 😁 BUT BEST OF ALL! I only had one hystericak crying panic attack, only one day where I tried to hurt myself and only two days where I cried!!! Last exam period I had hysterical panic attacks on the daily but now I just had ONE!!! WHICH I CALMED MYSELF DOWN FROM 😁😁 I got through over 500 pages of work many questions and even slept for 6 hours a night and I am just so damn proud. No health humanities done but eh can't have everything 😂 Granted I was sick as a dog so I might not remember much but the point is I am here and alive and stronger than ever. I COULD NOT HAVE DONE IT WITHOUT MY WONDERFUL BEST FRIEND WHO LISTENED TO ALL MY COMPLAINTS AND DILEMMAS AND MY FANTASICAL BOYFRIEND WHO SENT ME POSITIVE MESSAGES EVERYDAY AND MY OTHER FRIENDS. ALSO TO MY DOGGOS BECAUSE THEY ARE LIFE BUT MOST OF ALL TO MY MOM. My mom is the best human to ever exist. She read some notes to me and made me lemon and honey on the daily when I was sick and kept me positive and encouraged me all the time and bought me a ton of chocolate and let me make a noise in the house and aaah the best 😊😊 Come at me med school. I am ready for you 💥 8 exams in 4 days? Lessss do this. (Goodluck thoughts needed 😂) #arthritis#arthritissucks#fibromyalgia#pain#spoonie#spoonielife#juvenilearthritis#anxiety#depression#panicattacks#anxietyattacks#medschool#medicalschool#medicalstudent#medstudent#sensoryseeking#selfharm#selflove#positivity#acceptance#recovery#stress#exams#studying#fatigue#chronicfatigue#chronicpain
trying to find balance between resting and pushing myself. nervous about my upcoming neurology follow-up. waiting on authorization for treatment to begin. so many unknowns; so much waiting. finding encouragement from interacting with other women with MS here on Instagram. thankful for time to be. // shoutout to @thesparkledlife for posting this lovely illustration by @oliviaherrickdesign 🧡🎗💪🏼 // #mswarrior#spoonielife#oliviaherrickdesign
🖤 My body betrays me yet again. I really just want a shower but if I fall or passout I'm going to end up getting a whole lot more than just a shower. I used to take for granted simple things like showers. Now, they can be very scary.
❤️ I'm still very thankful though because today I can still talk, think, and see. Walking I can do, but it's difficult. There's always something to be thankful for.
❤️ My poor bf though, all I wanted to do was give him a great day as he is such an amazing man and father.
He has multiple conditions much like me and has battled colon and skin cancer multiple times in the last few years and is undergoing more tests for cancer now. He has lymes disease and COPD is pretty severe and getting worse! It’s hard to hear him like that coughing worse than I do! I wish him well and I wish I could go be with him, I wish I had never left him! When my parents first divorced I lived with my dad, I was fully a daddies girl, but he was heartbroken and missed my mum I’m not sure he ever got over losing her. He was a working man and he reached out to the pub and his friends there to seek comfort. I went to live with my mum and at ten years old I moved 86 miles away from my dads home in Southend to Huntingdon. I think this was likely the biggest mistake of my mums life (no diss to my mum she just did her best with her circumstances and thought this was best for us) taking us away from him and my maternal grandmother and the whole family has come to leave us all struggling to deal with this world without that love and support we all need! I desperately want to go see my dad again before it’s too late for either of us. This was the first time in my life I’ve heard my dad admit he was lonely and wished we were there. He always thought living here would be best for us, the city is a dangerous place but after all that’s happened here lately does it make any difference?? Maybe as my mobility is improving my I will be able to make it to visit him, that long in a car can wreak havoc on RA but I need to do it! #fathersday#dad#daddysgirl#mammacass#mydadthelegend#birdfamily#rheumatoidarthritiswarrior#copd#crying#rheumatoidarthritis#spoonielife#rheumatoidarthritiswarrior#lungdisease#lovehim
Workout of the Day: Try something new! I tried a @mixxedfit class for the first time today and loooved it. It’s Zumba, hip hop, and strength building all in one. My favorite part about it is that it’s FUN. I was smiling throughout the whole class!
Song of the day: Jumpin’ Jumpin’ - Destiny’s Child
Tip: Once again, group classes are awesome and I recommend them. However - go. at. your. own. pace! If you can only step to the beat - thats perfectly wonderful. Move to the music however much you can and have fun! You can find out where a MixxedFit class is near you on their website, or find routines on YouTube. What better way to start exercising than with poppin’ tunes? (Do people still say poppin’?)
Happy Father's Day! Today, we wanted to share this message from our parenting editor, @ellenstumbo:
"Dear dad who parent a child with a disability,
Today we celebrate you.
Thank you for doing whatever it takes to help provide for your family.
Thank you for stepping in when heavy medical equipment needs to be carried.
Thank you for making your kids laugh with your incredibly corny dad jokes.
Thank you for providing accessibility for your child in an inaccessible world.
Thank you for the many times you stand up for your kids.
Thank you for the gentleness and encouragement you give us every day.
Thank you for the hidden tears nobody knows about that reflect how much you care.
Thank you for your steady, unwavering presence.
Thank you for the way only you can love your child.
Thank you for being you."
Tell us how your dad helps you through your health challenges in the comments below. ♥️
Happy Fathers Day to my old man and to all the other lovely Dad's who follow me on here ❤️
Also sending love to the people who don't have their Dad's with them today ❤️
NEVER take people for granted. NEVER go to bed on an argument. And ALWAYS tell the people you love, just how much you do love them ❤️