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Some days chronic illness dictates it’s a stay at home day. But having a lazy Sunday and sitting in the sunshine is a lovely way to spend the day!
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#chronicillness #chronicillnesswarrior #chronicallyill #spoonie #spoonies #spoonielife #spooniestrong #sunday #sundayfunday #sundays #sundayafternoon
So Fibrolizard is once again being salty with me cos I was gone all day! Making out he's sleeping with one eye Open!! Thinks he's in a Metallica song! Lol skulking around his Viv like a grounded teenager!! Lmao he be fine again when he wants food though eh! Lol 🦎🤣🤗💜 #fibromyalgiaawareness #spooniestrong #butyoudontlooksick #chronicpainwarrior #fibro #fibrowarrior #chronicpain #spoonie #spoonielife #depression #copd #anxiety #migraine #chronicillness #fibromyalgia #exhausted #tired #spoonies #chronicillnesswarrior #pain #purpleribbon #fibrosucks #life #mylife #mentalillness #everythinghurts #spoonieproblems #fibrofighter #me
So Fibrolizard is once again being salty with me cos I was gone all day! Making out he's sleeping with one eye Open!! Thinks he's in a Metallica song! Lol skulking around his Viv like a grounded teenager!! Lmao he be fine again when he wants food though eh! Lol 🦎🤣🤗💜 #fibromyalgiaawareness  #spooniestrong  #butyoudontlooksick  #chronicpainwarrior  #fibro  #fibrowarrior  #chronicpain  #spoonie  #spoonielife  #depression  #copd  #anxiety  #migraine  #chronicillness  #fibromyalgia  #exhausted  #tired  #spoonies  #chronicillnesswarrior  #pain  #purpleribbon  #fibrosucks  #life  #mylife  #mentalillness  #everythinghurts  #spoonieproblems  #fibrofighter  #me 
Shock horror I actually put on make up for once, so of course I had to take a selfie! 💁🏼‍♀️ #mcas #mastocytosis #blondehair #blondie #cute #l4l #love #happy #fb #fff #date #datenightoutfit #s4s #spoonielife #asthma #anaphylaxis #osteoporosis #recovery #eds #ehlersdanlossyndrome #ed #edfam #mastcell #greeneyes #selfie #selflove #loveyourself #strongwoman
Day 2 of pride! Of course I had to end the day by having a seizure. 🙄 Thankful for my amazing friends, the paramedics, and the good boi for taking care of me. ❤🏳️‍🌈 #goldenretriever #goldenretrieverpuppy #golden #goldenpuppy #goldenoftheday #puppiesofinstagram #dogsofinstagram #goldensofinstagram #servicedog #seizurealertdog #seizurealert #epilepsy #arthritis #chronicpain #medicalalertdog #medicalalert #spoonie #dogtraining #spoonielife #seizures #depression #anxiety #disability #chronicillness #invisibleillness #pride #denverpride #gay #lgbtq #paramedic
Day 2 of pride! Of course I had to end the day by having a seizure. 🙄 Thankful for my amazing friends, the paramedics, and the good boi for taking care of me. ❤🏳️‍🌈 #goldenretriever  #goldenretrieverpuppy  #golden  #goldenpuppy  #goldenoftheday  #puppiesofinstagram  #dogsofinstagram  #goldensofinstagram  #servicedog  #seizurealertdog  #seizurealert  #epilepsy  #arthritis  #chronicpain  #medicalalertdog  #medicalalert  #spoonie  #dogtraining  #spoonielife  #seizures  #depression  #anxiety  #disability  #chronicillness  #invisibleillness  #pride  #denverpride  #gay  #lgbtq  #paramedic 
#MHAM30daychallenge day 17 is all about where we go for migraine support, and for me it’s my family, especially my Mum! 
Migraines run in our family - my Mum, Nana, Great Nana and Great Great Nana all got them too. I am a fifth generation migraineur!
The only good part of that is that my Mum knows exactly what I’m going through with a migraine and can be there to offer me suggestions, unconditional love and understanding throughout. She also put a lot of time into reading up ideas to help me, which I sometimes can’t do for myself in a particularly bad patch. My Mum always pushes me to get the help I need, when I am trying to brave things out on my own, and she always catches me when I fall down. She is the most incredible support ❤️ #notjustaheadache #1in7 #migraine #chronicmigraine #chronicillness #spoonie #spoonielife #makeitvisible #migraineawareness #MHAM #mum #motherdaughter
#MHAM30daychallenge  day 17 is all about where we go for migraine support, and for me it’s my family, especially my Mum! Migraines run in our family - my Mum, Nana, Great Nana and Great Great Nana all got them too. I am a fifth generation migraineur! The only good part of that is that my Mum knows exactly what I’m going through with a migraine and can be there to offer me suggestions, unconditional love and understanding throughout. She also put a lot of time into reading up ideas to help me, which I sometimes can’t do for myself in a particularly bad patch. My Mum always pushes me to get the help I need, when I am trying to brave things out on my own, and she always catches me when I fall down. She is the most incredible support ❤️ #notjustaheadache  #1in7  #migraine  #chronicmigraine  #chronicillness  #spoonie  #spoonielife  #makeitvisible  #migraineawareness  #MHAM  #mum  #motherdaughter 
There were rainbows on my leg this morning and I'm trying to let that matter.

If you happened to catch my few Insta stories this week, you know that my lungs were giving me trouble and that I almost had to go into the hospital, but oral steroids seemed to patch me up enough to stay out. I was relieved beyond words, because I've been falling crazy behind in school and work, and (mainly) because I've had a trip planned to visit my favorite human in Virginia. I miss this human dearly and all I want to do is hug him.

But now, I'm not getting better, or even staying the same. I'm getting worse and my doctors don't want me to travel. They said that if I fly tomorrow, there's nothing they can do for me and that I'm risking a lot. They want me admitted immediately.

So that's where I'm at. It's always so hard to know what's push-through-able and what isn't, and it looks like I guessed wrong this time. My heart hurts (and the rest of my body haha geez this infection sucks...) + the struggle to let everyday moments, like rainbow legs, have significance is real. But it's a practice like anything else, and I will get better.

#cysticfibrosis #cf #chronicillness #chronicallyill #spoonielife
There were rainbows on my leg this morning and I'm trying to let that matter. If you happened to catch my few Insta stories this week, you know that my lungs were giving me trouble and that I almost had to go into the hospital, but oral steroids seemed to patch me up enough to stay out. I was relieved beyond words, because I've been falling crazy behind in school and work, and (mainly) because I've had a trip planned to visit my favorite human in Virginia. I miss this human dearly and all I want to do is hug him. But now, I'm not getting better, or even staying the same. I'm getting worse and my doctors don't want me to travel. They said that if I fly tomorrow, there's nothing they can do for me and that I'm risking a lot. They want me admitted immediately. So that's where I'm at. It's always so hard to know what's push-through-able and what isn't, and it looks like I guessed wrong this time. My heart hurts (and the rest of my body haha geez this infection sucks...) + the struggle to let everyday moments, like rainbow legs, have significance is real. But it's a practice like anything else, and I will get better. #cysticfibrosis  #cf  #chronicillness  #chronicallyill  #spoonielife 
And a happy fathers day dad ❤❤❤ miss you so much! only 3 months since you left us to be with mum up there 😇😇😇 love you so much my hero xxx xxx 😔😢❤💜 #fibromyalgiaawareness #spooniestrong #butyoudontlooksick #chronicpainwarrior #fibro #fibrowarrior #chronicpain #spoonie #spoonielife #depression #copd #anxiety #migraine #chronicillness #fibromyalgia #exhausted #tired #spoonies #chronicillnesswarrior #pain #purpleribbon #fibrosucks #life #mylife #mentalillness #everythinghurts #spoonieproblems #fibrofighter #me
And a happy fathers day dad ❤❤❤ miss you so much! only 3 months since you left us to be with mum up there 😇😇😇 love you so much my hero xxx xxx 😔😢❤💜 #fibromyalgiaawareness  #spooniestrong  #butyoudontlooksick  #chronicpainwarrior  #fibro  #fibrowarrior  #chronicpain  #spoonie  #spoonielife  #depression  #copd  #anxiety  #migraine  #chronicillness  #fibromyalgia  #exhausted  #tired  #spoonies  #chronicillnesswarrior  #pain  #purpleribbon  #fibrosucks  #life  #mylife  #mentalillness  #everythinghurts  #spoonieproblems  #fibrofighter  #me 
Today has been a great day. I felt quite down last night and tbh today I wanted to just hide away. But being Father's Day I knew my Dad and Chris deserved me making the effort to go out and be with everyone. I'm so glad I did. It ended up being the best day I've had in a long time, full of laughter, everyone just enjoying being around each other, my Dad being thrilled with his gift, the kids being in great moods and even posing for pictures, great food and I won one of the two upwards games with Mum and Nan lol. As I was sat on a recliner most of the day I'm hoping the payback isn't too bad. Being so ill really makes you appreciate the good times more than ever 💜💙🦋
#fibromyalgia #fibrolife #fibroflare #fibrowarrior #myalgicencephalomyelitis #mecfs #millionsmissing #spoonie #spoonielife #spooniesupport #spooniepartners #anxiety #depression #positivity #spreadingawareness #FathersDay #family #goodtimes #lovebirds
Today has been a great day. I felt quite down last night and tbh today I wanted to just hide away. But being Father's Day I knew my Dad and Chris deserved me making the effort to go out and be with everyone. I'm so glad I did. It ended up being the best day I've had in a long time, full of laughter, everyone just enjoying being around each other, my Dad being thrilled with his gift, the kids being in great moods and even posing for pictures, great food and I won one of the two upwards games with Mum and Nan lol. As I was sat on a recliner most of the day I'm hoping the payback isn't too bad. Being so ill really makes you appreciate the good times more than ever 💜💙🦋 #fibromyalgia  #fibrolife  #fibroflare  #fibrowarrior  #myalgicencephalomyelitis  #mecfs  #millionsmissing  #spoonie  #spoonielife  #spooniesupport  #spooniepartners  #anxiety  #depression  #positivity  #spreadingawareness  #FathersDay  #family  #goodtimes  #lovebirds 
~ Before we move into the next week... Let's take a moment to pause and consider what we have achieved.  No matter how small, it all counts.
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Let us know below what you're proud of this week <3
~ Before we move into the next week... Let's take a moment to pause and consider what we have achieved. No matter how small, it all counts. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Let us know below what you're proud of this week <3
This sums up how I felt 5 years ago and from what I have seen, it is a common thread through out this community. .
The courage and bravery it takes to open up and share your feelings, when everything that has happened in the past warns you not to. When the fear of being scolded or laughed at encourages you to keep it all inside.
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I have since learnt that those people, who make you feel small and like your voice and emotions don’t matter, are toxic. People who are grateful for the part you play in their lives will be patient and kind when you choose to share what is in your heart and on your mind.
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Don’t let people take away your courage, your warmth, your ability to connect with the people you love. Don’t let them make you feel small or that your voice isn’t important. .
You will find people who WANT to be in your life and who WANT to listen to what you have to say. They will encourage you to speak your truth and they will support you every step of the way.
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FIND YOUR TRIBE AND LOVE THEM HARD 🌸💗🌸
This sums up how I felt 5 years ago and from what I have seen, it is a common thread through out this community. . The courage and bravery it takes to open up and share your feelings, when everything that has happened in the past warns you not to. When the fear of being scolded or laughed at encourages you to keep it all inside. . I have since learnt that those people, who make you feel small and like your voice and emotions don’t matter, are toxic. People who are grateful for the part you play in their lives will be patient and kind when you choose to share what is in your heart and on your mind. . Don’t let people take away your courage, your warmth, your ability to connect with the people you love. Don’t let them make you feel small or that your voice isn’t important. . You will find people who WANT to be in your life and who WANT to listen to what you have to say. They will encourage you to speak your truth and they will support you every step of the way. . FIND YOUR TRIBE AND LOVE THEM HARD 🌸💗🌸
They see me rolling they disapprove ♿
I'm okay everyone! My phone is out of commission (as are my legs) so this is all I have to communicate. Comments only, I can't get the update for DMs. 
COWORKERS can someone drive me to work tomorrow 7:30 am?
They see me rolling they disapprove ♿ I'm okay everyone! My phone is out of commission (as are my legs) so this is all I have to communicate. Comments only, I can't get the update for DMs. COWORKERS can someone drive me to work tomorrow 7:30 am?
Tomorrow I go and start my toughest period of exams yet. With over 1050 hours of studying and extra work done and over 650 hours of university in the past 6 months I am ready for a holiday 😂😂 It has been tought with 4 different infections 3 different antibiotics and no enbrel to give my immune system a break but I was tougher 😁 BUT BEST OF ALL! I only had one hystericak crying panic attack, only one day where I tried to hurt myself and only two days where I cried!!! Last exam period I had hysterical panic attacks on the daily but now I just had ONE!!! WHICH I CALMED MYSELF DOWN FROM 😁😁 I got through over 500 pages of work many questions and even slept for 6 hours a night and I am just so damn proud. No health humanities done but eh can't have everything 😂 Granted I was sick as a dog so I might not remember much but the point is I am here and alive and stronger than ever. I COULD NOT HAVE DONE IT WITHOUT MY WONDERFUL BEST  FRIEND WHO LISTENED TO ALL MY COMPLAINTS AND DILEMMAS AND MY FANTASICAL BOYFRIEND WHO SENT ME POSITIVE MESSAGES EVERYDAY AND MY OTHER FRIENDS. ALSO TO MY DOGGOS BECAUSE THEY ARE LIFE BUT MOST OF ALL TO MY MOM. My mom is the best human to ever exist. She read some notes to me and made me lemon and honey on the daily when I was sick and kept me positive and encouraged me all the time and bought me a ton of chocolate and let me make a noise in the house and aaah the best 😊😊 Come at me med school. I am ready for you 💥 8 exams in 4 days? Lessss do this. (Goodluck thoughts needed 😂) #arthritis #arthritissucks #fibromyalgia #pain  #spoonie #spoonielife #juvenilearthritis #anxiety #depression #panicattacks #anxietyattacks #medschool #medicalschool #medicalstudent #medstudent #sensoryseeking #selfharm #selflove #positivity #acceptance #recovery #stress #exams #studying #fatigue #chronicfatigue #chronicpain
Tomorrow I go and start my toughest period of exams yet. With over 1050 hours of studying and extra work done and over 650 hours of university in the past 6 months I am ready for a holiday 😂😂 It has been tought with 4 different infections 3 different antibiotics and no enbrel to give my immune system a break but I was tougher 😁 BUT BEST OF ALL! I only had one hystericak crying panic attack, only one day where I tried to hurt myself and only two days where I cried!!! Last exam period I had hysterical panic attacks on the daily but now I just had ONE!!! WHICH I CALMED MYSELF DOWN FROM 😁😁 I got through over 500 pages of work many questions and even slept for 6 hours a night and I am just so damn proud. No health humanities done but eh can't have everything 😂 Granted I was sick as a dog so I might not remember much but the point is I am here and alive and stronger than ever. I COULD NOT HAVE DONE IT WITHOUT MY WONDERFUL BEST FRIEND WHO LISTENED TO ALL MY COMPLAINTS AND DILEMMAS AND MY FANTASICAL BOYFRIEND WHO SENT ME POSITIVE MESSAGES EVERYDAY AND MY OTHER FRIENDS. ALSO TO MY DOGGOS BECAUSE THEY ARE LIFE BUT MOST OF ALL TO MY MOM. My mom is the best human to ever exist. She read some notes to me and made me lemon and honey on the daily when I was sick and kept me positive and encouraged me all the time and bought me a ton of chocolate and let me make a noise in the house and aaah the best 😊😊 Come at me med school. I am ready for you 💥 8 exams in 4 days? Lessss do this. (Goodluck thoughts needed 😂) #arthritis  #arthritissucks  #fibromyalgia  #pain  #spoonie  #spoonielife  #juvenilearthritis  #anxiety  #depression  #panicattacks  #anxietyattacks  #medschool  #medicalschool  #medicalstudent  #medstudent  #sensoryseeking  #selfharm  #selflove  #positivity  #acceptance  #recovery  #stress  #exams  #studying  #fatigue  #chronicfatigue  #chronicpain 
trying to find balance between resting and pushing myself. nervous about my upcoming neurology follow-up. waiting on authorization for treatment to begin. so many unknowns; so much waiting. finding encouragement from interacting with other women with MS here on Instagram. thankful for time to be. // shoutout to @thesparkledlife for posting this lovely illustration by @oliviaherrickdesign 🧡🎗💪🏼 // #mswarrior #spoonielife #oliviaherrickdesign
trying to find balance between resting and pushing myself. nervous about my upcoming neurology follow-up. waiting on authorization for treatment to begin. so many unknowns; so much waiting. finding encouragement from interacting with other women with MS here on Instagram. thankful for time to be. // shoutout to @thesparkledlife for posting this lovely illustration by @oliviaherrickdesign 🧡🎗💪🏼 // #mswarrior  #spoonielife  #oliviaherrickdesign 
It was an experience. Hopefully never to be repeated but thank you for keeping me safe to Wales Ambulance Service, Mountain Rescue and HMS Coastguard 🙌🏻🚁 #eds #ehlersdanlos #ehlersdanlossyndrome #raredisease #zebra #chronicillness #chronicpain #disabilityblogger .
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#spoonielife #spoonies #spoonieforlife #spooniecommunity #spoonietruth #spoonieprobs #spoonielove #spooniegirl #spooniesupport #spooniewarrior #spoonieliving #spooniefamily #spoonieblogger #spooniesunite #spooniefriends #spoonieproblems #spoonie
It was an experience. Hopefully never to be repeated but thank you for keeping me safe to Wales Ambulance Service, Mountain Rescue and HMS Coastguard 🙌🏻🚁 #eds  #ehlersdanlos  #ehlersdanlossyndrome  #raredisease  #zebra  #chronicillness  #chronicpain  #disabilityblogger  . . #spoonielife  #spoonies  #spoonieforlife  #spooniecommunity  #spoonietruth  #spoonieprobs  #spoonielove  #spooniegirl  #spooniesupport  #spooniewarrior  #spoonieliving  #spooniefamily  #spoonieblogger  #spooniesunite  #spooniefriends  #spoonieproblems  #spoonie 
Despite waking up in more pain than "normal" I pushed through and we packed up for a day at the beach. Daddy's choice. Wasn't so bad until I had to walk on the uneven soft sand. Took me about 20 minutes to get down to the water. But we made it!! Great to enjoy a warm, sunny day by the ocean with this crazy crew. #sandisnotmyfriend #psoriaticarthritis #autoimmunedisease #spoonielife #psoriasis #parentingthroughthepain #thatsunfeltgoodtho
Ubeskrivelig godt når energien er tilbake 😁 Nå er det ikke bare vrangskap som får meg ut døra, men lysten er også tilbake 😀
Ubeskrivelig godt når energien er tilbake 😁 Nå er det ikke bare vrangskap som får meg ut døra, men lysten er også tilbake 😀
I’ve thought long and hard about posting something like this for a while now ⭐️ what I say is in relation to me only and I don’t speak for anyone else⭐️ I now have 2 chronic illnesses and you know what? I do not feel like I am ‘fighting’ anything, I do not feel strong and I certainly do not feel like a warrior⭐️ I do not have a handle on my illnesses and at the moment ⭐️ most of the time - I just try to get through the day and im ok with that ⭐️ it’s not that I’m not ‘trying’ or even really coping - I’m doing both of these things ⭐️ it’s just that whatever little energy I do have, I want to spend it on either useful things or nice things - not how I can next do battle with my own body ⭐️ I am still learning and for my 2nd chronic illness I am only at the beginning of my journey ⭐️ so I will carry on - breathing, getting through the day and enjoying the little things - because at the moment - that’s the best I can do ⭐️
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#chronicillness #chronicfatigue #chronicpain #myalgicencephalomyelitis #invisibleillness #invisibleillnessawareness #meawareness #chronicurticaria #chronicspontaneousurticaria #csu #cu #millionsmissing #postexertionalmalaise #pem #severeexhaustion #spoonie #spoonielife
I’ve thought long and hard about posting something like this for a while now ⭐️ what I say is in relation to me only and I don’t speak for anyone else⭐️ I now have 2 chronic illnesses and you know what? I do not feel like I am ‘fighting’ anything, I do not feel strong and I certainly do not feel like a warrior⭐️ I do not have a handle on my illnesses and at the moment ⭐️ most of the time - I just try to get through the day and im ok with that ⭐️ it’s not that I’m not ‘trying’ or even really coping - I’m doing both of these things ⭐️ it’s just that whatever little energy I do have, I want to spend it on either useful things or nice things - not how I can next do battle with my own body ⭐️ I am still learning and for my 2nd chronic illness I am only at the beginning of my journey ⭐️ so I will carry on - breathing, getting through the day and enjoying the little things - because at the moment - that’s the best I can do ⭐️ - - - - - - - - #chronicillness  #chronicfatigue  #chronicpain  #myalgicencephalomyelitis  #invisibleillness  #invisibleillnessawareness  #meawareness  #chronicurticaria  #chronicspontaneousurticaria  #csu  #cu  #millionsmissing  #postexertionalmalaise  #pem  #severeexhaustion  #spoonie  #spoonielife 
Current situation.
🖤 My body betrays me yet again. I really just want a shower but if I fall or passout I'm going to end up getting a whole lot more than just a shower. I used to take for granted simple things like showers. Now, they can be very scary.
❤️ I'm still very thankful though because today I can still talk, think, and see. Walking I can do, but it's difficult. There's always something to be thankful for.
❤️ My poor bf though, all I wanted to do was give him a great day as he is such an amazing man and father.
Current situation. 🖤 My body betrays me yet again. I really just want a shower but if I fall or passout I'm going to end up getting a whole lot more than just a shower. I used to take for granted simple things like showers. Now, they can be very scary. ❤️ I'm still very thankful though because today I can still talk, think, and see. Walking I can do, but it's difficult. There's always something to be thankful for. ❤️ My poor bf though, all I wanted to do was give him a great day as he is such an amazing man and father.
I woke up in the Helicopter. It’s the first time I’ve ever flown. I wish it was under better circumstances. HMS Coastguard flew me to Bronglais Hospital in Aberystwyth. We landed on a playing field of a college and transferred by ambulance to the hospital where there was a team waiting to meet me in Resus. 🚁🚑🏥 #eds #ehlersdanlos #ehlersdanlossyndrome #raredisease #zebra #chronicillness #chronicpain #disabilityblogger .
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#spoonielife #spoonies #spoonieforlife #spooniecommunity #spoonietruth #spoonieprobs #spoonielove #spooniegirl #spooniesupport #spooniewarrior #spoonieliving #spooniefamily #spoonieblogger #spooniesunite #spooniefriends #spoonieproblems #spoonie
I woke up in the Helicopter. It’s the first time I’ve ever flown. I wish it was under better circumstances. HMS Coastguard flew me to Bronglais Hospital in Aberystwyth. We landed on a playing field of a college and transferred by ambulance to the hospital where there was a team waiting to meet me in Resus. 🚁🚑🏥 #eds  #ehlersdanlos  #ehlersdanlossyndrome  #raredisease  #zebra  #chronicillness  #chronicpain  #disabilityblogger  . . #spoonielife  #spoonies  #spoonieforlife  #spooniecommunity  #spoonietruth  #spoonieprobs  #spoonielove  #spooniegirl  #spooniesupport  #spooniewarrior  #spoonieliving  #spooniefamily  #spoonieblogger  #spooniesunite  #spooniefriends  #spoonieproblems  #spoonie 
Just :"LIVE" !
Yesterday I went for a bike ride with my sister, it did me a lot of good ! Today I'm exhausted, my body doesn't thank me but I don't care ! Sometimes you just have to take the time to live.. 💪

#live #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlostype3 #eds #zebrastrong #zebrawarrior #hypermobility #hypermobile #dysautonomia #tachycardie #tachycardia #mastcellactivationdisorder #chronicpain #chronicfatigue #chronicillness #invisiblepain #invisiblefatigue #spoonie #spoonielife #autoimmune
Just :"LIVE" ! Yesterday I went for a bike ride with my sister, it did me a lot of good ! Today I'm exhausted, my body doesn't thank me but I don't care ! Sometimes you just have to take the time to live.. 💪 #live  #ehlersdanlossyndrome  #ehlersdanlos  #ehlersdanlostype3  #eds  #zebrastrong  #zebrawarrior  #hypermobility  #hypermobile  #dysautonomia  #tachycardie  #tachycardia  #mastcellactivationdisorder  #chronicpain  #chronicfatigue  #chronicillness  #invisiblepain  #invisiblefatigue  #spoonie  #spoonielife  #autoimmune 
#flowers from my #solo #trip to #physicaltherapy a few days ago via #power #wheelchair it wipes me out thanks to #heatintolerance but it #feelsgood to be just a little #independant #spoonielife #cerebralpalsy #spasticdiplegiacp #possiblems #feelstronglookwimpy
Sunday means not having porridge for breakfast 😄

I think I've eaten about 5 times what I should have in calories today, and it's not been nutritious either, bagel, pancakes, sweets. But you know what, I've enjoyed my Sunday and I can make up for it through the week. And I did go to the gym, so I got some cardio in which was good.
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#pancakes #syrup #maplesyrup #cheatday #breakfast #brunch #yum #spoonie #spoonielife #spooniewarrior #chronicillness #chronicwellness #chronichealth #health #wellbeing #invisibleillness #butyoudontlooksick #chronicpain #chronicfatigue #fatigue #colitis #IBD #IBDWarrior #colitiscare #mindfulness #mindful #food #foodstagram
Sunday means not having porridge for breakfast 😄 I think I've eaten about 5 times what I should have in calories today, and it's not been nutritious either, bagel, pancakes, sweets. But you know what, I've enjoyed my Sunday and I can make up for it through the week. And I did go to the gym, so I got some cardio in which was good. . . . . . . . . . . . . #pancakes  #syrup  #maplesyrup  #cheatday  #breakfast  #brunch  #yum  #spoonie  #spoonielife  #spooniewarrior  #chronicillness  #chronicwellness  #chronichealth  #health  #wellbeing  #invisibleillness  #butyoudontlooksick  #chronicpain  #chronicfatigue  #fatigue  #colitis  #IBD  #IBDWarrior  #colitiscare  #mindfulness  #mindful  #food  #foodstagram 
Feel assured that healthy, pain free urination is at hand! 'Urivo' by @vitasciences.
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Feel assured that healthy, pain free urination is at hand! 'Urivo' by @vitasciences. . DM to get your 20% discount code now!
Living based on ginger lemon and honey tea, hoodies, #longstockings and D3 because this infection won't leave my body. Does anyone know a natural antibiotic? 
#diablo3reaperofsouls #season14 #sick
#livesickdieill #dysautonomia #noenergy #spoonielife
What bag? 🌸
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It’s winter in Sydney so it’s warm layers & high waisted jeans all the way. And you can’t even tell I have an ostomy bag hidden under my white top. 🙌💜🤷‍♀️
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Despite winter being great for hiding my bag, I’d prefer it to be summer & bikini weather any day! Who’s with me? 🌞🌞🌞
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#ostomy #ileostomy #ostomyawareness #ostomate #ibd #ulcerativecolitis #colitis  #nocolonstillrollin #ibdwarrior #staystrong #ibdlife #spoonie #chronicillness #invisibleillness #spoonielife #ibdawareness #letstalkibd #uc  #nocolonclub #gratitude #selfie #blondie #whatbag #muji #mujijumper #positivity #mondaymood #mondays
What bag? 🌸 • It’s winter in Sydney so it’s warm layers & high waisted jeans all the way. And you can’t even tell I have an ostomy bag hidden under my white top. 🙌💜🤷‍♀️ • Despite winter being great for hiding my bag, I’d prefer it to be summer & bikini weather any day! Who’s with me? 🌞🌞🌞 ••• #ostomy  #ileostomy  #ostomyawareness  #ostomate  #ibd  #ulcerativecolitis  #colitis  #nocolonstillrollin  #ibdwarrior  #staystrong  #ibdlife  #spoonie  #chronicillness  #invisibleillness  #spoonielife  #ibdawareness  #letstalkibd  #uc  #nocolonclub  #gratitude  #selfie  #blondie  #whatbag  #muji  #mujijumper  #positivity  #mondaymood  #mondays 
I had 3 seizures which lasted for about 15 minutes in total and I was unconscious for over an hour. My best friend Mayia called an Ambulance, and we got Mountain Rescue and the paramedics. They were so wonderful 🙌🏻 #eds #ehlersdanlos #ehlersdanlossyndrome #raredisease #zebra #chronicillness #chronicpain #disabilityblogger .
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#spoonielife #spoonies #spoonieforlife #spooniecommunity #spoonietruth #spoonieprobs #spoonielove #spooniegirl #spooniesupport #spooniewarrior #spoonieliving #spooniefamily #spoonieblogger #spooniesunite #spooniefriends #spoonieproblems #spoonie
I had 3 seizures which lasted for about 15 minutes in total and I was unconscious for over an hour. My best friend Mayia called an Ambulance, and we got Mountain Rescue and the paramedics. They were so wonderful 🙌🏻 #eds  #ehlersdanlos  #ehlersdanlossyndrome  #raredisease  #zebra  #chronicillness  #chronicpain  #disabilityblogger  . . #spoonielife  #spoonies  #spoonieforlife  #spooniecommunity  #spoonietruth  #spoonieprobs  #spoonielove  #spooniegirl  #spooniesupport  #spooniewarrior  #spoonieliving  #spooniefamily  #spoonieblogger  #spooniesunite  #spooniefriends  #spoonieproblems  #spoonie 
I’m trying so hard at the moment to do what my parents want me to achieve, they want me to have a job and earn my own money. But at the moment I am really struggling with my health, my pain, weakness and fatigue are holding me back from what I want to achieve. I would love to have a job and go travelling independently around the world 🗺 but this is just not possible till I can get better treatment and a better understanding of what is going on with my health. I am trying so hard to prove to them that I am not lazy, that I have goals and that I am not worthless!
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#chronicpain #chronicillness #spoonie #spoonielife #spooniewarrior #asthma #sciatica #ibs #depression #quotes #nurishnotpunish #fibromyalgia #fibromyalgiaawareness #fibrowarriors #fibrofog #hypermobile #hypermobility  #me #cfs #myalgicencephalomyelitis #chronicfatiguesyndrome #invisibleillness #mentalillness #fibromyalgia #fibro #chronicfatigue
#spoonieproblems #spooniestrong #spooniesunite
I’m trying so hard at the moment to do what my parents want me to achieve, they want me to have a job and earn my own money. But at the moment I am really struggling with my health, my pain, weakness and fatigue are holding me back from what I want to achieve. I would love to have a job and go travelling independently around the world 🗺 but this is just not possible till I can get better treatment and a better understanding of what is going on with my health. I am trying so hard to prove to them that I am not lazy, that I have goals and that I am not worthless! . . . . #chronicpain  #chronicillness  #spoonie  #spoonielife  #spooniewarrior  #asthma  #sciatica  #ibs  #depression  #quotes  #nurishnotpunish  #fibromyalgia  #fibromyalgiaawareness  #fibrowarriors  #fibrofog  #hypermobile  #hypermobility  #me  #cfs  #myalgicencephalomyelitis  #chronicfatiguesyndrome  #invisibleillness  #mentalillness  #fibromyalgia  #fibro  #chronicfatigue  #spoonieproblems  #spooniestrong  #spooniesunite 
Day 98 of #100spoons 
I just got some formula in little spooky Mulder. He's been eating twice as much as he is "supposed"😂 Trying to get him calmed back down for a nap so I can work some more on my room. I've kinda had a hell of a time since April. But things are happening even though I can only do a little at a time. I'm pretty zonked today. My pain tried to come back, but it went away thankfully. I just hope everything goes well with this little fart. I lost my 2 boy cats last year and year before last, (the first one right after my Grandma and her sister passed). My doggies are gone. I didn't realize how much these little furry guys help me till this week. Calms me down and keeps me company. .
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#mentalhealth #mentalillness #depressionsucks #depressionawareness #mentalhealthawareness #mentalhealthworrior #chronicpain #chronicallyill #chronicillness #spoonielife #spoonie #microblog #kittensofinstagram
Day 98 of #100spoons  I just got some formula in little spooky Mulder. He's been eating twice as much as he is "supposed"😂 Trying to get him calmed back down for a nap so I can work some more on my room. I've kinda had a hell of a time since April. But things are happening even though I can only do a little at a time. I'm pretty zonked today. My pain tried to come back, but it went away thankfully. I just hope everything goes well with this little fart. I lost my 2 boy cats last year and year before last, (the first one right after my Grandma and her sister passed). My doggies are gone. I didn't realize how much these little furry guys help me till this week. Calms me down and keeps me company. . . . . . . . . #mentalhealth  #mentalillness  #depressionsucks  #depressionawareness  #mentalhealthawareness  #mentalhealthworrior  #chronicpain  #chronicallyill  #chronicillness  #spoonielife  #spoonie  #microblog  #kittensofinstagram 
Sorry I haven’t been that active, not much to update you guys on at the moment! Hope everyone had a good weekend and is feeling somewhat ok💕💖
Sorry I haven’t been that active, not much to update you guys on at the moment! Hope everyone had a good weekend and is feeling somewhat ok💕💖
Current situation 🤣 I've been really slacking on my Fibro management. This week I'm going back to weekly spa sessions and regular acupuncture 😃 Keeps the pain at bay 💪🏾💪🏾💪🏾 What do you do to help manage your pain?
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#fibromyaliga #chronicpain #spoonie #chronicillness #painmanagement #spoonielife #cfs #chronicfatigue #fatigue #pain #me
*quotes this to myself as I lay staring at the ceiling because I'm in too much pain to sleep*
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(PSA: I'm hanging in there, don't freak out 😉)
*quotes this to myself as I lay staring at the ceiling because I'm in too much pain to sleep* • • (PSA: I'm hanging in there, don't freak out 😉)
Officially done for the rest of the week! Lol littles dropped back home after a full day (4.30am start) and just got back home! I feel like a puddle of ooze...my body is being it's usual rebellious self and hating on me! Lol don't even know if I have the energy for a bath all my joints hurt! Feel like that bit of sticky tape that gets all stuck to itself and you have to screw it all together! Lol a right tangled up mess! Lol ahhh well I can rest now! Until next week mwahahahhhah lol 😆😩😪💜 #fibromyalgiaawareness #spooniestrong #butyoudontlooksick #chronicpainwarrior #fibro #fibrowarrior #chronicpain #spoonie #spoonielife #depression #copd #anxiety #migraine #chronicillness #fibromyalgia #exhausted #tired #spoonies #chronicillnesswarrior #pain #purpleribbon #fibrosucks #life #mylife #mentalillness #everythinghurts #spoonieproblems #fibrofighter #me
Officially done for the rest of the week! Lol littles dropped back home after a full day (4.30am start) and just got back home! I feel like a puddle of ooze...my body is being it's usual rebellious self and hating on me! Lol don't even know if I have the energy for a bath all my joints hurt! Feel like that bit of sticky tape that gets all stuck to itself and you have to screw it all together! Lol a right tangled up mess! Lol ahhh well I can rest now! Until next week mwahahahhhah lol 😆😩😪💜 #fibromyalgiaawareness  #spooniestrong  #butyoudontlooksick  #chronicpainwarrior  #fibro  #fibrowarrior  #chronicpain  #spoonie  #spoonielife  #depression  #copd  #anxiety  #migraine  #chronicillness  #fibromyalgia  #exhausted  #tired  #spoonies  #chronicillnesswarrior  #pain  #purpleribbon  #fibrosucks  #life  #mylife  #mentalillness  #everythinghurts  #spoonieproblems  #fibrofighter  #me 
He has multiple conditions much like me and has battled colon and skin cancer multiple times in the last few years and is undergoing more tests for cancer now. He has lymes disease and COPD is pretty severe and getting worse! It’s hard to hear him like that coughing worse than I do! I wish him well and I wish I could go be with him, I wish I had never left him! When my parents first divorced I lived with my dad, I was fully a daddies girl, but he was heartbroken and missed my mum I’m not sure he ever got over losing her. He was a working man and he reached out to the pub and his friends there to seek comfort. I went to live with my mum and at ten years old I moved 86 miles away from my dads home in Southend to Huntingdon. I think this was likely the biggest mistake of my mums life (no diss to my mum she just did her best with her circumstances and thought this was best for us) taking us away from him and my maternal grandmother and the whole family has come to leave us all struggling to deal with this world without that love and support we all need! I desperately want to go see my dad again before it’s too late for either of us. This was the first time in my life I’ve heard my dad admit he was lonely and wished we were there. He always thought living here would be best for us, the city is a dangerous place but after all that’s happened here lately does it make any difference?? Maybe as my mobility is improving my I will be able to make it to visit him, that long in a car can wreak havoc on RA but I need to do it! #fathersday #dad #daddysgirl #mammacass #mydadthelegend #birdfamily #rheumatoidarthritiswarrior #copd #crying #rheumatoidarthritis #spoonielife #rheumatoidarthritiswarrior #lungdisease #lovehim
He has multiple conditions much like me and has battled colon and skin cancer multiple times in the last few years and is undergoing more tests for cancer now. He has lymes disease and COPD is pretty severe and getting worse! It’s hard to hear him like that coughing worse than I do! I wish him well and I wish I could go be with him, I wish I had never left him! When my parents first divorced I lived with my dad, I was fully a daddies girl, but he was heartbroken and missed my mum I’m not sure he ever got over losing her. He was a working man and he reached out to the pub and his friends there to seek comfort. I went to live with my mum and at ten years old I moved 86 miles away from my dads home in Southend to Huntingdon. I think this was likely the biggest mistake of my mums life (no diss to my mum she just did her best with her circumstances and thought this was best for us) taking us away from him and my maternal grandmother and the whole family has come to leave us all struggling to deal with this world without that love and support we all need! I desperately want to go see my dad again before it’s too late for either of us. This was the first time in my life I’ve heard my dad admit he was lonely and wished we were there. He always thought living here would be best for us, the city is a dangerous place but after all that’s happened here lately does it make any difference?? Maybe as my mobility is improving my I will be able to make it to visit him, that long in a car can wreak havoc on RA but I need to do it! #fathersday  #dad  #daddysgirl  #mammacass  #mydadthelegend  #birdfamily  #rheumatoidarthritiswarrior  #copd  #crying  #rheumatoidarthritis  #spoonielife  #rheumatoidarthritiswarrior  #lungdisease  #lovehim 
“I want to be as #human as possible: to not hide or run or destroy or prove anything but to see & be seen.”
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That includes #acceptance and #allowing of my body, #chronicpain and all. Being #joyful in my body and having #connection. ——
Ties right into day 30 of @fibroflower #spooniechallenge asking me if I know any #spoonie #friends in real life- I do! @wondrouseste is one of the baddest #spoonies I know! I know others as well but she’s my #mainsqueeze. ——
#spoonielife #fibroflowerspooniechallenge #chronicallyill #chronicfatigue #chronicillness #invisibleillness #butyoudontlooksick #thisiswhatsicklookslike #fibromyalgia
“I want to be as #human  as possible: to not hide or run or destroy or prove anything but to see & be seen.” —— That includes #acceptance  and #allowing  of my body, #chronicpain  and all. Being #joyful  in my body and having #connection . —— Ties right into day 30 of @fibroflower #spooniechallenge  asking me if I know any #spoonie  #friends  in real life- I do! @wondrouseste is one of the baddest #spoonies  I know! I know others as well but she’s my #mainsqueeze . —— #spoonielife  #fibroflowerspooniechallenge  #chronicallyill  #chronicfatigue  #chronicillness  #invisibleillness  #butyoudontlooksick  #thisiswhatsicklookslike  #fibromyalgia 
Went to my cousin and her partners bachelorette party last night!  First time in a while I've felt pretty

#makeup #fatandhappy #thick #bachelorette #girlswithtattos #inkedchick #bbw #plussize #effyourbeautystandards  #butterfly #lovetheskinyourin #curvygirl #girlswithglasses #bigandblunt #girl #redheads #greeneyedgirl #glasses #fibromyalgia #curves #spoonielife
#Repost @runningwithgbs with @get_repost
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Not quite done with my 9+1 yet, but NYC Half 2019 in the bag!!!
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Go to www.juststrongclothing.com and use my code MSANDER10 for 10% off your order! Or, click the link in my bio!
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#juststrong #juststrongclothing #juststrongteam #motivation #run #runner #running #lifting #girlswholift #longdistancerunner #longdistancerunning #lifting #weightlifting #strongwomen #womenmotivatingwomen #gbssurvivor #gettingbetterslowly #GBSsucks #spoonie #spoonielife #spoonies #spooniefit #spooniefitness #spooniemotivation #dancer #spoonierunner #spoonielifter #spoonieliving #spooniestrong
#Repost  @runningwithgbs with @get_repost ・・・ Not quite done with my 9+1 yet, but NYC Half 2019 in the bag!!! . . . . . . Go to www.juststrongclothing.com and use my code MSANDER10 for 10% off your order! Or, click the link in my bio! . . . . . #juststrong  #juststrongclothing  #juststrongteam  #motivation  #run  #runner  #running  #lifting  #girlswholift  #longdistancerunner  #longdistancerunning  #lifting  #weightlifting  #strongwomen  #womenmotivatingwomen  #gbssurvivor  #gettingbetterslowly  #GBSsucks  #spoonie  #spoonielife  #spoonies  #spooniefit  #spooniefitness  #spooniemotivation  #dancer  #spoonierunner  #spoonielifter  #spoonieliving  #spooniestrong 
Back on home soil, for just one night before heading to Milan in the morning, for just 24 hours... 🌎
Back on home soil, for just one night before heading to Milan in the morning, for just 24 hours... 🌎
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Workout of the Day: Try something new! I tried a @mixxedfit class for the first time today and loooved it. It’s Zumba, hip hop, and strength building all in one. My favorite part about it is that it’s FUN. I was smiling throughout the whole class!
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Song of the day: Jumpin’ Jumpin’ - Destiny’s Child
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Tip: Once again, group classes are awesome and I recommend them. However - go. at. your. own. pace! If you can only step to the beat - thats perfectly wonderful. Move to the music however much you can and have fun! You can find out where a MixxedFit class is near you on their website, or find routines on YouTube. What better way to start exercising than with poppin’ tunes? (Do people still say poppin’?)
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#chronicpainhealth #chronicpain #chronicillness #fibrofitness #fibromyalgia #fibromyalgiawarrior #mixxedfit #dance #healthylifestyle #spoonie #spoonielife #wod #findjoy #makehealthyfun
**** Workout of the Day: Try something new! I tried a @mixxedfit class for the first time today and loooved it. It’s Zumba, hip hop, and strength building all in one. My favorite part about it is that it’s FUN. I was smiling throughout the whole class! **** Song of the day: Jumpin’ Jumpin’ - Destiny’s Child **** Tip: Once again, group classes are awesome and I recommend them. However - go. at. your. own. pace! If you can only step to the beat - thats perfectly wonderful. Move to the music however much you can and have fun! You can find out where a MixxedFit class is near you on their website, or find routines on YouTube. What better way to start exercising than with poppin’ tunes? (Do people still say poppin’?) **** #chronicpainhealth  #chronicpain  #chronicillness  #fibrofitness  #fibromyalgia  #fibromyalgiawarrior  #mixxedfit  #dance  #healthylifestyle  #spoonie  #spoonielife  #wod  #findjoy  #makehealthyfun 
Happy Father’s Day to my Dad!! 🎉

He has been so helpful and supportive through all my illnesses and medical issues. Traveling to Maryland with us, taking me to doctor appointments, taking me to Support group meetings, talking to me on the phone about it all, paying for my insurance and helping us finance everything, helping us get moved and etc. He is the best! ☺️ Anyways, love you dad! Thanks for all that you do. You mean so much to me!❤️❤️❤️ [ID: Mahala standing and smiling with her dad in their EDS Awareness shirts from the recent Awareness walk! The bottom of the photo reads “I ❤️ MY DAD.”] #bestdadever #fathersday #fathersday2018 #dadgoals #bestfriend #familygoals #family #happyfathersday #fatheranddaughter #grateful #blessed #lovehim #twining #twins #hardworking #happiness #eds #ehlersdanlossyndrome #zebrastrong #chronicallyill #chronicillness #spoonie #spoonielife #thegreatoutdoors #summer2018 #sunshine #sunglasses #familysupport #fam
Happy Father’s Day to my Dad!! 🎉 He has been so helpful and supportive through all my illnesses and medical issues. Traveling to Maryland with us, taking me to doctor appointments, taking me to Support group meetings, talking to me on the phone about it all, paying for my insurance and helping us finance everything, helping us get moved and etc. He is the best! ☺️ Anyways, love you dad! Thanks for all that you do. You mean so much to me!❤️❤️❤️ [ID: Mahala standing and smiling with her dad in their EDS Awareness shirts from the recent Awareness walk! The bottom of the photo reads “I ❤️ MY DAD.”] #bestdadever  #fathersday  #fathersday2018  #dadgoals  #bestfriend  #familygoals  #family  #happyfathersday  #fatheranddaughter  #grateful  #blessed  #lovehim  #twining  #twins  #hardworking  #happiness  #eds  #ehlersdanlossyndrome  #zebrastrong  #chronicallyill  #chronicillness  #spoonie  #spoonielife  #thegreatoutdoors  #summer2018  #sunshine  #sunglasses  #familysupport  #fam 
Happy Father's Day! Today, we wanted to share this message from our parenting editor, @ellenstumbo:
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"Dear dad who parent a child with a disability,
Today we celebrate you.
Thank you for doing whatever it takes to help provide for your family.
Thank you for stepping in when heavy medical equipment needs to be carried.
Thank you for making your kids laugh with your incredibly corny dad jokes.
Thank you for providing accessibility for your child in an inaccessible world.
Thank you for the many times you stand up for your kids.
Thank you for the gentleness and encouragement you give us every day.
Thank you for the hidden tears nobody knows about that reflect how much you care.
Thank you for your steady, unwavering presence.
Thank you for the way only you can love your child.
Thank you for being you."
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Tell us how your dad helps you through your health challenges in the comments below. ♥️
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#autism #downsyndrome #disability #fathersday #themightysite #invisibleillness #mentalhealth #mentalhealthawareness #mentalillness #mentalhealthmatters #mentalhealthday #chronicfatigue #chronicillness #spoonie #spoonielife #spooniestrong
Happy Father's Day! Today, we wanted to share this message from our parenting editor, @ellenstumbo: ••• "Dear dad who parent a child with a disability, Today we celebrate you. Thank you for doing whatever it takes to help provide for your family. Thank you for stepping in when heavy medical equipment needs to be carried. Thank you for making your kids laugh with your incredibly corny dad jokes. Thank you for providing accessibility for your child in an inaccessible world. Thank you for the many times you stand up for your kids. Thank you for the gentleness and encouragement you give us every day. Thank you for the hidden tears nobody knows about that reflect how much you care. Thank you for your steady, unwavering presence. Thank you for the way only you can love your child. Thank you for being you." ••• Tell us how your dad helps you through your health challenges in the comments below. ♥️ ••• #autism  #downsyndrome  #disability  #fathersday  #themightysite  #invisibleillness  #mentalhealth  #mentalhealthawareness  #mentalillness  #mentalhealthmatters  #mentalhealthday  #chronicfatigue  #chronicillness  #spoonie  #spoonielife  #spooniestrong 
Happy Fathers Day to my old man and to all the other lovely Dad's who follow me on here ❤️
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Also sending love to the people who don't have their Dad's with them today ❤️
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NEVER take people for granted. NEVER go to bed on an argument. And ALWAYS tell the people you love, just how much you do love them ❤️
Happy Fathers Day to my old man and to all the other lovely Dad's who follow me on here ❤️ . . Also sending love to the people who don't have their Dad's with them today ❤️ . . NEVER take people for granted. NEVER go to bed on an argument. And ALWAYS tell the people you love, just how much you do love them ❤️
Me and Francis this morning. He's too gorgeous for words. 😍

#ILoveThorMore #ProudAuntie #family #MEcfs #myalgicencephalomyelitis #Spoonie #SpoonieLife #ButYouDontLookSick
Happy Fathers Day to a special daddy. Whilst some daddies may have enjoyed breakfast in bed, he got up with the children and made them and me breakfast. He drove us all two hours there and back to enjoy his day out with his own dad and then looked after the children whilst I slept when we got back. Add to this tidying the house, emptying bins, making beds, doing laundry and generally keeping us all afloat. Chronic fatigue means his job as a daddy isn’t typical and he takes on the role of both parents a lot of the time when I cannot. He does it without complaint, is often so tired he could drop at any minute, and rarely gets time to himself. We love you to infinity and beyond.
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*these children are not all ours 🤣
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#whpplay #fathersday #happyfathersday #fathersdayuk #daysoutuk #afatherslove #dadsday #dadsmatter #dadsofinstagram #dadsareimportant #fatherhood #familymatters #bestdad #celebratedad #themanthemyththelegend #youareours #instahubby #cfs #chronicfatiguesyndrome #spoonielife #spooniefamily
Happy Fathers Day to a special daddy. Whilst some daddies may have enjoyed breakfast in bed, he got up with the children and made them and me breakfast. He drove us all two hours there and back to enjoy his day out with his own dad and then looked after the children whilst I slept when we got back. Add to this tidying the house, emptying bins, making beds, doing laundry and generally keeping us all afloat. Chronic fatigue means his job as a daddy isn’t typical and he takes on the role of both parents a lot of the time when I cannot. He does it without complaint, is often so tired he could drop at any minute, and rarely gets time to himself. We love you to infinity and beyond. . *these children are not all ours 🤣 . . . . . #whpplay  #fathersday  #happyfathersday  #fathersdayuk  #daysoutuk  #afatherslove  #dadsday  #dadsmatter  #dadsofinstagram  #dadsareimportant  #fatherhood  #familymatters  #bestdad  #celebratedad  #themanthemyththelegend  #youareours  #instahubby  #cfs  #chronicfatiguesyndrome  #spoonielife  #spooniefamily 
New kicks. A necessity when your gym shoes were so old you couldn’t really remember when you got them. Turns out my decade-old orthotics weren’t good for my feet anymore and the 8ish year old gym shoes were pretty dead despite being hardly worn. The woman at @fleetfeetlincolnsquare seemed reticent to just put new insoles in the ancient shoes, so, pretty new sneakers are now in my life for PT/conditioning classes at pain camp. .
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#crps #rsd #chronicpain #chronicillness #invisibleillness #butyoudontlooksick #disability #pain #raredisease #chronicallyill #spoonielife #spoonie #sneakers #gymshoes #sneakerheads #kicks #sneaker #broken #hurt #kicksonfire #nicekicks #kickstagram #dontdismyability
New kicks. A necessity when your gym shoes were so old you couldn’t really remember when you got them. Turns out my decade-old orthotics weren’t good for my feet anymore and the 8ish year old gym shoes were pretty dead despite being hardly worn. The woman at @fleetfeetlincolnsquare seemed reticent to just put new insoles in the ancient shoes, so, pretty new sneakers are now in my life for PT/conditioning classes at pain camp. . . . . #crps  #rsd  #chronicpain  #chronicillness  #invisibleillness  #butyoudontlooksick  #disability  #pain  #raredisease  #chronicallyill  #spoonielife  #spoonie  #sneakers  #gymshoes  #sneakerheads  #kicks  #sneaker  #broken  #hurt  #kicksonfire  #nicekicks  #kickstagram  #dontdismyability 
I make no apology for the #FathersDay spam. It's been the best day in a long time and the first time we've all been together in ages. Here's Dad being his usual crazy self lol.
#happyfathersday #Dad #crazydad #oldfathergrocock #nevergrowup #Fun #family #laughter #goodday #fibromyalgia #fibrolife #myalgicencephalomyelitis #mecfs #millionsmissing #spoonie #spoonielife #spooniesupport #anxiety #depression #positivity #spreadingawareness