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I've spent the past week being naive and ignorant.
Perhaps in an attempt to avoid the situation; hoping it would be minor.
Today solidified the reality. It's a treacherous road but there isn't a doubt in my mind that you'll overcome it. I can't even begin to comprehend what you're feeling but I want you to not only know but see the support that you have around you from friends, family and even strangers.
@head_high_queen you're an inspiration to those around you.
Love, Your smart ass little brother.
“I’ve tried to write this story a zillion times! ✨
After being diagnosed with an #autoimmune disease, #hypothyroidism , and #adrenal burn out at 16 we saw all the specialists, Western doctors, #Holistic doctors, #dietitians , #nutritionists and the like... at one point I was taking 37 #vitamins a day. I didn’t notice anything... I was tested for #lymphoma ... I wasn’t myself.. once Josh and I got married at 19 and 20 the Lord started to leave breadcrumbs of #hope . That led me to #foodblogs (when they were just starting to be a thing) which led me to all kinds of resources 🙌🏼 I spent the next 10 years being obsessive with #health and could not get enough! After radically changing my #diet I didn’t even notice the symptoms anymore that plagued me 🌿 we are what we eat 🌱🤛🏼👏🏼🙌🏼 Once you shift your #mindset to health and not a number or #weight , your weight is effortless, and your mind is clear of the headspace.
#Foodisfuel , it’s life giving. 🌱
Enter #pregnancy , #babies , #nursing and no #sleep (which is really bad for auto immune issues to not get sleep) some things were flaring up again. I was getting skin rashes from #foodallergies ..... despite my dialed in diet 🧐 I did my research. I lost faith in supplements back in the day, but trusted my sister and Mom. I researched and what I found was I needed some support for my #immunesystem .
The rest is history. My body was allowed to heal itself with that immune support. I was able to get off my #thyroid medicine of 15 years, my #hormones officially balanced out, the #energy ...🙌🏼 and not having #skin rashes and food #allergies anymore 💗🙌🏼 ask my friends. Certain foods broke me out in skin rashes. These foods were #healthfoods . I could go on. And I continue to. Even the healthiest (like me eating so well) need some #supplementation and #immune support. Especially when I was giving a lot of myself to raising babies 🌱 it’s never been about a sale. It’s about hope. I prayed for something to get rid of my skin rashes right before my sister and mom shared with me about this stuff.
The biggest difference I’ve notice with this over anything else? #Results 💗 🙏🏼"
Yesterday Adam and I got to attend CHOC Oncology Prom at @chocchildrens hospital as guests to the lovely @laurenaslanian & @nickmezza . What an amazing night traveling "around the world"! Let me tell you, CHOC + @choc_aya did such a wonderful job putting this together for a group of young people who deserve it the most. I'm happy to say that our little Lauren just celebrated 4 years post chemotherapy after battling #lymphoma ! Wooo!!! #fuckcancer
We are so grateful to the all the staff at CHOC for taking excellent care of our loved one and going above and beyond, not just for prom, but each and every day.
P.S. Pinch me, I must still be dreaming!! So star-struck after meeting some of the cast of #greysanatomy I will never forget that feeling!! @greysabc ! #cancerperks#chocprom2018
Sometimes you just need a break -----------------------------
I have been feeling so stressed lately about my health and life in general. This weekend I not only got to give back to a great cause doing what I love, but I finally feel like I'm moving forward in healing myself.
Who knew a weekend away from everything would make this much of an impact.
Anyway, here's some pictures of the greatest book ever and I haven't even finished it yet, a beautiful sunrise and a group of amazing people all supporting an amazing cause.
Because the cancer diagnosis was a stage 4, meaning it had spread all over my body, they had to take another biopsy, a Bone Marrow Biopsy. Probably the most unpleasant biopsies I’ve had, doesn’t sound too pleasant either. The procedure consists of them using a long needle? Or more like metal, cylindrical tube to be inserted through your skin, into your hip bone so they can suck out some of your bone marrow so they can test it to see if it is also infected. Despite the way it sounds it’s actually not that bad depending on the experience of the doctor performing the procedure. In total I’ve had about 3 and one of which was extremely painful. #cancer#cancersucks#cancersurvivor#nktcell#nktcelllymphoma#lymphoma#hospital#guyshospital#nonhodgkinslymphoma#bonemarrowbiopsy#biopsy#sick#illness
As my health was declining further and despite frequent visits to my GP, I felt like I was not getting any better so decided to take matters into my own hands and go to the A&E at St. Thomas’ hospital. They ran tests after test; x rays, bloods tests, heart rates, oxygen levels etc. I didn’t just tell them about my flu symptoms and my blocked nose but also about my pains due to my “posture” they transferred me over to Guy’s Hospital for further tests where I stayed as an inpatient for a week. There they conducted an MRI scan a CT scan and a nasal biopsy. My first worry that it could be something serious was when they were prepping me for a biopsy, an Ear, Nose and Throat doctor began checking my nostril, paused, then frantically searched for a senior to have a look. They concluded the biopsy would have to be done under general anaesthetic (be put to sleep). Results came after a few days the date was 3rd of June, my mother insisted that she would come and on that date they told me I had cancer. I was shocked but then fear and grief came over me, and I burst out crying. They transferred me over to the haematology team who I then started receiving care from. I remember them saying I would have to start treatment imminently but if my face swelled any more then they would have to start straight away. It swelled even more. This picture was when the tumour in my nose was getting increasingly bigger thus causing my face to swell up, it was at this point I had to start treatment. The diagnosis was Stage 4 NKT Cell Lymphoma #cancer#cancersucks#cancersurvivor#nktcell#nktcelllymphoma#stage4cancer#sick#illness#hospital#swollenface#nonhodgkinslymphoma#lymphoma
A few weeks ago my cousin Joaquin was diagnosed with stage 3 follicular lymphoma which means it has spread to both sides of the diaphragm. He had surgery Friday, will get his port placed Monday and start chemotherapy Thursday. Cancer is scary but other than physically it can also hurt you financially. He is a father to 4 and a correctional officer who plans on continuing to work as long as possible. Anything helps. check out his Med gift fund account at
How it all started I recall one particular year specifically 2014 - mid 2015, my health felt like it was declining. I was prone to experiencing flu-like symptoms, sometimes getting over them but having it return a month later amongst the flu symptoms I had a severely blocked nose. I was having pains all over my body, sharp, piercing pains one on the right side of my lower chest, one in my stomach and one on my lower back. Having visited my GP for over a year with these symptoms they blamed my blocked nose on rhinitis on a quick patient.co.uk search and said my pains were due to bad posture and “100% definitely your mattress.” #nktcell#nktcelllymphoma#nonhodgkinslymphoma#lymphoma#cancer#cancersucks#cancersurvivor
THANK YOU to everyone that joined us to celebrate our inaugural Swirl: Orange County benefitting @lymphomacommunity! We are still completely blown away by everyone’s support and help to make our event an overwhelming success! We had so much fun sharing a “swirl” with you and we look forward to growing this event in years to come! Shout out to @snapbackphotobooth for these incredible photos from the event!
Finally got a glimpse of this little lump that's been causing so many issues when I picked up a copy of my PET/CT Friday. It's good to have finally seen the thing I'm fighting--I'd rather know what I'm up against.
For me, the unknowns are by far the scariest. While I did get a few answers in my appointment with my surgeon, I'm left with many more questions. I know my procedure is scheduled for August 2nd. I know that removing the tumor and the nerve won't improve the Horner syndrome; in fact, there's a good chance it will make it worse. I know my body may not be able to regulate my blood pressure after the nerve is removed. I know I'll have to take a minimum of 4 weeks off work for surgery and recovery. I know that I'll have longer-term nerve issues from the procedure (numbness & shooting pains across the right side of my upper body). I know which unit I'll be on after the initial post-op recovery in ICU.
I don't know if all of my symptoms over the past several months can be attributed to this tumor, and I don't know if removing the nerve will have any affect on those symptoms. I don't know what all the nerve in question does, and what all in my body could be impacted. I don't know how long the procedure will take. I don't know what this tumor is or what the various possibilities would mean for the future.
I haven't had that conversation with a doctor--the one we've all seen on TV-- where they sit me down and show me a picture, discuss what they're thinking & why, and explain the possible outcomes/next steps. I'm in kind of a weird situation because I don't have an assigned medical care team. The doctor who discovered the tumor doesn't work in this area, and we don't know what the tumor even is (what type of tumor or if it's cancer), so I don't have a specialist at this point.
I'm trying to muster all the courage & strength I have and ride out the surprises & symptoms, and I'm leaning on the people around me for support. I hate myself for being unreliable, for disappointing people I care about, for not keeping up, for having multiple meltdowns lately (+ probably more in the future). I'm trying, and your support & love means the world.❤️
Please help me prayer amd say our AMENS for @myeloma.and.me
Who will be going through surgery tomorrow.
You have soothed us, saying "do not worry about tomorrow". Thank you that you pour out your spirit upon us a new each day.
Thank you that your grace is sufficient for us within each moment that we live.
So I pray he knows your peace in his heart.
A peace that surpasses all understanding.
A peace that guards his heart and mind.
A peace that he receive from Christ himself.
Lord, as he undergo this surgery, come and be present, watching, waiting, moving to help and guard every moment during this procedure. May he be held in your loving arms and protected from all harm.
In Jesus name,
Remember keep believing and praying because that's half the battle if not more.
This was my view this morning.
Our week has been tough. My Aunt-in-Law, Jeanne was admitted to the hospital on Monday with what they thought was a tick born illness. Come to find out it is actually aggressive stage 4 non-Hodgkins Lymphoma.
God has blessed me with an amazing family by marriage, and this news has absolutely rocked their world. Jeanne is the rock of this family. She is a second mother to Taylor and a third grandmother to Layton. She has always welcomed me with open arms and treated me like blood family. We are devastated at this diagnosis but she is beyond ready to fight it. Prayers for her strength and wellness, as well as strength and peace for the family would be greatly appreciated. Thank you 💕
Please help me pray and say our AMENS for @laguerrera216 who is battling cancer.
Father, thank you for the gift of life, forgive me my iniquities, I am here asking for your mercy, your grace to heal my friend @laguerrera216 from here cancer.
You have said, heaven and earth will pass away but your words will not pass away; you also said that ask, and it will be given to you, seek and you shall find, knock and the door will be open, in the name of Jesus Christ of Nazareth, please grant us the grace of total healing for my friend who has cancer.
And lord we ask also
may your hope and healing lead her mother quickly to a place of restoration amd healing from her heart surgery, O Lord the oil of your healing flows through her like a living stream. She chooses to bathe in these clear waters each day.
She will always keep her eyes on you. And lord please give her family the strength and not to worry about her going through this, let them know that you have her and you are watching over her so she lives a long and healthy life with them.
Remember keep believing and praying because that's half the battle if not more.
If you could tell a newly diagnosed patient one thing, what would it be? 💭
I would tell them that this feeling right here is completely normal. Like everything else in life, it will pass. But, it’s normal. Most experience this. ♥
Tu as le pilulier? La piqûre anti coagulante ? T’as appelé l’infirmière ? Le thermomètre, penses au thermomètre! Et les médicaments en cas de fièvre prends-les, on sait jamais 💊 C’est bon? Penses à la crème solaire indice 50 avec effet plus malade que jamais ☀️. Aller on part ! Deux mois que j’avais pas quitté Nantes alors que les plages de l’atlantique sont juste là, à côté 🌊. Je dois avouer qu’il y a pas mal de moments compliqués notamment cette semaine avec la perte de mes cheveux qui n’a pas été simple a encaisser. Mais ce genre de week end remplis d’amour, me font oublier tous les mauvais moments. Manger en terrasse 🥡boire un verre dans un bar🍷, me promener au bord de l’eau (+faire la sieste ++++ 💤). Merci à toutes les personnes qui ont ensoleillés😍 ce week end entier. Merci aux meilleurs des hommes d’être simplement le meilleur. ❤️. #croisic#loireatlantique#loireatlantique#borddemer#été#summer#lymphome#lymphoma#nevergiveup#kfitghter#fuckcancer
It’s been 1 Mo since my last blog post... Excuses include: ☠️ #scanxiety ☠️// ✈️traveling // 🤧 my tendency to avoid writing about this because... it’s hard, and still pretty raw. .
👉🏻👉🏻 Remission Relapse Part 2 is now LIVE 💁🏼♀️ Link in bio ✨