an online Instagram web viewer

#Ileostomy medias

Photos

Jag är så tacksam över att vara omringad av fina och stöttande vänner. Ett telefonsamtal eller ett sms bort. ❤ Vi är ett gäng som är fd. kollegor och vi försöker att ses när vi kan, när inte livet swischar förbi i allt för hög fart. Sofia @beergmark är en av dem. 💖
#friendship #csn4life 
#attlevamedcancer #attlevamedstomi #fuckcancer #fightcancer #stomi #stomipåse  #stomafashion #stomikonst #ostomyart #ostomy #ostomyinspo #ileostomy
Wow😍 grab any 6 pairs for £30. Includes  Thongs & Intimacy. Sizes from UK8 to UK22, no refunds no exchanges, we can help with sizes. *does not include any of the new collection and vouchers cannot be used* Turquoise Satin/ Matt, Yellow Satin/Matt, Purple Lace, Red Lace, African Rose, Violet, Burgendy, Cappicino, Blush Pink, Blk & Iv thong, Ivory thong, Violet thong, Black&Gold Thong. #ostomy #ibd #crohns #crohnsdisease #lingerie #colorectalsurgery #Stoma #ileostomy #colostomy #urostomy *Call 01417630991* offer on as long as sizes are available.
Wow😍 grab any 6 pairs for £30. Includes Thongs & Intimacy. Sizes from UK8 to UK22, no refunds no exchanges, we can help with sizes. *does not include any of the new collection and vouchers cannot be used* Turquoise Satin/ Matt, Yellow Satin/Matt, Purple Lace, Red Lace, African Rose, Violet, Burgendy, Cappicino, Blush Pink, Blk & Iv thong, Ivory thong, Violet thong, Black&Gold Thong. #ostomy  #ibd  #crohns  #crohnsdisease  #lingerie  #colorectalsurgery  #Stoma  #ileostomy  #colostomy  #urostomy  *Call 01417630991* offer on as long as sizes are available.
In recovery following some major surgery. Hoping to make music again soon and return to the normal swing. #ibdawareness  #stoma #ileostomy #ileostomydiet
Wahey!! 🐠 We are getting a goldfish for our #GetYourBellyOut office!! 🐠 What shall we name it???? .
.
.
.
.
.
.
.
.
.
.
.
.
.
.
*Disclaimer - we aren't really getting a goldfish....well not just yet anyways, first we need to get a @getyourbellyout_official office 😬 
This bowl however does have another destiny to fulfill. All of which will become clear in a few weeks time. So stay tuned!

P.s. no dinosaurs were harmed during this photo opportunity!

#Crohns #CrohnsDisease #colitis #UlcerativeColitis #humour #office #officedecor #officegoals #nonprofit #notforprofit #ibd #spoonielife #spoonie #chronicillness #invisibleillness #stoma #ostomy #ostomate #colostomy #ileostomy #jpouch
Wahey!! 🐠 We are getting a goldfish for our #GetYourBellyOut  office!! 🐠 What shall we name it???? . . . . . . . . . . . . . . . *Disclaimer - we aren't really getting a goldfish....well not just yet anyways, first we need to get a @getyourbellyout_official office 😬 This bowl however does have another destiny to fulfill. All of which will become clear in a few weeks time. So stay tuned! P.s. no dinosaurs were harmed during this photo opportunity! #Crohns  #CrohnsDisease  #colitis  #UlcerativeColitis  #humour  #office  #officedecor  #officegoals  #nonprofit  #notforprofit  #ibd  #spoonielife  #spoonie  #chronicillness  #invisibleillness  #stoma  #ostomy  #ostomate  #colostomy  #ileostomy  #jpouch 
My new favorite sin! 💜 #crohnslife #ileostomy #lovingit
Make light work of cleaning your home with the Ozzy Ostrich feather duster. With plumes of only the highest quality Ostrich feathers, you can reach the unreachable corners, lights and ornaments in your home, and ensure a thorough dusting! The soft, smooth feathers are perfect for any surface, and the elegant Ostrich feathers are sure to add a touch of class to your cleaning! LIMITED TIME ONLY 20% OFF - £16 email me to order vivamknorwich@gmail.com #cleaning #dusting #extendable #feather #ostrichfeather #featherduster #20%off #limitedtime #norwich #norfolk #vivamk #baggedgirl #justagirlandherbag #ileostomy #stoma #ibdwarrior #disabled #instagram #instadaily
Make light work of cleaning your home with the Ozzy Ostrich feather duster. With plumes of only the highest quality Ostrich feathers, you can reach the unreachable corners, lights and ornaments in your home, and ensure a thorough dusting! The soft, smooth feathers are perfect for any surface, and the elegant Ostrich feathers are sure to add a touch of class to your cleaning! LIMITED TIME ONLY 20% OFF - £16 email me to order vivamknorwich@gmail.com #cleaning  #dusting  #extendable  #feather  #ostrichfeather  #featherduster  #20 %off #limitedtime  #norwich  #norfolk  #vivamk  #baggedgirl  #justagirlandherbag  #ileostomy  #stoma  #ibdwarrior  #disabled  #instagram  #instadaily 
Some times a simple smile is enough to change someone's day for the better,  be kind to each other and don't forget to smile!

Galdysandi.co.uk ----> Read, Share, Subscribe.....enjoy!  xXx

#Love #eachother #family #friends #kindness #positive #caring #smile #laugh #blog #read #share #subscribe #website #enjoylife #crohnslife #crohnswarrior #crohns #IBD #inspire #ileostomy #ostomy #Gladys_n_I #awareness #hastag #random #words #lol
Glück, Freude, Zufriedenheit 🤩
Die letzten Wochen waren voll davon und ich kann mein Glück teilweise immer noch kaum fassen 😍 So gut wie gerade kam ich noch nie mit meinen „Einschränkungen“ zurecht. Es gibt so viele Momente in denen ich nicht mal mehr merke, dass ich anders bin 🤷🏼‍♀️
So diese Woche. Mit @kinghorses_sweety.isl ging es Sonntag in einer insgesamt 6 stündigen Autofahrt zu @hannahtusc17  Etwas was für mich früher die absolute Hölle gewesen wäre! Niemals hätte ich 6 Stunden ohne 5-8 Stopps im Auto ausgehalten und dann auch nur, wenn ich eben vorher absolut nichts gegessen hätte...und jetzt? 2 Stopps, einer davon bei McDonalds, glücklich mampfend und Milchshake schlürfend fuhr ich durch die Gegend und der zweite Stopp war ebenfalls dem Wasser geschuldet dass ich während der Fahrt getrunken habe😂 Unglaublich für mich! Das ist vielleicht für die meisten eine Kleinigkeit für mich bedeutet das die Welt! 
Es ging weiter mit einem Badbesuch bei Hannah, dort badeten wir Stunden in den Solebecken - ich konnte einfach genießen. So entspannt wie danach war ich wirklich noch nie 😌 Und dann.  Dann spontan die Idee mal eben nach Holland an den Strand zu fahren, früher: Spontanität unmöglich! Jetzt: Klar! Machen wir 😍 Und es war genial! Was für ein Tag 🤩 Ich werde es nie vergessen, wie glücklich und sorglos ich in diesen Momenten war. Der komplette Tag war rundum perfekt, inklusive der perfekten Welle 😏 Wir schmissen uns nämlich begeistert in die sehr wellige Nordsee und es gab einfach null Probleme! Nix! 😍👏🏻 Das ganze geht noch viel viel weiter, aber hier beende ich meine Begeisterungsstürme mal um einfach abschließend zu sagen: Es wird besser. Immer. 🧡
#bertalove #colitiswarrior #colitisulcerosa #cu #ibd #ced #stoma #ileostomy #bagwhatbag #chronicillness #meer #nordsee #strand #beach #freunde #friends #liebe #love #glück #happiness #dankbarkeit #holland #smile #lifeisbetteratthebeach #lifeisbeautiful #freedom #wowistlebengeil
Glück, Freude, Zufriedenheit 🤩 Die letzten Wochen waren voll davon und ich kann mein Glück teilweise immer noch kaum fassen 😍 So gut wie gerade kam ich noch nie mit meinen „Einschränkungen“ zurecht. Es gibt so viele Momente in denen ich nicht mal mehr merke, dass ich anders bin 🤷🏼‍♀️ So diese Woche. Mit @kinghorses_sweety.isl ging es Sonntag in einer insgesamt 6 stündigen Autofahrt zu @hannahtusc17 Etwas was für mich früher die absolute Hölle gewesen wäre! Niemals hätte ich 6 Stunden ohne 5-8 Stopps im Auto ausgehalten und dann auch nur, wenn ich eben vorher absolut nichts gegessen hätte...und jetzt? 2 Stopps, einer davon bei McDonalds, glücklich mampfend und Milchshake schlürfend fuhr ich durch die Gegend und der zweite Stopp war ebenfalls dem Wasser geschuldet dass ich während der Fahrt getrunken habe😂 Unglaublich für mich! Das ist vielleicht für die meisten eine Kleinigkeit für mich bedeutet das die Welt! Es ging weiter mit einem Badbesuch bei Hannah, dort badeten wir Stunden in den Solebecken - ich konnte einfach genießen. So entspannt wie danach war ich wirklich noch nie 😌 Und dann. Dann spontan die Idee mal eben nach Holland an den Strand zu fahren, früher: Spontanität unmöglich! Jetzt: Klar! Machen wir 😍 Und es war genial! Was für ein Tag 🤩 Ich werde es nie vergessen, wie glücklich und sorglos ich in diesen Momenten war. Der komplette Tag war rundum perfekt, inklusive der perfekten Welle 😏 Wir schmissen uns nämlich begeistert in die sehr wellige Nordsee und es gab einfach null Probleme! Nix! 😍👏🏻 Das ganze geht noch viel viel weiter, aber hier beende ich meine Begeisterungsstürme mal um einfach abschließend zu sagen: Es wird besser. Immer. 🧡 #bertalove  #colitiswarrior  #colitisulcerosa  #cu  #ibd  #ced  #stoma  #ileostomy  #bagwhatbag  #chronicillness  #meer  #nordsee  #strand  #beach  #freunde  #friends  #liebe  #love  #glück  #happiness  #dankbarkeit  #holland  #smile  #lifeisbetteratthebeach  #lifeisbeautiful  #freedom  #wowistlebengeil 
♌️
♌️
Before we close today due to family illness we just want to say a HUGE THANK YOU to all of our customers for your continued custom and support.
Thank you to our 19 customers who helped us by sharing your journeys to raise awareness of conditions affecting the bowel and the use of disabled toilets with invisible disabilities.  We have been fortunate to have met so many inspirational people who helped educate us so that we could provide products that help you in your day to day life.
We wish you all the best and hope to be back again next year.
With love and best wishes from Sue and the team xx #Happyflush #takeitwithyouwhenyougo #ibd #ibdsuperheroes #ibdawareness #crohnsdisease #colitisawareness #ulcerativecolitis #stoma #ileostomy #colostomy #hirschsprungsdisease #BAM #getyourbellyout #IA #buttonybear
Before we close today due to family illness we just want to say a HUGE THANK YOU to all of our customers for your continued custom and support. Thank you to our 19 customers who helped us by sharing your journeys to raise awareness of conditions affecting the bowel and the use of disabled toilets with invisible disabilities. We have been fortunate to have met so many inspirational people who helped educate us so that we could provide products that help you in your day to day life. We wish you all the best and hope to be back again next year. With love and best wishes from Sue and the team xx #Happyflush  #takeitwithyouwhenyougo  #ibd  #ibdsuperheroes  #ibdawareness  #crohnsdisease  #colitisawareness  #ulcerativecolitis  #stoma  #ileostomy  #colostomy  #hirschsprungsdisease  #BAM  #getyourbellyout  #IA  #buttonybear 
I had a call from the amazing #IBD team at the #bri yesterday and they talked me through the procedure for the #proctocolectomy I’m having in 10 days. The nurse who has been my go to for the last 10 years is giving me another call next week in case I think of any questions... but I’m struggling! So has anyone out there got any thoughts as to what I should be asking about what is a pretty major procedure?! .
.
#ibd #ibdawareness #ibdwarrior #crohnsdisease #crohnsandcollitis #stomalife #nhs #crohnsandcolitisuk #chornicillness #chronicdisease #ileostomy  #chronicillnesslife #baglife #barbiebum #bowelvoyage
I had a call from the amazing #IBD  team at the #bri  yesterday and they talked me through the procedure for the #proctocolectomy  I’m having in 10 days. The nurse who has been my go to for the last 10 years is giving me another call next week in case I think of any questions... but I’m struggling! So has anyone out there got any thoughts as to what I should be asking about what is a pretty major procedure?! . . #ibd  #ibdawareness  #ibdwarrior  #crohnsdisease  #crohnsandcollitis  #stomalife  #nhs  #crohnsandcolitisuk  #chornicillness  #chronicdisease  #ileostomy  #chronicillnesslife  #baglife  #barbiebum  #bowelvoyage 
@mrs_cheryl_davis Crohn's warrior since 1995 💪🏼💜
@mrs_cheryl_davis Crohn's warrior since 1995 💪🏼💜
Есть ли любовь сильнее, чем любовь матери к своему ребёнку?!❤️
Я никогда не нацелуюсь и не надышусь им🙏🏻❤️ чувствую себя маньяком😅
#АрсенийВитенко #Синдромкороткойкишки #мыпобедим #shortbowelsyndrome #ileostomy
All of this! 😘
All of this! 😘
Recently been going through a rollercoaster with my health , seeing myself in and out of hospital for 7 weeks 🙁 I face myself returning to hospital today for further procedures and experiments 😭 life isn't all it seems and many take the simple things in life for granted🙃 I would do anything for good health , known I could wake up each day and not worry how I will survive the day cause of pain , fatigue and nausea🙌🏽❤️ #life #lifechanger #emotional #dailypic #me #crohns #symptoms #dailystruggle #getstronger #fighting2getfit #since2009 #crohnsdisease #ileostomy #obstacles #longjourney #quoteoftheday
Recently been going through a rollercoaster with my health , seeing myself in and out of hospital for 7 weeks 🙁 I face myself returning to hospital today for further procedures and experiments 😭 life isn't all it seems and many take the simple things in life for granted🙃 I would do anything for good health , known I could wake up each day and not worry how I will survive the day cause of pain , fatigue and nausea🙌🏽❤️ #life  #lifechanger  #emotional  #dailypic  #me  #crohns  #symptoms  #dailystruggle  #getstronger  #fighting2getfit  #since2009  #crohnsdisease  #ileostomy  #obstacles  #longjourney  #quoteoftheday 
What a difference a nights sleep makes! I look so difference from my last post where I just ate a pie!
Your body changes throughout the day and that’s why it’s best to weigh yourself when you first wake up. 
Why? Because your empty and it’s easier to be more consistent with morning weigh ins. Just make sure you 💩 first 😂
What a difference a nights sleep makes! I look so difference from my last post where I just ate a pie! Your body changes throughout the day and that’s why it’s best to weigh yourself when you first wake up. Why? Because your empty and it’s easier to be more consistent with morning weigh ins. Just make sure you 💩 first 😂
A better you will yield a better world. 😘
A better you will yield a better world. 😘
Let’s talk about a sexy topic: antibiotic resistance.  Even better? Hospital-acquired resistant infections. .
I have the pleasure of getting a UTI every time I have surgery from the use of a catheter. This past surgery , 6 WEEKS AGO, I acquired the same with a twist- I’m now waiting to see infectious disease tomorrow for getting a picc inserted for IV antibiotics after failing to kill this infection with 4 previous rounds of oral meds.
.
This is especially dangerous for me, as I am severely immune compromised due to post- transplant medication and autoimmune disease. I’m grateful this hasn’t escalated more so, as unfortunately sepsis is a very real issue with these types of infections for many people. *knock on wood*
.
This issue has been something I’ve been aware of but never experienced first hand, and it truly is scary. We need better solutions and legislation to make sure these bacteria do not become increasingly more common! .
🤞🏻 your fingers for me please!
Let’s talk about a sexy topic: antibiotic resistance. Even better? Hospital-acquired resistant infections. . I have the pleasure of getting a UTI every time I have surgery from the use of a catheter. This past surgery , 6 WEEKS AGO, I acquired the same with a twist- I’m now waiting to see infectious disease tomorrow for getting a picc inserted for IV antibiotics after failing to kill this infection with 4 previous rounds of oral meds. . This is especially dangerous for me, as I am severely immune compromised due to post- transplant medication and autoimmune disease. I’m grateful this hasn’t escalated more so, as unfortunately sepsis is a very real issue with these types of infections for many people. *knock on wood* . This issue has been something I’ve been aware of but never experienced first hand, and it truly is scary. We need better solutions and legislation to make sure these bacteria do not become increasingly more common! . 🤞🏻 your fingers for me please!
8-16-2018. Thur. Yes this is my Ward & Stake Building The Manassa 1st ward & Manassa Colorado Stake. OF THE CHURCH OF JESUS CHRIST OF LATTER DAY SAINTS. ALSO 2ND & 3RD WARDS TOO. 
YES A VERY BIG BUILDING AND WAS BUILD IN 1962 DED 1963.. MY DAD. WAS THE BISHOP AT THE TIME BISHOP VAUGHN N SOWARDS.  I LOVED THE OLD BUILDING IT SAS TWO STORIES ALL BRICK AND A BIG HIGH STARIES WAY TO THE UP MAIN PART. IT WAS OLD AND NOT AS ALL AS BIG AS THIS ONE.
Love them both.
KIM:) #KVS #CROHNS#ldsbuilding#coloradolds#mycolorado#CROHNSLIFE #1stward#iiovelivingincolorado##ileostomy #lovelife
8-16-2018. Thur. Yes this is my Ward & Stake Building The Manassa 1st ward & Manassa Colorado Stake. OF THE CHURCH OF JESUS CHRIST OF LATTER DAY SAINTS. ALSO 2ND & 3RD WARDS TOO. YES A VERY BIG BUILDING AND WAS BUILD IN 1962 DED 1963.. MY DAD. WAS THE BISHOP AT THE TIME BISHOP VAUGHN N SOWARDS. I LOVED THE OLD BUILDING IT SAS TWO STORIES ALL BRICK AND A BIG HIGH STARIES WAY TO THE UP MAIN PART. IT WAS OLD AND NOT AS ALL AS BIG AS THIS ONE. Love them both. KIM:) #KVS  #CROHNS #ldsbuilding #coloradolds #mycolorado #CROHNSLIFE  #1stward #iiovelivingincolorado ##ileostomy  #lovelife 
Im home guys.🏠
•
So I went to the ER because I thought I was having another bowel obstruction. I had horrible pain, nausea, and high liquid output (which isn’t normal.). So after talking to my surgeons nurse, she thought it was be a good idea to go in, to make sure it wasn’t anything serious.
•
Thankfully after some IV fluids, pain meds, and nausea meds the pain got a little better. They did a X-ray and it shows everything working, so there was no need for a CT . They think the pain is probably from adhesions (story of my life🙄). So they sent me home and told me to follow up with my family doctor and surgeon in the next week. I just wish we more answers than scar tissues because this pain is horrible.
•
But I just want to say thank you guys so much for your sweet DMs and prayers! It truly means the world to me to have you guys in my life and apart of my journey. Its one of the many reasons why i love this community so much because we can support each other and just truly be there for one another. So thank you again.❤️
•••
#ileostomy #ileostomyawareness #ostomy #ostomates #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings  #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness #loveyourstoma #port #ER
Im home guys.🏠 • So I went to the ER because I thought I was having another bowel obstruction. I had horrible pain, nausea, and high liquid output (which isn’t normal.). So after talking to my surgeons nurse, she thought it was be a good idea to go in, to make sure it wasn’t anything serious. • Thankfully after some IV fluids, pain meds, and nausea meds the pain got a little better. They did a X-ray and it shows everything working, so there was no need for a CT . They think the pain is probably from adhesions (story of my life🙄). So they sent me home and told me to follow up with my family doctor and surgeon in the next week. I just wish we more answers than scar tissues because this pain is horrible. • But I just want to say thank you guys so much for your sweet DMs and prayers! It truly means the world to me to have you guys in my life and apart of my journey. Its one of the many reasons why i love this community so much because we can support each other and just truly be there for one another. So thank you again.❤️ ••• #ileostomy  #ileostomyawareness  #ostomy  #ostomates  #ostomybag  #ostomate  #ostomywarrior  #warrior  #stoma  #chronicillness  #chronicpain  #hiddenillness  #invisvibleillness  #girlwithguts  #loveyourself  #bodypositivity  #positivevibes  #countyourblessings  #nocolonstillrollin  #ittakesguts  #toddtheostomy  #chronicallymotivated  #coloplast  #spoonie  #ostomyawareness  #loveyourstoma  #port  #ER 
DETOXIDICATION UPDATE: DAY 26

GREAT FUCKING NEWS I'M GUNNA EXPLODE INTO FAIRY UNICORN DUST!!! So I got my blood results which were taken on the 31st of July and just compared them to when I was in hospital in May this year with a flare up from Crohns disease and had an abcess in the abdominal region that was drained. 
My CRP (indicates level of inflammation in the body) which is also known as the inflammatory markers has dropped from 201 to only 13!!! 5 is the reference for "normal" in the body so HOW FUCKING AMAZING IS THAT!!! I have only committed to this for 26 days and the change already is phenomenal!

IMAGINE what will transpire in 6 months from Now?? In a year from Now?? In 5 years from Now??!!!! The future belongs to those who believe in the beauty of their dreams and I dream of a future full of health, wellbeing, happiness and success!!!! YESSS BISSSSHHHH!!! Stay tuned as I'm going to share later on today the actual results on paper and other changes as well which have all been for the better. 
#detoxification #realhealing #crohns #drmorse #drsebi #acidic #youcanheal #mindsetiskey #wellness #holistichealth #holistichealing #detoxupdate #day26 #justthebeginning #watchthisspace #thebodyheals #diseaseisreversable #colitis #ileostomy #yasss
DETOXIDICATION UPDATE: DAY 26 GREAT FUCKING NEWS I'M GUNNA EXPLODE INTO FAIRY UNICORN DUST!!! So I got my blood results which were taken on the 31st of July and just compared them to when I was in hospital in May this year with a flare up from Crohns disease and had an abcess in the abdominal region that was drained. My CRP (indicates level of inflammation in the body) which is also known as the inflammatory markers has dropped from 201 to only 13!!! 5 is the reference for "normal" in the body so HOW FUCKING AMAZING IS THAT!!! I have only committed to this for 26 days and the change already is phenomenal! IMAGINE what will transpire in 6 months from Now?? In a year from Now?? In 5 years from Now??!!!! The future belongs to those who believe in the beauty of their dreams and I dream of a future full of health, wellbeing, happiness and success!!!! YESSS BISSSSHHHH!!! Stay tuned as I'm going to share later on today the actual results on paper and other changes as well which have all been for the better. #detoxification  #realhealing  #crohns  #drmorse  #drsebi  #acidic  #youcanheal  #mindsetiskey  #wellness  #holistichealth  #holistichealing  #detoxupdate  #day26  #justthebeginning  #watchthisspace  #thebodyheals  #diseaseisreversable  #colitis  #ileostomy  #yasss 
@sloan_strongman was like, “I wouldn’t recommend going to the gym the day after your chemo... but I know you’ll just tell me to fuck off, so let’s go.” 😂 He was pretty much right. It was pressing day. I decided to put my headphones in and giv’r so once again no videos. Also, I’m so grateful our kids are chill AF at the gym lol. They let us train and get in the zone. 💪🏽 P.S I guess the Swiss bar was heavier than I wrote down. Yay! #StrongFam #Chemo #chemotherapy #stoma #chemoexercise #ileostomy #ileostomyfitness #beatingcancer #coloncancerawareness #strongman #strongwoman #teamnoquit
@sloan_strongman was like, “I wouldn’t recommend going to the gym the day after your chemo... but I know you’ll just tell me to fuck off, so let’s go.” 😂 He was pretty much right. It was pressing day. I decided to put my headphones in and giv’r so once again no videos. Also, I’m so grateful our kids are chill AF at the gym lol. They let us train and get in the zone. 💪🏽 P.S I guess the Swiss bar was heavier than I wrote down. Yay! #StrongFam  #Chemo  #chemotherapy  #stoma  #chemoexercise  #ileostomy  #ileostomyfitness  #beatingcancer  #coloncancerawareness  #strongman  #strongwoman  #teamnoquit 
This is hard to post publicly, but I told @krisgethin at the Europa Games last weekend I would do this, so here it goes.  6 years ago I was diagnosed with leukemia. After treatment and a bone marrow transplant, I relapsed 3 years ago. Having to do all the treatment over again took a toll on my body. I was given approximately a 15-20% chance of surviving the second bone marrow transplant. By the grace of God I made it. But I was in rough shape. Heavily dosed with narcotics and not eating. After learning to walk again and kicking the pain meds over a period of 2 years, I needed to put weight on. I found Kaged muscle and Kris’s programs. Although the work was on me, of it wasn’t for Kris and these programs I would never have been able to regain the strength I previously had(and a lot more on top of that). I even did this with an ileostomy, which doesn’t make a lot of movements and positions comfortable, but it’s still not an excuse!!!I could never say it enough, but thank you #krisgethin and the Kaged Muscle Supplements. 
Pics are of treatment before I went to Phoenix for more treatment and my second Bone Marrow Transplant.

Top left: sat up on the side of the bed for the first time in 72 days.

Top right: finally got to go home after nearly 80 days I’m the hospital.

Bottom pics: me currently. Just finished the 8week MBT. Still got to loose some bf!!
#KrisGethin #kagedMuscle #strongerthanever #nevergiveup #ileostomy #noexcuses #8weekMBT
This is hard to post publicly, but I told @krisgethin at the Europa Games last weekend I would do this, so here it goes. 6 years ago I was diagnosed with leukemia. After treatment and a bone marrow transplant, I relapsed 3 years ago. Having to do all the treatment over again took a toll on my body. I was given approximately a 15-20% chance of surviving the second bone marrow transplant. By the grace of God I made it. But I was in rough shape. Heavily dosed with narcotics and not eating. After learning to walk again and kicking the pain meds over a period of 2 years, I needed to put weight on. I found Kaged muscle and Kris’s programs. Although the work was on me, of it wasn’t for Kris and these programs I would never have been able to regain the strength I previously had(and a lot more on top of that). I even did this with an ileostomy, which doesn’t make a lot of movements and positions comfortable, but it’s still not an excuse!!!I could never say it enough, but thank you #krisgethin  and the Kaged Muscle Supplements. Pics are of treatment before I went to Phoenix for more treatment and my second Bone Marrow Transplant. Top left: sat up on the side of the bed for the first time in 72 days. Top right: finally got to go home after nearly 80 days I’m the hospital. Bottom pics: me currently. Just finished the 8week MBT. Still got to loose some bf!! #KrisGethin  #kagedMuscle  #strongerthanever  #nevergiveup  #ileostomy  #noexcuses  #8weekMBT 
Yet another reason why I love my gym. If you’re not already a member of one of the 4 Team Borden clubs, Join Today! Tell them @a_righteous_man sent ya. 😘
#Repost @anytimefitness_sparksnv with @get_repost
・・・
WE LOVE OUR MEMBERS AND APPRECIATE YOU!!!!! 😍💜💪🏽🙏🏼That’s why you need to SAVE THE DATE OF September 29th 2018, for our 2nd annual TEAM BORDEN, Member Appreciation Carnival!! 🎈🎈
.
.
.
JOIN US for a fun packed day of activities and shenanigans! Bring your family, friends and fur babies for a great time together!  And don’t forget...there will be a mini pony. 🐴 #joinus #carnival #memberappreciation #weloveourmembers #fitfam #fitnessisfun #bleedpurple #anytimefitness #g2hp #teamborden @anytimefitness_northreno @anytimefitness_sparksnv 
@anytimefitness_midtownreno 
@anytimefitness_redrock
Yet another reason why I love my gym. If you’re not already a member of one of the 4 Team Borden clubs, Join Today! Tell them @a_righteous_man sent ya. 😘 #Repost  @anytimefitness_sparksnv with @get_repost ・・・ WE LOVE OUR MEMBERS AND APPRECIATE YOU!!!!! 😍💜💪🏽🙏🏼That’s why you need to SAVE THE DATE OF September 29th 2018, for our 2nd annual TEAM BORDEN, Member Appreciation Carnival!! 🎈🎈 . . . JOIN US for a fun packed day of activities and shenanigans! Bring your family, friends and fur babies for a great time together! And don’t forget...there will be a mini pony. 🐴 #joinus  #carnival  #memberappreciation  #weloveourmembers  #fitfam  #fitnessisfun  #bleedpurple  #anytimefitness  #g2hp  #teamborden  @anytimefitness_northreno @anytimefitness_sparksnv @anytimefitness_midtownreno @anytimefitness_redrock
You’re a badass! 😘
You’re a badass! 😘
#tbt desse dia mais que especial! Te convido a conhecer o @projetocicatrizes e se juntar a esse espaço de mulheres reais e seus relatos de vitória e superação! Cicatrizes são marcas que mostram que somos mais fortes do que imaginamos e que sim, estamos vivas pra contar essa história🙏❤️
📸Fotografia @imagolucis
.
.
.
#projetocicatrizes #scar #cicatrizes #cicatrizesnocorpo #mulher #colostomia #ostomizados  #foradopadrao #ostomizada #ileostomia #estoma #ostomia #apendicite #colostomy #ostomy #ostomybag #ileostomy #historiasdevida #historiasdaalma #historiareal #inspiraçao #mulheresfortes #mulheresreais #tv #jornal #amorproprio #amor #respeito #gratidão
.
#tbt  desse dia mais que especial! Te convido a conhecer o @projetocicatrizes e se juntar a esse espaço de mulheres reais e seus relatos de vitória e superação! Cicatrizes são marcas que mostram que somos mais fortes do que imaginamos e que sim, estamos vivas pra contar essa história🙏❤️ 📸Fotografia @imagolucis . . . #projetocicatrizes  #scar  #cicatrizes  #cicatrizesnocorpo  #mulher  #colostomia  #ostomizados  #foradopadrao  #ostomizada  #ileostomia  #estoma  #ostomia  #apendicite  #colostomy  #ostomy  #ostomybag  #ileostomy  #historiasdevida  #historiasdaalma  #historiareal  #inspiraçao  #mulheresfortes  #mulheresreais  #tv  #jornal  #amorproprio  #amor  #respeito  #gratidão  .
This hospital stay has gone on waaay longer than I ever thought and still on iv fluids and my ostomy is still running on high output. It is disheartening....all of your suggestions were appreciated but all of those things have been tried. At this point, I just want it to slow the fuck down...also...this little amount of sleep has wrecked my brain and the weird dreams aren't all that great. All I want is to get back to living and being home instead of being here. Also, having interest in my passions would be nice too...this crohns warrior is tired...and feels discouraged just about everyday. Lonely. Not myself. This is not fun and has wreaked havoc on my mental health. I need something to give and I just want things to get better. #crohns #ostomy #ileostomy #sleepdeprived #depressed #needimprovement #comeon #thingshavegottogetbetter #justwanttogohome #hospital #ugh #crohnie #halifax #please #ivfluids #highoutput #tiredaf #needawin #slowtheflow #nothingisworkingyet
This hospital stay has gone on waaay longer than I ever thought and still on iv fluids and my ostomy is still running on high output. It is disheartening....all of your suggestions were appreciated but all of those things have been tried. At this point, I just want it to slow the fuck down...also...this little amount of sleep has wrecked my brain and the weird dreams aren't all that great. All I want is to get back to living and being home instead of being here. Also, having interest in my passions would be nice too...this crohns warrior is tired...and feels discouraged just about everyday. Lonely. Not myself. This is not fun and has wreaked havoc on my mental health. I need something to give and I just want things to get better. #crohns  #ostomy  #ileostomy  #sleepdeprived  #depressed  #needimprovement  #comeon  #thingshavegottogetbetter  #justwanttogohome  #hospital  #ugh  #crohnie  #halifax  #please  #ivfluids  #highoutput  #tiredaf  #needawin  #slowtheflow  #nothingisworkingyet 
Thinking about giving up? DONT DO IT! Chronic Illnesses can be tough, but so are you! Holla’ if you feel me. 😎👊🏼 #Ostomy #Ileostomy #Colostomy #OstomyBag #Ostomate #OstomyCare #CrohnsDisease #IBD #UlcerativeColitis #PatientAdvocate #UOAA #CCFA #NoColonStillRollin #ChronicIllness #Crohns #Stoma #invisibleillness #StomaBag #DontStop #Live #DontQuit
Pra fechar o feed com o #tbt desse dia mais que especial! Te convido a conhecer o @projetocicatrizes e se juntar a esse espaço de mulheres reais e seus relatos de vitória e superação! Cicatrizes são marcas que mostram que somos mais fortes do que imaginamos e que sim, estamos vivas pra contar essa história🙏❤️
.
.
.
.
#projetocicatrizes #scar #cicatrizes #cicatrizesnocorpo #mulher #colostomia #ostomizados  #foradopadrao #ostomizada #ileostomia #estoma #ostomia #apendicite #colostomy #ostomy #ostomybag #ileostomy #historiasdevida #historiasdaalma #historiareal #inspiraçao #mulheresfortes #mulheresreais #tv #jornal #amorproprio #amor #respeito #gratidão
Pra fechar o feed com o #tbt  desse dia mais que especial! Te convido a conhecer o @projetocicatrizes e se juntar a esse espaço de mulheres reais e seus relatos de vitória e superação! Cicatrizes são marcas que mostram que somos mais fortes do que imaginamos e que sim, estamos vivas pra contar essa história🙏❤️ . . . . #projetocicatrizes  #scar  #cicatrizes  #cicatrizesnocorpo  #mulher  #colostomia  #ostomizados  #foradopadrao  #ostomizada  #ileostomia  #estoma  #ostomia  #apendicite  #colostomy  #ostomy  #ostomybag  #ileostomy  #historiasdevida  #historiasdaalma  #historiareal  #inspiraçao  #mulheresfortes  #mulheresreais  #tv  #jornal  #amorproprio  #amor  #respeito  #gratidão 
My local WOCN finally came back from vacation and squeezed me in for an appointment today! 🙌 As many of you know, I have struggling with what I like to call a “burning ring a fire” around my stoma. After trying so many different products, I was on the verge of losing hope. But, I discovered something kind of new today! My stoma isn’t round like I thought it was! I’ve had Squirt for years now, but have always changed my bag standing up in front of the bathroom mirror. Well today,  my ostomy nurse had my sit down and proved to me that it’s actually an oval! What!?! The picture on the left is the template I have used at just under 1 inch (give or take a little) for the past year (AT LEAST)! The picture on the right is the template from today measuring about 7/8 in on direction and 1 1/4 in the other. I’m mind blown 🤯 It’s crazy how much positioning or a different perspective can make a difference! 
After being let down so many times, I wasn’t expecting a whole lot, but I’m hopeful that this actually might work! 🤞 Unfortunately it seems like the mucus fistula is going to continue to wreak havoc on my skin and be a continuous battle, but there’s a chance that the rest of it could improve with time. It’s at skin level and can’t be covered, making it difficult to keep a good seal. Crazy to think that all of that drainage is coming from 3 inches of small intestine! 😳 
For now I just have to figure out ways to make it work until I have surgery to revise my stoma. I would love to extend my wear time again too! Changing everyday is just frustrating and defeating to be quite honest. Has anyone tried Medline Marathon skin glue? If so, how did you get it? It has been recommended for underneath my stoma, but it’s crazy expensive! 💸  #Ileostomy #Ostomy #Ostomate #Coloplast #Medline #Marathon #MindBlown #NeverGiveUp #LearnSomethingNewEveryday #Assura #Sensura #WOCN #Stoma #OstomyNurse #PatientToNurse #Nurse
My local WOCN finally came back from vacation and squeezed me in for an appointment today! 🙌 As many of you know, I have struggling with what I like to call a “burning ring a fire” around my stoma. After trying so many different products, I was on the verge of losing hope. But, I discovered something kind of new today! My stoma isn’t round like I thought it was! I’ve had Squirt for years now, but have always changed my bag standing up in front of the bathroom mirror. Well today, my ostomy nurse had my sit down and proved to me that it’s actually an oval! What!?! The picture on the left is the template I have used at just under 1 inch (give or take a little) for the past year (AT LEAST)! The picture on the right is the template from today measuring about 7/8 in on direction and 1 1/4 in the other. I’m mind blown 🤯 It’s crazy how much positioning or a different perspective can make a difference! After being let down so many times, I wasn’t expecting a whole lot, but I’m hopeful that this actually might work! 🤞 Unfortunately it seems like the mucus fistula is going to continue to wreak havoc on my skin and be a continuous battle, but there’s a chance that the rest of it could improve with time. It’s at skin level and can’t be covered, making it difficult to keep a good seal. Crazy to think that all of that drainage is coming from 3 inches of small intestine! 😳 For now I just have to figure out ways to make it work until I have surgery to revise my stoma. I would love to extend my wear time again too! Changing everyday is just frustrating and defeating to be quite honest. Has anyone tried Medline Marathon skin glue? If so, how did you get it? It has been recommended for underneath my stoma, but it’s crazy expensive! 💸 #Ileostomy  #Ostomy  #Ostomate  #Coloplast  #Medline  #Marathon  #MindBlown  #NeverGiveUp  #LearnSomethingNewEveryday  #Assura  #Sensura  #WOCN  #Stoma  #OstomyNurse  #PatientToNurse  #Nurse 
It’s the last day to vote for the @wegohealth Awards! Follow the link in my bio to endorse me! 😊GOOD LUCK to all the nominees. Keep using your voice, shining your light, and making the world a bit better for individuals living with chronic illnesses. What you do matters! 😊💜 #Ostomy #Ileostomy #Colostomy #OstomyBag #Ostomate #OstomyCare #CrohnsDisease #IBD #UlcerativeColitis #PatientAdvocate #UOAA #CCFA #NoColonStillRollin #ChronicIllness #Crohns #Stoma #invisibleillness #StomaBag #WEGOHealth #WEGOHealthAwards
It’s the last day to vote for the @wegohealth Awards! Follow the link in my bio to endorse me! 😊GOOD LUCK to all the nominees. Keep using your voice, shining your light, and making the world a bit better for individuals living with chronic illnesses. What you do matters! 😊💜 #Ostomy  #Ileostomy  #Colostomy  #OstomyBag  #Ostomate  #OstomyCare  #CrohnsDisease  #IBD  #UlcerativeColitis  #PatientAdvocate  #UOAA  #CCFA  #NoColonStillRollin  #ChronicIllness  #Crohns  #Stoma  #invisibleillness  #StomaBag  #WEGOHealth  #WEGOHealthAwards 
But you sent it, even though it was hard, and I’m proud of you! 😘
But you sent it, even though it was hard, and I’m proud of you! 😘
Accurately me. All of it. 😔😒😕
______________________________
#Repost @themightysite with @get_repost
・・・
You can't always tell when someone is struggling with chronic illness. That is why we wanted to share this chart and message from @spoonie_village, reminding you that even if you can't "see" your illness, your experience is valid.
•••
@spoonie_village says: “Some days I feel like I’m living the theory, other days it’s more like the reality, but sadly one thing that crops up whenever I meet someone I haven’t seen for a while is the truth of chronic illness. I get seen for all of maybe 10 mins (if not less), I’m dressed, I have make up on, I look for all intents and purposes like me... but, I’m not me because I’ve spent the previous month in bed and at home… who hasn’t had a shower or washed my hair in a while and wears super baggy clothes or pjs because I have little energy for anything else if I spent it making myself look half decent.
•••
So nope, I’m not 'doing great' or 'looking much better.' I’m still struggling, I just decided I needed a break from all that day in day out wading through quicksand and trying not to drown stuff and willingly acknowledge I will pay for the consequences for my actions of 'looking great' later on."
•••
#chronicfatigue #chronicillness #spoonie #spoonielife #mentalhealth #chronicillnesswarrior #fibromyalgia #crohns #mentalillness #fibro #lupus #ileostomy #disability #ehlersdanlossyndrome #potssyndrome #endometriosis #endowarrior #lymedisease #autoimmunedisease #crohnsdisease #ulcerativecolitis #mentalhealthwarrior #fibrofighter #themightysite
Accurately me. All of it. 😔😒😕 ______________________________ #Repost  @themightysite with @get_repost ・・・ You can't always tell when someone is struggling with chronic illness. That is why we wanted to share this chart and message from @spoonie_village, reminding you that even if you can't "see" your illness, your experience is valid. ••• @spoonie_village says: “Some days I feel like I’m living the theory, other days it’s more like the reality, but sadly one thing that crops up whenever I meet someone I haven’t seen for a while is the truth of chronic illness. I get seen for all of maybe 10 mins (if not less), I’m dressed, I have make up on, I look for all intents and purposes like me... but, I’m not me because I’ve spent the previous month in bed and at home… who hasn’t had a shower or washed my hair in a while and wears super baggy clothes or pjs because I have little energy for anything else if I spent it making myself look half decent. ••• So nope, I’m not 'doing great' or 'looking much better.' I’m still struggling, I just decided I needed a break from all that day in day out wading through quicksand and trying not to drown stuff and willingly acknowledge I will pay for the consequences for my actions of 'looking great' later on." ••• #chronicfatigue  #chronicillness  #spoonie  #spoonielife  #mentalhealth  #chronicillnesswarrior  #fibromyalgia  #crohns  #mentalillness  #fibro  #lupus  #ileostomy  #disability  #ehlersdanlossyndrome  #potssyndrome  #endometriosis  #endowarrior  #lymedisease  #autoimmunedisease  #crohnsdisease  #ulcerativecolitis  #mentalhealthwarrior  #fibrofighter  #themightysite 
Today marks one month since I was able to go to Youth Rally in Boulder Colorado with some of the most incredible people I will EVER meet in my entire life. 
Living with a medical condition is never easy; just ask any of us here. But one thing you do find in this amazing group of people is joy—unconditional joy. We have learned the secret to be content and thankful for even the littlest things. Having our types of conditions sometimes can be extremely frustrating especially since they are socially “TMI” or “taboo” topics. But Youth Rally taught me that I am so much more than Spina Bifida and that it will never define me.

Had it not been for Youth Rally, I wouldn’t have made incredible friends who encourage me to be myself no matter what. I wouldn’t have a support system from the staff and nurses there. I have as one of the nurses touch bases with me on this journey without being asked to and that to me is a blessing beyond words. I’m so thankful for friends who just GET IT. They get the doctors visits, the embarrassing social aspect of our conditions, and so much more. Thank you all for being my rocks. I love and miss every single one of you so dearly. 😭😭😭😭 there’s too many of you to tag all here but know that each and every one of you have a special place in my heart. Until next year 💗💗💗💗💗 #campforthat #youarenotalone #youthrally2018 #bouldercolorado #spinabifida #myelomeningocele #acemalone #neurogenicbladder #neurogenicbowel #imperforateanus #bladderextrophy #ileostomy #colostomy #urostomy #catheterization #cecostomytube #friendsforever #family
Today marks one month since I was able to go to Youth Rally in Boulder Colorado with some of the most incredible people I will EVER meet in my entire life. Living with a medical condition is never easy; just ask any of us here. But one thing you do find in this amazing group of people is joy—unconditional joy. We have learned the secret to be content and thankful for even the littlest things. Having our types of conditions sometimes can be extremely frustrating especially since they are socially “TMI” or “taboo” topics. But Youth Rally taught me that I am so much more than Spina Bifida and that it will never define me. Had it not been for Youth Rally, I wouldn’t have made incredible friends who encourage me to be myself no matter what. I wouldn’t have a support system from the staff and nurses there. I have as one of the nurses touch bases with me on this journey without being asked to and that to me is a blessing beyond words. I’m so thankful for friends who just GET IT. They get the doctors visits, the embarrassing social aspect of our conditions, and so much more. Thank you all for being my rocks. I love and miss every single one of you so dearly. 😭😭😭😭 there’s too many of you to tag all here but know that each and every one of you have a special place in my heart. Until next year 💗💗💗💗💗 #campforthat  #youarenotalone  #youthrally2018  #bouldercolorado  #spinabifida  #myelomeningocele  #acemalone  #neurogenicbladder  #neurogenicbowel  #imperforateanus  #bladderextrophy  #ileostomy  #colostomy  #urostomy  #catheterization  #cecostomytube  #friendsforever  #family 
O #tdb de hoje vai ser sobre esse dia que foi tão especial pra mim em muitos sentidos, principalmente pelo fato de ter tido a oportunidade de trabalhar e conhecer mulheres maravilhosas, uma delas a @jocursino, que é uma pessoa linda por dentro e por fora, inspiração, e que acreditou no potencial do @projetocicatrizes ❤️ Junto com ela eu pude contar um pouquinho do que é esse projeto, um lugar de encontro, de troca, e respeito a cada história, a cada mulher que carrega no corpo suas cicatrizes - Em breve o resultado desse dia, aguardem! Só tenho a te agradecer mana, a @raellycastroo e @rodriguess_lorenaa por também estarem nessa empreitada. A todas as mulheres reais com seus corpos reais que contaram suas histórias por meio do @projetocicatrizes vcs são únicas, lindas e especiais. Convido, então, a todx deste Instagram a conhecer o @projetocicatrizes e fazer parte dessa corrente de amor❤️
.
Fotografia @imagolucis
.
.
#projetocicatrizes #scar #cicatrizes #cicatrizesnocorpo #mulher #colostomia #ostomizados  #foradopadrao #ostomizada #ileostomia #estoma #ostomia #apendicite #colostomy #ostomy #ostomybag #ileostomy #historiasdevida #historiasdaalma #historiareal #inspiraçao #mulheresfortes #mulheresreais #experienciadevida #voltaporcima #amorproprio #amor #respeito #gratidão
O #tdb  de hoje vai ser sobre esse dia que foi tão especial pra mim em muitos sentidos, principalmente pelo fato de ter tido a oportunidade de trabalhar e conhecer mulheres maravilhosas, uma delas a @jocursino, que é uma pessoa linda por dentro e por fora, inspiração, e que acreditou no potencial do @projetocicatrizes ❤️ Junto com ela eu pude contar um pouquinho do que é esse projeto, um lugar de encontro, de troca, e respeito a cada história, a cada mulher que carrega no corpo suas cicatrizes - Em breve o resultado desse dia, aguardem! Só tenho a te agradecer mana, a @raellycastroo e @rodriguess_lorenaa por também estarem nessa empreitada. A todas as mulheres reais com seus corpos reais que contaram suas histórias por meio do @projetocicatrizes vcs são únicas, lindas e especiais. Convido, então, a todx deste Instagram a conhecer o @projetocicatrizes e fazer parte dessa corrente de amor❤️ . Fotografia @imagolucis . . #projetocicatrizes  #scar  #cicatrizes  #cicatrizesnocorpo  #mulher  #colostomia  #ostomizados  #foradopadrao  #ostomizada  #ileostomia  #estoma  #ostomia  #apendicite  #colostomy  #ostomy  #ostomybag  #ileostomy  #historiasdevida  #historiasdaalma  #historiareal  #inspiraçao  #mulheresfortes  #mulheresreais  #experienciadevida  #voltaporcima  #amorproprio  #amor  #respeito  #gratidão 
Outfit that wore for dinner out last night. Got this top from #peacocks sale a couple weeks ago. Bought for just £4 down from £12. #crohnsawareness #chronicdisease #chronicillness #inflamatoryboweldisease #ileostomy #ileostomylife #ileostomyfashion #ostomyawareness #ostomyfashion  #whatostomateswear #whatiwear #ootd #fashion
So if you’ve watch my insta story you know I just ate half a Pumpkin Pie with ice cream. 
Is that “healthy”? I would say so!
In the last couple of months I haven’t tracked my food. I’ve just made sure I got my protein in and ate when I was hungry. Intuitive eating you could say and it seems to work, my weight gain has been nice an slow. But most importantly I feel as if my energy levels are better.
So if you’ve watch my insta story you know I just ate half a Pumpkin Pie with ice cream. Is that “healthy”? I would say so! In the last couple of months I haven’t tracked my food. I’ve just made sure I got my protein in and ate when I was hungry. Intuitive eating you could say and it seems to work, my weight gain has been nice an slow. But most importantly I feel as if my energy levels are better.
День девятый.

Заезжал сегодня в АСТОМ (общественная организация стомированных пациентов).
Москвичам конечно в этом плане легче, всегда можно позвонить им, записаться на приём, просто приехать пообщаться с врачом, проконсультироваться по интересующим вопросам!
Так же есть аптека сразу, в которой можно приобрести сразу все что нужно! Честно не знаю,что по ценам в других аптеках, но думаю в целом разница не большая. 
Вообще мне хотелось бы спросить у Вас, есть ли в вашем городе подобные организации или центры куда можно обратиться за консультацией или разъяснением?
Есть ли горячие линии? 
И чувствуете ли Вы какую-то поддержку от государства в вашем городе ?

#стома #колит #язвеныйколит #крон #илеостома #стомированые #няк #взк 
#жизньсостомой #ileostomy #ostomy #астом #астоммед #стомированныепациенты
День девятый. Заезжал сегодня в АСТОМ (общественная организация стомированных пациентов). Москвичам конечно в этом плане легче, всегда можно позвонить им, записаться на приём, просто приехать пообщаться с врачом, проконсультироваться по интересующим вопросам! Так же есть аптека сразу, в которой можно приобрести сразу все что нужно! Честно не знаю,что по ценам в других аптеках, но думаю в целом разница не большая. Вообще мне хотелось бы спросить у Вас, есть ли в вашем городе подобные организации или центры куда можно обратиться за консультацией или разъяснением? Есть ли горячие линии? И чувствуете ли Вы какую-то поддержку от государства в вашем городе ? #стома  #колит  #язвеныйколит  #крон  #илеостома  #стомированые  #няк  #взк  #жизньсостомой  #ileostomy  #ostomy  #астом  #астоммед  #стомированныепациенты 
Went out for dinner last night with my husband 😍 I've always fancied trying a clazone and last night I ordered one. It was the best ! Like a pizza pie. Bit disappointed that #frankieandbennys had got rid of my favourite dessert though ☹  #crohnsawareness #crohnsdisease #inflamatoryboweldisease #ileostomydiet #ileostomy #whatieat #whatostomateseat #ostomydiet #foodlover #homecooking #rusticcooking
Was my late night at work tonight and it was so busy. So arrived home tired and fed up, quick and easy dinner it was. #crohnsawareness #crohnsdisease #inflamatoryboweldisease #ileostomydiet #ileostomy #whatieat #whatostomateseat #ostomydiet #foodlover #homecooking #rusticcooking
(Photo is from @nicolelapierrephotography, two weeks ago, pre-surgery, haha) 
For as long as I can remember, people have been telling me that I’m “strong.” During my diagnosis at age 10, my Dad’s cancer diagnosis when I was 12, when he died when I was 18, and everything since then, but especially during this week leading up to and after my total Colectomy.
.
I always felt awkward. I never felt like I could accept this descriptor as a compliment because I was never trying to be strong. I felt like a bit of a fraud because more often than not I’ve felt very, very, very weak.
.
Yesterday my nieces (aged 3 and 6) came to visit me in the hospital. I love these girls in an indescribable way. I worried that they’d be scared of me, seeing me hooked up to a bunch of tubes and IVs lying in a hospital bed. Thankfully, they weren’t scared. They were just as happy to see me as I was to see them.
.
They’re still so little. They see the world in such a matter of fact way. So, when Maddy, my older niece momentarily stopped asking what each button did and what that “big thing” was (it was my portable TV from like, 1986) and looked straight at me and very seriously said “Wow, Kate. You’re so strong. You’ve been through so much and you’re still so strong,” I finally believed it. She always tells me exactly what’s on her mind and if she believes that I’m strong, I am going to believe it too.
.
I want to show her, and the rest of you, that being strong doesn’t come from trying to be that way. It doesn’t mean that you handle everything perfectly (I promise you, I haven’t). Strength is asking for help when you need it. Sometimes it’s literally just opening your eyes that day. On a really great day, maybe it’s going skydiving!
.
Strength is relative. For me, it means never giving up and no longer doubting myself. These are the cards I’ve been dealt. I don’t have a choice but to keep going. That is my strength.
.
.
.
#colectomy #ibd #ulcerativecolitis #crohnsdisease #crohns #ibdwarrior #ibdawareness #ostomy #ostomate #ileostomy #stoma #recovery #surgery #ibdblogger #strengthquotes #strength #strong #strongwomen #halifaxphotographer #halifaxblogger #halifax #oceanstone #novascotia
(Photo is from @nicolelapierrephotography, two weeks ago, pre-surgery, haha) For as long as I can remember, people have been telling me that I’m “strong.” During my diagnosis at age 10, my Dad’s cancer diagnosis when I was 12, when he died when I was 18, and everything since then, but especially during this week leading up to and after my total Colectomy. . I always felt awkward. I never felt like I could accept this descriptor as a compliment because I was never trying to be strong. I felt like a bit of a fraud because more often than not I’ve felt very, very, very weak. . Yesterday my nieces (aged 3 and 6) came to visit me in the hospital. I love these girls in an indescribable way. I worried that they’d be scared of me, seeing me hooked up to a bunch of tubes and IVs lying in a hospital bed. Thankfully, they weren’t scared. They were just as happy to see me as I was to see them. . They’re still so little. They see the world in such a matter of fact way. So, when Maddy, my older niece momentarily stopped asking what each button did and what that “big thing” was (it was my portable TV from like, 1986) and looked straight at me and very seriously said “Wow, Kate. You’re so strong. You’ve been through so much and you’re still so strong,” I finally believed it. She always tells me exactly what’s on her mind and if she believes that I’m strong, I am going to believe it too. . I want to show her, and the rest of you, that being strong doesn’t come from trying to be that way. It doesn’t mean that you handle everything perfectly (I promise you, I haven’t). Strength is asking for help when you need it. Sometimes it’s literally just opening your eyes that day. On a really great day, maybe it’s going skydiving! . Strength is relative. For me, it means never giving up and no longer doubting myself. These are the cards I’ve been dealt. I don’t have a choice but to keep going. That is my strength. . . . #colectomy  #ibd  #ulcerativecolitis  #crohnsdisease  #crohns  #ibdwarrior  #ibdawareness  #ostomy  #ostomate  #ileostomy  #stoma  #recovery  #surgery  #ibdblogger  #strengthquotes  #strength  #strong  #strongwomen  #halifaxphotographer  #halifaxblogger  #halifax  #oceanstone  #novascotia 
#ThankfulThursday goes to these amazing people! After my surgery I knew I needed to be surrounded by positivity and they gave me just that. Whether it was a phone call, text, loving threat, words of encouragement or saying it’ll be ok I’m grateful. I was out of work for 8 months and never once did I need for anything because these people made sure I was straight! I can’t thank them enough for all they did and for some continue to do! From Sir and I we thank you, we love you and we appreciate you! ❤️😊
@iim_justlex @myfitnesslifejourney5 @runwayaddicts @queenofbexico @ellz1911 @flyasiwannab_2 @iimjus_tash @_movin_n_shakin and No IG Joe
#ostomy #ostomygirl #ostomyliving #ostomyblogger #ostomyawareness #ileostomy #ileostomyblog #ileostomyawareness #thankful #friends #shithappens #sirpoopalot
#ThankfulThursday  goes to these amazing people! After my surgery I knew I needed to be surrounded by positivity and they gave me just that. Whether it was a phone call, text, loving threat, words of encouragement or saying it’ll be ok I’m grateful. I was out of work for 8 months and never once did I need for anything because these people made sure I was straight! I can’t thank them enough for all they did and for some continue to do! From Sir and I we thank you, we love you and we appreciate you! ❤️😊 @iim_justlex @myfitnesslifejourney5 @runwayaddicts @queenofbexico @ellz1911 @flyasiwannab_2 @iimjus_tash @_movin_n_shakin and No IG Joe #ostomy  #ostomygirl  #ostomyliving  #ostomyblogger  #ostomyawareness  #ileostomy  #ileostomyblog  #ileostomyawareness  #thankful  #friends  #shithappens  #sirpoopalot 
make your mess your message.
.
.
.
.
.
.
.
#yogaeverydamnday #durham #treepose #grounded #ostomy #ileostomy #ostomyawareness #thursdaythoughts #tbt @christophertennyson 📸
I had a follow up GI appt in the big city today. So Annabelle and I stopped at the hospital to visit my favorite nurse I had. During my (almost) 2 month stay on the prenatal floor. And best of all, she got to meet my daughter! .
Thankful for this nurse who most definitely picked the right career for herself! We had many talks that helped me get through the long days of sitting in the hospital. 💗
I had a follow up GI appt in the big city today. So Annabelle and I stopped at the hospital to visit my favorite nurse I had. During my (almost) 2 month stay on the prenatal floor. And best of all, she got to meet my daughter! . Thankful for this nurse who most definitely picked the right career for herself! We had many talks that helped me get through the long days of sitting in the hospital. 💗
#Repost @_ellylh with @get_repost
・・・
Not ready to let you go.
•
If you told me two years ago, that I would still have an ostomy I would have considered the whole thing a joke! I nervously met with my colectoral surgeon some weeks ago as the ‘when’ for reversal was beginning to comsume my mentality and I was constantly trying to plan my life around my unanswered fears and over justify signs from the universe.
•
For 13 years before removing a very diseased major organ, I lived every single day with little to no control over my body.  I had spent more than half of my life in pain, fighting my own body to function, despite it failing me time after time.
•
I walked out of the consulting room and realised where I am right now. There is SO much freedom that has come with having an ostomy. I still have good days and bad days with an ostomy, but I have quality of life. I’ve gained the ability to live every single day to my fullest, at my healthiest and with very little holding me back. I am medication free, I have greater nutrition absorbency, less stress and more energy. And I just love that I can wake up every day pain free and not needing to second guess whether I will get out of bed. These things are just little reminders that I am right where I need to be and that my each and every day is waiting for me!
•
So why shouldn’t I just enjoy the control I now have and give my body the break it deserves from constant trauma. Do I think reversal is worth it? Absolutely! Although I don’t think it’s about worth. It’s the ability I have right now to focus on being the healthiest version of me, mentally, emotionally and physically in the lead up to further surgery - and for that, I am so grateful I can do that this time around.
•
Thanks to my ostomy, I was given the chance to live and I am grateful to be alive.
•
Bum bag, you can stay for now. 😁❤️
X
•
•
#nocolonstillrollin #IBD #indeterminatecolitis #ulcerativecolitis #crohnsdisease #invisibledisease #chronicillness #invisibleillness #autoimmunedisease #ibdjourney #ostomyawareness #ulcerativecolitisawareness  #IBDawareness #livingwithanostomy #ileostomy #ileostomyjourney #totalcolectomy #spoonie #getyourbellyout #girlswithgut
#Repost  @_ellylh with @get_repost ・・・ Not ready to let you go. • If you told me two years ago, that I would still have an ostomy I would have considered the whole thing a joke! I nervously met with my colectoral surgeon some weeks ago as the ‘when’ for reversal was beginning to comsume my mentality and I was constantly trying to plan my life around my unanswered fears and over justify signs from the universe. • For 13 years before removing a very diseased major organ, I lived every single day with little to no control over my body. I had spent more than half of my life in pain, fighting my own body to function, despite it failing me time after time. • I walked out of the consulting room and realised where I am right now. There is SO much freedom that has come with having an ostomy. I still have good days and bad days with an ostomy, but I have quality of life. I’ve gained the ability to live every single day to my fullest, at my healthiest and with very little holding me back. I am medication free, I have greater nutrition absorbency, less stress and more energy. And I just love that I can wake up every day pain free and not needing to second guess whether I will get out of bed. These things are just little reminders that I am right where I need to be and that my each and every day is waiting for me! • So why shouldn’t I just enjoy the control I now have and give my body the break it deserves from constant trauma. Do I think reversal is worth it? Absolutely! Although I don’t think it’s about worth. It’s the ability I have right now to focus on being the healthiest version of me, mentally, emotionally and physically in the lead up to further surgery - and for that, I am so grateful I can do that this time around. • Thanks to my ostomy, I was given the chance to live and I am grateful to be alive. • Bum bag, you can stay for now. 😁❤️ X • • #nocolonstillrollin  #IBD  #indeterminatecolitis  #ulcerativecolitis  #crohnsdisease  #invisibledisease  #chronicillness  #invisibleillness  #autoimmunedisease  #ibdjourney  #ostomyawareness  #ulcerativecolitisawareness  #IBDawareness  #livingwithanostomy  #ileostomy  #ileostomyjourney  #totalcolectomy  #spoonie  #getyourbellyout  #girlswithgut 
@jimthestoma is an 11 year old ostomy warrior and is part of our @patientcoaches team! Look at these mad art skills! .
.
.
#ostomy #ostomate #ostomyawareness #ileostomy #nocolonstillrollin #ittakesguts #girlswithguts #invisibleillness #chronicillness
People sometimes have this notion that if you “prayed harder” you wouldn’t be going through a difficult time. This couldn’t be further from the truth, though. In the chapter titled Yusuf (Joseph) in the Quran, we learn the detailed story of Prophet Yusuf and his family. In it we see that Prophet Jacob, Joseph’s father, lost his eyesight out of grief over what happened to his son. If a Prophet of God suffered that much emotionally, then how can anyone say to pray harder? Prayer is the foundation keeping the house up, but rain will still pound against the walls. We can use prayer as a light to see through the storm but it won’t be the means to keep every storm away. 
God is the All-Knowing, the All-Aware, and He knows the innermost thoughts of the heart. If you see someone struggling, don’t tell them that they aren’t doing enough. Instead of judging, ask God to help them and to help you understand their pain 🌹.
People sometimes have this notion that if you “prayed harder” you wouldn’t be going through a difficult time. This couldn’t be further from the truth, though. In the chapter titled Yusuf (Joseph) in the Quran, we learn the detailed story of Prophet Yusuf and his family. In it we see that Prophet Jacob, Joseph’s father, lost his eyesight out of grief over what happened to his son. If a Prophet of God suffered that much emotionally, then how can anyone say to pray harder? Prayer is the foundation keeping the house up, but rain will still pound against the walls. We can use prayer as a light to see through the storm but it won’t be the means to keep every storm away. God is the All-Knowing, the All-Aware, and He knows the innermost thoughts of the heart. If you see someone struggling, don’t tell them that they aren’t doing enough. Instead of judging, ask God to help them and to help you understand their pain 🌹.
Ça y est, j'ai enfin trouvé un moyen d'avoir un nouveau colon! 😊 💜 #iheartguts
. •
•
• 〰️💜〰️ •
#jpouch #surgery #ileostomy #ileostomie #ibd #rch #MICI #ulcerativecolitis #rectocolitehémorragique #invisibleillness #spoonie #ostomate #ulcerativecolitisawarness
• 〰️💜〰️ •
I was able to leave my moms yesterday and come home! It’s hard for me to sit and to stand, so the key is to balance both. Grocery shopping at this point would put me over the edge, but I had no food after being gone for 4 weeks! Thankfully Harris Teeter has online shopping, hence the full fridge!!! Recovering, but lots of issues to still deal with. Not out of the water yet but I’ve come so far. This time last week, I was still in so much pain and thinking I was headed back to the hospital.. Hopefully it is only up from here!! Thank you to @frankiestein44 and @joynerc5 as always. #crohns #crohnsie #crohnswarrior #crohnsdisease #ibs #ibd #ulcerativecolitis #proctocolectomy #ileostomy #ostomy #nocolonstillrollin #stelara #entyvio #cimzia #humira #remicade
I was able to leave my moms yesterday and come home! It’s hard for me to sit and to stand, so the key is to balance both. Grocery shopping at this point would put me over the edge, but I had no food after being gone for 4 weeks! Thankfully Harris Teeter has online shopping, hence the full fridge!!! Recovering, but lots of issues to still deal with. Not out of the water yet but I’ve come so far. This time last week, I was still in so much pain and thinking I was headed back to the hospital.. Hopefully it is only up from here!! Thank you to @frankiestein44 and @joynerc5 as always. #crohns  #crohnsie  #crohnswarrior  #crohnsdisease  #ibs  #ibd  #ulcerativecolitis  #proctocolectomy  #ileostomy  #ostomy  #nocolonstillrollin  #stelara  #entyvio  #cimzia  #humira  #remicade 
Can I tell you how long I hated on this body?

I spent my twenties being scared of what people would think.

I worried that if they only knew what was under my clothes that they wouldn’t want to be my friend.

Or that my husband would get tired of someone so damaged.

I took the leap today and shared « The history of my stomach » on my #instastory because today is one of those days when I want people to be aware.

Crohn’s disease sucks!

Even with a clean bill of health I’m struggling.

Between the heatwave this summer has brought and my little girls not sleeping much this week I had to press pause on life today.

A night of sleep, a morning of fluids and movies, and an afternoon sweat session and I’m feeling a little bit more like me.

I just want you all to know, if I can do this, you can do this!  It’s scary, believe me, I know!  But there is much scarier things out there then getting healthy ❤️
Can I tell you how long I hated on this body? I spent my twenties being scared of what people would think. I worried that if they only knew what was under my clothes that they wouldn’t want to be my friend. Or that my husband would get tired of someone so damaged. I took the leap today and shared « The history of my stomach » on my #instastory  because today is one of those days when I want people to be aware. Crohn’s disease sucks! Even with a clean bill of health I’m struggling. Between the heatwave this summer has brought and my little girls not sleeping much this week I had to press pause on life today. A night of sleep, a morning of fluids and movies, and an afternoon sweat session and I’m feeling a little bit more like me. I just want you all to know, if I can do this, you can do this! It’s scary, believe me, I know! But there is much scarier things out there then getting healthy ❤️
It’s not about perfection. It’s about effort. And when you bring that effort every single day, that’s where transformation happens. #backworkout #fitness #personaltrainer #crohnswarrior #ileostomy #determination #instafit #fitnesslifestyle #fitnessaddict #fitnessmotivation #motivation #insparation #instafitness #fit #fitspo #fitfam #fitnessjourney #physique #muscle #focus #healthy #healthylifestyle #fitgirl #healthychoices #noexcuses #hardwork
It’s not about perfection. It’s about effort. And when you bring that effort every single day, that’s where transformation happens. #backworkout  #fitness  #personaltrainer  #crohnswarrior  #ileostomy  #determination  #instafit  #fitnesslifestyle  #fitnessaddict  #fitnessmotivation  #motivation  #insparation  #instafitness  #fit  #fitspo  #fitfam  #fitnessjourney  #physique  #muscle  #focus  #healthy  #healthylifestyle  #fitgirl  #healthychoices  #noexcuses  #hardwork 
RIP Aretha Franklin! Here’s to the Queen of Soul and someone who dedicated her life to her music and helping others! 
Today I listened to some music while dropping off over 900 brand new Coloplast ostomy bags (multiple types), wafers, and irrigation sleeves that I can no longer use (my colostomy supplies differed from my ileostomy needs) to @globallinks . This non-profit accepts unopened medical supplies and sends them to people who either can’t afford their medical supplies or don’t have access or transportation available to get them to their supplies. As an Ostomate I go through times of anxiety, anger, frustration, medical side effects, and non-acceptance. Some days are better than others. And I’m VERY VERY lucky to have insurance, help, access to specialists and healthcare professionals, and my supplies at my fingertips. I couldn’t imagine dealing with how I was going to be able to afford a necessary and required appliance, such as my wafer and bag, on top of everything else. Today I feel strong, content, and like I made a real difference. #riparethafranklin #queenofsoul #arethafranklin #globallinks #nonprofit #nonprofitorganization #ostomate #colostomy #ileostomy #coloplast #ostomybag #wafer #stoma #samsonthestoma #donate #donating #medicalsupplies #donated #giveback #imsolucky #reachout #donatedontdump #countmyblessings #peopleinneed #ifeelgood
RIP Aretha Franklin! Here’s to the Queen of Soul and someone who dedicated her life to her music and helping others! Today I listened to some music while dropping off over 900 brand new Coloplast ostomy bags (multiple types), wafers, and irrigation sleeves that I can no longer use (my colostomy supplies differed from my ileostomy needs) to @globallinks . This non-profit accepts unopened medical supplies and sends them to people who either can’t afford their medical supplies or don’t have access or transportation available to get them to their supplies. As an Ostomate I go through times of anxiety, anger, frustration, medical side effects, and non-acceptance. Some days are better than others. And I’m VERY VERY lucky to have insurance, help, access to specialists and healthcare professionals, and my supplies at my fingertips. I couldn’t imagine dealing with how I was going to be able to afford a necessary and required appliance, such as my wafer and bag, on top of everything else. Today I feel strong, content, and like I made a real difference. #riparethafranklin  #queenofsoul  #arethafranklin  #globallinks  #nonprofit  #nonprofitorganization  #ostomate  #colostomy  #ileostomy  #coloplast  #ostomybag  #wafer  #stoma  #samsonthestoma  #donate  #donating  #medicalsupplies  #donated  #giveback  #imsolucky  #reachout  #donatedontdump  #countmyblessings  #peopleinneed  #ifeelgood 
When I am fearful, I hold on tight. •
•
•
I hold on tight to the fear itself. In the past, I have held on tight to unhealthy relationships for fear of being alone. I procrastinate because I'm fearful that what if I am not good enough or God forbid, I fail. I hold on to beliefs and mind sets because I like things done my way. I tend to hold on tight to "what if's" because driving myself crazy with anxiety is always a good time. •
•
•
The more I start loosening my grip, the better I feel. The better my day goes. The better life looks to me. •
•
•
I was crying to my Mom the other day about feeling overwhelmed and that is a big sign for me that I am fearful. She gently reminded me to "Let go and Let God", which is exactly what I needed to hear. I was trying to control and "fix" situations that I have *no* control over. My God is not an organized religion, I go to church every Sunday, I will pass down judgement on you kind of God. My relationship with God is personal and I believe him to be loving, kind, forgiving, open minded, non-judgmental, and most of all, bigger than all of my fears. •
•
•
I also hold on tight to those who I love very much, so in this pic, I was holding on tight for two different reasons. ❤

#papaandanna #throwbackthursday #mypony #crohnsawareness #ibdawareness #shortbowelsyndromeawareness #ostomyawareness #chronicillnessawareness #mentalhealthawareness #fightlikeawarrior #withloveandgracie
When I am fearful, I hold on tight. • • • I hold on tight to the fear itself. In the past, I have held on tight to unhealthy relationships for fear of being alone. I procrastinate because I'm fearful that what if I am not good enough or God forbid, I fail. I hold on to beliefs and mind sets because I like things done my way. I tend to hold on tight to "what if's" because driving myself crazy with anxiety is always a good time. • • • The more I start loosening my grip, the better I feel. The better my day goes. The better life looks to me. • • • I was crying to my Mom the other day about feeling overwhelmed and that is a big sign for me that I am fearful. She gently reminded me to "Let go and Let God", which is exactly what I needed to hear. I was trying to control and "fix" situations that I have *no* control over. My God is not an organized religion, I go to church every Sunday, I will pass down judgement on you kind of God. My relationship with God is personal and I believe him to be loving, kind, forgiving, open minded, non-judgmental, and most of all, bigger than all of my fears. • • • I also hold on tight to those who I love very much, so in this pic, I was holding on tight for two different reasons. ❤ #papaandanna  #throwbackthursday  #mypony  #crohnsawareness  #ibdawareness  #shortbowelsyndromeawareness  #ostomyawareness  #chronicillnessawareness  #mentalhealthawareness  #fightlikeawarrior  #withloveandgracie 
So excited to start our #patientcpachesmeeting!! It’s been amazing just meeting and being in a room with so many ostomates!! @patientcoaches  #ibd #crohns #crohnsdisease #ostomy #ileostomy #invisibleillness #chronicillness #patientcoach #11health
Quelques motifs déjà fait ! 💙 
#crohn #colostomy #ileostomy #colostomie #ileostomie #cachepoche #lespetitstomise
Being diagnosed with IBD taught me how to cook/prepare food for myself, but since surgery to remove my colon and the freedom to eat so much more freely again, my favorite hobby has become making huge meals and destroying them with my face lol! It's also a great way to scrap together small amounts of leftovers. bottom to top: 1\2 Trader Joe's foccacia bread, roast beef, mozzarella cheese, a mass of 2 fried eggs with onions, and an English muffin so I could grip it like a sandwich or burger. I can't wait to begin eating my way through sone new states next week! I planned some of this trip before surgery, but it decided it would be so much more rewarding and fun if I waited until I was healthier and it's finally about to happen!! #food #breakfast #sandwich #mealprep #foodporn #cheese #ilovefood #cheatday #cheatmeal #getinmybelly #postworkout #ibd #ileostomy #ostomate #nocolonstillrollin
Being diagnosed with IBD taught me how to cook/prepare food for myself, but since surgery to remove my colon and the freedom to eat so much more freely again, my favorite hobby has become making huge meals and destroying them with my face lol! It's also a great way to scrap together small amounts of leftovers. bottom to top: 1\2 Trader Joe's foccacia bread, roast beef, mozzarella cheese, a mass of 2 fried eggs with onions, and an English muffin so I could grip it like a sandwich or burger. I can't wait to begin eating my way through sone new states next week! I planned some of this trip before surgery, but it decided it would be so much more rewarding and fun if I waited until I was healthier and it's finally about to happen!! #food  #breakfast  #sandwich  #mealprep  #foodporn  #cheese  #ilovefood  #cheatday  #cheatmeal  #getinmybelly  #postworkout  #ibd  #ileostomy  #ostomate  #nocolonstillrollin 
#Repost @memyselfandmike_austria with @get_repost
・・・
Mike und ich genießen bei Freunden den schönen Tag 👆😍
.
.
#memyselfandmike #ileostomylife #ileostomy #ostomate #ostomy #stoma #swimwithstoma #learnselflove #selbstakzeptanz #selbstliebe #poolfun #withfriends #morbuscrohn #ced #ibd #unicorn #unicornlove #viennablogger
Keeping Bees 🐝 Busy ❤️ This Original Wax Polish is a blend of Brazilian wax and bee’s wax that protects, nourishes and produces a lasting sheen which will maintain and enhance the natural beauty of your wood furniture.Lasting effect
Quick drying and easily applied
Nourishes and protects tired looking wood
A premium protective wax for interior wood i.e. furniture, doors, windows - Email to order - vivamknorwich@gmail.com 
#beeswax #furnitureprotection #lavender #lemon #original #wood #keepingbeesbusy #baggedgirl #justagirlandherbag #ileostomy #stoma #homeshopping #emailmetoorder #norwich #norfolk #happy #instagram #instadaily #instapic
Keeping Bees 🐝 Busy ❤️ This Original Wax Polish is a blend of Brazilian wax and bee’s wax that protects, nourishes and produces a lasting sheen which will maintain and enhance the natural beauty of your wood furniture.Lasting effect Quick drying and easily applied Nourishes and protects tired looking wood A premium protective wax for interior wood i.e. furniture, doors, windows - Email to order - vivamknorwich@gmail.com #beeswax  #furnitureprotection  #lavender  #lemon  #original  #wood  #keepingbeesbusy  #baggedgirl  #justagirlandherbag  #ileostomy  #stoma  #homeshopping  #emailmetoorder  #norwich  #norfolk  #happy  #instagram  #instadaily  #instapic 
I don't #dance enough ❤️❤️
But when I have food in my hand and good music on the radio(thank you #johnmayer 😘) I can't see any reason not to dance 🧚‍♀️💃
---------
Also I've been accepted at #hogwarts so content will change here 😜
--------
Also, also, #bag #whatbag
--------
Jeg danser ikke nok ❤️❤️
Men når jeg har mad i hånden og John Mayer i radioen kan jeg ikke se hvorfor jeg ikke skulle danse 🧚‍♀️💃
--------
Uhhh, jeg er iøvrigt blevet optaget på Hogwarts, så billederne fremover vil være lidt anderledes 😜
------
#ileostomy #ostomate#baglady#crohnswarrior#crohns#crohnsjourney#clc#hidrosadenitissuppurativa #mswarrior #Thursday #harrypotter #primark #ileostomi #stomiliv#stomi #livetmedstomi#kvindeliv #hs
I don't #dance  enough ❤️❤️ But when I have food in my hand and good music on the radio(thank you #johnmayer  😘) I can't see any reason not to dance 🧚‍♀️💃 --------- Also I've been accepted at #hogwarts  so content will change here 😜 -------- Also, also, #bag  #whatbag  -------- Jeg danser ikke nok ❤️❤️ Men når jeg har mad i hånden og John Mayer i radioen kan jeg ikke se hvorfor jeg ikke skulle danse 🧚‍♀️💃 -------- Uhhh, jeg er iøvrigt blevet optaget på Hogwarts, så billederne fremover vil være lidt anderledes 😜 ------ #ileostomy  #ostomate #baglady #crohnswarrior #crohns #crohnsjourney #clc #hidrosadenitissuppurativa  #mswarrior  #Thursday  #harrypotter  #primark  #ileostomi  #stomiliv #stomi  #livetmedstomi #kvindeliv  #hs 
Después de 3 operaciones y 2 malapraxis médicas, las paredes abdominales de su estómago no cerraban y no podía regenerarse la piel para que se viera como normalmente la conocemos, por lo que fue necesario un #sistemavac

Los médicos nos pidieron llevar un trozo de goma espuma (🤐 difícil de creer que ese trozo lograría hacer tanto 🤔) resulta que esterilizado y en quirófano, los doctores se encargaron de colocar un tubito dentro de la goma, una tela que lograba un vacío en esa zona y la protegía y conectado a un envase de vidrio colector, se encargaría de succionar los fluidos que no permitían cicatrizar esa zona.

Con el tiempo cicatrizo y dejo en su cuerpo la marca que hemos mostrado en otras oportunidades... Para nadie es fácil aceptar que se necesita ayuda y más aún, cuando estas acostumbrado a superarlo todo sin necesidad de esta, pero por el momento y en esta oportunidad, crecimos y aprendimos que a veces no está de más pedirla en determinadas circunstancias... esta es una de ellas, si en tus manos esta colaborarnos, puedes hacerlo mediante su cuenta de #gofundme o por western, RIA, bancos, (Esposo) Hernando Celis Rincón Bancolombia cuenta ahorro #020-821118-86. Cédula:5.565.505.
(Hija) Susana Nathaly Celis Vargas Banesco Panamá cuenta ahorro #201801176426. Cédula: 16.085.134

Dios sabrá compensarte... #gofundme #ayuda #ileostomia #venezuela #venezuelasos #ayudahumanitaria #sos #sosvenezuela #vzla #serviciopublico #ileostomy #operacion #fistula #operación #operaciones #hospital #recuperación #recuperacion #medicinas #médicas #hospitaldomingoluciani #sistemavac #malapraxis
Después de 3 operaciones y 2 malapraxis médicas, las paredes abdominales de su estómago no cerraban y no podía regenerarse la piel para que se viera como normalmente la conocemos, por lo que fue necesario un #sistemavac  Los médicos nos pidieron llevar un trozo de goma espuma (🤐 difícil de creer que ese trozo lograría hacer tanto 🤔) resulta que esterilizado y en quirófano, los doctores se encargaron de colocar un tubito dentro de la goma, una tela que lograba un vacío en esa zona y la protegía y conectado a un envase de vidrio colector, se encargaría de succionar los fluidos que no permitían cicatrizar esa zona. Con el tiempo cicatrizo y dejo en su cuerpo la marca que hemos mostrado en otras oportunidades... Para nadie es fácil aceptar que se necesita ayuda y más aún, cuando estas acostumbrado a superarlo todo sin necesidad de esta, pero por el momento y en esta oportunidad, crecimos y aprendimos que a veces no está de más pedirla en determinadas circunstancias... esta es una de ellas, si en tus manos esta colaborarnos, puedes hacerlo mediante su cuenta de #gofundme  o por western, RIA, bancos, (Esposo) Hernando Celis Rincón Bancolombia cuenta ahorro #020 -821118-86. Cédula:5.565.505. (Hija) Susana Nathaly Celis Vargas Banesco Panamá cuenta ahorro #201801176426 . Cédula: 16.085.134 Dios sabrá compensarte... #gofundme  #ayuda  #ileostomia  #venezuela  #venezuelasos  #ayudahumanitaria  #sos  #sosvenezuela  #vzla  #serviciopublico  #ileostomy  #operacion  #fistula  #operación  #operaciones  #hospital  #recuperación  #recuperacion  #medicinas  #médicas  #hospitaldomingoluciani  #sistemavac  #malapraxis 
#Repost @cancersurvivor.ileostomy_lover (@get_repost)
・・・
Never give up...whatever battle you are going through...it will make you stronger!!
When you have passed this stage and look back and be surprised at everything you are capable of!
_______________________________
It is difficult to explain what pain one has, which battle one is going through with a smile on your face...
.
.
.
.
.
#crohnsdisease #crohns #crohnswarrior #life #ileostomy #ostomy #smile #pain #instadaily #ulcerativecolitis #spoonie #crohnsfighter #ibd #ibdawareness #disease #health #invisibleillness #stoma #chronicillness #perfectlyimperfect #fighter #strong #cancer #cancersurvivor #blessed #life #nevergiveup #icandoit #believe
#Repost  @cancersurvivor.ileostomy_lover (@get_repost) ・・・ Never give up...whatever battle you are going through...it will make you stronger!! When you have passed this stage and look back and be surprised at everything you are capable of! _______________________________ It is difficult to explain what pain one has, which battle one is going through with a smile on your face... . . . . . #crohnsdisease  #crohns  #crohnswarrior  #life  #ileostomy  #ostomy  #smile  #pain  #instadaily  #ulcerativecolitis  #spoonie  #crohnsfighter  #ibd  #ibdawareness  #disease  #health  #invisibleillness  #stoma  #chronicillness  #perfectlyimperfect  #fighter  #strong  #cancer  #cancersurvivor  #blessed  #life  #nevergiveup  #icandoit  #believe 
It's time for this week's edition of #ThursdayThreads! Do you have a favorite?⠀
💕⠀
Clockwise:⠀
- 60" Firetrucks flannel line cover⠀
- Sliver and pink central line wraps (new colors!)⠀
- Lilac (new!) silver, fuschia, and wineberry central line wraps⠀
💕⠀
#RockYourMedicalGear #chronicallyfashionable #dysmotility #medicallycomplex #qualityoflife #healthcare #vascularaccess #totalparenteralnutrition #feedingtube #tubie #autism #gusgear #ostomy #dysautonomia #ileostomy #colostomy#centrallines #gtube #chronicillness #shortgutsowhat #shortgutsyndrome #shortgut #broviac #hickman #sbs #raredisease #gastroschisis #hirschsprungsdisease #NEC
It's time for this week's edition of #ThursdayThreads ! Do you have a favorite?⠀ 💕⠀ Clockwise:⠀ - 60" Firetrucks flannel line cover⠀ - Sliver and pink central line wraps (new colors!)⠀ - Lilac (new!) silver, fuschia, and wineberry central line wraps⠀ 💕⠀ #RockYourMedicalGear  #chronicallyfashionable  #dysmotility  #medicallycomplex  #qualityoflife  #healthcare  #vascularaccess  #totalparenteralnutrition  #feedingtube  #tubie  #autism  #gusgear  #ostomy  #dysautonomia  #ileostomy  #colostomy #centrallines  #gtube  #chronicillness  #shortgutsowhat  #shortgutsyndrome  #shortgut  #broviac  #hickman  #sbs  #raredisease  #gastroschisis  #hirschsprungsdisease  #NEC 
1996. I spent the vacations in Greenville with several high school classmates, and back home I went kayaking every day (Mondays were off). The wind made the water rougher and rocked our sprint kayaks. We weren’t excited about a higher chance of tipping over, but we never fell, unless on deliberate purpose. We paddled our 12 km, and came back ashore satisfied. Stone temple pilots, offspring, bush, Sonny Terry/Brownie McGhee and sonny boy Williamson played in my headphones. High school was really bad except for calculus class, which was great and deserved a ton of effort and respect. The rest of the classes were very poor in quality and I actively sabotaged the school without any regrets (well, it’s not the best to become a rebel, there should be a sweet spot between rebel and dumb). Paddling so much back then and I only have one picture out in the water... #familialadenomatouspolyposis #ColonCancerMyAss #SprintKayak #Kayaking #Paddling #1996 #Water #CanoeAndKayak #Canotaje #CanotajeUNAM #UNAM #Cuemanco #Ostomy #Ileostomy #ThrowbackThursday
1996. I spent the vacations in Greenville with several high school classmates, and back home I went kayaking every day (Mondays were off). The wind made the water rougher and rocked our sprint kayaks. We weren’t excited about a higher chance of tipping over, but we never fell, unless on deliberate purpose. We paddled our 12 km, and came back ashore satisfied. Stone temple pilots, offspring, bush, Sonny Terry/Brownie McGhee and sonny boy Williamson played in my headphones. High school was really bad except for calculus class, which was great and deserved a ton of effort and respect. The rest of the classes were very poor in quality and I actively sabotaged the school without any regrets (well, it’s not the best to become a rebel, there should be a sweet spot between rebel and dumb). Paddling so much back then and I only have one picture out in the water... #familialadenomatouspolyposis  #ColonCancerMyAss  #SprintKayak  #Kayaking  #Paddling  #1996  #Water  #CanoeAndKayak  #Canotaje  #CanotajeUNAM  #UNAM  #Cuemanco  #Ostomy  #Ileostomy  #ThrowbackThursday 
Something I’ve always loved to do and always wished I could do more of was travel. ✈️🌎 My health has gotten in the way of my (and my family and friends) traveling for pretty much my whole life. I’ve had to cancel or change plans of more trips than I could count.

I’ve wanted to travel to Europe for years to go visit one of my best friends and AM FINALLY MAKING IT HAPPEN! 
In 1 month I will be going to Europe for 3 weeks! 😍 Germany, Netherlands, Belgium and France ❤️
•
Anyone have any tips for traveling with chronic illness or international travel with chronic illness? ❤️✈️
Something I’ve always loved to do and always wished I could do more of was travel. ✈️🌎 My health has gotten in the way of my (and my family and friends) traveling for pretty much my whole life. I’ve had to cancel or change plans of more trips than I could count. I’ve wanted to travel to Europe for years to go visit one of my best friends and AM FINALLY MAKING IT HAPPEN! In 1 month I will be going to Europe for 3 weeks! 😍 Germany, Netherlands, Belgium and France ❤️ • Anyone have any tips for traveling with chronic illness or international travel with chronic illness? ❤️✈️