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#tb to when I was all smiles on the #lt70 course three weeks ago 💛. Unfortunately, since then I’ve been a bit poorly. I don’t talk about it much publicly as it’s not the most glamorous of illnesses but as many of you know, I have Crohn’s disease and I’ve had a “flare up” of my condition recently, which in a nutshell means gut issues, inflammation and ulcers anywhere in the GI tract - for me, this time, it’s mouth and intestine. After 18 months med free, I’m now back on the meds 😭 But I’m staying positive as I’m already starting to feel a lot better. Anyway, all this has led me to start writing my first blog post on living with Crohn’s and how running and a relatively specific diet has helped keep me symptom free and allowed me to live a normal life most of the time. I wanted to take this opportunity to not only raise awareness for Crohn’s disease but for gut issues more broadly, as so many of us have these problems in today’s world. Anyway, the blog is coming soon. Stay tuned!! 🤓👩💻
📸 credit: Running Biji .
I won't ever sell this,
it is of no value to anyone else.
It is my hospital wrist band.
It is red and white for my allergies.
It is my user registration number.
My date of birth.
It is my 6 week prison.
It saves my life.
Dinner...rice noodles. Massive serve. This is the 'after' pic. Who eats a serve this big? I barely made a dent. But more than 5 or 6 mouthfuls of anything and I get stomach pain. Thats supposedly #crohnsdisease . Does anyone have crohns and have symptoms like that? Ive gained 20kgs while eating next to no food for over a year. No one believes me, of course. But i know what I'm eating...some fruit, some veg, mostly purees. Some lean chicken and beef. A little cheese. Why would I lie??? Most of my calories come from 3 glasses of juice. And do NOT tell me that juice is bad. Juice is easy calories to cut out if you're trying to cut calories. I come in well under 1000 cal most days. And im medically obese. And deficient in many vitamins and minerals which my gastro said was very typical of Crohn's, due to the daily diareah, and not absorbing the nutrition vis an inflammed digestive tract. She prescribed a bunch of expensive supplements and was totally at a loss as to how i could gain so much weight. She joked about whether I eat sugary lollies all day. I like her so I let her live 😂😂😂. Seriously though, I can't be the only person like this. There have to be others. I started gaining weight with the #hrt after #oophorectomy . It seems irreversible. Anyone? #ra#mctd#spondy#hashimotos#hashies#eoe#foodallergies
Buenos días! Bueno, nuevamente lluviosos, seguimos en alerta naranja por lluvias. Este es mi segundo café de hoy desayuné antes, sobre las 7:30 y a estas horas ya pica el gusanillo. Quería enseñar está "sobrasada" o "paté" vegano, está para resucitarte, la textura está para mejorar lo sé pero no sabía que podía añadirle un poco de agua y es la primera vez que la hago, aún así el sabor es 🔝🔝🔝
Lleva pipas de girasol al natural, sal, comino, orégano, pimentón de la Vera, aceite de oliva y un botecito de tomates secos en aceite escurridos, todo en el procesador hasta conseguir una pasta untable. A mi hija le encantó, se puso a dipearla directamente con minitostadas de pasas 😂😂😂 si me descuido no me dejan! Que tengáis buen lunes! #crohnwarrior#crohns#crohnswarrior#crohnsdisease#crohnie#crohn#endosisters#endowarrior#endometriose#endometriosis#endometrios#endosister
Today marks the start of #justacardindieweek and todays prompt is to tell you all about me.
But first a little bit about @justacard its a brilliant campaign promoting makers and small businesses and the idea that even the tiniest purchase from an independent retailer or artist can keep their business going, both financially and mentally giving them a boost.
Anyway for those of you who don't know Ten facts about Kez (Thats me 👋) 🌠I am from Norwich, I've lived other places but there really is no place like home 🌠I have a degree in Visual Studies from @norwichuniarts 🌠I have lived with Crohns disease for 30 years this year 🌠I still have all my Sindy Dolls from when I was a child and spend more money than I should on outfits for them 🌠 I love the process of making, I think its why I'm always trying something new, the problem with that is I have no constant brand what is she going to make with this week, yarn? Fabric? Thread? pencil? ink? paint? all of the above together in a huge sticky abstract mess? 🌠I love to swim its the most relaxing thing in the world 🌠When not making I work part time in the book department of a high street store and spend all my wages on books) my to read pile is huge) 🌠I have no shame about my geekiness, I am a Buffy superfan, and a proud Hufflepuff and I think my next tattoo is going to be a Tardis 🌠My patronus would probably be a hedgehog 🌠I couldn't live without cheese
❄️ WINTER WONDERLAND ❄️ A late addition to the collection! Warm, rustic winter colors with a moose and a bear. 🐻 Lots of ultra soft tweedy yarn in these. ❤️🖤 Really, these are just amazingly soft! 🥰 Look for these in the Slipper Shop tomorrow — or on Etsy. 🤗 Or see all of the other fun winter and holiday slippers! 🎅🏼 Check a few people off your holiday gift list! ✅
Wow. This makes me angry. What do you think? How can we do better? ..
According to a new study: IBD Guidelines Often Saddled With Author Conflicts And Financial Gains.
The study looked at treatment guidelines from the United States, Canada, and Europe
Worst of all: The study was only able to take into account the *reported* conflicts of interest. ..
What do you think? How can we do better? I shared my ideas on my article blog.
Full article and link to study on the One Great Gut blog:
Link in bio
🍨EATING WITH AN ILEOSTOMY
🍕You should be able to eat a normal, healthy diet. A small number of people may find it hard to digest foods containing fibre. If you are having problems, you could try adding fibre to your diet gradually, starting with cooked fruit, like stewed apple.
🍣You may want to avoid small, hard foods like sweetcorn and nuts. If you get a blockage, you may get pain in your abdomen, you may feel sick or bloated and your stoma may stop working.
🍹You will need to make sure you are drinking enough fluids to avoid dehydration. This is particularly important in hot weather or when you are doing a lot of physical activity.
🍦You may sometimes get an increased output from your stoma, if you have a stomach bug. You can replace the lost fluid by drinking as normal.
🍪Eating salty foods will replace the lost salts. You may want to try rehydration drinks, which you can buy from the pharmacy or supermarket.
🍛Taking antibiotics and eating spicy food may also increase the output from your stoma. If you have increased output, try to avoid foods and drinks that can make the bowel more active, like fried foods, caffeine and alcohol.
☕It is important to tell your stoma nurse if you have ongoing problems with increased output and you feel thirsty, faint or weak, or if your urine is a dark yellow colour.
🍔You may have a stoma that produces a higher than normal output, which can cause dehydration. The stoma nurse or a dietitian can give you advice on your diet and medicines.
🔎For more information visit: https://www.crohnsandcolitis.org.uk/about-inflammatory-bowel-disease/publications/living-with-a-stoma
I was 23 visibly unwell losing just under a L of blood from my 🍑 on a daily basis when I was finally diagnosed with Crohn’s disease and shortly after that Ankylosing Spondylitis. With the help of my family, select friends and loved ones (☘️, 👨🏻🍳 ) I have overcome many obstacles. Recently, my body has rejected the most advanced treatments, leaving me again, with the assignment to find a “new normal”. The updated prognosis: severe and complicated. As I struggle unmedicated for the first time in 5 years, I ❓ if it’s ⏰ to take a break and exercise my right to disability. Should I take a leave, all my assets are at risk; my mortgage, lease, investments, job security, future employment opportunities etc. Should I stay, I risk my health. Should I fight the system through human rights or legal battles I’ll remain in limbo until my case is entertained, if ever at all. No options allow for financial aid supportive enough to cover a fraction of my medical expenses let alone the lifestyle I have worked so hard to earn. As I contemplate my next move, despite being the most unwell I have ever been, I am given advice to hide my social media. I am told lawyers, disability counsellors and other non medical investigators will do everything in their power to prove I am not sick “enough”. Ironically, the same individuals working to prove my wellness have historically proven I am disabled enough to be deemed uninsurable. My mortgage remains uninsured, and without a job, I am too sick to purchase private insurance. These non medical professionals will fail to review the hundreds of tests I undergo. They will ignore that I have collapsed veins from extensive treatments, but will go to my Instagram, Facebook, LinkedIn to ensure they have enough data to prove I should remain unworthy of a break. To my dismay, today I change the story on my social media sharing a snapshot of my last year in the hopes to bring some awareness - the options are limited, restricting and must be addressed. To my dear friends, I ask for patience as I take this much needed time for me to find my way back to navigating the body that once allowed me to sit in the drivers seat.
All my love,
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Thanks, #brainfog ! I remember now putting this collection back for a specific reason, and never opening it. And then, I found it today. I've had this one for a while, so honestly I have no idea what I was specifically stashing them for. Luckily, there are a few other very interesting shaped #meltys and I will be making videos of those, as well. So... if I remember, I'll keep ya posted. Anyway, this #skull smelled amazing and was kind of the perfect pick-me-up that I needed today. Things have been really rough - in general lately, and I've been extra fatigued and exhausted because my husband is also ill. And I do not mean so lightly, we're both having a bad time. BUT YO, this was a fun melt and it smells VERY NICE. I can't decide if I'm hot or cold, and break out into hives every night, still? But I don't seem to have a fever and this has been going on for a while so I'm deciding not to worry about it much until I see my doctor again. This #lavishselfcare was lovely today, and it helped we work up the courage to shower and take care of myself, otherwise. If this isn't nice, I don't know what is. #justspooniethings#justsickchickthings#spoonie#autoimmunediseases#crohnsdisease#crohnsbabe#chronicillness#chronicpain#chronicfatigue#meltys#bubbasmeltys#scentedwax#skulllife#gothwife#creepygirlsdoitbetter ❤💀❤💀❤💀🖤⚡🖤
So much GRATITUDE for this wonderful group coming together to support the @crohnscolitisfoundation 🙌🏽🙌🏽🙌🏽 Thank you to @tdmbend @breadhotmama for hosting this opportunity for us to raise funds and awareness for people like myself living with Inflammatory Bowel Disease!! And thank you to my friends, coworkers and my always supportive HUSBAND for coming to the barre!!! I love you all and am so thankful for your support!! 🙏🏼🙏🏼❤️❤️😘😘
Take care of your body, you only get one
I often question why I was diagnosed with Crohn’s Disease. Was it something I ate? Something I didn’t eat? Was it something I did? Something I didn’t do? It can be frustrating to get a diagnosis without knowing a direct cause
Since surgery, I have tried to follow a strict diet that (I think) works for me and a fitness routine to push my limits and keep me in great physical shape. While I feel I’ve done a pretty good job, I am still human. I eat things I probably shouldn’t, take training days off or pull back during the workout
My goal is not to be perfect, as perfection is unattainable, but to improve a little everyday. There is no such thing as the perfect body, perfect diet, perfect anything. That is the beauty of this life, we can ALWAYS do better and make strides to be a better person
The Bible says the body is a temple. By honoring your body, you’re honoring God. It takes a lot of attention and upkeep to maintain but should be a top priority during your entire time on this Earth. God bless
1 Corinthians 6:19-20 “Do you not know that your bodies are temples of the Holy Spirit, who is in you, whom you have received from God? You are not your own; you were bought at a price. Therefore honor God with your bodies.”
There are just a handful of jewelry pieces left in the flash sale happening in my story! (Thank you☺️) You’ll find sale prices up to 65% off💕
This photo features all of the crystals included in the complete crystal set - 24 crystals, corresponding meaning cards + an organizer box! Click the photo to shop 🛍
And lastly, the winner of the $20 gift card giveaway is @sparkfireswan 🎉 Stay tuned for another gift card giveaway this week!
🌼 FLORAL Waters 🌼
Most products first and main ingredient is WATER or AQUA (take a look on all your skincare products.) However in my products where water is used I use #floralwaters !! These are by-products of the essential oil distillation process and as such retain the water soluble properties of the oils.
BAO uses the healing and soothing #Rosewater , #Orangewater , #Peppermintwater and #Chamomilewater to help hydrate, soften and soothe any sensitive skins.