P E J U A N G N I C U Part 2
Si pejuang cilik kalau dijenguk cuma bisa dilihat dari depan pintu ruangan, padahal dia kecil bgt yaa, ditambah ketutup inkubator2 lain 😂 Jadinya yaa banyak2 sabar dulu deh. Keliatan kakinya ajaa udah girang bangett.
Setelah sempat ada perburukan, Amma diizinkan dokter mendekat utk belai2 si kecil. Entah hari ke berapa lupa. Sejak hari itu, tiap jenguk selalu izin perawat utk bisa masuk dan pegang2 bentar 😬
Nah, hari ke 35 Amma baru dibolehkan gendong Mahes untuk pertama kalinya. Syaratnya berat Mahes lebih dari 1250gr. Gendong Mahes dg metode KMC (Kangaroo Mother Care), jadi Mahes didekap di dada Amma. Skin to skin, Heart to heart. Metode ini bertujuan supaya berat badan cepet nambah, tetap hangat dalam pelukan (inkubator alami), dan bayinya makin sejahtera makin sehaaat ❤ Bagi Amma ini sekaligus melunasi IMD (Inisiasi Menyusui Dini) yang tidak terlaksana saat baru saja dilahirkan 😁 (karna tdk memungkinkan)
Tiap hari Amma datang ke RS untuk KMC. Masih keciiil sekali Mahes waktu itu, beratnya kurang dr 1500gr. Jadi waktu itu Mahes belom boleh minum ASI secara langsung. Kemampuan koordinasi menghisap-menelan-bernafas bayi prematur belum sempurna. Padahal insting nenen udah kuat, kadang gak tega juga dia nyari2 puting dan kenyot2 sndri 😔
Trus Mahes minumnya gimana??
Jadi ASI Perah yang dikirim Amma tiap hari, diminumkan lewat selang yg terhubung dr mulut ke lambung. Googling aja selang OGT atau biasa disebut sonde. Sementara itu, tiap hari Mahes oral fisioterapi biar pinter ngenyot 🍼 Luar biasa yaa kecil kecil udah banyak PR 🤗 Semoga kelak jadi anak kuat 💪
Say MaasyaAllah... Tabaarakallah...
Sekarang nggak sangka Mahes hampir 6 bulan usia kronologis. Beratnya sudah 5kg++ ❤❤❤
Teruslah tumbuh sehat & kuat, nak..
Semoga Allah senantiasa memberkahimu. Aamiin.
Hey everyone. In 2 weeks time Steph and I will be Stand Up Paddling from the source of the thames to Windsor to raise money for Wexham Park SCBU and Action Medical Research. It's going to be pretty gritty and averaging 30 miles a day which on a SUP is not that simple!! Any help or support much appreciated please see the link above and below for more information
Happy Birthday to my amazing miracle baby!! Four years ago you blessed our lives and completed our family. You are so sweet and bring us so much joy! You love the color red, dinosaurs, painting and reading. You love playing with your sissy and your cousins. And most recently, amusement park rides. You know all your letters, numbers and can read colors. You are graduating from speech class soon and start preschool on Monday!! I’m so proud of you and am so lucky to be your mommy! Love you to the moon and back ♥️ #JordanJames#preemiestrong#28weeker
Almost-weekend snuggles 😍😊 My little guy likes to snuggle himself right into me, pulls his legs up and literally makes himself smaller than a newborn 😂 I could easily hold 3 of him 😅 last night he crawled under my covers and curled himself into a small ball, nuzzling his tiny little head right underneath mine-literally the size of a pillow! 😍 hopefully we can cuddle/sleep like this for many more years, my little monkey ❤️ (or until Jaxon wakes up and takes up 2/3rds of the couch 😂😂 oh how very different you two are 💕) #jellybeanbyron
I am now the proud owner of... THREE baby burritos! Hurray for baby Leon!!! His clothes are two sizes smaller than his brothers'... which are newborn size :D
All still in hospital until they can eat and Leon's off oxygen. BUT guess what??? Tadzio and Maksio started bottle feeding today! ♡♡♡
Where have the last two years gone?! Cannot believe you’ll be 2 on Saturday! My tiny 2lb 1oz baby is no more. You’re a fully fledged toddler! And I cannot be any prouder 💙 you’ve come on leaps and bounds and I am excited to see you grow into a strong independent boy. Mummy and Daddy love you so much Olly! Now roll on Peppa Pig world! (Think I’m more excited 😂) #bcnov16#preemie#28weeker#howishenearlytwo
🍎 We had our first Physiotherapy appointment today. It was positive to feel like we’re on the way to progress, but still sad to see just how much he can’t do. I think we get used to it and know that he just bum slides/angrily points, but with fresh eyes it became very apparent that he’s going to need a lot of help with almost all movement. Starting a course where he sees her every week and we do exercises at home. So looking forward to improvement for the little guy, as he’s getting so frustrated 😔
He’s like mom, what are you doing in my crib?! Slowly making progress...gaining good weight, weaning on his cpap settings too! Next week we are trying high flow nose cannula and then we can start oral feeds!!!
Happy 13 months sweet girl.
The last two months you have been sick non stop with colds and runny noses. You have been a pain in my A most of the time but are still a very happy, easy going bub.
You can wave, blow kisses, clap, throw things, and play peek-a-boo like a champ.
You climb into everything and get stuck trying to escape out the dog door.
You have 7 teeth and an 8th cutting now.
You think you’re a speed crawler and try to out run me to the dog biscuits and escape getting dressed. You love to steal the dog toys and make them chase you to get it back.
You can say Mum, bub, hi, bye and bazzy. Still no dad!
You can stand and take a few steps along furniture.
Favorite foods - yogurt, raisin toast and ice cream (thanks pops!). Favorite toys - anything that makes loud, obnoxious noise or getting into the toilet paper and eating it.
Favorite activity - going to play ground and playing with older kids or scratching mums face
Favorite way to annoy Mum - hang off her leg and pull down her pants
Love you Milo grace
🍼 World Breast Feeding Week 🍼
My little man arrived 12 weeks earlier than planned. He weighed 1lb10 and didnt have the best survival chances. The neonatal consultant told me that they were reluctant to give him formula and that if i couldnt or wouldnt express milk then i should consent to donated milk to give him the best chance. So obviously i decided to try. For the first week or so he was only feeding on 0.4ml per hour so i managed to build up a good supply. Eventually he started feeding more and more and i sobbed and sobbed while expressing. It hurt and i hated it. I expressed in the middle of the night at home while my baby lay connected to tubes in hospital. It was horrible. Eventually after 5 long and horrible weeks we were told he had grown enough to wean him into prem baby formula. He was tube fed until 10 weeks. So i never had a latch or anything like that. He hadnt developed a suck reflex by the time he was born
If my son had been born full term i would have bottle fed. So this is not a rant on the importance of breast feeding.
Ladies just do you. If you try and you hate it and you sob and baby hates it. Stop. There is absolutely no shame in formula. I promise you a baby with a full tummy and a happy mummy is much happier than a baby struggling to feed with a stressed out mummy. If you have no intention of breast feeding and theres no medical need for breast milk thats cool too.
And to every nicu mum sobbing into a pumping machine. You got this! Nicu is such a short time in all your lives in the grand scheme of things
Today is a very special day because it marks 1 year since we brought our little Elia home from the NICU! In some ways today is more special than her birthday. It’s been the best year of our lives and boy has she grown!!! 👩🏻👶🏻🧔🏻❤️. #28weeker#preemiepower#nicubaby#brooklynbaby
#Repost @anytimewedance with @get_repost
After 49 days, 1 brain surgery, 1 G-tube surgery, 6 EEGs, 2 MRIs, 1 EKG, 3 types of seizures diagnosed, 7 new medications, 2.4 lbs gained, and countless tears shed, our NICU stay has come to close. We finally got to bring our baby boy home yesterday afternoon. This journey is far from over as we will be managing his seizures and hydrocephalus very closely. Ozzie will have an apnea monitor to wear while he's sleeping, and we will be in constant communication with our neurology team regarding his seizures. We have no idea what to expect from here, but we will take things one day at a time and count our blessings because we know things can change in a matter of seconds.
We thank God for guiding us through this extremely difficult hospital stay and for always watching over our family. It is only through God's grace that Ozzie is healthy enough for us to bring him home, and we are so grateful for this precious gift. We also thank the entire team of doctors, nurses, and therapists at Children's for taking such great care of Ozzie and supporting us through it all.
And last but certainly not least, we thank every single one of you for following Ozzie's story. You have been so gracious, kind, supportive, and loving every step of the way. I honestly don't know what we did to deserve the overwhelming amount of love that we feel. It's truly humbling, and we wish we could thank each one of you personally. You have no idea how much it means to us. We simply could not do this journey alone.
Please continue to pray for us as we start this new phase of life with Ozzie. Managing his seizures at home is a whole new world and will bring on new fears and major anxieties as our lives will look a little different now. All that matters is that we have each other, an excellent team of doctors, and a supportive community filled with love and hope. #OzzieDeason#littlebuddy#preemie#NICUgrad#28weeker#hydrocephalus#hydrowarrior#hydrocephalusawareness#epilepsy#homeagain "Consider it pure joy, my brothers and sisters, whenever you face trials of many kinds, because you know that the testing of your faith produces perseverance." (James 1:
Removing Huck’s wires! Who can relate?! “Taking Your Baby Home from the NICU”: How my baby born at 28 weeks came home 100% Breastfed. Families, it is essential you are involved in the daily care of your child. 1. It is so important to keep in close communication with your baby’s team and advocate for your involvement. 2. Keeping your supply up- it is important to eat, drink and sleep to maintain your milk supply. Shoot to pump at least 8 times a day. 3. Early Breast feeds are so important to establish breastfeeding- even if your infant isn’t actually latching and transferring milk, he is receiving all your milk through his feeding tube. Use this to your advantage! Let baby nestle by your breasts and smell your milk during feeds. — by the time your baby is ready for oral feeds, you both will know each other so well, the only thing left is the actual latching and removing milk from your breasts! There is way more to breastfeeding than just food! Let’s celebrate the mother/infant relationship! ❤️ you got this, mamas! Photos taken August 6, 2016 Huck’s Discharge Day! #preemie#prematurebaby#28weeker#breastfeeding#breastfeedingsupport#birth#nicu#homecoming#motherbaby
Today is this little 🐰’s due date. She obviously did not want to share a birthday with her mom! I can’t believe how far you’ve come little London Dolores. You are my best birthday gift ever! #28weeker#littleLD
ONE YEAR AGO TODAY RYLAND CAME HOME!! 🎉🎉 After 85 days in the NICU Ryland was finally able to come home about a week after his due date.
He was not thrilled with all these re-enactment posses 🤷🏼♀️🙈😂😂 but hey, you gotta celebrate!! 🎉
This little beauty is 32 weeks today, a month old and just so gorgeous! I had wonderful snuggles with this girl today, put her in her new nappies that are the right size for her 🙌🏻 and only heard crying when the nurse, Sue, took her to put her back in her incubator for her feed; too cute!! She will be weighed tomorrow so not sure how much she's gained (though she definitely looks a bit chubbier to me) and she's settled in to the new hospital well! Dahnika, our little morning star ⭐️ one month old today 😍♥️🎉👶🏻 xxxxxxxx #dahnikaig#preemie#preemiebaby#tiny#baby#love#mum#sahm#nhs#onemonthold#32weeks#28weeker#smallbutmighty#littlebutfierce#allthathair 😍😍😍
I cannot explain how thankful I am I Have these times with you. Not long ago you were living your days in the NICU. I didn’t know when the light would peek through and the end of the tunnel in that part of our journey would be over. The day you were born was the scariest day of my life and I thought you were gone. I thought I wouldn’t survive and i mean that as in I crashed...placental abruption and stuff. What’s most important is your here and im here to witness the miracle you are. Gods perfection of creation. To be your mother, your siblings mother. Through all this thAnkfulness there are dark moments in the 10 sq feet I can move with him around my pArents living room because of his monitor that I just start to think. . I wondered each day how i would make it to the next if you ever wonder what the life of a NICU mom is like here’s a short version....waking up daily from a sleepless night of worry planning your day around when you have a sitter and can make it to hospital praying over your miracle in constant fear and hoping gods plan matches yours. Wondering why your body failed them and how you would take their place. Watching in amazement how strong someone yes SOMEONE because he’s a BABY could fight so hard and be so tiny and how thankful I am for that. He has his father’s strength. Thank you god for that. Counting my blessings and praying on my knees as I watch them bag my sons tiny blue body when he can’t breathe and I can’t help him. Those days each moment will never leave me and it hurts my heart. The scary moments and the little triumphs. I will fight for you, care for you, and love you all the days of your life. God granted me this precious gift, I am your protector and I will guide you to Jesus. For you son are so loved and wanted. God is good. 🙏🏻🙏🏻🙏🏻🙏🏻❤️ #niculife#blessedlife#nicubaby#micropreemie#preemie#3monthsold#prayfordash#28weeker#blessed#nicumom#myboy#warrior#nicugrad#preemiepower#faithfulness#tinybuymighty#smallbutmighty#warrior#brave#dash#incredibles#disney#superhero
This is to the Mama with the baby twins sitting at home, not knowing how to settle both her screaming babies at once. Not knowing how to get dressed, drink a hot coffee or let alone leave the house.
This is to the Mama carrying around the oxygen tank attached to her premature baby, worrying about every tiny little germ in the air, envious of the baby that can go to swim and sensory classes.
This is to the Mama who can barely leave the house without help, hasn’t been to the supermarket in almost a year, envious of all the Mums who just throw their ONE baby into a wrap and go.
I was that Mum - for a long time. And whenever someone would tell me that one day, I would sit and watch my tiny, fragile babies play together without a care, I wouldn’t believe them.
So maybe, if you are that Mum too, you might believe me. Because not even 1 quick year later and I sat on the swings watching my happy, healthy boys play TOGETHER all on their own without a care.
Hang in there! If you are a preemie Mum longing for the days where you don’t spend every waking minute worrying about your little one‘s health or wether you are a twin Mum and wish that you had about 10 more arms and hands. Or, like me, if you are both. It’s so worth it - I promise!! ❤️